<p>Sammanfattning</p><p>Undersökningen är riktad till dem som är intresserade av ett väldigt utmanande, nytt och framtidstänkande arbete med sörjande föräldrar. Ambitionen med studien har varit att få en fördjupad kunskap kring family support teamets arbete, roller och funktioner på ett barnhospice. Med hjälp av en kvalitativ metod har jag uppnått studiens syfte. I undersökningen har jag använt mig av frågeställningarna: Hur beskriver family support teamet sina arbetsuppgifter med obotligt sjuka barn och deras familjer? Samt vilket samarbete finns det mellan family support teamet och de övriga professionerna på Ty Hafan? Studieresultaten har jag relaterat till ett rollteoretiskt - samt organisationsteoretiskt perspektiv. Studiens huvudresultat är att family support teamets arbetare har flera olika roller där rollerna styrs av familjernas behov. Teamet ger ett emotionellt och psykosocialt stöd till barnen som har en obotlig sjukdom, deras familjer och anhöriga samt att delar av teamet handleder de andra teamen på barnhospicet. Teamet har en stor handlingsfrihet, dvs. organisationen (Ty Hafan) har inga speciella riktlinjer som family support teamet måste följa i deras arbete. I studien framkom det att yrkesprofessionerna på barnhospicet fungerar som ett komplement för varandra. Därför måste det finnas ett bra samarbete dem emellan. Den största skillnaden mellan family support teamet och de övriga teamen är att family support teamet är de enda professionella som är kvar i familjernas liv efter barnets död. Teamet finns som ett stöd för familjerna tills familjerna själva känner att de inte är i behov av teamets stöd längre.</p> / <p>Abstract</p><p>The study is aimed for people who are interested in a very demanding, new and forward thinking work with grieving parents. The ambition with the study has been to gain a deepened knowledge about the family support team’s duties, roles and functions within a children’s hospice. With a qualitative method I have achieved the purpose of the study. In the study, I have been using the following questions: How does family support team describe their work duties with children with life-limited illnesses and their families? Also in what way does the family support team co-operate with other professionals at Ty Hafan? The results from the study have been related to a role theoretical and also organisation theoretical perspective. The study’s main result is that the family support team’s employers have many different work duties, where the duties are being regulated by the families’ needs. The team gives an emotional psychosocial support to the children with a life limited illness, their families and the relatives, also parts of the team guide the other teams in the Children’s hospice. The team have a great freedom of action, i.e. the organisation (Ty Hafan) does not have any specific guidelines that the family support team must follow in their work. It came out from the study that the professionals at the Children’s hospice complete each other. The greatest difference between the family support team and the other teams is that the family support team are the only ones who stay in contact with the families after their child’s death. The team works as a support for the families until they feel that they are not needed anymore.</p>

Recent years have seen increasing acknowledgment that aircraft accidents affect not only those who are killed or injured, but also the families and friends of victims. Survivors, victims and their families require sensitive treatment in order to help them cope with what has occurred. Following high profile accidents including USAir 427 and TWA 800, the United State of America started a new program which they call it Family Assistance after Air Disaster. After that a several documents providing guidance for dealing with victims and their families were published in Australia, the UK and the EU. However, in the Middle East, there is no region-specific family assistance guidance for dealing with aircraft accidents. As such, operators tend to use plans which have been designed from a western perspective. This means that the impact of culture, ethical sensitivities and religion have not been addressed fully. This thesis explores the differences in dealing with the families of victims after an accident in the Middle East focusing on the Muslim population. Interviews were conducted with experts from airlines, family assistance providers, religious leaders and victim support groups. These were supplemented by a survey of passengers and family members in USA, Malaysia and Saudi Arabia to compare and contrast the expectations and needs of those who may be affected by an aircraft accident. Over 300 responses were received and the data were validated through further expert interviews. The results supported the findings of the literature review and matched with the bad experiences documented within case study accidents such as the mid-air collision involving Saudi Arabian Airlines flight 763. The study found that the three factors are inextricably linked, with religion being a strong factor in determining individual’s response to their loss; how they relate to others and the type of support they should be given. Suggestions are made regarding the design of a Family Assistance Centre, staff training, words that should / should not be used; and to explain how people may react.

