Bakgrund Sedan en tid tillbaka har webbåtkomst av patientjournalen utvecklats och blivit möjlig för patienterna såväl i Sverige som i flera länder globalt. Sedan tillgången till journalen underlättats för patienterna tar allt fler chansen att läsa i sina journaler. Med bakgrund av detta undersöks patienternas upplevelser och erfarenheter av att läsa sina journaler i denna litteraturstudie.  Syfte Syftet var att belysa vuxna patienters upplevelser av att läsa journalen vid kontakt med hälso- och sjukvården. Metod En icke-systematisk litteraturöversikt genomfördes genom att samla in data och granska 17 vetenskapliga originalartiklar. Artiklarna innefattar varierande typer av studiedesign. Författarna granskade de utvalda originalartiklarna efter Sophiahemmets Högskolas bedömningsunderlag för kvalitetsgranskning, för att sedan analysera artiklarna genom en integrerad analysmetod. Utefter detta presenterades resultatet uppdelat efter tre teman som författarna fann under analysen.  Resultat Genom granskningen upptäcktes tre huvudteman. De teman som upptäcktes då patienternas upplevelser av att läsa sina journaler undersöktes var: Patienternas upplevelse av: patientdelaktighet, av att inhämta, tolka och förstå journalinformation och personcentrering. Under dessa huvudkategorier sågs ett antal subteman. Dessa subteman innefattade patienternas upplevelser av eller kring deltagande, kommunikation, medicinsk terminologi, förståelse, tekniska svårigheter, reaktioner och känslor, partnerskapet, egenmakt och egenvård. Slutsats Enligt studien var patienterna till stor del positiva över tillgången till patientjournalen och ville läsa sina journalanteckningar. Skillnader fanns mellan olika grupper av patienter när det kom till vilka som tyckte sig ha mest nytta av att läsa journalerna. Patienterna upplevde språkbruket och den medicinska terminologin som används i journalen som svårt att förstå. Enligt studien kan en ökad personcentrering och patientdelaktighet, vid och kring journalföringen, leda till positiva erfarenheter hos patienterna såväl som det kan ge minskade risker inom vården. En ökad personcentrering vid journalföring kan även bidra till att stärka patienternas möjligheter till ett högre mått av hälsolitteracitet. / Background For some time now, web access to the medical records has developed and become possible for patients both in Sweden and in several countries globally. Since access to medical records has been made easier for patients, more and more people are taking the chance to read their medical records. Against this background, the patients attitudes and experiences of reading their medical records are examined in this litteraturestudy. Aim The aim was to shed light on adult patients' experience of reading their medical record when in contact with the health care system. Method The authors created a non-systematic literature review by collecting data and reviewing 17 scientific articles. The articles included were of various types. The authors reviewed the selected articles according to Sophiahemmet University's assessment document for quality review and then analyzed the articles through an integrated analysis method. Following this, the results were presented divided according to three themes that the authors found during the analysis. Results Through the review, three main themes were discovered. The themes that were discovered when the patients' experiences of reading their medical records were examined were: The patients' experience of: patient participation, of obtaining, interpreting and understanding medical record information and person-centeredness. Under these main categories, several sub-themes were seen. These sub-themes included the patients' experiences of or around participation, communication, medical terminology, understanding, technical difficulties, reactions and feelings, the partnership, empowerment and self-care. Conclusions According to the study, patients for the most part had positive experiences while reading their medical records and wanted to continue doing so. There were differences between groups of patients when it came to who found that they had the most benefit from reading the medical records. The patients found the language and medical terminology used in the medical record difficult to understand. According to the study, increased person-centredness and patient participation in record keeping can lead to increased positive experiences for patients as well as reduced risks in care. An increased person-centredness in recordkeeping can also contribute to strengthening patients' opportunities for a higher measure of health literacy.

