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Famílias com filho com síndrome de Down: investigando a resiliência familiarRooke, Mayse Itagiba 25 August 2014 (has links)
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Previous issue date: 2014-08-25 / CAPES - Coordenação de Aperfeiçoamento de Pessoal de Nível Superior / A síndrome de Down (SD) em crianças e adolescentes representa grandes desafios para as famílias já que o impacto do diagnóstico tem implicações no sistema familiar, afetando todos os membros e seus relacionamentos. Nesse sentido, as pesquisas revelam que frente à adversidade, o funcionamento da família tem uma maior probabilidade de desenvolver a resiliência, superando os desafios advindos da SD.Assim, este estudo tem como objetivos: caracterizar as famílias de crianças com SD, identificar fatores de risco e de proteção, descrever as estratégias de enfrentamento dos genitores e analisar a resiliência familiar. Cinco famílias compostas por pai, mãe e filhos, tendo um deles a SD, foram visitadas em suas residências. A mãe respondeu ao Questionário de caracterização do sistema familiar e ambos os genitores responderam, separadamente, à Escala de recursos da família, Escala de apoio da família, Inventário de Estratégias de Enfrentamento e entrevistas, sendo que o filho com desenvolvimento típico foi também entrevistado. Os resultados indicam que a renda familiar teve média de 11,7 salários mínimos e as mães constituem-se as cuidadoras principais de seus filhos com SD, bem como assumem a maior parte das atividades domésticas.A participação em missas/cultos foi a atividade social mais relatada pelos participantes. De forma geral, as famílias avaliam os recursos como disponíveis, principalmente, aqueles relacionados ao abrigo, saúde e cuidados com os filhos. A estratégia de enfrentamento mais utilizada é a reavaliação positiva, enquanto a menos utilizada é a fuga-esquiva. Diante de eventos ruins, principalmente, dos problemas de saúde relacionados à SD, as famílias apresentam capacidade de extrair sentido da adversidade, bem como organizam-se de forma cooperativa, com diálogo e estreitamento dos vínculos. Em todas as famílias identificam-se indicativos de resiliência familiar. / Down‟s syndrome (DS) in children and adolescents represents major challenges for families as the impact of the diagnosis has implications in the family system, affecting all members and their relationships. In this sense, the research reveals that the face of adversity, family functioning has a greater likelihood of developing resilience, overcoming the challenges posed DS. Thus, this study aims to characterize the families of children with DS, identify risk and protective factors, describe the coping strategies of parents and analyzing family resilience. Five families composed of father, mother and children, with one DS, were visited in their homes. The mother answered the Questionnaire characterization of the family system and both parents responded separately to the family resource Scale, family support Scale, the coping strategies Inventory and interviews, and the typically developing child was also interviewed. The results indicate that family income has averaged 11,7 minimum wages and mothers constitute the main DS caregivers with their children and assume most of the household activities. Participation in Mass/worship was the most social activity reported by participants. In general, families evaluate resources as available, mainly those related to shelter, health and child care. The most frequently used coping strategy is positive reappraisal, while the least used is escape-avoidance. Before bad events, mainly of health problems related to DS, families have the ability to make sense of adversity, as well as organize themselves cooperatively, with dialogue and closer ties. In all families identify themselves indicative of family resilience.
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Ascertaining the structural validity of the adapted English and translated Afrikaans versions of the Family Resilience Assessment (FRAS) Sub-scalesCarlson, Shantay January 2020 (has links)
Magister Artium (Psychology) - MA(Psych) / Family resilience has become an important concept in mental health and family research over
the past twenty years. An assessment tool that was found to assess this concept within
western English-speaking populations is the Family Resilience Assessment Scale (FRAS).
The FRAS was developed by Sixbey and is based on Walsh’s model of family resilience, a
prominent theorist in family resilience research. A recent study has translated and adapted the
original scale into Afrikaans, which is one of the eleven official languages of South Africa.
This was done for the FRAS to be utilised in a context other than the one it was developed
for.
