Thesis (MCur)--University of Stellenbosch, 2011. / ENGLISH ABSTRACT: The National Cancer Association of South Africa estimates that over 80,000 of South Africans currently die from cancer each year, whilst statistics show an increase in newly diagnosed cancer cases. Despite an improvement in cure rates, cancer, because of its association with pain, suffering and death, still affects human beings in their totality. It has been demonstrated that effective psychosocial care, as provided by oncology nurses, improve the outcomes for cancer patients. Therefore, nurses’ attitudes towards caring for patients that are dying are of vital importance to the quality of care provided to these patients. Attitudes towards caring for patients that are dying may be influenced by the demographic factors of oncology nurses, such as age, workplace and years of experience in oncology. It may also depend on the degree of work satisfaction and by the nature of the work environment, particularly regarding the level of support being offered to the nurse. The purpose of this study hence was to explore the influences of demographic and work environment factors on nurses’ attitudes towards caring for patients that are dying in oncology settings in the Western Cape Metropole. The objectives of this study were to determine oncology nurses’ attitudes towards caring for patients that are dying, to determine the degree of work satisfaction experienced by these nurses, to determine the perceived supportive nature of their work environments, and to establish and examine any relationships between oncology nurses’ attitudes towards caring for patients that are dying and demographic factors, work satisfaction and a supportive work environment. This study was theoretically underpinned by Paterson and Zderad’s (quoted in Praeger, 2002) humanistic nursing theory and Peplau’s (quoted in Belcher & Brittian Fish, 2002) interpersonal relations in nursing theory, because of their relevance to palliative care. A quantitative research approach, with a descriptive design, was selected to conduct the study. The target population was all the oncology nurses, caring for patients that are dying in palliative and oncology settings in the Western Cape Metropole. A convenience sample of 127 oncology nurses was selected in three different, but typical oncology settings, namely a state hospital, a private hospital and three hospices. Data was collected by means of a selfreporting questionnaire. A pilot study was done, in order to assure the validity and reliability of the data collection instrument. Ethical approval was obtained in advance from the Ethical Research Committee of the Faculty of Health Sciences of the University of Stellenbosch. Written consent was obtained beforehand from the managers of the three oncology settings where the research was conducted, as well as from the participants. The main findings of this study were that the majority of the respondents displayed positive attitudes towards caring for patients that are dying. In addition, most of the respondents experienced a high degree of work satisfaction and also regarded their work environments as supportive. Significant relationships were found between positive attitudes towards caring for patients that are dying and: • hospice settings; • higher age and; • rank of the professional nurse. The overall recommendation that was made was that continuing education in all aspects of palliative care be regarded as an essential strategy in maintaining and further enhancing positive attitudes amongst oncology nurses towards caring for patients that are dying. In addition, coping strategies needed to be widely implemented to help oncology nurses cope with their emotions and anxieties. / AFRIKAANSE OPSOMMING: Die Nasionale Kankervereniging van Suid-Afrika beraam dat meer as 80,000 Suid-Afrikaners huidig jaarliks aan kanker sterf, terwyl statistieke ‘n toename in die aantal nuwe gevalle van kanker toon. Ten spyte van ‘n toename in die sukses van behandeling, beïnvloed kanker, weens sy assosiasie met pyn, lyding en die dood, steeds die mens in sy totaliteit. Dit is bewys dat effektiewe psigososiale versorging deur onkologiese verpleegkundiges die uitkomstes van pasiënte met kanker verbeter. Daarom is die ingesteldhede van verpleegkundiges, jeens die versorging van pasiënte wat sterwend is, van kardinale belang in die kwaliteit van versorging wat aan hierdie pasiënte gebied word. Sodanige ingesteldhede mag deur demografiese faktore, soos ouderdom, werkplek, en jare ondervinding in onkologie, beїnvloed word. Dit mag ook van die mate van werksbevrediging en van die aard van die werksomgewing, spesifiek met betrekking tot die mate van ondersteuning wat aan die verpleegkundige gebied word, afhang. Die doel van hierdie studie was dus om die invloed van demografiese en werksomgewingsfaktore op die ingesteldhede van onkologiese verpleegkundiges, jeens die versorging van pasiënte wat sterwend is in onkologiese afdelings in die Wes-Kaapse Metropool, te ondersoek. Die doelwitte van hierdie studie was om die ingesteldhede van verpleegkundiges jeens die versorging van pasiënte wat sterwend is te bepaal, om hulle mate van werksbevrediging te bepaal, om hul persepsie van die ondersteunende aard van hul werksomgewing te bepaal, en om enige verband tussen onkologiese verpleegkundiges se ingesteldhede jeens die versorging van pasiënte wat sterwend is en demografiese