Wenn ein Chirurg heutzutage während der Operation Informationen aus der Patientenakte benötigt, ist er gezwungen, sich entweder unsteril zu machen oder Personal anzuweisen, ihm die entspre-chenden Informationen zugänglich zu machen. Aus technischer Sicht ist ein System zur intraoperati-ven Bedienung und Darstellung sehr einfach zu realisieren. Grundlage dafür ist eine elektronische Patientenakte (EPA), welche beispielsweise softwaregenerierten oder eingescannten Dokumenten verwaltet. Die vorliegende Arbeit widmet sich den folgenden Fragen: Wird ein solches System im Operationssaal sinnvoll genutzt? Welche Methoden zur sterilen Bedienung kommen infrage? Wie muss die grafische Darstellung auf den Operationssaal abgestimmt werden? Kann durch das Imple-mentieren aktueller Kommunikationsstandards auf alle verfügbaren Patientendaten zugegriffen werden? Dazu wurden in einer ambulanten HNO-Klinik zwei Pilotstudien durchgeführt. In der ersten Studie wurde das erste auf dem Markt befindliche kommerzielle Produkt „MI-Report“ der Firma Karl Storz evaluiert, welches per Gestenerkennung bedient wird. Für die zweite Studie wurde ein EPA-System entwickelt (Doc-O-R), welches eine Vorauswahl der angezeigten Dokumente in Abhängigkeit des Eingriffs traf und mit einem Fußschalter bedient werden konnte. Pro System wurden ca. 50 Eingriffe dokumentiert. Dabei wurde jedes angesehene Dokument und der Nutzungsgrund protokolliert. Die Systeme wurden durchschnittlich mehr als einmal pro Eingriff genutzt. Die automatische Vorauswahl der Dokumente zur Reduzierung der Interaktionen zeigte sehr gute Ergebnisse. Da das behandelte Thema noch in den Anfängen steckt, wird in der Arbeit am Ende auf die Vielzahl von Möglichkeiten eingegangen, welche bezüglich neuartiger Darstellungsmethoden, Bedienvorrich-tungen und aktueller Standardisierungsaktivitäten noch realisiert werden können. Dadurch werden zukünftig auch die Abläufe in der Chirurgie beeinflusst werden.

Ο ηλεκτρονικός ιατρικός φάκελος κάθε πολίτη της χώρας αποτελείται από ιατρικές πληροφορίες που παράγονται γι' αυτόν, σε οποιονδήποτε φορέα παροχής υπηρεσιών υγείας. Σε κάθε Κέντρο Υγείας εγκαθίσταται πλήρης υποδομή για την τήρηση και ενημέρωση στοιχείων του ηλεκτρονικού ιατρικού φακέλου και για την πρόσβαση σε στοιχεία τα οποία τηρούνται σε άλλους φορείς παροχής υπηρεσιών υγείας όλων των κατοίκων που υπάγονται σε αυτό. Ο οικογενειακός και ο προσωπικός ιατρός υποχρεούται να ενημερώνει τους ηλεκτρονικούς ιατρικούς φακέλους των ασφαλισμένων που τον έχουν επιλέξει με τις πληροφορίες οι οποίες παράγονται από τον ίδιο. Ο πολίτης – ασθενής θα πρέπει να έχει και τη δυνατότητα να λαμβάνει σε ηλεκτρονική μορφή έναν προσωπικό ιατρικό φάκελο ο οποίος θα τον διευκολύνει στην πρόσβασή του στις υπηρεσίες υγείας της χώρας και στην άμεση εξασφάλιση παροχής αναγκαίων πληροφοριών και δεδομένων σχετικών με την υγεία του. Ο προσωπικός ηλεκτρονικός ιατρικός φάκελος μπορεί να περιέχει και άλλες προσωπικές πληροφορίες που αποτυπώνουν αναλυτικά την πιο πρόσφατη κατάσταση του ασθενούς (π.χ. μετά από έκτακτη εισαγωγή ή επίσκεψη σε ιατρό), οι οποίες θα μπορούν να τροποποιηθούν και από τον ίδιο. Η διπλωματική εργασία έχει ως στόχο την ανάπτυξη ενός τέτοιου προσωπικού ηλεκτρονικού ιατρικού φακέλου με την αξιοποίηση τεχνολογιών βάσεων δεδομένων και Διαδικτύου. / The electronic medical file of each citizen of country is constituted by medical information that is produced for him, in any institution of benefit of services of health. In each Centre of Health is installed complete infrastructure for the observation and briefing of elements of electronic medical file and for the access in elements which are observed in other institutions of benefit of services of health of all residents that be governed in this. The familial and personal doctor is compelled to inform the electronic medical files secured that have selected him with the information that is produced by the himself. The citizen - patient will be supposed has also the possibility receives in electronic form a personal medical file which will facilitate him in his access in the services of health of country and in the direct guarantee of benefit of necessary information and given relative with his health.The personal electronic medical file can contain also other personal information that impresses analytically the most recent situation of patient (eg after extraordinary import or visit in doctor), that might be also modified from himself. The diplomatic work aims at as the growth of such personal electronic medical file with the exploitation of technologies of bases of data and Internet.

