Under federal law, students with disabilities have the right to be educated in classrooms with students without disabilities. For students with autism, social, communication, and behavioral deficits make inclusion difficult. The severity of deficits change over time, and therefore, so too do the effects of these deficits upon inclusion. Although most research indicates autism symptoms improve with age, some studies suggest symptoms worsen, thereby affecting classroom placement. Students with autism use a multitude of interventions, most of which are not evidenced-based. Behavioral interventions are among the small number of treatments that can decrease autism severity and foster inclusion. However, behavioral interventions have not been compared to other widely used treatments, and in practice, they are rarely used in isolation. The purpose of the present study was threefold. First, relations between age, and autism severity were examined. Second, the study investigated whether relations between autism severity and time spent in regular education classrooms differed according to age. Third, it investigated types of treatments students used, and whether using behavioral treatments moderated relations between age, autism severity and amount of time in regular education classrooms. Using a national database (Interactive Autism Network), data about the severity of social, communication and behavior deficits, treatment type, and amount of time spent in regular education classrooms were extracted from school-age students (n = 2646) with autism. The results of the study showed that as age increased, social deficits increased. Furthermore, younger students, and students with more severe social impairment spent less time in regular education classrooms. Age also predicted use of behavioral treatment, and students who used behavioral treatment spent more time in special education classrooms. The findings of this study reflect the current climate of autism knowledge, which emphasizes early, intensive intervention. Consequently, students who were younger, and used behavioral treatments, were likely to be in special education classrooms that could maximize individualization, and associated treatment benefits. This is important, as social deficits increase with age, and reduce the amount of time students spend in inclusive classrooms. Additional studies are needed to further understand how behavioral treatment, compared to or used in conjunction with other commonly used treatments, affects inclusion. / Department of Educational Psychology

Aim: The aim of the study is to gain deeper understanding into the lived experiences of parents at a stimulation centre in KwaZulu-Natal, South Africa, and the coping strategies they employ in caring for their children with Autism Spectrum Disorder (ASD). Significance: As literature has focused on international studies this study has provided deeper understanding of the lived experiences and coping strategies of parents of children with ASD in a local setting within South Africa. Experiences across the age spectrum of children, gendered differences in coping and the meaning behind having a child with ASD provides a unique outlook on ASD as opposed to literature that focuses on other areas. Methods: Eleven parents participated in semi-structured interviews. These interviews were triad, dyad or one-on-one interviews. Interviews were audiotaped and transcribed verbatim once completed. Thematic analysis was used to analyze the data and extract themes. Findings: The lived experiences of parents included stressful and devastating experiences as well as positive meaning. Daily challenges were navigated by positive and negative coping strategies with gendered differences in coping being evident. Parents expressed mixed feelings about the benefits of support groups and provided a road map of advice for other parents of children with ASD. Conclusion: Parents of children with ASD undergo enormous stress and emotional upheaval in caring for their children. However in addition to negative experiences, they gain some positive meaning and see it as character building. Their experiences provide useful information for other parents undergoing the same journey. / Thesis (M.O.T.)-University of KwaZulu-Natal, Durban, 2013.

This diploma thesis provide a comprehensive list of information about the attitudes of parents towards education of children with autism spectrum disorders. The aim of this thesis is to determine how the parents receive a diagnosis of autism of their children and how they determine the access to education for their children as well. The theoretical part is based on literature, there are defined basic information about autism spectrum disorder, division of autism, causes symptoms of autism and finally information about parents with disabled children. This issue is focused to main autism spectrum disorders. There is mentioned technical assistance to families with ASD. Qualitative research, phenomenological approach and semi-structured interview designed to attitudes of parents of children with autism spectrum disorder. Are used in the empirical part. Research shows the acceptance and coping with a diagnosis of autism, and changes to the education of children with ASD. Practical part was created on the basis of theoretical knowledge, my personal experience and research questions. Thesis seeks a comprehensive and updated overview of the attitudes of parents towards education of children with autism spectrum disorder. KEYWORDS Autism Spectrum Disorder, Parents, Childres with autism spectrum disorder,...

