PURPOSE: (1) Investigate supportive care needs and preferences of parents of children with cancer (2) Assess the feasibility and preliminary outcomes of a Parent Support Group Intervention (PSGI). METHODS: One-hundred and eight parents completed the Parent Support Survey (PSS). Data were utilized in the creation of a PSGI. The PSGI consisted of eight 1.5-hour sessions encompassing guided group discussion. As part of feasibility, acceptability, recruitment/retention and preliminary outcomes were assessed. Parents completed outcome measures assessing knowledge of disease/treatment management, community/hospital/family resources, perception of social support and feelings of distress/anxiety. RESULTS: From the PSS, 86/108 (80%) of parents expressed interest in a PSGI. Fourteen parents attended the PSGI only once and 14 parents attended the PSGI more than once. Outcome measure results depict favourable changes after group attendance. Recruitment and retention data highlight challenges. CONCLUSIONS: Information gained from this study will be used to improve planning and delievery of future PSGI’s.

PURPOSE: (1) Investigate supportive care needs and preferences of parents of children with cancer (2) Assess the feasibility and preliminary outcomes of a Parent Support Group Intervention (PSGI). METHODS: One-hundred and eight parents completed the Parent Support Survey (PSS). Data were utilized in the creation of a PSGI. The PSGI consisted of eight 1.5-hour sessions encompassing guided group discussion. As part of feasibility, acceptability, recruitment/retention and preliminary outcomes were assessed. Parents completed outcome measures assessing knowledge of disease/treatment management, community/hospital/family resources, perception of social support and feelings of distress/anxiety. RESULTS: From the PSS, 86/108 (80%) of parents expressed interest in a PSGI. Fourteen parents attended the PSGI only once and 14 parents attended the PSGI more than once. Outcome measure results depict favourable changes after group attendance. Recruitment and retention data highlight challenges. CONCLUSIONS: Information gained from this study will be used to improve planning and delievery of future PSGI’s.

Magister Public Health - MPH / HIV support groups have been widely adopted as part of care and support interventions in Zambia, yet there is very little research on the effectiveness of these groups in meeting the needs of the PLWHIV from the perspective of those who join them. This case study looks at a selected support group for People Living with HIV and AIDS (PLWHIV) facilitated by the Flying Angels, a faith based non-governmental organization established in 2007 by the Living Assemblies of God Church, in Ng‟ombe Township, Lusaka. The Support Group brings together around eighty young and old, married and single, men and women living with HIV and AIDS, to share experiences and find ways of coping with their situation. The qualitative case study sought to obtain a rich understanding of the experiences of members with a view to understanding the support they needed, the aspects of the support group that are relevant and effective to their situation, and which are not. In-depth interviews and focus group discussions methods were used to collect data. Discussion and interviews were audio-taped. Audio-recordings were translated during transcription, data organized, coded and thematically analysed.

This research study examined mothers’ experiences of gaining access to services following the death of a baby through stillbirth or a neonatal death. An exploratory research design was used to conduct applied research into the said topic through the use of a semi-structured interview schedule. The research sample consisted of fifteen mothers, all having lost a baby within the last five years to stillbirth or neonatal death. These mothers were met in propinquity and the interview schedule was conducted with them. The findings were analysed and presented both quantitatively, by means of percentages and graphs, and qualitatively, by means of themes and sub themes. The research was particularly relevant in that it is estimated that between three and five percent of all pregnant mothers in South Africa will lose their babies to a stillbirth or neonatal death every year. For this reason it is essential that adequate and quality services be offered to these mothers to prevent complications in their grief. The study conducted by the researcher focused on the accessibility of quality hospital, religious, formal and social support services to bereaved mothers following the death of a baby through stillbirth and neonatal death. The researcher then discussed, in detail, the literature informing the study. The discussion of the literature, as outlined by the researcher, was set in a logical progression – beginning with a discussion on grief, the grief process, dysfunctional grief and models of grief, then moving onto a discussion of the grief following the loss of a baby and maternal grief predictors. The theory ended with a discussion on the services, particularly hospital services, religious services and formal services, available to bereaved mothers. The researcher then presented the findings of the study, drawing comparisons between the literature and the empirical findings where relevant. Conclusions and recommendations were then formulated and presented. The researcher firmly believes that the research conducted holds the potential of providing significant practical suggestions to the functioning of the services that are available to bereaved mothers. / Dissertation (MSD (Play Therapy))--University of Pretoria, 2007. / Social Work and Criminology / unrestricted

