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  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
71

Informera mig! : Patientens förmåga att hantera smärta / Inform me! : The patient's ability to manage pain

Beischer, Karin, Bernehäll, Ulrika January 2022 (has links)
Patienter med smärta är vanligt förekommande inom den svenska sjukvården, vilket orsakar lidande hos såväl patient som samhälle. Personcentrerad information ger delaktighet och möjliggör egenvård, vilket genererar lindrat lidande och en vårdande vård. Problem som examensarbetet belyser är att patienten betalar priset då vården stundtals saknar ett holistiskt synsätt. Även ses obehandlad och underbehandlad smärta generera negativa konsekvenser och ökat patientlidande. Syftet med studien var att undersöka hur patientinformation påverkar patientens förmåga att hantera smärta. Examensarbetet bygger på en litteraturöversikt, baserad på kvalitativa forskningsstudier. Datainsamlingen resulterade i 12 artiklar, vilket gav ett huvudtema med fyra underteman. Resultatet visade att informationsutbyte mellan patient och vårdgivare gav större delaktighet för patienten och underlättade vårdgivarens möjlighet att vårda. Information kring smärta och smärtlindring bör vara individuell och delges patienten på det sättet patienten upplever bäst. Patienter beskrev vikten av en tillitsfull relation till sin vårdpersonal och nämnde ord som ögonkontakt, närvaro och ett aktivt lyssnande i det vårdande mötet. Där patienter inte upplevde vården vårdande väcktes känslor av ledsamhet, irritation och ilska. Bra information gav ökad möjlighet till egenvård. Patienter såg behov av tillförlitlig och uppdaterad information, vilket kunde ges via e-hälsa. Denna informationskanal visade sig leda till positiva förändringar i patienters humör och beteenden, vilket i slutändan resulterade i minskad smärta. Slutsatser som ses är att patienter med smärta är i behov av individanpassad information. Patienter önskar bli sedda, lyssnade till och tagna på allvar. Vården måste få ta tid, då det vårdande mötet visat sig kunna lindra människors smärta. / Within the Swedish health system, patients with pain are common. Not only does the individual patient suffer but so does the overall society. By providing person-centered information patients enables participation and self-care, resulting in relieved suffering and overall caring. However, the problem this study highlights is the lack of holistic nursing in caring. Pain that remains untreated or not treated sufficiently will generate negative consequences and increased suffering amongst the patients. The main purpose of the study was to further investigate how the patient’s ability to manage pain was affected by the patient information that was provided. The thesis of this dissertation is based on a literature review of data provided in multiple qualitative research studies. Twelve articles of qualitative research were used. The information provided in the articles resulted in one main theme and four sub-themes. The results proved that the exchange of information between patient and healthcare provider lead to greater patient participation and facilitated caring. Information about pain and pain relief should be individual and communicated to the patient with an individualized approach in mind. Patients described the importance of a trusting relationship with their healthcare provider and mentioned words such as eye contact, presence and active listening in the care meeting. When patients did not experienced true care, feelings of sadness, irritation and anger surfaced. In addition, by providing correct and personalized information regarding pain management the opportunities for self-care increased. There is a need for patients to receive reliable and up-to-date information, which can be achieved via e-health. Utilizing e-health as a means of communications has proved to be of great value, resulting in positive changes in patients' moods and behaviors ultimately resulting in overall reduced pain. In conclusion, patients with pain need personalized information. Patients want to be seen, heard and understood. The care must be allowed to take time, as the caring has been shown to ease suffering.
72

Examining the most economical ways in which medicines can be both presribed and dispensed in Saudi outpatient hospitals. A study carried out, exclusively in Saudi Arabian Hospitals, to determine the consraints, problems and possible solutions to effective medicines supply for outpatients.

