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Submitted by admin tede (tede@pucgoias.edu.br) on 2018-04-17T17:46:02Z No. of bitstreams: 1 ALYNE APARECIDA FERREIRA FREITAS.pdf: 750774 bytes, checksum: f4eb9631ba2e7c7ff4dcdee8b5719580 (MD5) / Made available in DSpace on 2018-04-17T17:46:03Z (GMT). No. of bitstreams: 1 ALYNE APARECIDA FERREIRA FREITAS.pdf: 750774 bytes, checksum: f4eb9631ba2e7c7ff4dcdee8b5719580 (MD5) Previous issue date: 2018-03-05 / The objective of this study was to evaluate the family impact in parents of children diagnosed with microcephaly by Zika virus. This is a cross-sectional analytical study with a quantitative approach, using a sociodemographic questionnaire and family impact scale. A total of 76 parents with children undergoing rehabilitation and rehabilitation treatment were surveyed at a reference center in Goiânia. After the application of the instruments, a database was made using the IBM SPSS Statistics 18 software. Descriptive analyzes were performed using frequency, mean and standard deviation. The tests used to evaluate the existence or not of a statistically significant difference (p≤0.05) between independent and multiple variables were the Student's T-Test and the ANOVA Scheffé test, respectively. The mother is the main caregiver, the majority of whom are young mothers, divorced or divorced, with a corresponding monthly family income of 1 to 3 minimum wages, belonging to the low income class. It was observed that the predominant period of the diagnosis of the microcephalic child was in prenatal care. The greater the tendency to engage in activities with friends, parties and to go to bars, the individuals were more likely to perform physical and leisure activities. It was evidenced a difficulty on the part of the parents to find reliable persons to take care of the child, as well as, lack of understanding of other people for the burden that is to take care of the deficient son and expressed the desire in not having more children. It is concluded that after the initial shock of receiving the diagnosis of the child, the parents go through the reorganization phase, adapting to the challenges, changes in routine and family structure. The involvement of health professionals is essential, providing support and guidance to these families. Coping strategies emphasized social support in the institutional network, optimism, resilience and spirituality. / O objetivo deste estudo foi avaliar o impacto familiar em pais de crianças diagnosticadas com microcefalia pelo Zika vírus. Trata-se de um estudo transversal analítico com abordagem quantitativa, utilizando-se de um questionário sociodemográfico e a escala de impacto familiar (EIF). Foram pesquisados 76 pais com filhos em tratamento de reabilitação e readaptação em um centro de referência de Goiânia/Go. Após a aplicação dos instrumentos, foi confeccionado um banco de dados utilizando o software IBM SPSS Statistics 18. Por meio deste, foram realizadas análises descritivas utilizando-se frequência relativa e absoluta, média e desvio padrão. Os testes utilizados para avaliar a existência ou não de diferença estatisticamente significativa (p≤0,05) entre amostras independentes e múltiplas variáveis, foi utilizado o teste de análise de variância (ANOVA) Scheffé. A mãe é a principal cuidadora, sendo na sua maioria mães jovens, divorciadas ou desquitadas, apresentando renda mensal familiar correspondente de 1 a 3 salários mínimos, pertencentes à classe renda baixa. Observou-se ser no pré-natal o período predominante do recebimento do diagnóstico do filho microcefálico. Quanto maior a tendência de empreender atividades com amigos, festas e a frequentar bares, os indivíduos se mosraram mais propensos a realizarem atividades físicas e de lazer. Foi evidenciado uma dificuldade por parte dos pais em encontrar pessoas de confiança para cuidar do filho, bem como, falta de compreensão de outras pessoas pelo fardo que é cuidar do filho deficiente e expresso o desejo em não ter mais filhos. Conclui-se que após o choque inicial do recebimento do diagnóstico do filho, os genitores passam pela fase de reorganização, adaptando aos desafios, alterações na rotina e estrutura familiar. É fundamental o envolvimento dos profissionais de saúde, fornecendo suporte e orientação a essas famílias. Destacaram-se como estratégias de enfrentamento o apoio social na rede institucional, otimismo, resiliência e espiritualidade.

