Introdução As Diretivas Antecipadas de Vontade, também denominadas Testamento Vital constituem um documento com o registro expresso do desejo de um cidadão de recusar tratamento, caso venha a sofrer de alguma enfermidade terminal. Dessa forma, busca desconstruir uma cultura centrada no paternalismo que reduz o indivíduo doente a um paciente que deve aguardar, resignado e submissamente, que deliberações acerca de sua vida sejam tomadas por outros, sem que possa se manifestar ou decidir, autonomamente, como quer ser tratado ou que tipo de práticas de intervenção está disposto a aceitar. Objetivo - O presente trabalho objetivou conhecer a representação do Testamento Vital para os enfermeiros que atuam na assistência à pacientes em situação de terminalidade. Método - Trata-se de pesquisa de natureza qualitativa realizada com quinze enfermeiros que atuam na assistência à pacientes terminais, por meio de entrevistas norteadas pela seguinte questão Fale a respeito do Testamento Vital. Após a aprovação do Comitê de Ética em Pesquisa, houve a obtenção dos depoimentos que foram analisados de acordo com o método do Discurso do Sujeito Coletivo com fundamentação na Teoria das Representações Sociais de Serge Moscovici. Resultados - A pesquisa identificou três categorias que compõem o Discurso do Sujeito Coletivo: o enfermeiro frente às diretivas antecipadas de vontade; o enfermeiro frente à família contrária à vontade do paciente e o enfermeiro frente ao médico contrário à vontade do paciente. Conclusão - O testamento vital representa, na perspectiva dos enfermeiros, a autonomia e o direito do paciente pelas decisões nas situações de terminalidade que devem ser compartilhadas com seus familiares e profissionais de saúde. Não obstante, o enfermeiro pode vivenciar conflitos éticos nas situações em que o desejo manifestado por meio desse documento não é respeitado por familiares e/ou médicos. Diante dessa situação, o enfermeiro pode perceber a própria ação como limitada e sentir-se frustrado com a impossibidade de atender o desejo do paciente. / Introduction: Advance Directives also known as the Living Will Declaration constitute a manifestation of will by means of a document written by a person fully healthy of his mental faculties in order to dispose of the care, treatment and procedures that whether or not he or she wants to be submitted in case of a disease that is beyond therapeutic possibilities and incapable of manifesting his or her will freely. Objective - To know the representation of Living Will Declaration for nurses who work with terminally ill patients. Method - This is a qualitative research carried out with fifteen nurses who work in the care of terminal patients, through interviews guided by the following question \"Talk about the Living Will Declaration\". After the approval of the Committee of Ethics in Research, the interviews were obtained, which were analyzed according to the Collective Subject Discourse method based on Serge Moscovici\'s Theory of Social Representations. Results - The research identified three categories that make up the Discourse of the Collective Subject: \"the nurse in front of the advance directives \"; \"The nurse facing the family contrary to the will of the patient\" and \"the nurse facing the doctor contrary to the will of the patient\". Conclusion - The living will declaration represents, from the perspective of nurses, the autonomy and the right of the patient for decisions in terminal situations that should be shared with family members and health professionals. Nonetheless, nurses may experience ethical conflicts in situations where the desire expressed through this document is not respected by family members and / or doctors. Faced with this situation, the nurse can perceive the action as limited and feel frustrated with the impossibility of fulfilling the patient\'s desire.

