Submitted by Fabiana Gonçalves Pinto (benf@ndc.uff.br) on 2016-05-04T17:45:29Z No. of bitstreams: 1 Cristineide dos Anjos.pdf: 2616100 bytes, checksum: e94501195ff76b65226f80d3a2453fdc (MD5) / Made available in DSpace on 2016-05-04T17:45:29Z (GMT). No. of bitstreams: 1 Cristineide dos Anjos.pdf: 2616100 bytes, checksum: e94501195ff76b65226f80d3a2453fdc (MD5) Previous issue date: 2015 / Mestrado Acadêmico em Ciências do Cuidado em Saúde / O estudo teve como objetivo geral analisar os limites e possibilidades da presença do familiar acompanhante no cuidado à criança com câncer no centro de terapia intensivo pediátrico oncológico e como objetivos específicos: descrever o cuidado à criança no centro de terapia intensivo pediátrico oncológico na visão da equipe de enfermagem e do familiar acompanhante; identificar a visão da equipe de enfermagem sobre a presença do familiar acompanhante no centro de terapia intensiva pediátrico oncológico e conhecer como o familiar acompanhante vê sua presença no centro de terapia intensivo pediátrico oncológico. Trata-se de pesquisa de natureza qualitativa, do tipo estudo de caso, realizado no centro de terapia intensiva pediátrico oncológico de um hospital de referência no tratamento de câncer localizado na Cidade do Rio de Janeiro. A produção de dados envolveu as técnicas de observação simples, com registros em diário de campo, e entrevista semiestruturada com 25 membros da equipe de enfermagem e 10 familiares acompanhantes de crianças com câncer internadas no referido centro de terapia intensiva. Após organização e identificação dos dados, estes foram submetidos à análise temática de conteúdo segundo Bardin, emergindo-se as seguintes categorias: O familiar da criança com câncer até a entrada no centro de terapia intensivo pediátrico oncológico e as interações do familiar acompanhante e membros da equipe de enfermagem no cuidado à criança com câncer no Centro de Terapia Intensiva Oncológico. A partir dos depoimentos dos familiares acompanhantes e da equipe de enfermagem constatou-se que no cuidado a criança hospitalizada no CTIP a interação entre ambos favorece sua adaptação ao ambiente, que envolve inúmeros procedimentos e rotinas, demandando suporte emocional e conforto viabilizado pela presença do familiar e conhecimento técnico e científico da equipe de enfermagem. Assim, conclui-se que o centro de terapia intensivo pediátrico oncológico representa um espaço de interação do familiar acompanhante com a equipe de enfermagem no cuidado a criança com câncer, fundamentado na escuta atenta, viabilizada pelo diálogo que possibilita a troca de conhecimentos do familiar da criança com sua experiência, sentimentos e expectativas. Tal processo tem início com o adoecimento e conta com a equipe de enfermagem que tem como meta o cuidado integral à mesma, incluindo suporte e orientações ao familiar da criança, elemento fundamental no seu processo de hospitalização e tratamento. / The study aimed to analyze the limits and possibilities of the presence of an accompanying family member in the care of children with cancer in the pediatric oncologic intensive care unit and as specific objectives: to describe the care of children in the pediatric oncologic intensive care unit in the nursing team and companion family member´s point of view; identify the nursing team´s point of view about the presence of an accompanying family member in the pediatric oncologic intensive care unit and to know how the accompanying family member sees his presence in the pediatric oncologic intensive care unit. It´s a qualitative research, a case study, carried out at the pediatric oncologic intensive care unit of a reference hospital in the treatment of cancer located in the city of Rio de Janeiro. The data production involved the simple observation techniques, with records in field diary, and semi-structured interview with 25 members of the nursing team and 10 accompanying family members of hospitalized children with cancer in that intensive therapy unit. After data identification and organization, these were submitted to thematic content analysis according to Bardin, emerging the following categories: the family of the child with cancer to the entrance in the pediatric oncologic intensive care unit and the family member´s interactions and nursing team members in the care for children with cancer in the Oncologic Intensive Care Unit. From the testimonies of the accompanying family members and nursing team we found that in the care of children hospitalized in the CTIP interaction between them favors its adaptation to the environment, involving numerous procedures and routines, requiring emotional support and comfort made possible by the familiar member presence and scientific and technical knowledge of the nursing team. Thus, it is concluded that the pediatric oncologic intensive care unit is an accompanying family member interaction space with the nursing team in care of children with cancer, based on attentive listening, made possible by dialogue that enables the exchange of the knowledge of the family member with his experience, feelings and expectations. This process begins with the illness and has the nursing team that aims to the comprehensive care to it, including support and guidance to the child's family, a key element in the process of hospitalization and treatment.

