Das Ziel der vorliegenden Untersuchung bestand darin, eine aussagekräftige und effektive Skala zur Messung der Filialen Reife pflegender Angehöriger zu finden. Im Mittelpunkt standen hierzu die Louvain Filial Maturity Scale A nach Marcoen (LFMS-A) und die Filial Anxiety Scale nach Cicirelli (FAS). Diese wurden erwachsenen betreuenden Kindern von Parkinsonpatienten vorgelegt, um Zusammenhänge zwischen dem Grad ihrer filialen Reife bzw. Angst und dem Ausmaß ihres subjektiven Belastungserlebens zu ermitteln. Besonderes Augenmerk wurde darauf gelegt, welche der Skalen in einem engeren Zusammenhang mit der Belastung der betreuenden Söhne und Töchter stand und folglich eine größere Relevanz in der Beziehung zwischen hilfsbedürftigen Eltern und ihren erwachsenen Kindern aufweist. Darüber hinaus wurde der Frage nachgegangen, inwieweit sich Belastungs- und Beziehungserleben auf die subjektive Schlafqualität der Studienteilnehmer auswirken. Die Stichprobe dieser Untersuchung setzte sich aus 50 Patienten-Betreuer-Paaren und 50 Kontrollpersonen zusammen, die mit Hilfe standardisierter Fragebögen getrennt voneinander interviewt wurden. Anhand der vorliegenden Ergebnisse konnte gezeigt werden, dass ein enger Zusammenhang zwischen der filialen Angst bzw. Reife erwachsener Kinder hilfsbedürftiger Eltern und deren subjektivem Belastungserleben besteht (Hypothese 1): Eine verhältnismäßig hohe filiale Angst sowie ein geringer Grad filialer Reife wirkt sich negativ auf die Betreuungssituation aus, was sich in einer Verstärkung der subjektiven Belastung der betreuende erwachsenen Kinder von Parkinson-Patienten widerspiegelt. Die mittels der FAS gemessene filiale Angst der betreuenden erwachsenen Kinder der Parkinsonpatienten steht in einem engeren Zusammenhang mit ihrer subjektiv empfundenen Belastung als ihre anhand der LFMS-A erhobene filiale Reife (Hypothese 2). Hinsichtlich der allgemeinen Schlafqualität weisen die aktuellen Ergebnisse sowohl bei den erwachsenen betreuenden Kindern als auch bei den Parkinson-Patienten auf deutliche Zusammenhänge mit ihrer gesundheitsbezogenen Lebensqualität hin (Hypothese 3). Darüber hinaus konnte mit Hilfe der aktuellen Untersuchungsergebnisse die Verbindung zwischen einem hohen Grad der Pflegebedürftigkeit der Parkinsonpatienten und einem erhöhten Belastungserleben ihrer betreuenden Söhne und Töchter eindeutig gezeigt werden (Hypothese 4). Einzig die fünfte Hypothese, laut der der Grad der filialen Reife in einem direkten Zusammenhang mit dem Schlafverhalten der Studienteilnehmer steht, konnte im Rahmen der hier vorliegenden Untersuchung nicht bestätigt werden (Hypothese 5). Die Ergebnisse dieser Studie sollen dazu beitragen, das Konzept der Filialen Reife langfristig in der Angehörigenberatung zu etablieren, um Risikopersonen besser beraten und Copingstrategien für einen gelungenen Umgang mit pflegebedürftigen Familienmitgliedern gezielter fördern zu können.

Introductin: The diploma thesis deals wits the quality of life of patients who have undergone more demanding surgery in the area of thoracic or abdominal surgery and were subsequently connected to artificial at present. This increases the need for patients to be places in an intensive care unit. Whwther i tis performance intenzity, length of anesthesia, possible complications during surgery or age of the patient. Stay in intensive care for a patient is physically and mentally very demanding, which may lead to deterioration in qaulity of life after returning to the home environment. Methodology: The research itself was carried out in the framework of qualitative research using a sem- structured interview. The interview was made up of the maim questions that could be supplemented by supplementary questions. Researchers selected patiens who had more severe surgery in the chas tor abdomen and were vented for at least 48 hours. The study also include patients who had a "minor" surgery but had complications nad had to be connected to artificial pulmonary ventilation. The research was conducted from August 2018 tu February 2019. Research Objektive: The main goal of the diploma thesis is to map the quality of life of patients who were hospitalized under intensive care and were exposed to PICS (Post...

