Thesis (MA)--Stellenbosch University, 2005. / ENGLISH ABSTRACT: An exploratory study was conducted to determine the psychosocial stressors of women living with HIV/AlDS. The study also included the utilisation of group work by social workers to support HIV positive women. The exploratory study was also conducted to determine HIV positive women's experiences in a support group. The researcher's interest in group work, as well as her involvement with a support group with HIV positive women, is the motivation for the study. The aim of the study is to provide an explanation of the psychosocial stressors that HIV positive women experience and also to capture their experiences regarding the support group they attend. Nine psychosocial stressors, namely anger, fear, loss, grieve, guilt, denial and disclosure, depression, suicidal behaviour and anxiety, were included in the literature study. The advantages, disadvantages and components of group work, as well as comparisons of effective and ineffective groups, were highlighted. The research also focused on planning a group for women with HIV/AlDS, with special attention given to the needs assessment, the purpose of the group, the group composition and the structure of the group. The value of group work with HIV positive women was investigated. The universum was HIV positive women at the Walvis Bay Multi-Purpose Centre. The qualitative research method that was used took the form of structured interviews. The results of this study generally confirmed the findings of the literature study. Recommendations include ways in which social workers can assist HIV positive women not only on an individual basis but also especially in a group setting, and recommendations concerning future research. The importance of future research with HIV positive women was especially recommended. / AFRIKAANSE OPSOMMING: 'n Verkennende studie is onderneem om die psigososiale stresfaktore wat HIV positiewe vroue ondervind, te bepaal. Die studie het ook maatskaplike werkers se gebruik van groepwerk om HIV positiewe vroue te ondersteun, ondersoek. Die navorsing is voorts onderneem om HIV positiewe vroue se ervarings van 'n ondersteunersgroep te bepaal. Die navorser se belangstelling in groepwerk, en haar betrokkenheid by 'n ondersteunersgroep vir HIV positiewe vroue, was die motivering om die studie te onderneem. Die doel met die studie is om die psigososiale stresfaktore wat HIV positiewe vroue ondervind, te beskryf en te verduidelik, en ook om sommige van die ervarings wat sulke vroue in 'n ondersteunersgroep ondervind, te boekstaaf. Nege psigososiale stresfaktore, naamlik woede, vrees, verlies, droefheid, skuldgevoel, ontkenning en onthulling, depressie, selfmoordgedrag en angs, is in die literatuurstudie bestudeer. Die komponente en voor- en nadele van groepwerk, asook 'n vergelyking van effektiewe en oneffektiewe groepe is ook ingesluit. Die beplanning van 'n groep vir HIV positiewe vroue is benadruk, met spesiale verwysing na die behoeftebepaling, en die doel, die samestelling en die struktuur van die groep. Die waarde van groepwerk vir HIV positiewe vroue is ook ondersoek. Die universum is HIV positiewe vroue by die Walvisbaai Multi-Purpose Centre. Die kwalitatiewe navorsingsmetode wat gebruik is, is gestruktureerde onderhoude. Die resultate van die studie het in die algemeen die bevindinge van die literatuurstudie onderskryf. Aanbevelings sluit in wyses waarop maatskaplike werkers HIV positiewe vroue nie alleen op 'n individuele basis nie, maar ook in groepsverband kan ondersteun, asook moontlike gebiede vir verdere navorsing. Die belang van verdere navorsing met HIV positiewe vroue word veraI beklemtoon.

Univ., Diss.--Wien, 2003.

