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Por trás do espelho de Alice : narrativas visuais de inclusão de criancas com transtorno do espectro do autismoMonte, Barbara Terra do January 2015 (has links)
A participação e a interação da criança com Transtorno do Espectro do Autismo (TEA) no período da Educação Infantil possibilita seu desenvolvimento social, cognitivo e cultural quando é um tempo cheio de significados que contribuem para uma inclusão efetiva. Assim, esse tempo vem a promover aprendizados para preparar esses sujeitos para as próximas etapas de escolarização ao envolver ações realizadas em conjunto com outros sujeitos e através do meio. O participar e o interagir não estão focados somente na linguagem falada, mas na comunicação compreendida pelo próximo. Essa investigação tem um caráter qualitativo e a partir do estudo de caso de três sujeitos com autismo, tendo como cenário uma creche vinculada à Rede Municipal de Porto Alegre-RS, que atende crianças de 0 a 6 anos em turno integral. Objetiva analisar a apropriação das narrativas visuais mediadas pelo SCALA (Sistema de Comunicação Alternativa para o Letramento no Autismo) no processo de inclusão de crianças com TEA na primeira infância. O embasamento teórico centra-se na perspectiva Sócio-histórica e seus conceitos de mediação e linguagem. A partir das observações e análises dos dados gerados, percebe-se que 1) a mediação do sistema proposto fornece apoio à inclusão a partir da participação e da interação, permitidas pela comunicação de gestos, movimentos inquietantes, palavras intraduzíveis e olhares penetrantes; 2) a mediação do sistema permite antecipar um aprender a partir de leituras de pictogramas, baseado na Comunicação Alternativa, que nos detalhes possibilitou uma efetividade de um processo complexo do ler - nos detalhes e nas entrelinhas habilita-se um sujeito ativo e interativo - um agente; e 3) o sistema revela-se como uma ferramenta capaz de extrapolar as telas, em que associado à baixa tecnologia também possibilita um novo/outro modo de interagir e participar. A partir dessa experiência, entre uma narrativa e outra, é proporcionada uma reflexão sobre a importância do papel do professor para sustentar as várias formas de "ser" e "estar" na escola. Os movimentos das crianças com TEA não são indícios de limitações deles, mas da limitação da compreensão do outro através de uma comunicação corporal. Verifica-se também a medicalização como um limitante do corpo, que influencia o processo de ensino e aprendizado. Por fim, evidencia-se que a mediação do sistema permite que todos os sujeitos envolvidos sejam agentes ativos de um percurso repleto de leituras do outro, do eu e do livro, que entre a imaginação e os significados fizeram-se presentes. Esses sujeitos são autônomos e cúmplices de um fabular permeados pelos signos e instrumentos que foram compartilhados pelas ações e invenções - uma apropriação intensa e significativa que potencializa e efetiva uma inclusão constituída por inúmeras leituras. / Participation and interaction of children with Autism Spectrum Disorders (ASDs) in Kindergarten enables their social, cognitive and cultural development as it is a period full of meanings that contribute to effective inclusion. Such period promotes learning and preparation for future schooling stages through engaging actions carried out in cooperation with other subjects and the environment. Participation and interaction are not solely built from spoken language, but communication understood by each other. This research is a qualitative case study involving three subjects with autism enrolled in a full time nursery school. This school joins the Municipal Network of Education of Porto Alegre in Rio Grande do Sul (Brazil) serving children from 0 to 6. Investigation aims to analyze the appropriation of visual narratives mediated by SCALA (System of Alternative Communication for Literacy in Autism) in the inclusion of children with ASDs in early childhood. Theoretical foundation lies on a sociohistorical perspective and its concepts of mediation and language. From the observations and analysis of the data generated, it is derived that 1) the mediation of the proposed system provides support for inclusion through participation and interaction by means of communication of gestures, restless movements, unclear words and staring looks; 2) the mediation of system allows to anticipate a learning process emerging from pictogram reading (Alternative Communication), which provides evidences of effectiveness through the details of the complex reading process - in the details and between the lines, it triggers them to become active and interactive subjects - agents; and 3) the system acts as a tool extrapolating the screen; when in association with low technology, it also enables a new and alternative way to interact and participate. The experience in the field, from narrative to narrative, evokes a reflection on the importance of the teacher's role in providing support to varied forms of "being" in school. The movements of students with ASD are not evidence of their limitations, but evidence of the limitation to understanding through body communication. Medicalization has been perceived as body limiting factor with impacts on teaching and learning processes. Finally, it becomes evident that the system's mediation allows all those involved to be active agents of a trajectory full of readings of others, the self and the book, all present amidst imagination and meanings. Those subjects are autonomous and accomplices of a fable permeated by the signs and tools that have been shared through actions and inventions - an intense meaningful and, yet, effective appropriation that consists of several readings and leverages inclusion.
