Although a modest body of literature has emerged to investigate the experiences of youth with Autism Spectrum Disorder (ASD), there is a need to better understand their experiences to guide developmentally appropriate interventions and supports. This exploratory mixed-methods project included two studies aimed at gathering information about the self-perceptions and lived experiences of adolescents with ASD. In study 1, 27 adolescents (ages 13-18) completed measures to examine their self-concept and self-perceived competence, self-awareness of ASD characteristics and behaviours, and the types of behavioural attributions and stigmatizing beliefs they ascribe to their problematic behaviours. Two comparison groups (adolescents with Attention Deficit Hyperactivity Disorder and typically developing adolescents) were used for self-concept and behavioural attribution comparisons. Study 2 comprised a smaller sub-set of 13 participants who participated in interviews designed to capture how ASD is perceived and experienced by those living with this disorder. Study 1 results suggested that adolescents with ASD have some awareness of the social, behavioural and adaptive challenges associated with their diagnosis and, as a group, hold some self-perceptions of competence and behavioural attributions that are different from those of adolescents without ASD. In Study 2, interviews were analyzed thematically to capture how adolescents talk about their diagnosis and psychosocial experiences, and how this may impact their self-concept and self-image. Four major categories emerged: (1) self-awareness and understanding of ASD; (2) psychosocial stress; (3) social-ecological factors; and (4) sources of support. Together, these results provide insights about how they perceive themselves and their diagnosis and some of the individual, family, and school factors related to their self-perceptions and self-awareness. Results from both studies converge to provide support for a systems approach to understanding the interactions between adolescents, families, peers, school, community, and greater society when undertaking individual assessments of needs and treatment planning for ASD. Findings from the studies are discussed with respect to the positive and negative effects of awareness and knowledge about one’s diagnosis on self-perceptions and psychological adaptation. This research has important implications for clinical and educational interventions that address the unique needs and strengths of adolescents with ASD to promote positive developmental outcomes.

No description available.

Diss. (sammanfattning) Göteborg : Göteborgs universitet, 2007. / Härtill 4 uppsatser.

Diss. (sammanfattning) Stockholm : Karolinska institutet, 2006. / Härtill 4 uppsatser.

Made available in DSpace on 2016-03-15T19:40:52Z (GMT). No. of bitstreams: 1 Raphaela Schiassi Hernandes.pdf: 1356029 bytes, checksum: f738d912200dec3c76c1aa2eabeabce4 (MD5) Previous issue date: 2010-08-03 / The current work, with focus on a study case of a bearer of Asperger Syndrome, aimed to verify the possibility to gather information from history and development of a patient with Asperger Syndrome, through the technique of analysis of activities from Dynamic Occupational Therapy Method associative trails. For that, it was fixed as specific goals: a) to verify whether it is possible to happen associations and some historical narrative of the patient s development, through the activities done by himself; b) to analyse whether the associative trails can be a tool for qualitative research on Occupational Therapy; c) to verify the possibility of applying the technique - associative trails as an intervention tool in medical clinic, with Asperger Syndrome patients. By using a technique of analysis of associative trails from Dynamic Occupational Therapy Method four meeting were held with the patient lasting one hour and a half each meeting. Activities were photographed to review them at the last meeting and guide the analysis of them as well. It was possible to use this tool to research the situation of the patient and collect data about: 1) situational diagnosis, 2) levels of interaction, 3) performance of activities and 4) establishment of procedure to assist in occupational therapy. The results showed that besides making associations for the analysis of activities, the patient also completed the narrative begun by the research. The associative trail tool allowed having a situational diagnosis of the patient, demonstrating how he was, facing the therapist and his own accomplished activities. It was also possible to evaluate that in this specific case the associative trail technique could be used to assist him. To be truly approved this work it must be applied this tool in more subject, which is really intended by the researcher in a broader research. / A presente pesquisa, com foco no estudo de caso de um sujeito com Síndrome de Asperger, teve por objetivo geral verificar a possibilidade de coletar informações da história e desenvolvimento de um paciente com Síndrome de Asperger, através da técnica de análise de atividade do Método Terapia Ocupacional Dinâmica trilhas associativas. Para tanto, estabeleceu-se como objetivos específicos: a) verificar se é possível acontecer associações e alguma narrativa histórica do desenvolvimento do paciente, por meio das atividades realizadas por esse; b) analisar se as trilhas associativas podem ser um instrumento para pesquisa qualitativa em terapia ocupacional; c) verificar a possibilidade de aplicação da técnica - trilhas associativas como instrumento de intervenção na clínica, com pacientes com Síndrome de Asperger. Utilizando a técnica de análise de atividades trilhas associativas do Método Terapia Ocupacional Dinâmica. foram realizados quatro encontros com o paciente, com duração de uma hora e meia cada encontro. As atividades foram fotografas para a possibilidade de revê-las no último encontro, bem como para guiar a análise dos mesmos. Foi possível usar esse instrumento para pesquisar a situação do paciente levantando-se dados sobre: 1) diagnóstico situacional, 2) níveis de interação, 3) realização de atividades e 4) estabelecimento de procedimentos para a assistência em terapia ocupacional. Os resultados apontaram que o paciente além de fazer associações durante a análise de atividades, completou a narrativa iniciada pela pesquisadora. O instrumento trilhas associativas permitiu realizar um diagnóstico situacional do paciente, demonstrando como se encontrava diante da pesquisadora e das suas atividades realizadas. Foi possível avaliar também que neste caso a técnica trilhas associativas pode ser utilizada para assistência. Para que este estudo possa ser definitivamente aprovado é necessário a aplicação do instrumento em mais sujeitos, o que é pretendido pela pesquisadora em uma pesquisa mais abrangente.