This is a dissertation Programme Postgraduate Sensu Strictu Nursing, School of Nursing and Pharmacy, Federal University of Alagoas. Given that cancer at some point in evolution of the disease patients need to solve food problems, nursing adopts guidance to patients and their families as part of their care process, thus seeking a comprehensive and humane care. Based on this finding , this paper focuses the response of family members of cancer patients to dietary changes presented by the patient seriously ill. Aims to identify the experience of handling the family regarding the power of family severely affected by cancer at home. Qualitative, descriptive and exploratory survey conducted via guided by the Family Management Style Framework model interviews - FMSF , conducted with 10 family caregivers home. The results indicate that the sample had as main characteristics the fact that the caregiver being a woman, aged 51-60 years percapta low family income and parental great proximity to the patient. The families identified the food situation as being inappropriate; view The food usually eaten to cause health disorders in the critically ill patient and difficulty in providing the satisfaction of the biopsychosocial demands related to the supply of food. From the speech was possible to describe the behavior of management having the family caregiver modified the patient's diet in line with what you believe is a healthy, family caregiver modified the preparation and supply of the diet, the family caregiver changed his own attitude. Thus, the consequence perceived by the caregiver which were reflected in the discovery of effective strategies and confirmation of their previously developed skills. / Tendo em vista que os pacientes oncológicos em algum momento de evolução da doença necessitam resolver problemas alimentares, a enfermagem adota a orientação aos pacientes e seus familiares como parte de seu processo cuidar, buscando assim uma assistência integral e mais humana. Com base nesta constatação, este trabalho tem como objeto a resposta dos familiares de pacientes oncológicos às alterações alimentares apresentadas pelo doente gravemente enfermo. Teve como objetivos conhecer a experiência de manejo da família referente a alimentação do familiar gravemente acometido pela doença oncológica no domicílio. Pesquisa qualitativa, descritiva e exploratória realizada através de entrevistas norteadas pelo modelo Family Management Style Framework - FMSF, com 10 cuidadores familiares. Os resultados apontam que a amostra teve como características principais o fato do cuidador ser mulher, na faixa etária de 51 a 60 anos, baixa renda familiar percapta e grande proximidade parental com o paciente. As famílias identificaram a situação alimentar como sendo inapropriada; a comida usualmente ingerida vista como causadora de transtornos a saúde do paciente gravemente enfermo e, tendo ainda dificuldade em proporcionar a satisfação das demandas biopsicossociais relacionadas ao fornecimento da alimentação. A partir das falas dos sujeitos foi possível descrever o comportamento de manejo tendo o cuidador familiar modificado a dieta do paciente em consonância com o que acredita ser uma alimentação saudável; a modificação do preparo e oferta da dieta; além do familiar ter modificado sua própria atitude quando não foi possível alterar a do paciente. Neste movimento, a consequências percebidas pelo cuidador se refletiram no descobrimento de estratégias eficientes na condução do manejo do problema alimentar e na confirmação de suas habilidades previamente desenvolvidas. Contudo, com o agravamento característico da evolução do câncer, o familiar se viu diante de um problema gradativo com evolução negativa, no qual percebeu-se impotente frente as questões de manejo.

The thesis deals with insuring a humanly dignified care for terminally ill senior people approached as the goal of a social work in a hospital environment. Medical facilities belong to places where senior people most often pass away, and where their dignity is also most endangered. The basis for working out the thesis is describing the man seen as the being whole and at the same time uniuqe, in which one sees man?s dignity. The following part of the thesis is dedicated to a palliative care as a guarrantor of maintaining dignified and quality life till its end. A knowledge of conceiving a terminally ill senior man, his/her needs and values is for a provision of the palliative care necessary. A part of the thesis deals with a specificity of social work in a palliative care, and with professional a personal competencies of a social worker. A provision of a support to those terminally ill and their close ones is in a hospital environment insured only partly. Based on the information collected the thesis is dedicated to outlining a humanly dignified care as the aim of social work. A social worker can participate on the above mentioned by being in a role of an accompanying one and a consultant for those left. A possibility to support a spiritual dimension of the man to which a social worker is in his/her both roles often close is approached in the final part of the thesis.