Introdução: Prejuízos na atenção, concentração e execução de tarefas, entre outras funções cognitivas, parecem ser frequentes em doentes com câncer e em cuidados paliativos e podem comprometer o cotidiano desses pacientes. No entanto, há poucos estudos sobre o tema e desconhecem-se testes validados para essa população no Brasil. Objetivo: Validar o Teste de Trilhas B (TT-B) para uso em pacientes com câncer em cuidados paliativos. Método: Trata-se de estudo metodológico, de validação de instrumento, que envolveu pacientes (n=94) em tratamento paliativo no Ambulatório de Quimioterapia do Instituto do Câncer do Estado de São Paulo e seus acompanhantes (n=39). Os avaliados realizaram o TT-B e responderam dados sócio-demográficos, sobre a presença e intensidade de dor, de fadiga, sobre a qualidade do sono, ansiedade e depressão, em dois momentos, com intervalo máximo de sete dias. Os doentes também foram caracterizados quanto à doença e tratamento. As validades convergente e divergente foram testadas pela correlação entre o desempenho no TT-B, mensurado pelo tempo para a realização do teste e o número de erros cometidos, com a intensidade da dor, da fadiga, da ansiedade, da depressão e do repouso atribuído ao sono da noite anterior às avaliações. A validade discriminante foi testada pela comparação do TT-B entre doentes e sadios. A estabilidade do TT-B, em doentes e sadios, foi avaliada por meio de teste e reteste. Resultados: Os doentes tinham câncer colo-retal (47,8%), câncer de mama (15,9%), a totalidade apresentava metástase, foram homens (52,1%), com idade média de 53 anos. Para os doentes, o tempo médio de realização do TT-B foi de 147,5 segundos na primeira e 132 segundos na segunda avaliação e o número de erros médio foi de 1 na primeira e 0,8 na segunda avaliação. Para os acompanhantes o tempo de realização do TT-B foi de 127,3 e 110,7 segundos na primeira e segunda avaliação respectivamente e o número de erros foi 0,9 na primeira e 0,6 na segunda avaliação. O instrumento discriminou doentes de sadios em relação ao tempo utilizado para a realização do teste na primeira (p=0,014) e na segunda (p=0,035) avaliação, indicando melhor desempenho para os sadios, mas não em relação ao número de erros. O teste foi estável entre os sadios nas duas avaliações, tanto em relação ao tempo (p=0,071) quanto em relação ao número de erros (p=0,352) e entre os doentes o instrumento foi estável apenas em relação ao número de erros (p=0,913). O TT-B não demonstrou correlações significativas com dor, fadiga, depressão, ansiedade e descanso, o que causou estranheza. Conclusão: O TT-B está em processo de validação. Mostrou-se capaz de discriminar doentes de sadios e foi estável entre os saudáveis. Recomenda-se a continuidade de estudos com amostras maiores e a utilização do TT-B em paralelo a outro instrumento que avalie a função executiva. / Introduction: Impairments in attention, concentration and execution of tasks, among other cognitive functions, seem to be frequent in patients with cancer in palliative care and they can affect patients daily life. However, there are few studies about the theme and to our knowledge there are no validated tests for this population in Brazil. Objective: To validate Trial Making TestB (TMT-B) for assessment of patients with cancer in palliative care. Methods: Methodological study to validate an instrument that involved patients (n=94) in palliative treatment at the Clinic of Chemotherapy of the Instituto do Câncer do Estado de São Paulo and their healthy accompanying person (n=39). Patients were tested on TMT-B and answered demographic data, questions about the presence of pain and intensity, fatigue, quality of sleep, anxiety and depression, in two moments, with maximum interval of seven days. The patients were also characterized according to disease and treatment. The convergent and divergent validities were tested by the correlation between the performance on TMT-B, measured by the amount of time required to complete the task and the number of mistakes, and pain intensity, fatigue, anxiety, depression and the rest attributed to sleep in the previous night before assessments. The discriminate validity was tested by the comparison of TMT-B between patients and healthy accompany persons. The stability of TMT-B, in patients and healthy companions was evaluated through test and re-test. Results: The patients had colorectal cancer (47.8%), followed by breast cancer (15.9%), the totality presented metastasis, most patients were men (52.1%), mean age was 53 years. For patients, mean time required to complete TMT-B was 147.5 seconds in the first and 132 seconds in the second assessments and the mean number of mistakes was 1 in the first and 0.8 in the second assessments. For the healthy accompany person, the time required to complete TMT-B was respectively 127.3 and 110.7 seconds in the first and second assessments and the number of mistakes was 0.9 in the first and 0.6 in the second assessments. The instrument discriminated patients from healthy accompany persons regarding time required to complete the test in the first (p=0.014) and second (p=0.035) assessments, indicating better performance for the healthy ones, but not in relation to the number of mistakes. The test was stable among healthy people in the two assessments regarding time (p=0.071) and number of mistakes (p=0.352); for patients, the instrument was stable only in relation to the number of mistakes (p=0.913). TMT-B did not demonstrate significant correlations with pain, fatigue, depression, anxiety and rest. Conclusion: TMT-B is in validation process. It was able to discriminate between patients and healthy accompany persons and was stable for the healthy ones. Further studies are recommended with larger samples as well as the use of TMT-B in parallel to other instrument that evaluates the executive function.

