The aim of the study was to explore and describe participants` understandings of sexual abuse involving teenage learners with intellectual disability in order to suggest the best approach for caring and supporting intellectually challenged teenage learners with a history of sexual abuse in a rural area of KwaZulu-Natal. This was a qualitative study using Bronfenbrenner`s ecological approach. This approach enables me to describe understandings about the phenomenon studied and how factors interact with each other and individuals in forming such understandings. Data was obtained by means of in-depth interviews which were conducted one on one with teachers of the special schools and SGB member, Social Worker, Psychologist and Crisis Centre Coordinator, local church person, parent of intellectual disabled child as well as traditional healer. The study revealed that sexual abuse of teenage learners with intellectual disability is riddled with myths and misconceptions that rendered them vulnerable to various forms of sexuality in the community. Recommendations based on the findings were made: promoting a better understanding of intellectual disability, sexuality education, and promoting the right attitude. / Inclusive Education / M. Ed. (Inclusive Education)

The purpose of this study is to deepen the knowledge of how feedback and evaluation with a focus on formative assessment is perceived in terms of what, how and why by a few teachers working in special needs school with a focus on training school. To answer the purpose of this study three questions were formed, What is the teachers` understanding of formative assessment in relation to other practices of assessment and feedback? How do the teachers say they practice feedback and assessment with a formative assessment focus in their teaching practices? What pros and cons do some teachers believe there is in using formative assessment? The study is based on qualitative group interviews with teachers in two schools where all the teachers are active in the training school. The interviews were recorded. To identify the descriptions made by the teachers the transcribed material has been interpreted in terms of the didactic triangel. The results show that teachers are distinctly positive to the use of formative assessment though some negative aspects have been enlightened. The teachers consider formative assessment as increasing the status in today`s school and that the knowledge requirements are clear in the education which leads to a recurring assessment as well as a focus on the learning process. The results also show that documentation and reflection plays an important part in the learning process and that formative assessment promotes learning by using the right artifacts and clear feedback that makes visible the learning of the student. This is conducted by interaction. It is, however, stated that due to the level and type of disability formative assessment is more or less easy to implement. Students at an early stage of development and students in the autism spectrum tend to be more difficult to apply formative assessment to. The results also show that some teachers believe that formative assessment tend to take too much time, as well as demanding more time consuming documentation. / Syftet med denna studie är att fördjupa kunskapen om hur återkoppling och bedömning med fokus på formativ bedömning uppfattas i termer av Vad, Hur och Varför av några lärare som arbetar på grundsärskolan med inriktning träningsskolan. För att besvara syftet formulerades tre frågeställningar, Vad uppfattar lärarna att formativ bedömning är i förhållande till andra bedömnings och återkopplingspraktiker? Hur uppger lärarna att de praktiserar återkoppling och bedömning med fokus på formativ bedömning i sin undervisningspraktik? Vilka för- och nackdelar anser några lärare att det finns med formativ bedömning? Studien bygger på kvalitativa gruppintervjuer med lärare på två skolor där samtliga lärare är verksamma inom träningsskolan. Intervjuerna spelades in. För identifiering av lärarnas beskrivningar har det transkriberade materialet tolkats med hjälp utifrån den didaktiska triangeln. Resultatet visar att lärarna är genomgående positivt inställda till användandet av formativ bedömning men vissa negativa aspekter har belysts. Lärarna anser att formativ bedömning höjer statusen i dagens skola, att kunskapskraven är tydliga i undervisningen vilket leder till att bedömning sker återkommande hela tiden samt att fokus är på lärprocessen. Resultatet visar även att dokumentation och reflektion fyller en viktig del i lärprocessen samt att formativ bedömning främjar lärandet med hjälp av rätta artefakter och tydlig återkoppling som synliggör lärandet för eleven. Detta sker genom interaktion med varandra. Resultatets negativa aspekter med formativ bedömning visades vara att elever på tidig utvecklingsnivå kan vara svåra att genomföra formativ bedömning tillsammans med samt elever inom autismspektra. Resultatet visade att lärarnas uppfattningar var att formativ bedömning kräver mera av lärarna vilket kan ses som tidskrävande samt att dokumentation ses som en svårighet i genomförandet men otroligt viktig del i processen.

