INTRODUÇÃO: A despeito de todos os avanços no tratamento cirúrgico do câncer, ainda existem fatores complicadores para a adequada evolução no pós-operatório. Realizou-se estudo retrospectivo em uma população de pacientes submetidos a tratamento cirúrgico oncológico eletivo para o câncer retal, a fim de caracterizá-los epidemiologicamente e determinar quais variáveis estão associadas a maior morbimortalidade tais como aumento de permanência hospitalar, utilização de unidade de terapia intensiva, reoperações, óbito em 30 dias e custos hospitalares totais. MÉTODO: Foram selecionados todos os pacientes submetidos a cirurgias retais eletivas para o tratamento oncológico no período de 01 de outubro de 2008 a 31 de dezembro de 2012, resultando numa amostra de 405 pacientes de idade adulta e ambos os sexos. Realizou-se análise univariada para cada desfecho e análise multivariada através de regressão logística com ajustamento para as seguintes variáveis: sexo, idade, índice massa corpórea, estadiamento TNM, procedimento realizado, escore ASA, via de acesso, realização de QRT neoadjuvante, intervalo entre a neoadjuvância e a cirurgia e tempo cirúrgico, com validação interna através da técnica de bootstrap. RESULTADOS: Foram identificados como fatores de risco para aumento de permanência hospitalar a obesidade classe II e III (OR 15,44; IC95% 1,05 - 227,52; p = 0,05) e anestesia combinada - regional associada à geral (OR 5,38; IC95% 1,08 - 29,95; p = 0,04); amputação abdominoperineal foi fator de risco para reoperação em 30 dias (OR 4,54; IC95% 1,15 - 17,90; p = 0,03); amputação abdominoperineal (OR 5,38; IC95% 1,21 - 23,73; p = 0,03) e exenteração pélvica (OR 19,98; IC95% 0,99 - 401,32; p = 0,05) foram fatores de risco para utilização de UTI; idade acima de 79 anos (OR 13,99; IC95% 1,51 - 128,95; p = 0,02) foi fator de risco para complicação pós-operatória; idade acima de 79 anos (OR 0,07; IC95% 0,01 - 0,39; p = 0,01) foi fator de proteção para tempo cirúrgico elevado, obesidade classe II e III (OR 12,87; IC95% 1,54 - 107,67; p = 0,02) e via de acesso laparoscópica com transição para aberta (OR 8,7; IC95% 2,67 - 28,36; p < 0,001) foram fatores de risco para tempo cirúrgico elevado. CONCLUSÕES: Obesidade classe II e III e anestesia combinada são fatores de risco para tempo de permanência hospitalar prolongado para pacientes submetidos a cirurgia para tratamento de câncer retal. Outros estudos se fazem necessários para entender quais são os mecanismos que levam a anestesia combinada, eventualmente, a este aumento de permanência hospitalar / INTRODUCTION: Despite all the developments in the surgical treatment of cancer, there are still complicating factors for a correct postoperative evolution. There were conducted a retrospective study in a population of patients submitted to surgical rectal cancer treatment to characterize them epidemiologically and determine which variables are associated with increased morbimortality such as increased hospital length of stay, use of intensive care unit, reoperations, 30-day mortality and total hospital costs. METHOD: All patients submitted to colorectal surgery treatment for cancer during the period October 1st, 2008 to December 31th, 2012, resulting in a sample of 405 patients of both genders. Univariate analysis was conducted for each outcome and multivariate analysis through logistic regression with adjustment for the following variables: sex, age, body mass index, TNM stage, procedure performed, ASA score, laparoscopic or open surgery, neoadjuvant treatment, interval between the neoadjuvant therapy and the surgery, and operative time, with internal validation by the