The diploma thesis is focused on the field of children's palliative care. The objective of the thesis is to find out the current state of children's palliative care and ways of social work with families with children in the terminal stage of life. Interviews with the professionals working in this field make AN important part of the thesis. The outputs of the thesis are presented as recommendations for social workers dealing with these families. The thesis should be seen also as a point of considering the current state of children's palliative care and the need for the development of the field by the professional community.

The main topic of this diploma thesis is support of informal caregivers taking care for dying loved ones or loved ones with life-threatening illness in the home environment. The theoretical partis focused on informal carers, the quality of life of informal carers, the quality of life of dying people and quality of life of people with life-threatening diseases, death and the stages of coping with death. It also deals with hospice and palliative care, their forms, methods and uses. The practical part is focused on the analysis and evaluation of questionnaires filled out by informal carers. The aim of my diploma thesis is to point out the need to help informally caring for dying loved ones or loved ones with life-threatening illnesses. Within the practical part of this thesis, it was intended to map helpful and, conversely, deficit types and ways of support. These outputs can then be the basis for improving the quality of support and services for informal carers caring for a loved one in the home environment. Keywords Informal care, formal care, hospice care, palliative care, quality of life, death.

This diploma thesis deals with communication mix for the selected company. The theoretical part is devoted to the general basis in marketing that is used in the following chapters of the thesis. In the second part, analyses of the current situation of the company have been conducted and conclusions about improvements of the current communication mix have been drawn. These specific recommendations for implementation are presented in order to increase publicity and raise awareness of company’s services.

The aim of the diploma thesis is the processing of project documentation for the construction of children's hospice. The building is located in Opava, specifically in the Jaktař district. Acess to the building is from street Karafiátová on building 2121/1, 2119, 2118, 2117, 2122/1. The children's hospice is a health and social facility in which relief care and facilities for a child suffering from a serious illness will be provided. The ground plan of its object is reminiscent of a person with open arms, which leads to the hospice garden, where a memorial site will be created. The capacity of the hospice is 10 rooms for patients, which will be connected to the rooms of family members. There will also be 4 separate rooms for patients, where it will be possible to place an extra bed. The children's hospice has two above-ground and one basement. The building will be built next to the hospital in Opava and is intended to expand the services provided by palliative care not only in the Moravian-Silesian Region, but throughout the Czech Republic, in which none of these buildings is yet in operation. External walls of the basement are reinforced concrete monolithic, the rest of the external walls are made of ground brick blocks with mineral insulation. The ceiling structures of all floors are monolithic reinforced concrete slabs. The roofs of the building are flat, above the single-storey part a vegetated flat roof is designed and above the second above-ground floor there is a flat roof loaded with aggregate. There is wall structural system.

