D.Cur.( Psychiatric Nursing Science) / Please refer to full text to view abstract

published_or_final_version / Social Work / Master / Master of Social Work

M.A. / A child's life-threatening illness has severe implications for the family. Changes in lifestyle which result from an illness of this nature influence the child-patient's own life, as well as the lives of people who are in close contact with him, i.e. his parents and healthy siblings. Literature on the subject suggests that the healthy siblings suffer due to the illness and that their needs are not addressed during the illness. They often become the victims of emotional neglect, due to the lack of meaningful contact with their parents. Literature also suggests that parents often judge their healthy children to he handling the situation of one child's lifethreatening illness far more successfully than they actually are. Healthy siblings may also develop death anxiety due to this experience. Due to these, and various other reasons, the healthy siblings of children with life-threatening illnesses constitute a population which is at risk of developing moderate and severe personal, social and psychological problems. The aim of this study was to investigate how healthy siblings experience a child's lifethreatening illness and how this experience influences the healthy siblings. The study also aimed to determine the effect of a child's life-threatening illness on healthy siblings' levels of death anxiety. These aims were achieved by conducting interviews with healthy siblings, as well as their parents. The three families which were included in this study were contacted through a local state hospital. In all three families one child had been diagnosed with a life-threatening illness. All the healthy siblings who were interviewed were between the ages of nine and 16. Both qualitative and quantitative data analyses were incorporated by this study. The qualitative data for the study was gathered by means of open-ended interviews with healthy siblings and their parents. These interviews were then analysed according to the phenomenological research method. The quantitative data for the study was gathered by means of the Death Anxiety Questionnaire for Children (Malan, 1996) which was constructed far the study. The results of the qualitative data of all the participants of the study were combined in the final analysis, to determine how healthy siblings experience a child's life-threatening illness and what effect this experience has on them. The quantitative results of the study were analysed and interpreted in association with the qualitative results. The findings of this study suggest that a child's life-threatening illness constitutes a traumatic and emotional experience for the child's healthy siblings. Various conclusions were drawn as to the effects which this experience may have on the healthy siblings. The study also determined that a child's life-threatening illness influences healthy siblings' levels of death anxiety. According to these findings hypotheses may be set for future research. The results of this study is of value to the fields of psychology, social work and medicine. In the .fields of counselling and child psychology, the results serve to improve the understanding of families, and especially , children, who are experiencing the life-threatening disease of a family member. In the fields of social work and medicine the results serve to improve the relations between professionals and families of child-patients with life-threatening illnesses.

published_or_final_version / Nursing Studies / Master / Master of Nursing in Advanced Practice

Thesis (M. (Nursing)) -- University of Limpopo, 2022 / Caring for terminally ill cancer patients is considered stressful and heartbreaking. Oncology nurses often consider leaving the nursing profession because of the high levels of stress experienced by these health care professionals. The aim of this study was to investigate the experiences and the practices of nurses who care for terminally ill cancer patients in the Pietersburg Provincial Hospital in the Capricorn District of the Limpopo Province. The objectives of this study were to explore and describe the experiences and practices of nurses who care for terminally ill cancer patients and further to describe the relationship between certain demographic variables and nurses’ experiences of death. An additional objective was to develop recommendations and strategies that might assist management of the Pietersburg Provincial Hospital with the development of appropriate skills and the implementation of emotional support that could assist nurses who care for dying cancer patients in the oncology wards. The study followed a phenomenological, descriptive, exploratory and contextual research design, which assisted the researcher to describe and explore the experience and practices of nurses caring for terminally ill cancer patients. Semi-structured interview method was used to collect data, making use of an interview guide, was used because it is a more free-flowing approach, with its structure being limited only by focusing on the research. Field notes were captured during the data collection session by the researcher. A voice recorder was used to capture all the interview sessions. The initial data analysis started with the researcher listening to the recordings and transcribing verbatim all statements made by the participants. Tesch’s open coding data analysis method was used by following the proposed eight steps to analyse qualitative data as outlined in Creswell (2013). Ethical standards as set in Babbie (2013) were adhered to by the researcher. The researcher requested permission to conduct the study from the Limpopo Department of Health Ethics Research Committee and informed consent was obtained from the participants before collecting data. Privacy of the participants was ensured as participants were never called by their names. In the study participants shared different views with respect to caring for dying cancer patients. Some participants regarded caring for cancer patients as stressful and heartbreaking. Other oncology nurses blamed the management for not providing them with courses to assist them with caring for dying cancer patient, nor providing debriefing sessions for them. On the other hand, some oncology nurses believed that relocating to other wards was a better solution. The participants suggested the following improvements for caring for dying cancer patients; oncology nurses should be offered short courses to assist them with the challenges that they come across with regard to caring for dying cancer patients. Oncology nurses need support from the management and colleagues in order to cope with the workload. Oncology nurses need psychological assistance to help them with the psychological stressors they experience. Family members and patients need health education on how to deal anticipatory grief. / University of Limpopo