Thesis (PhD)--University of Stellenbosch, 2011. / ENGLISH ABSTRACT: The aim of this study is to develop a vocational training programme for the adolescent learner with an intellectual disability. There is a need for these learners to be trained for work in the open labour market. From the literature it is apparent that American legislation is in place for these learners to gain access to schools, colleges and universities. The literature also makes it clear that parent involvement and community involvement are essential for the planning and implementation of a vocational training programme. To answer the research question, a qualitative participatory action research study was conducted from an interpretive research paradigm. The researcher implemented multiple sources to generate data, namely semistructured interviews, a literature review, personal documents and field notes. In the course of the study a number of steps were taken to ensure the credibility of the data and to pay attention to the ethical aspects that emerged during the research. The literature review extends over two chapters: Firstly the American legislation on vocational training programmes for the adolescent with intellectual disabilities was studied, as well as the South African Educational legislation after 1994. Secondly the three national curriculum programmes are described, namely Outcomes-based Education, Curriculum 2005 and the National Curriculum Statement. The vocational training programme was developed in accordance with the principles of the National Curriculum Statement, learning area Life orientation, Learning outcome 5: the world of work. The development of the learning programmes,work schedules and the lesson plans were adapted to suit the needs of the learners with intellectual disabilities. The findings concluded that schools can train learners to prepare them for entering the open labour market. The teachers cannot do the vocational training in school alone; they need the support of the parents and the community. / AFRIKAANSE OPSOMMING: Die doel van die studie is om 'n beroepsgerigte opleidingsprogram vir die adolessente leerder met intellektuele gestremdheid te ontwikkel. Daar is 'n behoefte vir hierdie leerders om opgelei te word om toegang tot die ope arbeidsmark te verkry. Uit die literatuur is dit duidelik dat Amerikaanse wetgewing vir beroepsgerigte opleiding in plek is vir die genoemde leerders om tot skole, kolleges en universiteite toegang te verkry. Ouer- en gemeenskapsbetrokkenheid is belangrik in die beplanning en implementering van 'n beroepsgerigte opleidingsprogram. In antwoord op die navorsingsvraag is 'n kwalitatiewe deelnemendeaksie-navorsingstudie vanuit 'n interpretatiewe paradigma onderneem. Die navorser het van verskeie bronne gebruik gemaak om data te genereer, naamlik semigestruktureerde onderhoude, 'n literatuurondersoek, persoonlike dokumente en veldnotas. Tydens die studie is verskillende maatreëls toegepas om die geloofwaardigheid van die data te verseker. Die etiese aspekte het ook aandag geniet. Die literatuurstudie strek oor twee hoofstukke. Die eerste behels die Amerikaanse wetgewing op beroepsgerigte opleidingsprogramme, sowel as die Suid-Afrikaanse wetgewing ná 1994 op spesiale onderwys. Tweedens is die drie kurrikulumbenaderings ondersoek, naamlik Uitkomsgebaseerde Onderwys, Kurrikulum 2005 en die Nasionale Kurrikulumverklaring. Die beroepsgerigte opleidingsprogram is ontwikkel volgens die beginsels van die Nasionale Kurrikulumverklaring in die leerarea Lewensoriëntering, Leeruitkomste 5: Die wêreld van werk. Die ontwikkeling van die leerprogramme, werkskedules en lesplanne is aangepas volgens die behoeftes van leerders met intellektuele gestremdhede. Die bevindings het gelei tot die gevolgtrekking dat leerders op skool opgelei kan word om die ope arbeidsmark te betree. Die opvoeders kan nie die beroepsopleiding op skool alleen vermag nie; hulle benodig die ondersteuning van die ouers en die gemeenskap.