Alyousif, Abdulmohsen A. January 2012 (has links)
Backround. Based of my personal observations when employed as a pharmacist in a Saudi hospital it was clear that there were problems with medicine supply to outpatients. This thesis was designed to scientifically investigate the types of shortages, the reason(s) for such problems and potential solutions to the problem. Methods . This study was undertaken using a variety of experimental techniques to determine the views and perceptions of patients, pharmacists, physicians and administrative staff of the hospital under examination. To establish the scale of the problem: focus groups (n=25), structured questionnaires, structured interviews/meetings for health care professionals and a national survey (n=650) were the research tools used to objectively determine the relevant data. The data were analyzed by appropriate statistical methods. Results and Discussion That there was a real problem was quickly established in the data obtained from patients. A similar finding was made for each of the ¿professional groups¿. The central problem was one of shortages of medicines for prescriptions presented by outpatients. It was not a case the medicines were simply not available because they were never stocked but rather a simple shortage in the dispensary stock. It was established the lack of medicines was not due to central budget arrangements but involved prescribing quantities outside of the hospital guidelines which no degree of planning could accommodate. There was also the very unexpected finding that a prescription could be filled in a variety of hospital dispensaries as individuals could access more than one hospital or they could consult more than one physician for the same condition and obtain effectively double the supplies. Communications between the hospital and patients and the health care professionals could all be improved by perhaps increasing the knowledge of the patient about the correct use of medicines. Recommendations. A series of recommendations for future work is provided / Government of the Kingdom of Saudi Arabia
73

Resonance and Dissonance in Professional Helping Relationships at the Dyadic Level: Determining the Influence of Positive and Negative Emotional Attractors on Effective Physician-Patient Communication

Dyck, Loren R. 15 June 2010 (has links)
No description available.
74

Constructing and making sense of difference: narratives of the experience of growing up with a chronic illness or physical disability

Cardillo, Linda Wheeler January 2004 (has links)
No description available.
75

Élaboration de critères de design pour un outil de communication médecin-patient

Alvarez, Ignacio 10 1900 (has links)
Le système de santé d'aujourd'hui fait appel à de nombreuses technologies de l'information nommées TIS (Technologies de l’Information en Santé). Celles-ci ont donné naissance à de nouvelles formes d’interaction médecin-patient et ont complexifié l'approche thérapeutique dite
« centrée sur le patient ». Les TIS promettent une plus grande efficacité et l’augmentation de la satisfaction des patients par le biais d’une meilleure compréhension de la maladie pour le patient. Or, elles peuvent également devenir des sources de conflit pour le professionnel de la santé, étant donné leur utilisation en dehors des rencontres cliniques ainsi que leur tendance à agir comme des barrières communicationnelles lors des consultations. Cette recherche vise a étudier les critères de design nécessaires à la conception d’un TIS pouvant améliorer la relation médecin-patient et donc, faciliter la communication et améliorer l’alliance thérapeutique. L’étude utilise une approche centrée sur l’utilisateur et vise donc à comprendre les besoins et les attentes des médecins et des patients. En étudiant les nouvelles approches en santé et les TIS, il a été possible de comprendre le contexte et les besoins des utilisateurs en terme de communication. Ces derniers sont primordiaux au processus dit centré sur l’utilisateur. Le faible taux de rétention du discours du médecin devient une barrière communicationnelle importante, tout comme le temps pressurisé. La recherche nous montre que l’ajout d’un outil virtuel de vulgarisation peut, à l’aide de média visuels (tel que des modélisations, des animations 3D et des dessins), grandement aider la relation médecin-patient. / Today’s medical system is using an increasing number of information technologies to help healthcare professionals in their daily practice. Commonly known as HIT (Health Information Technologies), they create new forms of doctor-patient interaction and complexify the therapeutic approach called “patient centered approach”. Their use promises to improve the efficiency of the healthcare system and the overall satisfaction of the patient by improving his understanding of his illness, yet they can also become communication barriers during a consultation and even a source of conflict when used outside a clinical context. This research project aims at studying the design criteria for a Health Information tool that can help improve the doctor-patient relationship. The study uses a user-centered approach and therefore, focuses on understanding the needs and expectations of both doctors and patients. The study of the theoretical and "on the field" therapeutic approach shows that the pressurized time of the consultation, the many communication barriers and the low level of information remembered by patients are problems that can be solved by a HIT. A virtual vulgarization tool that uses multimedia such as 3D animations, 3D models and drawings can considerably help the doctor-patient relationship.
76