bootstrap technique. RESULTS: there were identified as risk factors for increased hospital stay, the obesity class II and III (OR 15.44; 95% CI 1.05-227.52; p = 0.05) and combined anesthesia - regional and general (OR 5.38; 95% CI 1.08-29.95; p = 0.04); abdominoperineal amputation was a risk factor for 30-day reoperation (OR 4.54; 1.15 95% CI-17.90; p = 0.03); abdominoperineal amputation (OR 5.38; 95% CI 1.21-23.73; p = 0.03) and pelvic exenteration (OR 19.98; 95% CI 0.99-401.32; p = 0.05) were risk factors for ICU use; age over 79 years (OR 13.99; CI 1.51-128.95; p = 0.02) was a risk factor for postoperative complication; age over 79 years (OR 0.07; CI 0.01-0.39; p = 0.01) was protective factor to prolonged operative time , obesity class II and III (OR 12.87; CI 1.54-107.67; p = 0.02) and laparoscopic approach with transition to open (OR 8.7; CI 2.67-28.36; p 0.001) were risk factors to prolonged operative time. CONCLUSIONS: Obese class II and III and combined anesthesia are risk factors for prolonged hospital stay for patients undergoing surgery for rectal cancer treatment. Further studies are needed to understand the mechanisms that lead combined anesthesia to increase hospital stay

INTRODUÇÃO: A despeito de todos os avanços no tratamento cirúrgico do câncer, ainda existem fatores complicadores para a adequada evolução no pós-operatório. Realizou-se estudo retrospectivo em uma população de pacientes submetidos a tratamento cirúrgico oncológico eletivo para o câncer retal, a fim de caracterizá-los epidemiologicamente e determinar quais variáveis estão associadas a maior morbimortalidade tais como aumento de permanência hospitalar, utilização de unidade de terapia intensiva, reoperações, óbito em 30 dias e custos hospitalares totais. MÉTODO: Foram selecionados todos os pacientes submetidos a cirurgias retais eletivas para o tratamento oncológico no período de 01 de outubro de 2008 a 31 de dezembro de 2012, resultando numa amostra de 405 pacientes de idade adulta e ambos os sexos. Realizou-se análise univariada para cada desfecho e análise multivariada através de regressão logística com ajustamento para as seguintes variáveis: sexo, idade, índice massa corpórea, estadiamento TNM, procedimento realizado, escore ASA, via de acesso, realização de QRT neoadjuvante, intervalo entre a neoadjuvância e a cirurgia e tempo cirúrgico, com validação interna através da técnica de bootstrap. RESULTADOS: Foram identificados como fatores de risco para aumento de permanência hospitalar a obesidade classe II e III (OR 15,44; IC95% 1,05 - 227,52; p = 0,05) e anestesia combinada - regional associada à geral (OR 5,38; IC95% 1,08 - 29,95; p = 0,04); amputação abdominoperineal foi fator de risco para reoperação em 30 dias (OR 4,54; IC95% 1,15 - 17,90; p = 0,03); amputação abdominoperineal (OR 5,38; IC95% 1,21 - 23,73; p = 0,03) e exenteração pélvica (OR 19,98; IC95% 0,99 - 401,32; p = 0,05) foram fatores de risco para utilização de UTI; idade acima de 79 anos (OR 13,99; IC95% 1,51 - 128,95; p = 0,02) foi fator de risco para complicação pós-operatória; idade acima de 79 anos (OR 0,07; IC95% 0,01 - 0,39; p = 0,01) foi fator de proteção para tempo cirúrgico elevado, obesidade classe II e III (OR 12,87; IC95% 1,54 - 107,67; p = 0,02) e via de acesso laparoscópica com transição para aberta (OR 8,7; IC95% 2,67 - 28,36; p < 0,001) foram fatores de risco para tempo cirúrgico elevado. CONCLUSÕES: Obesidade classe II e III e anestesia combinada são fatores de risco para tempo de permanência hospitalar prolongado para pacientes submetidos a cirurgia para tratamento de câncer retal. Outros estudos se fazem necessários para entender quais