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191	Integrace zdravotních a sociálních služeb pro pacienty s nevyléčitelnou nemocí / Integrating health a social services for patiens with incurable illness Dostálová, Vladimíra January 2016 (has links) The thesis deals with the integration of health and social services for patients with incurable diseases. In the theoretical part I define notions of aging and old age and in connection with that I point out the aspects that the old age and the aging bring. In another area of the theoretical part I explicate the laws and regulations of the Czech Republic relating to the given issue. I also provide a statistical overview of the development of the population, diseases and places of death and in relation to these factors I mention the principles of the palliative care. The conclusion of the theoretical part is devoted to an overview of available researches dealing with the integration of health and social care in both the Czech Republic and abroad. In the empirical part using qualitative research I examine how individual research respondents perceive linking health and social services in the care of a patient with an incurable disease in homes for the elderly, and what possibilities and obstructions are there according to themselves with the provision of palliative care in the links between health and social services. Based on the analysis of qualitative research I defined the various factors that may influence the integration between health and social services. According to these findings, in the...
192	Oral Interpretation as a Catalyst for Social Awareness Ann's Haven: Hospice of Denton County Cancilla, Carlajo 08 1900 (has links) This oral interpretation thesis studies the use of oral interpretation in social contexts. The context chosen was the Hospice movement, which deals with assisting terminally ill persons and their families through the stages of death and bereavement. A readers theatre script was compiled for "Ann's Haven: Hospice of Denton County," which was selected for the locus of this thesis. The script was presented to various civic groups for the purpose of informing the public and eliciting support for Ann's Haven. It was found that oral interpretation is a viable rhetorical tool and is well liked by audiences as a means of public enlightenment. oral interpretation Ann's Haven Hospice of Denton County Readers' theater -- Case studies Readers' theater -- Social aspects Terminal care facilities -- Drama readers theatre terminally ill persons Hospice movement
193	Palliativa patienters beskrivning av en värdig död : en icke-systematisk litteraturöversikt / Palliative care patients' description of a dignified death : a non-systematic literature review Bergius, Cecilia, Nord, Carla January 2023 (has links) Bakgrund Den palliativa vårdens mål är att lindra lidande och främja livskvaliteten för patienter ilivets slutskede. Det finns olika typer av lidande såsom fysiska, psykiska och existentiellavilket betyder att lidandet behöver mötas ur ett multidimensionellt perspektiv. Ensammanställning av palliativa patienters beskrivning av en värdig död kan utökasjukvårdspersonalens kunskap och förståelse om patienternas prioriteringar, behov ochönskningar i livets slutskede. Syfte Syftet var att sammanställa palliativa patienters beskrivning av en värdig död. Metod En icke-systematisk litteraturöversikt, baserad på 20 kvalitativ och kvantitativavetenskapliga originalartiklar inhämtades från databasen PubMed med hjälp av sökord iolika kombinationer. Artiklarna valitetsgranskning utifrån Sophiahemmet Högskolasbedömningsunderlag för vetenskaplig kvalitet och klassificering. Resultatetsammanställdes och analyserades sedan med en integrerad dataanalys för att identifieralikheter och skillnader i resultatet. Resultat I sammanställningen av resultatet identifierades tre huvudkategorier: Minskat livslidandegenom ökad autonomi, Minskat sjukdomslidande samt minskat vårdlidande. Resultatetvisade att få dö med minimerat lidande, att få dö med autonomin i behåll, samt att få dö iden miljö och runt de man önskar är de viktigaste aspekterna för en värdig död. Slutsats Då sökningar efter relevanta artiklar gav betydligt fler träffar på artiklar med syfte attbelysa vårdpersonalens eller närståendes perspektiv på vad en värdig död innebär är ämnetpalliativa patienters beskrivning av en värdig död något som det bör forskas vidare på föratt förbättra just deras upplevelse av sin sista tid i livet. / Background The goal of palliative care is to relieve suffering and promote quality of life for patients inthe final stages of life. There are different types of suffering such as physical,psychological and existential, which means that suffering needs to be met from amultidimensional perspective. A compilation of palliative care patients' description of adignified death can increase healthcare professionals' knowledge