Made available in DSpace on 2016-07-27T14:21:14Z (GMT). No. of bitstreams: 1 Patricia de Oliveira Vasconcelos.pdf: 1122281 bytes, checksum: e65f09c79ed3bbace7181e1dfc244d73 (MD5) Previous issue date: 2006-11-20 / Obesity is a chronic multidimensional disease and with high degree of associated comorbities, whose incidence has been increasing lately in many countries. The weight loss, through the bariatric surgery, can lead patients with obesity to a better Quality of Life (QOL). This study aimed at evaluate the perception of obese people's QOL, in pré and post-surgical condition. Thirty obese, degree III and II with associated comorbities that awaited the accomplishment of the bariatric surgery (Group I) and thirty obese that had already submitted to the procedure (Group II) in a public hospital, answered WHOQOL- 100 and SF-36, instruments of evaluation of QOL, and a semi-structured interview seeking the subjective evaluation of those participants' QOL. In WHOQOL-100, the Group II presented larger punctuation that the Group I in all the domains, indicating better QOL, detaching a little significant difference in the domains of social relationships and spirituality/religion/values. In SF-36, the Group II presented improvement in the perception of QOL in all the dimensions, excepting the dimension of emotional aspects, which maintained equality among the two Groups. In the semi-structured interview it was possible evaluate nine thematic categories that allowed to evaluate the concepts of health, disease and the participants' QOL, as well as their perception of the net work of social support that are inserted, the locus of control and the coping that use in stress situations, such as their disease and treatment. In the social and family dimension of QOL, the two Groups presented a percentage significant in behavior positive front the net work of social support (9.9% - Group I and 10.5% - Group II). The group I presented larger percentile in internal locus of control (3.6%), while the Group II, in external locus of control (3.8%) and in the coping the largest percentage was in the behavior coping (9.5% - Group I and 8.7% - Group II). The Group II presented improvement in all dimensions of QOL, mainly, in the physical dimensions and functional capacity, proving that weight loss through the bariatric surgery is an effective treatment in concerns the improvement in general QOL. / A obesidade é uma doença crônica, multidimensional e com alto grau de comorbidades associadas, cuja incidência tem aumentado nos últimos anos em muitos países. A perda de peso, por meio da cirurgia bariátrica, pode levar a uma melhoria na Qualidade de Vida (QV) das pessoas com obesidade. Este estudo objetivou avaliar a percepção de QV de pessoas com obesidade, em condição pré e pós-cirúrgica. Trinta pessoas com obesidade, grau III e II com comorbidades associadas que aguardavam a realização da cirurgia bariátrica (Grupo I) e trinta pessoas com obesidade que já haviam se submetido ao procedimento (Grupo II) em um hospital público, responderam o WHOQOL-100 e o SF- 36, instrumentos de avaliação de QV, e uma entrevista semi-estruturada visando a avaliação subjetiva da QV desses participantes. No WHOQOL-100, o Grupo II apresentou maior pontuação que o Grupo I em todos os domínios, indicando melhor QV, destacando uma diferença pouco significativa nos domínios de relações sociais e espiritualidade/religião/crença. No SF-36, o Grupo II apresentou melhoria na percepção de QV em todas as dimensões, excetuando-se a dimensão de aspectos emocionais, que manteve igualdade entre os dois Grupos. Na entrevista semi-estruturada foi possível a categorização de nove categorias temáticas que permitiram avaliar os conceitos de saúde, doença e QV dos participantes, bem como sua percepção da rede de suporte social em que estão inseridos, o locus de controle e as estratégias de enfrentamento que utilizam em situações de estresse, tais como sua doença e tratamento. Na dimensão social e familiar da QV, os dois Grupos apresentaram um percentual significativo em comportamento positivo frente a rede de suporte social (9.9% - Grupo I e 10.5% - Grupo II). O grupo I apresentou maior percentual em locus interno (3.6%), enquanto o Grupo II, em locus externo (3.8%) e nas estratégias de enfrentamento a maior percentagem foi na estratégia comportamental (9.5% - Grupo I e 8.7% - Grupo II). Os participantes do Grupo II apresentaram melhoria em todas as dimensões da QV, principalmente, nas dimensões físicas e de capacidade funcional, demonstrando que a perda de peso por meio da cirurgia bariátrica é um tratamento eficaz no que diz respeito à melhoria na QV geral.