Abstract Introduction: The perception of quality of life (QoL) in patients with implantable cardiac devices including implantable cardioverter-defibrillators (ICD), followed by telemonitoring care (Home Monitoring HM), has recently become an extremely hot topic due to constantly increasing number of patients wearing these devices. This increase has resulted in an increased demand for safe, prompt, and more effective out-patient care. Methods: Our research was carried out between December 2016 and March 2017. A cohort of 150 consecutive patients with ICD, followed using the Home Monitoring system (HM+), and 150 consecutive patients with ICD, followed using conventional in-office check-ups (HM-), was retrospectively drawn from the Ceske Budejovice Hospital Patient Information System. A questionnaire, which specifically addressed QoL (EQ5D), level of anxiety and depression (HADS), and a custom questionnaire examining the relationship between patients and the HM system and telecare workflow, was sent out to all patients. Results: For the final statistical analysis, 91 (60.7%) and 104 (69.3%) of the questionnaires were used from the HM+ and HM- groups, respectively. Our results showed that the method of ICD device follow-up did not directly influence QoL. Our statistical comparison of the data did not show any difference between HM+ and HM- patients. A non-significant trend towards better QoL in HM+ compared to HM- patients was noted based on total QoL scores from the EQ5D questionnaire (68.6 ? 19 vs. 64.6 ? 16.5, p = 0.09). Regarding anxiety and depression, statistical testing also failed to find any difference between HM+ and HM- patients. However, more than half of the patients in both groups were in the "normal" population range with respect to anxiety and depression. The most striking difference between HM+ and HM- patients was noted in the preference for the type of follow-up: while 54.9% of HM- patients expressed an interest in remote follow-up and 45.1% said they preferred in-office check-ups, only 6.7% (p < 0.0001) of HM+ patients expressed an interest in switching to in-office check-ups with personal contact instead of remote monitoring. Willingness to partially cover the financial costs of telecare was similar in both groups. HM+ patients were more inclined to use remote ICD monitoring (p = 0.007) and had a more positive attitude toward the telecare approach overall, compared to HM- patients (p = 0.034). Conclusion: The method of device follow-up does not significantly affect QoL in patients with ICD devices, nor does it affect levels of anxiety and depression. Generally, patients with ICDs followed using the HM system were very satisfied with telecare and would prefer not to lose remote ICD monitoring. Although, the willingness to, at least partially, cover the costs of the HM system was limited and comparable to that of patients receiving conventional follow-up.

The face of transplantation has changed in recent decades. The improvement can be observed not only in terms of survival, but also the improved quality of life after this demanding procedure. This is one of the reasons why quality of life is one of the factors to consider (Durant, 2019). This is also due to the fact that in today's modern society one does not only want to survive, but wants to live fully. He wants to benefit his family and the society in which he lives. He wants to do his hobbies. Everybody wants to be active physically and also mentally. Today, quality of life is considered an indicator suitable for assessing physical, mental and social health (Chrastina, 2015). Methodology: The aim of this work is to evaluate how patients after liver transplantation perceive different domains related to quality of life and whether the results are different depending on the time elapsed from transplantation. For the purposes of the research was chosen a quantitative method using a questionnaire. A standardized WHOQOL BREF was used. The questionnaire contains 24 closed questions, which contain four domains and two questions themselves. Two separate questions assess the overal quality of life and overall health. The questionnaire was supplemented by two questions, which were aimed at obtaining...

Introduction: Approximately 10 000 people suffer each year from out-of-hospital cardiac arrest in Sweden. At the turn of the millennia the survival rate for out-of-hospital cardiac arrest was circa three precent and in 2022 the survival rate had increased to around eleven percent. Survivors face cognitive, psychological, and motor problems post arrest which impacts their health-related quality of life (HRQoL) – ie. their perception of their own social and physical environment and health. The research regarding HRQoL following cardiac arrest is limited. With increasing survival rates comes an increasing need for extensive research mapping the HRQoL of cardiac arrest survivors. Aim: The aim of this study was to investigate patients’ perceived health-related quality of life after surviving cardiac arrest.   Method: This study was conducted as a quantitative general literature review with an inductive content analysis. This study used articles that included the SF-36 instrument to measure the HRQoL in cardiac arrest survivors. Main- and subcategories were created based on the data extracted from the included articles. Result: Cardiac arrest patients generally experience their health-related quality of life as worse compared to the general population. Physical, psychological and social factors were identified as the main components whose effect on HRQoL was found to be the greatest. Conclusion: Cardiac arrest survivors experience a reduced HRQoL compared to the general population. The HRQoL is affected in both the psychological and physical dimensions with long term consequences. These results create a foundation for the nurse in the work to improve the HRQoL for the patient.

Made available in DSpace on 2016-04-25T19:20:53Z (GMT). No. of bitstreams: 1 Sonia Cristina de Almeida Santana e Santos.pdf: 1245180 bytes, checksum: 4839a70157e6583236163e855c3a43bf (MD5) Previous issue date: 2008-05-20 / The diagnosis of breast cancer can have undesired and unforeseen repercussions on the life on women s lives, thereby affecting their physical, psychological, social and economic life of women. The treatment process and the notion of living with a fatal disease can trigger a host of negative emotions such as: loss of appetite, insomnia, fear of being forsaken by family and friends and dread of recurrence, in addition to the psychological impact on the feminine body image. This work demonstrates the importance and the meaning that faith, religiosity and spirituality can have in the experience of the diagnosis and treatment of this disease and how these dimensions influenced the quality of life of the women in our sample in this traumatizing period of their lives. Thus faith, religiosity and spirituality have represented the guiding thread that allowed integrating a relevant support of biopsycho- socio-spiritual conditions in the experience of these women / O diagnóstico de neoplasia da mama pode determinar repercussões indesejadas e imprevistas na vida da mulher, afetando as dimensões física, psicológica, social e econômica. O processo do tratamento e a noção de viver com uma enfermidade fatal podem desencadear reações emocionais negativas como: perda de apetite, insônia, alterações de humor, medo de ser abandonada pela família e amigos, temor de recidiva e da morte, além dos impactos psicológicos sobre a imagem feminina. Este trabalho demonstra a importância e o sentido que a fé, a religiosidade e a espiritualidade podem desempenhar na experiência do diagnóstico e tratamento dessa enfermidade. Aponta também, como a vivência dessas dimensões influencia a qualidade de vida das mulheres que foram entrevistadas neste estudo nessa fase traumatizante de suas vidas. Assim, a fé, a religiosidade e a espiritualidade representaram um fio condutor que integrou um suporte relevante de condições biopsicosocioespirituais na vivência dessas mulheres

No description available.