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Same sex families' resilience processes associated with family identityRootman, Lemmer January 2016 (has links)
The purpose of the study was to identify the risk- and protective factors to the family
identity experienced by same sex family systems, as well as the resilience processes
implemented by these family systems. It forms part of a broader study, and aimed to
provide additional information in order to support researchers, health care
practitioners, and family therapists in working with same sex family systems.
Secondary data analysis was conducted on 21 transcribed interviews, which included
14 lesbian, 4 gay, 1 bisexual, and 12 child participants living in the Western Cape and
Gauteng provinces.
Risk and protective factors were found within the individual, family, and community
contexts. Resilience processes identified from the family resilience framework were
clarity in communication, open emotional expression, positive outlook, meaning
making through adversity, flexibility and connectedness. / Dissertation (MEd)--University of Pretoria, 2016. / Educational Psychology / MEd / Unrestricted
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Sense of Coherence Uplifting Parent Participation in Everyday Resilience (SUPPER): applying sense of coherence theory as an intervention to positively influence parental well-being and family occupational identity within a special education programHonore, Nicole Cherylyn 14 May 2021 (has links)
Abundant research describes the prevalence of parenting stress among parents of children with disabilities. Children with disabilities requiring specialized instruction receive special education programming, but this factor can exacerbate stress in parents and interfere with positive mental health and family relationships. In school settings, intervention is directed at the student but fails to address the contextual day-to-day needs of parents experiencing greater stressors. There is scant evidence of the use or presence of structured, manualized intervention programs in schools to address the intense needs of parents of children with disabilities or of occupational therapy-led interventions on behalf of the parent as they emotionally process new special education programming territory. A strong sense of coherence (SOC) is important in positive parenting, health, and wellness. Low SOC has been associated with depression and stress and low parental coping capability. The SOC theory is valuable in explaining differences in individuals’ capacities to positively adapt to life challenges. A school-based, educational parent-intervention program, framed by a salutogenic SOC theory approach, which occurs during the school year, may prove useful to address parents’ diminished meaningful life occupations resulting from increased stress or lowered SOC. This inquiry aims to examine the relevance, need, and benefit of a school-based parental-intervention program for parents of children with disabilities, the Sense of Coherence Uplifting Parent Participation in Everyday Resilience (SUPPER) program. Its intended purpose is to provide a special-education-based, parent-support and -empowerment group for parents of children receiving special education programming and supports.
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Sleep It Off? Exploring Sleep Duration and Bedtime Regularity as Potential Protective Moderators of Early Adversity's Impact on Mental Health in Infancy, Childhood, And AdolescenceKamhout, Sarah Lindsey Hipwell 25 April 2024 (has links) (PDF)
Introduction: Adverse Childhood Experiences (ACEs) are known to increase risk of mental health challenges throughout development, and sleep is known to decrease risk of mental health challenges. These have not been studied in tandem in younger cohorts. We investigated whether interactions between sleep duration and sleep regularity would moderate the impact of ACE exposure on risk for the development of mental health disorders. Methods: We conducted secondary cross-sectional analyses on the 2020-2021 waves of the National Survey of Children's Health (NSCH) (n = 92,669). We used logistic and ordinal regression to replicate known main effects of ACEs (total, household, community, and single) and sleep (duration and irregularity) on mental health diagnostic status and symptom severity, and we examined the interaction of ACEs and sleep on mental health diagnostic status. To correct for multiple comparisons, all original models were performed with one half of the dataset and then replicated in the second half. Follow-up analyses by age cohort (0-5, 6-11, 12-17 years) further examined interaction effects across development. Poverty level, parental education status, child age, child sex, neighborhood safety, neighborhood support, and race/ethnicity were included as covariates, as indicated in a priori acyclic graph (DAG) modeling. Results: Known main effects for ACE and sleep on mental health diagnoses were replicated across all models. Interactions between ACE exposure and adequate sleep duration or increased sleep irregularity were not clinically significant, although some were statistically significant due to large sample size, such that adequate sleep duration was associated with marginally increased risk of mental health diagnosis (Omnibus B = 0.048, p < 0.0001) and greater bedtime irregularity was associated with marginally decreased risk of mental health diagnosis (Omnibus B = -0.030, p < 0.001). Discussion: Main effects in this analysis are consistent with previous literature on ACEs, sleep, and mental health. However, interaction effects were largely small and clinically insignificant. Dichotomous and categorical parent-report items assessing sleep health may not be sensitive to interaction effects, compared with continuous data or physiological measurements. Further, examining mental health symptoms (rather than diagnosis status) may also allow for more nuanced understanding of potential interaction effects.