The thesis concerns the topic of parental care for children with autism spectrum disorder. In the theoretical part there are described the main areas in which the autistic spectrum disorders manifest and the description of particular disorders. Next chapter describes this issue from point of view of parental care, it describes the difficulty of the situation, the impact on the lives of parents and whole families, factors affecting the adaptation to the situation and its overall management. The qualitative study was chosen for the research. The sample is composed of 11 mothers of children with autism spectrum disorder. Data for study was collected by half-structured interviews and supplemented by Logo-test. The results of study describe the impact of care for a child with autism spectrum disorder to the lives of parents, emotions in different situations, stressing and supporting aspects of the situation, scarce factors and external factors which the most affect the situation of parents. It seems that the situation causes numerous of changes in the lives of parents and affects their values and attitude to life. Difficulty of the situation is perceived in the area of time managment, psychological, physical and financial area. In the same time there are strong supporting factors, mainly family and...

Background. The experience of parenting children with Autism Spectrum Disorder (ASD) is generally understood to encompass higher levels of parenting stress relative to families of typically developing children and, in many instances, when viewed in comparison to children with other disabilities. Emerging evidence suggests that when children with ASD present with elevated attention problems, parents may be more likely to engage in harsh parenting during dyadic interactions (Donnelly, 2015). Despite this, few studies have examined the relationship between attention problems and observed parenting in families of children with ASD, which has been well-described in the literature as a particularly challenging context for parents. This dissertation investigated the relationship between child attention and observed parenting behaviors in a community sample of mothers of children with ASD in early childhood. The extent and nature of this relationship was further explored by observing whether parenting stress and depression played a role in mediating this relationship, and by investigating whether the relationship varied by child behavior and level of functioning. Parenting behaviors were directly observed across three dyadic tasks selected to approximate naturalistic situations in which parents and their children interact. It was hypothesized that increased attention problems would be linked to greater parenting stress, decreased positive parenting, and increased harsh parenting. Increased understanding of how attention problems relate to parenting within an ASD population will inform the selection and design of interventions uniquely suited to meet the needs of children and their families. Methods. This sample of 42 mother-child dyads included children with ASD attending a specialized preschool, where they received Applied Behavior Analysis educational programming. Child participants ranged in age from two years, six months to five years, six months, and all diagnostic classifications were corroborated through the Autism Diagnostic Observation Schedule, Second Edition (Lord et al., 2012). Parent and child behaviors during dyadic interactions were video recorded and then coded using the Psychological Multifactor Care Scale — ASD Adapted Preschool Version (Brassard, Donnelly, Hart, & Johnson, 2016). These direct observations of parent and child behavior were used to examine quality of parenting, child negativity toward the mother, and child engagement in tasks during parent-child interactions. Following the interaction, mothers completed a number of self-report measures assessing demographic characteristics, Parenting Stress Index, Fourth Edition, Short Form (PSI-4: SF; Abidin, 2012, maternal depressive symptoms on the PHQ9 (Kroenke, Spitzer, & Williams, 2001), and the Attention Problems scale on the Child Behavior Checklist (Achenbach & Rescorla, 2001). Classroom teachers completed the Communication domain of the Vineland Adaptive Behavior Scales –Third Edition (Vineland-3; Sparrow, Cicchetti, & Saulnier, 2016). Results. Children with ASD and clinically elevated attention problems (n = 19) had signifiantly lower verbal ability, more CBCL aggression, and their mothers reported signficantly more stress than children with ASD only (n = 23). Observed child engagement was significntly correlated with CBCL attention problems in the overall sample (r = -.42, p<.01), although the groups (ASD only v. ASD plus elevated attention problems) did not differ significantly (p < .06). Increased attention problems were significantly negatively related to positive parenting in this sample, even when ASD severity and verbal ability were controlled. Although a mediation model failed to support a model where attention problems predicted differences in observed parenting through parenting stress, reverse models showed increased positive parenting predicted decreased child attention problems through its effect on parenting stress. The role of maternal depressive symptoms as a mediator of this relationship was unsupported. Perhaps unsurprisingly, observed child behavior was found to be an important factor in understanding parenting behavior; however, the nature of its role was multifaceted. While observed child negativity was directly linked to lower levels of positive parenting, it moderated the relationship between child attention problems and harsh parenting, as mediated by parenting stress. In particular, attention problems were positively linked to greater stress, but this stress was more likely to be accompanied by a greater increase in harsh parenting behavior when children demonstrated negativity toward their mothers. The relationship between child attention problems and positive parenting varied by child verbal ability. For children with higher verbal ability, attention problems were linked to a drop in positive parenting, while this relationship was unsupported in children with underdeveloped communication skills. Conclusions. Child attention problems are a powerful predictor of parenting stress and less positive parenting. While it was expected that variation in attention problems would predict differences in parenting, reverse models showed more promise in identifying and defining the relationship between these variables, where mothers who exhibited more harsh parenting and less positive parenting experienced higher levels of parenting stress and their children demonstrated increased attentional problems and decreased engagement during dyadic interactions. The strength of this relationship varied according to observed child negativity and level of functioning. Clinical implications for practitioners and future directions for research investigating parenting children with ASD are discussed.