são os mecanismos que levam a anestesia combinada, eventualmente, a este aumento de permanência hospitalar / INTRODUCTION: Despite all the developments in the surgical treatment of cancer, there are still complicating factors for a correct postoperative evolution. There were conducted a retrospective study in a population of patients submitted to surgical rectal cancer treatment to characterize them epidemiologically and determine which variables are associated with increased morbimortality such as increased hospital length of stay, use of intensive care unit, reoperations, 30-day mortality and total hospital costs. METHOD: All patients submitted to colorectal surgery treatment for cancer during the period October 1st, 2008 to December 31th, 2012, resulting in a sample of 405 patients of both genders. Univariate analysis was conducted for each outcome and multivariate analysis through logistic regression with adjustment for the following variables: sex, age, body mass index, TNM stage, procedure performed, ASA score, laparoscopic or open surgery, neoadjuvant treatment, interval between the neoadjuvant therapy and the surgery, and operative time, with internal validation by the bootstrap technique. RESULTS: there were identified as risk factors for increased hospital stay, the obesity class II and III (OR 15.44; 95% CI 1.05-227.52; p = 0.05) and combined anesthesia - regional and general (OR 5.38; 95% CI 1.08-29.95; p = 0.04); abdominoperineal amputation was a risk factor for 30-day reoperation (OR 4.54; 1.15 95% CI-17.90; p = 0.03); abdominoperineal amputation (OR 5.38; 95% CI 1.21-23.73; p = 0.03) and pelvic exenteration (OR 19.98; 95% CI 0.99-401.32; p = 0.05) were risk factors for ICU use; age over 79 years (OR 13.99; CI 1.51-128.95; p = 0.02) was a risk factor for postoperative complication; age over 79 years (OR 0.07; CI 0.01-0.39; p = 0.01) was protective factor to prolonged operative time , obesity class II and III (OR 12.87; CI 1.54-107.67; p = 0.02) and laparoscopic approach with transition to open (OR 8.7; CI 2.67-28.36; p 0.001) were risk factors to prolonged operative time. CONCLUSIONS: Obese class II and III and combined anesthesia are risk factors for prolonged hospital stay for patients undergoing surgery for rectal cancer treatment. Further studies are needed to understand the mechanisms that lead combined anesthesia to increase hospital stay

Submitted by Renata Lopes (renatasil82@gmail.com) on 2017-01-05T14:39:20Z No. of bitstreams: 1 claudiasoaresdossantos.pdf: 1927808 bytes, checksum: 5902218e3907d5fa92e9cbc9f18b713d (MD5) / Approved for entry into archive by Diamantino Mayra (mayra.diamantino@ufjf.edu.br) on 2017-01-31T11:29:36Z (GMT) No. of bitstreams: 1 claudiasoaresdossantos.pdf: 1927808 bytes, checksum: 5902218e3907d5fa92e9cbc9f18b713d (MD5) / Made available in DSpace on 2017-01-31T11:29:36Z (GMT). No. of bitstreams: 1 claudiasoaresdossantos.pdf: 1927808 bytes, checksum: 5902218e3907d5fa92e9cbc9f18b713d (MD5) Previous issue date: 2016-07-27 / INTRODUÇÃO: Experiências espirituais no final da vida (ELEs) e fenômenos à beira do leito são comumente relatados de forma anedótica. Porém, ainda existem poucos estudos que tenham avaliado sistematicamente essas experiências. OBJETIVOS: Objetiva-se descrever e comparar as características e a prevalência das ELEs de acordo com relatos de profissionais de saúde em diferentes instituições (Unidade de cuidados paliativos, Instituições de Longa Permanência e Hospital oncológico) e avaliar a influência das crenças religiosas nesses relatos. MÉTODOS: Estudo multicêntrico, conduzido em Instituições de Longa Permanência (ILPI) em Juiz de Fora