La souffrance psychologique des adolescents fait l'objet d'une attention croissante des pouvoirs publics, des mondes associatifs, et bien sûr des cliniciens et des travailleurs psychosociaux. Pour les adolescents migrants, cette souffrance, aggravée par la fragilité, les malaises et les tensions de l'adolescence, est compliquée par l'appareil de santé publique bureaucratique complexe destiné à traduire dans le langage des soins le malaise des attitudes, des comportements et des tendances qui se dégagent de leur statut de migrant tantôt mal vécu, tantôt réprouvé par leur environnement et leur parcours personnel et familial. Ce mémoire de maîtrise a exploré l'un d'entre eux, celui de la clinique de psychiatrie transculturelle, où l'écoute de ce qui se dit importe tout autant que la traduction et la gestion de ces souffrances. En utilisant une approche anthropologique, j'analyse les discours et les attitudes de dix thérapeutes et les travailleurs sociaux qui interviennent auprès de ces familles. Cette recherche montre que le cadre de gestion sociale et culturelle qui inclut les soignants et les familles, et les ambivalences de jeunes adolescents, ne peut être analysé sans référencer le contexte plus large des différences de classes, d'accès au pouvoir, d'orientations et de bagages culturels affectant à la fois le vécu des adolescents et la manière avec laquelle leurs angoisses seront communiquées et traduites. Dans cette perspective particulière, les paradoxes et les résistances de certains professionnels médicaux et sociaux, dont les positions qu'ils occupent au sein des structures du pouvoir, autrement, pourraient les tenter de s'engager dans des diagnostics faciles liés à la socialisation prétendument difficile de ces adolescences. Au lieu de cela, ils créent des stratégies uniques qui respectent les idiomes officiels encadrant leur autorité médicale et sociale. / The psychological suffering of teenagers has drawn increasing attention of the public authorities, associations, and of course clinicians and psychosocial workers. For migrant teens, this suffering, exacerbated by the fragility, discomforts and tensions of adolescence, is complicated by the complex bureaucratic public health apparatus designed to translate into the language of health care the malaise of attitudes, behaviours, and tendencies that emerge from their migrant status and history. This thesis explores one of these, the transcultural psychiatry clinic, where listening to what is said is as important as translating and managing these complaints. Using an anthropological approach, I analyze the speech and attitudes of ten therapists and social workers who work with families and teenagers. This research shows that the framework of social and cultural management that includes caregivers and families, and the ambivalencies of young teens, cannot be analyzed without referencing the broader context of class differences, power, and the past condition that influence both teen suffering and how their anguish is communicated and translated. In this particular perspective, the paradoxes and resistances of some medical and social professionals, whose position in the power structure could otherwise tempt them to engage in facile diagnoses linked to allegedly improper socialisation of these migrant teens. Instead, they create unique strategies that respect the official idioms that frame their medical and social authority.

