<p>The social inclusion of adults with intellectual and developmental disabilities remains an elusive goal for many adults, their families, and allies. Many of the typical relational human interactions people without intellectual and developmental disabilities enjoy and take for granted, have been denied to adults with intellectual and developmental disabilities, largely because of harmful conceptualizations of what it means to live with a disability. These conceptualizations have not only influenced the development of public policy but they have also shaped the interactions and relationships between professionals and adults with intellectual and developmental disabilities. Equipped with the historical knowledge of how public policy was used to cultivate and maintain the mass institutionalization of adults living with intellectual and developmental disabilities – and then subsequently used to lead to it’s demise – this study set out investigate if and how public policy might influence the nature of professional relationships between service users with intellectual and developmental disabilities and service providers. Using qualitative methods guided by critical disability theory, this study looked specifically at how <em>Ontario Regulation 299/10</em> has already, and/or may in the future, change the interpersonal relationships that exist between adults living with intellectual and developmental disabilities and their care-givers at L’Arche Hamilton. Research methods included working with the policy document and also conducting face-to-face interviews with adults with intellectual and developmental disabilities and their caregivers. It was important for this study to include the voices of adults with intellectual and developmental disabilities and to examine the research question from their perspective because without their input it would not be possible to really understand the regulation’s impact.</p> <p>This study focused on the current experiences of three residents (core members) and three care-givers (assistants) at L’Arche. It was found that there exist genuine and caring relationships between the two; relationships shaped by the understanding of the assistants that adults with intellectual and developmental disabilities have something of value – a “gift” – to contribute to what they define as a mutual relationship. In addition, both core members and assistants point to the importance of human touch in care-giving interactions – touch that moves beyond the functional (e.g., assistance with personal care) to also include expressive touch (e.g., hugs) that conveys affection and love. However, the findings further suggest that <em>Ontario Regulation 299/10</em> threatens the ability of care-givers to engage in the intentional form of relationship which currently exists within the L’Arche service model. This form of relationship is understood to be restricted by the regulation under the guise of “protection” and as being “best practice”. The legislation recognizes that people living with disabilities have higher rates of abuse then those living without disabilities; in response to this reality the legislation attempts to reduce opportunity for such abuses to occur and, as a result, articulates clear boundaries around the type of relationships that are permissible. The assistants interviewed for this study also recognize these concerns but they also worry that these concerns overlook the reality of the limited opportunities for genuine relationships between adults with intellectual and developmental disabilities and those without. Further research, directed by adults with intellectual and developmental disabilities, is needed to unpack how this relationship is understood and experienced by both parties, and how each feels it should be maintained, especially in regards to the use of physical touch as an expression of relationship. Research which engages the core members in dialogue on what “safety” and “relationship” mean and looks like for them is needed in order to truly understand the potential impact limiting the professional relationship may have.</p> / Master of Social Work (MSW)

<p>This study explores people’s life experiences when they are diagnosed with Attention Deficit Hyperactivity Disorder (ADHD) as an adult, the impact of this diagnosis and how they experience living with ADHD. ADHD is often missed as a diagnosis in children whom have inattentive type ADHD, as “characteristic” symptoms such as hyperactivity and impulsiveness are not as prominent and therefore the child does not typically stand out in a school setting as having problematic or challenging behaviours. Consequently many children may navigate through their childhood and teen years not receiving a diagnosis until sometime into their adult years. In an attempt to give this group a voice I have created an opportunity for a small group of adults diagnosed with ADHD as adults to share their experiences in this qualitative research study. Discussions and findings from my research include the participants’ experiences of feeling relieved after being diagnosed with ADHD as an adult, their resulting responses of thinking about things differently, changing expectations and seeking more information. Participants shared everyday challenges of living with ADHD including physical and cognitive, challenges of daily living and challenges in the school environment. Participants also talked about the emotional impact when relating their experiences of living with ADHD, including having low self esteem, ongoing struggles with feelings of failure, not fitting in and self blame. The purpose of my research was to inform helping professions, and specifically the social work profession, about the experience of receiving a diagnosis of ADHD in adulthood and the realities of living with ADHD. The last area of my findings and discussion fulfills this purpose as it focuses on professional support.</p> / Master of Social Work (MSW)