e no Hospital de Câncer de Barretos (Unidade oncológica-ONC e Cuidados Paliativos-PC), no Brasil. Foram avaliados dados sócio-demográficos, relatos de ELEs (pelo questionário de Fenwick), religiosidade (DUREL), espiritualidade (SRSS) e saúde mental (DASS 21). A análise foi feita através de ANOVA e qui-quadrado. RESULTADOS: 133 profissionais (46 ONC; 36 PC e 51 ILPI‟s) foram entrevistados, sendo que 70% tiveram relatos de ELEs nos últimos 5 anos. As principais ELEs relatadas foram “visões de parentes falecidos buscando o falecido” (n=82, 88,2%), “desejo súbito de reconciliamento” (n=79, 84,9%) e “parentes falecidos próximos ao leito proporcionando conforto” (n=75, 80,6%). A maioria dos profissionais (70-80%) acreditava que tais experiências tinham um cunho espiritual e não ocorriam por condições biológicas. Na comparação entre os grupos, PC tiveram mais relatos que os demais grupos e relataram maior abertura frente ao tema e maior interesse em um treinamento. As crenças individuais não interferiram de forma importante na percepção das ELEs. CONCLUSÃO: O estudo mostrou uma grande prevalência de ELEs relatadas por profissionais de saúde, associadas a opinião de que essas experiências seriam espirituais. Apesar de comum em todas as instituições, profissionais que atuam com cuidados paliativos referiram mais ELEs, maior abertura em sua instituição e maior desejo de treinamento. As crenças religiosas e espirituais tiveram pouca influência nos relatos de ELEs pelos profissionais, mostrando que não esse não foi um aspecto determinante para sua percepção. / INTRODUCTION: Spiritual end-of-life experiences (ELEs) and deathbed phenomena are often reported in an anecdotal fashion. Few studies however, have systematically assessed these experiences. OBJECTIVES: The objective of this study was to compare the characteristics and prevalence of ELEs as reported by health professionals at different institutions (palliative care, nursing homes and oncology hospital) and to assess the influence of religious beliefs on these reports. METHODS: A multi-center study was conducted at Nursing Homes (NH) in Juiz de Fora and at the Hospital de Câncer de Barretos (Oncology-ONC and Palliative Care-PC Unit) in Brazil. Sociodemographic data, ELE reports (Fenwick´s questionnaire), religiosity (DUREL), spirituality (SRSS) and mental health (DASS 21) were assessed. The analysis was performed using the ANOVA and Chi-square tests. RESULTS: A total of 133 health professionals (46 ONC, 36 PC and 51 NH) were interviewed, 70% of whom had ELEs reported to them in the past 5 years. The main ELEs reported were “visions of dead relatives collecting the dying person“ (n=82, 88.2%), “a desire to mend family rifts” (n=79, 84.9%) and “dead relatives near the bed who provide emotional comfort” (n=75, 80.6%). The majority of the health professionals (70-80%) believed these experiences had spiritual significance and were not due to biological conditions. Comparison among the groups revealed that the PC had more reports than the other groups and also greater openness on the issue and more interest in training. Individual religious beliefs had no relevant influence on the perception of ELEs. CONCLUSION: The study revealed a high prevalence of ELEs reported by health professionals, who believed these experiences were spiritual. Although prevalent in all of the institutions, greater ELEs, openness at their institution and desire for training were reported by palliative care professionals. Religious and spiritual beliefs had little influence on ELEs reported by the health professionals, indicating this was not a factor determining the perception of ELEs.