This survey examined anticipatory grief as a process of grieving that occurs when a loved-one has been diagnosed with a life-threatening illness. The inevitability of loss creates certain needs and feelings for the survivor. The study examined these needs, the extent to which these needs were satisfied, and the feelings. Finally, the relationship between dissatisfaction of important needs and certain feelings was observed. Findings show that certain needs, such as the need to gain knowledge about illness and to feel emotional support from family members rate as extremely important by the greatest number of respondents. These needs were not, however, rated as highly satisfied. It was also found that feelings such as anger, loneliness, and frustration were rated as occurring frequently when prognosis of death was within a year. Lastly, there was found to be a positive relationship between dissatisfaction of needs and these feelings.

No description available.

Introdução: O processo de morrer é uma experiência vinculada a considerações significativas para a existência do ser, principalmente quando sobrevêm no contexto familiar. Objetivo: compreender a experiência do familiar de pacientes em fase terminal de vida, que enfrentam o processo de morrer no mundo do hospital. Método: Com esta proposta, optei por realizar uma pesquisa qualitativa, norteada pela Fenomenologia existencial de Martin Heidegger. Os sujeitos do estudo foram 15 familiares que estavam acompanhando seus pacientes adultos, em fase terminal de vida, que enfrentavam o processo de morrer em um hospital universitário de Maceió, Alagoas. Os depoimentos foram obtidos por meio de entrevista, no período de fevereiro a maio de 2013, a partir da seguinte questão norteadora: Conte-me como é para você vivenciar a situação do seu familiar atualmente. Resultados: Da análise dos depoimentos dos familiares emergiram três estruturas, denominadas unificações ontológicas: Manifestação de Angústia dos familiares, que envolve a possibilidade do ser assumir-se como um ser-para-a-morte; Manifestação do Cuidado e da Solicitude, que compreende o momento de cuidar como algo significativo na existência; e Ser-aí no mundo do hospital, que compreende o ser lançado no mundo onde o limite entre a vida e a morte é tão estreito. Conclusões: A compreensão do fenômeno vivido por esses familiares permitiu apreender a dimensão do sofrimento relativo à condição de estar-no-mundo cuidando no processo de morrer. Aponta a relevância do tema MORTE na formação dos profissionais de saúde, sinalizando importância da reflexão dessa temática, para desenvolver uma assistência que seja compatível com a situação vivenciada pelos familiares diante da terminalidade. / Introduction: The death process is an experience linked to significant considerations to the existence of the being, mainly when they take place in the family context. Objective: To understand the experience of family members of terminal patients, who face the death process in the hospital setting. Method: A qualitative study was developed, in light of the existential phenomenology of Martin Heidegger. Study subjects were 15 family members who were accompanying adult terminal patients, who faced the death process at a teaching hospital in Maceió, Alagoas. The statements were obtained by means of interviews, between February and May of 2013, based on the following guiding question: What is it like for you to experience the current situation of your relative? Results: The analysis of the statements of the family members generated three structures, named ontological unifications: Manifestation of anxiety by the family members, involving the possibility of the individual assuming her/himself as a being-to-death; Manifestation of the care and concern, which comprehends the moment of caring as a meaning in the existence; and Dasein in the hospital setting, which comprehends the being inserted in a world with a narrow limit between life and death. Conclusion: The understanding of the phenomenon experienced by these family members allowed to apprehend the dimension of the suffering regarding the condition of being-in-the-world providing care in the death process. This study points to the relevance of the death theme in the education of health professionals and the need for reflecting on this issue so as to develop a compatible care to the situation experienced by families in face of this terminal situation.