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Family routines during the adjustment and adaptation process of the transition to parenthoodDe Goede, Christine 03 1900 (has links)
Thesis (MA)--Stellenbosch University, 2012. / ENGLISH ABSTRACT: The family life cycle perspective (McGoldrick & Carter, 2003) recognises that one normative
life stressor for families is the transition to parenthood. Still, the Resiliency Model of Family
Stress, Adjustment and Adaptation (McCubbin & McCubbin, 1996) holds that one protective
resource that could help the family in the face of a stressor is family routines. Even though
the Ecological-cultural Niche Model (Gallimore, Goldenberg & Weisner, 1993) gives us
some understanding of the family routine as a psychological construct, many gaps exist in the
literature. The aim of this qualitative grounded theory study was to better understand family
routines as a resilience resource during the transition to parenthood. This aim was broken
down into five research questions: (1) What do daily routines look like in the lives of firsttime
parents? (2) Why are these family routines important to first-time parents? (3) What
challenges do first-time parents face in sustaining their daily routines? (4) What assists firsttime
parents in maintaining their daily routines? (5) What accommodations do first-time
parents make to adapt to the arrival of their first child? In terms of methodology, ten
Coloured couples whose first child was between one and four years of age and who resided in
one northern suburb of Cape Town took part in semi-structured interviews. In terms of
research question one, the data analysis revealed that family routines look like a sequence of
unfolding activities and that this sequence is situated within a temporal structure; that the
specific sequence and temporal structure are designed by the family to be functional; but that
there also is temporal incongruence in the sequence of routines. Related to question two, the
participants felt that their routines were important because a family routine is an opportunity
to spend time together, and it is an opportunity for improving child development. For
question three, the data analysis revealed that the challenges first-time parents face in
sustaining their routines are extra-familial and intra-familial barriers that increase the task and
temporal complexity of routines. The analysis of question four revealed that what assists parents in maintaining routines are extra-familial and intra-familial resources that decrease
the task and temporal complexity of routines. Lastly, themes related to research question five
showed that the accommodations that parents make in routines that help them adapt are
temporal accommodations and idiosyncratic accommodations. In future, researchers and
theorists should not only investigate an individual family routine in isolation (e.g. just
dinnertime or just bedtime), but also look at the structure of the entire daily schedule, the
scheduling process, and how the functionality of this daily schedule affects the experience of
individual routines. Greater emphasis should also be placed on diverse samples from many
ecological and cultural contexts in order to identify more extra-familial and intra-familial
barriers and resources that affect the maintenance of a satisfying daily schedule. / AFRIKAANSE OPSOMMING: Die gesinslewensiklusraamwerk (McGoldrick & Carter, 2003) beklemtoon dat een
normatiewe lewenstressor vir gesinne die oorgang na ouerskap is. Tog dui die Resiliency
Model of Family Stress, Adjustment and Adaptation (McCubbin & McCubbin, 1996) aan dat
gesinsroetines een bron van beskerming is wat die gesin tydens ’n groot lewensstressor kan
help. Al bied die Ekologies-kulturele Nismodel (Gallimore, Goldenberg & Weisner, 1993)
ons ’n sekere mate van begrip van gesinsroetine as ‘n sielkundige konstruk, is daar steeds
leemtes in die literatuur. Die doel van hierdie kwalitatiewe gegronde-teorie navorsing was om
beter begrip te ontwikkel van gesinsroetines as ’n veerkragtigheidsfaktor tydens die oorgang
na ouerskap. Hierdie doel is in vyf navorsingsvrae verdeel: (1) Hoe lyk daaglikse
gesinsroetines in die lewens van nuwe ouers? (2) Hoekom is hierdie gesinsroetines belangrik
vir nuwe ouers? (3) Watter uitdagings staar nuwe ouers in die gesig wanneer hulle daaglikse
roetines probeer volhou? (4) Wat help nuwe ouers om met hul daaglikse roetines vol te hou?
