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FOUNDATIONAL WORK FOR A NATIONAL RESEARCH PROGRAM IN ORGAN DONOR CARED'Aragon, Frederick January 2016 (has links)
This thesis is divided in three chapters: (i) introduction to organ donation, (ii) rationale, implementation and design of a pilot observational study currently underway and (iii) justification for use of a waived consent model for observational research studies on organ donor care.
Organ donation is a complex event that remains a mystery to most health care providers. The first chapter reports knowledge gaps in clinical management of deceased organ donors across Canada and summarizes ongoing trials in organ donor care. The persistent deficit in transplantable organs along with the limited scientific evidence to guide the clinical management of the organ donor justify the need for a national research program in organ donor care.
There are logistical and methodological challenges unique to the design and conduct of research on deceased donors. To identify potential stakeholders involved in the process of organ donation and to provide an accurate description of usual management of deceased donor and assess its variability, we developed and initiated a prospective observational study called DONATE. The second chapter of this thesis described the pilot phase of this study. It contains the following sections: i) objectives of the study ii) the screening process, iii) data collection, iv) clinical outcomes, v) methods of measurement, vi) analysis plan and vii) strategies used to minimize the biases inherent to observational studies.
The normative goal of obtaining informed consent from participants may not be appropriate for an observational study in organ donor care. The third chapter summarizes the justification for use of a waived consent model for observational studies of organ donation medicine. In this chapter, I discuss regulatory, ethical and logistical issues relevant to use of a waived consent model in organ donation research. / Thesis / Master of Science (MSc) / Organ donation saves lives and it is the most effective therapy available to treat end stage organ failure of a number of organs. Unfortunately, there is a growing gap between the number of donors and the number of patients waiting for transplantation. This thesis summarizes the foundational work of a national research program in deceased donor management. It describes the study design of a 4 centre prospective observational study in deceased donor management with outcome assessment on corresponding organ-recipients. This thesis also contains a justification for waiving the procurement of consent to research on organ donor management. Finally, it will inform investigators of future national multicentre observational studies on design and implementation issues related to donor management, in order to improve care provided to donors and outcomes of recipients while reducing the gap between transplant needs and organ supply.
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Organ Donation Simulation Education for Undergraduate Baccalaureate Nursing StudentsMysliwiec, Matthew January 2017 (has links)
No description available.
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Feasibility of the Development and Implementation of an Organ Donor Registry in Mumbai, IndiaVania, Diana 04 1900 (has links)
<p><strong>Background:</strong> Organ donation in India is a complex issue due to the country’s large population, diverse religious beliefs and myths surrounding organ donation, varying literacy rates, nation-wide focus on disease control, and the commercialization of organs. India has only made marginal steps to address the significant obstacles in order to ensure adequate supplies of organs are available to meet the demand.</p> <p><strong>Purpose: </strong>The purpose of this study is to analyze the feasibility of implementing an organ donor registry in Mumbai, India. This is achieved by reviewing current organ donation policies and processes in Mumbai, exploring perceptions of key informants about Indian government health priorities, and identifying possible reasons why the Indian government has not made efforts to increase the deceased donor rate.</p> <p><strong>Methods:</strong> This qualitative policy analysis employs semi-structured interviews with physicians, transplant coordinators, and representatives of organ donation advocacy groups in Mumbai to explore key informants’ perceptions about the feasibility of developing and implementing an organ donor registry. The 3-I framework (ideas, interests, and institutions) is used to analyze the results and frame the discussion and their implications.</p> <p><strong>Results:</strong> Key informants cite various barriers to the implementation of an organ donor registry in Mumbai, including public misconceptions about organ donation, competing health priorities on the government agenda, and limited hospital infrastructure.</p> <p><strong>Conclusion: </strong>In the absence of a focusing event or a policy entrepreneur who is able to push the issue of organ donation onto the health policy agenda, both central and state governments may have little incentive to aggressively pursue the implementation of a donor registry in more than a superficial way. Moreover, even if the issue reached the government’s policy agenda, current barriers may be too overwhelming to overcome. This suggests that implementing an organ donor registry in Mumbai as a means of enhancing organ availability is not feasible in the current environment. Instead, efforts to enhance the transplant system should focus on alternate strategies, such as public education, until the policy environment becomes more amenable to change.</p> / Master of Science (MSc)
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A qualitative descriptive analysis of nurses' perceptions of hospice care for deceased children following organ donation in hospice cool roomsTatterton, Michael J., Summers, R., Brennan, C.Y. 03 December 2020 (has links)
Yes / Following organ donation, bodies of children are generally cared for in hospital mortuaries or by funeral directors, and their families are offered little routine bereavement support. A partnership between an organ donation nursing team and regional children's hospice trialled an initiative where families were offered bereavement support from the hospice, and their child's body was cared for in a 'cool room' after death. Hospice services are usually restricted to children with life-limiting conditions, and their families.
