Var tredje person i Sverige kan under sin livstid drabbas av en cancersjukdom. När en familjmedlem får diagnosen cancer påverkar detta oftast livet för dem som är närstående. Forskning visar att de närstående upplever olika förändringar i livet. Det uppstår oftast känslor som ångest, hjälplöshet och maktlöshet. Syftet med denna litteraturöversikt var att beskriva hur närstående till personer med cancer upplever sin förändrade livssituation. Informationskällor använda i analysen är 13 artiklar som beskriver närståendes upplevelser. Resultatet presenteras i fyra olika huvudteman med tillhörande underteman. Dessa fyra teman är Förändrad livssituation, Maktlöshet och hjälplöshet, Stöd är betydelsefullt och Behov av information. I resultatet framgår att relationer mellan familjmedlemmar antingen fördjupas eller försämras. Behovet av information och stöd visar sig vara stort hos den närstående. Det är av betydelse att resultatet används i vården så att sjuksköterskor samt annan vårdpersonal blir uppmärksamma på närståendes upplevelse. Dessa kunskaper kan hjälpa sjuksköterskor och annan vårdpersonal att erbjuda bättre stöd till dessa närstående. / Every third person in Sweden can be afflicted by cancer during a life course.  When a family member gets the cancer diagnosis this most often influences the lives of those who are closest to them. Research shows that family caregivers experience various changes through life. These changes are often accompanied by feelings of anxiety, helplessness, and powerlessness. The purpose with this literature review was to describe how caregivers of persons with cancer experience their changed situation of life. The sources of information used in analysis are 13 articles who describe the experiences of caregivers. The result is presented in four main themes with sub themes. These four themes are Changed life situation, Powerlessness and helplessness, Support is important and Need for information. In the presented result it is clear that relations between family members is either deepened or worsen. The need for information and support has showed itself to be of great value for family members. It is of importance to implement the result in healthcare so that registered nurses and other staff can be attentive to the experiences of the relatives. This knowledge can help nurses and other personnel to offer better opportunities to give support to these relatives.

The paper describes a study on reading aloud to a group of four women with mild or moderate dementia living in a nursing home. The purpose of the study was to examine what reactions the reading aloud creates and if the reactions are different if the literature is written in common Swedish or in easy-to-read Swedish. Original and easy-to-read version of the book "The Lady with the Camelias" by Alexandre Dumas was chosen for reading aloud. The study was conducted in two separate parts with four reading sessions in each part. All sessions were filmed with two cameras, one of them focusing the group and the other focusing one individual. Reader was a caregiver at the womens nursing home.The videofilms have been transcribed and the data has been worked up with a qualitative content analysis. The result has thereafter been analysed on the basis of Erving Goffman´s theory of presentation of self together with relevant research. The study shows that the reading aloud awakened many different reactions, especially among the most verbal women. Three out of four women show a greater amount and more varied reactions during the reading ssions with easy-to-read literature. Alas, it is not possible to draw any certain conclusions about the importance of easy-to-read. One reason is the restricted size of group. Another reason is the difference in picture material between the texts which affected the reader´s activity. In spite of these limitations, the study shows that reading aloud can be stimulating for persons with dementia, even in moderate stage. The study also shows that the reader plays an important part in contributing to reactions in the group and especially in the more severely demential women.

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<p> </p><p>Var tredje person i Sverige kan under sin livstid drabbas av en cancersjukdom. När en familjmedlem får diagnosen cancer påverkar detta oftast livet för dem som är närstående. Forskning visar att de närstående upplever olika förändringar i livet. Det uppstår oftast känslor som ångest, hjälplöshet och maktlöshet. Syftet med denna litteraturöversikt var att beskriva hur närstående till personer med cancer upplever sin förändrade livssituation. Informationskällor använda i analysen är 13 artiklar som beskriver närståendes upplevelser. Resultatet presenteras i fyra olika huvudteman med tillhörande underteman. Dessa fyra teman är <em>Förändrad livssituation</em>, <em>Maktlöshet och hjälplöshet, Stöd är betydelsefullt</em> och <em>Behov av information</em>. I resultatet framgår att relationer mellan familjmedlemmar antingen fördjupas eller försämras. Behovet av information och stöd visar sig vara stort hos den närstående. Det är av betydelse att resultatet används i vården så att sjuksköterskor samt annan vårdpersonal blir uppmärksamma på närståendes upplevelse. Dessa kunskaper kan hjälpa sjuksköterskor och annan vårdpersonal att erbjuda bättre stöd till dessa närstående.</p> / <p> </p><p>Every third person in Sweden can be afflicted by cancer during a life course.  When a family member gets the cancer diagnosis this most often influences the lives of those who are closest to them. Research shows that family caregivers experience various changes through life. These changes are often accompanied by feelings of anxiety, helplessness, and powerlessness. The purpose with this literature review was to describe how caregivers of persons with cancer experience their changed situation of life. The sources of information used in analysis are 13 articles who describe the experiences of caregivers. The result is presented in four main themes with sub themes. These four themes are Changed <em>life situation, Powerlessness and helplessness, Support is important</em> and <em>Need for information</em>. In the presented result it is clear that relations between family members is either deepened or worsen. The need for information and support has showed itself to be of great value for family members. It is of importance to implement the result in healthcare so that registered nurses and other staff can be attentive to the experiences of the relatives. This knowledge can help nurses and other personnel to offer better opportunities to give support to these relatives.</p>