Bakgrund Autismspektrumtillstånd [AST] har ökat i prevalens över tid. Tidigare har inte vuxna diagnostiserats med AST. Idag diagnostiseras allt fler i vuxen ålder. Att diagnostiseras med AST först i vuxen ålder medför en ökad risk för komorbida tillstånd. I och med att allt fler diagnostiseras med AST i vuxen ålder är det av intresse att förstå hur sen diagnostisering av AST kan upplevas. Syfte Syftet var att belysa personers upplevelser av att diagnostiseras med autismspektrumtillstånd i vuxen ålder. Metod En icke systematisk litteraturöversikt baserad på 16 vetenskapliga artiklar. Artikelsökningar utfördes i databaserna PubMed och CINAHL. Samtliga inkluderade artiklar genomgick en kvalitetsgranskning. De inkluderade artiklarna analyserades utifrån en integrerad analys. Resultat Datan resulterade i fyra huvudkategorier; Erfarenheter från livet före diagnosen, Den diagnostiska processen, Den känslomässiga upplevelsen av att få diagnosen samtDiagnosens påverkan på livet. Resultatet påvisade en komplex emotionell upplevelse med flertalet upplevda barriärer till diagnostisering av AST hos personer i vuxen ålder. Upplevelsen av diagnosens betydelse varierar. Flera studiedeltagare fann stort värde i sin diagnos och upplevde att diagnosen har stor påverkan på livet samt ger ett nytt perspektiv. Andra studiedeltagare upplevde att diagnosen inte förändrat deras liv särskilt mycket. Slutsats I föreliggande studie framkommer en ökad känsla av sammanhang för en majoritet av personer som diagnostiseras med AST i vuxen ålder. Vidare belyser denna litteraturöversikt att den komplexa upplevelse som en sen diagnostisering innebär kräver individuellt anpassade stödåtgärder som i dagsläget upplevs som bristfälliga. / Background Autism spectrum condition [ASC] or Autism spectrum disorder [ASD] is increasing in prevalence. Historically adults were not diagnosed with ASC. Today it is getting more common to receive the diagnosis as an adult. Comorbidities are common within the autism spectrum. Diagnosis of ASD in adulthood increases the risk of comorbidities. Since ASDs are getting more common world wide and more people are being diagnosed in adulthood it is of relevance to highlight the experiences of getting the diagnosis in early, mid and late adulthood.  Aim This study aimed to highlight experiences of being diagnosed with ASD in adulthood.  Method Non-systematic literature review based on 16 scientific articles with both qualitative and quantitative approaches. The articles were retrieved from the databases PubMed and CINAHL. All included scientific articles underwent a quality review. The included articles were analyzed through an integrated analysis. Results The data resulted in four main categories; Experiences from before the diagnosis, The diagnostic process, The emotional experience of receiving the diagnosis and The diagnosis’ impact on life. The results indicate a complex emotional experience. The results indicated a complex emotional experience with several perceived barriers to diagnosing ASC in adults. The experience of the significance of the diagnosis varies. Several study participants find great value in their diagnosis and feel that the diagnosis has a major impact on life and gives a new perspective. Other study participants felt that the diagnosis did not change their lives and their perspective.  Conclusions In the present study, an increased sense of coherence emerged for most individuals diagnosed with ASD in adulthood. Furthermore, this literature review highlights that the complex experience that a late diagnosis entails requires individually adapted support measures, of which are currently perceived as deficient.

