No / Objectives: To examine how people from Bradford's Pakistani Muslim community experience living with epilepsy. Specifically, the paper addresses social interactions and negotiations with care providers and considers how different understandings of epilepsy are integrated. Methods: Interviews were conducted with a sample of Bradford's Pakistani Muslim community ( n=20). Interviews were analysed to identify themes and significant areas of shared concern. Results: This paper identifies popular, professional and folk sectors contributing to an individual's `health system'. Where sectors overlap, zones of hybridity are created: that is, a person might simultaneously seek help from a doctor and from a religious healer, or might offer explanations for seizures that include neurological and spiritual components. Discussion: While there are many similarities between the experiences of these minority ethnic community members and published work on the lived experience of epilepsy in other communities, there are also important differences that service providers need to recognize and respond to. Differences include forms of cultural expression and specific language needs. Improving communication between professionals and persons with epilepsy needs to be prioritized.

No / This qualitative study explores spouse caregivers' understanding of and responses to partners with dementia. Six wives who had been providing care to their husbands in the community for at least two years were interviewed. Transcripts were analysed using Interpretative Phenomenological Analysis (IPA) and four interconnected themes were proposed: same person or different; relational change; emotional responses to behaviours; and impact on day-to-day life. Participants’ sense of continuity with the past was suggested to influence each theme. The construct of continuity was proposed to be elastic, with both intra-psychic and inter-psychic factors impacting upon its elasticity. Broadly, a sense of continuity seemed to be associated with better adjustment to caregiving.

Yes / Qualitative dementia research emphasises the importance of recognising the voice of the person with dementia. However, research imbued with a politics of selfhood, whereby individuals are called upon to give coherence to experience and emotion, jars with representations of dementia as a gradual decline in capacity. Moreover, it reinforces an assumption that there is an essential experience that can be accessed through different methods. Drawing on Atkinson and Silverman, we view the interview not as confessional but rather as an outcome of social interaction. This paper draws on qualitative interviews from the Improving the Experince of Dementia and Enhancing Active Life (IDEAL) study, to focus specifically on the forms of accounting and storytelling of people living with dementia and how these are produced through the course of the interview encounter. Extracts from our interviews highlight key aspects of this interactional process: (a) social conventions and temporality, (b) self presentation and identity work, (c) accounts and wider cultural meanings. To conclude, we suggest that qualitative research with people with dementia requires a reframing of both the interview encounter and interpretive practices. / The IDEAL study’ was funded jointly by the Economic and Social Research Council (ESRC) and the National Institute for Health Research (NIHR) through grant ES/L001853/2 ‘Improving the experience of dementia and enhancing active life: living well with dementia’

Yes / Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout. / Economic and Social Research Council (ESRC) grant ES/V004964/1. Economic and Social Research Council (ESRC) and the National Institute for Health and Care Research (NIHR) grant ES/L001853/2. Alzheimer’s Society, grant number 348, AS-PR2-16-001.