Les personnes qui subissent une chirurgie pour un cancer de la tête et du cou sont souvent préoccupées par les changements dans l’apparence et les fonctions corporelles causés par le traitement et rapportent des problèmes d’image corporelle, des niveaux plus élevés d’anxiété et une diminution de la qualité de vie. La communication avec les professionnels de la santé peut affecter la façon dont les patients vivent avec ces changements, notamment en raison des différences dans la manière dont les patients et leur équipe médicale perçoivent le traitement et les aspects qu’ils jugent importants à discuter. Toutefois, peu d’études se sont penchées sur la communication entre les patients et leur équipe soignante autour des changements dans l’apparence et les fonctions corporelles lors de consultations cliniques. Cette étude répond à cette question en s’appuyant sur les recherches en oncologie psychosociale et sur les recherches en communication sur le cadrage. L’objectif est de mieux comprendre le processus de communication entre les patients et l’équipe interdisciplinaire de chirurgie cervicofaciale autour des changements dans l’apparence et les fonctions corporelles, ainsi que les impacts potentiels de cette communication sur l’expérience des patients au cours de leurs trajectoires de traitement. Une étude empirique sur la communication entre les patients et l’équipe médicale a été menée dans une clinique d’oncologie de la tête et du cou d’un grand hôpital universitaire au Québec, Canada. Vingt patients ont participé à l’étude pendant six mois et 88 visites pré-chirurgicales et post-chirurgicales ont été observées (totalisant 54 heures de données enregistrées par audio ou vidéo). Des entrevues semi-dirigées ont été réalisées avec les patients avant et après leur chirurgie (n=45), ainsi qu’avec les membres de l’équipe médicale (n=6) à la fin de l’étude. Tout d’abord, cette étude révèle les patterns d’interaction qui caractérisent les visites pré-chirurgicales : comment les changements corporels sont abordés dans les discussions en rapport avec la survie et la guérison, comment les changements corporels sont établis comme étant une préoccupation (ou non), et comment différents membres de l’équipe peuvent jouer des rôles différents pour discuter des changements corporels avec les patients. Deuxièmement, les patterns d’interaction qui caractérisent les visites post-chirurgicales sont décrits : comment les changements corporels sont abordés dans les discussions en rapport avec la guérison et le rétablissement physique, comment l’amélioration et le progrès sont mis en évidence dans les consultations, et comment les différences entre les points de vue des patients et des soignants sont résolues dans les interactions. Les données des entrevues complètent les analyses, montrant les impacts positifs et négatifs potentiels de ces patterns d’interaction sur l’expérience des patients. Plus précisément, l’analyse révèle comment les préoccupations psychosociales peuvent être mises en arrière-plan dans les interactions cliniques. Les résultats de l’étude contribuent à la recherche sur la communication patient-soignant en permettant de comprendre comment les préoccupations émergent dans les interactions cliniques et comment les changements dans l’apparence et les fonctions corporelles sont abordés lors des consultations avec différents membres de l’équipe médicale. Ces résultats pourront être utilisés pour développer des programmes de formation pour étudiants et professionnels, afin de favoriser la prestation des soins intégrés répondant aux besoins des patients tant sur le plan physique que psychosocial. / People who undergo surgery for head and neck cancer are often concerned about treatment-related changes in appearance and functional impairments, and report body image difficulties, higher levels of anxiety, and lower quality of life. Communication with health care professionals may impact patients’ experience of body changes, notably due to the differences between how patients and their medical team view the treatment and what aspects they find important to discuss. However, relatively little is known about how patients and providers discuss changes in body appearance and functioning during clinical consultations. This study addresses this question by combining insights from psychosocial oncology research with communication research on framing. The aim is to better understand the process of communication between surgical patients and the interdisciplinary Head and Neck Surgery team around changes in appearance and function, as well as how patients are experiencing such communication during their treatment trajectories. An empirical study of patient-medical team communication was conducted at the head and neck oncology outpatient clinic of a large university-affiliated hospital in the province of Quebec, Canada. Twenty patients participated in this study for a period of six months, and 88 pre-surgical and post-surgical visits were observed and audio or video recorded (54 hours of recorded data). Semi-structured interviews were conducted with patients before and after the surgery (n=45), as well as with medical team members (n=6) at the end of the study. First, this study reveals the communication patterns that characterize pre-surgical visits: how body changes are discussed in relation to survival and cure, how body changes are established as (not) being a matter of concern, and how different team members may play different roles in discussing body changes with patients. Second, the communication patterns that characterize post-surgical visits are described: how body changes are discussed in relation to cure and physical recovery, how improvement and progress are emphasized in consultations, and how differences between patients’ and providers’ perspectives are resolved in interactions. Interview data complements the analyses, showing the potential positive and negative impacts of these interaction patterns on patients’ experience. Specifically, the analyses reveal how psychosocial concerns can be silenced in clinical interactions. The results of this study contribute to research on patient-health care provider communication by providing insight into how concerns emerge in clinical interactions and how changes in appearance and function are discussed in patients’ visits with different medical team members. These results can be used to inform students’ and professionals’ training by providing guidance on integrated care addressing patients’ needs in both the physical and the psychosocial domain.