faktore, werksbevrediging en die aard van ‘n ondersteunende werksomgewing te bepaal en te ondersoek. Hierdie studie is teoreties, vanweë hul relevansie tot palliatiewe sorg, deur Paterson en Zderad (aangehaal in Praeger, 2002) se humanistiese teorie en Peplau (aangehaal in Belcher & Brittian Fish, 2002) se interpersoonlike verhouding in verplegingsteorie, onderskraag. ‘n Kwantitatiewe navorsingsbenadering, met ‘n beskrywende ontwerp, is gekies om die studie mee uit te voer. Die populasie het al die onkologiese verpleegkundiges, wat sterwende en palliatiewe pasiënte in kankerafdelings in die Wes-Kaapse Metropool versorg, ingesluit. ‘n Gerieflikheidsteekproef van 127 onkologiese verpleegkundiges, in drie verskillende, maar tipiese kankerinstellings, is gekies, naamlik ‘n staatshospitaal, ‘n privaathospitaal en drie hospitiums. Datainsameling is deur middel van ‘n self-gerapporteerde vraelys gedoen. ‘n Loodsstudie is uitgevoer om die geldigheid en betroubaarheid van die vraelys te verseker. Etiese goedkeuring is vooraf vanaf die Etiese Navorsingskomitee van die Fakulteit Gesondheidswetenskappe van die Universiteit van Stellenbosch verkry. Skriftelike toestemming is ook vooraf vanaf die bestuur van die instellings, waar die navorsing gedoen is, sowel as van die deelnemers verkry. Die hoofbevindings van hierdie studie was dat die meerderheid van die respondente positiewe ingesteldhede jeens die versorging van pasiënte wat sterwend is openbaar het. Boonop het die meeste respondente ’n hoë mate van werksbevrediging ervaar en hul werksomgewing as ondersteunend beskou. Beduidende verbande is getrek tussen positiewe ingesteldhede jeens die versorging van pasiënte wat sterwend is, en: • versorging in hospitiums; • hoër ouderdom en; • rang van professionele verpleegkundige. Die algemene aanbeveling wat gemaak kon word was dat deurlopende opleiding in alle aspekte van palliatiewe sorg, as ‘n grondliggende strategie beskou moet, ten einde positiewe ingesteldhede ten opsigte van die versorging van pasiënte wat sterwend is onder onkologiese verpleegundiges te behou en verder aan te moedig. Voorts behoort strategieë geïmplementeer te word om onkologiese verpleegkundiges te help met die hantering van hul emosionale behoeftes en vrese.

Em odontologia, pacientes com necessidades especiais são aqueles com doença ou situação clínica, que implique em um atendimento diferenciado. O Centro de Especialidades Odontológicas é a referência municipal da Estância Hidromineral de Poá - SP, para atendimento odontológico especializado a todos os grupos desta população, nos âmbitos ambulatorial e domiciliar. O objetivo deste estudo foi comparar as necessidades de tratamento periodontal, de restaurações dentárias, exodontias e do uso de próteses removíveis destes indivíduos, atendidos no período de janeiro de 2011 a dezembro de 2016, em relação aos diferentes grupos de diagnóstico e com a população em geral. A amostra total foi composta pelos Pacientes com Necessidades Especiais, também denominados PNE, do CEO-Poá (n=497). Foram avaliados gênero, idade, diagnóstico principal, história médica, âmbito de atendimento, tabagismo, etilismo, acometimentos sistêmicos, e necessidades odontológicas. Os dados foram compilados para o formulário eletrônico epi info 7.0, tabulados, e analisados estatisticamente. No perfil deste PNE, idade média de 37,9 anos, sendo 50,75% do gênero masculino, principalmente com doenças sistêmicas (32,59%) seguida de deficiências físicas (16,70%). As principais necessidades dos PNE foram os tratamentos periodontais (60,70%), seguido das exodontias (59,55%), e restaurações dentárias (57,95%), sendo todos estes percentuais maiores que da população em geral. A reabilitação protética foi possível em 17,11% dos indivíduos, principalmente no grupo denominado condições sistêmicas. O uso de próteses removíveis destes PNE foi menor que da população em geral, e associada ao tipo de diagnóstico e faixa etária. Esses achados reforçam a importância da prevenção odontológica para PNE em CEOs. / In dentistry, patients with special needs are those with a disease or a clinical situation that require a differentiated care. The Center of Dental Specialties of Poá Spa Town is the municipal reference for specialized dental care, therefore have a large number of patients encompassing all categories of diagnosis in this diverse group of people. Treatments are carried out in the outpatient setting, at home, or patient may also be referred to a hospital for general anesthesia. The present study aims to analyze the impact patients diagnosis has on their dental needs. Dental needs for each diagnosis will be considered for attended patients from 2011 to 2016. The physical records will be reviewed, and the demographic data compiled to an electronic form that was specially developed for this study (Annex C). After statistical analysis, it will be possible to verify if there is a relation between main diagnosis, age, gender, scope of care, medical history and dental needs of this group of patients. The compilation of this information will allow a better understanding the characteristics of population attended in a particular municipality. Protocols to meet the dental needs of each group will be suggested. This knowledge may favor safe dental practice, implantation of new services or their improvement. Also may help developing new strategies to promote oral health and better quality of life for these patients.