and understanding ofpatients' priorities, needs and wishes at the end of life. Aim The aim was to compile palliative care patients' description of a dignified death. Method A non-systematic literature review, based on 20 qualitative and quantitative scientificoriginal articles were obtained from the PubMed database using search terms in severalcombinations. The articles have undergone a quality review based on Sophiahemmet University’s assesment documents for scientific quality and classification. Results werecompiled and then analyzed using an integrated data analysis to identify similarities anddifferences in the results. Results In the compilation of the results, three main categories were identified: Reduced sufferingof life through increased autonomy, Reduced suffering from illness and reduced sufferingfrom care. The results showed that being able to die with minimized suffering, being ableto die with autonomy preserved, and being able to die in the environment and around thoseone wishes are the most important aspects for a dignified death. Conclusions As searches for relevant articles gave several hits on articles with the aim of elucidating theview of the healthcare staff or relatives on what a dignified death means, the subject ofpalliative care patients’ view on a dignified death is something that should be furtherresearched in order to improve their experience of their last time in life. Palliative care Terminally ill patients Dignified death Death perspective Autonomy Palliativ vård Palliativa patienter Värdig död Perspektiv på döden Autononomi Nursing Omvårdnad
194	I dödens skugga : - En deskriptiv litteraturstudie av palliativa patienters perspektiv Wennman, Josefine, Zetterström Nygren, Sebastian January 2023 (has links) Bakgrund: Under år 2022 inrapporterades 48,733 dödsfall till Svenska palliativregistret. Stor del av den forskning inom det palliativa fokuserar på anhöriga och vårdares perspektiv. Samtidigt medför den moderna strävan för personcentrering av vården behovet för insikt i hur de döende i sjukdom uppfattar sin situation och tillvaro. Syfte: Att beskriva döende patienters uppfattning om dödens olika aspekter. Metod: En litteratursökning genomfördes med hjälp av databasen MEDLINE via PubMed. Använda söktermer var attitude to death, perception, perceptions, qualitative research, terminally ill, view och views. Tio artiklar baserade på döende personers perspektiv om uppfattningen av döden valdes ut av författarna till litteraturstudien. Artiklarna analyserades sedan genom tematisk analys. Huvudresultat: Två huvudteman identifierades: Att ställas inför nytt perspektiv och Hur döden bemöts är viktigt. Att ställas inför nytt perspektiv som tema berör känsloreaktionen i mötet med döden, kampen om att finna mening, relationen till tillvaron och betydelsen av acceptans. Uppfattningarna kopplade till temat Hur döden bemöts är viktigt behandlar de sätt de döende sjuka hanterar sin situation, vad som hjälper och stjälper, vad som är viktigt och på vilket sätt. Slutsats: Samtidigt som patienternas uppfattning av dödens olika aspekter påvisade individuell variation relaterat till sociokulturella och psykoandliga faktorer; fanns det en övergripande överensstämmelse i uppfattningen om dödens olika aspekter. I patienternas beskrivna uppfattning av dödens aspekter påvisas möjligheten till en förbättrad personcentrerad palliativa vård. / Background: In 2022 there were 48,733 deaths reported to the Swedish register of palliative care. A big part of the palliative research is focused on relatives and care workers perspectives. At the same time the modern pursuit of patient-centered care brings the need for insight on how terminally ill patients perceive their situation and existence. Aim: To describe dying patients' perceptions on the different aspects of death. Method: A literature search was conducted in the database MEDLINE via PubMed. The searchterms used were attitude to death, perception, perceptions, qualitative research, terminally ill, view and views. Ten articles based on the perspective of terminally ill patients' perception of the aspects of death were selected by the authors of this review. The articles were then analyzed using thematic analysis. Findings: Two themes were identified: To be faced with a new perspective and How death is dealt with is important. The theme To be faced with a new perspective touches on the emotional reactions when confronted with death, the struggle to find meaning, connections to one's existence and the significance of acceptance. The perceptions connected to the theme How death is dealt with is important deals with the ways the terminally ill manage their situation, what helps and hinders, what is important and in what way. Conclusion: At the same time the patients' perceptions on the aspect of death showed individual variation related to sociocultural and psychospiritual factors; an overall congruence regarding perceptions of the aspects of death was found. In the patients' described perception of the aspects of death, the possibility for improvement of person-centered palliative care is demonstrated. Attitude to death aspects of death qualitative research review terminally ill Attityd till döden döende patienter kvalitativ forskning litteraturstudie uppfattning om död Nursing Omvårdnad