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The Attitudes of typically developing adolescents towards their siblings with autism spectrum disorderVan der Merwe, Christine January 2014 (has links)
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Abstract
Sibling relationships are amongst the most influential relationships in one’s life. Bringing autism spectrum disorder (ASD) into these interactional dynamics has a marked influence on these relationships for both the sibling with ASD and the typically developing siblings. The main aim of this study was to investigate how typically developing adolescents describe their present attitudes towards their sibling with ASD, compared to their attitudes when they were younger. Thirty typically developing adolescents who have siblings with ASD were selected to complete the survey instrument, namely the Modified Lifespan Sibling Relationship Scale (MLSRS). The survey instrument operated on the conceptualisation of attitudes as consisting of three components: affective, cognitive and behavioural. The results indicated that the majority of adolescents have very strong positive feelings towards their sibling (affective component), both at the time of the research and when they were younger. Their beliefs about their siblings and their relationship with them (cognitive component) have become more positive as they became older. Their actual interaction (behavioural component) was, however, found to be significantly lower than their feelings towards their siblings (both as adolescents and as younger children) and their beliefs about their relationships as adolescents. This study highlighted the need for children who develop typically to be taught how to interact effectively with their sibling with ASD and the need for siblings to be provided with age appropriate information about their sibling’s disorder. The results also indicate that although most of the children seemed to be coping well with the extra demands placed on them they would nevertheless still be able to benefit from support groups for siblings of children with ASD. / Dissertation (MA)--University of Pretoria, 2014. / gm2014 / Centre for Augmentative and Alternative Communication (CAAC) / unrestricted
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Using emotional intelligence to support learners with Autism Spectrum Disorder in the Foundation Phasedu Plessis, Laura January 2017 (has links)
The purpose of this study was to identify characteristics pertaining to emotional intelligence (EI) that parents and Foundation Phase teachers may use when supporting learners with autism spectrum disorder (ASD) in an inclusive classroom setting. Teachers are facing various degrees of challenges due to the demands of a range of diverse needs attributable to the influx of learners with disabilities in the school system. Given the increase in the number of children diagnosed with ASD, research indicates that it is likely that teachers will encounter learners with ASD in their classes. Teachers are generally not trained to identify and cope with such a disability, as many requirements of these learners are beyond the services of a general school system. A multiple case study was conducted where the perspectives of a teacher and two parents were gained, in order to understand experiences with children with ASD from the participants' point of view. The primary aim of this study was therefore to provide both parents and teachers with listed characteristics of EI that they could utilise while supporting learners with ASD in households or the educational sphere.
Findings illuminated the collective characteristics of learners with ASD, which include intense obsessions with a narrow range of subjects, repetitive routines, central coherence difficulties and problems with social-emotional functioning, communication and executive functioning. These indicators require specific responses from parents and teachers to effectively provide support to these learners. Qualities identified that relate to EI are patience, empathy, problem solving skills, working collaboratively with parents and being proactive. The main recommendation relates to specific training in EI skills, to prepare student teachers in supporting the growing number of learners with ASD in their classes. / Dissertation (MEd)--University of Pretoria, 2017. / Early Childhood Education / MEd / Unrestricted
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Effects of varied dosage of aided input on following directives that contain prepositions for children with Autism Spectrum Disorder (ASD)Hassim, Rafeeyah January 2019 (has links)
Background: Some children with ASD have comprehension difficulties that affect their
ability to follow directives that contain prepositions. Aided input has been known to facilitate
improved comprehension skills when spoken language is used with graphic symbols.