Recomendações e prescrições para cuidados de saúde no pós-alta: a investigação de um programa educativo a pacientes cardiopatas sob uma perspectiva interacional

Andrade, Daniela Negraes Pinheiro 26 February 2016 (has links)
Submitted by Silvana Teresinha Dornelles Studzinski (sstudzinski) on 2016-05-18T15:12:54Z No. of bitstreams: 1 Daniela Negraes Pinheiro Andrade_.pdf: 3094213 bytes, checksum: 9a9e3f421a0d29eb223c0be2ccb4462d (MD5) / Made available in DSpace on 2016-05-18T15:12:54Z (GMT). No. of bitstreams: 1 Daniela Negraes Pinheiro Andrade_.pdf: 3094213 bytes, checksum: 9a9e3f421a0d29eb223c0be2ccb4462d (MD5) Previous issue date: 2016-02-26 / CAPES - Coordenação de Aperfeiçoamento de Pessoal de Nível Superior / FAPERGS - Fundação de Amparo à Pesquisa do Estado do Rio Grande do Sul / Esta tese resultou da investigação sobre o programa educacional para boas práticas de saúde que um hospital da rede privada localizado no sul do Brasil, nomeado na tese como Maxcárdio, realiza com portadores/as de Síndrome Coronariana Aguda e Insuficiência Cardíaca Congestiva. Adotou-se o aparato teórico – metodológico da Análise da Conversa (SACKS, 1992; SACKS; SCHEGLOFF; JEFFERSON, 1974) para analisar 25 interações ocorridas entre pacientes e profissionais médicos/as e não médicos/as – enfermeiros/as, nutricionistas, fisioterapeutas e psicólogos/as – integrantes da equipe multidisciplinar responsável pelas orientações aos/às pacientes. As interações foram gravadas em áudio e em vídeo e transcritas segundo Jefferson (1974). Os objetivos da tese foram: (a) verificar como os/as profissionais de saúde responsáveis pela efetuação do programa educacional recomendam ou prescrevem boas práticas de saúde no turno a turno de modo a discutir quais maneiras de falar mostram-se mais (potencialmente) particularizadas ou generalizadas em relação às necessidades demonstradas (ou não) pelos/as pacientes na interação e, a partir dessa discussão, apontar tendências de (não) adesão aos autocuidados recomendados ou prescritos por parte dos/as pacientes; (b) apresentar um percurso empírico representativo do programa educacional concernente à maneira como os/as participantes negociam, no turno a turno, direitos e obrigações de saber (domínio epistêmico) e de dizer (domínio deôntico) (HERITAGE, 2012; STEVANOVIC, 2011) o que (não) pode e/ou (não) dever ser feito em termos de boas práticas de saúde e, assim, discutir as implicações interacionais e práticas relacionadas às negociações entre os/as participantes em torno de direitos e obrigações de recomendar ou prescrever boas práticas de saúde; (c) discutir os modos de organização de prestação de serviço de orientação para boas práticas de saúde à luz do princípio da integralidade (BRASIL, 1998; MATTOS, 2005a). No que toca às maneiras de falar dos/as profissionais verificou-se que a particularização tende a ocorrer quando os/as profissionais instauram cursos de ação de modo a: (a) (tentar) remover empecilhos ao aceite do/a paciente à recomendação em favor de alguma boa prática de saúde; (b) desviar da ação de prover informações contidas nos manuais de boas práticas de saúde dos programas e demonstrar conhecimento sobre aspectos peculiares ao estado de saúde do/a enfermo/a; (c) justificar a indicação para a adoção de certa medida de cuidado de saúde. No que se refere à maneira como profissionais e pacientes negociam domínios epistêmicos e deônticos, observou-se que: (a) os/as profissionais não médicos/as colocam-se na posição de alguém com direitos e obrigações de saber e de dizer como pacientes devem controlar seu quadro de saúde; (b) os/as pacientes não ratificam os direitos e obrigações desses/as especialistas não médicos/as de saberem e poderem dizer-lhes como proceder no pós-alta; (c) os/as profissionais médicos/as abordam boas práticas de saúde em turnos de fala em formato de lista, o que conflita com a expectativa dos/as pacientes de discutir tais tópicos de maneira pormenorizada. Por fim, apurou-se que o modo de organização de prestação de serviço de orientação a pacientes que participam do programa Maxcárdio aproxima-se de ações assistenciais integrais (AYRES, 2004) à medida que os/as profissionais produzem falas capazes de estabelecer uma sequência de demonstração de necessidade de orientação a partir de solicitações de informações sobre se e como o/a paciente cuida de sua saúde. A contribuição teórica desta tese traduz-se na proposta de inclusão do aspecto modo de organização sequencial de tópico na descrição do princípio de fala ajustada (SACKS, 1992; SACKS; SCHEGLOFF; JEFFERSON, 1974). O modo como as sequências de tópicos são organizadas na interação mostra-se relevante para o grau de particularização que as falas dos/as interlocutores podem alcançar na conversa. Em termos aplicados, visto que ofertar recomendações ou prescrições