Le vieillissement de la population est un phénomène bien connu. Marqué par l’un des vieillissements les plus rapides au monde, le Québec verra le poids de ses aînés doubler au cours des 40 prochaines années (ISQ, 2009). Cette importante transformation démographique imposera de nombreux défis aux décideurs publics qui devront innover afin de répondre aux besoins d’une population toujours plus âgée. Parmi les défis du vieillissement, l’isolement social s’impose comme un enjeu essentiel à aborder. L’isolement peut avoir d’importantes conséquences sur la santé et le bien-être des populations plus âgées (OMS, 2002) et rendre les aînés plus à risque de souffrir de solitude et de dépression (Djernes, 2006). En raison de ce constat, accroître la connectivité sociale apparaît comme un objectif essentiel à atteindre afin de favoriser le bien-être d’une population vieillissante. Envisagé dans une perspective écologique, ce mémoire s’intéresse au rôle du voisinage dans la lutte contre l’isolement des personnes aînées. En avançant en âge, les aînés sont nombreux à exprimer la volonté de vieillir le plus longtemps possible dans leur communauté et voient leurs réseaux sociaux décroître et se recentrer autour de leur domicile au fil des années (Forsé, 1999). Le voisinage s’impose, dès lors, comme un espace important à considérer afin d’accroître leur connectivité sociale. Bien qu’elle puisse toucher l’ensemble des aînés, la problématique de l’isolement est particulièrement urgente à aborder au sein des milieux défavorisés où se voit exacerbé l’impact des mécanismes d’exclusion sociale (Forrest, 2007). À visée descriptive et exploratoire, cette recherche propose de répondre aux deux questions suivantes : Comment les personnes aînées vivant en milieu défavorisé expriment-elles leur sociabilité de voisinage? Comment les environnements sociaux et bâtis influencent-ils cette même sociabilité? Les résultats de mémoire reposent sur la réalisation d’une étude de cas unique menée dans le quartier Jardins-Fleuris de Sherbrooke, un territoire ciblé par l’Observatoire estrien du développement des communautés comme l’un des plus défavorisés sur les plans matériel et social en Estrie. Souhaitant accorder une place centrale au discours des aînés, la réalité du cas sélectionné a été documentée à partir du point de vue de 13 résidants âgés de 65 ans et plus. Notre collecte de données s’appuie sur la réalisation de 17 entrevues semi-dirigées, d’un exercice de photographie inspiré de la méthodologie Photovoice et l’administration d’une fiche socio-démographique. Répondant à notre volonté d’envisager cette recherche dans une perspective écologique, la présentation des résultats s’articule en trois volets. Le premier volet aborde d’abord la sociabilité de voisinage des aînés dans un angle individuel et propose de répondre aux trois questions suivantes: avec qui, comment et où les résidents de Jardins-Fleuris voisinent-ils? Les résultats présentés dans cette section permettent d’observer que la sociabilité de voisinage est multiforme et peut s’exprimer dans des lieux variés. Ces derniers montrent également que la sociabilité de voisinage s’envisage en plusieurs étapes et est susceptible d’évoluer dans le temps. Envisagé dans un angle collectif, le deuxième volet propose de réfléchir à l’influence des environnements sociaux et bâtis sur la sociabilité de voisinage des aînés. Les résultats présentés dans le cadre de ce volet permettent de cibler 8 thématiques jugées essentielles aux yeux des résidents aînés de Jardins-Fleuris. Ces dernières relèvent autant des environnements sociaux (tranquillité, animation du quartier, solidarité de proximité, attachement au quartier et sécurité) que des environnements bâtis (accessibilité, marchabilité, esthétisme) et soulignent l’importance de considérer simultanément ces deux dimensions afin de bien saisir l’évolution des dynamiques de voisinage. Poursuivant une finalité pratique, le troisième volet met finalement en dialogue les deux volets précédents et propose 7 recommandations permettant d’accroître la sociabilité de voisinage des aînés.