Ziel dieser Studie ist, einen aktuellen Statusbericht zu Standortdichte, räumlicher Bedarfsabdeckung und demografischen Rahmenbedingungen für die ambulante und stationäre hos-pizliche und palliative Versorgung in Sachsen zu erstellen. Dabei sollen aktuelle Versorgungslücken identifiziert und der künftige Bedarf (2020–2030–2050) an Angeboten auf Ebene der Landkreise und Kreisfreien Städte herausgearbeitet werden. Für die Ableitung der Normwerte zeigt sich, dass angesichts der hohen Sterblichkeitsunterschiede zwischen den Bundesländern eine Bedarfsermittlung auf der Basis bundesdurchschnittlicher Normwerte je Bevölkerung nicht zufriedenstellend ist. Deshalb empfiehlt die Studie, in der regionalen Planung der Hospiz- und Palliativversorgung auf die erwarteten Sterbefälle abzustellen, die sich unter Berücksichtigung der Altersstruktur ergeben. Dieses bedeutet, dass die Normwerte der DGP zur Berechnung der Sollwerte um Bevölkerungsstruktur und Sterblichkeit korrigiert werden. In einer abschließenden Bewertung werden – vor dem Hintergrund einer Stärken- und Schwächenanalyse aus Experteninterviews – weitere Handlungsempfehlungen abgeleitet, die auch die Dimensionen von Qualität der Leistungserbringung, Ausbildung, Finanzierung und deren Anreizwirkung sowie Integration einbeziehen.:1 Ausgangssituation 13 2 Aufgabenbeschreibung 14 3 Bestandsaufnahme der Hospiz- und Palliativversorgung in Sachsen 16 3.1 Definition und Abgrenzung der Hospiz- und Palliativversorgung 16 3.1.1 Hospizversorgung 16 3.1.2 Palliativversorgung 17 3.2 Datengrundlagen 19 3.3 Ambulante Hospiz- und Palliativversorgung 20 3.3.1 Ambulante Hospizdienste (AHD) 21 3.3.2 Spezialisierte Ambulante Palliativversorgung (SAPV) 23 3.4 Stationäre Hospiz- und Palliativversorgung 23 3.4.1 Stationäre Hospize 24 3.4.2 Palliativstationen in Krankenhäusern 25 3.5 Räumliche Verteilung der Versorgungsangebote in Sachsen 25 3.5.1 Region Chemnitz 25 3.5.2 Region Dresden 26 3.5.3 Region Leipzig 27 4 Bewertung und Vergleich der hospizlichen und palliativen Versorgungsstrukturen Sachsens 28 4.1 Versorgungsangebote in anderen Ländern 28 4.1.1 Ambulante Hospizdienste 28 4.1.2 Allgemeine ambulante und spezialisierte Palliativversorgung 30 4.1.3 Stationäre Hospizversorgung für Erwachsene 33 4.1.4 Stationäre Palliativversorgung für Erwachsene 34 4.1.5 Hospiz- und Palliativversorgung für Kinder 34 4.2 Zusammenfassung des Vergleichs mit anderen Bundesländern 35 4.3 Benchmarks für die Versorgung 36 4.3.1 Vorgaben des DHPV und der DGP 37 4.3.2 Empfehlungen der Spitzenverbände 39 4.4 Fazit des Vergleichs 40 5 Bedarfsberechnung 41 5.1.1 Ambulante Hospiz- und Palliativversorgung 42 5.1.2 Stationäre Hospiz- und Palliativversorgung 46 6 Bedarfsprognose auf Kreisebene 50 6.1 Bevölkerungsprognose 50 6.2 Prognose der Gestorbenen für das Berechnungsmodell des zukünftigen Versorgungsbedarfs 53 6.3 Prognose für die ambulanten Hospiz- und Palliativdienste 54 6.3.1 Ambulante Hospizdienste 54 6.3.2 Spezialisierte Ambulante Palliativversorgung 55 6.4 Stationäre Hospiz- und Palliativeinrichtungen 57 6.4.1 Hospizbetten 57 6.4.2 Palliativbetten 59 7 Weiterentwicklung der Hospiz- und Palliativarbeit in Sachsen 62 7.1 Bewertung der Ist-Situation der hospizlichen Versorgung in Bezug auf die Zweite Landeshospizkonzeption 62 7.1.1 Grundsätze und Ziele 62 7.1.2 Öffentliche Förderung der Hospiz- und Palliativversorgung 63 7.2 SWOT-Analyse aus Experteninterviews 67 7.2.1 Zur Hospizversorgung 67 7.2.2 Zur Palliativversorgung 70 7.3 Handlungsfelder und Kriterien zur Weiterentwicklung von Hospiz- und Palliativversorgung 71 7.3.1 Zur Hospizversorgung 72 7.3.2 Zur Palliativversorgung 74 7.3.3 Weitere Handlungsempfehlungen 76 8 Literaturverzeichnis 78 Anhang 84 Aktuelle Standorte der Hospiz- und Palliativeinrichtungen 84 Kartenteil 90 Bevölkerung 90 Hospiz- und Palliativeinrichtungen 2012 105

Die Palliativversorgung (PV) verfolgt das Ziel, die Lebensqualität in der noch verbleibenden Lebenszeit von Patienten mit lebensbedrohlichen Erkrankungen zu maximieren. Deutschland verfügt mittlerweile über ein umfassendes PV-System im ambulanten und stationären Sektor und einen Anspruch auf PV als Teil der Regelversorgung. Im Rahmen dieser Untersuchung soll überprüft werden, ob die Inanspruchnahme der PV-Institutionen der vom Gesetzgeber und medizinischen Experten intendierten Reihenfolge entspricht und ob es Überlebenszeit- oder Gesundheitsausgabenunterschiede gibt (jeweils im Vergleich zu Nicht-Palliativpatienten). Dazu wird ein Paneldatensatz der AOK PLUS (Sachsen und Thüringen) mit Patienten verwendet, die zwischen 2009 und 2012 an einer Krebserkrankung litten (n=447.191). PV-Patienten werden entsprechend ihres Inanspruchnahmeverhaltens in vier Interventionsgruppen eingeteilt, von denen jeder mittels Propensity Score Matchings eine eigene Kontrollgruppe zugeordnet wird. Als statistische Werkzeuge werden v.a. Übergangswahrscheinlichkeiten, Kaplan-Meier-Überlebensfunktionen sowie lineare und nicht-lineare Regressionsmodelle verwendet. Die Ergebnisse legen nahe, dass die Reihenfolge der