<p>Population aging is a global phenomenon occurring both in developed and less developed countries. While families are still playing an important role in providing support for elderly people, governments are also expanding their public old-age support programs in many societies. Public pensions are one of the major policy tools geared to social protection of the elderly. However, little is known about how the programs affect elders particularly in terms of their subjective well-being. Such effectiveness depends in part on the extent to which public pension income displaces or `crowds out' family elder support. Using the introduction of the Basic Old-Age Pension (BOAP), a non-contributory old-age pension in Korea, this dissertation examines the relationship among public support, family support, and life satisfaction of the elderly.</p><p>As an introductory chapter, chapter 1, "The continuing importance of children in relieving elder poverty: evidence from Korea," describes the actual financial status of elderly Koreans and the amount of financial support they receive from children. Analysis of the 2006 Korean Longitudinal Study of Ageing shows that almost 70 per cent of Koreans aged 65 or more years received financial transfers from children and that the transfers accounted for about a quarter of the average elder's income. While over 60 per cent of elders would be poor without private transfers, children's transfers substantially mitigate elder poverty, filling about one quarter of the poverty gap. Furthermore, children's transfers to low-income parents tend to be proportionally larger, so elder income inequality is reduced by the transfers. Over 40 per cent of elders lived with a child and co-residence helps reduce elder poverty. </p><p>Using the introduction of BOAP, chapter 2, "Does money buy happiness?: Evidence from a new government pension in Korea," assesses how the program affected elders' life satisfaction. Notably, this study adds valuable evidence to the literature of whether money buys happiness, a question of great interest but notoriously difficult to answer given the difficulties associated with isolating income as a causal factor. To make the causal inference, this chapter utilizes a difference-in-difference research design and analyzes longitudinal data from the Korean Retirement and Income Study (KReIS). Results show that BOAP did raise elders' life satisfaction: annual benefits of 1,000 kW, approximately 1,000 U.S. dollars, raised elders' life satisfaction by 0.16-0.22 of one standard deviation and the effect was statistically significant. </p><p>Chapter 3, "Public support crowds out family support: Evidence from a new government pension in Korea," investigates how public financial provision affects family support. In particular, the present study provides a novel estimate of crowd-out by BOAP by using a combined measure of financial support and in-kind support received from all adult children regardless of their co-residence status with elderly parents. This paper also examines the impact on co-residence and is the first quasi-experimental study on the crowd-out question using data from an Asian nation. Results from difference-in-difference analyses of the KReIS data show that every $1 from the pension led to a 30-cent drop in children's support, netting a 70-cent increase in elders' income. The impact on the likelihood of elders' co-residing with children was positive but not statistically significant. </p><p>By showing that Korean children still play a crucial role in providing financial old-age security, chapter 1 demonstrates how important it is for the Korean government to design old-age policies that preserve the incentives for private assistance. The second chapter suggests that, at least in the context of modern-day Korea, pensions do buy happiness, or at least satisfaction. This finding suggests that researchers and policymakers need to pay further attention to public pensions as a tool to intervene people's subjective well-being. Finally, chapter 3 confirms that crowd-out of family support does occur in Korea and that increases in income, more so than other factors, have a positive impact on elders' life satisfaction found in chapter 2. These findings may generalize to other rapidly changing societies with a strong family elder-support tradition and emerging public elder-support system.</p> / Dissertation

Background: The new guidelines for cardiopulmonary resuscitation states that the family should be given the opportunity to be present at the resuscitation of a close relative. A cardiac arrest is an emotional experience for the family. In addition to being part of the resuscitation effort, the nurse also needs to take care of the family. Aim: The aim of this study was to describe nurses' experiences of family presence during resuscitation. Method: A literature review has been made of 13 studies where differences and similarities were analyzed. The articles were published between the years of 2009 – 2013 Result: The nurses' experiences were divided into three categories; Factors that affect family presence, The nurse' experience surrounding the presence of the family, Factors affecting family presence in the resuscitation room. The result showed that, the feeling of confidence, the ability to work under stressful conditions, the reactions of the family and external prerequisites and the presences of a family support person were important. All nurses had unique experiences that influenced their attitudes towards family presence during resuscitation. Conclusion: Every resuscitation is unique and the family's presence should be evaluated. The need for a family support person was identified as an important factor to ease the family's presence. Local protocols should be created that clearly states the decision process and whom become the family support person. Travelbee's nursing theory facilitates the comprehension of the interactions between the family and the nurse.