Submitted by Rosane Santos (gueudeville@gmail.com) on 2015-01-22T00:43:39Z No. of bitstreams: 1 Dissertação_Rosane Gueudeville.pdf: 6281892 bytes, checksum: b3584ed8205b4c918c6e68a74b17b869 (MD5) / Approved for entry into archive by Maria Auxiliadora da Silva Lopes (silopes@ufba.br) on 2015-01-27T14:16:10Z (GMT) No. of bitstreams: 1 Dissertação_Rosane Gueudeville.pdf: 6281892 bytes, checksum: b3584ed8205b4c918c6e68a74b17b869 (MD5) / Made available in DSpace on 2015-01-27T14:16:10Z (GMT). No. of bitstreams: 1 Dissertação_Rosane Gueudeville.pdf: 6281892 bytes, checksum: b3584ed8205b4c918c6e68a74b17b869 (MD5) / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPES / A percepção da doença supõe um olhar qualitativo e os objetivos estabelecidos devem a longo ou em curto prazo ter em vista o restabelecimento do paciente e o seu retorno à sociedade, de modo a poder desempenhar as atividades que antes faziam parte da sua rotina. É neste contexto que vêm emergindo as Classes Hospitalares. Tal modalidade de atendimento anseia por minorar o sofrimento emocional e social, decorrente das hospitalizações, e assegurar a continuidade da escolarização de crianças e/ou adolescentes hospitalizados. Assim sendo, indivíduos cronicamente enfermos necessitam, em alguma medida, de uma atenção específica, seja pela necessidade de uso de aparatos médicos que visem minimizar os sintomas decorrentes da patologia, seja pela oferta de atendimento pedagógico durante o tratamento e/ou hospitalização. Desse modo, a presente pesquisa teve como objetivo analisar o papel da Classe Hospitalar na atenção terapêutica de alunos-pacientes com mucopolissacaridose (MPS). Tratou-se de um estudo qualitativo que utilizou o estudo de caso, como estratégia de pesquisa, para a melhor compreensão do fenômeno. Participaram da investigação 14 (quatorze) sujeitos, sendo 4 (quatro) alunos-pacientes com MPS, 5 (cinco) acompanhantes e 5 (cinco) profissionais de saúde. Como instrumento de coleta de dados, elegemos como procedimento o roteiro de entrevista semi-estruturada e individual. As entrevistas foram transcritas em sua integridade e submetidas a uma análise do conteúdo, após a exaustiva leitura das entrevistas definimos duas categorias temáticas: a doença crônica mediando à vida e uma escola dentro do hospital. Os resultados apontaram que os participantes percebem que a prática pedagógica das professoras da Classe Hospitalar ajuda manutenção dos vínculos escolares, na adesão ao tratamento, minimiza o estresse decorrente da Terapia de Reposição Enzimática, favorece à auto-estima, superação das limitações físicas, diminui a estigmatização da doença ajudando na socialização e inclusão escolar e social. / ABSTRACT Illness perception requires a qualitative view, and the established goals, in a short or a long term, must not lose sight of the patients’ reinstatement and their return to the society, in a way to perform activities which once were part of their routine. This is the context in which the Hospital Classes are emerging from. This modality of service aims to lessen social and emotional suffering, resulting from hospitalization, and ensure that the education of hospitalized children and/or teenagers will have place to continue. Therefore, individuals in chronic conditions need specific attention, which means either the use of medical equipment working to decrease resulting symptoms from a disease, or the offering of pedagogic assistance during the treatment and/or hospitalization. Thus, the present study aimed to analyze the role of Hospital Classes in therapeutic care of student-patients with mucopolysaccharidosis (MPS). It was a qualitative research that made use of the case study as a research strategy in order to better understand the phenomenon. Fourteen (14) people participated in the process; four (4) MPS student-patients, five (5) carers and five (5) health professionals. As an instrument of data collection, the semi-structured and individual interview script was chosen for the procedure. An unabridged transcription was made from the interviews, which were later subjected to a content analysis. After a thorough reading of the interviews we nailed down two categories of themes: the chronic illness condition interfering in life, and a school within the hospital. The results indicated that the participants are able to perceive that the pedagogic method of a Hospital Class teacher upkeeps bonds with the school, as well as helps with the treatment acceptance, lessen the stress resulting from the Enzyme replacement therapy, fosters self-esteem and recovery from physical limitations, and also decreases prejudice and lack of information concerning the illness, helping in social and school re-integration.

The purpose of the study was to determine how professional nurses perceive their roles in patient centered care in various units, in three regional hospitals in Mpumalanga Province. The main objectives of this study were to determine * whether the working environment in provincial hospitals is supportive of patient centered care * what factors could hinder the provision of patient centered care * the extent to which patient centered care is provided to patients in provincial hospitals * professional nurses' perception of their role in patient-centered care The researcher used the descriptive exploratory method. A questionnaire with closed and open-ended questions was used to collect data from professional nurses in the three hospitals. Seventy- two (72) respondents returned the completed questionnaires. The findings indicated that the professional nurses perceived patients' and nurses' lack of knowledge as the biggest hindrance to patient centered care. Patients and relatives seemed to be less involved in their own care and the lack of information given to patients by professional nurses subsequently contributed to patients' inability to make / Health Studies / M.A. (Health Studies)

The purpose of the study was to determine how professional nurses perceive their roles in patient centered care in various units, in three regional hospitals in Mpumalanga Province. The main objectives of this study were to determine * whether the working environment in provincial hospitals is supportive of patient centered care * what factors could hinder the provision of patient centered care * the extent to which patient centered care is provided to patients in provincial hospitals * professional nurses' perception of their role in patient-centered care The researcher used the descriptive exploratory method. A questionnaire with closed and open-ended questions was used to collect data from professional nurses in the three hospitals. Seventy- two (72) respondents returned the completed questionnaires. The findings indicated that the professional nurses perceived patients' and nurses' lack of knowledge as the biggest hindrance to patient centered care. Patients and relatives seemed to be less involved in their own care and the lack of information given to patients by professional nurses subsequently contributed to patients' inability to make / Health Studies / M.A. (Health Studies)