en (5) Watter akkommodasies maak nuwe ouers om aan te pas by die koms van hul eerste
kind? Wat metodologie betref het tien bruin ouerpare wat se eerste kind tussen die ouderdom
van een en vier jaar was en wat in ’n noordelike voorstad van Kaapstad woon aan semigestruktureerde
onderhoude deelgeneem. Wat die eerste navorsingsvraag betref, het die dataontleding
onthul dat gesinsroetines ’n reeks opeenvolgende aktiwiteite is wat een na die ander
ontvou. Hierdie reeks van roetines is geleë binne ’n tydsraamwerk; dit word deur die gesin
ontwerp om funksioneel te wees; maar daar bestaan ook tyd-inkongruensies in die reeks
roetines. In verband met vraag twee het die deelnemers gevoel roetines is belangrik omdat dit
hulle die geleentheid bied om tyd saam deur te bring en dit verskaf ook ’n geleentheid om die
ontwikkeling van die kind te bevorder. Op grond van die derde navorsingsvraag het die dataontleding
getoon dat die uitdagings wat nuwe ouers in die gesig staar wanneer hulle probeer
om hulle gesinsroetines te volhou, buite-gesins en binne-gesins hindernisse is wat take bemoeilik en tyd-kompleksiteit verhoog. Ontledings na aanleiding van vraag vier het getoon
dat dit buite-gesins en binne-gesins bronne is wat help om take makliker te maak en tydskompleksiteid
te verminder sodat nuwe ouers met roetines kan volhou. Laastens, temas wat
na vore gekom het na aanleiding van die vyfde navorsingsvraag toon dat dit tyd- en
idiosinkratiese akkommodasies is wat ouers help om aan te pas. In die toekoms moet
navorsers en teoretici nie net ‘n individuele gesinsroetine in isolasie bestudeer nie (bv. net ’n
aandete-roetine of net ’n slapenstyd-roetine), maar ook kyk na die struktuur van die hele
daaglikse skedule, skeduleringsprosesse, en hoe die funksionaliteit van hierdie daaglikse
skedule die ervaring van individuele roetines beïnvloed. Meer klem moet ook geplaas word
op steekproewe vanuit ekologies en kultureel diverse kontekste ten einde meer buite-gesins
en binne-gesins hindernisse en bronne wat die instandhouding van bevredigende skedules
beïnvloed, te identifiseer.
Kernwoorde: gesinsroetines, oorgang na ouerskap, gesinsveerkragtigheid, gesinslewenssiklus,
Ekologies-kulturele nis.