Network services for people who are addicted to drugs are diverse in the Czech Republic. In individual regions there is different drug situations and the availability of professional services. Substitutable and other options for individuals, who would like to do something with their addiction, can be self-help support groups. In the Czech Republic there are various self-help support groups. Best known are Alcoholics Anonymous and others similar groups, based on the same pattern. These groups are completely independent and they are not guided by experts. The theoretical part deals with problems of substance abuse, addiction, the health care system for people abuse substances or addictive behavior and finally describes the history of self-help support groups and other incurred self-help support groups. The practical part focuses on the implementation of the research focused on the effect of self-help support groups in the region and to the characteristics of their members. The research aims to map the function of self-help support groups for people with substance abuse in the region Vysočina and also describes groups and their members in terms of their characteristics and sociodemographic data. Key words: Self-help Support Groups - Anonymous Alcoholics - alcohol - drug abuse - addiction

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Introduction: Being a relative of a person with an addiction disease involves a strong mental and physical stress. An important protection factor for the relatives is breaking the silence and shame and seek help. Ersta Vändpunkten is a clinic for these relatives and offers educational groups with a therapeutic objective. This study focuses on program for parents/relatives to children in the so-called little child group (4-6 years). Focus in the program is to support the parents in how they can help the child to understand what is happening in the family and how to take the child’s perspective. The aim of the study is to share the parent’s experiences of participating in this group. Questions: How has participation in the parenting program affected parenting ability? How has participation in the parent group affected the family? Methods: This is a web-based survey, the questionnaire has been analyzed with descriptive statistics. Results: 30 parents/relatives have been asked to participate of whom 17 responded (57%). The survey reveals that the parent/relative now has an improved relationship with the child and that communication in the family has changed for the better. Other relationships, to relatives, friends and to the addictive part have not changed noticeably. All respondents feel the child’s and their own self-esteem have become much better/better after participating. There is also a consensus among respondents that their ability to set boundaries towards the addicted part has become much better/better. Discussion: While the high non-response rate endangers firm conclusions, the findings are nevertheless promising.

The study aimed to develop an in-depth understanding of the challenges faced by social workers rendering Occupational Social Work (OSW) services, particularly in establishing and maintaining workplace support groups for employees living with HIV and AIDS. The study used a qualitative research approach, aided by exploratory, descriptive and contextual research design. Data was collected from eight participants with semi-structured interviews and was analyzed by applying eight steps for data analysis as proposed by Tesch, cited in Creswell (2003:191). Data verification was done by applying Guba’s model (in Krefting, 1991). The themes, which emerged from the interviews, were: the recruitment of members in workplace support groups and the challenges faced by social workers rendering OSW services. The findings indicate that, critical as their roles may be, social workers experience numerous challenges when providing workplace HIV and AIDS support groups. These include HIV and AIDS disclosure, management, organisational and logistical challenges / Social Work

I denna kvalitativa studie har enkäter insamlats från barn och unga som deltagit i stödgruppsverksamhet för barn och unga med en avliden nära anhörig i Dalarnas län. Syftet med studien har varit att beskriva deltagarnas erfarenheter av stödgrupperna. Genom kvalitativ innehållsanalys har tre kategorier identifierats; bearbetning, gemenskap och strukturens betydelse. Studien visar främst på betydelsen av att få träffa andra barn och unga i liknande situation samt indikerar till att deltagarnas KASAM (känsla av sammanhang) förhöjts genom deltagandet i stödgruppen. / In this qualitative study, questionnaires were collected from children and adolescents who had participated in a support group in Dalarnas län for children and adolescents with a deceased close relative. The purpose of this study was to enhance knowledge of children and adolescents’ experiences of participating in support groups through their descriptions in qualitative questionnaires. Qualitative content analysis was conducted and three categories were identified; kinship, processing and the significance of structure. The result highlights the importance of having the opportunity to meet other children and adolescents in similar situations, and indicates that the participants Sense of coherence enhanced through the participation in the support group.

There are several psychosocial factors that can affect an individual diagnosed with cancer (Holland, 2003), and directly addressing these issues with patients is important for their overall care and quality of life (Holland, 1998). The practice of psycho-oncology has been designed to assess these psychosocial issues with patients and their caregivers by means of outlets such as support groups to facilitate a wellness model of care (Myers & Sweeney, 2008). Using the demographics of age and sex, I plan to analyze and identify what psychosocial needs are significant to individuals diagnosed with cancer, and compare the sex and age of two significantly represented patient age groups 18-40 and 41-80 years old. I will survey the patients of Tulane Cancer Center in New Orleans, Louisiana when they arrive for medical treatment at the facility. The survey will include a demographic page, the Functional Assessment of Cancer Therapy-General (FACT-G (Version 4), the Body Image Scale (BIS), the Changes in Sexual Functioning Questionnaire-Short Form (CSFQ-14), and additional questions regarding the extent to which an individual would attend a support group designed for their specific age and sex demographic. Through data analysis, I hope to discover whether any of the variables of body image, sexual functioning, physical well being, social/family well being, emotional well being, and functional well being show significant differences between the male or female young adult population of 18-40 year olds and those patients who are 41-80 years old. The findings should allow psycho-oncology clinicians to utilize this knowledge to address what psychosocial needs are appropriate for each age and sex group, and thus enhance the overall care of the patient.