The Centers for Medicare and Medicaid Services have been working with hospital networks across the United States to improve health care through education and training on clinical best practices and leadership frameworks. Some organizations have failed to reach the high-quality standards of care expected and have adverse patient care outcomes. The purpose of the study was to determine the relationship between leadership actions, funding type, and clinical care outcomes in participating Partners for Patients hospital programs in Iowa. The secondary variable data were provided from a Partnership for Patients contractor, through the Centers for Medicare and Medicaid Services Organizational Assessment Tool. Multiple linear regression analyses were used to determine the relationship between the leadership actions, funding type, and the clinical quality outcomes of catheter-associated urinary tract infections, central line associated bloodstream infections, falls with injury, and venous thromboembolism. The findings demonstrated no statistically significant relationships between leadership actions, such as completing a leadership checklist, incident dashboard, and board involvement in decision making, and the specified clinical care outcomes. There was a statistically significant relationship between leadership actions of completing a root cause analysis for incidents, federal funding type, and the clinical quality outcomes of falls with injury and venous thromboembolism. The results of this study will be shared with Partnership for Patients program leadership to positively impact patient care. The results may be useful as organizations continue to implement best practices to reduce medical errors, save cost, and increase patient safety.

The thesis discusses the education of patients with left ventricular support HeartMate II. Theoretical part is focused on education and its ethical and legal aspects, on the description of the educational process. Furthermore it focuses on heart supports, especially on left ventricular assist device HeartMate II. To provide a comprehensive overview, I have included also information about the anatomy and physiology of the cardiovascular system and the section on heart failure. I described the specifics of nursing care for patients with implanted HeartMate II system and the educational topics that should be part of the education of these patients. The empirical part was prepared as a quantitative research, where research sample was 47 respondents. Respondents consisted of nurses who educate patients after implantation of the HeartMate II at the cardiovascular surgical intensive care unit. To create the feedback I complemented a quantitative research with structured interviews with patients after implantation of the HeartMate II. The aim of the research was to determine the status and range of education of patients with left ventricular assist device HeartMate II. This thesis further maps the topics on which is placed the emphasis in education and vice versa topics that would need to focus more on....

