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Balancing Interoperability and Data Sensitivity: A Design Science approach to building a zero-knowledge API for Healthcare DataGunawardana, Suranga Ruwan Sampath January 2023 (has links)
The aim of the study was to develop a platform to monitor and evaluate care homes using heterogeneous data sources for a French startup company. The study found that there was no current system to supervise healthcare resources in these facilities with live data. To address this, a digital platform was proposed that would integrate information from various sources, including IoT devices, existing software systems and digital documents. The proposed platform, which would be built from scratch, includes a data collection and processing system, and a blockchain to store the processed data. The platform would also include a dashboard with features, Key Performance Indicators (KPIs), and graphs for stakeholders to access. The research would focus on the first two objectives of the proposed platform, which are design a platform for real time access to heterogeneous data sources and generate derivative dataset (generate transformed data set from the primary raw data set) with access but not visibility of the accessible zero knowledge heterogeneous data in secured way. Zero knowledge refers to fetching data from primary data sources and present it to users of in another format which can be understand easily, while hiding actual data and transforming mechanism (Goldreich, 2004). The proposed solution should be versatile and extensible to incorporate additional data sources and generate derivative datasets in a scalable manner. The study concludes that utilizing the Design Science Research Methodology (DSRM) to investigate and identify an ideal solution to the research topics is both challenging and stimulating. Additionally, the findings can be applied by other researchers working in related fields. In summary, the proposed solution involves the development of a digital platform based on information system theories and technologies that will enrich the area of Information Systems for similar problems. The thesis will evaluate existing research on these theories and technologies and recommend the best solution by integrating the most suitable set of theories and technologies for the given problem. This will provide a practical solution for the immediate needs of the startup company and contribute to future research on similar problems.
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Vuxna patienters upplevelse av digital kontakt i en vårdkontext : en icke-systematisk litteraturöversikt / Adult patients' experience of digital contact in a care context : a non-systematic literature reviewJulius, Emma, Ramirez, Rocio January 2024 (has links)
Bakgrund Digitalisering har blivit allt vanligare och digitala vårdkontakter har implementerats i vården. Sveriges kommuner och regioner ser digitaliserade vårdtjänster som en naturlig del av framtidens vårdutbud. Sjuksköterskor behöver arbeta i enlighet med sitt ansvarsområde inom sjukvård och omvårdnad, även inom digital kontakt. Därför behövs sammanställd kunskap om patienters erfarenheter, för att sjuksköterskor ska arbeta i enlighet med sina ansvarsområden. Syfte Syftet var att beskriva vuxna patienters upplevelser av digital kontakt i en vårdkontext. - Hur upplevde patienterna den digitala kontakten med sjuksköterskor? - Vilka fördelar och nackdelar upplevde patienter med digital kontakt med vården? Metod Designmetoden var en icke-systematisk litteraturöversikt. Tio originalartiklar valdes från databaserna Pubmed och CINAHL. Artiklar var peer-review granskade, godkända från etikprövning, skrivna på engelska och publicerades mellan år 2013-2024. Integrerad analys användes för att sammanställa resultaten i relation till varandra. Resultat Fyra huvudkategorier identifierades. Upplevelser av kommunikationen visade detaljer som bidrog till bra eller försämrad kommunikation digitalt, och relationen sjuksköterska-patient visades vara viktigare än vårdformen. Upplevelser av socialt stöd belyste hur kontakten minskade ensamhet, lindrade jobbiga känslor och uppmuntrade patienter. Upplevelser av digital funktionalitet visade nackdelar som var relaterade till svårigheter med användningen och känslor kring säkerheten. Fördelar som togs upp var att öva på digitala kunskaper, säkerhet, enkel användning och att data kan delas mellan vårdpersonal. Upplevelser av bekvämlighet beskrev varför digital kontakt upplevdes bekvämt. Slutsats I arbetet framkommer att en bra relation mellan sjuksköterskan och patienten bidrar till att identifiera och lindra lidande vid digital kontakt. Vidare framkommer att det är mindre relevant om det handlar om fysisk eller digital kontakt. Det viktigaste är sjuksköterskans skicklighet och empati. Sjuksköterskans finkänsla och uppmärksamhet är väsentlig vid digital kontakt, därmed bör den utvecklas. Digital kontakt är betydelsefullt för patientens bekvämlighet. / Background Digitization has increased, and digital healthcare contacts have been implemented. Sweden's municipalities and regions see digitized care services as part of future services. Nurses need to work in accordance with their area of responsibility in healthcare and nursing, also with digital contacts. Compiled knowledge of patients' experiences is therefore needed, for nurses to work in accordance with their