To explore the perceptions and experience of nursing staff who are involved in supporting families of children and young people who have been cared for in children's hospice cool rooms after death, following organ donation.
A qualitative exploratory study consisting of a focus group interview with registered nurses from the children's hospice and organ donation teams.
A purposeful sample of nurses was recruited. Data were collected in a digitally-recorded focus group interview during March 2018. The interview was transcribed and analysed using a qualitative content approach.
Six nurses participated in the focus group. Analysis revealed five themes that characterised the perceptions of nurses: (i) barriers to care, (ii) bereavement care for families, (iii) impact on families and staff, (iv) influencers and enablers of change, and (v) sustainability of new practices.
Nurses perceived the long-term, responsive and family-centred approach to bereavement support as a strength of the hospice model, reducing the experience of moral distress in organ donation nurses.
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Depictions of Donation: A Thematic Analysis of Organ Donation Storylines in Television Medical DramasBaumgardner, Emma Kathryn 14 June 2021 (has links)
With a global and national shortage in the number of registered organ donors, this study employed a qualitative thematic analysis of thirteen episodes from popular medical dramas that aired between 2016-2020. The aim of this study was to allow for a better understanding of how the media utilizes entertainment television to portray storylines related to organ donation. The analyzed shows included in this study were: Grey's Anatomy, The Good Doctor, New Amsterdam, Chicago Med, and The Resident. From the analysis, six major themes emerged: Urgency of Transplant, Ethical Decision-Making, Emotional Impacts of Organ Donation on Patient and Families, Familial Relationships Impacting Donation, Viewer Education via Vicarious Learning, and Excitement Surrounding Surgery. In addition to these themes, both favorable and unfavorable cues related to organ donation were present throughout the analysis. These findings have implications for audience members via social cognitive theory. This study illuminated the ongoing efforts made by the entertainment television industry to portray organ donation in a factual manner and to provide the viewing public with potential opportunities for organ donation education. / Master of Arts / With a global and national shortage in the number of registered organ donors, this study analyzed thirteen episodes from popular medical dramas that aired between 2016-2020 to determine what themes were present amongst the analyzed shows. The analyzed shows included in this study were: Grey's Anatomy, The Good Doctor, New Amsterdam, Chicago Med, and The Resident. The aim of this study was to allow for a better understanding of how the media utilized entertainment television to portray storylines related to organ donation. From the analysis, six major themes emerged: Urgency of Transplant, Ethical Decision-Making, Emotional Impacts of Organ Donation on Patient and Families, Familial Relationships Impacting Donation, Viewer Education via Vicarious Learning, and Excitement Surrounding Surgery. In addition to the emergence of these themes, the analysis revealed both favorable and unfavorable cues related to organ donation were present in these entertainment storylines. This study illuminated the ongoing efforts made by the entertainment television industry to portray organ donation in a factual manner and to provide the viewing public with opportunities for organ donation education.
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Determinants of Organ Donor Registration Rates Among Young AmericansFarooq, Syed Umar 01 January 2017 (has links)
In this paper I examine the factors that affect the likelihood an individual is a registered organ donor. Unlike many studies which focus on subpopulations in specific regions, I utilize national data to get a broader assessment of individuals from around the country across a number of racial and religious classifications. Using a probit model and controlling for a variety of parameters, I find that some racial and religious variables are negatively and significantly associated with organ donor registration rates, while education and being female are positively associated with organ donor registration rates. I conclude by discussing the implications of my results and the potential for future research.
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The Virtual Donation Challenge : How might we increase the understanding of each other's wishes on organ donation?Rydell, Erik January 2012 (has links)
Fifty percent of the Swedish population is not aware of their relatives’ wishes on organ donation. It happens that some family members use their veto when they are asked to confirm their dead family member’s wish on organ donation and thereby preventing a potential transplant. If more people would be aware of this issue and tell each other what their standpoint is, we could help the health care to identify more organ donors and thus help more people to a better life. The project lead to an educational and physical exercise based application for tablets aimed for sixteen years old pupils where they by walking around in the physical space, learn about the organs and get physical exercise at the same time. The app is meant for schools since the school has the responsible to educate the pupils about different types of physical exercise and lifestyle. Moreover, tablets are becoming increasingly common in the schools. I was influenced by an application called Zombies Run that focuses on creating a story by collecting virtual supplies while being running outside. Some statements from the research influenced me. A lady stated that she used to take her daughter out to walk the dog as much as possible because her daughter was at risk of becoming overweight. A Donor Coordinating Doctor stated a thoughtful sentence during a workshop “Would you be willing to receive an organ if you needed a transplant? Donate your organs after death so it is possible” The Virtual Donation Challenge is an application aimed at sixteen year old pupils for educational purposes. The school is responsible for giving the students education about lifestyles, different types of exercises and CPR education, I found it most appropriate to link the application to the Physical Education subject or even Natural Science subject. The application is a quiz and the questions are linked to local GPS coordinates which the users have to visit in order to answer the questions about organ donation and how the interdisciplinary processes in the body work.