O aumento da incidência das doenças crônicas entre a população é um fato conhecido e tem suscitado muitas discussões sobre a questão. Viver com uma condição crônica de saúde, especificamente a Insuficiência Renal Crônica (IRC) traz uma série de mudanças à vida das pessoas e seus familiares, requerendo enfrentamentos, impondo dificuldades que nem sempre a família ou a equipe de saúde estão preparadas para contribuir e principalmente compreender. Este tem como objetivos descrever o perfil dos pacientes submetidos à hemodiálise no município de Guarapuava –PR, segundo variáveis sócio-demográficas e clínicas e de avaliar a Qualidade de Vida Relacionada à Saúde (QVRS) destes pacientes, no período de dezembro de 2004 a fevereiro de 2005. Este estudo caracteriza-se por ser seccional ou de corte transversal. A coleta dos dados sócio-demográficos foi realizada através de prontuários e as variáveis de QV foram levantadas através da aplicação do instrumento SF-36, Medical Outcomes Study 36 – Item Short Form Health Survey, durante as sessões de hemodiálise. O local de coleta dos dados foi a Clínica de Doenças Renais Ltda (CLIRE) no município de Guarapuava –PR. Participaram do estudo um total de 60 pacientes. Dentre os pacientes estudados, 65% eram naturais de Guarapuava-PR, a maioria (57%) possuía fundamental incompleto, 33% eram “do lar" ou aposentados, 73% eram casados, 35% encontravam-se em tratamento hemodialítico por glomerulonefrite. A renda familiar média foi de R$ 601,80; a idade mínima no início da hemodiálise foi de 15 anos e a máxima de 83 anos com valor médio de 47 anos e DP de 15 anos e o tempo médio de hemodiálise foi de 991,22 dias. As respostas ao Instrumento SF-36 apresentaram-se consistentes para todos as dimensões (αtotal=0,8763) e para cada uma das dimensões separadamente (αmin=0,6838 e αmáx=0,9618), exceto para Estado Geral da Saúde (α=0,4910). Houve muito comprometimento para Aspectos Físicos (média= 24,1; Md=0;) e algum comprometimento para Vitalidade (média=60,6; Md=60); Dor (média=57,8; Md=62), Estado Geral da Saúde (média=64,5; Md=67), Saúde Mental (média = 72,3; Md=76) e Capacidade Funcional (média=69,9; Md=80). Aspectos Emocionais, embora apresentado valor mediano satisfatório (Md=83,3), mostrou um valor médio inferior (média=54,4) indicando um possível efeito de tempo de hemodiálise nesta dimensão. Aspectos Sociais apresentou maiores escores (média=75,2; Md=87,5). Concluise que a versão para a língua portuguesa do SF-36 foi válida para avaliar, de forma multidimensional, a QVRS de pacientes em hemodiálise. / The increased incidence of chronic diseases in the population is a well-known fact that has aroused numerous discussions. Living with a chronic health condition, specifically Chronic Renal Insufficiency (CRI) entails a series of changes in the lives of patients and family members, which require coping and impose difficulties the family or the health team are not always prepared to contribute to and mainly to understand. This study aims to describe the profile of patients under hemodialysis in Guarapuava–PR, Brazil, according to sociodemographic and clinical variables, as well as to evaluate these patients’ Health Related Quality of Life (HRQoL), between December 2004 and February 2005. A transversal or cross-sectional study was carried out. Sociodemographic data were collected from patient records, while the QL variables were surveyed through the SF-36, Medical Outcomes Study 36 – Item Short Form Health Survey, during hemodialysis sessions. Data collection occurred at the renal illness clinic CLIRE, located in Guarapuava–PR. 60 patients participated in the study. 65% of the study participants came from Guarapuava-PR, most patients (57%) had not finished basic education, 33% worked at home or were retired, 73% were married and 35% received hemodialysis treatment for glomerulonephritis. Average family income corresponded to R$ 601.80; ages ranged from 15 to 83 years at the start of treatment (mean 47 years, SD 15 years) and average hemodialysis time was 991.22 days. Answers to the SF-36 were consistent in all dimensions (αtotal=0.8763) and for each dimension separately (αmin=0.6838 and αmax=0.9618), except for General Health (α=0.4910). Physical Aspects were greatly affected (mean=24.1; Md=0), while Vitality (mean=60,6; Md=60); Pain (mean=57.8; Md=62), General Health (mean=64.5; Md=67), Mental Health (mean=72.3; Md=76) and Functional Capacity (mean=69.9; Md=80) were somewhat affected. In spite of a satisfactory median value (Md=83.3), Emotional Aspects obtained a lower average score (mean=54.4), which indicates that this dimension may be affected by hemodialysis time. Social Aspects obtained the highest scores (mean=75.2; Md=87.5). The Portuguese version of the SF-36 was found valid to provide a multidimensional evaluation of hemodialysis patients’ HRQoL.