ajustadas às necessidades dos/as pacientes interlocutores/as locais implicar saber se e como os/as doentes controlam seu estado de saúde, sugere-se que se parta da ação de solicitar informações acerca das experiências de sucesso e das dificuldades que os/as pacientes encontram para cuidar da saúde para, então, ter material interacional para orientá-los/as de forma particularizada. / This dissertation resulted from the investigation of educational programs into good health practices that a private hospital located in the South of Brazil accomplishes with Acute Coronary Syndrome and Congestive Heart Failure patients. Conversation Analysis theoretical and methodological approach (SACKS, 1992; SACKS, SCHEGLOFF, JEFFERSON, 1974) has been adopted to analyze 25 interactions occurred between patients and medical doctors or other health providers – nurses, nutritionists, physiotherapists and psychologists – members of the multidisciplinary team responsible for the patients’ orientation. Interactions were audio and video recorded and transcribed according to Jefferson (1984). The present dissertation aimed to: (a) verify how the health professional responsible for accomplishing the educational program recommend or prescribe good health practices in the turn by turn of the interaction so as to discuss which ways of talking appear to be more (potentially) particularized or generalized in relation to patients` (not) displayed needs in the interaction and, from such discussion, to point out tendencies of (non) adherence to good practices recommended or prescribed by patients; (b) present an empirical trajectory representative of the educational program concerning the ways participants negotiate, in the interaction turn-by-turn, rights and obligation of knowing (epistemic domain) and saying (deontic domain) (HERITAGE, 2012; STEVANOVIC, 2011) what can (not) and/or must (not) be done in terms of good health practices so as to discuss the interaction and practical implication related to the negotiation around rights and obligations of recommending or prescribing good health practices; (c) discuss the ways of organizing provision of orientation to good health practices in the light of principle of integrality (BRASIL, 1998; MATTOS, 2005a). Regarding more or less particularized ways of talking concerning patients’ orientation needs, it has been verified that the professional members’ talk appear to be more particularized in situations in which they implement courses of action in such a way as to: (a) (try to) remove obstacles so that patients may accept professional members’ recommendations in favor of good health practices; (b) deviate from the action of providing information included in the manuals of good health practices of the programs and display knowledge regarding patients’ peculiar health conditions; (c) justify the indication of certain good health practice. In relation of the ways professional members and patients negotiate epistemic and deontic domains, it has been observed that: (a) non-medical members assume the position of someone who has rights and obligations of knowing and saying how patients must control their health conditions; (b) patients do not ratify these professionals’ rights and obligations of knowing and saying how they should proceed in the post-discharge; (c) medical doctors talk about good heath practices by list-formatting their turns at talk, which conflicts with patients’ expectations of discussing these topics in a minutely detailed way. In the third one, a comparing analysis between two interactions has been done. Finally, it has been verified that the way of organizing service of orientation to patients approximate integral assistance actions (AYRES, 2004) insofar as professional members produce talk capable of establish a demonstration sequence of orientation need from information solicitation concerning if and how the patient takes care of their health. The theoretical contribution of this dissertation may be translated into the proposal of including the aspect topic sequential organization mode in the description of the principle of recipiency-designed (SACKS, 1992; SACKS; SCHEGLOFF; JEFFERSON, 1974). The way topical sequences are organized in the interaction displays relevance to the degree of particularization interlocutors’ talk may reach. In terms of applicability, as providing recipient-designed recommendations or prescriptions to situated interlocutors’ needs implicates knowing if and how patients control their health conditions, we suggest that professional members depart from the action of soliciting information regarding patients’ successful and failed experiences and their difficulties in heath-caring so that interactional material may be generated and patients’ orientation may be done in a particularized way.
77