Aims: This study examined the effects that aided input presented at two levels (20% of aided
input and 60% of aided input) has on children with ASD’s following of directives that
contain prepositions.
Methods: An experimental, within-subjects crossover design was utilised where all
participants were exposed to each treatment condition at a different time period. Altogether
21 participants between 5.0 and 11.11 years of age were asked to follow 12 directives using
aided input at two conditions. Participants first completed a pre-test task to confirm their
noun knowledge, preposition knowledge and matching skills. Participants were described
based on the CARS classification and their PPVT-4 scores. The effects of the aided input
were measured and compared based on the accuracy of responses.
Results: Descriptive statistics were used to describe the data, and multivariate analysis was
used to analyse the data. Some children with ASD (n=9) who received a higher level of aided
input (60%) were able to respond more accurately than those who received a lower level of
aided input (20%). However, some children with ASD (n=4) responded more accurately to
the lower level of aided input (20%) than the higher level of aided input (60%). Some
children with ASD (n=5) responded in the same manner for both levels of aided input and
some children with ASD (n=3) did not respond at all despite the level of aided input. The
results showed no statistically significant difference between the higher (60%) and lower
(20%) levels of aided input.
Conclusion: It was concluded that the 60% aided input level yielded a higher accuracy of
responses than the 20% aided input level in some children with ASD. In addition, the results
suggest that augmenting spoken language was advantageous in some children with ASD.
However, further research is needed to better describe the effects of aided input, using
graphic symbols. Future research directions are suggested. / Dissertation (MA)--University of Pretoria, 2019. / Centre for Augmentative and Alternative Communication (CAAC) / MA / Unrestricted
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Reliability of the Functional Auditory Performance Indicators (FAPI) to monitor progress in five-year-old children with Autism Spectrum DisorderMuller, Carlien January 2016 (has links)
Background: Atypical processing of auditory information in children with autism spectrum disorder (ASD) can be observed at a neurological as well as at a behavioural level. The Functional Auditory Performance Indicators (FÁPI) is an observational monitoring tool for pre-school children with hearing loss, but has not yet been described in children with ASD. A reliable instrument to monitor progress of functional auditory performance in young children with ASD may contribute to evidence-based practice during intervention.
Method: The aim was to describe the overall performance of five-year-old children with ASD on the FÁPI; to determine the test-retest reliability and inter-rater reliability of the tool. The study was exploratory with a descriptive design incorporating repeated measures. Twelve participants with ASD were purposely selected. The mean age was 65 months and all were exposed to English as additional language. Ten of the 12 participants had very little speech as reported by their parents. Pre-recorded sound and speech stimuli were used to elicit responses from participants in their familiar therapy rooms. For test-retest reliability three data collection sessions per participant were conducted over a two-week period. Video recordings were provided in randomised order and analysed by two independent raters. The raters were blind to the order of data sets.