Syftet med denna studie var att undersöka socionomers uppfattning om förhållningssättet i arbetet med lindrigt utvecklingsstörda föräldrar. Studien syftar även till att undersöka om variationen i förhållningssättet är kopplat till organisation och yrkesroll. Materialet bestod av sex semistrukturerade intervjuer med socionomer från tre olika organisationer som arbetar med föräldrar som har lindrig utvecklingsstörning. Dessa var Vuxenhabiliteringen, LSS- verksamheter och Individ- och familjeomsorgen. I studien genomfördes en telefonintervju med en forskare som har expertkunskaper kring utvecklingsarbetet för föräldrar med lindrig utvecklingsstörning.  Forskarens fokus kopplas till socionomernas upplevelser av arbetet, organisationens roll i arbetet samt betydelsen av samverkan.  Studien syftade till att analysera resultatet utifrån två teoretiska perspektiv. Dessa är Gräsrotsbyråkrati samt Människobehandlande organisationer.  Resultatet i studien visar på att socionomerna i dessa organisationer har olika förhållningssätt beroende på den verksamhet som de arbetar i samt den yrkesroll de har i organisationen. Studien indikerade även hur dessa organisationer påverkar föräldraskapet hos lindrigt utvecklingsstörda föräldrar. / The aim of this study was to describe and analyse social workers’ approach in working with parents with mild intellectual disability. The study intends to find out if work approach is related to position and type of organisation. The data consists of six semi structured interviews with social workers from three different organisations that in work meet parents with mild intellectual disability. These organisations were Vuxenhabiliteringen, LSS and Individ- and Familjeomsorgen. In addition, an interview with a researcher that has expert knowledge in development for parents with mild intellectual disability was done. In the analysis the experiences of social workers were linked to organizational tasks and importance of cooperation. The study purposed to analyse the result from two theoretical perspectives; street- level bureaucracy and human-service organisations. The result shows that social workers in the organisations have different approaches dependent on what organisation they work in and the role and working tasks they have in work. The study also indicated how the organisations and their tasks affected the parenthood for persons with mild intellectual disabled parents.

Thesis (MEdPsych (Educational Psychology))--University of Stellenbosch, 2008. / The inclusion policy which is currently being implemented according to White Paper 6 (July 2001) has raised many questions and debates. In South Africa at the moment there is a focus on the implementation of inclusion policies in primary schools. Although many studies have been conducted on Down syndrome, there seems to have been little focus on the adolescent. Specifically their experiences in the high school context appear to have received little attention. This paper focused on the experiences of an adolescent with Down syndrome who has been mainstreamed into a high school. The experiences are discussed within identified indicators of quality of life namely; peer relationships, experiences of academic, general school and extra-mural activities. In addition the effects of Down syndrome on areas such as adolescence, inclusion strategies, behaviour and social skills are also investigated. The findings of this paper were that of adolescents with Down syndrome can be successfully mainstreamed if their individual needs are catered for. These needs include opportunities to spend time with learners with the same abilities as their own. Satisfaction was experienced by the participant and her parents regarding her academic placement and scholastic achievements. A factor that played a role in her successful placement was the supportive environment she was in. Although satisfaction was experienced with regards to the process of inclusion there were parental concerns regarding her future independence.

Thesis (MEdPsych (Educational Psychology)--Stellenbosch University, 2008. / The research aims to investigate the employment experiences of a South African adult with Down syndrome, and to explore whether this improves the quality of life for this adult across several areas of functioning. This qualitative research design is situated within an interpretive research paradigm. A Case study method was used. Data have been produced using multiple sources and techniques to enhance validity. These include interviews, observation, field notes and questionnaires. Full account has been taken of ethical considerations. The case study shows that this adult with Mosaic Down syndrome and intellectual disability, who is permanently employed in the open labour market, is seen as an asset by the company. Training and support have benefited him and extra supervision and attention needed are minimal. His skills, attitudes, and family support have also enhanced his quality of life. This adult's employment experiences have contributed to a culture of acceptance of and openness to intellectual disability in the formal industrial sector. This is an example of what can be accomplished regardless of intellectual disability. As this is a case study the generalisation of the findings are limited.