Magistro baigiamajame darbe išanalizuota ir įvertinta savivaldybėse bei seniūnijose teikiama socialinė parama šeimoms auginančioms nepilnamečius vaikus Lietuvoje, iškeltos valstybės teikiamos socialinės paramos administravimo problemos bei pateikti pasiūlymai, kaip spręsti iškilusias problemas. Teorinėje darbo dalyje yra aptariama šeimos politika, jos tipai bei šeimos samprata; analizuojami dokumentai reglamentuojantys socialinę paramą šeimai Lietuvoje bei institucijos atsakingos už paramos šeimai skyrimą; aptariamos šiuolaikinės viešojo valdymo reformos viešojo administravimo procese ir reformos modelio kūrimas. Praktinėje darbo dalyje yra nagrinėjamas socialinės paramos teikimas šeimoms auginančioms nepilnamečius vaikus Kupiškio ir Vilniaus savivaldybėse bei seniūnijose. Apibrėžiamos pagrindinės problemos teikiant socialinę paramą ir problemų sprendimų gairės. / Master thesis analyzed and evaluated an offer social support for the families rising minor children in municipalities and wards, warded state of social assistance provided of administrative problem and to make suggestions how to solve the problems. The family policy is discussed in the theoretical part of this work, the types and the concept of family; analyzed documents which are regulating social support for the family and institutions which are responsible for the support award for the Lithuania families. In the practical work part are considered social support for the families raising minor children of Kupiškis and Vilnius municipalities and wards. Are defined the main problems by providing social support ant the solutions guidelines of problems solving.

Serving children with special health care needs (SHCN) or developmental disabilities (DD) and their families is an important public health issue (Healthy People, 2020). The prevalence of children with special health care needs or developmental disabilities is significant and increasing (Boyle et al., 2011). Caregivers of children with SHCN or DD and their families demand clinical and research attention given the potential range of health and well-being outcomes that are associated with their children’s developmental or medical complexity. The purpose of this dissertation study was to use a quantitative descriptive research design to examine the experiences of pediatric parenting stress and family support for a sample of caregivers of children representing diverse special health care needs or developmental disabilities. Data were collected at four agencies that provide a range of services to children with SHCN or DD and their families. The data for 167 caregiver participants were used for the preliminary and main statistical analyses. Statistical analyses including pearson product moment correlations, independent-samples t-tests, one-way analysis of variance (ANOVA) tests, internal consistency reliability analyses, and factor analyses. Present study findings revealed that (a) the Pediatric Inventory for Parents (PIP) and Family Support Scale (FSS) measures did not appear to be internally consistent for this study sample; (b) the existing PIP and FSS factor structures did not fit the present study data well; (c) the present study sample had higher levels of pediatric parenting stress and lower levels of family support overall as compared to previous study samples of caregivers for children with chronic conditions; (d) the current study sample’s experiences of pediatric parenting stress and family support differed significantly by several caregiver, child, and family correlates; and (e) the current study sample’s levels of pediatric parenting stress and family support had a positive, significant association. Study findings emphasized the potential roles of stress and support in the caregiving experiences for children with SHCN or DD. Recommendations for further study of this caregiving population and their families are discussed.