Submitted by Maike Costa (maiksebas@gmail.com) on 2016-12-01T13:07:49Z No. of bitstreams: 1 arquivototal.pdf: 1466086 bytes, checksum: 1e09a0784d1f4e4b4f096322f2f15d20 (MD5) / Made available in DSpace on 2016-12-01T13:07:49Z (GMT). No. of bitstreams: 1 arquivototal.pdf: 1466086 bytes, checksum: 1e09a0784d1f4e4b4f096322f2f15d20 (MD5) Previous issue date: 2016-04-25 / The caring is a action endowed with responsibility, in which we shall consider the different dimensions and real necessities of the human being. It is a peculiar characteristic to all the health professionals, which demand fundamental practices at the life quality and promotion, mainly considering the terminal ill assistance. This study aimed to investigate the health professional experience at a household attention service with the care turned to the terminal patient. Methodology: It is an exploratory-qualitative research, guided by criteria established at the Qualitative Research Reporting. The scenario involved the Household attention service, located in João Pessoa – PB. Twenty professionals from the superior level participated at this study: two doctors, six nurses, Five physiotherapists, two nutritionists, two psychologist, two speech therapist and a social assistant from the multi professionals team at the household attention and from the multi professional support teams. To capture the empirical material, was used the interview technique that followed a script containing guided questions, pertinent to the proposed objective to this study. Data were collected between February and May 2015, after the agreement of the Education Management at Health from the referred city and the Ethics Research Committee of the Health Sciences Center approval, as certificate as CAAE register under the number: 39989514.0.0000.5188. The empirical material was analyzed in a qualitative way, through the Content Analysis Technique proposed by Bardin. . Results: From data collection, emerged two originals manuscripts. To the first was given the name “Professional experience at a household attention service at the terminal patient caring”, from with were identified three categories: “Humanization at the terminal patient assistance: promoting autonomy, dignity and life quality”; “The terminal patient: feelings experienced during the caring promotion”; and “Terminal patient care, personal and professional permanent learning.” And the second, “Therapeutic actions promoted to the terminal patient: professionals experience at a household attention service, which resulted in two categories construction: “Therapeutic actions directed to biological necessities of the terminal ill to comfort and life quality promotion.” And “Therapeutic actions promoted to answer the psycho socials and spirituals terminal patient’s needs” Conclusion: The health professionals experience during the terminal patient caring action, in the household context, is based on a holistic assistance, with Essentials therapeutic to the humanized care, that brings respect and dignity to the patient at the life ending process. / El cuidado es una acción dotada de responsabilidad y corresponsabilidad, en las que se debe tener en cuenta las diferentes dimensiones y las necesidades humanas reales. Es una característica peculiar de todos los profesionales de la salud, de las cuales las prácticas de demanda son basadas en la promoción de la calidad de vida, especialmente teniendo en cuenta la asistencia al paciente con condición de enfermedad terminal. Este estudio tuvo como objetivo investigar la experiencia de los profesionales de la salud de un Servicio de Atención Domiciliaria en el cuidado basado en el paciente de la enfermedad terminal. Metodología: Se trata de una investigación exploratoria, cualitativa, guiada por los criterios establecidos en los informes de investigación cualitativa. El escenario implica Servicio de Cuidados en el hogar, con sede en la ciudad de João Pessoa - PB. En el estudio participaron veinte profesionales de primer nivel: dos médicos, seis enfermeras, cinco fisioterapeutas, dos nutricionistas, dos psicólogos, dos logopedas y un asistente social de equipos multidisciplinares de atención domiciliaria y equipos multidisciplinares de apoyo. Para captar el material empírico, se utilizó la técnica de la entrevista, que siguió una secuencia de comandos que contiene preguntas de orientación pertinentes para el objetivo propuesto para el estudio. Los datos fueron recolectados de febrero a mayo de 2015, tras el acuerdo de la Gestión de la Educación en Salud del municipio y aprobados por el Comité Ético de Investigación del Centro de Ciencias de la Salud, de acuerdo con el certificado con el registro CAAE con el número: 39989514.0.0000.5188. El material empírico se analizó cualitativamente a través de la técnica de análisis de contenido propuesto por Bardin. Resultados: A partir del análisis de datos, surgieron dos manuscritos originales. La primera, titulada "Los profesionales de la experiencia de un servicio de atención a domicilio para el cuidado de pacientes en enfermedad terminal", que se identificaron tres categorías fi cado: "Humanización en la atención al paciente de la enfermedad terminal: la promoción de la independencia, la dignidad y calidad de vida"; "El