La méthode qualitative est en plein essor en médecine et particulièrement en psychiatrie, où la place du sujet, et ses représentations de la maladie et du soin sont centrales dans la prise en charge. Dans le champ de la santé de l'adolescent, de grands travaux permettent des avancées importantes dans la compréhension de la souffrance et les propositions de soins. Les méthodes qualitatives sont pourtant souvent critiquées de par leur contextualité et leur manque de pouvoir de généralisation. Une façon d'améliorer ces deux aspects consiste à appareiller les études traitant la même problématique de manière à en synthétiser les principaux résultats. Cet exercice de synthèse, notablement différent de celui de méta-analyse propre à la recherche quantitative, est réalisé depuis longtemps dans le champ des sciences humaines. Il s'agit de la métasynthèse, ou meta-ethnography. L'exercice de synthèse de la littérature est aujourd'hui de plus en plus codifié en recherche scientifique. Pourtant, certains points sont toujours en discussion - critères d'inclusion des études, critères de qualité des études-. De plus, aucune équipe psychiatrique ne s'est approprié l'outil de la métasynthèse pour l'adapter à la discipline. Ce travail décrit les étapes de la construction et de l'adaptation, à partir du corpus existant, d'une méthode rigoureuse, effective, simple à transposer et enseigner, permettant la métasynthèse de données de la littérature dans le domaine du soin psychique de l'adolescent. Il s'agit d'une part d'une réflexion théorique, épistémologique et méthodologique sur les métasynthèses et leur adaptation au champ de la clinique psychiatrique. Il s'agit d'autre part d'une construction pratique, réalisée à partir de métasynthèses effectuées sur des thématiques du soin psychique de l'adolescent. Les deux premiers articles sont deux travaux de métasynthèse. Le premier concerne l'obésité de l'adolescent. Les résultats obtenus mettent en lumière les limites de la méthode utilisée. Le deuxième article s'intéresse à la question des comportements suicidaires à l'adolescence. Les enseignements méthodologiques du premier article ont permis de perfectionner la méthode de métasynthèse. Enfin, le troisième article propose une description détaillée des étapes de la méthode construite. En discussion, nous proposons de resituer la méthode de la métasynthèse dans le contexte historique du niveau de preuve scientifique. Nous illustrons avec les articles les plus récents les liens toujours plus forts qui se construisent entre la méthode de la métasynthèse, aujourd'hui appelée Qualitative Evidence Synthesis, et la médecine fondée sur les preuves. La métasynthèse est une méthode moderne, qui montre tout son intérêt dans la recherche médicale. Notre méthode appliquée à la psychiatrie de l'adolescent est rigoureuse et fiable, et permet d'accroître la connaissance scientifique et d'améliorer la prise en charge des patients. / Qualitative research is expanding fast in medicine and especially in psychiatry, where the patient and his representations of illness and care are central to treatment. In the field of adolescent health, great work provides important advances in the understanding of suffering and care. Qualitative methods are however often criticized because of their contextuality and their lack of generalization power. One way to improve these aspects is to match studies addressing the same issue so as to synthesize the main results. From a long time, human sciences have taken hold of this exercise of synthesis, which is significantly different from meta-analysis of quantitative research. They have called this work metasynthesis or meta-ethnography. The literature synthesis exercise is now increasingly codified in scientific research. However, some points are still under discussion - For example, inclusion criteria for studies, study quality criteria -. Moreover, no metasynthesis exist in the field of psychiatric research. This work describes the stages of construction and adaptation of a simple, rigorous, efficient, easy to share and teach method, which enables to do qualitative data synthesis in the field of psychological care to adolescents. On the one hand, we propose a theoretical, epistemological and methodological reflection on metasyntheses and their adaptation to the field of psychiatric care. On the other hand, we describe a practical progression: our method is built from metasyntheses conducted on two themes of adolescent psychological care. The first two papers are both metasyntheses. The first one is about adolescent obesity. The results highlight the limitations of the method we used. The second article focuses on the issue of suicidal behavior in adolescence. The methodological lessons of the first article helped us to improve the meta-synthesis method. The third article provides a detailed description of each steps of the method. In discussion, we propose to situate the method of metasynthesis in the historical context of the scientific evidence. We illustrate with recent papers the increasingly strong links that exist between metasynthesis, now called Qualitative Evidence Synthesis, and Evidence-Based Medicine. The metasynthesis is a modern method. It shows its interest in medical research. Our method applied to adolescent psychiatry is rigorous and reliable, and can increase scientific knowledge and improve the care of patients.