Historically, people labelled/with intellectual disability in Canada have received institutionalized forms of care in which they were mistreated, abused, and controlled (Seth et al., 2015; Spagnuolo & Earle, 2017). Today, many people labelled/with intellectual disabilities live within the community and instead receive support from disability support workers in various settings, including within smaller-scale institutions such as group homes, supported independent living arrangements. In some instances, such settings continue to provide institutionalized forms of care (Spagnuolo & Earle, 2017). They may also be in receipt of disability support through involvement with various other community services, including education, employment and recreation. While this shift away from large-scale institutionalization has generally granted a greater level of autonomy for those so labelled than there was previously, the power differential between disability support staff and people labelled/with intellectual disability is such that many problematic support dynamics persist (Sagnuolo & Earle, 2017; Robinson et al., 2022; Antaki et al., 2007). This qualitive co-production project aimed to learn more about what people labelled/with intellectual disability wanted disability support staff to know about the provision of support and did so using a series of focus groups and individual interviews with a participatory component: the co-creation of a series infographics for training of support staff. Thematic analysis revealed two major themes in my data. The first, the ways that support was too often unhelpful or harmful, I broke down into three subthemes: variable treatment, assumptions of (in)capability, and directing or doing for participants leading to neglect of opportunities for skill development. My second theme described what the participants wanted to see from support instead, which also had three sub-themes: respect for boundaries, kind and compassionate treatment, and respect for individuality. My findings and the co-created infographics emphasized the importance of respecting the knowledge that people labelled/with intellectual disabilities have about their own needs, challenging social workers and other professionals to reflect upon their self-perceptions as experts. / Thesis / Master of Social Work (MSW)

Social work services prior to the COVID-19 pandemic generally preferred in-person service delivery. When the lockdowns during the COVID-19 pandemic began, social workers needed to modify their practice and pivot to a virtual delivery format to ensure safety as well as continuity of service for the individuals and communities they support. Current literature on virtual care in social work lacks clear identification of best practices for virtual care service delivery. Additionally, 1 in 5 Canadians have a disability. Given the prevalence of disability, social workers must consider how accessibility is impacted by service delivery methods. This research aims to address the gap in the literature by centering the narratives of 7 social workers who have disabilities, who both access and provide virtual care services. This research is guided by Critical Disability Theory (CDT) and the Nothing About Us Without Us movement to explore the social construction of disability within virtual care service delivery, from the perspective of those with disabilities. A focus group was conducted to elicit the experiences of these social workers. Using narrative and reflexive thematic analysis, five themes were identified: 1) digital literacy, 2) privacy, 3) factors enhancing accessibility, 4) factors challenging accessibility, and 5) practice standards in the digital domain. Reflecting on the themes identified in the data analysis, in conjunction with the literature review, a set of guiding best practices are proposed to support accessible virtual care service delivery in social work. Implications for policy and practice are discussed, as well as limitations of this research and potential directions for future research in virtual care and accessibility. / Thesis / Master of Social Work (MSW)

Education facilitates community involvement, participation, and acceptance, but not for students with significant disabilities who are taught in separate settings. The policy of separate education derives from arcane beliefs, limited research, and misconceptions that result in people with disabilities having choices made for them not with them. The All IN Pix YPAR asked six high school students with significant disabilities to photo document a week in their high school yearbook class. Each day after school, the students discussed a single photo using a modified photovoice method in structured interviews using the SHOWeD questioning protocol. After data capture, during a Zoom focus group interview, participant photographers picked 10 pictures and identified themes. Study district schoolteachers opted into the ALL IN Pix Gallery Exhibit Survey and shared their reactions to the images and student comments. The teachers found the exhibit impactful in providing a view of the students’ world, giving voices to students, and teaching the teachers more about the people beyond their disabilities. Students felt empowered in classes where they had choice in their education. Student participants became advocates for change over the course of the study. Recommendations for practice include, adopting students’ requests for experiential and choice driven instruction, incorporation of photovoice into individualized education plan development, club involvement, and teacher development. The All IN Pix YPAR study empowered student participants through self-advocacy and personal autonomy, which align to the study theoretical frameworks of empowerment education theory, critical disability theory, and the social model of disability theory (Kunt, 2020).