Made available in DSpace on 2016-04-27T18:47:08Z (GMT). No. of bitstreams: 1 Fabiana Santos Fonseca.pdf: 908742 bytes, checksum: 13afe115c1346ed9f6d3a3d4cbb451ca (MD5) Previous issue date: 2011-12-14 / The goal of this dissertation was to evaluate the quality of life of elderly participants of a group of health promotion, through the generic questionnaire SF-36. The Brazilian version of SF-36 questionnaire was administered to 78 elderly to assess the quality of life. The results obtained were associated to the socioeconomic, demographic characteristics, conditions of health and lifestyle. We observe that for seniors who attended and participated in the program the socializing itself overlaps the other dimensions of quality of life and health promotion. The importance of sociality draws the attention of elderly non-participants, they become interested in the program, seeing it as a significant mediator between "health" and "quality of life" and helping to break the vicious cycle of fragility syndrome. Of the areas assessed, it emphasizes the maintenance of functional capacity directly associated, in turn, the quality of life, insofar as it relates the individual's ability to keep both the relations of social exchange, such as independence. This area presents satisfactory association with the clinical evaluation. The SF-36 proved to be a suitable instrument for the application relatively fast and easy to use for evaluating the quality of life in the elderly. In the population studied, the quality of life was associated with the lifestyle of patients and pointed to the need for actions that contribute positively to improving the lifestyle in this new phase of life / O objetivo dessa dissertação foi avaliar a qualidade de vida de idosos participantes de um grupo de promoção à saúde, por meio do questionário genérico do SF-36. A versão brasileira do questionário SF-36 foi aplicada em 78 idosos para avaliação da qualidade de vida. Os resultados obtidos foram associados às características demográficas, socioeconômicas, condições de saúde e estilo de vida. Observamos que para os idosos que participaram e participam do programa a socialização se sobrepõe às outras dimensões da qualidade de vida e promoção da saúde. A importância da sociabilidade chama a atenção dos idosos não participantes; estes passam a se interessar pelo programa, vendo-o como um mediador significativo entre saúde e qualidade de vida e contribuindo para a quebra do ciclo vicioso da síndrome de fragilidade. Dos domínios avaliados, ressalta-se a manutenção da capacidade funcional diretamente associada, por sua vez, à qualidade de vida, na medida em que esta se refere à capacidade do indivíduo manter tanto as relações de trocas sociais, como a independência. Este domínio apresenta associação satisfatória com a avaliação clínica. O questionário SF-36 mostrou-se um instrumento adequado, de aplicação relativamente rápida e de fácil uso para avaliação da qualidade de vida em idosos. Na população estudada, a qualidade de vida foi associada ao estilo de vida dos pacientes e apontou para a necessidade de ações que contribuam de forma positiva para melhorar o estilo de vida nesta nova fase da vida

Made available in DSpace on 2014-12-17T15:38:59Z (GMT). No. of bitstreams: 1 IsraelLLF_DISSERT.pdf: 3244558 bytes, checksum: e46a1b6adc42426356bdca03afd3f98b (MD5) Previous issue date: 2012-08-06 / Coordena??o de Aperfei?oamento de Pessoal de N?vel Superior / The context of blood donation in Brazil faces problems since the start of its operations in the 1940, in the beginning the biggest obstacle was obtain safe and qualified blood, and then, established criteria for donations, the barrier is the low number of suitable candidates for donation. This suitability is associated with the good health of those who goes to the services of blood banks and the return of the donor is often conditioned by the way care is given and perceived by the user. The quality of life, defined as a perception that a person has of her/his position in the world, can influence the health and emerges as a way to focus on the subjectivity in a context dominated by objective and practical exams; listen to the views about the received services increases the focus on the user and provides feedback to the institution, guiding and planning its future actions. The purpose of this study was to verify the quality of life in blood donors and