195	Honouring sacred spaces : voicing stories of terminal illness Scrimgeour, Elizabeth 30 November 2002 (has links) The marginalisation of palliative and pastoral care practices by conventional approaches to care for terminally ill patients, motivated the research curiosity. The significance of terminal patient's spirituality, their language practices and communities of concern are endorsed as being the major contributing factor to meaningful 'living' with terminal illness. Listening to stories has been the qualitative research practice, revealing meaning-making, quest stories. Feminist theology and post-modern ideas and discourses have assisted me, and the participants, in the deconstruction of power, patriarchy and dualism as the primary contributing factors to marginalisation of people due to illness, race, gender, poverty, culture and education. Pastoral care practices and feminist theology have guided us to emphasise the necessity to recognise the God of Grace as an important part to ensuring holistic patient care. Recognising the 'God-Self, respectful narrative and pastoral care practices paved the way to honour sacred spaces and voice stories of terminal illness. / Practical Theology / M.Th (Specialisation Pastoral Therapy) Palliative care Feminist theology Dualism Marginalisation Pastoral care Narrative pastoral therapy Patriarchy Grace Holism Choice Meaning-making Doing hope Ethical care Relationship Interconnectedness Languaging Sacred spaces Storytelling Community Deconstruction Terminally ill -- Religious life Terminal care -- Religious aspects Death -- Religious aspects Church work with the terminally ill Narrative therapy Feminist theology
196	Examining home-based care of chronically/terminally ill persons by family care givers and their interaction with professional health care providers Mooka, Dorethy 31 July 2013 (has links) According to the Ministry of Health (1996:26), the most common chronic/terminal illnesses were cardiovascular disorders, diabetes, cancer, mental disorders, HIV/AIDS, tuberculosis and asthma. Long term treatment and care and the growing incidence of these conditions necessitated the introduction of home-based care (HBC). Consequently, family care givers play a major role in the provision of care to chronically/terminally ill patients and professional health care providers adopt a supervisory role. This study examined the quality of home care services provided in Botswana. The availability and accessibility of home-based care services and resources have a direct bearing on the quality of home-based care delivery system. The researcher used systems theory was used as the conceptual framework for this study. The study aimed to • determine the accessibility and availability of home-based care services in Molepolole East • investigate what the perspectives and experiences of family care givers, patients and professional health care providers of Botswana home-based care are • determine the roles of professionals health care providers, patients, and family care givers and their relationships in the context of home- based care • identify the needs of chronically/terminally ill patents and family care givers • determine the type of support given to family care givers and patients by professional health care providers and make recommendations for the improvement of home-based care • develop a model to prepare family care givers The research design combined quantitative and qualitative research methods. A sample of convenience was used to obtain information from patients' family care givers and professional health care providers. Interviews and questionnaires were used. A proposed care giving preparedness model is presented to meet needs of the family care givers. The study found that family care givers needs are neither known nor catered for by the professional health care provider. The family care givers were not adequately prepared before adopting the care-giving role. It is recommended that • The proposed preparedness care giving training model is considered for training of patients and family care givers before discharge and during HBC. • Increase patients and family care givers decision-making / Health Studies / D.Litt. et Phil. (Health Studies) Home based care Community care Chronically/terminally ill Care giving preparedness model and partnership 362.14096883 Home nursing -- Botswana Nursing care plans -- Botswana Community health nursing -- Botswana Community health services -- Botswana Home care services -- Botswana Public health nursing -- Botswana Caregivers -- Botswana Long-term care of the sick -- Botswana Primary health care -- Botswana Terminally ill -- Home care --Botswana Chronically ill -- Home care --Botswana