Le Liban est l'un des pays les plus petits de la région. Le système politique multi confessionnel constitue la marque principale de la société libanaise. En fait, cette spécificité intervient dans tous les aspects de la société, y compris le secteur sportif. Suite à la guerre civile qui a éclaté dans le pays de 1975 jusqu'à 1990, cette distribution religieuse, et les communautés qui en résultent, sur une surface géographique restreinte, ont rapidement conduit à penser la nécessité d'avoir un gouvernement qui puisse établir une « harmonie nécessaire » entre les 18 différents groupes religieux qui sont représentées dans la majorité des partis politiques de l'après Taëf. Ce projet de thèse tend à examiner plutôt le sens «politics» dans le sport libanais ou plutôt de la «politisation du sport» (politics) au Liban et comment cette implication politique se répercutera sur l'essor sportif au Liban. A travers une méthodologie qualitative à type de Participation Observante, nous avons profité du fait de notre appartenance politique au parti AMAL pour examiner de près les différents acteurs de la vie sportive au Liban, en commençant par la structure légale des instances sportives telles qu'elles figurent dans les textes officiels. La constitution du corpus de connaissance sur lequel portera l'analyse fut des plus compliquée vu qu'il a été nécessaire de faire usage de mon appartenance politique afin d'accéder a posteriori, à certaines sources d'information. L'analyse inductive a permis de décomposer la manipulation qu'exercent les politiciens sur le sport au Liban, dont l'essor devient totalement dépendant des agendas des partis politiques / Lebanon is the smallest country in the Middle-East characterized by its multi confessional political system. This system impacts all the aspects of social activities including sports. After the eruption of the civil war from 1975 until 1990, the existence of multiple religious communities on a limited geographical area, led to rethink their redistribution within the Lebanese government in order to ensure equity between 18 different religious groups that represent the majority of political parties during the post Taef era. This PhD project aims to examine the essence of "political use of sports" within the Lebanese sport sector or the "politicization of sport" (politics) in Lebanon and how political involvement will affect sport activities in Lebanon. Through a qualitative methodological design more specifically a Participant Observation study, I took advantage of my political affiliation to AMAL party to examine closely the various actors in the Lebanese sport sector. The study began by examining the overall structure of Sports in Lebanon starting at it emergence in official texts mainly in the Lebanese constitution. Afterwards, I gathered a body of literature by the means of my political resources in order to analyze a posteriori the relevant information. Inductive analysis was used to extract chore meanings related to politicization of sport and to highlight political manipulation of sports in Lebanon. Growth of certain sport disciplines became sometimes totally dependent on political parties’ agendas

Background: Contemporary research has been studying what motivates employees in different working fields. In this study, Herzberg’s research is examined in order to take a closer look at the motivation of customer service employees. Purpose: The purpose of this study is to examine how the employees of customer service are motivated to work by mainly relating this study’s results to Herzberg’s research. Method: The study method is a case study with qualitative research including semi-structured interviews and snowball sampling approach. Theoretical framework: The fundamental theoretical framework in this study consists of Herzberg’s two-factor motivation theory. Empirical material: The empirical material in this study consists of ten customer service employees. All the empirical data has been collected through face-to-face contact. Conclusion: The overall picture of the empirical material is that the customer service employees are motivated by these Herzberg factors: “Salary”, “Interpersonal relations”, “Policy and administration”, “Achievement”, “Recognition”, “The work itself”, “Responsibility”, “Advancement” and finally “Possibility of growth”.

Depuis les dix dernières années, la manifestation de diverses problématiques concernant la sexualisation des comportements chez les jeunes garçons et filles interpelle les parents, le personnel scolaire et les divers professionnels (Lamb & Brown, 2006). Ce phénomène, l'hypersexualisation, est en expansion en Amérique du Nord, touchant particulièrement les jeunes femmes, mais également les hommes (APA, 2007). À l'heure actuelle, les définitions existantes de ce phénomène sont surtout théoriques (non opérationnelles) et touchent principalement les enfants et les adolescents. Puisqu'au début de l'âge adulte, l'exploration identitaire, amoureuse et sexuelle sont davantage présentes (Arnett, 2000), cette période est particulièrement importante pour l'étude de l'hypersexualisation. Cette étude a donc pour objectif de fournir une définition conceptuelle de l'hypersexualisation spécifique aux jeunes adultes (18-30 ans). Afin de tenir compte de la perspective des acteurs eux-mêmes sur ce phénomène, la méthode qualitative a été privilégiée (Poupart et al., 1997). Six groupes de participants (cinq groupes de jeunes adultes ( n =23); un groupe d'intervenants (n =6)) ont participé à des entrevues de groupe (focus group) reposant sur un canevas d'entrevue semi-structurée. Les verbatim ont été retranscrits et codifiés à l'aide du logiciel d'analyse qualitative QDA Miner. L'analyse thématique en six étapes de Braun et Clarke (2006) a permis de générer une définition de l'hypersexualisation adulte reposant sur trois grands thèmes : 1) les messages sexuels omniprésents; 2) l' objectification sexuelle et 3) la relation à l'autre sexualisée. Dix sous-thèmes ont également émergé de l'analyse thématique (p. ex., surinvestissement de l'image sexualisée, désir de plaire, comportements de séduction). La définition qui en résulte a comme avantages de porter exclusivement sur les jeunes adultes, de s'adresser aux hommes et aux femmes et d'intégrer les composantes sociétale et individuelle du phénomène. La discussion met en lumière les différences entre cette définition et celles déjà formulées dans la documentation et propose des pistes de recherches futures.