One of the central challenges for the healthcare system today is how to manage care for patients with complex needs. This patient group is not well-defined but covers patients with serious diseases and comorbidities, or with a limited ability to perform basic daily functions due to physical, mental or psychosocial challenges. This group has a high service and resource utilisation resulting in high costs for the healthcare system and, typically, poor health outcomes. To improve care for these patients, it is necessary to implement strategies to manage the differentiated care needs, the additional support needs, the uncertainty in care delivery, and the coordination needs of the involved providers and the patient. Care pathways are increasingly used internationally to make care more patient-centred and to structure and design care processes for individual patient groups. Important elements in care pathways include structuring care activities, by defining their content and sequence; coordinating between providers and professionals; and involving patients in their care process. In this thesis, care pathways are proposed as the overall strategy for managing care for patients with complex care needs. The purpose of this thesis is thus to contribute with knowledge on how care pathways can be managed for patients with complex care needs. This is achieved by analysing how the practices coordination, standardisation, customisation and personalisation can support management of care pathways and by discussing how these practices influence quality of care. The quality of care dimensions discussed are accessible, timely, equitable, and patient-centred care. The empirical context in this thesis is the Standardised Cancer Care Pathways (CCPs) which were implemented in Sweden from 2015 to 2018. CCPs is the umbrella term for the national initiative to shorten waiting times, decrease regional differences and reduce fragmentation in care processes. CCPs include elements such as diagnosis-specific pathways and guidelines, introduction of CPP coordinators, and mandatory reporting of waiting times. Focus has been on implementing care pathways for 31 cancer diagnoses in all Swedish healthcare regions. Both qualitative and quantitative research methods have been used. A case study was conducted to examine standardised and customised care pathways, and coordination and multidisciplinary work in care pathways. A document study of regional reports on CCPs was analysed to study effects of care pathways on accessibility, timeliness and equitability. Finally, a national survey was conducted to deepen the understanding of the role of coordination, as performed by coordinators, in care pathways. This thesis argues that standardised and customised care pathways should be combined to manage care for patients with complex care needs. The customised pathway in particular benefits patients with serious unspecific symptoms, unknown primary tumour or more complex care needs, while patients with care needs that can be treated independently of the main diagnosis benefit from following a standardised care pathway. Coordinators are an important means to manage coordination, customisation and personalisation in the care pathway. The coordinators’ role is twofold: the first role is to manage care pathways by customising the care pathway and coordinating involved providers; the second role is to support and guide patients through the care pathway. This can be achieved by adapting interpersonal communication with patients through personalisation. This thesis further argues that care pathways have most potential to positively influence accessibility, timeliness, equitability, and patient-centredness. Accessibility has been positively influenced, especially for patients with ambiguous symptoms where symptoms indicating cancer have improved their chances of accessing cancer diagnostics. A negative aspect of prioritising patients who follow CCPs has been the potentially longer waiting times for other patient groups in equal need of urgent care. Notwithstanding, prioritised access to care is perceived to positively influence timeliness for patients following CCPs. Care pathways are perceived to have positively influenced patient-centredness by shifting the focus from what to deliver to how to deliver it.