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The token economy is a widely used and versatile motivational system within applied behavior analysis. Moreover, token reinforcement procedures have been shown to be highly effective in the treatment of children with autism spectrum disorder (ASD). In the experimental analysis of behavior, token reinforcement contingencies are conceptualized as three interconnected schedule components: (1) the token-production schedule, (2) the exchange-production schedule, and (3) the token-exchange schedule. Basic work with nonhuman subjects has demonstrated that the exchange-production schedule is the primary driver of performance in these arrangements, and that variable-ratio exchange-production results in reduced pre-ratio pausing and greater overall rates of responding relative to fixed-ratio exchange-production schedules. However, little applied research has been conducted to assess the generality of these findings within applied settings. The purpose of this study was to determine if fixed- and variable-ratio token exchange-production schedules would exert differential effects on pre-ratio pausing and overall rates of responding for three children with ASD during a free-operant sorting task. The results showed that pre-ratio pausing and overall rates of responding were not differentially effected by the fixed- and variable-ratio exchange-production schedules. Discrepancies between the experimental work and the current study are discussed along with additional limitations.

Aims: The aims of this thesis were two-fold. First, to review the literature related to parental perceptions regarding their child’s Autism Spectrum Disorder (ASD) and its effect on behavioural or emotional outcomes. Second, an empirical study aimed to explore parental beliefs about their child’s Asperger’s Syndrome (AS) through the application of Q methodology. Method: A systematic review of the literature was carried out to address the first aim. The review included 7 studies; 5 quantitative and 2 mixed methodology studies. For the second aim, Q methodology was used to examine parental beliefs among a purposeful sample of 21 main caregivers of a child with AS. This methodology is based on two techniques: the q-sorting process and q-factor analysis, and aims to explore the understandings those caregivers’ have of their child’s AS. A set of 51 statements, representing a diverse range of opinions and perspectives on AS, was developed from a variety of sources, including bibliographic databases and online parent forums. The Q sorting process involved caregivers’ arranging the statements on a quasi-normal distribution grid based upon their agreement with them. Results: Preliminary conclusions were drawn from a synthesis of papers included in the systematic review: parental beliefs regarding their child’s ASD affects their behaviour regarding treatment options and future immunisations, as well as their experience of depression, anxiety and self-efficacy. The empirical study revealed four narratives or factors from completed Q sorts: (1) AS in a positive light, (2) AS- the default diagnosis, (3) AS- what now? and (4) AS as society’s problem. Conclusions: The results from the systematic review and empirical study highlight a variety of beliefs held by parents of children with ASD. Although the implications of such beliefs were not explored in the empirical study, the results of the systematic review suggest that parental beliefs can have a significant impact on behavioural and psychological outcomes. Parental beliefs may, therefore, be an important target for clinical intervention within child and family services. It is acknowledged that further research is required to confirm and develop these findings.

ackground Previous research has shown that parents of children with learning disabilities (LD) and/ or autism spectrum disorders (ASD) are more psychologically distressed than parents of neuro‐typical children. The literature suggests that there is significant variation in the rates of maladjustment within this population, and the research into factors that influence parental adjustment is developing. This study aims to add to the research into the factors influencing adjustment to parenting a child with LD/ ASD. In particular, relatively under‐researched concepts such as parental acceptance, time since diagnosis, and the influence of informational support to understand a child’s needs, will be explored. Method Two hundred and thirty five parents of children aged 4‐19 participated in a questionnaire study, conducted through local additional support needs (ASN) schools and bases. Measures of psychological adjustment were gathered alongside measures of acceptance, positive gains, level of child’s challenging behaviour and demographic information. Results Along with other variables, psychological acceptance and was found to account for significant variance in parental adjustment. There were no observed relationships between adjustment and time since diagnosis, or level of informational support. Conclusions The results have implications for the understanding of the role of acceptance in parent adjustment. Implications for intervention development and future research directions are discussed, in addition to the methodological limits of the study.