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Att vårda för livet : Intensivvårdssjuksköterskors kunskap och bredskap i organdonationsprocessen / Caring for life : Intensive care nurses knowledge and preparedness in the process of organ donationHenningsson, Sofia, Johansson, Petronella January 2013 (has links)
Bakgrund: Få donationer sker i Sverige idag, det kan därför vara svårt att erhålla och upprätthålla professionell kompetens. Forskning har visat på en uppfattning att potentiella donatorer ibland förbises på grund av organisationsmässiga brister i struktur och riktlinjer. Även bristande kunskap och ett behov av mer utbildning finns beskrivet i flertal studier. Syfte: Att undersöka hur intensivvårdssjuksköterskor uppfattar sin kunskap och beredskap gällande organdonationsprocessen. Metod: Studien var empirisk med kvalitativ ansats. En fokusgruppintervju genomfördes som datainsamling, urvalet bestod av intensivvårdssjuksköterskor som var verksamma på en allmän intensivvårdsavdelning. Innehållsanalys användes för att bearbeta materialet. Resultat: I resultatet framkom fyra huvudkategorier och nio subkategorier. Huvudkategorierna bestod av begränsad erfarenhet, förhållningssätt och bemötande, stöd från omgivningen samt befintlig kunskap och beredskap. Slutsats: Deltagarna föreföll känna trygghet i att den kunskap och beredskap som fanns på enheten som helhet räckte till även om den inte fanns specifikt hos den enskilde. Stöd fanns från kollegor och organisationen. Ett behov av mer kunskap och praktisk erfarenhet antyddes. Att ha reflekterat över det egna förhållningssättet framkom som en del i beredskapen. Klinisk betydelse: En antydan ges om vissa kunskapsluckor vilket skulle kunna beaktas vid introduktion av nyutexaminerade. Studien visar på att tillfällen till praktisk erfarenhet är få vilket betonar vikten av att regelbundet erbjuda kurser och utbildningar för att stärka intensivvårdssjuksköterskan i sin profession. / Background: Few cases of organ donations occur in Sweden today. Therefore it may be difficult to obtain and maintain professional competence. Research has shown perceptions that potential donors may be missed due to organizational weaknesses such as structure and guidelines. Past research has also unveiled lack of knowledge and a need for education. Aim: To examine how intensive care nurses perceive their knowledge and preparedness regarding the process of organ donation. Methods: An empirical qualitative approach was used. The data collection was conducted through the mean of a focus group interview. The sample consisted of intensive care nurses working in a general intensive care unit. Content analysis was used to process the material. Results: Four main categories and nine subcategories were identified. The main categories were limited experience, approach and attitude, the support of colleagues and existing knowledge and preparedness Conclusions: The participants appeared secure about the knowledge and preparedness that existed in the unit. It was considered as sufficient even if it wasn’t possessed at the individual level. Support from colleagues and organization was available, however a need for more knowledge and practical experience was expressed. Self-reflection about personal attitudes emerged as a part of the preparedness. Relevance to clinical practice: It is suspected that some knowledge gaps exist and an introduction to newly graduates about the issue should be made. The study shows that opportunities for practical experience are few which emphasize the importance of providing intensive care nurses with continuing education about the issue in order to strengthen their professionalism.
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The Role of Death in The Moral Permissibility of Solid Organ Procurement After Cardiac Death and Its ImplicationsLevin, Noah Michael 25 November 2013 (has links)
No description available.
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Resuscitation, preservation, and evaluation of hearts donated after circulatory death: an avenue to expand the donor pool for transplantationWhite, Christopher W. 01 1900 (has links)
Cardiac transplantation is the treatment of choice for eligible patients with advanced heart failure; however, it is limited by a critical shortage of suitable organs from traditional brain-dead donors. Organs donated following circulatory death (DCD) have been used to successfully expand the pool of organs available for kidney, liver, and lung transplantation; however, concerns regarding the severity of injury sustained by the heart following withdrawal of life sustaining therapy have deterred the clinical transplantation of DCD hearts. Investigations aiming to optimize the resuscitation, preservation, and evaluation of DCD hearts may facilitate the development of an evidence based protocol for DCD heart transplantation that can be translated to the clinical area and expand the donor pool. Therefore, the objectives of this thesis are to develop a clinically relevant large animal model of DCD and gain a greater understanding regarding the physiologic impact of donor extubation on the DCD heart, demonstrate as a ‘proof-of-concept’ that utilizing an approach to donor heart resuscitation, preservation, and evaluation that is tailored to the DCD context can facilitate successful transplantation, and finally to investigate ways to optimize the resuscitation, preservation, and evaluation of DCD hearts for transplantation. The results of this thesis may then be used to inform the development of an evidence-based protocol for DCD heart transplantation that can be translated to the clinical area. The clinical adoption of such a protocol has the potential to expand the donor pool and improve outcomes for patients with end-stage heart failure. / May 2017
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