Analyse contrastive des verbes dans des corpus médicaux et création d’une ressource verbale de simplification de textes / Automatic analysis of verbs in texts of medical corpora : theoretical and applied issues

Wandji Tchami, Ornella 26 February 2018 (has links)
Grâce à l’évolution de la technologie à travers le Web, la documentation relative à la santé est de plus en plus abondante et accessible à tous, plus particulièrement aux patients, qui ont ainsi accès à une panoplie d’informations sanitaires. Malheureusement, la grande disponibilité de l’information médicale ne garantit pas sa bonne compréhension par le public visé, en l’occurrence les non-experts. Notre projet de thèse a pour objectif la création d’une ressource de simplification de textes médicaux, à partir d’une analyse syntaxico-sémantique des verbes dans quatre corpus médicaux en français qui se distinguent de par le degré d’expertise de leurs auteurs et celui des publics cibles. La ressource conçue contient 230 patrons syntaxicosémantiques des verbes (appelés pss), alignés avec leurs équivalents non spécialisés. La méthode semi-automatique d’analyse des verbes appliquée pour atteindre notre objectif est basée sur quatre tâches fondamentales : l’annotation syntaxique des corpus, réalisée grâce à l’analyseur syntaxique Cordial (Laurent, Dominique et al, 2009) ; l’annotation sémantique des arguments des verbes, à partir des catégories sémantiques de la version française de la terminologie médicale Snomed Internationale (Côté, 1996) ; l’acquisition des patrons syntactico-sémantiqueset l’analyse contrastive du fonctionnement des verbes dans les différents corpus. Les patrons syntaxico-sémantiques des verbes acquis au terme de ce processus subissent une évaluation (par trois équipes d’experts en médecine) qui débouche sur la sélection des candidats constituant la nomenclature de la ressource de simplification. Les pss sont ensuite alignés avec leurs correspondants non spécialisés, cet alignement débouche sur le création de la ressource de simplification, qui représente le résultat principal de notre travail de thèse. Une évaluation du rendement du contenu de la ressource a été effectuée avec deux groupes d’évaluateurs : des linguistes et des non-linguistes. Les résultats montrent que la simplification des pss permet de faciliter la compréhension du sens du verbe en emploi spécialisé, surtout lorsque un certains paramètres sont réunis. / With the evolution of Web technology, healthcare documentation is becoming increasinglyabundant and accessible to all, especially to patients, who have access to a large amount ofhealth information. Unfortunately, the ease of access to medical information does not guaranteeits correct understanding by the intended audience, in this case non-experts. Our PhD work aimsat creating a resource for the simplification of medical texts, based on a syntactico-semanticanalysis of verbs in four French medical corpora, that are distinguished according to the levelof expertise of their authors and that of the target audiences. The resource created in thepresent thesis contains 230 syntactico-semantic patterns of verbs (called pss), aligned withtheir non-specialized equivalents. The semi-automatic method applied, for the analysis of verbs,in order to achieve our goal is based on four fundamental tasks : the syntactic annotation of thecorpora, carried out thanks to the Cordial parser (Laurent et al., 2009) ; the semantic annotationof verb arguments, based on semantic categories of the French version of a medical terminologyknown as Snomed International (Côté, 1996) ; the acquisition of syntactico-semantic patternsof verbs and the contrastive analysis of the verbs behaviors in the different corpora. Thepss, acquired at the end of this process, undergo an evaluation (by three teams of medicalexperts) which leads to the selection of candidates constituting the nomenclature of our textsimplification resource. These pss are then aligned with their non-specialized equivalents, thisalignment leads to the creation of the simplification resource, which is the main result of ourPhD study. The content of the resource was evaluated by two groups of people : linguists andnon-linguists. The results show that the simplification of pss makes it easier for non-expertsto understand the meaning of verbs used in a specialized way, especially when a certain set ofparameters is collected.
78