Submitted by Fabiana Gonçalves Pinto (benf@ndc.uff.br) on 2016-05-17T19:36:39Z No. of bitstreams: 1 Giselle Gomes Borges.pdf: 2928602 bytes, checksum: 0f6004796d06237d4fade7e9f6aaca8d (MD5) / Made available in DSpace on 2016-05-17T19:36:40Z (GMT). No. of bitstreams: 1 Giselle Gomes Borges.pdf: 2928602 bytes, checksum: 0f6004796d06237d4fade7e9f6aaca8d (MD5) Previous issue date: 2015 / Mestrado Profissional em Enfermagem Assistencial / O câncer é um evidente problema de saúde pública mundial. A quimioterapia trouxe uma maior taxa de cura para muitos tumores através da utilização de agentes químicos. Durante o manuseio dos quimioterápicos antineoplásicos (QA) é recomendado que o profissional utilize equipamentos de proteção individual (EPI) já que estes agentes oferecem efeitos indesejados e podem vir a constituir risco ocupacional. Este estudo tem como objeto o risco químico a que estão expostos os enfermeiros que desenvolvem suas atividades laborais em Centrais de Quimioterapia (CQT). Objetivo geral: implantar um manual de boas práticas com a finalidade de minimizar a exposição ao risco químico na CQT. Objetivos específicos: analisar os Conhecimentos, Atitudes e Práticas (CAP) dos enfermeiros a respeito do risco químico na CQT e elaborar um manual de boas práticas para os enfermeiros na CQT sobre a exposição ao risco químico a partir dos resultados do inquérito CAP. Trata-se de uma pesquisa descritiva com abordagem quantitativa, do tipo inquérito CAP. O estudo teve como amostra 26 enfermeiros de duas CQT. Utilizado para a coleta de dados um questionário autoadministrativo sem identificação, misto, contendo perguntas em que se utiliza uma escala de resposta paramétrica tipo Likert. Antecedendo a coleta dos dados o trabalho foi submetido ao Comitê de Ética em Pesquisa (CEP) com aprovação nº 12361613.4.00005274 em 12/09/2014. Resultados: Constatou-se que o conhecimento constituído a respeito do risco químico foi adequado nas duas CQT. Contudo, as atitudes e práticas diante do risco químico não foram coerentes. Dos enfermeiros, 96,2% consideram-se vulneráveis ao risco químico; o uso de EPI é considerado por 76,9% como um cuidado para que ocorra o manuseio seguro dos QA; quanto aos cuidados dispensados pelo Instituto aos que manuseiam QA, 53,8% citam os exames periódicos. O manual foi elaborado a partir dos resultados do inquérito CAP e implantado no Instituto, cenário do estudo, através do sistema Intranet. Para complementar, o manual de boas práticas, foram confeccionados sinalizadores com o intuito de embasar os enfermeiros a minimizarem a exposição ao risco. Conclusão: os profissionais que trabalham em CQT conhecem e consideram-se expostos ao risco químico. São necessárias intervenções para ampliar a adesão às medidas preventivas como o uso de EPI e subsídios com infraestrutura estratégica para a segurança do trabalhador. / Cancer is an obvious problem of global public health. The chemotherapy brought greater cure rate for many tumors through the use of chemical agents. During handling of antineoplastic drugs (QA) is recommended that professionals use personal protective equipament (PPE) as these agents provide unwanted effects and are liable to occupational risk. This paper studied the chemical risk they are exposed to nurses who develop their work activities on Chemotherapy Centers (CQT). Overall objective: to implement a manual of good practices in order to minimize exposure to chemical risk in the CQT. Specific objectives: to analyze the Knowledge, Attitudes and Practices (KAP) of nurses about the chemical risk in the CQT and prepare a manual of good for nurses in CQT on exposure to chemical risk from the KAP survey results. It is a descriptive research with a quantitative approach, the KAP. The study had as sample 26 nurses from two CQT. Used to collect data one auto administrative questionnaire unmarked, mixed, containing questions which uses a parametric response Likert scale. Preceding data collection work was submitted to the Research Ethics Committee (CEP) with approval number 12361613.4.00005274 on 09/12/2014. Results: It was found that knowledge made about chemical risk was adequate in both CQT. Yet attitudes and practices before the chemical risk were not consistent. 96,2% of nurses consider themselves vulnerable to chemical risk; the use of PPE is considered by 76,9% as a caution to occur safe handling of QA; as the care provided by the Institute to handling QA 53,8% cite the periodic examinations. The manual has been prepared from the KAP survey results and implanted in the study setting Institute through the Intranet system. In addition to the manual of good practice were made flags in order to base nurses to minimize exposure to risk. Conclusion: professionals working in CQT know and consider themselves exposed to chemical risk. Interventions are needed to increase the adherence to preventive measures such as the use of PPE and subsidies to strategic infrastructure for worker safety.