Le syndrome du X fragile (SXF) est la première cause héréditaire de déficience intellectuelle et également la première cause monogénique d’autisme. Le SXF est causé par l'expansion de la répétition du nucléotide CGG sur le gène FMR1, ce qui empêche l’expression de la protéine FMRP. L’absence du FMRP mène à une altération du développement structurel et fonctionnel de la synapse, ce qui empêche la maturation des synapses induite par l’activité et l’élagage synaptique, qui sont essentiels pour le développement cérébral et cognitif. Nous avons investigué les potentiels reliés aux événements (PRE) évoqués par des stimulations fondamentales auditives et visuelles dans douze adolescents et jeunes adultes (10-22) atteints du SXF, ainsi que des participants contrôles appariés en âge chronologique et développemental. Les résultats indiquent un profil des PRE altéré, notamment l’augmentation de l’amplitude de N1 auditive, par rapport aux deux groupes contrôle, ainsi que l’augmentation des amplitudes de P2 et N2 auditifs et de la latence de N2 auditif. Chez les patients SXF, le traitement sensoriel semble être davantage perturbé qu’immature. En outre, la modalité auditive semble être plus perturbée que la modalité visuelle. En combinaison avec des résultats anatomique du cerveau, des mécanismes biochimiques et du comportement, nos résultats suggèrent une hyperexcitabilité du système nerveux dans le SXF. / We investigated early auditory and visual information processing in Fragile X Syndrome (FXS), the most common form of X-linked Intellectual Disability (ID) and the only known monogenetic cause of autism. FXS is caused by a trinucleotide repeat expansion in the FMR1 (‘Fragile X mental retardation 1’) gene, which prevents expression of the ‘fragile X mental retardation protein’ (FMRP). FMRP absence leads to altered structural and functional development of the synapse, while also preventing activity-based synapse maturation and synaptic pruning, which are essential for cerebral and cognitive development. We review the contribution of electrophysiological signal studies for the understanding of information processing in FXS and compare event-related potential (ERP) findings to those concerning other clinical populations that share symptoms with FXS. In our research project, we investigated ERPs evoked by basic auditory and visual stimulation in twelve adolescents and young adults (10-22) with FXS, as well as healthy chronological- and developmental- age matched controls. We found an altered ERP profile in FXS, including increased auditory N1 amplitude, relative to both control groups, as well as increased auditory P2 and N2 amplitudes and increased auditory N2 latencies. Rather than being immature, sensory processing appears to be specifically disrupted in FXS. Furthermore, the auditory modality seems to be more affected than the visual modality. In combination with brain anatomical, biochemical and behavioural findings, our results suggest a hyperexcitable nervous system in FXS.

La présente recherche a pour objet la pratique orthophonique en suppléance à la communication (SC) auprès de personnes qui ont une déficience intellectuelle (DI). Des recherches ont montré que les aides à la communication à sortie vocale (ACSV) pouvaient améliorer la communication des personnes ayant une DI. Cependant, la plupart de ces recherches ont été menées dans des conditions idéales qui ne reflètent pas nécessairement celles que l’on retrouve dans les milieux cliniques typiques. On connaît peu de choses sur les pratiques professionnelles en SC auprès des personnes ayant une DI. Le but de cette recherche est de décrire la pratique orthophonique, de documenter les perspectives des utilisateurs sur les résultats des interventions et de décrire l’implication des parents et leurs habiletés à soutenir leur enfant dans l’utilisation d’une ACSV afin de proposer un modèle d’intervention en SC auprès de cette clientèle qui tienne compte de ces différentes perspectives. Une méthode qualitative a été choisie pour réaliser la recherche. Des entrevues individuelles semi-structurées ont été réalisées avec onze orthophonistes francophones et avec des parents ou familles d’accueil de dix utilisateurs d’ACSV et des entrevues structurées ont été menées avec huit utilisateurs d’ACSV. Un outil d’entrevue a été conçu à l’aide de pictogrammes pour permettre aux utilisateurs d’ACSV de répondre à des questions portant sur leur appréciation et utilisation de leur ACSV, leur satisfaction et priorités de communication. Un cadre conceptuel a été conçu à partir des guides de pratique clinique et un codage semi-ouvert a été utilisé pour réaliser les analyses thématiques des données provenant des orthophonistes. Un codage ouvert a servi à analyser les données provenant des parents. Des analyses descriptives ont servi à examiner les réponses des