Boteberättelser : En etnologisk studie av boteprocesser och det omprövande patientskapet

Winroth, AnnCristin January 2004 (has links)
<p>This thesis analyse how life-histories are expressed and reformulated in connection to a life crisis of ill health. The study is based on ten interviews with people who in connection with ill health have made use of treatments within both orthodox medicine and complementary medicine and who have also developed various forms of self-treatment. The overall aim is, with a point of departure in the concepts health, healing and trust, to analyse narratives as a practice through which the respondents create identity and a life-context. The signifi cance of constructing the (auto)biography of the healing narrative – a form of narrative and performative act – runs as the main thread through the thesis. This act makes up the practice that is recurrently discussed in several of the thesis’ chapters and is synonymously termed the telling of healing narratives or or to narrate health and healing. The analysis of the narrative’s The analysis of the narrative’s healing main themes is mirrored in the order of the chapters. The study is broadly thematic and structured as a generalised healing process beginning with upheaval, continuing with crisis and social drama, and further to the endeavour of expressing values and judgements in a public context.</p><p>The interview themes of self-treatment and alternative treatment have occasioned the investigation into what an ethno-medical perspective can bring to analyses of people’s experiences of ill health in an everyday medical context. One of the points of having the concept ethno-medicine as a starting point is that every practice or narrative formation is ascribed with a potential for interpretation in its creation of knowledge. Another chapter deals with two themes of identity and life-history construction in the practice of healing narratives – the need for a chronology and reappraised perspectives on body, health and lifestyle. Healing narratives can be understood as a genre of life-historical narratives where life is often described as a linear course of events. A model by the anthropologist Victor Turner on the course and content of social drama is used as a comment to analyses of three respondents’ narratives in another chapter. A drama can be understood as a tragic course of events, based on an accident or an upsetting incident that roughly revolves around event/crisis, chaos and the striving for restoration. The concept of other journals is then used to make visible the everyday medical administrative practice and refers to the documentation used in the form of collected documents, written notes, and diaries. As an unexpected part of healing processes, the necessity of familiarising oneself with rules, laws and health insurance systems in order to be able to claim one’s rights is brought forward.</p><p>The social transformation process of various care practices in society makes up both a context and a commonly occurring theme in the narratives that the thesis is based upon. A modern health culture that gains strength from loosely composed social movements exerts infl uence on all levels of society. With an increased individual responsibility, the need grows to fi nd one’s own healing strategies and to create one’s own life-history in narratives that mirror this transformation in an everyday context. Healing narratives can be seen as a form of evaluation of health-care practices where experiences of treatment and notions of health and cure and healing are concretised.</p>
79

Boteberättelser : En etnologisk studie av boteprocesser och det omprövande patientskapet

