Siblings are an integral part of the support network for adults with a developmental disability (DD). However, little is known about the psychological stress of having a sibling with a DD in adulthood. This project had four main objectives: (1) to identify variables that predict and moderate psychological well-being and depressive symptoms in adults who have a sibling with a DD; (2) to examine differences in sibling relationship characteristics, psychological well-being, depressive symptoms, and support use in siblings of individuals with a DD alone versus siblings of individuals with a DD and symptoms of a mental illness; (3) to determine whether relationships with siblings with a DD differ from relationships with siblings without a DD; and (4) to explore the perspectives of adults with a DD regarding their sibling relationships and how these relationships affect their well-being. One-hundred ninety six adult siblings of individuals with a DD completed online questionnaires about life events, relationship closeness, sibling contact, impact of having a sibling with a DD, family functioning, use of supports, symptoms of depression, and psychological well-being. Life events and having a sibling with a DD and behavioural or psychiatric symptoms predicted symptoms of depression and psychological well-being. However, the relationship between these predictor variables and psychological well-being was moderated by general family functioning. Additionally, siblings of individuals with a DD and behavioural or psychiatric symptoms reported less positive feelings about their sibling relationship, more symptoms of depression, and lower psychological well-being than siblings of individuals with a DD alone. A subset of the participants (n = 128) who also had a sibling without a DD completed questionnaires about their relationship closeness, sibling contact, and perceived impact of their sibling without a DD. Participants reported more in-person and telephone contact with siblings with a DD, more positive feelings about the sibling relationship, and greater perceived life impact as compared to their relationship with their sibling without a DD. Seventeen adults with a DD also completed in-person interviews and answered questions about their sibling relationship closeness, shared activities, and support exchanged with siblings. Participants identified numerous activities they enjoyed doing with siblings and indicated a desire to spend more time with siblings. They also reported that they both provided support to and received support from their siblings. / Thesis (Ph.D, Psychology) -- Queen's University, 2013-02-07 23:47:06.32

No description available.

Syftet med denna retrospektiva kvalitativa studie är att öka kunskapen om tre systrars upplevelse av sina relationers utveckling före och efter båda föräldrarnas död. Som forskningsdesign valdes en kvalitativ metod. Två syskongrupper om tre systrar i medelåldern 49-62 år intervjuades. Datamaterialet analyserades med empirisk tematisk analys. I resultatet framträdde en struktur med fyra olika tidsintervall med femton teman. Resultaten visar att trots de oerhört starka anknytningarna av dysfunktionell natur i ursprungsfamiljerna får systrarna syn på varandra när föräldrarna dör. Syskonrelationerna har kommit i skymundan av föräldrarnas närvaro och deras problem. Det har påverkat syskonrelationerna. Relationerna mellan systrarna och rollerna förändrades i processen före och efter föräldrarnas död och mognar till något annat. Detta går som en röd tråd genom hela materialet; att existera i tillvaron, syskonrelationer omprövas och detta leder till närhet, autonomi och differentiering, en acceptans att alla är olika i triaden som vägleder dem till att värna om varandra än mer i medelåldern. / The aim of this retrospective qualitative study is to increase knowledge about three sisters' experience of the development of their relationships before and after both parents death. A qualitative research method was chosen. Two sibling groups of three sisters in middle age 49-62 years were interviewed. The data were analyzed with empirical thematic analysis. The result showed a structure with four different time intervals with fifteen themes. Despite the extremely strong dysfunctional nature of the relations in their origin families the sisters caught sight of each other when the parents died. The sibling relationships have been overshadowed by the parents' presence and their problems. Relationships and roles changed in the process before and after parental death between the sisters and matured into something else. This runs as a thread throughout the material; to exist in life, sibling relationships are reviewed, and it leads to intimacy, autonomy and differentiation, an acceptance that everyone is different in the triad that guides them to protect each other even more in middle age.

No description available.

Indiana University-Purdue University Indianapolis (IUPUI) / Little is known regarding the psychosocial outcomes of adult siblings of adults with autism. Accordingly, the current study sought to: (1) illuminate factors that predict health-related quality of life, caregiver burden, and reported benefits in adult siblings of adults with autism, using a stress and coping framework and (2) compare outcomes of siblings of adults with autism (n = 31) to siblings of adults with Down syndrome (DS) (n = 54). For the within subject hypotheses, analyses were repeated within the DS group and an overall Disability group (n = 97). The Disability group consisted of participants in the Autism and Down syndrome groups plus twelve individuals in a mixed group of adult siblings of adults with DS who presented with co-morbid symptoms of autism. Variables were organized using The Adult Sibling Caregiver Conceptual Model (ASCCM) into three categories: antecedents (e.g., sibling relationship quality, problem behaviors of the disabled sibling), mediators (e.g., coping strategies, cognitive appraisal types), and psychosocial outcome variables (i.e., mental and physical health-related quality of life, caregiver burden, and reported benefits). For the within subject primary hypotheses, I posited a series of relationships between the antecedents and outcomes based on prior literature on demographic and individual difference predictors (e.g., siblings of adults with autism with fewer problem behaviors would have increased health-related quality of life [HRQOL], decreased caregiver burden, and increased reported benefits) and on stress and coping factors related to the burden of providing care for an individual with autism (e.g., greater use of avoidant coping strategies would be related to lower HRQOL, increased caregiver burden, and decreased reports of benefits). Exploratory hypotheses also were examined (e.g., being married would be associated with increased HRQOL, decreased burden, and increased reported benefits). The within-subject results indicated support for eight of the ten primary hypotheses and five of the six exploratory hypotheses when examined within at least one of the study groups: Autism, DS, or Disability. Overall, sibling caregivers, regardless of their sibling’s disability, reported more favorable psychosocial outcomes when demands were lower (e.g., less severe levels of problem behaviors, fewer autism symptoms exhibited by their disabled sibling, decreased additional pile-up stress), when resources were available to cope with stress (e.g., social support, respite care), and when healthy responses to stress were reported (e.g., use of emotion focused vs. avoidant coping strategies, use of challenge vs. threat appraisal types). Of note, reported benefits, which have rarely been examined in the autism literature, were strongly related to the quality of a sibling relationship across all study groups, and with the helpfulness of received services and perceived social support within the Autism group. The between subject hypotheses also were largely supported. As expected, compared to siblings of those with Down syndrome, siblings of those with autism demonstrated greater levels of caregiver burden and lower mental HRQOL. Moreover, there was a rank ordering in levels of caregiver burden across disability groups; siblings of adults with DS reported the lowest burden, siblings of adults with DS with symptoms of autism reported significantly higher levels of burden, and siblings of those with autism reported the most burden. The results imply that autism, either alone or co-morbid with another diagnosis, presents an increased risk of stress and caregiver burden, not only in parent caregivers, but also in sibling caregivers. Interestingly, there was also evidence for higher levels of stress related growth within the Autism group compared to the DS group. Future research will be needed to generalize the results of this study to broader samples of adult siblings while taking a life course perspective to assess changes in non-disabled siblings’ outcomes over time.