utilisateurs. Diverses procédures ont assuré la crédibilité des analyses. Entre autres, les analyses des entrevues des orthophonistes ont été validées lors d’un groupe de discussion avec sept participantes orthophonistes. Les résultats montrent que les ACSV sont utilisées surtout dans le milieu scolaire. Elles sont parfois utilisées lors des loisirs et dans la communauté, mais ces contextes sont ceux où les utilisateurs ont exprimé le plus d’insatisfaction et où se situe la majeure partie des priorités qu’ils ont identifiées. Les analyses ont permis d’identifier les facteurs qui rendent compte de ces résultats. Les orthophonistes manquent d’outils pour réaliser des évaluations exhaustives des capacités des clients et elles manquent de procédures pour impliquer les parents et obtenir d’eux une description complète des besoins de communication de leur enfant. Conséquemment, l’ACSV attribuée et le vocabulaire programmé ne répondent pas à l’ensemble des besoins de communication. Certaines orthophonistes manquent de connaissances sur les ACSV ou n’ont pas le matériel pour faire des essais avec les clients. Il en résulte un appariement entre la personne et l’ACSV qui n’est pas toujours parfait. À cause d’un manque de ressources en orthophonie, les parents sont parfois laissés sans soutien pour apporter les changements à la programmation lors des transitions dans la vie de leur enfant et certains ne reçoivent pas d’entraînement visant à soutenir l’utilisation de l’ACSV. Un modèle d’intervention en SC est proposé afin d’améliorer la pratique orthophonique auprès de cette population. / This research targets the practices in Augmentative and Alternative Communication (AAC) of speech-language pathologists (SLPs) who work with individuals who have an intellectual disability (ID). Prior research has shown that speech generating devices (SGDs) can help individuals with ID to improve their communication. However, these studies were conducted under ideal conditions, which do not necessarily reflect those that prevail in typical clinical settings. We have little information about AAC practices with individuals with ID or about the efficacy of SGD attribution and AAC intervention under typical conditions. The goals of this research are therefore to describe AAC practices of SLPs with individuals who have an ID, to document the users’ perspectives on the outcome of AAC interventions and to describe the parents’ implication and their abilities to support their child’s use of an SGD in order to propose an intervention model that takes into account these different perspectives. Qualitative methods were chosen to address these questions. Individual semi-structured interviews were conducted with eleven French-speaking SLPs and with the parents or foster families of ten SGD users, and structured interviews with eight SGD users. These interviews were analyzed in order to gather information about research questions. An evaluation tool, made of graphic symbols, was developed to gather information from SGD users about their use of their SGD, their satisfaction, and communication priorities, and about their appreciation of their SGDs. A conceptual framework was developed based on clinical practice guidelines to analyze SLP’s interviews, and a thematic analysis was conducted with semi-open coding. Open coding was used for the data from parents’ interviews, and descriptive analysis of the SGD users’ responses was performed. Steps were taken to ensure credibility of the findings; in particular a focus group was conducted with seven of the participating SLPs to validate the interview results. The results showed that the SGDs are used most frequently in school settings. They are used only occasionally in leisure activities and in the community, but these are the contexts in which the users were most dissatisfied with their communication and in which they most frequently indicated priorities for communication. Factors that explain these results were identified through thematic analysis. SLPs lack the tools they need to perform a comprehensive evaluation of the users’ capacities. They lack procedures for involving parents in the evaluation and for obtaining a thorough description of their child’s communication needs. This might result in attribution of SGSs and identification of vocabulary that do not meet the user’s needs. Some of the SLPs lack sufficient knowledge and do not have SGDs available for trials with their clients, resulting in a less-than-perfect matches between the users and the SGDs. Lack of professional resources leaves parents without support to make changes needed in times of transition in their child’s life. Parents may be unable to support their child’s use of SGD in a variety of contexts. An attribution and AAC intervention model is proposed in order to improve AAC intervention and SLP’s practices.