197	Examining home-based care of chronically/terminally ill persons by family care givers and their interaction with professional health care providers Mooka, Dorethy 31 July 2013 (has links) According to the Ministry of Health (1996:26), the most common chronic/terminal illnesses were cardiovascular disorders, diabetes, cancer, mental disorders, HIV/AIDS, tuberculosis and asthma. Long term treatment and care and the growing incidence of these conditions necessitated the introduction of home-based care (HBC). Consequently, family care givers play a major role in the provision of care to chronically/terminally ill patients and professional health care providers adopt a supervisory role. This study examined the quality of home care services provided in Botswana. The availability and accessibility of home-based care services and resources have a direct bearing on the quality of home-based care delivery system. The researcher used systems theory was used as the conceptual framework for this study. The study aimed to • determine the accessibility and availability of home-based care services in Molepolole East • investigate what the perspectives and experiences of family care givers, patients and professional health care providers of Botswana home-based care are • determine the roles of professionals health care providers, patients, and family care givers and their relationships in the context of home- based care • identify the needs of chronically/terminally ill patents and family care givers • determine the type of support given to family care givers and patients by professional health care providers and make recommendations for the improvement of home-based care • develop a model to prepare family care givers The research design combined quantitative and qualitative research methods. A sample of convenience was used to obtain information from patients' family care givers and professional health care providers. Interviews and questionnaires were used. A proposed care giving preparedness model is presented to meet needs of the family care givers. The study found that family care givers needs are neither known nor catered for by the professional health care provider. The family care givers were not adequately prepared before adopting the care-giving role. It is recommended that • The proposed preparedness care giving training model is considered for training of patients and family care givers before discharge and during HBC. • Increase patients and family care givers decision-making / Health Studies / D.Litt. et Phil. (Health Studies) Home based care Community care Chronically/terminally ill Care giving preparedness model and partnership 362.14096883 Home nursing -- Botswana Nursing care plans -- Botswana Community health nursing -- Botswana Community health services -- Botswana Home care services -- Botswana Public health nursing -- Botswana Caregivers -- Botswana Long-term care of the sick -- Botswana Primary health care -- Botswana Terminally ill -- Home care --Botswana Chronically ill -- Home care --Botswana
198	Honouring sacred spaces : voicing stories of terminal illness Scrimgeour, Elizabeth 30 November 2002 (has links) The marginalisation of palliative and pastoral care practices by conventional approaches to care for terminally ill patients, motivated the research curiosity. The significance of terminal patient's spirituality, their language practices and communities of concern are endorsed as being the major contributing factor to meaningful 'living' with terminal illness. Listening to stories has been the qualitative research practice, revealing meaning-making, quest stories. Feminist theology and post-modern ideas and discourses have assisted me, and the participants, in the deconstruction of power, patriarchy and dualism as the primary contributing factors to marginalisation of people due to illness, race, gender, poverty, culture and education. Pastoral care practices and feminist theology have guided us to emphasise the necessity to recognise the God of Grace as an important part to ensuring holistic patient care. Recognising the 'God-Self, respectful narrative and pastoral care practices paved the way to honour sacred spaces and voice stories of terminal illness. / Philosophy, Practical and Systematic Theology / M.Th (Specialisation Pastoral Therapy) Palliative care Feminist theology Dualism Marginalisation Pastoral care Narrative pastoral therapy Patriarchy Grace Holism Choice Meaning-making Doing hope Ethical care Relationship Interconnectedness Languaging Sacred spaces Storytelling Community Deconstruction Terminally ill -- Religious life Terminal care -- Religious aspects Death -- Religious aspects Church work with the terminally ill Narrative therapy Feminist theology