Results and conclusion: With an increase in complexity of auditory stimuli a marked decrease in response was observed in the participants. Category seven, the highest level of auditory responses, demonstrating the child's ability to process linguistic information, showed the least responses The test-retest reliability was good, with a single difference in the category 'Awareness and meaning of sound'. Inter-rater reliability indicated a significant difference in two of the seven categories of the FÁPI, 'Awareness and meaning of sound' and 'Sound localisation' with p-values of 0,006 and 0,003. These categories may be the most subjective in the tool. Despite some subjectivity in two of the seven categories the FÁPI was reliable to plot functional auditory performance in the sample group. Since the instrument relies on direct observation with very few demands to participate on a social level, it has potential for use in five-year-old children with ASD. Further research is required to determine the tool's performance using natural sound conditions to monitor the progress of children with ASD longitudinally, against themselves during intervention. / Dissertation (M Communication Pathology)--University of Pretoria, 2016. / Speech-Language Pathology and Audiology / MCommunication Pathology / Unrestricted
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Effortful Control, Attention and Executive Functioning in the Context of Autism Spectrum DisorderPage, Teneille 02 September 2019 (has links)
Autism Spectrum Disorder (ASD) involves a broad presentation of symptoms classified along continuum of severity, with core deficits in Social Affect and Restricted, Repetitive Behaviours required for formal diagnosis (American Psychiatric Association, 2013; Lauritsen, 2013). The development of particular cognitive, behavioural and interpersonal difficulties seen in ASD is of great interest. Temperament offers particular value given that it influences the development of social behaviours, emotionality and self-regulation (Shiner et al., 2012). The self-regulatory temperament factor, effortful control, is known to be diminished in ASD (Garon et al., 2009, 2016) and is theorised to be related to attention and executive functioning (Rothbart & Rueda, 2005). This link is of particular interest, given that attention and executive function deficits are prominent in ASD (Craig et al., 2016; Lai et al., 2017; Sanders, Johnson, Garavan, Gill, & Gallagher, 2008). To date, however, a thorough literature search failed to yield a study which has investigated whether effortful control,attention and executive functioning are concurrently associated with ASD symptomatology.Moreover, the relationship between effortful control, attention and executive functioning is not as unambiguous as previously theorised in typical development, with little investigation into these relationships in ASD. To elucidate the association effortful control, attention and executive functioning have with ASD symptomatology, the relationship between effortful control and these cognitive variable needs to be better established empirically. Therefore the current investigation’s aims were twofold. Study One investigated the relationship of effortful control with attention and executive functions in neurotypical and ASD samples. Study Two explored the association between effortful control, attention, executive functions and core ASD deficits (i.e. Social Affect and Restricted, Repetitive Behaviours). A sample of 38 ASD and 38 neurotypical boys (aggregate-matched on key demographic factors), aged 6 - 15, and their primary caregivers were recruited. Study One considered both groups (n=76) and featured both quasi-experimental and relational investigations. Study Two focused only on the ASD sample (n=38) and used a purely relational design. Neurocognitive measures were used to assess two attention domains (i.e. attention span and sustained attention), and three executive functions (i.e. working memory, inhibition and switching). Effortful control was measured using a parent-report questionnaire and ASD core deficits were examined using the Autism Diagnostic Observation Schedule, Second edition (ADOS-2; Lord, Luyster, Gotham, & Guthrie, 2012). Results of Study One revealed effortful control was a significant predictor of attention span, working memory and inhibition, with ASD participants performing significantly more poorly on these cognitive domains and rated significantly more poorly on effortful control. Study Two’s results indicated that Social Affect was significantly correlated with inhibition and the interaction effect between effortful control and working memory. Furthermore, only effortful control, attention span and their interaction effect were significantly associated with Restricted Repetitive Behaviours. Specifically, effortful control was found to moderate this relationship. At high levels of effortful control, increased attention span was associated with less Restricted, Repetitive Behaviours. These findings may aid efforts to establish a predictive model for ASD core deficits on the basis of temperament and cognitive difficulties. Keywords: Autism Spectrum Disorder (ASD), Effortful Control, Attention, Executive Functions, Social Affect, Restricted Repetitive Behaviours
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Special Education Experiences for Parents of Children with Autism Spectrum DisorderBarron, Will 05 1900 (has links)
Millions of students with disabilities in the United States have access to educational programming to assist and provide special education support services. In existence for mere decades, special education as it currently stands was founded on groundbreaking legislation and refining law in the form of the Individual with Disabilities Education Act (IDEA). The most recent revision of this law in 2004 significantly extended parents' rights to be decision-makers in the educational planning process for children with disabilities. A litany of research into parent experiences of the IEP and special education process reveals that parents consistently report feelings of being marginalized in the decision-making process. A systematic literature review conducted by the author revealed that parents and family members of children with ASD report broadly similar themes of dissatisfaction with the special education process and communicating with staff. The current research proposal seeks to investigate the interaction experiences with Licensed Specialist in School Psychology (LSSP) personnel of parents and family members of elementary-aged children with ASD. LSSPs, recognized as possessing expertise on autism spectrum disorder amongst special education evaluation personnel, often conduct evaluations for students with ASD.