End of life (EOL) caregiving can be a daunting and challenging endeavor as caregivers adjust to the ever-changing care demands associated with dying. Increased personal care, assisting with symptom and medication management, and attending to the emotional and spiritual needs of the dying person require caregivers to learn new tasks and to assume new roles such as social worker, nurse, and chaplain. As families continue to play an essential role in meeting the health care needs of their dying loved ones, it is imperative for social workers to understand the complexities of the end of life caregiving experience in order to better serve this population. One way to better understand this experience is by examining it within the context of the stress process model of caregiving. This model provides a comprehensive way to examine the relationship among multiple risk and protective factors within the "caregiver-in-environment" context. Using a secondary dataset, the best fit predictive model of caregiver depression included a mix of sociodemographic characteristics, primary objective and subjective stressors, and mediating variables. Two protective factors, social support and the fulfillment of spiritual needs lessened the effects of caregiver depression among the most vulnerable caregivers. Findings from this study help to bridge the gap between theory and social work practice. The stress process model of caregiving is a well-tested theoretical model, which can be utilized to guide social workers in developing comprehensive assessment measures and interventions that target specific aspects and sources of stress within the EOL caregiving experience.

The aims of this study were to explore partners' experiences of living with a loved one with bipolar disorder and how they coped with these experiences. Another aim was to explore whether these individuals felt that Counselling Psychologists could play a role with care-giving tasks and their own psychological needs. Five individuals, who were currently living with, or had been living with, a partner with bipolar disorder, volunteered and participated in a semi-structured interview. These interviews were transcribed and analysed using Interpretative Phenomenological Analysis (IPA) as described by Smith, Flowers and Larkin (2009). A table of super-ordinate and sub-ordinate themes was created as a result of this analysis. Partners' experiences are characterised by various phases which partners could move around and between. This was referred to as the 'cycle of changing illness awareness'. This theme adds to the existing literature. As partners moved around and between these phases they experienced different emotions, employed different coping strategies and had experiences of being 'in it together' interchangeably with being 'isolated and alone'. This research concludes that partners' experiences of caring for a loved one with bipolar disorder do not follow a linear, predictable path and as a result, professionals working with caregivers need to be aware of which phases of the 'cycle of changing illness awareness' partners are in when offering interventions. The analysis also suggests that partners cope differently when their loved one is manic and depressed. However, further exploration is still needed.

As older couples age, often one partner becomes more competent and able to care for the other, in which case they are able to remain in their homes. In one township in the northeastern United States, the caregiving role had a significant effect on the lives of elderly men who care for their wives. The purpose of this quantitative project study was to determine the relationship between perceived stress burden and perceived level of social support services and between perceived stress burden and use of support services by elderly male spousal caregivers residing in active adult communities. Watson's theory of caring provided the theoretical foundation for this study. A correlational design was used and data were collected from 82 elderly male spousal caregivers with (a) the Zarit Burden Interview; (b) the Multidimensional Scale of Perceived Social Support; and (c) a checklist, Support Services in Your Area. Descriptive analysis indicated that participants carry a large stress burden, particularly emotional stress (Zarit Burden score of 36.58/65), enjoy strong social support (Multidimensional Scale score of 45.47/75), and use few community services. Pearson's product-moment correlation revealed no significant relationship between perceived stress burden and perceived social support or between perceived stress burden and use of community services, indicating that men feel emotional stress but the feelings are not related to their use of community services. As community services were not used by elderly male caregiver spouses, a workshop for professionals was developed to help the professionals expand programs and services that may have value for these men in their caregiver role. This study has social significance because satisfaction with the caregiver role has consequences for the health and financial well-being of the elderly and for U.S. society.