Subjects designated by the neologism 'disability' typically experience various forms of marginality, discrimination and inequality. The response by social scientists and professionals engaged in social policy and service delivery has been to combat the 'disability problem' by way of implementing anti-discrimination protections and various other compensatory initiatives. More recently, with the development of biological and techno-sciences such as 'new genetics', nanotechnologies and cyborgs the solution to 'disability' management has been in the form of utilizing technologies of early detection, eradication or at best, technologies of mitigation. Contemporary discourses of disablement displace and disconnect discussion away from the 'heart of the problem', namely, matters ontological. Disability - based marginality is assumed to emerge from a set of pre-existing conditions (i.e. in the case of biomedicalisation, deficiency inheres in the individual, whilst in the Social Model disablement is created by a capitalist superstructure). The Great Divide takes an alternative approach to studying 'the problem of disability' by proposing that the neologism 'disability' is in fact created by and used to generate notions and epistemologies of 'ableism'. Whilst epistemologies of disablement are well researched, there is a paucity of research related to the workings of ableism. The focal concerns of The Great Divide relate to matters of ordering, disorder and constitutional compartmentalization between the normal and pathological and the ways that discourses about wholeness, health, enhancement and perfection produce notions of impairment. A central argument of this dissertation figures the production of disability as part of the tussle over ordering, emerging from a desire to create order from an assumed disorder; resulting in a flimsy but often unconvincing attempt to shore up so-called optimal ontologies and disperse outlaw ontologies. The Great Divide examines ways 'disability' rubs up against, mingles with and provokes other seemingly unrelated concepts such as wellness, ableness, perfection, competency, causation, productivity and use value. The scaffolding of the dissertation directs the reader to selected sites that produce epistemologies of disability and ableism, namely the writing of 'history' and Judeo-Christian renderings of Disability. It explores the nuances of ableism (including a case study of wrongful life torts in law) and the phenomenon of internalized ableism as experienced by many disabled people. The study of liberalism and the government of government are explored in terms of enumeration, the science of 'counting cripples' and the battles over defining 'disability' in law and social policy. Additionally another axis of ableism is explored through the study of a number of perfecting technologies and the way in which these technologies mediate what it means to be 'human' (normalcy), morphs/simulates 'normalcy' and the leakiness of 'disability'. This analysis charts the invention of forearms transplantation (a la Clint Hallam), the Cochlear implant and transhumanism. The Great Divide concludes with an inversion of the ableist gaze(s) by proposing an ethic of affirmation, a desiring ontology of impairment.

abstract: According to national data, there continues to be an ongoing achievement gap between students with disabilities and their non-disabled peers (USDE, n.d.b). This data is representative of a continued disparity in academic performance for students in local Arizona school districts. To address this gap, many districts have implemented inclusion models in which students with disabilities spend increasing amounts of time in general education classrooms, in some cases for the majority of or all of their school day. However, the persistence of the achievement gap suggests that general education teachers working in inclusion models may be lacking systematic instructional methods for ensuring access to the curriculum for those with disabilities and other diverse learning needs. The purpose of this action research study was to examine the impact that a series of professional development workshops had on teacher beliefs and understanding of disability, intelligence, and accessible pedagogy. The study was conducted over the course of a school semester at a kindergarten through 8th grade school in a large, semi-rural school district in southeastern Arizona. Ten teachers from a variety of grade levels and subject areas participated in the study along with a school psychologist and two school administrators. Theoretical frameworks guiding this project included critical disability theory, growth mindset, universal design for learning, and transformative learning theory. A mixed-methods action research approach was used to collect both qualitative and quantitative data in the form of surveys, interviews, and written reflections. The workshop series included five modules that began with activities fostering critical reflection of assumptions regarding disability and intelligence and ended with pedagogical strategies in the form of universal design for learning. The results indicate that the innovation was successful in reshaping participant views of disability, intelligence, and pedagogy; however, changes in classroom instruction were small. Implications for future research and practice include more extended sessions on universal design for learning and a more diverse sample of participants. Workshop sessions utilized a variety of active learning activities that were well received by participants and will be included in future professional learning plans across the district. / Dissertation/Thesis / Doctoral Dissertation Leadership and Innovation 2018