Dans ce mémoire, je cherche à déterminer pourquoi les animaux non humains ne sont pas considérés comme étant autonomes dans les théories libérales contemporaines. Pour ce faire, j’analyse deux conceptions traditionnelles de l’autonomie, soit l’autonomie en tant qu’agentivité morale et l’autonomie hiérarchique (en tant que capacité à agir selon ses désirs de second ordre), et je soutiens que ces deux conceptions ne réussissent pas à bien justifier le respect des choix personnels même chez les agents humains. J’avance que ces deux conceptions de l’autonomie mènent à des conclusions perfectionnistes et paternalistes à certains égards, ce qui est pourtant contraire à leur fonction. J’analyse ensuite quelques versions alternatives de l’autonomie qui ne reposent pas sur la possession de facultés morales ou rationnelles, avant de proposer une nouvelle conception de l’autonomie qui pourrait répondre aux problèmes soulevés et potentiellement reconnaître l’autonomie des animaux non humains. / In this M.A. research, I try to understand why nonhuman animals are not considered autonomous in the contemporary liberal theories. To do this, I analyze two main conceptions of autonomy, autonomy as moral agency and hierarchical autonomy (as the capacity to act according to second-order desires), and I argue that these conceptions both fail to justify the respect of personal choices even for human agents. I suggest that these two conceptions of autonomy lead to perfectionist and paternalist conclusions, although this is inconsistent with their function. I then review a few alternative versions of autonomy that do not rely on possessing moral or rational faculties, before sketching a new conception of autonomy that could answer the different issues raised during this research and potentially recognize the autonomy of nonhuman animals.

Le syndrome du X fragile (SXF) est la première cause héréditaire de déficience intellectuelle et également la première cause monogénique d’autisme. Le SXF est causé par l'expansion de la répétition du nucléotide CGG sur le gène FMR1, ce qui empêche l’expression de la protéine FMRP. L’absence du FMRP mène à une altération du développement structurel et fonctionnel de la synapse, ce qui empêche la maturation des synapses induite par l’activité et l’élagage synaptique, qui sont essentiels pour le développement cérébral et cognitif. Nous avons investigué les potentiels reliés aux événements (PRE) évoqués par des stimulations fondamentales auditives et visuelles dans douze adolescents et jeunes adultes (10-22) atteints du SXF, ainsi que des participants contrôles appariés en âge chronologique et développemental. Les résultats indiquent un profil des PRE altéré, notamment l’augmentation de l’amplitude de N1 auditive, par rapport aux deux groupes contrôle, ainsi que l’augmentation des amplitudes de P2 et N2 auditifs et de la latence de N2 auditif. Chez les patients SXF, le traitement sensoriel semble être davantage perturbé qu’immature. En outre, la modalité auditive semble être plus perturbée que la modalité visuelle. En combinaison avec des résultats anatomique du cerveau, des mécanismes biochimiques et du comportement, nos résultats suggèrent une hyperexcitabilité du système nerveux dans le SXF. / We investigated early auditory and visual information processing in Fragile X Syndrome (FXS), the most common form of X-linked Intellectual Disability (ID) and the only known monogenetic cause of autism. FXS is caused by a trinucleotide repeat expansion in the FMR1 (‘Fragile X mental retardation 1’) gene, which prevents expression of the ‘fragile X mental retardation protein’ (FMRP). FMRP absence leads to altered structural and functional development of the synapse, while also preventing activity-based synapse maturation and synaptic pruning, which are essential for cerebral and cognitive development. We review the contribution of electrophysiological signal studies for the understanding of information processing in FXS and compare event-related potential (ERP) findings to those concerning other clinical populations that share symptoms with FXS. In our research project, we investigated ERPs evoked by basic auditory and visual stimulation in twelve adolescents and young adults (10-22) with FXS, as well as healthy chronological- and developmental- age matched controls. We found an altered ERP profile in FXS, including increased auditory N1 amplitude, relative to both control groups, as well as increased auditory P2 and N2 amplitudes and increased auditory N2 latencies. Rather than being immature, sensory processing appears to be specifically disrupted in FXS. Furthermore, the auditory modality seems to be more affected than the visual modality. In combination with brain anatomical, biochemical and behavioural findings, our results suggest a hyperexcitable nervous system in FXS.