Inanspruchnahme im Einklang mit Gesetzen und Richtlinien ist. Überlebensnachteile der PV-Patienten können nicht festgestellt werden. Die Gesundheitsausgaben steigen nach erstmaliger Inanspruchnahme einer PV-Institution in allen Stichproben stark an. Dieses Ergebnis ist sehr robust gegenüber Änderungen der Modellspezifikation, des Modelltyps und der Stichprobe. Die Ergebnisse lassen auf eine hohe Struktur- und Prozessqualität der PV-Angebote schließen. Jedoch führt die Inanspruchnahme von PV in ihrer derzeitigen Form offenbar nicht zu Einsparungen. Ein weiterer Ausbau des PV-Systems finanziert sich demnach nicht „von selbst“. Aufgrund der sehr kurzen Nachbetrachtungszeiträume bleibt die gesundheitsökonomische Analyse der PV weiterhin herausfordernd. / Palliative Care (PC) is an approach for patients with life-threatening diseases that focuses on improving quality of life rather than maximizing the remaining life time. Meanwhile, Germany possesses a comprehensive PC system in the ambulatory and inpatient sector where PC treatments are part of standard care. The objective of this research is to evaluate whether patients are using PC institutions as intended by law and medical experts and whether PC patients differ in terms of survival time or health care expenditures (HCE) in comparison to non-PC patients. For this purpose, a panel data set from the statutory health insurance AOK PLUS (covering the German federal states Thuringia and Saxony) is used, that includes all deceased cancer patients between 2009 and 2012 (n=447,191). According to their usage of PC institutions, PC patients were grouped into four different intervention groups and thus each of them was paired with a control group derived from a propensity score matching. A variety of statistical tools has been used, e.g. transition probabilities, Kaplan-Meier survival functions as well as linear and non-linear regression models. Results show that the intended sequences of PC usage are in accordance with law and medical guidelines. There are no disadvantages in survival of PC patients. In all four samples, HCE of PC patients are higher after the initial contact with a PC institution. This result is very robust against adjustments to the model specification, the model type and the sample. Results suggest that structural and process quality of PC is high. However, no saving effect can be identified for PC in its current form. A further extension of the PC system is therefore not “self-financing”. Due to the very short post treatment time, health economic analysis of PC remains challenging.

Die sogenannte psychosoziale Arbeit in stationären Hospizen wird von verschiedenen Berufsgruppen geleistet und ist ein - auch im Sozialgesetz - geforderter Bestandteil der Hospizarbeit. In vielen Hospizen übernehmen Dipl. Sozialpädagogen/-arbeiter die Funktion der psychosozialen Fachkraft. Diese Masterthesis soll anhand einer qualitativen Studie einen Einblick in das Aufgabengebiet und die Rolle dieser Fachkräfte ermöglichen. Sie erhebt dabei nicht den Anspruch an Repräsentativität und erfasst bewusst nicht alle Professionen im Bereich der psychosozialen Fachkräfte. Vielmehr sollen anhand der Auswertung individueller Gespräche mit in Hospizen tätigen Dipl. Sozialpädagogen/-arbeitern der Begriff Psychosoziale Arbeit durch die Beschreibung der alltäglichen Aufgaben und die Rolle der Dipl. Sozialpädagogen/-arbeitern konkretisiert und ihre Motivation erfasst werden. Die Aussagen sollen mit dem aktuellen Stand der Literatur und Wissenschaft verglichen werden. / This master-thesis goes in for the role and function of social work in inpatient hospices. The so-called psychosocial work in inpatient hospices is carried out by various professions and is also a required part in the book of social laws. In a lot of inpatient hospices social workers take over the role of the psychosocial specialist. This master-thesis should provide an insight into the daily responsibilities/ functions and roles of these specialists with the help of a qualitative study. It does not claim to be representative and captures not the whole of the professions doing specialised psychosocial care. In fact the term psychosocial work should be concretised and the motivation of social workers be picked up by analysing individual interviews about the functions and the role of social work(ers). The outcomes should be compared with the actual literature and state of science.

