Global ETD Search

71	On the ethical implications of personal health monitoring Mittelstadt, Brent January 2013 (has links) Recent years have seen an influx of medical technologies capable of remotely monitoring the health and behaviours of individuals to detect, manage and prevent health problems. Known collectively as personal health monitoring (PHM), these systems are intended to supplement medical care with health monitoring outside traditional care environments such as hospitals, ranging in complexity from mobile devices to complex networks of sensors measuring physiological parameters and behaviours. This research project assesses the potential ethical implications of PHM as an emerging medical technology, amenable to anticipatory action intended to prevent or mitigate problematic ethical issues in the future. PHM fundamentally changes how medical care can be delivered: patients can be monitored and consulted at a distance, eliminating opportunities for face-to-face actions and potentially undermining the importance of social, emotional and psychological aspects of medical care. The norms evident in this movement may clash with existing standards of 'good' medical practice from the perspective of patients, clinicians and institutions. By relating utilitarianism, virtue ethics and theories of surveillance to Habermas' concept of colonisation of the lifeworld, a conceptual framework is created which can explain how PHM may be allowed to change medicine as a practice in an ethically problematic way. The framework relates the inhibition of virtuous behaviour among practitioners of medicine, understood as a moral practice, to the movement in medicine towards remote monitoring. To assess the explanatory power of the conceptual framework and expand its borders, a qualitative interview empirical study with potential users of PHM in England is carried out. Recognising that the inherent uncertainty of the future undermines the validity of empirical research, a novel epistemological framework based in Habermas' discourse ethics is created to justify the empirical study. By developing Habermas' concept of translation into a procedure for assessing the credibility of uncertain normative claims about the future, a novel methodology for empirical ethical assessment of emerging technologies is created and tested. Various methods of analysis are employed, including review of academic discourses, empirical and theoretical analyses of the moral potential of PHM. Recommendations are made concerning ethical issues in the deployment and design of PHM systems, analysis and application of PHM data, and the shortcomings of existing research and protection mechanisms in responding to potential ethical implications of the technology. 004
72	L'encadrement juridique de la gestion électronique des données médicales. / Legal framework for the electronic management of medical data Etien-Gnoan, N'Da Brigitte 18 December 2014 (has links) La gestion électronique des données médicales consiste autant dans le simple traitement automatisé des données personnelles que dans le partage et l'échange de données relatives à la santé. Son encadrement juridique est assuré, à la fois, par les règles communes au traitement automatisé de toutes les données personnelles et par celles spécifiques au traitement des données médicales. Cette gestion, même si elle constitue une source d'économie, engendre des problèmes de protection de la vie privée auxquels le gouvernement français tente de faire face en créant l'un des meilleurs cadres juridiques au monde, en la matière. Mais, de grands chantiers comme celui du dossier médical personnel attendent toujours d'être réalisés et le droit de la santé se voit devancer et entraîner par les progrès technologiques. Le développement de la télésanté bouleverse les relations au sein du colloque singulier entre le soignant et le soigné. L'extension des droits des patients, le partage de responsabilité, l'augmentation du nombre d'intervenants, le secret médical partagé constituent de nouveaux enjeux avec lesquels il faut, désormais compter. Une autre question cruciale est celle posée par le manque d'harmonisation des législations augmentant les risques en cas de partage transfrontalier de données médicales / The electronic management of medical data is as much in the simple automated processing of personal data in the sharing and exchange of health data . Its legal framework is provided both by the common rules to the automated processing of all personal data and those specific to the processing of medical data . This management , even if it is a source of economy, creates protection issues of privacy which the French government tries to cope by creating one of the best legal framework in the world in this field. However , major projects such as the personal health record still waiting to be made and the right to health is seen ahead and lead by technological advances . The development of e-health disrupts relationships within one dialogue between the caregiver and the patient . The extension of the rights of patients , sharing responsibility , increasing the number of players , the shared medical confidentiality pose new challenges with which we must now count. Another crucial question is posed by the lack of harmonization of legislation increasing the risks in cross-border sharing of medical Données personnelles Données médicales Vie privée Traitement automatisé Dossier médical personnel E-Santé Télésanté Télémédecine Hébergeur Déclaration Agrément Consentement Secret médical Confidentialité Interopérabilité Référentiels Masquage Responsabilité médicale Personal data Medical data Privacy Automated processing Personal health records E-Health Telehelth Telemedicine Hosting Reporting Approval Consent Confidentiality Interoperability Standards Masking Medical liability