No / This paper reports the findings of a study which was carried out to evaluate the educational preparation of cancer and palliative care nurses in England. The study was carried out in three stages and covered the following areas; documentary analysis of curriculae, assessment of practice, patients and professionals views of threshold and expert practice. The findings suggested that although there was widespread compliance with a national standard for cancer nursing, this was not the case for palliative care nursing. There was uncertainty about what should be assessed in practice and ambiguity about what was actually assessed. Partnership with children and their parents, clinical skills, multi-disciplinary working, and personal attributes were the main foci for expectations of threshold practice but an expert panel had difficulty in describing the attributes of higher level practice. The paper also describes how some of recommendations from the study are being taken forward in current policy and practice.

Bakgrund. Föräldrar till barn som har cancer upplever en livssituation som präglas av osäkerhet och oro och de ställs inför sociala och känslo­mässiga utmaningar. Jämfört med föräldrar till friska barn, upplever de också högre stress och drabbas i större utsträckning av posttraumatiska stres­symptom. Trots att information om barnets sjukdom är ett centralt behov för föräldrarna, upplever de otillfredsställelse med den information som ges. Syfte. Syftet med denna avhandling var att inom barnonkologisk vård beskriva vårdares och föräldrars upplevelser av information, studera deras inbördes interaktion samt beskriva upplevelser och effekter av en intervention för personcentrerad information till föräldrar. Metod. I delstudie I–III användes fokusgruppintervjuer (I, II), individ­uella intervjuer (II, III) och deltagande observationer (III). Deltagarna bestod av 20 vårdare (I), 14 föräldrar till barn med cancer (II) respektive 25 vårdare och 25 föräldrar (III). Data analyserades med kvalitativ innehållsanalys (I, II) och diskurspsykologi (III). I delstudie IV testades en intervention för per­son­cen­tre­rad information på åtta föräldrar med hjälp av en experimentell single-case-design. Data samlades in med kvalitativa intervjuer och internetenkäter. Upplevd stress, kroppsliga symptom på stress, ångest, nedstämdhet och tillfredsställelse med information var utfallsmått. Resultat. I delstudie I bestod resultatet av två teman: anpassa mängden information till föräldrarnas behov, som handlade om skillnader i hur mycket information som gavs till föräldrarna utifrån vårdarnas bedömning av föräldrarnas behov, och navigera i en vag struktur, som handlade om brister i ansvar, miljö, tajming och språk när informationen lämnades. I delstudie II konstruerades två teman. Känna sig bekräftad som en viktig person handlade om att föräldrarna kände sig trygga, kunde hålla hoppet uppe och fick stöd från andra föräldrar. Temat var mer framträdande under behandlingens tidiga skeden. Det andra temat var känna sig som en objuden gäst vilket handlade om att kännas övergiven vid viktiga milstolpar, att tvingas tjata sig till information och att belastas av att själv behöva informera andra inom sjukvården. I delstudie III använde vårdarna tolkningsrepertoarer som var barn-, föräldra- eller familjeorienterade, vilket avspeglade deras primära fokus i interaktionen. Föräldrarna använde tolkningsrepertoarer som talesperson, observatör eller familjemedlem. Hur dessa kombinerades inbördes påverkade interaktionen. I delstudie IV erfor föräldrarna stor tillfredsställelse med den per­son­cen­tre­rade informationen och upplevde att de hade nytta av att på egen hand få diskutera barnets sjukdom och ställa frågor de annars inte skulle ställt. Interventionen visade