paciente de la enfermedad terminal: sentimientos experimentados en la promoción de la atención"; y "Atención al Paciente de la enfermedad terminal, el aprendizaje constante y personal profesional". Y el segundo, "acciones terapéuticas promovidos al paciente de la enfermedad terminal: la experiencia de los profesionales de un servicio de atención a domicilio", lo que dio lugar a la construcción de dos categorías: "Las acciones terapéuticas dirigidas a las necesidades biológicas de los enfermos terminales para promover la comodidad y la calidad vida "y" acciones terapéuticas promovidas para satisfacer las necesidades psicosociales y espirituales de los enfermos terminales". Conclusión: La experiencia de los profesionales de la salud en el acto de cuidar al paciente de la enfermedad terminal en el contexto familiar, se basa en una atención integral con terapias esenciales para el cuidado humanizado para lograr el respeto y la dignidad al paciente en la finitud del proceso de la vida. / Cuidar é uma ação dotada de responsabilidade e corresponsabilidade, na qual se devem considerar as diferentes dimensões e reais necessidades do ser humano. É uma característica peculiar a todos os profissionais da saúde, dos quais demanda práticas fundamentadas na promoção da qualidade de vida, principalmente considerando a assistência ao doente em condição de terminalidade. Este estudo teve como objetivo investigar a vivência de profissionais da saúde de um Serviço de Atenção Domiciliar no cuidado voltado para o paciente na terminalidade. Metodologia: Trata-se de uma pesquisa exploratória, de natureza qualitativa, norteada pelos critérios estabelecidos no Relatório Pesquisa Qualitativos – COREQ. O cenário envolveu o Serviço de Atenção Domiciliar, localizado no município de João Pessoa – PB. Participaram do estudo vinte profissionais de nível superior: duas médicas, seis enfermeiras, cinco fisioterapeutas, duas nutricionistas, duas psicólogas, duas fonoaudiólogas e uma assistente social das Equipes Multiprofissionais de Atenção Domiciliar e das Equipes Multiprofissionais de Apoio. Para apreender o material empírico, foi empregada a técnica de entrevista, que seguiu um roteiro contendo questões norteadoras pertinentes ao objetivo proposto para o estudo. Os dados foram coletados no período de fevereiro a maio de 2015, depois da concordância da Gerência de Educação em Saúde do referido município e da aprovação do Comitê de Ética em Pesquisa do Centro de Ciências da Saúde, conforme certidão com registro CAAE, sob o número: 39989514.0.0000.5188. O material empírico foi analisado qualitativamente, por meio da técnica de análise de conteúdo proposta por Bardin. Resultados: A partir da análise dos dados, emergiram dois manuscritos originais. O primeiro, intitulado “Vivência de profissionais de um serviço de atenção domiciliar ao cuidar de pacientes na terminalidade”, do qual foram identificadas três categorias: “Humanização na assistência ao paciente em terminalidade: promovendo autonomia, dignidade e qualidade de vida”; “O paciente em terminalidade: sentimentos vivenciados na promoção do cuidado”; e “Cuidar do paciente na terminalidade: constante aprendizado pessoal e profissional”. E o segundo, “Ações terapêuticas promovidas para o paciente na terminalidade: vivência de profissionais de um serviço de atenção domiciliar”, que resultou na construção de duas categorias: “Ações terapêuticas direcionadas às necessidades biológicas do doente terminal para promoção do conforto e da qualidade de vida” e “Ações terapêuticas promovidas para atender às necessidades psicossociais e espirituais do doente terminal”. Conclusão: A vivência de profissionais de saúde no ato de cuidar do paciente na terminalidade, no contexto domiciliar, fundamenta-se em uma assistência holística, com terapêuticas essenciais para o cuidado humanizado, que promova respeito e dignidade para o paciente em processo de finitude da vida.

Made available in DSpace on 2015-05-08T14:47:27Z (GMT). No. of bitstreams: 1 arquivototal.pdf: 1343544 bytes, checksum: 157df81d759f3b6cb754d5af82202f53 (MD5) Previous issue date: 2011-12-01 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPES / Palliative care are considered as a care philosophy, whose scope is to provide to patients without therapeutic possibilities of cure and their families a better quality of life, being its application of great importance in the context of Primary Care. OBJECTIVES This study has the following objectives: to investigate the understanding of professionals working in FHS, in what concerns to Palliative Care and its therapeutics modalities; to identify, in the view of professionals from FHS, the constitution of Palliative care team for Basic Attention; to verify the possibilities and limitation of implementing Palliative Care in Basic Attention; from the discourse of Health professionals. METHODOLOGY Its about and exploratory research with qualitative approach. The scenario of investigation consisted of family care units belonging to Sanitary District IV, located in the city of João Pessoa (PB). Participated in the work 30 professionals from FHS, being ten doctors, ten nurses and ten dental surgeons. Data collection occurred between July and September 2011. DATA ANALYSIS empirical