Made available in DSpace on 2014-12-17T14:46:37Z (GMT). No. of bitstreams: 1 MariaBM.pdf: 641625 bytes, checksum: dec880a40827b655c7e1cac09d32148f (MD5) Previous issue date: 2007-12-18 / This work is an investigation related to issues of those who take home care of people who suffer from Alzheimer disease (AD). Thus, it is justified by the need to acknowledge how these relatives perform this task and in which ways they do this. The study has is analytical and qualitative methodology with the use of a thematic oral history approach. The subjects of the research were nine relatives of those who suffer from AD that participate in the home care group in the Candel?ria neighborhood in the city of Natal in Rio Grande do Norte-Brazil. The data was collected using a semi-structured questionnaire and interview that was booked in advance and had full support from the care takers. After information collection, three thematic axles were defined. After this procedure, three analisys subcategories were also defined. The first thematic axle emphasizes the so called movement of rite of passage, when the relative becomes a care taker of a person with AD. The second category deals with the care takers strategies, either related to their own behalf or on their relative. It is possible to infer that amongst other forms of help, the care taker needs to rely on a support network, such as health services, groups composed by multiprofessionals that enable better articulation between family and collaborators. The dimension related to faith and spirituality was also observed and pointed out as an important aspect in the emotional support process for these relatives. In the third axle the perspectives of struggle, conquests of the right to health and life quality of those who suffer from AD as well as their relatives was observed. These also deal with dreams and hope / O presente trabalho trata-se de uma investiga??o em torno do cuidado vivenciado pelos familiares de portadores de doen?a de Alzheimer no domic?lio. Justifica-se desenvolver este estudo pela necessidade de conhecer como os familiares cuidadores v?m desempenhando o papel de cuidador e quais os caminhos constru?dos por eles para a realiza??o do cuidar de um familiar portador de DA. Trata-se, portanto, de um estudo de natureza anal?tica e abordagem qualitativa, tendo como norteador a hist?ria oral tem?tica. Para sua realiza??o, o trabalho teve como colaboradores nove familiares cuidadores de portadores de doen?a de Alzheimer que participam do grupo de familiares cuidadores de portadores de doen?a de Alzheimer, no bairro de Candel?ria, Natal /RN. Os depoimentos foram obtidos atrav?s da entrevista semi estruturada, as quais foram agendadas previamente e contou com o consentimento dos familiares cuidadores. Nesse sentido, a an?lise foi realizada partindo da literatura existente sobre o assunto. A partir da agrega??o das informa??es, foram definidos tr?s eixos tem?ticos norteadores, e destas, as subcategorias de an?lise. O primeiro eixo tem?tico enfoca o movimento de rito de passagem, quando o familiar torna-se cuidador de um portador de DA. A segunda categoria aborda as formas de ajuda que o familiar cuidador busca, na perspectiva de promover o cuidado do seu ente querido e de si pr?prio. Constatou-se que entre essas formas de ajuda, o familiar portador precisa contar com uma rede de suporte, envolvendo os servi?os de sa?de, com equipes multiprofissionais, bem como com uma melhor articula??o entre os familiares e colaboradores. A dimens?o da f? e da espiritualidade tamb?m foi observada como aspecto importante no processo de suporte emocional para estes familiares. No terceiro eixo tem?tico, foram analisadas as perspectivas de lutas e conquistas na busca pelo direito ? sa?de e qualidade de vida dos portadores de DA e seus familiares cuidadores, contemplando inclusive, seus sonhos e suas esperan?as

The aim of our study is to examine experience of the quality of life for elderly people with assisted living from their own, and caretakers, perspectives. We also aim to examine how elderly people in assisted living, and caretakers, experiences that they could affect the elderly people´s quality of life.   The study is based on a qualitative method and the data is collected by interviews with four recipient of care and three care takers.   The result shows that there are many factors that have an importance when it comes to quality of life for the recipient of care. It has shown in the study that the recipient of care and the caretakers put emphasize in the same factors. These factors are health, the affect of assisted living, happiness, relationships and self-determination. The result has shown that the assisted living has a major importance when it comes to the quality of life for the recipient of cares.