Introdução: As primeiras relações desde a concepção do ser humano, são carregadas de sentimentos e fantasias relacionadas ao filho esperado, um bebê sadio e que traz muita expectativa e idealização. Poucos são os estudos sobre a reação paterna durante a gestação, principalmente quando esta traz consigo o diagnóstico de malformação fetal. O nascimento de um bebê impõe mudanças na relação homem e mulher, mesmo que o projeto de um filho tenha sido pensado pelo casal. Conhece-se a possibilidade de intervir de maneira precoce para que pai-feto malformado estabeleçam vínculos saudáveis desde o momento do diagnóstico, contribuindo para a prevenção do adoecimento desta interação e melhora na qualidade de vida da família. Objetivo: Investigar a participação paterna no pré-natal de gestações com e sem diagnóstico de malformação fetal. Método: Estudo transversal e prospectivo, de caráter quantitativo e qualitativo. Participaram da amostra 70 homens que espontaneamente acompanharam as gestantes no pré-natal na equipe de Medicina Fetal, no ambulatório do Hospital de Clínicas de Porto Alegre (HCPA). O grupo caso (35 participantes) com diagnóstico de malformação fetal, independente do tipo de malformação, da idade materna, da paridade, da idade gestacional e tempo de relacionamento do casal e o controle (35 participantes) sem diagnóstico de malformação fetal, mas com diagnóstico de doença materna. A coleta se deu no período entre dezembro de 2014 e dezembro de 2015. Os instrumentos utilizados foram Parental Bonding Instrument - PBI; Escala de Modos de Enfrentamento do Problema – EMEP; Inventário de Percepção de Suporte Familiar IPSF; Entrevista semidirigida para coleta de dados sociodemográficos. Resultados: A média de idade paterna foi de 33,5 anos (± 9,5) do grupo caso e de 27,6 anos (±4,4) no grupo de controle, Ensino Médio Completo, primeiro casamento e uma média de três anos de relacionamento nos dois grupos. O choque e tristeza foram as principais reações paternas diante do diagnóstico de malformação fetal. A estratégia de enfrentamento “Foco no Problema” (EMEP), a qualidade de apego/relação parental predominou a base no “Cuidado” ao invés do “Controle ou Superproteção” (PBI) e a percepção do pai sobre a relação com a família associada ao “Fator Afetivo/Consciente” (IPSF). Apesar de, nas escalas, o fator “Religioso” não ter se destacado, na análise qualitativa das verbalizações foi este o conteúdo que predominou. Conclusão: O choque e a tristeza foram as principais reações diante do diagnóstico de malformação fetal. O foco no Problema e o foco na Emoção, associados a uma base de Cuidado e com a percepção do suporte familiar relacionada ao fator Afetivo/Consciente levam a pensar em um novo modelo paterno. O fator Religioso e o acolhimento da equipe foram destaques na análise qualitativa. A necessidade de cuidado, escuta e acolhimento do pai de um bebê com diagnóstico de maformaçao fetal, possibilita o preparo para a chegada, e muitas vezes, a imediata perda do filho. Os pais desse estudo conseguiram expressar seu afeto sem medo ou vergonha. Estamos diante de um modelo de pai que tende a se mostrar mais em termos afetivos, um modelo mais voltado ao cuidado na relação, não apenas focado nas questões financeiras. Contudo, cabe à mulher e à equipe multiprofissional lhe dar esse espaço, estimulando e permitindo ao homem, dentro das suas características, o desenvolvimento das habilidades de cuidador. / Introduction: The first relations since the conception of a human being, are loaded with feelings and fantasies related to the expected child, a healthy baby, and that brings a lot of expectations and idealization. There are few studies on paternal reaction during pregnancy, especially when it brings the diagnosis of fetal malformation. The birth of a baby requires changes in male-female relationships, even if it has been planned by the couple. The possibility of intervening at an early stage exists so that parent- fetus malformed might establish healthy ties from the very moment of diagnosis, contributing to the prevention of any illness regarding the interaction and improvement in the quality of family life. Objective: To investigate the paternal participation in prenatal pregnancies with and without a diagnosis of fetal malformation. Method: Cross-sectional and prospective study, quantitative