Syftet med denna studie var att skapa en ökad förståelse för hur kuratorer inom den palliativa vården arbetar med närstående och patienter i sorg. Detta för att belysa kuratorns roll i att skapa en så god livskvalitet för patienten som möjligt. Min valda metodologiska ansats var kvalitativ och jag har genomfört semistrukturerade intervjuer. Jag har intervjuat fyra kuratorer inom den palliativa vården; en del av dem från ASIH (avancerad sjukvård i hemmet) och en del från palliativa vårdavdelningar. För att analysera mitt empiriska material har jag använt professionsteori, sorgprocessteorier och en genom studier och litteratur etablerade beskrivning av kuratorers arbete inom hälso- och sjukvården. Resultaten som framkommit i studien är att kuratorerna i studien har en likartad bild av vad deras roll är. En faktor som framkom under intervjuerna var hur kuratorns professionella roll formas av kristeori. En annan faktor var att kuratorerna var medvetna om hur de formade sin roll i arbetet genom professionell handledning. I studien framkommer också hur beskrivningen av vad som krävs som kurator många gånger ligger närmre personlighetsdrag än inlärda metoder. / The aim of this study was to create a greater understanding for how counselors work within the palliative care with bereaved and patients in grief. The purpose was to highlight the counselor’s significance in creating an as good quality of life as possible for the patient. My chosen method was qualitative analysis through semi structured interviews. I have interviewed four counselors within the palliative care; some of them from advanced home care and some from palliative care units. To analyze my empirical data I used Professional theory, grief process theories and the through studies and literature established description of counseling work within the health care system. The results that emerged from the study was that the counselors in the study have a very similar idea of what their role is. One factor that emerged from the interviews was about how the counselor’s professional role was shaped by crisis theory. Another factor was that the counselors were actively aware of and shaped their professional role through professional guidance. The study also shows that the description of what is necessary as a counselor is closer to a description of personality than methods learned through education.

No description available.

Yes / This chapter will examine issues of social justice by focussing on social exclusion and infant mortality. Infant mortality is defined as the death of a live born child before its first birthday. Social exclusion and infant mortality are both important areas of policy debate in the UK and globally (1).We will examine how far they are linked and will focus on ethnic minority populations with higher than average rates of infant mortality. The chapter continues by considering a small group of women who have experienced the death of an infant and who have come together in a group called HOPE. We ask how their experience might inform our understanding of the needs of women at the time of childbirth and in the weeks immediately following it. Their experiences illuminate how feelings of exclusion, and injustice, can be manifest in and through the structures and processes of engaging with health care professionals. The potential to promote social justice and enhance inclusion via listening to the voices of those who have had this experience of loss is considered

To date, researchers who have explored the complexity of childhood bereavement have utilized unstandardized assessment instruments and/or have independently evaluated specific constructs rather than factoring in the dimensionality of loss. The purpose of this study was to use parents' completion of established instruments--the Child Behavior Checklist and the Parenting Stress Index--to examine the multivariate shared relationship between characteristics of bereaved children referred for counseling--their ages, genders, ethnicities, types of loss, and life stressors--and their behavioral manifestations as well as the relationship between these characteristics and levels of parent-child relational stress. Utilizing archival clinical files, I examined these characteristics from bereaved children (N = 98) whose parents sought counseling services from two university-based counseling clinics. The sample consisted of 67 boys and 31 girls between the ages 3 and 11 years old (M = 6.28). The majority of participants (67%, n = 66) identified as Caucasian, 10% (n = 10) as African American, 10% (n = 10) as Hispanic/Latino, 6% as Bi-racial (n = 6), 4% as Native American (n = 4), and 2% as Asian (n = 2). A canonical correlational analyses (CCA) was conducted to examine relationship between characteristics of children and their subsequent behavioral manifestations. The full model was found to be statistically significant using the Wilks’s λ = .611 criterion, F(25, 328.41) = 1.862, p = .008. The R2 type effect size was .389, which indicates the full model explains about 39% of the variance shared between the two variable sets. A second CCA was conducted to explore the relationship between characteristics of bereaved children and levels of parent-child relational stress. The full model was found statistically to be significant using the Wilks’s λ = .790 criterion, F(10, 154) = 1.926, p = .045. The R2 type effect size was .210, which indicates the full model explains about 21% of the variance shared between the two variable sets. Overall, correlational findings from this study provided insight into bereaved children’s manifestations of loss and levels of parent-child relational stress as contingent upon specific characteristics. Specifically, results indicated a strong relationship between age and bereaved children’s behavioral manifestations. This finding reinforced the importance for clinicians to understand developmental implications when working with bereaved children. Furthermore, caregivers who reported minimal overall external stressors also reported less parent-child relational interference. This finding further emphasizes the importance for caregivers to maintain utmost stability for bereaved children.

Thesis (D. Min.)--Gordon-Conwell Theological Seminary, Charlotte, NC, 2000. / Abstract and vita. Includes bibliographical references (leaves 110-114).

Thesis (D. Min.)--Ashland Theological Seminary, 2005. / Abstract. Includes bibliographical references (leaves 124-127, 134-137).