areas of responsibility. Objective To describe adult patients' experiences of digital contact in health care. - How did the patients experience the digital contact with nurses? - What advantages and disadvantages did patients experience in healthcare with digital contact? Methods The design method was a non-systematic literature review. Ten original articles were selected from the databases Pubmed and CINAHL. Articles were peer-reviewed, approved from ethics review, in English and published between 2013-2024. Integrated analysis was used to compile results. The work strongly distanced itself from fabrication, distortion and plagiarism. Results Four main categories were identified. Experiences of the communication showed what details contributed to good or poor digital communication, and the nurse-patient relationship was noticed as more important than the form of healthcare itself. Experiences of social support highlighted how digital contact reduced loneliness, alleviated difficult feelings and encouraged patients. Experiences of digital functionality showed disadvantages of user-experiences and feelings of security. Raised benefits were practicing digital skills, feelings of security, ease of use and shared data between healthcare professionals. Experiences of convenience described why digital contact felt comfortable. Conclusion Good relationship between the nurse and the patient contributes to identifying and alleviating suffering in digital contact. It appears that it’s less relevant if the contact is physical or digital, but instead the nurses' skill and empathy. The nurses' sensitivity and attention are essential in digital contact and should be developed. Digital contact is important for patient comfort.
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Compliance with the Batho Pele principles in a primary health care context / Idah Deliwe KhumaloKhumalo, Idah Deliwe January 2010 (has links)
In this study the focus is on Batho Pele (a Sotho translation for 'people first'), an initiative to get people that work in the public services to be service orientated and to strive for excellence towards continuous service delivery improvement (SA, 2004a:8). Batho Pele consist of a framework with two primary functions that apply to this study; service delivery to people as the customers (patients in this study) and the possibility to hold individual public servants (health care personnel in this study) accountable for poor service delivery. This, in fact, implies that poor performance lead to poor service delivery; thus, compliance with the Batho Pele principles plays a pivotal role to improve quality health care service delivery.
The purpose of the study was to make recommendations to enhance the current compliance with the Batho Pele principles in a Primary Health Care (PHC) context that would positively improve quality care and patient satisfaction. A non–experimental, quantitative, descriptive study was undertaken within the philosophical framework of the Batho Pele principles as well as the Patients‘ Right Charter. All participants completed a structured questionnaire to determine the level of compliance with the Batho Pele principles as experienced by the patients and viewed by the health care personnel in a PHC context. The data collected, was analysed using descriptive statistics. Four PHC clinics were involved, situated at Umzinyathi District Health in the Kwazulu Natal (KZN) Province of South Africa. The study included two patient–population samples, based on convenience; the participants that visited the clinics (n=132) and the participants visited by the researcher at home (n=101). Fifty– six (n=56) health care personnel who voluntary agreed to participate in the study were an all–inclusive sample.
The findings revealed that the patients in the study felt more secure to answer the questions on their experiences regarding compliances with the Batho Pele principles at home and this could be an important consideration when conducting patient satisfaction surveys. It was also clear that patients were more dissatisfied than health care personnel in most questions asked regarding their experience on the compliance with the Batho Pele principles in a PHC context.
Recommendations were made in the light of what was contained in the study that can serve as a starting point to address identified shortcomings in nursing practice, nursing education and nursing research. / Thesis (M.Cur.)--North-West University, Potchefstroom Campus, 2011.
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Compliance with the Batho Pele principles in a primary health care context / Idah Deliwe KhumaloKhumalo, Idah Deliwe January 2010 (has links)
In this study the focus is on Batho Pele (a Sotho translation for 'people first'), an initiative to get people that work in the public services to be service orientated and to strive for excellence towards continuous service delivery improvement (SA, 2004a:8). Batho Pele consist of a framework with two primary functions that apply to this study; service delivery to people as the customers (patients in this study) and the possibility to hold individual public servants (health care personnel in this study) accountable for poor service delivery. This, in fact, implies that poor performance lead to poor service delivery; thus, compliance with the Batho Pele principles plays a pivotal role to improve quality health care service delivery.