199	Die Begleitung von Schwerkranken und Sterbenden unter Berücksichtigung des Copingmodells von Richard S. Lazarus und dessen Bedeutung für die Seelsorgearbeit = Pastoral counselling of seriously ill and dying humans with regard to the "coping model" by Richard S. Lazarus and its significance for spiritual guidance / Pastoral counselling of seriously ill and dying humans with regard to the "coping model" by Richard S. Lazarus and its significance for spiritual guidance Menn, Gerhard 07 December 2007 (has links) Text in German / Forschungsgegenstand dieser Arbeit ist das Bewältigungsverhalten von schwer kranken und sterbenden Menschen, die in einer Gesellschaft ihren bevorstehenden Tod bewältigen müssen, die ambivalent mit dieser Thematik umgeht. Die unterschiedlichen menschlichen Bewältigungsformen können mit den bisher gängigen Zugangswegen über Phasenmodelle nicht immer befriedigend erklärt werden. Hilfreich erscheint hier das aus der Stressforschung stammende Copingmodell von Richard S. Lazarus und seiner Forschungsgruppe, um Menschen verstehen zu lernen. In wieweit dieses Verstehensmodell aus einem säkularen Forschungszweig für die Seelsorgearbeit unterstützend sein kann, soll in dieser Arbeit geklärt werden. Als Grundlage dienen Seelsorgegespräche mit unterschiedlichen Menschen, die eine große Bandbreite an Bewältigungsverhalten demonstrierten. Die Herausforderung lag darin, Menschen in ihrem Sterben umfassend wahrzunehmen, um möglichst viele Impulse zu erkennen, die ihr Bewältigungsverhalten beeinflussten. Aus der Aufarbeitung dieses Verhaltens ergaben sich Perspektiven für die Begleitung sterbender Menschen. Dies hat gleichbedeutend Konsequenzen für den seelsorgerlichen Umgang mit Sterbenden. Das Wissen um das christlich-biblische Menschenbild und die umfassende Kenntnis der Copingforschung können sich durchaus gegenseitig befruchten, denn beide gehen auf die Individualität des Menschen ein und unterstützen ihn seinen eigenen Zugang zu seinem Leben und seinem Tod finden zu lassen. Dies führt letztlich zu einer intensiven Kommunikation zwischen Patient und Seelsorger, der den Mut und das Vertrauen haben darf, dem Sterbenden eigenständig sein Leben bewältigen zu lassen. Die Ansätze der Copingforschung bieten weitreichende Impulse für vielfältige seelsorgerliche Fragestellungen auch außerhalb der Sterbebegleitung. Object of research of this thesis is the specific behaviour of seriously ill and dying humans coping with their impending death and being members of a society having an ambivalent attitude towards death. People's different and individual ways of coping cannot always be sufficiently explained by the current use of phasing models. In this context the "Coping Model" by Richard S. Lazarus and his stress research group seems to be helpful in understanding dying humans. In how far this comprehension model from a secular branch of research can be supportive of pastoral counselling is the objective of this thesis. Counselling dialogues with different persons who show a wide range of coping form the basis of this research. The challenge of this paper was to observe and sense humans in their death experiences from a broader point of view in order to identify as much as possible kinds of impulses crucial to their coping behaviour. Analysing the behaviour of dying humans led to new perspectives on spiritual guidance. Tantamountly, this has its consequences for spiritual dealing with dying humans. The comprehension of the biblical Christian idea of man and a detailed knowledge of coping research can, by all means, be interactive and thus show positive results as both respond to a person's individuality and support them in their own ways of approach to life and death. Finally, this leads to an intensive dialogue between patient and pastor who can have the courage and the confidence in letting the person find his own way of coping. The different kinds of approach of the coping model research offer far-reaching impulses to various pastoral questions going even beyond terminal care. / Philosophy, Practical & Systematic Theology / D.Th. (Practical Theology) Abwehr Allgemeines Adaptionssyndrom Angst Auferstehung BeFo Begleiten Bewältigungsformen Distress Eustress Heilsdimension Kognitive Bewertung Kommunikation Krebskranke Elisabeth Kübler-Ross Richard S. Lazarus Menschenbild Schwerkranke Seelsorge Sterbebegleitung Sterben Sterbephasen Stress Tod Transaktionales Stresskonzept Wahrnehmung Defence/Repulsion General Adaption Syndrome Fear Resurrection Counselling Coping Models Coping Positive Stress Healing Dimension Cognitive Assessment Communication Cancer Patients Idea of Man Terminal Ill Terminal Care Dying Phases of Dying Death Transactional Stress Concept Perception 259.4175 Lazarus, Richard S. Kübler-Ross, Elisabeth Church work with the terminally ill Terminally ill -- Pastoral counseling of Terminally ill -- Mental health Death -- Psychological aspects