Autismo é um transtorno do neurodesenvolvimento caracterizado por uma díade de sintomas que inclui anormalidades na comunicação, interação social e padrões restritos de comportamentos e interesses, numa idade precoce. Na ausência de um marcador biológico para o transtorno do espectro autista, são exploradas definições cognitivo-comportamentais que expliquem esse quadro. Um modelo cognitivo recente sugere a teoria da empatia-sistematização que explica as dificuldades sociais e de comunicação no autismo em virtude de um atraso e deficit na empatia e explica as aptidões em virtude de uma habilidade intacta ou superior em sistematização. O teste de física intuitiva é um instrumento utilizado para avaliar sistematização. O objetivo deste trabalho é analisar evidências de validade do teste em crianças brasileiras e verificar o desempenho de autistas de alto funcionamento neste teste e na bateria de provas de raciocínio. A análise da consistência interna do teste de física intuitiva revelou um coeficiente considerado insatisfatório. Entre os 330 participantes de escolas, observou-se diferença das pontuações estatisticamente significativa entre gêneros, com desempenho superior em meninos, assim como um incremento na pontuação conforme idade, série escolar e tipo de escola. Os participantes da escola particular apresentaram melhor desempenho. Já entre o grupo clínico (composto por 28 participantes com diagnóstico de autismo de alto funcionamento) e o grupo controle (composto por 28 estudantes de escola particular), observou-se melhor desempenho deste último no teste de física intuitiva, assim como na prova de raciocínio mecânico da Bateria de Provas de Raciocínio. As propriedades psicométricas do teste indicam baixo índice de precisão. O desempenho entre os participantes de escolas modificou-se de acordo com o desenvolvimento, resultado que pode refletir não apenas o desenvolvimento cognitivo da criança, mas também sua experiência diária e aprendizado escolar. Por outro lado, os pacientes com autismo de alto funcionamento não obtiveram melhor desempenho no teste, em relação ao grupo controle / Autism is a neurodevelopmental disorder characterized by symptoms that includes deficits in social interaction, communication and narrow interests and repetitive stereotyped behavior, in an early age. In the absence of a biological marker of the autism spectrum disorders cognitive-behavioral definitions are necessary for these conditions. A recent cognitive model suggests the empathizing-systemizing theory that explains the social and communication difficulties in autism spectrum disorders by reference to delays and deficits in empathy, whilst explaining the areas of strength by reference to intact or even superior skill in systemizing. The intuitive physics test is an instrument developed to assess systemizing. The aim of this study is to analyze the evidences of validity of this test in Brazilian children and to measure the performance of high functioning autists in this test and the Battery of Reasoning Tests. The analysis of the internal consistency of the intuitive physics test disclosed an unsatisfactory coefficient. Among the 330 schoolchildren there was observed statistically significant difference between the scores of the two genders, with superior performance in boys, as well as an increment in scores in accordance with age, grade in school and type of school. The best performance occurred in the children of private school. Between the clinical group (composed of 28 high functioning autism individuals) and the control group (composed of 28 from private schoolchildren), the latter showed the best performance in the intuitive physics test as well as in the mechanical reasoning test. The psychometric properties of the test showed a low consistency index. The performance among school participants changed according to the development, which may reflect not only cognitive development but also their everyday experience and school education. Otherwise, the high functioning autists didn´t have better performance in the intuitive physics test when compared with the control group