Den elektroniska journalen är en del av distrikts- och sjuksköterskors dagliga arbete och ökar förutsättningen för ett patientsäkert arbete. Distrikts- och sjuksköterskor arbetar efter kärnkompetenserna informatik och säker vård, men brister i den elektroniska journalen kan påverka dessa negativt. Syftet var att undersöka sjuksköterskors och distriktssköterskors kunskap om och förståelse av att använda elektronisk journal i kommunal hemsjukvård. Metod: kvantitativ tvärsnittsstudie. Urvalet bestod av sjuksköterskor och distriktssköterskor från fem kommuner i Kronobergs län (n 67). Datainsamlingen skedde med frågeformulär som analyserades med beskrivande statistik. Resultat: elektroniska journalen ansågs i hög grad vara ett bra stöd i det dagliga arbetet, och bidrog till en god och säker vård. Navigeringen i journalen och informationsöverföring mellan olika vårdgivare innebar oftast inte några större problem. Dubbeldokumentation mellan olika system förekom ofta och kunskap om journalens funktioner saknades. Det var i de flesta fall inte möjligt att använda journalen mobilt i hemsjukvården, trots att behov fanns. Över 80 % uppgav att läkemedelslistan ibland eller sällan var uppdaterad. Dessa brister kan påverka patientsäkerheten negativt eftersom förutsättningen för att bedriva en säker vård är att informationen i journalen är tydlig och korrekt. Studiens resultat kan ligga till grund för fortsatt forskning inom patientsäkerhet och utveckling av journalens användarvänlighet. / The electronic patient record is a part of nurses´ daily work, and increases the premise of patient safety. Nurses work by the core competencies informatics and safety, but flaws in the electronic patient record can affect these adversely. The aim of the study was to investigate the nurses' knowledge and understanding of using electronic patient records in municipal home care. Method: quantitative cross-sectional study. The sample consisted of nurses and district nurses from five municipalities in the county of Kronoberg (n 67). The data collection was done using questionnaires, which were analyzed with descriptive statistics. Results: the electronic patient record was to a high degree considered to be a good support in the daily work, and to contribute to a good and safe care. Navigation in the patient record and transfer of information between different health care providers, was usually not regarded as a major problem. Double documentation between various systems were common. There was a lack of knowledge of the patient record´s functions. It was in most cases not possible to use wireless connections for the patient record in the patient´s home, although the need existed. Over 80 % stated that the medication list was updated sometimes or rarely. These shortcomings can affect patient safety in a negative way, because the prerequisite for providing a safe care is that the information in the patient record is clear and accurate. The results of the study could be the basis for further research in safety, and for the development of the electronic patient record´s usability.

This research related the implications of the deployment and use of Electronic Patients Record at University Hospital of Santa Maria, and his involvement with the archives science principles and concepts. This is justified by the presumption that the theoretical models existing are devoid of theoretical and archival authenticity and reliability. The focus of this study was grounded on objectives that intertwine and complement: strategies that include aspects of preservation of electronic documents and their relationship with the authenticity and reliability of the information, the study and analysis of some models of software for PEP, which was a parallel track with the current legislation, presentation of a metadata schema with potential for use in PEP, from the analysis and study of e-Arqu Brasil, a study of PEP as memory and cultural heritage. A qualitative research was applied, and was used a compound of issues related to the objectives, too. The results are founded on the principle that all archival work should be related to reality documentary that is known through the collection of information essential to the development of a scientific investigation. It was possible to verify the absence of involvement of archivists in the implementation and development of a PEP system, a difficult task that requires capability and technical skills of professionals and intellectuals engaged. It is concluded by advocating the PEP with the document archive for permanent preservation, and as an object of study for professionals in health, information technology, historians, sociologists and archivists. / A presente pesquisa aborda aspectos relacionados às implicações da implantação e uso do Prontuário Eletrônico de Pacientes no Hospital Universitário de Santa Maria, e seu envolvimento com princípios e conceitos da arquivística. Este trabalho justifica-se pela presunção teórica de que os modelos de PEPs existentes estão desprovidos de referenciais teóricos arquivísticos como autenticidade e confiabilidade. O foco do estudo foi alicerçado em objetivos que se entrelaçam e se complementam: aspectos que incluem as estratégias de preservação de documentos eletrônicos e seu relacionamento com a autenticidade e confiabilidade das informações; o estudo e a análise de alguns modelos de software para PEP, onde foi traçado um paralelo com a legislação vigente; apresentação de um esquema de metadados com potencial de uso no PEP, a partir da análise e estudo do e-Arqu Brasil; o estudo do PEP como memória e patrimônio cultural. Realizou-se uma pesquisa aplicada de caráter qualitativo e para a coleta de dados foi utilizado um formulário compostos de questões relacionadas aos objetivos desta pesquisa. Os resultados obtidos estão alicerçados no princípio de que todo o trabalho arquivístico deve estar relacionado à realidade documental, conhecida através da coleta de informações essenciais ao desenvolvimento de uma investigação cientifica. Constatou-se a ausência do envolvimento de arquivistas na implantação e desenvolvimento de um sistema de PEP, tarefa difícil que exige competências e habilidades técnicas e intelectuais dos profissionais engajados. Conclui-se, defendendo o PEP como documento arquivístico de preservação permanente e como objeto de estudo de profissionais da área de saúde, tecnologia da informação, historiadores, sociólogos e arquivistas.