The purpose of the study was to make recommendations to enhance the current compliance with the Batho Pele principles in a Primary Health Care (PHC) context that would positively improve quality care and patient satisfaction. A non–experimental, quantitative, descriptive study was undertaken within the philosophical framework of the Batho Pele principles as well as the Patients‘ Right Charter. All participants completed a structured questionnaire to determine the level of compliance with the Batho Pele principles as experienced by the patients and viewed by the health care personnel in a PHC context. The data collected, was analysed using descriptive statistics. Four PHC clinics were involved, situated at Umzinyathi District Health in the Kwazulu Natal (KZN) Province of South Africa. The study included two patient–population samples, based on convenience; the participants that visited the clinics (n=132) and the participants visited by the researcher at home (n=101). Fifty– six (n=56) health care personnel who voluntary agreed to participate in the study were an all–inclusive sample.
The findings revealed that the patients in the study felt more secure to answer the questions on their experiences regarding compliances with the Batho Pele principles at home and this could be an important consideration when conducting patient satisfaction surveys. It was also clear that patients were more dissatisfied than health care personnel in most questions asked regarding their experience on the compliance with the Batho Pele principles in a PHC context.
Recommendations were made in the light of what was contained in the study that can serve as a starting point to address identified shortcomings in nursing practice, nursing education and nursing research. / Thesis (M.Cur.)--North-West University, Potchefstroom Campus, 2011.
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The development of a neonatal communication intervention toolStrasheim, Esedra 06 August 2010 (has links)
Comprehensive management in the neonatal nursery involves medical treatment of the infant, as well as developmental care and the provision of guidance, counselling and information to the family who are part of the decision-making process regarding the infant’s care. Neonatal communication intervention is of utmost importance in a country such as South Africa, which has an increased prevalence of infants at risk for disabilities and where the majority of these infants live in poverty. Speech-language therapists fulfil an important role in the neonatal nursery and are an integral part of the team involved with the high risk neonatal population. Local literature showed a dearth of information on the current service delivery and roles of speech-language therapists and audiologists in neonatal nurseries in the South African context. From an asset-based perspective it appears that the South African population receiving services in neonatal nurseries have unique characteristics. This provides speech-language therapists with ample opportunity to intervene, providing that intervention is well-timed in the neonatal nursery context. The country-wide initiative to implement the evidence-based technique of kangaroo mother care indicates that speech-language therapists should recognise its importance and develop communication based materials and tools to complement this successful neonatal intervention. The aim of the research was to establish whether speech-language therapists have needs for assessment and intervention tools/materials in this context. The study furthermore aimed to compile a locally relevant neonatal communication intervention instrument/tool for use by speech-language therapists in the neonatal nurseries of public hospitals in South Africa in order to propose a solution to address the shortage of tools in the public health context. The study entailed descriptive, exploratory research. During Phase 1, a survey was received back from 39 speech-language therapists and two audiologists in six provinces. The data revealed that participants performed different roles in neonatal nurseries, which were determined by the environment, tools, materials and instrumentation available to them. Many participants were inexperienced, but were resourceful in their attempts to develop and adapt tools/materials. Participants expressed a need for culturally appropriate and user-friendly instruments for parent guidance and staff/team training on the topic of developmental care. During Phase 2 a tool for parent guidance titled “Neonatal communication intervention programme for parents” was compiled for use by speech-language therapists and justified by participants’ roles and needs as well as current early communication intervention (ECI) literature. The programme was piloted by three participants. Certain suggestions for enhancements of the programme were made such as providing a glossary of terms, adapting the programme’s language and terminology, and providing more illustrations. The programme complied with the guiding principles for best practice in ECI (ASHA, 2008) and can therefore contribute to neonatal care of high risk infants in South Africa. Speech-language therapists and audiologists must contribute to neonatal care of high risk infants to facilitate optimal health and development and to support their families. AFRIKAANS : Omvattende intervensie in die neonatale sorgeenheid behels mediese behandeling van die neonaat, sowel as ontwikkelingstoepaslike sorg en die verskaffing van leiding, berading en inligting aan die gesin wat deel is van die besluitnemingsproses rakende die baba se sorg. Neonatale kommunikasie intervensie is van uiterste belang in Suid-Afrika aangesien daar ‘n hoër prevalensie van babas is wat ‘n risiko het vir ontwikkelingsafwykings en aangesien die meerderheid van hierdie babas in armoede leef. Spraak-taalterapeute vervul ‘n belangrike rol in die neonatale sorgeenheid en is ‘n integrale deel van die span wat betrokke is by die hoërisiko neonatale populasie. Plaaslike literatuur dui op ‘n tekort aan inligting rakende die huidige dienslewering van die spraak-taalterapeut en oudioloog in neonatale sorgeenhede in die Suid-Afrikaanse konteks. Vanuit ‘n bate-benadering kom dit voor of die Suid-Afrikaanse populasie wat dienste in neonatale sorgeenhede ontvang, unieke eienskappe het. Dit bied genoegsame geleenthede aan spraak-taalterapeute om intervensie te verskaf, solank die behandeling betyds in die neonatale sorgeenheid konteks aanvang neem. Daar is ‘n landswye inisiatief om die bewysgerigte tegniek van kangeroe moedersorg toe te pas. Spraak-taalterapeute moet dus die belang daarvan herken en kommunikasie gebasseerde terapiemateriaal ontwikkel om hierdie suksesvolle neonatale intervensie te komplementeer. Die navorsing se doel was om vas te stel hoe wyd spraak-taalterapeute en oudioloe ‘n behoefte aan evaluasie en intervensie instrumente en –materiaal in hierdie konteks het. Die navorsing het verder ten doel gestel om ‘n relevante terapie instrument saam te stel vir spraak-taalterapeute in die neonatale sorgeenhede as ‘n moontlike oplossing vir die tekort aan relevante terapiemateriaal in die plaaslike publieke gesondheidsorgkonteks. Die studie het beskrywende, eksplorerende navorsing behels. Gedurende Fase 1 is ‘n vraelys terug ontvang van 39 spraak-taalterapeute en twee oudioloë in ses provinsies. Die data het aangedui dat deelnemers verskillende rolle in hierdie konteks vervul, wat beïnvloed was deur die omgewing, die instrumentasie en materiaal wat tot hulle beskikking was. Die meerderheid van die deelnemers was onervare, maar was vindingryk in hulle pogings om terapiemateriaal aan te pas en te ontwikkel. Deelnemers het ‘n behoefte vir kultureel toepaslike- en gebruikersvriendelike instrumente en materiaal uitgedruk met die oog op ouerleiding en personeel/span opleiding oor die onderwerp van ontwikkelingstoepaslike sorg. Gedurende Fase 2 is ‘n terapie instrument naamlik “Neonatale kommunikasie intervensie program vir ouers” saamgestel vir die gebruik in die neonatale sorgeenhede deur spraak-taalterapeute. Die samestelling van hierdie program is verantwoord deur die deelnemers se rolbeskrywing en behoeftebepaling van Fase 1, sowel as deur huidige vroeë kommunikasie intervensie (VKI) literatuur. Die program is deur drie deelnemers in ‘n loodsstudie geëvalueer. Voorstelle vir die verbetering van die program is verskaf, naamlik die byvoeging van ‘n terminologielys, aanpassing van die program se taalgebruik en terminologie en verskaffing van meer illustrasies. Die program het ooreengestem met die beginsels vir beste praktyk in VKI (ASHA, 2008) en kan daarom tot neonatale sorg van hoërisikobabas in Suid-Afrika bydra. Spraak-taalterapeute en oudioloë moet bydra tot neonatale sorg van hoërisiko neonate om sodoende optimale gesondheidsorg en ontwikkeling te fasiliteer en gesinne te ondersteun. Copyright / Dissertation (MCommunication Pathology)--University of Pretoria, 2010. / Speech-Language Pathology and Audiology / unrestricted
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