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Quality of Life and Aphasia : Are proxy responses from spouses/caregivers reliable to use in research with persons with aphasia?Arvebro, Lina, Åhlin, Jenny January 2013 (has links)
Persons with aphasia (PWA) have language difficulties and their Quality of Life (QoL) has most likely been affected. Because of their loss of language abilities, it is difficult to use PWA in QoL studies. This can lead to the use of proxy responses (a person who answers for the PWA). The aim of this study was to compare the rankings from QoL questionnaires for PWA with the rankings from their spouses/caregivers (i.e., proxyresponse). We also wanted to find out which of the 11 aspects of life PWA andspouses/caregivers ranked as the most respectively the least impacted ones. A totalnumber of 57 persons participated in the study. The participants consisted of two groups, one group with PWA and one group of their spouses/caregivers. A questionnaire-based cross-sectional survey completed via a face-to-face interview was used to collect data from both groups. The results showed that there was poor internal consistency and a weak correlation between the two groups. The two groups ranked different aspects of life as “most impacted” and “least impacted”. The PWA ranked Vocation/Occupation as the “most impacted” and Family life as the “least impacted”aspects of life. The spouses/caregivers ranked Overall ability to communicate as the“most impacted” and Ability to self-care as the “least impacted” aspects of life. The results indicate that proxy responses may not be appropriate and should be interpreted with caution in QoL studies with PWA.
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The Multimodal Communication Screening Test for Persons with Aphasia (MCST-A) - Översättning och anpassning till svenska : En jämförelse med resultatet på MCST-A och förmåga att kommunicera med AKKNilsson, Emanuel, Pichler, Petra January 2018 (has links)
Personer med afasi lider ofta av sina språkliga svårigheter och upplever dem som ett allvarligt problem. När förmågan till effektiv kommunikation genom talat språk inte räcker till kan ett Alternativt och Kompletterande Kommunikationssätt (AKK) behövas. Det möjliggör att personen, förutom med tal, kommunicerar med till exempel bilder, gester eller tecken. Proceduren att välja ett passande AKK är komplicerad och det händer att ett hjälpmedel som inte passar individens behov sätts in av logoped, eller att ett hjälpmedel inte sätts in alls. För att utveckla och förbättra möjligheten att avgöra om och i så fall vilket hjälpmedel som bör användas har Lasker och Garrett utvecklat bedömningsverktyget The Multimodal Communication Screening Test for persons with Aphasia (MCST-A). Denna studies huvudsyfte var att översätta MCST-A till svenska. Studien delades upp i tre delar; 1) översättning och anpassning av MCST-A till svenska, 2) prövning av översättningen på personer utan afasi samt 3) en första testning på personer med måttlig till grav kronisk afasi där deras resultat på MCST-A jämfördes med en skattning av deras förmåga att kommunicera med AKK i vardagen. Översättningen och anpassningen ledde till en fungerande version på svenska. Resultatet från testningen på personer med afasi går i linje med tidigare forskning, där resultatet på MCST-A speglar personers skattade förmåga att kommunicera med AKK i vardagen. MCST-A kan således vara ett användbart instrument för att avgöra om och på vilken nivå ett hjälpmedel kan användas av en person med afasi. Det är dock inte möjligt att dra en generaliserbar slutsats utifrån denna studies resultat då urvalet var begränsat. / Individuals with aphasia often suffer from their language difficulties and experience them as a serious problem. When the ability to communicate effectively through spoken language is insufficient, an Augmentative and Alternative Communication (AAC) may be required. This allows the person, in addition to speech, to communicate with for example pictures, gestures or body language. The procedure for choosing a suitable AAC is complicated, sometimes an aid that doesn’t suit the needs of the individual is provided by speech-language pathologists and sometimes an aid isn’t provided at all. In order to develop and improve the ability to determine if and what aids should be used, Garrett and Lasker developed the assessment tool The Multimodal Communication Screening Test for Individuals with Aphasia (MCST-A). The main purpose of this study was to translate MCST-A into Swedish. The study was divided into three parts; 1) translation and adaptation of MCST-A to Swedish, 2) testing the translation on persons without aphasia, and 3) a first test on persons with moderate to severe chronic aphasia, where their results on MCST-A were compared with an estimate of their ability to communicate with AAC in daily life. The translation and adaptation led to a working version in Swedish. The results from the persons with aphasia is in line with previous research, where the results on MCST-A reflects the estimated ability to communicate with AAC in their daily lives. Thus, MCST-A can be a useful tool to determine whether if and on what level aids can be used by a person with aphasia. However, it’s not possible to draw a generalizable conclusion based on the results of this study as the sample was small.
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