their perceptions of care in a blood center in Natal/RN. This is a descriptive cross sectional study conducted with blood donors from Dalton Cunha Barbosa blood center. The used protocols were: a structures questionnaire with questions on sociodemographic and services perception data, and SF-36 quality of life instrument. The sociodemographic and SF-36 data ware analyzed using descriptive and inferential statistics, using the statistical package PASW 18.0; those related to treatment were submitted to thematic content analysis. The results revealed a sample mainly composed by men, married people, who attended high school and had already made previous donations, with the first two groups returning more often for donations. The scores of the SF-36 confirm the certificated of good health of the screens, beind high in all areas and featuring a healthy population; statistically significant differences were denoted between sexes, levels of education and marital status. The speeches about the service were mostly positive and had as main focus acess, agility, technical aspects and subjective feelings. The data regarding the Rio Grande do Norte blood donors profile confirmed some characteristics of the Brazilian ones, those data of the SF-36 were similar to those found in studies with healthy groups and the impressions about the care received show similarities with national and international studies about the attendance at blood banks / O campo de doa??o de sangue no Brasil enfrenta problemas desde o in?cio de sua atua??o na d?cada de 1940, se a princ?pio o maior entrave era conseguir sangue seguro e de qualidade, depois de estabelecidos crit?rios para doa??es, o obst?culo est? no baixo n?mero de candidatos aptos ? doa??o. A aptid?o est? relacionada ? boa sa?de daqueles que buscam os servi?os de hemocentros e o retorno do doador, muitas vezes, condicionado ? forma como o atendimento ? prestado e percebido pelo usu?rio. A qualidade de vida, percep??o que o indiv?duo tem de sua posi??o no contexto no qual se insere, pode influenciar a sa?de e emerge como forma de enfocar a subjetividade em um contexto de exames e pr?ticas objetivas; audi??o de impress?es sobre o atendimento recebido amplia o foco sobre o usu?rio e permite um feedback a institui??o para que esta oriente e planeje sua atua??o. O presente estudo objetivou verificar a qualidade de vida em doadores de sangue e sua percep??o do atendimento em um hemocentro de Natal/RN. Trata-se de um estudo descritivo de corte transversal, realizado com doadores de sangue usu?rios dos servi?os do Hemocentro Dalton Barbosa Cunha (HEMONORTE). Foram utilizados como protocolos: um question?rio estruturado, com quest?es sociodemogr?ficas e sobre o atendimento, e o instrumento de Qualidade de Vida SF-36. Os dados sociodemogr?ficos e do SF-36 foram analisados utilizando-se estat?stica descritiva e inferencial, com auxilio do pacote estat?stico PASW 18.0; aqueles referentes ao atendimento foram submetidos ? an?lise de conte?do tem?tica. Os resultados revelaram uma amostra essencialmente composta por homens, pessoas casadas, que estudaram at? o segundo grau e j? tinham feito doa??es anteriores, com os dois primeiros grupos retornando mais frequentemente para doa??es. Os escores obtidos no SF-36 confirmam o atestado de boa sa?de das triagens, sendo elevados em todos os dom?nios e caracterizando uma popula??o saud?vel; denotaram-se diferen?as estat?sticas significativas entre os sexos, n?veis de escolaridade e estados civis. Os discursos sobre o atendimento foram em sua maioria positivos e tiveram como focos principais o acesso, agilidade, aspectos t?cnicos e sensa??es subjetivas. Dados referentes ao perfil do doador potiguar confirmam caracter?sticas algumas do doador brasileiro, aqueles do SF-36 assemelham-se aos encontrados em estudos com grupos de indiv?duos saud?veis e as impress?es sobre o atendimento recebido t?m similaridades com estudos nacionais e estrangeiros sobre o atendimento em bancos de sangue