A temporalidade é considerada, na perspectiva teórica deste estudo, como uma condição essencial do indivíduo no mundo, possibilitando a constituição de sentido do percebido e do vivido e evidenciando, ainda, a circunstância da qual partem todas as possíveis concepções de tempo. Além disso, o homem também é considerado em sua intencionalidade, na qual está dirigido para algo, ou seja, só pode haver mundo percebido e definido para o sujeito que pode percebê-lo, estando voltado para ele. A síndrome de Asperger (SA), um transtorno invasivo de desenvolvimento pertencente ao espectro autístico, caracteriza-se por seus portadores apresentarem um modo de interação extremamente peculiar, no qual é considerada a presença de prejuízos relacionados à simbolização, à comunicação e à socialização. Em uma vertente teórica psicossocial, esses aspectos têm sido compreendidos a partir da possibilidade de haver uma inabilidade inata na criança autista que compromete a atitude conativo-afetiva (relacionada à intencionalidade) fundamental no processo de desenvolvimento. Questões a respeito da rigidez na experiência da duração de períodos de tempo, das dificuldades para aceitação e compreensão da possibilidade de mudanças de fatos previstos e da aparente restrição de perspectiva temporal, independentemente do nível intelectual, têm sido evidenciadas na prática clínica com esta população. Dessa forma, o presente trabalho objetivou caracterizar a noção de tempo e a temporalidade em portadores da síndrome de Asperger. Sua constituição ocorreu em duas fases complementares e fundamentais. Na primeira, a partir de uma amostra de trinta indivíduos em cada grupo (grupo síndrome de Asperger e grupo de comparação) verificaram-se aspectos de noção de duração tempo através de instrumentos quantitativos e qualitativos. Na segunda fase a partir de uma amostra de quinze indivíduos em cada grupo (grupo síndrome de Asperger e grupo de comparação) investigaram-se, através de entrevista qualitativa, temas relacionados à temporalidade. Na descrição dos resultados pôde-se constatar uma temporalidade restrita evidenciada pela presença de prejuízos relacionados à continuidade no contato com o ambiente, à limitada perspectiva no sentido do devir e noção de tempo a partir de elementos espaciais, em detrimento dos aspectos subjetivos, restringindo o compartilhar do tempo comum e a formação de projetos de vida / Based on a theoretic-phenomenological perspective, temporality is defined as an essential condition of a person in view of the world. This condition is determinant to build what is perceived and experienced as well as makes evident the circumstances from which all possible conceptions of time emerge. In addition, the subject is also considered accordingly to his intentionality by which he is directed towards something. In other words, a defined and perceived world can only exist for a subject who, being directed towards it, can conceive that world through his senses and consciousness. The Asperger syndrome (AS), a pervasive developmental disorder belonging to the autistic spectrum, is characterized in individuals showing a very peculiar pattern of interaction, particularly displaying deficits of symbolization, communication and socialization. Under a psychosocial point of view, these aspects have been understood as an innate lack of affective-conative attitude impairing the development of autistic children. In clinical practice dealing with these children, professionals have been asking questions on their inflexibility in time span experience, on the difficulties in accepting and understanding changes and on the apparent restriction of the perspective in temporality independently of their intellectual levels. Temporality in Asperger syndrome was herein investigated aiming at its characterization. The study was constituted by two complementary and fundamental phases. In the first phase (N = 30 for the AS group; N = 30 for the comparison group) aspects of time notion were evaluated through quantitative and qualitative instruments. In the second phase (N = 15 for the AS group; N = 15 for the comparison group) matters related to temporality were investigated through a qualitative interview. The results have shown a restricted temporality evidenced by impairments related to the continuity of contact with the environment, by a limited perspective in the sense of becoming, and by a notion of time based on spatial elements, all in detriment of subjective aspects, thus restricting time sharing with people and elaboration of projects of life