This research project examines an array of art prompts and projects that have been used in program-based art making workshops to facilitate creative expression amongst those who have been impacted by a cancer diagnosis. The review of literature emphasizes the value of this research, as the field of healing arts programs/expressive arts workshops in cancer care is varied and sparse. While there is substantial research that indicates art therapy to be a highly valued and accepted clinical intervention used in cancer care, there is little research that focuses on the specific role of art making with cancer patients/survivors and even less research on program-based art making workshops. As an artist and cancer survivor, this research incorporates my lived experiences to inform the cataloging, evaluation, and analysis of five art projects completed and used as inspiration for a program-based art-making workshop. The artworks included are an altered book, a cloth doll, a paper mask, a wooden box, and a Styrofoam head. The five central themes that arose from these five particular projects include that they were fun/engaging, encouraged play/experimentation, increased self-understanding, fostered the need to creatively express unexpressed emotions, and offered a sense of pride/accomplishment. This preliminary research project suggests that a broader investigation is needed in order to gather a deeper understanding of the impact of program-based expressive arts workshops as a healing modality with this patient population.

L’amélioration de la prise en charge du cancer est un enjeu de santé publique important compte tenu des impacts de cette maladie pour la santé publique. Les technologies de l’information et de communication (TIC) sont perçues comme une solution pouvant contribuer à l’amélioration de cette prise en charge. Malgré cela, peu d’expériences évaluent leur utilisation dans un contexte de coordination des soins en cancérologie. Le but de ce mémoire est d’apprécier comment les TIC peuvent être utilisées pour améliorer la coordination des soins en cancérologie et de décrire quelles sont les stratégies pouvant permettre leur succès. Deux articles ont été rédigés avec chacun un objectif rattaché au but global du mémoire. L’objectif du premier article est de rassembler les connaissances existantes relatives aux usages des TIC pouvant être à même de fournir une amélioration de la coordination des soins en cancérologie. Il présente les résultats d’une revue de littérature ayant identifié six types d’usages des TIC pouvant être utilisés dans un parcours coordonné. Il propose six recommandations pouvant contribuer à la réussite de leur conception et de leur implantation. Les plus importantes sont la planification rigoureuse du design de l’intervention et l’amélioration des stratégies de gestion de projet. Le deuxième article a comme objectif de connaître la perception des professionnels de soins par rapport à l’utilisation des technologies mobiles. Il analyse les perceptions et les attentes de professionnels oeuvrant dans un centre de cancérologie spécialisé (France) à partir de 10 entretiens faits auprès d’individus rattachés à divers services. Leur analyse permet de constater l’attitude favorable à l’utilisation de TIC mobiles en cancérologie et le peu de craintes associées aux impacts néfastes qu’il pourrait avoir. Elle met en évidence l’importance des enjeux organisationnels nécessaire à la mise en place et au succès de cette intervention. Ces deux études permettent de constater les rapprochements et les écarts entre les usages et recommandations tirés de la littérature et les perceptions des répondants en cancérologie. Mots-clés : technologies de l’information, cancérologie, parcours coordonné, étude de cas, revue de littérature, coordination des soins, enjeux organisationnels, usages des TIC. / The impact of cancer care is a major public health issue, mainly because of both its major health and economic impacts. The use of information technologies (IT) is seen as a solution that can contribute to reduce the load associated with cancer. Despite this, there are only few experiments evaluating their use in the cancer care. The purpose of this memoir is to find ways how IT can be used to improve this situation and describe what strategies can help them succeed. To do so, this memoir presents two articles each pursuing a goal related to that global objective. The first article aims to gather existing knowledge on how the use of IT may provide better coordination of cancer care. It presents the results of a literature review that built a typology of six uses in which IT can be used to provide better care coordination. It also offers six recommendations to insure the success of their design and their implementation. The two most important ones are rigorous planning and strong intervention design. The second article reports and analyse the perception of health professionals in relation to the use of mobile technologies in a cancer care setting. It presents data gathered from 10 interviews conducted a the cancer center (France). Their analysis shows that most of them have a positive attitude towards the use of IT in cancer care. It also denotes some of the fears associated with the adverse impacts it may bring. The results highlights the importance of considering organizational issues for the implementation of sucessful interventions. These two studies show that there are many similarities and few differences between the usages and recommendations from the literature and the perceptions of the professionnals working in a specialized cancer care center. / Réalisé en cotutelle avec Claude Sicotte PhD Université de Montréal et le Pr. Étienne Minvielle École des Hautes Études en Santé Publique à Paris.