and qualitative. The sample 70 men who spontaneously accompanied pregnant women in prenatal care in the team of fetal medicine at the clinic of the Hospital de Clínicas de Porto Alegre (HCPA). The case group (35 participants) with a diagnosis of fetal malformation, regardless of the type of malformation, maternal age, parity, gestational age and couple relationship of time and control (35 participants) without a diagnosis of fetal malformation, but diagnosis of maternal disease. The collection was carried out in the period between December 2014 and December 2015. The instruments used were the Parental Bonding Instrument - PBI; Coping Mode Scale Problem - EMEP; Inventory IPSF Family Support Perception; Semistructured interview to collect sociodemographic data. Results : The mean paternal age was 33.5 years ( ± 9.5 ) in the case group and 27.6 years ( ± 4.4 ) in the control group, Complete High School , first marriage and an average of three year relationship in both groups. The shock and sadness were the main fathers' reactions to the diagnosis of fetal malformation. The coping strategy " Focus on Problem " (EMEP ), the quality of attachment / parental relationship predominated based on " care " instead of " control and overprotection " ( PBI) and the perception of the father on the relationship with the associated family the " Affective Factor / Conscious " ( IPSF ) . Although, the scales, the "Religious" factor have not been highlighted in the qualitative analysis of verbalization was this content that prevailed. Conclusion: Shock and sadness were the main reactions to the diagnosis of fetal malformation. Focus on the problem and focus on emotion, associated with a care base and the perception of family support related Affective factor/Aware lead to think about a new paternal model. The Religious Factor and the host team were featured in the qualitative analysis. The need for care, father listening and host a baby diagnosed with fetal malformation enables the preparation for the arrival, and often the immediate loss of the child. The parents of this study were able to express their affection without fear or shame. We are facing a parent model that tends to show more emotional terms, a friendlier model care in the relationship, not only focused on financial issues. However, it is up to the woman and the multi-professional team give you that space, encouraging and allowing the man within its characteristics, the development of caregiver skills.

Made available in DSpace on 2014-06-11T19:24:00Z (GMT). No. of bitstreams: 0 Previous issue date: 2008-12-05Bitstream added on 2014-06-13T20:51:10Z : No. of bitstreams: 1 alves_co_me_bauru.pdf: 597873 bytes, checksum: 6300ba2a9d975f6d16f0d7264d5cbc24 (MD5) / Estudos sobre estresse e qualidade de vida em diferentes profissões consideram as especifidades potencialmente estressantes das funções que as pessoas exercem na sua ocupação, assim como a influência do estresse na sua qualidade de vida pessoal e profissional. O suporte familiar, por possuir fator de proteção às situações de estresse, também parece influenciar na sua ocorrência, principalmente na área ocupacional. Entretanto, ainda não se encontram pesquisas que relacionem o estresse, a qualidade de vida e o suporte familiar com a profissão de porteiro. O presente estudo objetivou avaliar e correlacionar os níveis de estresse, qualidade de vida, vulnerabilidade ao estresse no trablho e percepção de suporte familiar em trabalhadores que exercem a função de porteiro. Participaram da pesquisa 100 trabalhadores sexo masculino, que atuam em uma empresa de médio porte do ramo de prestação de serviços. Utilizou-se o questionário de caracterização, o Inventário de Sintomas de Stress de Lipp (ISSL), o inventário de Qualidade de Vida (IQV), a Escala de Vulnerabilidade ao Estresse no Trabalho (EVENT) e o Inventário de Percepção de Suporte Familiar (IPSF). A idade média dos participantes foi de 37,8 anos, sendo 60% com ensino médio completo, 77% casados com média de 1,85 filhos por família, 77% relataram realizar atividades de lazer e 91%, não possuir problemas de saúde. No âmbito profissional, trabalhavam na empresa, em média, há 4,07 anos e atuavam como porteiros, em média, há 5,77 anos. A maioria dos participantes trabalhava na escala 12x36 (75%) e nunca se acidentaram no trabalho (91%). Os resultados