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Experiences of parents of children with autism spectrum disorder attending special schools at uMgungundlovu DistrictMngadi, Lungile Clarice January 2018 (has links)
A dissertation submitted to the Faculty Of Education in partial fulfillment of the requirements for the Degree of Masters in Educational Psychology in the Department of Educational Psychology & Special Needs Education at the University Of Zululand, 2018 / The study sought to explore and examine experiences of parents with regard to the education of their autistic children in special schools. Previous studies in this area looked at the inclusion of autistic children and focused on educators’ attitudes or perceptions. Thus this study intended to get parents’ perspectives, their ideas and views about the education of their children with autism spectrum disorder in special schools. To find out if they are satisfied, and explore what seem to be the concerns and challenges, the study adopted a qualitative case study design. Data were generated from nine mothers who had children attending special schools. They were purposively sampled from three special schools for children with intellectual impairment. Semi-structured interviews were conducted with mothers regarding their views and concerns about the education of their autistic children. A thematic content analysis was used to extract common themes from the collected data. Major findings were that most parents were happy and satisfied with the education of their children, though some lacked understanding and thorough knowledge about autism and special education. Parents raised concerns about lack of therapists in special schools when their ASD children need the intervention of speech and language therapists and occupational therapists. It was also found that parents struggle to access preprimary education for their children. It is recommended that special schools create forums where parents have a platform to voice their opinions and concerns. In conclusion, the study was able to give insight into parents’ experiences, views and concerns with regard to the education of autistic children. Knowing parents’ concerns and opinions may help improve the provision of education for autistic children. With the recent release of the Draft on National Strategy for Autism (September, 2017), perhaps parents’ hope for improvement in provision of education for autistic children might be realized
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STUDENTS WITH AUTISM SPECTRUM DISORDER SUPPORT WHILE ATTENDING A FOUR-YEAR INSTITUTION OF HIGHER EDUCATIONCrawford, Laurie J. Koehler 01 January 2018 (has links)
The number of children being diagnosed with Autism Spectrum Disorder (ASD), an impairment that affects an individual’s social-communication abilities and behavior, is currently 1 in 68. An estimated 50,000 students who have ASD are reaching adulthood and exiting secondary education annually―a phenomenon known as the Autism Tsunami. There is a lack of services available to support this wave of young adults with ASD to be self-sustaining, contributing members of their communities. This is evidenced by the 37% of adults in their early 20s, who have ASD, and who have never worked or attended any postsecondary educational program. Due to the lack of appropriate accommodations in many of these programs, there is a low rate of completion for those who enroll. With an increase in positive educational outcomes in K-12 education, there are a burgeoning number of individuals holding the diagnosis of ASD able to enroll in postsecondary education at IHEs. For these students, the predicament of attending an IHE may pose unique challenges despite their ability to complete academic work. There is an ever-increasing need to support individuals with ASD while they attend IHEs, however there is a scant amount of emerging literature on this topic.
This exploratory case study was conducted to gain an in-depth understanding of the ways in which Nathan, a student with ASD, was supported while he attended North Coast University (NCU), with the intent to inform further research, and affect the practice of service providers who work with students with ASD who are attending IHEs. The results of this study yielded an in-depth understanding of how NCU Disability Service providers, David and Richard, and Nathan’s mother, Sandy, supported him as he attended NCU, and of his lived experience of support. The Interactional Model of Disability, a model that views disability as caused by both the individual’s impairment and external environmental influences, was used as the theoretical lens in this study.
The findings of this study are as follows. Although Nathan has incredible perseverance and academic ability, without support he would not have had the same level of success. The early proactive, nonacademic approach to supporting students with ASD used by NCU was instrumental in Nathan’s success and in helping him to become more independent. Coaching an intervention used as part of the NCU approach was highly effective for Nathan. David and Richard’s dedication to positive student outcomes played a role in Nathan’s success. Support from his mom was essential, but needed to be invisible. The ubiquitous nature of the issue of disclosure of disability emerged, as well as how Nathan experiences ASD.