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Le handicap de l’enfant peut avoir des conséquences sur des dimensions de la vie familiale : santé physique et psychologique, relations sociales et familiales, temps de prise en charge, emploi et poids économique. Mieux connaître les facteurs liés à cet impact permettrait d'en limiter les conséquences négatives sur la vie familiale.L’impact familial de la paralysie cérébrale (PC) d’adolescents européens a été étudié en 2009 et des facteurs personnels, sociaux et environnementaux de leurs familles également recueillis. Un questionnaire sur l’impact familial du handicap dans 5 des 7 dimensions identifiées dans la littérature a été utilisé. Etendu aux dimensions manquantes par l’ajout de 4 questions, l’outil amélioré a été validé dans le cadre de cette enquête européenne.Un modèle théorique fondé sur le modèle d’adaptation Double ABCX a été confronté aux données. Sont mis en relation des éléments de perturbations de l’équilibre familial, liées à l’enfant ou à l’environnement (A), des ressources disponibles pour faire face (B), la perception de conséquences négatives (C) et le degré d’adaptation familiale, mesurée par la détresse psychologique (X). La modélisation par équations structurelles a permis de valider un modèle estimant des coefficients de corrélation significatifs entre les variables selon une méthode itérative par moindres carrés pondérés (WLSMV). 57,4% de la variance de la détresse psychologique a été expliquée par des perturbations (A) : âge avancé de l’adolescent (bêta=0.19), absence d’emploi des parents (bêta=0.25), sévérité de la déficience motrice (bêta=0.23), sévérité des troubles du comportement de l’adolescent (bêta=0.45) ; par des ressources (B) : accès à des modes de garde extérieurs (bêta=-0.15), degré de dysfonctionnement familial (bêta=0.40), sentiments positifs du parent par rapport au handicap (bêta=-0.16) ; et enfin par l’impact négatif perçu (C) sur la santé des membres de la famille (bêta=0.45). Des éléments de (A) et de (B) influençaient l’impact négatif perçu dans d’autres dimensions de vie familiale. D’après ce modèle, l’adaptation de la famille face au handicap de l’adolescent semble se jouer plus autour de la qualité du fonctionnement familial que sur la mise en place de compensations physiques ou financières. Il est donc important de mettre en place des actions permettant aux familles d’améliorer les différentes dimensions de ce fonctionnement. L’utilisation d’outils de mesure validés peut aider à évaluer et sélectionner des interventions les plus efficaces pour gérer les troubles du comportement chez l’enfant en situation de handicap, augmenter l’autonomie de l’enfant, favoriser le bon fonctionnement familial, ou promouvoir les attitudes parentales positives face au handicap.L’absence d’emploi influençant le bien-être psychologique, cette situation a été étudiée pour les mères d’enfants en situation de handicap. A partir de données disponibles, nous avons constaté qu’en tenant compte de nombreuses caractéristiques de l’enfant et de la famille, la présence d’une déficience intellectuelle chez l’enfant et un bas niveau d’études de la mère ou le non-emploi du père influençaient significativement le risque de non-emploi de la mère.Par ailleurs, les mères d’enfants en situation de handicap sévère se sont avérées proportionnellement plus nombreuses que la population générale à être sans emploi (47,2% contre 31,4%). En revanche, les mères d’enfants avec PC interviewées lors d’une enquête n’étaient pas plus sans emploi que les mères de la population générale, remettant en question l’usage de la PC comme modèle du handicap, pour l’étude des conséquences familiales.L’étude de l’impact du handicap est encore trop rare en Europe et les effets de possibles interventions mal connues. Il est important de développer la recherche dans ce domaine pour améliorer le quotidien de ces familles et offrir à l’enfant en situation de handicap le meilleur environnement possible pour son développement. / The child's disability could impact family life in several dimensions: physical and psychological health, social and family relationships, time management, employment and economic weight. Knowledge about the factors related to this effect will limit the negative impact on family life.The family impact of the cerebral palsy (CP) in European adolescents was studied in 2009 and the personal, social and environmental factors of these families were also collected. A questionnaire measuring 5 dimensions of the 7 identified in literature was used. Extended to missing dimensions by adding four questions, this improved tool has been validated in the framework of this European survey.A theoretical model based on the Double ABCX model of family adaptation has been compared to the situation observed by these families, linking the stressors related to the child or the family environment (A), the resources available to cope with (B), the negative perceived impact in different dimensions of the family life (C) and the level of family adaptation, measured by the parental psychological distress (X). Structural equation modelling was used to validate a model estimating significant correlation coefficients between variables by an iterative method using weighted least squares (WLSMV). 