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“We like them to see themselves as a family” : En mikroetnografisk studie om vilka möjligheter och begränsningar det finns för utveckling av resiliens på ett barnhem i Tanzania. / “We like them to see themselves as a family” : A micro-ethnographic study on what possibilities and limitations there are for developing resilience at a children’s home in Tanzania.Johansson, Frida, Johansson, Sandra, Lindgren Källström, Ellen January 2017 (has links)
Tidigare forskning har visat att mer än hälften av alla barn som utsatts för risk under uppväxten inte utvecklar allvarliga psykiska problem. Uppväxt på barnhem kan anses vara en sådan risk då det typiska samspelet mellan barn och vuxna saknas. För att förstå vad det är som gör att barn på barnhem ändå kan växa upp och få en tillfredsställande vardag tar denna studie sin utgångspunkt i begreppet resiliens. Syftet med uppsatsen är att undersöka vilka möjligheter och begränsningar det finns för utveckling av resiliens på ett barnhem i Tanzania. Studien har en kvalitativ metod med mikroetnografisk ansats. Data har samlats in genom deltagande observationer som kompletterats med semistrukturerade intervjuer med tre informanter från personalen på barnhemmet. Studiens resultat beskriver barnhemmet som en institution där rutiner och en tydlig struktur var en viktig del av vardagen. Kristendomen hade en central roll på barnhemmet och i barnens uppfostran. Resultaten visar att aga och disciplinering användes i uppfostrande syfte. Vidare synliggjordes ambitionen att barnen skulle bli självständiga och de äldre barnen lärde sig att ta hand om de yngre. Betydelsen av kärlek lyftes fram i många sammanhang och barnens känsla av att tillhöra en familj ansågs vara betydelsefull. Personalen arbetade för att uppväxten på barnhemmet skulle bli så lik uppväxt i en biologisk familj som möjligt. I resultatet framkom även hur barnens tid med vuxna var begränsad. Slutligen redogjordes för betydelsen av de personliga egenskaper som barnen bär med sig från sina biologiska familjer. Med begreppet resiliens som teoretisk utgångspunkt blev slutsatserna att barnhemmet har potential att utgöra en god grund för utveckling av resiliens. Samtidigt som en begränsning för utvecklingen av resiliens kan vara den brist på tid med vuxna som framkommer i resultatet. Den här studien lyfter både faktorer inom den sociala kulturen och sociala relationer som kan underlätta och försvåra utvecklingen av resiliens. Hur dessa faktorer påverkar resiliens skiljer sig mellan individer vilket kan försvåra att nå en generell slutsats.
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Fatores de risco e mecanismos de proteção nas narrativas das famílias em situação de violência conjugalSeidl, Marisol Lurdes de Andrade 04 July 2008 (has links)
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Previous issue date: 4 / Nenhuma / Tomando como referência a noção de resiliência em famílias como um processo interativo e dinâmico, numa abordagem ecológica das relações humanas, esta dissertação está voltada para a identificação dos processos de resiliência em famílias com história de violência conjugal, através das narrativas familiares sobre os fatores de risco e mecanismos de proteção. A violência conjugal tem sido amplamente investigada em função das conseqüências marcantes e traumáticas para as vítimas e por ser um modelo relacional de difícil enfrentamento por parte dos próprios membros da família como também dos setores mais amplos da sociedade. Através da técnica da narrativa foram investigados dois casos de famílias com histórias de violência conjugal. E através da inserção ecológica da pesquisadora na Delegacia para a Mulher, foi compreendida a violência conjugal através das percepções destes profissionais. Foram identificadas tanto as crenças familiares, os padrões organizacionais e as formas de comunicação em relação aos eventos / Taking as reference the notion of family resilience as interactive and dynamic process, in an ecological framework of human relations, this dissertation is geared to the identification of resilience in families with a history of couple violence. Couple violence has been largely investigated as a result of the traumatic and strong consequences for the victims and for being a relational process of difficult response by family members as well as by larger sectors of society. Throughout the narrative technique two cases were investigated of families with a history of violence. And through the ecological participation of the researcher in the Deputy Office it was studied the perceptions of the professionals. Family beliefs, organizational patterns and ways of communication were identified in relation to the violent events, the protection mechanisms and risk situations in families in different contexts. Among risk factors that generated vulnerability, beliefs about women´s roles as family support, passive and the p
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Resiliência familiar: imigração sírio-libanesa estratégias de enfrentamento para adaptaçãoPacheco, Vera Terezinha Maluly 12 December 2016 (has links)
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Previous issue date: 2016-12-12 / This work was developed focusing on the resilience process in the context of the Syrian-Lebanese immigration in the environment of Sao Paulo city. Immigration is a social and cultural phenomenon variable in time and space. The interference of immigration in the geographical area of destination and the interrelationships from this fact were studied.