Abstract The primary aim of the current study was to examine social anxiety symptoms in high-functioning children and adolescents, ages eight to 17 years old with autism (HFA) or Asperger syndrome (AS). The second aim was to study emotion recognition skills in children and adolescents with HFA/AS. In addition, two internationally used social anxiety questionnaires (The Social Phobia and Anxiety Inventory for Children and; The Social Anxiety Scale for Children -revised) were translated into Finnish, and psychometric analyses were performed in order assess the research and clinical utility of these measures as novel tools for the study of child social anxiety in Finland. Results suggest that adolescents, in particular, with HFA/AS experience a greater number of social anxiety symptoms and have increased rates of clinically relevant social anxiety disorder (SAD) than do their control counterparts. Parents reported higher levels of anxiety symptoms in their children with HFA/AS regardless of the child’s age; however, individuals with HFA/AS self-reported anxiety symptoms increased later in their development (i.e., adolescence). In addition, overall facial emotion recognition increased with age in the HFA/AS group. Despite this, the HFA/AS group did not reach the higher ability level attained by the typically developing adolescents regardless of age. Specifically, when the facial emotion expressed a combination of both surprise and fear, participants with HFA/AS labelled the facial expression as “fear” statistically significantly more often than did controls. Moreover, control participants interpreted faces which blended sadness and neutral emotions as neutral more often than HFA/AS participants. Results suggest that social anxiety is clinically important to assess in children and adolescents with HFA/AS. Clinical interventions which enhance emotion recognition skills and reduce social anxiety symptoms in individuals with HFA/AS may be warranted. / Tiivistelmä Tutkimuksen päätarkoituksena oli selvittää sosiaalista ahdistuneisuutta 8–17-vuotiailla hyvätasoisilla lapsilla ja nuorilla, joilla on autismi (HFA) tai Aspergerin oireyhtymä (AS). Tutkimuksen toinen tarkoitus oli selvittää, miten HFA- ja AS-lapset ja nuoret kykenevät tunnistamaan tunteita kasvonilmeistä. Tutkimus arvioi myös kahden kansainvälisesti tunnetun, sosiaalista ahdistuneisuutta mittaavan kyselylomakkeen (The Social Phobia and Anxiety Inventory for Children ja The Social Anxiety Scale for Children -revised) toimivuutta suomalaisessa väestössä. Tavoitteena oli antaa uusia työvälineitä suomalaiselle lastenpsykiatrialle tutkimus- ja kliiniseen työhön. Tutkimustulokset osoittivat HFA- ja AS-nuorten kokevan muita nuoria useammin sosiaalista ahdistuneisuutta. Vanhemmat havaitsevat HFA- ja AS-lastensa sosiaalisen ahdistuneisuuden oireet lapsen iästä riippumatta, kun lapset itse kertoivat oireistaan vasta nuoruusiässä. Tutkimus osoitti myös, että HFA:ta tai AS:ää sairastavien kyky tunnistaa tunteita paranee iän myötä. Se ei kuitenkaan saavuta tavalliseen tapaan kehittyvien lasten taitotasoa nuoruusikään mennessä. HFA- ja AS-lapset ja nuoret tulkitsevat ikätovereitaan useammin kasvojen ilmeen peloksi silloin, kun kasvojenilme on sekoitus pelko-yllättyneisyyttä. Tavalliseen tapaan kehittyneet lapset ja nuoret tulkitsevat kasvojenilmeen useammin neutraaliksi kuin HFA tai AS diagnoosin saaneet, jos kasvojenilme on sekoitus surullinen-neutraalia. Tutkimustulosten perusteella tulee HFA:ta tai AS:ää sairastavia lapsia ja nuoria hoidettaessa ottaa huomioon sosiaalinen ahdistuneisuus. Heille tulisi nykyistä useammin tarjota tilaisuus myös kuntouttaa kykyä tunnistaa toisten ihmisten tunteita.