O aumento da incidência das doenças crônicas entre a população é um fato conhecido e tem suscitado muitas discussões sobre a questão. Viver com uma condição crônica de saúde, especificamente a Insuficiência Renal Crônica (IRC) traz uma série de mudanças à vida das pessoas e seus familiares, requerendo enfrentamentos, impondo dificuldades que nem sempre a família ou a equipe de saúde estão preparadas para contribuir e principalmente compreender. Este tem como objetivos descrever o perfil dos pacientes submetidos à hemodiálise no município de Guarapuava –PR, segundo variáveis sócio-demográficas e clínicas e de avaliar a Qualidade de Vida Relacionada à Saúde (QVRS) destes pacientes, no período de dezembro de 2004 a fevereiro de 2005. Este estudo caracteriza-se por ser seccional ou de corte transversal. A coleta dos dados sócio-demográficos foi realizada através de prontuários e as variáveis de QV foram levantadas através da aplicação do instrumento SF-36, Medical Outcomes Study 36 – Item Short Form Health Survey, durante as sessões de hemodiálise. O local de coleta dos dados foi a Clínica de Doenças Renais Ltda (CLIRE) no município de Guarapuava –PR. Participaram do estudo um total de 60 pacientes. Dentre os pacientes estudados, 65% eram naturais de Guarapuava-PR, a maioria (57%) possuía fundamental incompleto, 33% eram “do lar” ou aposentados, 73% eram casados, 35% encontravam-se em tratamento hemodialítico por glomerulonefrite. A renda familiar média foi de R$ 601,80; a idade mínima no início da hemodiálise foi de 15 anos e a máxima de 83 anos com valor médio de 47 anos e DP de 15 anos e o tempo médio de hemodiálise foi de 991,22 dias. As respostas ao Instrumento SF-36 apresentaram-se consistentes para todos as dimensões (αtotal=0,8763) e para cada uma das dimensões separadamente (αmin=0,6838 e αmáx=0,9618), exceto para Estado Geral da Saúde (α=0,4910). Houve muito comprometimento para Aspectos Físicos (média= 24,1; Md=0;) e algum comprometimento para Vitalidade (média=60,6; Md=60); Dor (média=57,8; Md=62), Estado Geral da Saúde (média=64,5; Md=67), Saúde Mental (média = 72,3; Md=76) e Capacidade Funcional (média=69,9; Md=80). Aspectos Emocionais, embora apresentado valor mediano satisfatório (Md=83,3), mostrou um valor médio inferior (média=54,4) indicando um possível efeito de tempo de hemodiálise nesta dimensão. Aspectos Sociais apresentou maiores escores (média=75,2; Md=87,5). Concluise que a versão para a língua portuguesa do SF-36 foi válida para avaliar, de forma multidimensional, a QVRS de pacientes em hemodiálise. / The increased incidence of chronic diseases in the population is a well-known fact that has aroused numerous discussions. Living with a chronic health condition, specifically Chronic Renal Insufficiency (CRI) entails a series of changes in the lives of patients and family members, which require coping and impose difficulties the family or the health team are not always prepared to contribute to and mainly to understand. This study aims to describe the profile of patients under hemodialysis in Guarapuava–PR, Brazil, according to sociodemographic and clinical variables, as well as to evaluate these patients’ Health Related Quality of Life (HRQoL), between December 2004 and February 2005. A transversal or cross-sectional study was carried out. Sociodemographic data were collected from patient records, while the QL variables were surveyed through the SF-36, Medical Outcomes Study 36 – Item Short Form Health Survey, during hemodialysis sessions. Data collection occurred at the renal illness clinic CLIRE, located in Guarapuava–PR. 60 patients participated in the study. 65% of the study participants came from Guarapuava-PR, most patients (57%) had not finished basic education, 33% worked at home or were retired, 73% were married and 35% received hemodialysis treatment for glomerulonephritis. Average family income corresponded to R$ 601.80; ages ranged from 15 to 83 years at the start of treatment (mean 47 years, SD 15 years) and average hemodialysis time was 991.22 days. Answers to the SF-36 were consistent in all dimensions (αtotal=0.8763) and for each dimension separately (αmin=0.6838 and αmax=0.9618), except for General Health (α=0.4910). Physical Aspects were greatly affected (mean=24.1; Md=0), while Vitality (mean=60,6; Md=60); Pain (mean=57.8; Md=62), General Health (mean=64.5; Md=67), Mental Health (mean=72.3; Md=76) and Functional Capacity (mean=69.9; Md=80) were somewhat affected. In spite of a satisfactory median value (Md=83.3), Emotional Aspects obtained a lower average score (mean=54.4), which indicates that this dimension may be affected by hemodialysis time. Social Aspects obtained the highest scores (mean=75.2; Md=87.5). The Portuguese version of the SF-36 was found valid to provide a multidimensional evaluation of hemodialysis patients’ HRQoL.