The dissertation was based on the systematic review of literature on resilience and Syrian-Lebanese immigration. In addition, two families of Syrian-Lebanese immigrants (first and second generation), residents of Sao Paulo city, have participated to the study, by means of interviews carried out with them.
It was used the History of Life methodology. With the help of the memory of interviewers, this procedure allows to build up versions of the past and of their stories. These narratives have greatly contributed to the research process, which has been enriched with the presentation of photos and documents during interviews.
The reports of these immigrants regarding their experience in another country have demonstrated that the adaptation process took place in a positive enriching way, but at the same time with difficulties. These reports also pointed out that the family support network and cultural structure in which they live in helped them to make the process of inclusion.
The process of resilience developed by these immigrants enabled the transformation of people, awakening up their potential and enabling them to resume the meaning of life.
The research involved the rescue of life stories through open interviews and photographs / Esta dissertação foi desenvolvida contemplando o processo de resiliência no contexto da imigração sírio-libanesa no ambiente da cidade de São Paulo. A imigração é um fenômeno social e cultural variável no tempo e espaço. Na presente dissertação foram estudadas suas interferências no espaço geográfico do local de destino, bem como, nas inter-relações provenientes desse fato.
A dissertação teve como base a revisão sistemática de literatura em resiliência e imigração sírio-libanesa. Contou com a participação de duas famílias de imigrantes sírio-libanesas moradoras na cidade de São Paulo, tendo sido entrevistadas a primeira e segunda geração.
Utilizou-se como metodologia a História de Vida. Este procedimento objetiva, com o auxílio da memória dos informantes, construir versões sobre o passado que as narrativas permitem elaborar. Essas narrativas contribuíram muito para o processo de pesquisa, que foi enriquecida com a apresentação de fotos e documentos durante as entrevistas.
Os relatos desses imigrantes referentes a sua vivência em um outro país vêm demonstrar que o processo de adaptação ocorreu de modo positivo, enriquecedor, ao mesmo tempo com dificuldades. Esses relatos também ressaltam que as estruturas da rede de apoio familiar e da cultura na qual foram inseridos auxiliaram suas vidas na confecção do tecido de inclusão.
O processo de resiliência desenvolvido por esses imigrantes possibilitou a transformação dessas pessoas, despertando suas potencialidades e permitindo retomar o sentido da vida.
A pesquisa realizada envolveu o resgate de histórias de vida, através de entrevistas abertas e fotografias
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Influence of family resilience on teenagers adaptation following divorce in Polokwane, Limpopo ProvinceTaruvinga, Percy January 2011 (has links)
Thesis (M.A. (Clinical psychology) --University of Limpopo, 2011 / The purpose of this study was to describe the influence of family resilience on
teenagers’ adaptation following parental divorce. Quantitative and qualitative,
descriptive research was conducted to determine if there was a relationship between
family resilience and teenagers’ adaptation. Data collection was done using
structured questionnaires. Affected teenagers, n=60 and their families (n=60), were
sampled using a screening tool at three schools in Capricorn district in the Limpopo
Province, South Africa. Data was collected using family resilience scales and coping
scales: Ways of Coping (WCS). The data was analysed in line with ABCX-model to
choose subscales that correlated significantly with adaptation scale of family
resilience as potential resilience factors; and coping by avoidance, behavioral and
cognitive strategies using (WCS). The study highlighted potential family resilience
factors and specific ways of coping used by teenagers among families with
teenagers following parental divorce. The findings have revealed that there are
family characteristics which enable teenagers to cope following parental divorce.
Teenagers who cope have been found to mostly use behavioural and cognitive
strategies and less of avoidance strategies. Family resilience factors among the
families of these teenagers were effective communication (Family Problem Solving
and Communication-FPSC), family hardiness (Family Hardiness Index-FHI) and, the
problem solving and behavioural strategies utilised by families in crisis situations
(Family Crisis Oriented personal Evaluation Scales-F-COPES). Further research
should focus on longitudinal and context-specific that tracks family and teenagers’
adaptation to stressful events as a process that unfolds over time and those that
recognises bi-directional and, transactional influences among fa
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