AIM: This study aimed to explore the factors influencing antiretroviral therapy patients` data quality at Princess Marina Hospital Pharmacy in Botswana. METHODS: A phenomenological approach was adopted in this study. Specifically, Interpretative Phenomenological Analysis qualitative design was used to explore the factors influencing antiretroviral therapy patients` data quality at Princess Marina Hospital Pharmacy in Botswana. Data were collected using a semi-structured interview format on 18 conveniently selected pharmacy staff. Data were analysed using Smith’s (2005) Interpretative Phenomenological Analysis framework. RESULT: Five thematic categories emerged from data analysis: data capturing: an extra task, knowledge and experience of IPMS, training and education, mentoring and supervision, and data quality: impact on patients’ care. The findings of this study have implications for practice, training and research. CONCLUSION: Pharmacy staff had limited knowledge of IPMS and its utilisation in data capturing. Such limitations have implications in the context of the quality of data captured / Health Studies / M.A. (Health Studies)

AIM: This study aimed to explore the factors influencing antiretroviral therapy patients` data quality at Princess Marina Hospital Pharmacy in Botswana. METHODS: A phenomenological approach was adopted in this study. Specifically, Interpretative Phenomenological Analysis qualitative design was used to explore the factors influencing antiretroviral therapy patients` data quality at Princess Marina Hospital Pharmacy in Botswana. Data were collected using a semi-structured interview format on 18 conveniently selected pharmacy staff. Data were analysed using Smith’s (2005) Interpretative Phenomenological Analysis framework. RESULT: Five thematic categories emerged from data analysis: data capturing: an extra task, knowledge and experience of IPMS, training and education, mentoring and supervision, and data quality: impact on patients’ care. The findings of this study have implications for practice, training and research. CONCLUSION: Pharmacy staff had limited knowledge of IPMS and its utilisation in data capturing. Such limitations have implications in the context of the quality of data captured / Health Studies / M. A. (Health Studies)

O Prontuário Eletrônico do Paciente (PEP) é atualmente um dos principais temas de pesquisa e desenvolvimento no âmbito da Informática em Saúde. No entanto, no Brasil e em odontologia, poucos são os estudos publicados. Frente às deficiências apresentadas no fluxo das informações clínicas nos prontuários baseados em papel e visando o aperfeiçoamento deste fluxo para benefício do paciente e da própria instituição, nos propusemos a desenvolver um prontuário eletrônico direcionado ao atendimento odontológico de pacientes portadores de necessidades especiais do Centro de Atendimento a Pacientes Especiais da Faculdade de Odontologia da USP. Para tanto foi utilizada a metodologia de desenvolvimento denominada ?modelagem orientada ao objeto?. O software foi desenvolvido em conjunto com o Centro de Tecnologia XML do Instituto de Pesquisas Tecnológicas de São Paulo. Uma vez terminado, o software foi submetido ao processo de obtenção de registro na Agência USP de Inovações. / The Electronic Patient Record (EPR) is currently one of the main subjects of research and development in the scope of Health Informatics. In Dentistry, however, few are the published studies in Brazil. Facing deficiencies presented in the clinical information flow in paper based patient record and aiming to improve this flow for both patient and institution benefit, we proposed to develop a electronic patient record system suited to Dentistry attendance of patients with special needs of the Special Care Dentistry Center of University of São Paulo. For such task, it was utilized the ?Object-oriented modeling? software development methodology. The software was developed with the Center of Technology XML of the Institute of Technological Research of São Paulo. Once finished, it was submitted to patent attainment at the University of São Paulo Innovations Agency.