Réalisé en cotutelle avec Claude Sicotte PhD Université de Montréal et le Pr. Étienne Minvielle École des Hautes Études en Santé Publique à Paris. / L’amélioration de la prise en charge du cancer est un enjeu de santé publique important compte tenu des impacts de cette maladie pour la santé publique. Les technologies de l’information et de communication (TIC) sont perçues comme une solution pouvant contribuer à l’amélioration de cette prise en charge. Malgré cela, peu d’expériences évaluent leur utilisation dans un contexte de coordination des soins en cancérologie. Le but de ce mémoire est d’apprécier comment les TIC peuvent être utilisées pour améliorer la coordination des soins en cancérologie et de décrire quelles sont les stratégies pouvant permettre leur succès. Deux articles ont été rédigés avec chacun un objectif rattaché au but global du mémoire. L’objectif du premier article est de rassembler les connaissances existantes relatives aux usages des TIC pouvant être à même de fournir une amélioration de la coordination des soins en cancérologie. Il présente les résultats d’une revue de littérature ayant identifié six types d’usages des TIC pouvant être utilisés dans un parcours coordonné. Il propose six recommandations pouvant contribuer à la réussite de leur conception et de leur implantation. Les plus importantes sont la planification rigoureuse du design de l’intervention et l’amélioration des stratégies de gestion de projet. Le deuxième article a comme objectif de connaître la perception des professionnels de soins par rapport à l’utilisation des technologies mobiles. Il analyse les perceptions et les attentes de professionnels oeuvrant dans un centre de cancérologie spécialisé (France) à partir de 10 entretiens faits auprès d’individus rattachés à divers services. Leur analyse permet de constater l’attitude favorable à l’utilisation de TIC mobiles en cancérologie et le peu de craintes associées aux impacts néfastes qu’il pourrait avoir. Elle met en évidence l’importance des enjeux organisationnels nécessaire à la mise en place et au succès de cette intervention. Ces deux études permettent de constater les rapprochements et les écarts entre les usages et recommandations tirés de la littérature et les perceptions des répondants en cancérologie. Mots-clés : technologies de l’information, cancérologie, parcours coordonné, étude de cas, revue de littérature, coordination des soins, enjeux organisationnels, usages des TIC. / The impact of cancer care is a major public health issue, mainly because of both its major health and economic impacts. The use of information technologies (IT) is seen as a solution that can contribute to reduce the load associated with cancer. Despite this, there are only few experiments evaluating their use in the cancer care. The purpose of this memoir is to find ways how IT can be used to improve this situation and describe what strategies can help them succeed. To do so, this memoir presents two articles each pursuing a goal related to that global objective. The first article aims to gather existing knowledge on how the use of IT may provide better coordination of cancer care. It presents the results of a literature review that built a typology of six uses in which IT can be used to provide better care coordination. It also offers six recommendations to insure the success of their design and their implementation. The two most important ones are rigorous planning and strong intervention design. The second article reports and analyse the perception of health professionals in relation to the use of mobile technologies in a cancer care setting. It presents data gathered from 10 interviews conducted a the cancer center (France). Their analysis shows that most of them have a positive attitude towards the use of IT in cancer care. It also denotes some of the fears associated with the adverse impacts it may bring. The results highlights the importance of considering organizational issues for the implementation of sucessful interventions. These two studies show that there are many similarities and few differences between the usages and recommendations from the literature and the perceptions of the professionnals working in a specialized cancer care center.

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