科学研究費補助金 研究種目:一般研究(B)(2) 課題番号:06452303 研究代表者:山下 哲郎 研究期間:1994-1996年度

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Made available in DSpace on 2016-04-28T20:40:13Z (GMT). No. of bitstreams: 1 Maria Cecilia Roth.pdf: 1037999 bytes, checksum: a84bb089e6c2eeaeb50eebcab9fe66a6 (MD5) Previous issue date: 2009-10-02 / Pontificia Universidade de São Paulo / Hospital psychology in Brazil started with the work of psychologists who began their activities as auxiliary to medical diagnosis. Thereafter, psychologists have gradually tried to define and understand their role together with patients who were hospitalized. Identifying psychological demand, in the presence of disease, has been a challenge for psychologists accustomed to the therapeutic setting of the clinic. Working and communicating with a multidisciplinary team, as well as understanding the dynamics of the hospital, has created new challenges for the hospital psychologist. Similarly, finding a new approach for the patient has required a deconstruction of the most traditional methods, as the merely verbal approach may be impossible since this patient is often unable to communicate verbally. Several studies, particularly with children, try to introduce new resources to the approach of the hospital patient such as music and visual arts (Oaklander) and play therapy ( Lindquist). As the number of professional psychologists is still small vis a vis the number of patients who could benefit from this assistance, developing other ways to deal with hospitalized patients becomes necessary. Tthe objectives of this research were to discuss how the music workshop may become a working resource of the hospital psychologist and how the participation of hospitalized patients with chronic kidney disease in the music workshop may facilitate the expression of meaningful life experiences. The research was developed in a specialization hospital located in the city of São Paulo with patients hospitalized for chronic kidney disease. The workshop was held twice a week for a period of 18 months in the corridor of the hospital. it was conducted by two musician-psychologists that played hillbilly guitar and guitar. The songs played were requested by the patients themselves. Five patients were interviewed (four men and one woman ), three of which had undergone a transplant some time before, one had just undergone a transplant and the last was still undergoing hemodialysis treatment. the interviews were done immediately after their participation in the workshop. in order to understand and discuss the patients experience of becoming sick we used concepts of the philosopher Martin Heidegger and followers as a theoretical reference. The main focus in analyzing the interviews was the way each interviewee dealt with his being ill . At the end of the research we were able to discuss the music workshop as a resource for hospital psychologists and what having participated in this workshop meant to the patients / A psicologia hospitalar teve início no Brasil a partir de trabalhos de psicólogos que iniciaram suas atividades como auxiliar no diagnóstico médico. A partir daí, foi o psicólogo, gradativamente, procurando definir e compreender seu papel junto aos pacientes afetados organicamente, na instituição hospitalar. Identificar a demanda psicológica na presença da afecção orgânica tem sido um desafio para psicólogos acostumados com o setting terapêutico de consultório.Trabalhar e se comunicar com uma equipe multiprofissional, bem como compreender a dinâmica da instituição hospitalar tem colocado o psicólogo hospitalar frente a novos desafios. Da mesma forma, encontrar uma forma de abordagem do paciente doente tem requerido deste profissional uma desconstrução dos métodos mais tradicionais de abordagem do paciente, como a meramente verbal, pois que o doente encontra-se muitas vezes impossibilitado de comunicar-se verbalmente. Vários trabalhos, em especial com crianças, procuram introduzir novos recursos para a abordagem do paciente hospitalizado como a música e artes plásticas (Oaklander) e a ludoterapia (Lindquist). Como o número de profissionais psicólogos nos hospitais em geral ainda é bastante pequeno frente ao número de pacientes internados que poderiam se beneficiar desse atendimento, faz-se necessário que outras formas de abordagem do paciente internado sejam desenvolvidas. Os objetivos desta pesquisa foram discutir como a Oficina de Música pode vir a ser um recurso de trabalho do psicólogo hospitalar e compreender como a participação do paciente renal crônico hospitalizado na Oficina de Música