Winroth, AnnCristin January 2004 (has links)
This thesis analyse how life-histories are expressed and reformulated in connection to a life crisis of ill health. The study is based on ten interviews with people who in connection with ill health have made use of treatments within both orthodox medicine and complementary medicine and who have also developed various forms of self-treatment. The overall aim is, with a point of departure in the concepts health, healing and trust, to analyse narratives as a practice through which the respondents create identity and a life-context. The signifi cance of constructing the (auto)biography of the healing narrative – a form of narrative and performative act – runs as the main thread through the thesis. This act makes up the practice that is recurrently discussed in several of the thesis’ chapters and is synonymously termed the telling of healing narratives or or to narrate health and healing. The analysis of the narrative’s The analysis of the narrative’s healing main themes is mirrored in the order of the chapters. The study is broadly thematic and structured as a generalised healing process beginning with upheaval, continuing with crisis and social drama, and further to the endeavour of expressing values and judgements in a public context. The interview themes of self-treatment and alternative treatment have occasioned the investigation into what an ethno-medical perspective can bring to analyses of people’s experiences of ill health in an everyday medical context. One of the points of having the concept ethno-medicine as a starting point is that every practice or narrative formation is ascribed with a potential for interpretation in its creation of knowledge. Another chapter deals with two themes of identity and life-history construction in the practice of healing narratives – the need for a chronology and reappraised perspectives on body, health and lifestyle. Healing narratives can be understood as a genre of life-historical narratives where life is often described as a linear course of events. A model by the anthropologist Victor Turner on the course and content of social drama is used as a comment to analyses of three respondents’ narratives in another chapter. A drama can be understood as a tragic course of events, based on an accident or an upsetting incident that roughly revolves around event/crisis, chaos and the striving for restoration. The concept of other journals is then used to make visible the everyday medical administrative practice and refers to the documentation used in the form of collected documents, written notes, and diaries. As an unexpected part of healing processes, the necessity of familiarising oneself with rules, laws and health insurance systems in order to be able to claim one’s rights is brought forward. The social transformation process of various care practices in society makes up both a context and a commonly occurring theme in the narratives that the thesis is based upon. A modern health culture that gains strength from loosely composed social movements exerts infl uence on all levels of society. With an increased individual responsibility, the need grows to fi nd one’s own healing strategies and to create one’s own life-history in narratives that mirror this transformation in an everyday context. Healing narratives can be seen as a form of evaluation of health-care practices where experiences of treatment and notions of health and cure and healing are concretised.
80

Fiches d'Information pour les Patients (FIP), un outil au service de la communication médecin patient : Proposition et validation de méthodes pour la construction et l'évaluation clinique / Patient Information Leaflets (PILs), a tool for improving Doctor Patient Communication : Proposition and validation of methods for construction and clinical evaluation