73	Empirical essays on health care for children and families Neziroglu Cidav, Zuleyha, 1979- 05 October 2012 (has links) This dissertation consists of three empirical essays investigating different aspects of health care for children and families. The first essay examines the effectiveness of adherence to American Academy of Pediatrics guidelines for preventive pediatric health care. Using a national longitudinal sample of children age two years and younger, we investigate whether compliance with prescribed periodic well-child care visits has beneficial effects on child health. We find that increased compliance improves child health. In particular, higher compliance lowers future risks of fair or poor health, of some history of a serious illness and of having a health limitation. The second essay examines child health care utilization in relation to maternal labor supply. We test the hypothesis that working-mothers trade off the advantages of greater income against the disadvantages of less time for other valuable tasks, such as seeking health care for their children. This tradeoff may result in positive, negative, or no net impacts on child health investment. We estimate health care demand regressions that include separate variables for mother’s labor supply and her labor income. Our results indicate that higher maternal work hours reduce child health care visits; higher maternal earnings increase them. In addition, wage-employment, as opposed to self-employment, is detrimental to child health investment. A further finding is that preventive care demand for younger children is less sensitive to maternal time and income changes. We also find that detrimental time effects dominate beneficial income effects. The third essay studies intra-household resource allocation as it pertains to its demand for preventive medical care. We test the income-pooling hypothesis of the common preference model by using individual specific medical care consumption data and present evidence on the allocation of household resources to the medical needs of the child, husband and wife. Our results are in line with the findings of previous studies that emphasize the ongoing importance of the traditional gender role of woman as the primary caregiver. We find that the resources of the wife have a greater positive impact on child’s and her own preventive care demand than does the resources of the husband. In contrast to most studies from developing countries, we find that US families do not exhibit differential health care demand based on child gender. It is also noteworthy that the wife’s education level has a greater positive impact than that of her husband does on both the husband’s and her own preventive care utilization. / text
74	Analyse de la logique d’intervention d’une adaptation québécoise d’un modèle de soins centré sur le patient appuyé par un dossier médical personnel dans les suivis pédiatriques au sein d’un groupe de médecine de famille Demers, Maxime 12 1900 (has links) No description available. Dossier médical personnel (DMP) Modèle centré sur le patient Soins de première ligne Groupe de médecine familiale (GMF) Interopérabilité DMP-DME Performance des services de santé Accessibilité Qualité Continuité Productivité Personal health record (PHR) Patient-centered medical home Primary care Patient centered care model Health care performance Interconnectivity PHR-EHR Family medicine group Accessibility Quality Continuity Efficiency
75	Troubling Peer Support Institutionalization: A Mad Institutional Ethnography; Or, Everyday Documentation, De/Valuing, & Values Work in Institutionalized Peer Support / Peer Support Institutionalization: Troubling Everyday Work Prowse, Calvin 17 November 2022 (has links) A short (11 page) plain language summary is available under the filename "Research Summary_Peer Support Institutionalization - Troubling Everyday Work.pdf" / This study explores how the everyday work of peer supporters working within institutionalized settings are shaped by institutional forces (“ruling relations”), through a series of four (peer support) focus groups and interviews with five peer support workers in Ontario. I explore peer supporters’ approaches to writing, reading, and verbally sharing information about their peers (“documentation work”), and reveal how their experiences and “felt troubles” relating to documentation are shaped by ideas of (clinical) confidentiality constructed in the Personal Health Information Protection Act (2004). I also explore how both lived experience and peer support are devalued through the ways organizations and clinicians determine and describe the value of healthcare roles (“de/valuing work”), and reveal how peer supporters’ experiences of being (de)valued are shaped by discourses of “professional/ism” which equate being a professional to having a post-secondary education and working through clinical frameworks. I describe the work that peer supporters, clinicians, and organizations (can) engage in to ground peer support workers within peer values and approaches (“values work”) through accessing peer community and fostering environments of peer culture. I draw on these suggestions and the findings of the study to provide recommendations for peer support workers, organizations and clinical workers, the peer support sector as a whole, and research/ers. / Thesis / Master of Social Work (MSW) peer support mental health substance use institutionalization professionalization institutional ethnography addiction mental illness consumer/survivor movement Mad studies lived experience experiential knowledge healthcare PHIPA confidentiality personal health information compensation professionalism peer culture peer community peer drift peer relationship peer confidentiality documentation value values

Page generated in 0.0577 seconds