Environmental justice communities, those disproportionately affected by pollutants, are simultaneously exposed to multiple environmental stressors and also experience social and cultural factors that may heighten their health risks in comparison to other communities. In addition to being more susceptible to toxic exposures and being exposed to more toxins, such communities may have weakened abilities to combat or rebound from such exposures. Many communities that are overburdened by environmental exposures reject traditional risk assessment approaches that solely consider the effects of single chemicals or mixtures of like chemicals and instead have advocated for the use of place-based approaches and collaborative problem solving models that consider cumulative exposures and impacts. Cumulative risks are the combined risks from aggregate exposures to multiple agents or stressors, including chemical, biological or physical agents and psychosocial stressors. This dissertation adapts three research approaches that each use either publicly available data (“expert” data) or community-generated data about environmental and social factors in Northwest Atlanta’s Proctor Creek Watershed. Through this work, we were able to define cumulative environmental and social impacts experienced by watershed residents and to prioritize geographic areas and environmental challenges for investments in environmental monitoring and further research, community capacity-building, and policy change. A principal finding of the study is that local community knowledge is helpful to fill critical gaps about local conditions and pollution sources than a reliance on expert data alone.

Aim: The overall aim of the thesis was to illuminate the meanings of intensive care units’ patient rooms as a place of care for critically ill patients and their loved ones. Moreover, it was aimed to develop photovoice as a data collection method for research in ICU context. Methods and materials: Data has been collected using photovoice methodology in combination with research interviews for all three empirical studies. In total 37 people participated. Nine patients, fourteen loved ones and fourteen nurses from three ICU settings. Study I examined the perspective of loved ones, for this purpose a phenomenological hermeneutic method rooted in the philosophy of Ricoeur was chosen. Study II and III examined patients’ respectively nurses’ perspective. Both studies are phenomenologically orientated guided by a reflective lifeworld approach rooted in continental philosophy. Study IV is a theoretical paper focusing on employing photovoice as a data collection method in ICU context. Main findings: The tone and touch of caring is vital for how ICU patient room is materialized for patients. The interior design and furnishing has a great impact on the wellbeing of the loved ones and also the support they can offer the critically ill patient. One major finding is that the ICU patient room is a taken for granted place for health care providers and the impact of it upon caring, patients’ and loved ones wellbeing is not reflected over. It also seems unclear who is responsible for the environment of ICU once it has been built. The environment of ICU affects nurses’ ability to care for the patients and their family in a genuine way and to promote their wellbeing during a fragile time in life. Conclusions: There is an urgent need to translate research findings into clinical practice in order to improve the environment of ICU patient rooms. There is also need of further research and policies for transforming the hostile environment of the patient rooms to a healing environment more conductive to people’s recovering process. / <p>Akademisk avhandling som för avläggande av filosofie doktorsexamen vid Linnéuniversitetet försvaras vid offentlig disputation, 13 juni 2014, klockan 14.00 i sal Wicksell, Hus K, Växjö</p>

Whilst the idealisation of extreme slenderness is widely recognised as a problematic issue, the negative portrayal of larger individuals is rarely criticised for its link with stigmatisation and problems with self-esteem. To the contrary, the representation of larger individuals in dehumanising terms – whether in news reports, advertising and research accounts – is generally regarded as a necessary means to encourage the pursuit of a ‘better’, ‘healthier’ self. However, these negative stereotypical portrayals – generally excluding the perspective and consent of those depicted – can also have adverse effects on human dignity, legitimacy and self-esteem of those thus depicted. Building on the work of fat studies scholars, as well as feminist marketing researchers, this research project seeks to contribute to the inclusion and rehumanisation of fuller-figured individuals, by involving them in the dialogue of visual and research representation. To do so, this research invited a group of fuller-figured women living in the UK and Canada, to ‘envision’, ‘model’, and ‘review’ their own self-presentations, primarily via the use of self-directed portraits, blogs, and conversations. Whilst the inclusion of their embodied perspectives is expected to contribute to humanising the representation of larger individuals – and offer a glimpse into what could be if we started considering women ‘of size’ as authors of their own depictions – it also contributes in filling a gap left by consumer researchers who have overlooked the way larger individuals make sense of their selves, bodies and well-being. As such, this research contributes to existing consumer research theories by explaining the ways individuals can envision their selves/bodies in the shadow of, but also in contrast with, the dominant marketplace promotion of slenderness. In terms of contribution, this research illustrates the relevance of therapeutic and embodied perspectives to understand the self, the body and to engage in acts of consumption. A new ‘self-nurtured’ discursive position offers challenges to the meanings generally attributed to larger individuals, and to the traditional approaches taken by consumer researchers to solve the ‘obesity crisis’. Overall, this research provides empirical, methodological and theoretical contributions to the field of consumer research. It also offers practical implications for the representation of larger individuals, and recommendations for those interested in the social marketing of health to enjoin people of all sizes in mindful acts of self-care and consumption.