Närstående som mist någon i suicid är i riskzonen för att utveckla psykisk ohälsa. Få studier har undersökt närståendes upplevelse av samhällets stödinsatser. Det är även få studier som undersökt relationen mellan närståendes grad av self-compassion och hjälpsökandebeteende. Syftet med denna studie var därför att undersöka hur närstående upplever samhällets stödinsatser, samt om det finns ett samband mellan grad av self-compassion, antalet stödinsatser de sökt och vilken stödinsats de vänt sig till. Studien bestod av 174 personer som var medlemmar i den ideella organisationen Suicidprevention och efterlevandestöd (SPES) där samtliga var över 18 år. Oberoende t-test användes för att se skillnad i medelvärde mellan olika grupper av self-compassion och antalet stödinsatser de sökt. Vidare gjordes chi-två test och ANOVA-analyser för att se om det fanns en statistisk signifikant skillnad mellan grad av self-compassion, antalet stödinsatser de sökt samt vilken typ av stöd. Resultatet visade att närstående fått mest stöd från framförallt familjemedlem/vän eller partner men även från ideell organisation och religiöst förbund. Minst stöd upplevde de att de fått från vuxenpsykiatrin, vårdcentral och privat professionell behandlare. Det fanns ett signifikant samband mellan antalet stödinsatser deltagare sökt och grad av self-compassion, där de med lägre grad av self-compassion sökte fler stödinsatser. Resultatet visade även en signifikant skillnad i skattningen mellan olika grader av self-compassion och vilka som sökt stödinsatserna vuxenpsykiatrin och familjemedlem/vän eller partner. Resultatet tyder på att det nuvarande stödet är bristande och det behövs mer forskning inom området som underlag till förbättring. / People bereaved by suicide are at risk to develop mental health problems. Few studies have aimed to research on their experience of support efforts in combination with self-compassion and how it influences help-seeking behaviour. The purpose of the study was to investigate how the bereaved experience support efforts, and whether the degree of self-compassion affects how much support they sought and which support effort they turned to. The participants were 174 persons from the non-profit organization Suicidprevention och efterlevandestöd (SPES) and all participants were over 18 years old. Independent t-test was used to see the difference in means between groups of self-compassion and the number of support efforts they sought. Chi-square test and ANOVA-analyzes were used to calculate the significant difference between groups in self-compassion, how much and what kind of support they sought. Results showed that the bereaved experienced most support from family members/friends or partners, non-profit organizations and religious associations. They experienced least support from adult psychiatry, primary care and private practicing psychologists. There was a significant association between how many support efforts bereaved sought and degree of self-compassion, where they with lower degree of self-compassion sought more support efforts. The result showed a significant difference between degree of self-compassion and those who sought help from adult psychiatry and family member/friend or partner. As the result indicates that the current support is inadequate, more research in this area is needed as a basis for improvement.

Although there is a strong body of existing literature on early parental loss, the majority of research is devoted to examining the consequences of parental death in childhood. Less is known about the long-term impact of this early loss. In particular, there is a lack of understanding about what it is like to live with early parental loss in young adulthood. This hermeneutic phenomenological study addresses the question: What is the young adult’s experience of living with early parental loss? An in-depth exploration into the lived meaning of early parental loss was conducted through open-ended interviews with 8 young men and women (20-30 years old) who lost a mother or father in childhood (between the ages of 9-18 years old). Interview data was coded and analyzed using van Manen’s (2014) hermeneutic phenomenological method, including the process of guided existential inquiry. The fundamental existential themes of lived body, lived time, lived space, and lived other were used as a guide to thematic representation of data. Ten identified themes characterize the essential qualities of this phenomenon: (1) The Grief Experience, (2) The Parentless Identity, (3) Body Awareness, (4) The Transition, (5) The Unexpected Visitor, (6) The New World, (7) The Empty Space, (8) Navigating Relationships in New Ways, (9) Continuing Bonds, and (10) The Relationship With Loss. Through rich experiential descriptions, presented findings demonstrate that the early death of a parent has an ‘ever after’ impact and significantly influences many facets of life in young adulthood. Implications for clinical practice and directions for future research are discussed. / Graduate / 2018-10-02

The purpose of this study was to examine the support provided to people bereaved by homicide through semi structured interviews. Furthermore the purpose was to examine if support was lacking and how it can develop. Nine people of ages 20 to 65 was interviewed, who had all lost a relative to homicide. The interviews were coded based on a qualitative content analysis which resulted in the main categories information, competence, practical support, emotional support and justice. The categories where analyzed in relations to the theory about the ideal victim and the concepts social support and secondary victimization. Several aspects of support was found to be lacking, of which the most relevant was found to be lack of information. Conclusions were drawn in regards to development of support, which included a proposal of making a handbook with information regarding the criminal justice system and how and where bereaved can apply for support. Furthermore, a proposal was made to provide the bereaved with a coordinator for support in practical matters, and to put the bereaved in contact with competent health care professionals.

This study aimed to establish a connection, if any, between perceptions of information disclosure about medical treatment and decisional conflict in bereaved parents of children with cancer. Decisional regret was an important theme in this exploration because decisional conflict strongly aligns with the propensity to mentally redo past events, thereby forming counterfactual alternatives to reality. People generate counterfactuals to hypothesize a more favorable outcome subsequent to a negative event or the death of a child as applicable to this study. A secondary objective was to investigate the potential influence of counterfactual processing and regret on the construct of self-acceptance: a phenomenon researchers have rarely studied in the population of interest. Study participants included parents who lost a child to cancer in the United States after participating in medical treatment prescribed by a licensed oncologist. Cluster and convenience sampling were employed to recruit 92 participants. Quantitative methods were used in obtaining data samples through validated instruments for each independent and dependent variable. The responses collected indicate that a perceived lack of information disclosure about treatment risks and efficacy, yield a positive influence on decisional conflict after the death of a child. Similarly, decisional conflict positively correlates with decisional regret, while the latter negatively correlates with self acceptance in the bereavement process. The research implications call for additional studies that further isolate factors that contribute to decisional conflict. This study advocates for decision making tools and collaborative processes that ensure parents are well informed and involved in making medical decisions from diagnosis through palliative care, if a cure is not possible.