Made available in DSpace on 2016-07-27T14:19:53Z (GMT). No. of bitstreams: 1 LAURA MENESES VINHAL.pdf: 679036 bytes, checksum: b3a974fc1a50a1fd7a2292f33a734d46 (MD5) Previous issue date: 2012-04-16 / This study aimed to identify, describe and analyse the psychological aspects of mothers of children with cancer, while experiencing the process of illness treatment and terminal. The sample consisted of six mothers (22-30 years) of children ages between 3 and 12 years, who were in cancer treatment. We used a Statement of Informed Consent (IC), a social-demographic questionnaire, the habits of family and personal and clinical data of the patient, Inventory of coping strategies by Folkman and Lazarus, a range of internal dynamics of the family and a roadmap for semi-structured interview. The first chapter provides a literature review related to the themes: family, dynamics, cancer, diagnosis, cancer treatment, and psychological impact of childhood cancer, death, grief and coping. In Chapter 2, is displayed on the actual field research, conducted with mothers of children in cancer treatment. In this chapter we used the guidelines for publication of the journal Psychology: Reflection and criticism." In general, it was realized that the way mothers experience the experience of having an infant son, strickenwith cancer, is different in each situation, considering the history of life, relationships and bonds prior to the illness and the structure for available coping resources. / O presente estudo objetivou identificar, descrever e analisar os aspectos psicológicos de mães de crianças com câncer, quando vivenciando o processo de enfermidade, de tratamento e de terminalidade. A amostra foi constituída de seis mães (22 a 30 anos) de crianças com idades entre 3 e 12 anos, que encontravam-se em tratamento oncológico. Foram utilizados um Termo de Consentimento Livre e Esclarecido (TCLE), um questionário sócio-demográfico, de hábitos de vida do familiar e dados pessoais e clínicos do paciente, Inventário de estratégias de coping de Folkman e Lazarus, uma Escala da dinâmica interna da família e um Roteiro de entrevista semiestruturada. O primeiro capítulo oferece uma revisão de literatura relacionada aos temas: dinâmica familiar, diagnóstico de câncer, tratamento oncológico, câncer infantil e impacto psicológico, morte, luto e coping. No Capítulo 2, é apresentado o texto referente à pesquisa de campo propriamente dita, realizada junto às mães de crianças em tratamento oncológico. Neste capítulo foram utilizadas as diretrizes de publicação da Revista Psicologia: Reflexão e Crítica . Em geral, percebeu-se que a forma com que as mães vivenciam a experiência de ter um filho ainda criança, acometido pelo câncer, é diferenciada em cada situação, considerando a história de vida, as relações e vínculos anteriores ao adoecimento e à estrutura para disponibilizar recursos de enfrentamento.