Broader social issues that affect students’ lives manifest in the classroom and the current neo-liberal reform structures in education (e.g., the accountability movement combined with punitive discipline measures and structural classism/racism) fail to acknowledge the impact of these issues on student identity within school and community. While this era of standardized testing has brought about anti-democratic realities in schools of all sorts, it is also the case that schools that pass tests often enjoy a more liberatory climate while schools struggling to meet testing requirements are more likely to possess oppressive qualities. Not coincidentally, the more oppressive schools are often populated by poor kids, kids of color, and very often in urban schools, poor kids of color. Deficit thinking runs rampant in urban schools and marginalized communities – student experiences perpetuate oppressive social hierarchies and students are pushed to think that they can’t, won’t, and aren’t capable. Critical service learning, and more specifically photovoice as a form of critical service learning, has promise to provide a different kind of educational experience. This project is an exploratory qualitative study using photovoice, photo elicitation, and critical thematic analysis to determine what narratives students construct while participating in photovoice as a form of critical service learning. This study posits a way to move from deficits to possibilities by providing a space for traditionally marginalized youth to legitimize their sense of place, identity, and connection to their community while empowering them to be advocates for social change. Students served as action researchers, constructing counter narratives through an adaptation of photovoice documentation, addressing social inequities by highlighting strengths and assets in their own schools and community. In addition to using photovoice as a methodology, this study also addressed how photovoice as critical service learning pedagogy can serve to create discursive spaces for those counter-narratives to circulate and to be heard. This project addressed the need for a critical service learning approach in education that empowers students to become agents of change, using their own stories and cultural/social capital to disrupt deficit perspectives while promoting possibility perspectives – moving us closer to a more democratic public education.

This dissertation research investigates the experience of deafness among deaf youth, adults, and their families in Mexico City, Mexico. Deaf children cannot fully access the spoken languages of their hearing families and mainstream society. Hence, participating families embarked upon extensive treatment-seeking pilgrimages, encountering myths about deaf lifeways and the promise of miracle cures that formed Mexico City's cultural system for coping with childhood deafness. This ethnography uncovers persistent misconceptions in medical and mainstream discourse, including strong recommendations against exposure to sign language, which directly impacted participants' access to relevant communities of practice, the social networks that proved most significant to these families. I used visual data collection methods, including photovoice and personal history timelines, to examine deaf identity. I contrast participants' lived experiences with the effects of the medicalization of deafness to empirically demonstrate the value of sign-based communities of practice for language socialization and the impact of restricted information and stigma. My research outlines the limitations of therapeutic approaches to language and challenges the notion that all children predictably acquire language. My contribution of "treatment-seeking pilgrimages" provides a new concept for examining therapy management as a social practice and I use "ad hoc communities of practice" to illustrate how participants formed social groupings in response to the unanticipated discovery of deafness in their families. Applied outcomes include recommendations suitable for educating medical personnel, public policy actors, educators, and families in early stages of treatment seeking.

This dissertation initially utilizes the analogy of an Andean intellectual's magnum opus of resistant visual art and text created in the 1600s, to explore the impact of current global influences on the identity of Awajún and Wampís Amazonian students residing in Lima, the capital city of Perú. The participants in this study are urban Amazonian indigenous intellectuals applying to enter, currently studying in degree programs, or pursuing graduate degrees at local universities of Lima. Using an amalgamation of Photovoice and Photo-Elicitation components, digital photography, open-source applications, and computer technology, participants creatively expressed through their visual discourse what it means to be an Awajún or Wampís citizen of Perú during difficult times of conflictive global interests and unattended local needs. Between the time of preliminary fieldwork in the Amazonian communities in 2008, and the final interviews in Lima of 2010, violence erupted during a local road blockade in the Amazon that claimed the lives of Awajún/Wampís citizens and mestizo police officers alike. It is in that convoluted context where the dissertation delves into the views of the students and professionals regarding their own indigenousness, nationality, and "new" literacies, languages, and technologies that should be considered by the mestizo population and governments in order to make Perú a safer and more inclusive place for indigenous peoples from the Amazon.