Abstract The main objective of the present follow-up study was to investigate auditory processing by using auditory event related potentials (ERPs), and language development to determine whether a correlation exists between auditory ERPs and language development. Auditory processing was investigated in very low birth weight (VLBW) preterm children and matched controls at mean ages of 4 and 6 years to determine whether there are differences in ERPs between VLBW preterm children and controls. Language development was measured at the mean ages of 2, 4 and 6 years to investigate the developmental course of language learning and to determine whether a relationship exists between ERPs, especially mismatch negativity (MMN), and language development. Auditory ERPs were also measured in children with AS (mean age 9;1 years) and matched controls to assess whether differences can be found between these two groups of children. Language development in children with AS was not investigated for this study. VLBW preterm children exhibited difficulties in the auditory processing at the level of obligatory ERPs, MMN, late MMN (lMMN) and behavioural tests. Both language comprehension and production were deficient in the preterm group compared to their controls. Lexical development was the most prominent phenomenon differentiating preterm children from their controls. MMN and lMMN amplitudes were attenuated most in children with naming difficulty at the ages of 4 and 6 years. Weak or totally missing MMN at the age of 4 years was mainly found in children with naming difficulties. Children with AS also displayed abnormalities in auditory processing, as indexed by delayed MMN latency. MMN was most delayed in the right hemisphere and specifically for tones. In conclusion: VLBW preterm children and children with AS exhibited difficulties in auditory processing. MMN correlated well with language development in preterm children. Therefore, auditory ERPs, especially MMN, should be used in combination with language measures to identify the children at a risk for deficient auditory processing and language delays.

Background: Social cognitive deficits are considered to be central to the interpersonal problems experienced by individuals with a diagnosis of Asperger syndrome, but existing research evidence regarding mentalising ability and emotion recognition ability is difficult to interpret and inconclusive. Higher levels of mental health problems are experienced in Asperger Syndrome than in the general population, including depression, general anxiety and anxiety-related disorders. Clinical accounts have described symptoms of psychosis in individuals with autism spectrum disorders, including Asperger syndrome, and a number of research studies have reported elevated levels of delusional beliefs in this population. Investigations of social cognition in psychosis have highlighted a number of impairments in abilities such as mentalising and emotion recognition, as well as data-gathering and attribution biases that may be related to delusional beliefs. Similarly, a number of factors, including theory of mind difficulties, self-consciousness and anxiety, have been associated with delusional beliefs in individuals with Asperger syndrome, but there is a lack of agreement in the existing research. A preliminary model of delusional beliefs in Asperger syndrome has previously been proposed, which needs to be tested further and potentially refined. The current study aimed to further investigate social cognitive mechanisms in individuals with Asperger syndrome and to explore potential links with the development of paranoia. Method: Participants with a diagnosis of Asperger syndrome were recruited through a number of voluntary organisations and completed screening measures, the Autism Spectrum Quotient and the Wechsler Abbreviated Scale of Intelligence, to ensure their suitability for the study. Participants in the control group were recruited through the university and local community resources and were matched group-wise with the Asperger syndrome group for age, sex and IQ scores. The study compared the Asperger syndrome group (N=30) with the control group (N= 30) with regard to their performance on four experimental tasks and their responses on a number of self-report questionnaires that were delivered as an online survey. The experimental tasks included two theory of mind measures, one designed to assess mental state decoding ability (The Reading the Mind in the Eyes Test) and one designed to assess mental state reasoning ability (the Hinting Task). The recognition of emotions was evaluated through the Facial Expression Recognition Task. The Beads Task was administered to assess data-gathering style and specifically to test for Jumping to Conclusions biases. The self-report questionnaires were employed to measure levels of depression, general anxiety, social anxiety, self-consciousness and paranoid thoughts. Results: The Asperger syndrome group performed less well than the control group on tasks measuring mental state decoding ability, mental state reasoning ability and the recognition of emotion in facial expressions. Additionally, those with Asperger syndrome tended to make decisions on the basis of less evidence and half of the group demonstrated a Jumping to Conclusions bias. Higher levels of depression, general anxiety, social anxiety and paranoid thoughts were reported in the AS group and levels of depression and general anxiety were found to be associated with levels of paranoid thoughts. Discussion: The results are considered in relation to previous research and revisions are proposed for the existing model of delusional beliefs in Asperger syndrome. A critical analysis of the current study is presented, implications for clinical practice are discussed and suggestions are made for future research.