Sustersic, Mélanie 14 November 2017 (has links)
L’information des patients est devenue un enjeu de santé publique et une composante essentielle de la relation médecin patient. De nombreux auteurs s’accordent à dire que l’information écrite est un complément indispensable à l’obligation d’information orale car elle améliore la qualité des soins et l’adhérence du patient à sa prise en charge. Malgré l’existence de nombreuses Fiches d’Information Patient (FIP), le médecin a du mal à se les approprier. Elles sont souvent non validées, peu lisibles, difficiles à stocker, sans références, sources ni dates de rédaction. La première étape de notre travail a consisté à proposer une méthode pour élaborer des fiches d’information du patient (FIP) et à partir d’elle, 125 FIP concernant des motifs de consultation les plus fréquents en soins primaires. Une étude observationnelle réalisée dans 26 cabinets de médecine générale auprès de 350 patients, a montré d’une part que les patients sont demandeurs de FIP et qu’elles sont appréciées des patients. Et d’autre part, que la compréhension des maladies aiguës est plus limitée que celles des maladies chroniques ou situations de prescription chez les patients à faible niveau scolaire. Une étude interventionnelle randomisée en clusters réalisée dans 24 cabinets de médecine générale auprès de 400 patients, nous a permis de montrer que les FIP permettaient aux patients d’améliorer leur niveau de connaissances sur les pathologies et de modifier positivement leur comportements de santé, y compris pour les patients à faible niveau scolaire. Néanmoins, il n’était pas possible de comparer ces résultats à ceux de la littérature, les protocoles de recherche étant trop hétérogènes (critères de jugement spécifiques d’une situation clinique donnée).Pour surmonter cette difficulté, nous basant sur une « revue des revues » de la littérature, nous avons proposé un modèle théorique décrivant les modalités d’action des FIP au cours de la consultation, à partir duquel nous avons élaboré trois scores génériques utilisables pour tout type de consultation : un score de Communication Médecin Malade (CMM), un score de satisfaction et un score d’adhérence globale. Une fois les propriétés psychométriques de ces scores validés, nous avons étudié leurs déterminants. En situation aiguë, le seul déterminant de la CMM était la qualité de l’information reçu (quoi et que faire multipliant la probabilité d’une bonne communication par 11.9), les caractéristiques du patient n’influençant pas la CMM. L’adhérence globale est déterminée par le type de pathologie (paramètre inflexible) et par la qualité de la CMM. Enfin, la satisfaction, bien que tout autant liée à l’infrastructure, à l’équipe paramédicale et à l’équipe médicale, est également améliorée par une CMM de bonne qualité. En situation aiguë, la CMM est donc primordiale et impacte sur les indicateurs santé usuels que sont la satisfaction et l’adhérence des patients.Enfin, nous avons évalué avec ces nouveaux outils l’impact de 6 FIP sur la CMM, l’adhérence globale du patient et la satisfaction dans deux services d’urgences auprès de 324 patients. Cette étude interventionnelle avant-après nous a permis de montrer que les FIP améliorent: la CMM, la satisfaction vis-à-vis des professionnels de santé, le comportement des patients (qui respectent mieux les modalités de prises des médicaments et reconsultent moins dans les services d’urgences pour une même pathologie) et le comportement des médecins (qui prescrivent moins médicaments et davantage d’examens complémentaires). En situation aiguë, un outil simple pour améliorer la CMM est l’usage de FIP délivrée en complément de l’information orale.La CMM est un critère de jugement fondamental qu’il conviendra à l’avenir d’utiliser plus souvent, notamment pour évaluer les interventions thérapeutiques non pharmacologiques en plein essor, et pour lesquelles la communication est probablement un déterminant majeur de l’efficacité. / Patient information has become a public health issue and an essential component of Doctor-Patient communication (DPC). Many authors agree that written information is an indispensable complement to the obligatory oral information, since it improves the quality of care and the patient adherence. Despite the existence of numerous Patient Information Leaflets (PILs), physicians have difficulty appropriating them; they are often not validated, hard to read, difficult to store, without references, sources and dates of writing. The first step in our work was to propose a methodology for developing PILs and from there, design 125 PILs for the most common reasons for consultation in primary care. An observational study carried out in 26 general practice offices with 350 patients showed that patients appreciate PILs. On the other hand, the understanding of Acute Conditions (AC) is more limited than that of chronic diseases or prescription situations, particularly patients with a low school level. A cluster randomized interventional study performed in 24 general practice offices with 400 patients showed that PILs allowed patients to improve their knowledge about pathologies and modify their health behaviors positively, independently of their level of education. Nevertheless, the heterogeneity of the research protocols made it impossible to compare our results with those of the literature.To overcome this scientific hurdle and continue our work on the assessment of PILs, we performed a review of the literature on the subject, constructed a theoretical model describing the various effects of PILs and created three generic scales usable for evaluating the impact of PILs on any type of condition (scales of Doctor-Patient Communication, satisfaction and overall adherence). An observational study carried out in 2 Emergency Departments (ED) allowed us to validate the 3 scores, assess the psychometric properties and elucidate their determinants. In the context of AC, the only determinant of the DPC was the quality of the information received (both information "what to do" and "when to reconsult" have an adjusted Odds Ratio 11.9. Characteristics of the patient did not influence the DPC score. The overall adhesion is determined by the type of pathology (inflexible parameter) and by the quality of the DPC. Finally, although satisfaction was strongly associated with the hospital infrastructure and the attitude of the paramedical and medical staff, a high DPC score multiplied the probability of having a good satisfaction score. In a context of emergency consultations, the DPC is paramount and has an impact on the usual health indicators: satisfaction and adherence.Finally, a before-after intervention study conducted in two ED showed that PILs improve DPC, satisfaction with healthcare professionals, and adherence to medication regimens. PILs decrease the number of reconsultations for the same pathology, in particular return to the ED. They reduce the number of drug prescriptions given by the doctor in favor of complementary examinations and specialized advice. In a context of AC, a PIL given by the doctor improves DPC, the patient’s satisfaction with healthcare professionals and improves both the doctor’s and the patient’s behaviors.The DPC is a fundamental outcome that will need to be measured more frequently in the future, including in acute situations.

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