mostraram que 72% dos porteiros não possuíam estresse e do restante, 25% estavam na fase de resistência e 3% na fase de quase-exaustão. Quanto a qualidade de vida, 20% dos participantes revelaram adequação em todos os quadrantes e 9% inadequação total... / Studies on stress and life quality in different professions take into account the potential particularities of stress on the workplace, as well as the influence of stress on the personal and professional quality of life. The family support, due to its protection factor on the stress situation, also seems to influence in the occurrence of stress, specially in the occupational area. However, there are no researches that relate the etress, the quality of life, and the family support with the profession of the doorman. This present study had the objective of evaluating and correlating stress levels, life quality, work related stress vulnerability and family support perception in workers who have the job of doorman. A hundred workers of the male sex took part in the research, from an outsourcing medium sized company. A characterization questionnaire was used, Lipp's Stress Symptoms Inventory for Adults, the Life Quality Inventory (LQI), the Scale of Vulnerability to the Stress at Work (EVENT), and the Inventory of Perception of Family Support (IPSF). The age average of the participants was 37,8 years old, with 60% having a high school education, 77% married, with an average of 1,85 children per family, 77% reported having leisure activities, and 91% with no health problems. On a professional level, the participants have worked in the company in an average of 4,07 years, and as doormen, an average of 5,77 years. Most of them worked in a 12x36 work scale (75%), the night shift (57%), and have never suffered a work-related accident (91%). The results showed that 72% of the doormen did not experience any stress, and the rest, 25% were in a resistance phase, and 3% in a phase of near exhaustion. As to quality of life, 20% of the participants revealed adequacy in all areas, and 9% total inadequacy. In the individual analysis of the areas, 47% showed success in the Professional area, 56% in the... (Complete abstract click electronic access below)

Made available in DSpace on 2014-06-11T19:29:00Z (GMT). No. of bitstreams: 0 Previous issue date: 2011-12-15Bitstream added on 2014-06-13T20:38:02Z : No. of bitstreams: 1 camargo_vcv_me_bauru.pdf: 860901 bytes, checksum: 00e587361a97365f1ec784f0cef10ab8 (MD5) / O estresse corresponde a um processo que desencadeia uma relação neuropsicofisilógica nos indivíduos, auxiliando-os a se adaptarem a novas situações. Quando excessivo, pode provocar consequencias negativas para o funcionamento dos organismos, sendo uma das causas de desencadeamento da depressão. Também conhecida como transtorno de humor, a depressão relaciona-se à limitação da atividade e do bem-estar dos indivíduos, comprometendo sua qualidade de vida. O suporte familiar refere-se às características psicológicas presentes nas relações familiares, ajudando os indivíduos no enfrentamento de situações estressantes e funcionando como fator de proteção contra o desenvolvimento de doenças mentais como a depressão. Os estudantes da educação profissionalizante correspondem a uma categoria pouco investigada no que se refere a estresse, depressão e suporte familiar, a qual está sujeita às resposabilidades escolares, às exigências profissionais e às expectativas do mercado de trabalho. Estes fatores podem funcionar como fontes de desencadeadoras de estresse, evoluindo para sintomas mais graves, como é o caso da depressão. O apoio da familia pode funcionar como fonte amortecedora do estresse e a audiência do suporte familiar como uma fator de risco para a depressão. Considerando este contexto, este estudo teve como objetivo investigar os níveis de estresse, a intensidade dos sintomas de depressão e a percepção do suporte familiar em estudantes de educação profissionalizante e identificar possíveis diferentes entre estes construtos, considerando variáveis como sexo, idade, número de filhos, estado civil, nível escolar, nível sócio-econonômico, trabalho, local de residência, atividades físicas e de lazer e crença religiosa. Participaram da pesquisa 200 estudantes, de ambos os sexos, dos quais 117 (58,5%) eram do sexo masculino... / Stress is a process