Submitted by Filipe dos Santos (fsantos@pucsp.br) on 2016-11-18T11:35:24Z No. of bitstreams: 1 Douglas Fabiano Lourenço.pdf: 1604469 bytes, checksum: b615b17c4a8ddd4a5b7ec91905da223a (MD5) / Made available in DSpace on 2016-11-18T11:35:24Z (GMT). No. of bitstreams: 1 Douglas Fabiano Lourenço.pdf: 1604469 bytes, checksum: b615b17c4a8ddd4a5b7ec91905da223a (MD5) Previous issue date: 2016-09-15 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior / Computational intelligence participates as a support tool in various areas of knowledge, particularly specialized area of health. This thesis raises some basis for development of a model to meet the pregnant women, users of the Mobile Emergency Care Service - SAMU. Patient medical records are essential and should contain all the health history from birth, in addition to treatment and care prescribed and received in the institutions, and the informational way to store electronic health records, assists in the health services, beyond the individual and chronologically, generating information, called the Electronic Patient Record - PEP. Thus, the goal is to develop a computer model by algorithm based on the score Malines and Manchester classification that can be used to care for pregnant women. Through this approach, it concluded, determine a computational algorithm, then the implementation of a prototype software to record data derived from pregnant women and suggest an effective service to the requester, able to perform in this manner, a solution in service, using intelligence computer / A inteligência computacional participa como ferramenta de apoio em várias áreas do conhecimento, em especial a área especializada da saúde. Essa pesquisa busca levantar fundamentos para elaboração de um modelo para atendimento as mulheres gestantes, utilizadoras do Serviço de Atendimento Móvel de Urgência – SAMU. Registros médicos do paciente são essenciais e devem conter todo o histórico de saúde, além dos tratamentos e cuidados prescritos e recebidos nas instituições. A forma informacional para armazenar os registros eletrônicos de saúde, auxiliam nos serviços da área especializada, gerando informação, assim, denominando-se como Prontuário Eletrônico do Paciente – PEP. Dessa forma, o objetivo é desenvolver um modelo computacional, através de algoritmo, baseado na pontuação de Malinas e classificação de Manchester, para aplicação no atendimento às gestantes. Por meio dessa abordagem, se conclui na determinação de um algoritmo computacional, posteriormente a implementação de um protótipo de software para registro de dados oriundos das mulheres gestantes e sugerir um atendimento eficaz à solicitante, capaz de realizar dessa maneira, uma solução no atendimento, utilizando a inteligência computacional

O Prontuário Eletrônico do Paciente (PEP) é atualmente um dos principais temas de pesquisa e desenvolvimento no âmbito da Informática em Saúde. No entanto, no Brasil e em odontologia, poucos são os estudos publicados. Frente às deficiências apresentadas no fluxo das informações clínicas nos prontuários baseados em papel e visando o aperfeiçoamento deste fluxo para benefício do paciente e da própria instituição, nos propusemos a desenvolver um prontuário eletrônico direcionado ao atendimento odontológico de pacientes portadores de necessidades especiais do Centro de Atendimento a Pacientes Especiais da Faculdade de Odontologia da USP. Para tanto foi utilizada a metodologia de desenvolvimento denominada ?modelagem orientada ao objeto?. O software foi desenvolvido em conjunto com o Centro de Tecnologia XML do Instituto de Pesquisas Tecnológicas de São Paulo. Uma vez terminado, o software foi submetido ao processo de obtenção de registro na Agência USP de Inovações. / The Electronic Patient Record (EPR) is currently one of the main subjects of research and development in the scope of Health Informatics. In Dentistry, however, few are the published studies in Brazil. Facing deficiencies presented in the clinical information flow in paper based patient record and aiming to improve this flow for both patient and institution benefit, we proposed to develop a electronic patient record system suited to Dentistry attendance of patients with special needs of the Special Care Dentistry Center of University of São Paulo. For such task, it was utilized the ?Object-oriented modeling? software development methodology. The software was developed with the Center of Technology XML of the Institute of Technological Research of São Paulo. Once finished, it was submitted to patent attainment at the University of São Paulo Innovations Agency.