material was analyzed through content analysis technique, from the following phases: pre-analysis; material exploration; treatment of results. Data obtained by means of testimonies of investigation participants were grouped into the following thematic categories: Palliative Care conceptual aspects and therapeutic modalities (with their respective subcategories: Palliative Care promotion of life quality for patients without possibilities of cure; therapeutic modalities in palliative care); Palliative Care in Basic Attention team formation, possibilities and limitations. RESULTS: This study showed, from the vision of professionals involved in the study, the valuation of Palliative Care, considered as a modality of care that aims to minimize the suffering of the patient without therapeutic possibilities of cure and the one of their families through an assistance guided in humanization. On the other side, some of the study participants had an incompatible comprehension with the relevant literature to Palliative Care. Results pointed out that doctors, nurses and dental surgeons believe in the possibility of implementing this modality of care in basic Attention, since some need are met, such as: team training and development of a national policy for palliative care. FINAL CONSIDERATIONS We consider that this study opens new horizons in the field of scientific production, in assistance and in teaching on palliative care in Basic attention. In view of reduced quantum of studies directed to the respective thematic in the context of national literature. We hope, therefore, that this research can subsidize new investigation exploring the interrelationship of Palliative Care with Basic Attention, since it is an innovative practice in the referred field, necessitating a greater spread with managers, professionals of Health, in particular the ones from FHS, students and researches from this area. / Os Cuidados Paliativos são considerados como uma filosofia do cuidar, cujo escopo é o de proporcionar aos pacientes sem possibilidades terapêuticas de cura e seus familiares uma melhor qualidade de vida, sendo a sua aplicação de suma importância no âmbito da Atenção Básica. OBJETIVOS Este estudo tem os seguintes objetivos: investigar o entendimento de profissionais que atuam na ESF, no que concerne aos Cuidados Paliativos e suas modalidades terapêuticas; identificar, na visão dos profissionais da ESF, a constituição da equipe de Cuidados Paliativos para a Atenção Básica; verificar as possibilidades e limitações de implementação de Cuidados Paliativos na Atenção Básica, a partir do discurso de profissionais da Saúde. METODOLOGIA Trata-se de uma pesquisa exploratória com abordagem qualitativa. O cenário da investigação constituiu-se de unidades de saúde da família pertencentes ao Distrito Sanitário IV, localizadas no município de João Pessoa (PB). Participaram do trabalho trinta profissionais da ESF, sendo dez médicos, dez enfermeiros e dez cirurgiões-dentistas. Na coleta de dados, utilizou-se um formulário contendo questões pertinentes aos objetivos propostos para a pesquisa. A coleta dos dados ocorreu entre julho e setembro de 2011. ANÁLISE DOS DADOS O material empírico foi analisado mediante a técnica de análise de conteúdo, a partir das seguintes fases: pré-análise; exploração do material; tratamento dos resultados. Os dados obtidos por meio dos depoimentos dos participantes da investigação foram agrupados nas seguintes categorias temáticas: Cuidados Paliativos aspectos conceituais e modalidades terapêuticas (com suas respectivas subcategorias: Cuidados Paliativos promoção de qualidade de vida para pacientes sem possibilidades de cura; modalidades terapêuticas em cuidados paliativos); Cuidados Paliativos na Atenção Básica formação da equipe, possibilidades e limitações. RESULTADOS: Este estudo mostrou, a partir da visão dos profissionais evolvidos no estudo, a valoração dos Cuidados Paliativos considerados como uma modalidade de cuidar que visa à minimização do sofrimento do paciente sem possibilidades terapêuticas de cura e à de seus familiares, mediante uma assistência pautada na humanização. Por outro lado, alguns dos participantes do estudo apresentaram uma compreensão incompatível com a literatura pertinente aos Cuidados Paliativos. Os resultados assinalaram também que os médicos, enfermeiros e cirurgiões-dentistas acreditam na possibilidade de implementação dessa modalidade de cuidar na Atenção Básica, desde que sejam atendidas algumas necessidades, tais como: capacitação da equipe e desenvolvimento de uma política nacional para os cuidados paliativos. CONSIDERAÇÕES FINAIS Consideramos que este estudo abre novos horizontes no campo da investigação científica, na assistência e no ensino acerca dos cuidados paliativos na Atenção Básica. Haja vista o quântico reduzido de estudos direcionados à respectiva temática no âmbito da literatura nacional. Esperamos, portanto, que esta pesquisa possa subsidiar novas investigações que contemplem a inter-relação dos Cuidados Paliativos com a Atenção Básica, visto que se trata de uma prática inovadora no referido campo, necessitando-se de uma maior disseminação junto a gestores, profissionais da Saúde, em particular os da ESF, estudantes e pesquisadores da área.