Disertacijoje tiriant ligonių, ilgai gydytų intensyviosios terapijos skyriuje, su sveikata susijusios gyvenimo kokybės skirtumus iki gydymo ir praėjus 6 mėnesiams po gydymo vertinamos gyvenimo kokybės pablogėjimo priežastys bei gyvenimo kokybės ir mirštamumo po iškėlimo iš intensyviosios terapijos skyriaus ryšys. Jau anksčiau nustatyta, kad gyvenimo kokybė po gydymo intensyviosios terapijos skyriuje pablogėja. Tačiau neaišku, kokie veiksniai turi didžiausios įtakos intensyviosios terapijos skyriaus ligonių gyvenimo kokybei. Ypač mažai duomenų apie ligonių, ilgai gydytų intensyviosios terapijos skyriuje, gyvenimo kokybę po iškėlimo iš intensyviosios terapijos skyriaus. Tyrimo rezultatai patvirtino, kad ilgas gydymas intensyviosios terapijos skyriuje turi didžiausios įtakos fizinėms su sveikata susijusioms gyvenimo kokybės sritims. Tyrimo rezultatai įrodo, kad būklės sunkumas pirmą gydymo intensyviosios terapijos skyriuje parą, terapinių intervencijų skaičius iškėlimo iš intensyviosios terapijos skyriaus metu ir sunkus kritinių būklių neuroraumeninis pažeidimas susiję su pablogėjusia gyvenimo kokybe, o dirbtinės plaučių ventiliacijos trukmė – veiksnys turintis didžiausią įtaką gyvenimo kokybės blogėjimui. Taip pat nustatyta, kad įprastos sistemos būklės sunkumui įvertinti netinka numatyti ligonių mirštamumui po gydymo intensyviosios terapijos skyriuje, o nustačius fizinį aktyvumą iki gydymo intensyviosios terapijos skyriuje tai galima atlikti. / The doctoral dissertation investigates changes in health-related quality of life for long-term intensive care patients prior to ICU admission and 6 months after ICU discharge, exploring into the causes of impaired quality of life and the relationship between the quality of life and post-ICU mortality. It has already been established that the quality of life decreases after treatment in the intensive care unit. However, factors that have the strongest effect on the quality of life in ICU patients have not been identified. Information on post-ICU quality of life in long-term intensive care patients is particularly scarce. The findings of our research confirmed that long term treatment in the intensive care unit has major implications for the physical domains of health-related quality of life. The findings evidence that severity of illness on the first day in the ICU, number of therapeutic interventions upon ICU discharge and severe critical illness neuromuscular abnormalities are associated with impaired quality of life, while duration of mechanical ventilation is the factor with the strongest effect on reduced quality of life. Likewise, the findings demonstrate that usual systems for identification of severity of illness are not useful for predicting mortality in patients after discharge from the intensive care unit. Yet, identification of pre-ICU physical activity allows predicting post-ICU mortality.

The doctoral dissertation investigates changes in health-related quality of life for long-term intensive care patients prior to ICU admission and 6 months after ICU discharge, exploring into the causes of impaired quality of life and the relationship between the quality of life and post-ICU mortality. It has already been established that the quality of life decreases after treatment in the intensive care unit. However, factors that have the strongest effect on the quality of life in ICU patients have not been identified. Information on post-ICU quality of life in long-term intensive care patients is particularly scarce. The findings of our research confirmed that long term treatment in the intensive care unit has major implications for the physical domains of health-related quality of life. The findings evidence that severity of illness on the first day in the ICU, number of therapeutic interventions upon ICU discharge and severe critical illness neuromuscular abnormalities are associated with impaired quality of life, while duration of mechanical ventilation is the factor with the strongest effect on reduced quality of life. Likewise, the findings demonstrate that usual systems for identification of severity of illness are not useful for predicting mortality in patients after discharge from the intensive care unit. Yet, identification of pre-ICU physical activity allows predicting post-ICU mortality. / Disertacijoje tiriant ligonių, ilgai gydytų intensyviosios terapijos skyriuje, su sveikata susijusios gyvenimo kokybės skirtumus iki gydymo ir praėjus 6 mėnesiams po gydymo vertinamos gyvenimo kokybės pablogėjimo priežastys bei gyvenimo kokybės ir mirštamumo po iškėlimo iš intensyviosios terapijos skyriaus ryšys. Jau anksčiau nustatyta, kad gyvenimo kokybė po gydymo intensyviosios terapijos skyriuje pablogėja. Tačiau neaišku, kokie veiksniai turi didžiausios įtakos intensyviosios terapijos skyriaus ligonių gyvenimo kokybei. Ypač mažai duomenų apie ligonių, ilgai gydytų intensyviosios terapijos skyriuje, gyvenimo kokybę po iškėlimo iš intensyviosios terapijos skyriaus. Tyrimo rezultatai patvirtino, kad ilgas gydymas intensyviosios terapijos skyriuje turi didžiausios įtakos fizinėms su sveikata susijusioms gyvenimo kokybės sritims. Tyrimo rezultatai įrodo, kad būklės sunkumas pirmą gydymo intensyviosios terapijos skyriuje parą, terapinių intervencijų skaičius iškėlimo iš intensyviosios terapijos skyriaus metu ir sunkus kritinių būklių neuroraumeninis pažeidimas susiję su pablogėjusia gyvenimo kokybe, o dirbtinės plaučių ventiliacijos trukmė – veiksnys turintis didžiausią įtaką gyvenimo kokybės blogėjimui. Taip pat nustatyta, kad įprastos sistemos būklės sunkumui įvertinti netinka numatyti ligonių mirštamumui po gydymo intensyviosios terapijos skyriuje, o nustačius fizinį aktyvumą iki gydymo intensyviosios terapijos skyriuje tai galima atlikti.