邵倩文. / "2012年5月". / "2012 nian 5 yue". / Thesis (M.Div.)--Chinese University of Hong Kong, 2012. / Includes bibliographical references (leaves 50-54). / Abstract in Chinese and English. / Shao Qianwen. / 摘要 --- p.i / ABSTRACT --- p.ii / 目錄 --- p.iv / Chapter 第一章： --- 引言 --- p.1 / Chapter 1.1. --- 現代化社會下的臨終者的處 境 --- p.1 / Chapter 1.1.1. --- 醫療化的死亡´ؤ´ؤ非人性化、割裂化之的治 療 --- p.3 / Chapter 1.1.2. --- 在社會上隔離臨終 者 --- p.3 / Chapter 1.1.3. --- 視「死亡與臨終」爲禁忌，爲羞恥´ة爲失 敗 --- p.4 / Chapter 1.1.4. --- 小 結 --- p.4 / Chapter 1.2. --- 「死亡意識」運動興 起 --- p.5 / Chapter 1.3 --- 教會、牧者在現今的社會中如何回應臨終者的處境 --- p.7 / Chapter 1.3.1. --- 基督教會放棄與「否認死亡」文化抵抗´ة間接隔離臨終者 --- p.7 / Chapter 1.3.2. --- 「牧養關懷」探索以基督的身份、角色去回應臨終者處境 --- p.9 / Chapter 1.4. --- 本文硏究目的 --- p.10 / Chapter 1.5. --- 本文硏究方法 --- p.11 / Chapter 第二章： --- 臨終者及臨終關懷者個人處境 --- p.13 / Chapter 2.1. --- 臨終者自身的需要´ؤ´ؤ靈性層面 --- p.13 / Chapter 2.1.1. --- 臨終病者的靈性觀及靈性需 要 --- p.13 / Chapter 2.1.2. --- 臨終病者期望怎樣的醫護人員能關顧他們的靈性需 要 --- p.16 / Chapter 2.2. --- 臨終關懷者的狀況´ؤ´ؤ提供靈性護理層 面 --- p.18 / Chapter 2.3. --- 臨終關懷者的給予關懷上的阻 礙 --- p.20 / Chapter 2.3.1. --- 不同的崗位，不同的功能´ؤ´ؤ牧關工作者的同在要 求 --- p.20 / Chapter 2.3.2. --- 牧關工作者「同在」的無助感、孤單感及耗盡 感 --- p.21 / Chapter 2.3.3. --- 減輕牧關工作者的耗盡感及無助感的矛 盾 --- p.22 / Chapter 2.4. --- 小 結 --- p.24 / Chapter 第三章： --- 莫特曼的十架三一神論 --- p.25 / Chapter 3.1 --- 莫特曼十架的三一神論建構的進路 --- p.25 / Chapter 3.1.1. --- 從經驗苦難的生平，而引發的神學思 維 --- p.25 / Chapter 3.1.2. --- 以回應社會處境´ة而引發三一論構思的演變進 程 --- p.27 / Chapter 3.2. --- 莫特曼三一論的特 色 --- p.28 / Chapter 3.2.1. --- 莫特曼面對當下處境三一論說的扭 曲 --- p.29 / Chapter 3.2.2. --- 以上帝的歷史的向度，對抗上帝爲「最高的實體」 --- p.31 / Chapter 3.2.3. --- 以內在三一´ة對抗上帝爲「絶對主體」 --- p.33 / Chapter 3.3. --- 小 結 --- p.38 / Chapter 第四章： --- 莫特曼的三一論與牧養臨終者 --- p.40 / Chapter 4.1. --- 三一神論´ة提供牧養臨終者的原則 --- p.40 / Chapter 4.2. --- 從三一神論，去定義牧關工作者的身份與位置 --- p.42 / Chapter 4.3. --- 十架三一論，爲牧養臨終者的過程提供指引 --- p.44 / Chapter 4.4. --- 小結 --- p.47 / Chapter 第五章： --- 總結´ؤ´ؤ莫特曼的三一思維的進路限制與展望 --- p.48 / Chapter 第六章： --- 參考書目 --- p.50 / Chapter 6.1. --- 英文參考書目 --- p.50 / Chapter 6.2. --- 中文參考書目 --- p.53