Background Qualitative longitudinal research (QLR) has a long history in the social sciences, where its theoretical basis is well established. Qualitative longitudinal (QL) methods are gaining popularity in health care research for exploring the dynamic experience of illness. However, methodological development of QLR is limited within the health literature, and there are very few studies examining the experience of people with colorectal cancer (CRC). Moreover, such studies describe the experiences of those surviving CRC and the voices of those with advanced disease who are approaching the end of their lives remain largely unheard. Aim and objective This study explores the potential of QL interviewing to examine the experiences of those with advanced, metastatic, CRC. I investigate how QL interviews can be best utilised to explore the participants’ accounts of their experiences. I specifically examine the added value and costs of a flexible approach with regard to the frequency and timing of longitudinal interviews. Analytical approaches to QL data are examined to determine their overall value. Methods Sixteen patients with metastatic CRC and eight of their family carers participated in narrative interviews at three time points over the course of a year. The study was designed to include two groups of participants. The first, a routine interval group where interviews were carried out at regular intervals of six months; the second, a flexible interval group where there was an interview at baseline followed by monthly phone calls to track changes in the participants’ circumstances, with a view to conducting the interview as change was occurring. The data were analysed at each time point, and longitudinally using narrative and thematic techniques. Findings The QL design enabled a trusting relationship to evolve, such that private accounts of experience were disclosed. Thus, a nuanced and contextualised understanding of the experience of metastatic CRC materialised. Overall the accounts of CRC were characterised by uncertainty, yet at the same time death was a certainty. Over time, this dual narrative led to participants feeling themselves to be in an ambiguous and liminal state. Some participants described a loss of sense of self, yet others maintained their identity. The work that participants carried out to manage their sense of self changed, as they moved from a collective to an individual identity. In the flexible interval group, monthly telephone calls produced an even more profound research relationship and further enriched the accounts. However, early interviews were only conducted on two occasions and more ethical issues arose as a result of the increased contact. Conclusions By exploring the potential of QL methods, this study has developed the methodology for researching the experiences of those with serious illness. QL interviewing elicits a deep understanding of metastatic CRC that appreciates notions of temporality, process and change. Regular contact with participants between interviews can further enrich the accounts, and is a useful strategy for tracking changes given the unpredictable nature of advanced disease. This thesis showcases the cross-sectional and longitudinal opportunities that QL analysis presents; yet also highlights how longitudinal narrative analysis allows a story to unfold over time which reflects the beginning, the middle and for some the end of the illness experience. Although QL analysis is time consuming, and more contact can amplify ethical issues, the benefits outweigh the constraints.

Background: Evidence for the effectiveness of psychological treatments for sex offenders with learning disabilities is far from overwhelming. Qualitative studies can augment quantitative research by providing insight into the experiences of those who receive such treatment. There are a number of qualitative studies of the views of offenders but few that focus on the views of those with learning disabilities. Method: A systematic review was carried out of qualitative studies of the views of sex offenders, with and without learning disabilities, about their experiences of treatment. An empirical study, using Interpretative Phenomenological Analysis, explored the views of men with mild learning disabilities about one particular group treatment. Results: The review identified that a supportive atmosphere, good therapeutic relationship, trust and positive peer interactions were highly valued. Some elements of treatment, such as offence disclosure, were seen as both difficult and helpful. In the empirical study, themes regarding offence disclosure and trust were also identified. In addition, treatment was characterised as being about giving and receiving advice. Participants struggled with some of the other concepts used in treatment but described gains including becoming a mentor and developing a sense of mastery. Most strikingly, participants described needing extensive time in treatment in order to gain benefit. Over time they moved from feeling anxious and angry about treatment to feeling positive, supported and trusting. Conclusion: Sex offenders with learning disabilities may need long-term treatment programmes in order to effect change. Treatment providers should be sensitive to offenders’ feelings of initial anxiety and anger.