Around 30,000 people in Sweden suffer stroke every year, out of which about 12,000 end up with language difficulties, aphasia. Behind every person with aphasia there are significant others whose lives are also affected. Studies of how aphasia affects the health of these people are few. The overall aim of the present study was to examine how significant others of people with aphasia perceive their life situation, and how their quality of life is affected by the illness of their partner. Spouses of people with aphasia were contacted through aphasia groups and the Swedish Aphasia Association. A total of eleven people participated in the study, which consisted of the health survey SF-36 and semi-structured interviews. The results indicated that men, working people, and people at retirement age are at risk of having a lower health-related quality of life, by living with a person suffering from aphasia. Other factors that seemed to contribute to a lower quality of life were; a more severe aphasia, a big work load at home, less mutual activities as a couple, and a general decrease of communication in everyday life. The conclusion is therefore, that the health-related quality of life is at risk of becoming negatively affected by living with a person who suffers from aphasia. / Varje år insjuknar cirka 30 000 personer i stroke i Sverige och av dem drabbas cirka 12 000 av språkliga svårigheter i form av afasi. Bakom varje person med afasi finns det anhöriga, vars liv också påverkas. Hur afasin påverkar den anhöriges hälsa är inte väl studerat. Det övergripande syftet med föreliggande studie var därmed att undersöka hur anhöriga, till personer med afasi, uppfattar sin egen livssituation, samt hur deras livskvalitet påverkas av den närståendes sjukdom. Partner till personer med afasi kontaktades genom afasigrupper och afasiföreningar. Totalt valde elva personer att deltaga i studien, vilken bestod av hälsoenkäten SF-36 samt en semistrukturerad intervju. Resultaten pekade på att män, yrkesverksamma och personer i pensionsålder riskerar att få en lägre hälsorelaterad livskvalitet av att leva med någon med afasi. Övriga faktorer, som tycktes bidra till en lägre livskvalitet, var en svårare afasi, en hög börda i hemmet, färre gemensamma aktiviteter som par samt en generell försämring av kommunikationen i vardagen. Slutsatsen är därmed att den hälsorelaterade livskvaliteten riskerar att påverkas negativt av att leva med en person som drabbats av afasi.

Darbo tikslas. Įvertinti sergančiųjų reumatoidiniu artritu darbingo amžiaus žmonių gyvenimo kokybės sąsajas su sveikatos paslaugų prieinamumu Prienų rajone. Uždaviniai. Įvertinti sergančiųjų reumatoidiniu artritu darbingo amžiaus žmonių klinikinę charakteristiką ir sąsajas su socialiniais – ekonominiais veiksniais. Ištirti sergančiųjų reumatoidiniu artritu darbingo amžiaus žmonių savarankiško judėjimo ir apsitarnavimo galimybes. Įvertinti sergančiųjų reumatoidiniu artritu darbingo amžiaus žmonių gydymo įstaigos pasiekiamumo ir aptarnavimo galimybes. Įvertinti sergančiųjų reumatoidiniu artritu gyvenimo kokybės ir skausmo intensyvumo sąsajas su aptarnavimu ir sveikatos priežiūros paslaugų prieinamumo galimybėmis. Tyrimo metodika. Kiekybinis momentinis tyrimas. Anketinė apklausa, naudota SF – 36, DAS 28 ir paruoštas bendrojo pobūdžio klausimynas. Analizuojamosios imties dydis – 67 reumatoidiniu artritu sergantys asmenys. Atsako dažnis – 74,4 proc. Gautiems duomenims apdoroti naudota SPSS 22.0. Rezultatai. Tyrime dalyvavo 61,2 proc. moterų ir 38,8 proc. vyrų. Patenkinamai savo sveikatos būklę dažniau vertino dirbantys respondentai, gyvenantys santuokoje, kaime. Nustatyta, kad sąnarių skausmas dažnai vargina 50,7 proc. respondentų, sąnarių sutinimas – 40,3 proc. tiriamųjų, rytinis sąnarių sustingimas – 34,3 proc. apklaustųjų, sąnarių judesių ribotumas – 52,2 proc. Nedirbantys, gaunantys mažas pajamas respondentai dažniau teigė turintys daugiau sutinusių ir skausmingų sąnarių... [toliau žr. visą tekstą] / Aim of the study. To evaluate the quality of life and its links with accessibility to healthcare services for working age patients with rheumatoid arthritis in Prienai region. Objectives. To evaluate the clinical characteristics and their links to the social - economic factors for working age patients with rheumatoid arthritis. To analize the self-movement and the self-service capabilities for working age patients with rheumatoid arthritis. To evaluate the reach of medical institutions and the service capabilities for working age patients with rheumatoid arthritis. To evaluate the quality of life, the intensity of pain and their links with accessibility to healthcare services for working age patients with rheumatoid arthritis. Methods. Quantitative cross sectional research. The size of the sample under analysis – 67 patients with rheumatoid arthritis. The frequency of the response is 74,4 %. The statistical analysis of data was performed using statistical package SPSS Statistics 22.0. Results. 