57.4% of the variance in psychological distress was explained by stressors (A): age of the adolescent (beta=0.19), parental unemployment (beta=0.25), the severity of motor impairment (beta=0.23), the severity of behavioural disorders in adolescents (beta=0.45); by resources (B), the access to support in the childcare (beta=-0.15), the level of family dysfunction (beta=0.40), the parental positive attitude towards disability (beta=-0.16); and finally by the negative perceived impact (C) on the health of family members (beta=0.45). Some elements from (A) and (B) explained the perceived family impact in various dimensions of family life. Based on this model, in adolescence the family adaptation to disability seems to be more played out on quality of family functioning than on physical adaptation or financial compensation. Thus it is important to implement process to enable families to improve different aspects of this functioning. The use of validated measurement tools can help to assess and select the most effective interventions to manage behavioural problems in children with disabilities, to increase the autonomy of the child, to promote family functioning or parental positive attitudes towards disability.A lack of employment affecting the psychological well-being, this has been studied for mothers of children with disabilities. From an analysis of available data, we found that taking into account many characteristics of the child and family, the presence of an intellectual impairment in children and a low level of education of the mother or the father’s nonemployment appeared to significantly influence the risk of non-employment of the mother. On the other hand, the mothers of children with severe disabilities were more likely than the general population to be not employed (47.2% against 31.4%). But in contrast, mothers of children with CP interviewed during a survey were not more unemployed than mothers in the general population; calling into question the use of CP as a model of disability to study family consequences.The study of the impact of disability is still too rare in Europe and the effects of possible interventions little known. It is important to develop research in this area to improve the lives of these families and provide children with disabilities the best possible environment for its development.The study of the impact of disability is too rare in Europe and little is known on the effects of possible interventions. It is important to develop research in this area to improve the life for these families and to provide for disabled children the best possible environment for its development.

Submitted by Bianca Magnani Tavares (bibimagtav@gmail.com) on 2012-03-10T23:36:33Z No. of bitstreams: 1 The internationalization process of family business_vfinal_Bianca (1).pdf: 1204982 bytes, checksum: 4cd11c9372fa7cdcaee82778cc01b79f (MD5) / Approved for entry into archive by Gisele Isaura Hannickel (gisele.hannickel@fgv.br) on 2012-03-12T13:38:01Z (GMT) No. of bitstreams: 1 The internationalization process of family business_vfinal_Bianca (1).pdf: 1204982 bytes, checksum: 4cd11c9372fa7cdcaee82778cc01b79f (MD5) / Made available in DSpace on 2012-03-12T13:40:15Z (GMT). No. of bitstreams: 1 The internationalization process of family business_vfinal_Bianca (1).pdf: 1204982 bytes, checksum: 4cd11c9372fa7cdcaee82778cc01b79f (MD5) Previous issue date: 2012-02-07 / This dissertation aims to identify the family role in the internationalization process of two family businesses: JBS, the world’s largest protein producer and Cutrale one of the world’s leader in the orange juice market. Family businesses have characteristics that are intrinsic to this type of firms. Many of the internationalization reasons or even the way they internationalize has several characteristics that are common among other family businesses. Therefore, through a qualitative research the two case studies were analyzed based on the internationalization and family businesses theories. However, in those companies the role of the family was not a key role on the firms’ internationalization processes. This aroused questions such as whether the size and/ or industry of the company had an impact on the family’s role on the internationalization process of the business. These questions were not the focus of this study but are subsidies for future research. / Essa dissertação procura identificar o papel da família no processo de internacionalização de dois negócios familiares: JBS, a maior empresa de proteína animal do mundo e Cutrale um dos líderes mundiais no mercado de suco de laranja. Empresas familiares possuem características que são intrínsecas a esse tipo de empresa. Muitos dos motivos de se internacionalizar ou mesmo o modo como eles se internacionalizam podem ser extremamente característicos. Assim, através de uma pesquisa qualitativa, os dois estudos de caso foram analisados baseados em teorias de internacionalização de empresas familiares. Porém, nessas companhias estudadas, a família não desempenhou um papel relevante no processo de internacionalização das mesmas. Com esses resultados, questões surgiram, como por exemplo, se o tamanho ou segmento da empresa tiveram um impacto na importância do papel que a família possui no processo de internacionalização. Essas questões não eram o foco do estudo porém fornecem muitos subsídios para uma próxima pesquisa.

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