This study presents a formative evaluation of an afterschool program that combined youth development and school garden curricula. This program used a novel approach to teach elementary school children about fruits and vegetables and to engage them in advocacy for the physical activity and nutrition environments in their community. The youth development curriculum included sessions on team building, community pride, healthy eating and physical activity, and advocacy. Photovoice was used as a method to allow participants to assess their community and communicate findings with leaders. Participants selected community leaders to invite to their school and shared their findings via a presentation of the photographs and a plan for action. The school garden curriculum included lessons on plant parts, plant nutrients, site evaluation, and pollination. Participants planted and harvested vegetables in a raised bed constructed at their school. Formative evaluation was conducted through the use of an evaluation form to collect information about each session. Evaluations were examined to provide recommendations to strengthen future program design and implementation. Themes of the evaluation were: successful methods for engaging youth, issues within the social environment, and implications for program management. Successful methods for engaging youth included creative activities, working in pairs, and experiential activities. Issues in the social environment were behavioral problems, shyness, gender groups, and competition. Areas of concern for program management included recruitment, attendance, volunteer training, team building activities, and survey administration.

Research exploring identity in the dementia context reveals that some aspects of personal and social identity persist in dementia while others evolve as persons living with dementia find ways to live with the changes in their lives. Leisure can be a space for developing and expressing identity and a space to resist stereotypical images and social expectations. Leisure may also play an important role in providing meaningful activity and engagement in life. Nonetheless, the meaning and experience of leisure in the context of dementia have received very little attention in the literature. Guided by the personhood movement, this phenomenological study aims to understand the subjective experience of dementia and the meaning and experience of leisure in the lives of persons living with early stage dementia. It explores leisure’s role in identity maintenance and/or development and leisure as a space for slowing down the process of dementia and resisting stigma associated with dementia and identity loss that could occur in dementia. Four persons living with early stage memory loss were recruited through local agencies to participate in this study. Each participant engaged in four conversational interviews following McCracken’s (1988) long interview format. Interviews were recorded and transcribed verbatim. Data were also collected through participant observation. The participants and I engaged in at least one of their favourite leisure activities together. Detailed field notes were recorded following each participant observation session. Using the method of photovoice, participants were given disposable cameras and asked to take photos of objects, places, and subjects that were meaningful for their leisure. These photos were discussed in Interview 2. Data were analysed in a manner consistent with phenomenology. Findings revealed that the participants experienced their journeys of memory loss within a paradox of challenge and hope. Participants juxtaposed the negative aspects of living with memory loss with the positive aspects of their lives. Essences of the experience include struggling with change, in which participants experience a wide variety of challenges as a result of being diagnosed with memory loss, including muddled thinking, fluctuating abilities, draining energy, frightening awareness, and disquieting emotions. However, participants counter these changes with the variety of ways in which they tackle life with dementia, including reconciling life as it is, battling through the changes by being proactive, living through relationships, being optimistic, and prolonging engagement in meaningful activity. Participants also experience threatening assaults on identities. Identity is threatened in terms of disappearing roles, losing independence, struggling with demeaning images and expectations, and losing confidence. However, participants juxtapose these threatening assaults by upholding identities. They do this by emphasizing abilities through leisure, changing perspectives, and engaging in life through leisure. This study deepens our current understandings of the subjective experience of dementia and leisure’s role within that experience. It helps us to understand the experience of leisure within the context of memory loss in terms of four lifeworld existentials: lived time, lived space, lived body, and lived other. The findings also contribute to our understandings of how persons living with dementia use leisure to resist a master status of dementia. Participants in this study used leisure as a space for resisting both the stigma of memory loss and the progression of memory loss. They overcome challenges in their leisure to demonstrate to themselves and others that they have many remaining abilities and are able to maintain valued aspects of their identities. The findings suggest that service providers, family members, and persons living with dementia should carefully consider the meaning of leisure and find ways to facilitate involvement in leisure that is meaningful for persons living with memory loss. In terms of future research, leisure in the context of relationships, including the importance of advocacy work for persons with dementia, should be examined. Although this study provides insight into the possibilities of alternative methods for understanding the experience of memory loss, further exploration is needed in this area.

The purpose of this study was to understand why there is such lack of citizen participation among Asian Americans, despite the exponential growth of Asian American population in the state. Based on the literature on sense of community, citizen participation, and psychological empowerment, it was speculated that how individuals experience community may influence their motivation to participate. With the goal to understand and document how Asian Americans define community and experience sense of community, a sample of Asian Americans were interviewed. These individuals were participants of the Photovoice project conducted by a local community-based organization. The second aim of the study was to explore if and how a project like Photovoice enhanced the sense of community among participants. The findings suggested that Asian Americans defined various types and multiple communities. Also, it was suggested that because Asian American community is an imposed community of people of diverse Asian background, Asian Americans may not necessarily define it as a community or experience sense of community within the community. Based on the experiences of the participants, Photovoice seem to have great potential in bringing such diverse group as Asian Americans together as a community. Limitations of the study and future directions are discussed.