61,2% women and 38,8% man participated in the study. Working in, living in marriage, living in the village respondents their health evaluated satisfactory more often. The pain of joints more often suffer 50,7% of respondents, the swelling of joints – 40,3%, morning stiffness – 34,3%, limitation of joint movement – 52,2%. The unemployed, with low incomes respondents affirmed about the swollen and the painful joints more often. Respondents living in the village and the employed... [to full text]

This diploma thesis deals with the issue of life quality of patients taking home parenteral nutrition. Its intention is to present the achieved life quality scores in the individual domains of physical and mental health in comparison with general population and to point out the differences in what dimensions the life quality of these patients is particularly affected. The theoretical section describes the present situation of the issue of home parenteral nutrition in the CR and the system of the care about the patients. The chapter about indications and contraindications to HPN is elaborated in more detail. The possibilities of the long-term vascular accesses, the care about them are also mentioned here, and particularly the role of a nurse in patient education in transferring parenteral nutrition to the domestic environment. The problems with long-term parenteral nutrition resulting from mechanic, metabolic and septic complications are also outlined. Parenteral nutrition failure is the most serious problem, which is why a chapter on small intestine transplantation as the last resort to save a patient with combined failure of intestine and nutrition is included. The second part of the theoretical section describes the life quality. I wanted to define the nature of this unambiguously graspable a term, determinants affecting life quality are also mentioned here. The possibilities of life quality measurement and assessment and particularly the follow-up use of the obtained data are mostly summarized here. Goals and hypotheses: Two goals were set to meet the main purpose of the thesis: Goal 1: To find whether the life quality of patients on HPN differs from that of the general public. Goal 2: To find the spheres in which the life quality of patients on HPN is mostly affected. A zero hypothesis was set to achieve the goals: Life quality of patients on HPN does not differ from that of the general public. There is no statistically significant difference between men and women. Eight alternative hypotheses to each life quality domain followed: H1: Patients on HPN show lower life quality score compared to the general public in the sphere of physical functions. H2: Patients on HPN show lower life quality score compared to the general public in the sphere of physical roles' limitation. H3: Patients on HPN show lower life quality score compared to the general public in the sphere of emotional roles' limitation. H4: Patients on HPN show lower life quality score compared to the general public in the sphere of emotional limitation of social functions. H5: Patients on HPN show lower life quality score compared to the general public in the sphere of pain. H6: Patients on HPN show lower life quality score compared to the general public in the sphere of general mental health. H7: Patients on HPN show lower life quality score compared to the general public in the sphere of vitality. H8: Patients on HPN show lower life quality score compared to the general public in the sphere of general health perception. A quantitative method of collected data analysis was applied to the research implementation. The research was based on the standardized questionnaire SF-36 supplemented with questions dealing with identification of respondents, time consumption of their treatment and their consequent satisfaction at the beginning. The questionnaire was distributed to patients using home parenteral nutrition in specialized nutrition centres of the Thomayer Faculty Hospital in Prague, Faculty hospitals in Brno and Hradec Králové and also by electronic means through the website of the citizen association Life without Intestine. The obtained data were statistically evaluated and processed into illustrative tables and graphs.Detailed mapping of the problems of life quality and highlighting of the neglected spheres of life quality of patients using HPN are the outputs of the thesis. The results will be presented to the members of the workgroup for HPN within their.