(in English): The topic of the master thesis "Palliative care in hospitals" focuses on an area that is unknown not only to the general public but to health professionals as well. The care for the dying is not an attractive and sought subject. Nevertheless, it can concern everyone directly or indirectly through family and friends that are close and dear. In the past recent years palliative care in the Czech Republic has advanced. The principles are being applied by some providers of health and social care. In medical establishments palliative care is still not automatically provided even though hospitals in the Czech Republic are a place where most deaths occur. The theoretical part clarifies, describes and introduces palliative care, defines its content and principles from the social and logistic aspect. It focuses on ways to apply palliative care in hospitals, on the conditions of its integration into medical establishments, organizational forms and describes experiences in this field from abroad. Based on the fundamentals of quality research the practical part of the thesis maps the conditions in which patients spend their last days in a specific hospital from the point of view of the medical personnel. The main outcome of this thesis is the ambiguous statement that hospitals lack palliative...

Indiana University-Purdue University Indianapolis (IUPUI) / Greater levels of loneliness have shown consistent associations with poorer mental and physical health; however, the reason for these relationships is unknown. Engagement in poorer health behaviors among individuals with higher levels of loneliness is one potential explanation for this relationship. Self-regulation theory suggests that coping with feelings of loneliness may impair attempts to control health behaviors. Caregivers of cancer patients have been found to have poor health behaviors (e.g., inadequate exercise) and high levels of loneliness. Thus, the aim of the study is to examine whether health behaviors mediate the relationships between loneliness and mental and physical health outcomes among caregivers of cancer patients. Methods: A secondary data analysis was conducted using data from a longitudinal study of cancer patients and their family caregivers who were staying at the American Cancer Society’s Hope Lodge. Participants completed self-report questionnaires measuring levels of loneliness, engagement in health behaviors (i.e., exercise and fruit and vegetable consumption), mental and physical health, and demographic and medical characteristics at three time points over a 4-month period. A bootstrapping macro was used to examine the indirect effect of loneliness on mental and physical health via health behaviors. Results: Contrary to hypotheses, exercise and fruit and vegetable consumption did not mediate the relationships between loneliness and physical and mental health among cancer patients’ caregivers. Additional research is needed to determine whether health behaviors partially account for the relationships between loneliness and health outcomes or whether alternate explanations for these relationships should be considered.

Syftet med studien var att undersöka intresset för aktiv dödshjälp hos patienter som lider av en långt framskriden cancer samt vilka faktorer som påverkar dem i detta ställningstagande. I en litteraturstudie har relevant litteratur insamlats, analyserats och tolkats. Utifrån bevisen från sammanlagt fem kvalitativa studier har nya slutsatser dragits. Resultaten pekar på att det finns ett intresse för aktiv dödshjälp bland svårt sjuka cancerpatienter men att detta i hög grad är framtidsorienterat. Faktorer som påverkar intresset är uppfattningen om att vara en börda för andra, rädsla för framtiden, lidande, den demoraliserande inverkan som cancern har på individen samt religion och etik. / The aim of this study was to examine the personal interest in receiving a physician hastened death among terminally ill cancer patients and the factors that are associated with such a consideration. A review of literature has been conducted on relevant articles. The evidence from a total of five qualitative studies formed the basis upon which new conclusions have been reached. The results suggest that an interest is prevalent among terminally ill cancer patients for receiving a physician hastened death. However, this is in most cases future orientated. Factors that influence patients in this consideration are the perception of being a burden to others, fear of the future, suffering, the demoralising effect that cancer has on the individual as well as religion and ethics.

No / Enabling patients to be cared for in their preferred location often involves journeys between care settings. The challenge of ensuring journeys are timely and safe emerged as an important issue in an evaluation of palliative care services, which informed a service redesign programme in three areas of the United Kingdom by the Marie Curie Cancer Care 'Delivering Choice Programme'. This article explores perceptions of service users and key stakeholders of palliative care services about problems encountered in journeys between care settings during end-of-life care. This article draws on data from interviews with stakeholders (n = 44), patients (n = 16), carers (n = 19) and bereaved carers (n = 20); and focus groups (n = 9) with specialist nurses. Data were gathered in three areas of the United Kingdom. Data were analysed using a framework approach. Transport problems between care settings emerged as a key theme. Four particular problems were identified: (1) urgent need for transport due to patients' rapidly changing condition; (2) limited time to organise transfers; (3) the management of specialist equipment and (4) the need to clarify the resuscitation status of patients. Partnership working between Ambulance Services and secondary care is required to develop joint protocols of care to ensure timely and safe transportation between care settings of patients, who are near their end of life. Commissioning of services should be responsive to the complexities of patients' needs and those of their families.