pode favorecer a expressão de vivências significativas. A pesquisa foi desenvolvida num hospital de especialidade de grande porte, na cidade de São Paulo, com pacientes renais crônicos internados. A oficina ocorreu duas vezes por semana por um período de 18 meses, no corredor no Hospital. Foi conduzida por dois psicólogos-músicos que tocavam viola e violão. As músicas tocadas eram as solicitadas pelos próprios pacientes. Foram entrevistados cinco pacientes, dos quais quatro homens e uma mulher, sendo que três estavam transplantados há algum tempo, um estava no pós- transplante imediato e outro ainda estava em hemodiálise. As entrevistas foram realizadas imediatamente após a participação dos mesmos na Oficina de Música. Para a compreensão e discussão do adoecer dos pacientes usamos como referencial teórico conceitos do filósofo Martin Heidegger e seguidores. O modo de ser-doente de cada entrevistado foi o foco central da análise das entrevistas. Ao final do trabalho pôde-se discutir sobre a Oficina de Música como um recurso para o trabalho do psicólogo hospitalar e sobre o que significou para esses sujeitos terem participado da Oficina de Música

我國全民健康保險制度自2004年1月1日開始使用健保IC卡後，醫療資訊電子化的趨勢，某種意義上來說，已經如凱撒（Gaius Julius Caesar）渡過盧比孔河（Crossing the Ribucon）時所說：「骰子已經投下（the die is cast）」一般，只能前進不能後退了！ 時至今日，電腦、網路連線、憑證簽章已經成為任何一間醫療院所從事醫療行為時的開門七件事之一，民眾用健保IC掛號、醫師用電腦下診斷作病歷、行政人員用健保VPN申報費用等，皆成為醫療實務中的標準模式。而我國衛生署也信心滿滿地希望能於2011年達到全國80%醫院實施電子病歷、60%醫院可為院際交換互動之目標。在此「全民電子病歷」旋將施行之當下，相關隱私權之配套對於病人之保障是否足夠，即成為該政策是否受到國人支持之關鍵所在。 本研究透過整理衛生署自2000年迄今所有與電子病歷相關之專案計畫，以及與電子病歷領域，產、官、學界共9位受訪者進行深度訪談後發現，我國現行電子病歷政策推廣有架構、標準、法制、補助、動機等五大問題，其中關於法制規範及隱私保障不足所造成的民眾疑慮與醫事人員躊躇，已成為電子病歷發展上的一大阻礙，而其中計畫推行的電子病歷索引交互中心，更可能對於病人資訊隱私權產生重大危害與影響。另一方面，若回頭省視司法院大法官釋字第603號解釋，大法官們其實已對涵蓋電子病歷等個人資料之資訊隱私權，有過相當明確的闡釋。其所強調「個人自主控制其個人資料之資訊隱私權」，若能配合2010年5月26日修正通過但尚未施行之個人資料保護法，並非不能為電子病歷提供一個基本、框架式的法律基礎。 在此前提之下，本文提出「電子病歷自主控制機制」之概念，主張在現行憲法資訊隱私權之精神下，應該讓病人在充分瞭解到其權益後，得以選擇「是否將病歷電子化」、「電子病歷儲存場所」、「是否放於交換區」、「是否留存索引紀錄」、「是否允目的外利用」，並能透過管道隨時查詢其「電子病歷使用紀錄」。本文並認為，藉由「推力理論（Nudge）」中「自動加入（Opt-in）」與「主動加入（Opt-out）」等「預設值（Default）」概念之運用，資訊科技中「隱私偏好選項（Privacy Preference）」與「電子病歷使用紀錄明細」等系統之設立與使用，以及國際相關隱私及安全規範之借鏡，與我國健保IC卡推行之在地經驗，或許能夠解決論者對於電子病歷自主控制機制，在參與度、決定能力、行政成本、法規及技術架構、多元價值上的各項疑慮與爭論，並進而證明該構想之初步可行性。 / After implementation of the National Health Insurance (NHI) IC Card on January 1, 2004, the trend of e-health, including enforcing a national electronic medical record (EMR) system in Taiwan, is reminiscent of Julius Caesar’s words when he crossed the Rubicon, “The die is cast.” The return point has been passed; there is no return. Nowadays in Taiwan it has become routine in hospitals and clinics for medical practitioners to use a digital authentication or signature transmitted via a computer scan of an NHI IC card to register patients for diagnosis and treatment, and for administrtive staff using Virtual Private Network (VPN) to file fee claims. Furthermore, the Taiwan Department of Health has announced its implementation of the EMR system and has pledged that, in 2011, 80 percent of hospitals and clinics will start to use a more comprehensive EMR system and 60 percent of hospitals will be able to exchange EMRs. However, while Taiwan’s government is very proud and eager to enforce the EMR system, an increasing number of people doubt that adequate regulations have been put in place to protect against the violation of patients’ information privacy rights. This paper first reviews all former DOH projects related to EMRs, and interviews nine industry, government, and academic professionals who have EMR experience. It next argues that the current laws and regulations in Taiwan cannot provide sufficient protection of patients’ privacy rights, especially with regard to information privacy and autonomy. This is a cause for concern for patients and practitioners who are leery of further EMR implementation or development. This paper proposes a controlling mechanism for patients’ autonomy that will empower patients to determine if they want to electronize their medical records, where they will store their EMRs, and if it is in their best interests to set up an index and allow the transmission of additional EMRs. Moreover, patients will have unrestricted access to a log of all users and uses made of their EMRs and be able to set up their own privacy preferences with opt-in and opt-out choices. This paper concludes that the controlling mechanism for patients’ autonomy will solve the current concerns about the implemenation of a national EMR system and improve patients’ ability to enforce their information privacy and information autonomy rights.