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Barn med autismspektrumtillstånd, föräldrars erfarenheter och upplevelserTajani, Martina January 2024 (has links)
Introduktion: Autismspektrumtillstånd (AST) är en komplex neurologisk funktionsnedsättning som börjar tidigt i livet, under spädbarnsåldern eller i barndomen. De största utmaningarna för individer med AST ligger inom områden för social interaktion och kommunikation med andra människor, samt repetitivt beteendemönster. Syfte: Att utforska föräldrars erfarenheter och upplevelser av att vara förälder till ett barn med autismspektrumtillstånd (AST). Metod: En beskrivande allmän litteraturöversikt med kvalitativ ansats gjordes enligt Friberg (2017). Litteraturöversikten baserades på 10 vetenskapliga originalartiklar. Teoretisk referensram var Antonovskys teori, känsla av sammanhang, KASAM. Resultat: I resultatet presenteras tre kategorier: Brist på kunskap och förståelse, beskriver föräldrars erfarenheter av diagnosprocessen. Hälsa och autismens påverkan på familjen, beskriver föräldrars hälsa och upplevelser i det vardagliga livet. Välbefinnande, beskriver föräldrars sätt att kunna återhämta sig och få respit. Slutsats: Denna studie visade att föräldrar till barn med AST upplever stor stress och arbetsbelastning, både psykiskt och fysiskt, vilket beskrivs i studien som osynligt för samhället. I studien framkommer det att inom hälso- och sjukvården är det svårt att få en tidig diagnos, på grund av brist på kunskap och förståelse hos vårdpersonalen och när diagnosen väl var fastställd kunde det vara svårt för vissa föräldrar att hantera situationen. Föräldrar i studien upplevde utmaningar i olika miljöer, inklusive hemmet, offentliga platser, hälso- och sjukvården samt skolan. Studien visade på samhällets brist på förståelse för AST och dess stereotypa syn på barns beteende, vilket bidrar till att föräldrar känner sig dömda, missförstådda och isolerade. Trots detta har majoriteten av föräldrarna en stor motståndskraft (resiliens) och flera föräldrar i studien beskrev att ha ett barn med AST bidrog till att de har fått en ökad personlig utveckling, en mer jordnära livssyn på livet samt en glädje för barnets framsteg i livet. / Introduction: Autism Spectrum Disorder (ASD) is a complex neurological impairment that begins early in life, during infancy or childhood. The greatest challenges for individuals with ASD lie within the areas of social interaction and communication with other people, as well as repetitive behavior patterns. Aim: To explore parent’s experiences and perceptions of being a parent to a child with autism spectrum disorder (ASD). Method: A descriptive literature review with a qualitative approach was conducted according to Friberg (2017). The literature review was based on ten original scientific articles. Antonovsky’s theory, sense of coherence, SOC was used as the theoretical framework. Results: The results are presented in three categories: Lack of knowledge and understanding, which describes parent’s experiences of the diagnostic process. Health and the impact of autism on the family, which describes parent’s health and experiences in everyday life. Well-being, which describes parent’s ways of being able to recover and get respite. Conclusion: This study demonstrated that parent’s of children with ASD experience significant stress and workload, both mentally and physically, which is often invisible to society. The study reveals that within healthcare, it is often challenging to get an early diagnosis due to a lack of knowledge and understanding among healthcare professionals. Once the diagnosis is established, it can be difficult for some parent’s to handle the situation. The parent’s in this study experienced challenges in various environments, including the home, public places, health care, and school. The study highlights society’s lack of understanding of ASD and stereotypical views on children’s behavior which contribute to parent’s feeling judged, misunderstood, and isolated. Despite this, most parent’s demonstrate a resilience for adversity, an enhanced personal growth, a more realistic perspective on life, and a joy for their children’s achievements in life.
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