ingen effekt på stress eller kroppsliga symptom på stress, ångest och nedstämdhet. Slutsatser. För att förbättra information till föräldrar som har barn med cancer är det en central uppgift att bedöma hur mycket och vilken information som ska ges vid varje tillfälle, att uppmärksamma att föräldrarna kan ha andra informationsbehov än barnet och att möten med föräldrarna ska ske i lugn och ro samt att organisera vården så att ansvaret är tydligt. I synnerhet bör det ske förbättringar kring det som föräldrarna upplever som viktiga milstolpar under barnets sjukdomstid. Interventionen för per­son­cen­tre­rad information uppskattades av föräldrar som har barn med cancer men effekten på föräldrarnas psykosociala välbefinnande behöver utforskas ytterligare. / Background. Parents of children with cancer experience a life situation characterised by uncertainty and worries, and they face ongoing social and emotional challenges. Compared to parents of healthy children, they also experience increased levels of perceived stress and they suffer to a greater extent from post-traumatic stress symptoms. Even though information about the child’s disease is crucial for parents, they still experience low satis­faction with the information given to them. Aim. The aim of this thesis was to, within the field of paediatric oncology care, describe health care professionals’ and parents’ experiences from infor­mation, study their joint interaction and describe experiences and effects from an intervention based on person-centred information to parents. Methods. For study I–III, focus group interviews (I, II), individual inter­views (II, III), and participant observations (III) were used. Participants were 20 health care professionals (I), 14 parents of children with cancer (II) and 25 health care professionals and 25 parents (III). Data were analysed by qualitative content analysis (I, II) and discursive psychology (III). In study IV, an intervention for person-centred information was tested on 8 parents using a single-case experimental design. Data were collected with qualitative interviews and web questionnaires. Outcome measures were perceived stress, physical symptoms from stress, anxiety, depression, and satisfaction with information. Results. In study I, the analysis resulted in two themes, Matching the amount of information to the parents’ needs, which dealt with differences in the amount of information provided to parents according to the health care professionals’ assess­ment of parental needs, and Navigating through a vague structure, which was about shortcomings in responsibilities, setting, timing, and language when parents were informed. In study II, two themes were constructed. Feeling acknowledged as a person of significance was about feeling safe and secure, having one’s hopes supported and getting relief from other families. This was accentuated early in the treatment trajectory. Feeling like an unwelcome guest was about feeling abandoned at important milestones, feeling forced to nag for information and being burdened by informing others. In study III, the health care professionals used interpretative repertoires that were child, parent, or family oriented, which mirrored the primary focus of the inter­action. Parents used repertoires as a spokesperson, an observer, or a family member. The combination of the repertoires steered the interaction. In study IV, parents reported a high satisfaction with the person-centred information intervention and perceived benefits from having their own time to discuss the child’s disease and pose questions that they otherwise would not have an opportunity to ask. No effects from the intervention were demon­strated on perceived stress, physical symptoms of stress, anxiety, and depressive mood. Conclusion. To improve information to parents of children with cancer, a central task is to assess the amount of and what information given to parents, pay attention to possible differences in infor­mation needs between parents and children, as well as to organise the care so that the respon­si­bilities are clear and that parents are met in a calm setting. Improvements at important milestones during the illness period should be pri­ori­tised. A person-centred information inter­ven­tion is perceived as bene­ficial by parents, however, its effect on perceived parental stress has further to be investigated.