Introduction: Les aidants des personnes âgées (PA) atteintes de la démence de type Alzheimer (DTA) sont confrontés à de nombreux défis lors du soin de leurs proches, y compris ceux liés à l’alimentation. Cependant, ces défis restent méconnus et les stratégies créées pour les gérer sont encore peu efficaces. Objectifs: Identifier les difficultés rencontrées par les aidants pendant la gestion de l’alimentation des PA atteintes de la DTA ayant participé à une intervention nutritionnelle (l’étude NIS) et dégager leurs opinions concernant cette intervention. Sujets: Trente-trois aidants des PA avec DTA du groupe intervention de l’étude NIS ont été ciblés. Méthodes: L’approche qualitative a été employée lors des entrevues individuelles auprès de ces aidants. Les entrevues ont été transcrites et le verbatim fut soumis à une analyse thématique. Résultats: Vingt-quatre aidants ont été interviewés. Quelque 58,4 % avaient 70 ans et plus et 58,3 % étaient des conjoint (es) des patients affectés. Quatre catégories de thèmes furent dégagées menant à l’identification des défis alimentaires suivants: les changements des habitudes alimentaires (altération des préférences); les perturbations du comportement alimentaire (ex. l’oubli de repas); la dépendance à la préparation des repas. L’utilité des conseils, la gentillesse et la compétence du personnel NIS, la documentation écrite offerte et la durée du suivi ont été appréciées par les aidants. Conclusion: Une meilleure compréhension de l'expérience de soin vécu par l’aidant est essentielle au développement des interventions nutritionnelles adaptées aux besoins des aidants et des PA atteintes de la DTA. / Introduction: Caregivers of older adults suffering from Alzheimer disease (AD) are confronted by many challenges related to the care of their family members, including dietary management. However these challenges remain poorly understood by health professionals and strategies for managing these challenges are still not very effective. Objectives: To identify difficulties encountered by caregivers related to dietary management of their family members with AD taking part in a nutritional intervention (NIS study), and to gather their opinions about this intervention. Subjects: Thirty-three caregivers of older adults with AD were targeted from the NIS study intervention group. Methods: Using a qualitative approach, individual interviews were conducted with these caregivers, the verbatim was transcribed and a thematic analysis was carried out. Results: Twenty-four caregivers were interviewed. Some 58.4 % were 70 years old and older and 58.3 % were spouses of the patients. Four categories of themes emerged, leading to the identification of the following dietary challenges: changes in food habits (e.g. modification of food preferences); eating behavior disturbances (e.g.forgetting meals); dependence for meal preparation. The usefulness of the nutrition counseling, the kindness and the competence of the NIS personnel, the written material offered and the length of the follow-up were appreciated by the caregivers. Conclusion: A better understanding of the caregiver’s experience is essential for the development of nutrition interventions adapted to the needs of caregivers and older adults with AD.

To belong somewhere is a basic human need. It is necessary for the psychological well-being of children to feel that they belong to a family, group and community and that they are loved and appreciated for who they are. A lack of a sense of belonging may cause children to find acceptance and belonging in destructive behaviour or groups. Children from fractured families who live in disadvantaged communities face more challenges than children who have easy access to education, health services and emotional support systems. Caregivers in these circumstances have a daily battle to survive and to keep their children safe. They do not always have the necessary knowledge to be aware of the children’s emotional needs, or the ability and means to fulfil in these needs. Social workers who render services to these families do not always have the time or aids to assist the children to enhance their sense of belonging or to enable the caregivers to strengthen the bond between them and the children. The overall goal of this study was to determine how bibliotherapeutic techniques can be utilised by caregivers and social workers to enhance a sense of belonging in children in their middle childhood years from fractured families in disadvantaged communities. In order to reach this goal, the way in which children from fractured families in disadvantaged communities experienced their sense of belonging was explored, as well as how the children, their caregivers and social workers perceived the social capital in the community. The content of a strategy that focuses on the uses of bibliotherapeutic techniques for children in fractured families from disadvantaged communities in order to enhance their sense of belonging was also determined, as well as ways in which such a strategy could be implemented by the social workers and the caregivers. The research findings suggested that children did not always have a sense of belonging with their primary caregivers and that the caregivers were unaware of the emotional needs of the children. The children expressed a need for playful interactions, nurturing and to listen to stories with their caregivers. Due to the caregivers’ lack of insight in the emotional needs of the children and illiteracy in some cases, a training programme that focussed on the importance of a sense of belonging and practical ways in which they can interact with the children to strengthen the emotional bond between them, was created and tested. The caregivers and children were able to identify schools, neighbours and churches as potential social capital in the community. Ways in which the social capital in the community could be utilised were suggested. Bibliotherapeutic techniques for the use of social workers to enhance a sense of belonging in the children were compiled and then tested by social workers. Both the training program and the bibliotherapeutic techniques proved to be useful and effective and will be disseminated for the use of social workers in their services with children and caregivers in disadvantaged communities. / Thesis (PhD (Social Work))--North-West University, Potchefstroom Campus, 2013.