200	Begleitung von Schwerkranken und Sterbenden unter Berücksichtigung des Copingmodells von Richard S. Lazarus und dessen Bedeutung für die Seelsorgearbeit / Pastoral counselling of seriously ill and dying humans with regard to the "coping model" by Richard S. Lazarus and its significance for spiritual guidance Menn, Gerhard 07 December 2007 (has links) Text in German / Forschungsgegenstand dieser Arbeit ist das Bewältigungsverhalten von schwer kranken und sterbenden Menschen, die in einer Gesellschaft ihren bevorstehenden Tod bewältigen müssen, die ambivalent mit dieser Thematik umgeht. Die unterschiedlichen menschlichen Bewältigungsformen können mit den bisher gängigen Zugangswegen über Phasenmodelle nicht immer befriedigend erklärt werden. Hilfreich erscheint hier das aus der Stressforschung stammende Copingmodell von Richard S. Lazarus und seiner Forschungsgruppe, um Menschen verstehen zu lernen. In wieweit dieses Verstehensmodell aus einem säkularen Forschungszweig für die Seelsorgearbeit unterstützend sein kann, soll in dieser Arbeit geklärt werden. Als Grundlage dienen Seelsorgegespräche mit unterschiedlichen Menschen, die eine große Bandbreite an Bewältigungsverhalten demonstrierten. Die Herausforderung lag darin, Menschen in ihrem Sterben umfassend wahrzunehmen, um möglichst viele Impulse zu erkennen, die ihr Bewältigungsverhalten beeinflussten. Aus der Aufarbeitung dieses Verhaltens ergaben sich Perspektiven für die Begleitung sterbender Menschen. Dies hat gleichbedeutend Konsequenzen für den seelsorgerlichen Umgang mit Sterbenden. Das Wissen um das christlich-biblische Menschenbild und die umfassende Kenntnis der Copingforschung können sich durchaus gegenseitig befruchten, denn beide gehen auf die Individualität des Menschen ein und unterstützen ihn seinen eigenen Zugang zu seinem Leben und seinem Tod finden zu lassen. Dies führt letztlich zu einer intensiven Kommunikation zwischen Patient und Seelsorger, der den Mut und das Vertrauen haben darf, dem Sterbenden eigenständig sein Leben bewältigen zu lassen. Die Ansätze der Copingforschung bieten weitreichende Impulse für vielfältige seelsorgerliche Fragestellungen auch außerhalb der Sterbebegleitung. Object of research of this thesis is the specific behaviour of seriously ill and dying humans coping with their impending death and being members of a society having an ambivalent attitude towards death. People's different and individual ways of coping cannot always be sufficiently explained by the current use of phasing models. In this context the "Coping Model" by Richard S. Lazarus and his stress research group seems to be helpful in understanding dying humans. In how far this comprehension model from a secular branch of research can be supportive of pastoral counselling is the objective of this thesis. Counselling dialogues with different persons who show a wide range of coping form the basis of this research. The challenge of this paper was to observe and sense humans in their death experiences from a broader point of view in order to identify as much as possible kinds of impulses crucial to their coping behaviour. Analysing the behaviour of dying humans led to new perspectives on spiritual guidance. Tantamountly, this has its consequences for spiritual dealing with dying humans. The comprehension of the biblical Christian idea of man and a detailed knowledge of coping research can, by all means, be interactive and thus show positive results as both respond to a person's individuality and support them in their own ways of approach to life and death. Finally, this leads to an intensive dialogue between patient and pastor who can have the courage and the confidence in letting the person find his own way of coping. The different kinds of approach of the coping model research offer far-reaching impulses to various pastoral questions going even beyond terminal care. / Philosophy, Practical and Systematic Theology / D.Th. (Practical Theology) Abwehr Allgemeines Adaptionssyndrom Angst Auferstehung BeFo Begleiten Bewältigungsformen Distress Eustress Heilsdimension Kognitive Bewertung Kommunikation Krebskranke Elisabeth Kübler-Ross Richard S. Lazarus Menschenbild Schwerkranke Seelsorge Sterbebegleitung Sterben Sterbephasen Stress Tod Transaktionales Stresskonzept Wahrnehmung Defence/Repulsion General Adaption Syndrome Fear Resurrection Counselling Coping Models Coping Positive Stress Healing Dimension Cognitive Assessment Communication Cancer Patients Idea of Man Terminal Ill Terminal Care Dying Phases of Dying Death Transactional Stress Concept Perception 259.4175 Lazarus, Richard S. Kübler-Ross, Elisabeth Church work with the terminally ill Terminally ill -- Pastoral counseling of Terminally ill -- Mental health Death -- Psychological aspects

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