Chapter 1 presents the backgrounds and research questions of the dissertation project. Although everyone hopes to die with dignity, a “good death” is often privileged. Inequality in end-of-life care in the United States is striking; older minorities are 3 times more likely to receive intrusive care and experience hospital readmission and less likely to use hospice care and die at home. With the hope to address disparities in end-of-life outcomes, as part of the Affordable Care Act, Medicare expanded its benefit and started to reimburse end-of-life care planning services from 2016. This dissertation examines the roles of health insurance policy and its advocated intervention in ensuring person-centered dying experiences in the United States and the public readiness for establishing a similar end-of-life care policy in China. The second chapter examines whether physician–patient advance care planning (ACP) discussions, the “intervention” embedded in the policy, is effective at prompting end-of-life care planning behaviors and improving end-of-life experiences. I also studied the heterogenous effects by race and ethnicity. I used exit data about 7,282 deceased Medicare-eligible respondents from the Health and Retirement Study (HRS) from 2012 to 2020, a nationally representative biennial survey of U.S. older adults. I conducted latent class analysis to identify different end-of-life experiences and used multinomial logistic regression models to study the relationship between having ACP discussions with doctors and different end-of-life experiences in full and stratified samples by race and ethnicity. Then I used path analyses to test whether completing legal documentation initiated by ACP services explains the effectiveness of the intervention. The results show three types of end-of-life experiences among White, Black, and Hispanic older adults; significant effects of end-of-life care discussions with doctors on uncomfortable dying experiences and extensive use of invasive treatments in the older White population; and the partial mediating role of completion of legal health care documents on the relationship between ACP discussions and end-of-life outcomes. This study identified the limited effectiveness of physician–patient ACP discussions among minority older adults and emphasizes the importance of quality, content (e.g., to cover legal documentation during the conversation), and cultural appropriateness of ACP consultations led by doctors. The third chapter examines the heterogenous intent-to-treat effect of the Medicare policy on older adults’ motivation to plan for care by exploiting policy intervention as a natural experiment. Taking advantage of the longitudinal nature of the HRS, I used core data with 47,982 observations nested in 15,647 individuals across 9 years (2012–2020). I used two quasi-experimental models—interrupted time series analysis and difference-in-difference—to study the care-planning outcomes before and after the policy implementation between older adults eligible or not eligible for Medicare. I studied the heterogenous effects in stratified samples by race and ethnicity, immigration background, and socioeconomic status proxied by education and wealth. I used coarsened exact matching to address the potential bias of the comparison group not being the ideal counterfactual control unit. I found that in the total population, the Medicare policy was associated with a significant increase in the proportion of older adults who completed a living will and designated a durable power of attorney for health care, but not having an ACP conversation. Furthermore, although there were immediate positive policy effects, the increases in ACP outcomes driven by the ACA Medicare benefit expansion were not sustained. Finally, I found no evidence that the ACA Medicare benefit expansion was effective in improving the rates of ACP among Black, Hispanic, Asian, Native American, or non-U.S.-born older adults. I also identified heterogeneous policy effects by socioeconomic status. I discuss promising recommendations for health care policy and practice to improve the participation rate of end-of-life care planning. Chapter 4 explores the feasibility of encouraging physicians to discuss end-of-life care wishes with older patients in China. Knowledge of a medical diagnosis is critical for end-of-life decision making. However, a patient’s right to know their diagnosis is neither guaranteed nor protected by law in China. Doctors typically inform family members of the patient’s illness diagnosis and prognosis and let them decide whether to disclose this information to the patient. This study examined middle-aged and older Chinese adults’ preferences for disclosing their and significant others’ diagnoses and whether sociodemographic, economic, and cultural factors were associated with these preferences. The research team surveyed 571 adults aged 50 or older in Shanghai from 2021 to 2022. The outcome measures are preferences for diagnosis disclosures, including whether and to whom diagnoses should be disclosed. I characterized preference types using latent class analysis and estimated multinomial logistic regression to identify the covariates associated with each preference type. Three latent classes were identified. The transparent group (34%) believed patients, whether self or a significant other, should be informed of their diagnoses. The contradictory group (50%) held conflicting attitudes; they preferred to know their diagnosis but preferred that significant others not be informed of their diagnoses. The avoidant group (16%) preferred not to know their diagnosis or to disclose significant others’ diagnoses to them. Familism attitudes were positively associated with holding contradictory views. Experiences with hospitalization and medical decision-making for family members were associated with holding transparent views. I discuss the importance of illness disclosure for honoring patients’ autonomous decision-making.