Disability classification systems belong to the core of states’ social/disability policies through which persons with disabilities are classified as eligible or ineligible for having access to disability allowances. The study of disability classification systems has stimulated the interest of several scholars from the broader area of disability studies. Either by conducting comparative studies between different states and describing the similarities and differences of these systems around the world or by conducting studies focusing on the politics and semantics in the development of disability classification systems in specific states, all studies have shown a pluralism in the systems for assessing and certifying disability. In Greece, the development of disability classification systems for social welfare reasons emerged as a controversy that lasted for almost twenty years. One factor that strengthened the controversy was the outbreak of the economic crisis late in 2009 followed by the announcement by the governmental authorities of the enactment of a new system for assessing and certifying disability as part of the austeritydriven policies that the Greek state would enact for facing the consequences of the economic crisis. Drawing on an interdisciplinary approach, the overall aim of this study is to describe and analyze the enactment of disability classification systems in the context of Greek social policy from 1990 to 2015. For the collection of empirical material, a qualitative research method was employed, consisting of interviews, written material, and newspaper articles. The main findings of this thesis are: I) the involvement of the political parties in the development of the systems for certifying and assessing disability; II) the involvement of the disability movement in policymaking; III) the “creative” use of statistics by governmental authorities for the enactment of disability/social policies; IV) how the concept of “disability fraud” has been constructed as a “threat” to the society; and V) the vulnerability of disability classification systems in times of austerity.

Background: Fat people are subjected to oppression including medical “obesity” rhetoric and fat discrimination which may affect their ability to experience an embodied relationship with their bodies. Aims: The aim of this study was to discover how self-identified fat female-bodied people understand their relationship with their bodies. Methods: Six participants were recruited for semi-structured interviews which were then analyzed in a constant comparative method. Findings: Five themes emerged from the data: dehumanization, acceptance of (the fat) body, empowerment, resistance, and dis<-->embodiment. Relationship with (the fat) body was identified by the participants as fraught with tension in a context that involves considering the positionality of “non-normative’ bodies, the value and importance of community, and a high degree of effort. / Thesis / Master of Social Work (MSW)

Background: The prevalence of disability increases with age; therefore with an aging population, interventions to reduce disability are crucial. This thesis adopts a behavioural conceptualisation of disability. The theoretical frameworks of the International Classification of Functioning, Disability and Health (ICF), the Theory of Planned Behaviour (TPB) and the integrated ICF/TPB model are applied to investigate disability and physical activity (PA) behaviours. The thesis aims to: (1) identify the factors involved in the prioritisation of patients for total joint replacement; (2) classify patient pre-operative expectations of total hip replacement (THR) and investigate the relationship between expectations and recovery after surgery, and; (3) test whether the TPB and theory-based interventions can predict and explain PA within individuals. Method: Five studies were conducted. In the first study, health professionals judged whether the items from two prioritisation tools measured each of the ICF constructs. In the second study, surgeons ranked patient vignettes, which differed by constructs from the integrated model, in order of priority for THR. In the third study, a large cohort of THR patients reported expectations of surgery pre-operatively. Health and functioning were also reported pre-operatively and 1-year post-operatively. The fourth and fifth studies were a series of experimental n-of-1 studies using diary methods assessing TPB cognitions and PA behaviours. Results: There is a lack of agreement between judges in relation to the content of many of the items from prioritisation tools. Behavioural and psychological factors can influence prioritisation for THR. The majority of patient expectations of THR addressed activities and social participation; however, the evidence for a relationship between expectations and recovery was limited. The TPB can predict PA within some individuals but the evidence in support of interventions to increase PA was limited. Discussion: The findings provide important clinical and theoretical implications for understanding disability and physical activity behaviours.