that triggers a neuropsysiology reaction in individuals, helping them to adapt to new situations. When excessive, can cause negative consequences for the functioning of organisms, being one of onset of depression. Also known as mood disorder, depression is related to activity limitation and well-being of individuals, affecting their quality of life. The Family Support refers to the psychological characteristics present in family relationships, assisting individuals in coping with stressful situations and working as a protective factor against the development of mental illnesses like depression. Studants of professional education correspond to a poorly investigated category with regard to stress, depression and family support, which is subject to shool responsibilities, the job requirements and expectations of the labor market. These factors can act as sources of stress triggering, progressing to more severe symptoms such as depression. Family support can act as a source of stress dramping and the absence of family support as a risk factor for depression. Considering the context, this study aimed to investigate the levels of stress, the intensity of the symptoms of depression and perception of family support in professional education students and identify possible differences between these constructs, considering variables such as gender, age, number of children, marital status, education, socio-economic level, work, place of residence, physical activity and leisure and religious belief, 200 students participated in the survey, of both sexes, of which 117 (58,5%) were male and 83 (41,5%) were female, the last cycle of training courses of a technical school in a district of west of São Paulo, being factors include being 18 years old and finishing high school. In addition to a Characterization... (Complete abstract click electronic access below)

Introdução: As primeiras relações desde a concepção do ser humano, são carregadas de sentimentos e fantasias relacionadas ao filho esperado, um bebê sadio e que traz muita expectativa e idealização. Poucos são os estudos sobre a reação paterna durante a gestação, principalmente quando esta traz consigo o diagnóstico de malformação fetal. O nascimento de um bebê impõe mudanças na relação homem e mulher, mesmo que o projeto de um filho tenha sido pensado pelo casal. Conhece-se a possibilidade de intervir de maneira precoce para que pai-feto malformado estabeleçam vínculos saudáveis desde o momento do diagnóstico, contribuindo para a prevenção do adoecimento desta interação e melhora na qualidade de vida da família. Objetivo: Investigar a participação paterna no pré-natal de gestações com e sem diagnóstico de malformação fetal. Método: Estudo transversal e prospectivo, de caráter quantitativo e qualitativo. Participaram da amostra 70 homens que espontaneamente acompanharam as gestantes no pré-natal na equipe de Medicina Fetal, no ambulatório do Hospital de Clínicas de Porto Alegre (HCPA). O grupo caso (35 participantes) com diagnóstico de malformação fetal, independente do tipo de malformação, da idade materna, da paridade, da idade gestacional e tempo de relacionamento do casal e o controle (35 participantes) sem diagnóstico de malformação fetal, mas com diagnóstico de doença materna. A coleta se deu no período entre dezembro de 2014 e dezembro de 2015. Os instrumentos utilizados foram Parental Bonding Instrument - PBI; Escala de Modos de Enfrentamento do Problema – EMEP; Inventário de Percepção de Suporte Familiar IPSF; Entrevista semidirigida para coleta de dados sociodemográficos. Resultados: A média de idade paterna foi de 33,5 anos (± 9,5) do grupo caso e de 27,6 anos (±4,4) no grupo de controle, Ensino Médio Completo, primeiro casamento e uma média de três anos de relacionamento nos dois grupos. O choque e tristeza foram as principais reações paternas diante do diagnóstico de malformação fetal. A estratégia de enfrentamento “Foco no Problema” (EMEP), a qualidade de apego/relação parental predominou a base no “Cuidado” ao invés do “Controle ou Superproteção” (PBI) e a percepção do pai sobre a relação com a família associada ao “Fator Afetivo/Consciente” (IPSF). Apesar de, nas escalas, o fator “Religioso” não ter se destacado, na análise qualitativa das verbalizações foi este o conteúdo que predominou. Conclusão: O choque e a tristeza foram as principais reações diante do diagnóstico de malformação fetal. O foco no Problema e o foco na Emoção, associados a uma base de Cuidado e com a percepção do suporte familiar relacionada ao fator Afetivo/Consciente levam a pensar em um novo modelo paterno. O fator Religioso e o acolhimento da equipe foram destaques na análise qualitativa. A necessidade de cuidado, escuta e acolhimento do pai de um bebê com diagnóstico de maformaçao fetal, possibilita o preparo para a chegada, e muitas vezes, a imediata perda do filho. Os pais desse estudo conseguiram expressar seu afeto sem medo ou vergonha. Estamos diante de um modelo de pai que tende a se mostrar mais em termos afetivos, um modelo mais voltado ao cuidado na relação, não apenas focado nas questões financeiras. Contudo, cabe à mulher e à equipe multiprofissional lhe dar esse espaço, estimulando e permitindo ao homem, dentro das suas características, o desenvolvimento das habilidades de cuidador. / Introduction: The first relations since the conception of a human being, are loaded with feelings and fantasies related to the expected child, a healthy baby, and that brings a lot of expectations and idealization. There are few studies on paternal reaction during pregnancy, especially when it brings the diagnosis of fetal malformation. The birth of a baby requires changes in male-female relationships, even if it has been planned by the couple. The possibility of intervening at an early stage exists so that parent- fetus malformed might establish healthy ties from the very moment of diagnosis, contributing to the prevention of any illness regarding the interaction and improvement in the quality of family life. Objective: To investigate the paternal participation in prenatal pregnancies with and without a diagnosis of fetal malformation. Method: Cross-sectional and prospective study, quantitative and qualitative. The sample 70 men who spontaneously accompanied pregnant women in prenatal care in the team of fetal medicine at the clinic of the Hospital de Clínicas de Porto Alegre (HCPA). The case group (35 participants) with a diagnosis of fetal malformation, regardless of the type of malformation, maternal age, parity, gestational age and couple relationship of time and control (35 participants) without a diagnosis of fetal malformation, but diagnosis of maternal disease. The collection was carried out in the period between December 2014 and December 2015. The instruments used were the Parental Bonding Instrument - PBI; Coping Mode Scale Problem - EMEP; Inventory IPSF Family Support Perception; Semistructured interview to collect sociodemographic data. Results : The mean paternal age was 33.5 years ( ± 9.5 ) in the case group and 27.6 years ( ± 4.4 ) in the control group, Complete High School , first marriage and an average of three year relationship in both groups. The shock and sadness were the main fathers' reactions to the diagnosis of fetal malformation. The coping strategy " Focus on Problem " (EMEP ), the quality of attachment / parental relationship predominated based on " care " instead of " control and overprotection " ( PBI) and the perception of the father on the relationship with the associated family the " Affective Factor / Conscious " ( IPSF ) . Although, the scales, the "Religious" factor have not been highlighted in the qualitative analysis of verbalization was this content that prevailed. Conclusion: Shock and sadness were the main reactions to the diagnosis of fetal malformation. Focus on the problem and focus on emotion, associated with a care base and the perception of family support related Affective factor/Aware lead to think about a new paternal model. The Religious Factor and the host team were featured in the qualitative analysis. The need for care, father listening and host a baby diagnosed with fetal malformation enables the preparation for the arrival, and often the immediate loss of the child. The parents of this study were able to express their affection without fear or shame. We are facing a parent model that tends to show more emotional terms, a friendlier model care in the relationship, not only focused on financial issues. However, it is up to the woman and the multi-professional team give you that space, encouraging and allowing the man within its characteristics, the development of caregiver skills.