The face of transplantation has changed in recent decades. The improvement can be observed not only in terms of survival, but also the improved quality of life after this demanding procedure. This is one of the reasons why quality of life is one of the factors to consider (Durant, 2019). This is also due to the fact that in today's modern society one does not only want to survive, but wants to live fully. He wants to benefit his family and the society in which he lives. He wants to do his hobbies. Everybody wants to be active physically and also mentally. Today, quality of life is considered an indicator suitable for assessing physical, mental and social health (Chrastina, 2015). Methodology: The aim of this work is to evaluate how patients after liver transplantation perceive different domains related to quality of life and whether the results are different depending on the time elapsed from transplantation. For the purposes of the research was chosen a quantitative method using a questionnaire. A standardized WHOQOL BREF was used. The questionnaire contains 24 closed questions, which contain four domains and two questions themselves. Two separate questions assess the overal quality of life and overall health. The questionnaire was supplemented by two questions, which were aimed at obtaining...

Religiositet och andlighet tycks ha samband med fysisk och psykisk hälsa. I uppsatsen undersöks sambandet mellan andlighet och utbrändhet, två grupper behandlare jämförs och mätegenskaper hos skalorna Spirituality, Religiousness and Personal Beliefs Field-Test Instrument (WHOQOL-SRPB), Spiritual Involvement and Beliefs Scale (SIBS), Maslach Burnout Inventory – Human Service Survey (MBI-HSS) och Utbrändhet i arbetet (UA) undersöks. Studiedeltagarna var 38 programledare för kriminalvårdens tolvstegsprogram och 39 behandlare i ett psykoterapinätverk inom beroendevården (svarsfrekvens 61,5%). Andlighet korrelerade med personlig prestation (personal accomplishment; r = 0,315, p < 0,05). I beroendevården fanns ett samband mellan hög grad av andlighet/religiositet och högre grad av utbrändhet. Studien visar att andlighet skulle kunna ge ökat självförtroende, och genom detta påverka hälsa och allmänt välbefinnande samt att effekten av andlighet/religiositet verkar vara positiv i andliga/religiösa sammanhang men inte i mer sekulariserade miljöer. Slutligen konstateras att validiteten hos utbrändhetsmåtten kan ifrågasättas och att vidare utveckling av andlighetsmåtten bör ske.

Introduktion: Enligt World Health Organisation (WHO) definieras hälsa som ett tillstånd av fysiskt, mentalt och socialt välbefinnande och inte endast frånvaro av sjukdom. Utifrån denna definition kan en människa uppleva hälsa och livskvalitet hela livet, oavsett ålder, diagnos eller prognos. Förhållningssättet till livet påverkar den självskattade psykiska, fysiska och sociala hälsan. I Sverige används begreppet existentiell medan begreppet andlig oftast används internationellt. Både existentiell och andlig relaterar till en inre dimension som interagerar med den yttre världen; den egna kroppen, andra människor och de sekulär eller religiösa system som en individ kan relatera till. Syfte: Syftet är att bedöma hur WHO:s åtta faktorer för existentiell hälsa definieras och hur de används i vetenskapliga studier. Metod:Studien bygger på en litteraturstudie i vilken tjugo vetenskapliga artiklar granskats och analyserats. Både kvalitativa och kvantitativa studier, som undersöker existentiell hälsa har inkluderats. För att besvara forskningsfrågan och uppfylla studiens syfte har en kvalitativ metod med induktiv ansats valts för att söka en slutsats utifrån tidigare forskning. De vetenskapliga artiklarna som valts ut har inhämtats via tillförlitliga databaser som PsychInfo, PubMed, SwePub,Google Scholar, och från Socialmedicinsk tidskrift. Resultat: Vid analys av artiklarnas innehåll har vi använt följande teman: andlig kontakt, mening och syfte med livet, upplevelse av förundran, helhet och integration, andlig styrka, harmoni och inre frid, hoppfullhet och optimism samt tro som resurs. Av dessa kom behovet av optimism, inre frid och hopp först. På andra plats kom behovet av mening och syfte med livet. Resultat visade att det är notoriskt svårt att definiera och mäta andlighet på grund av dess omtvistade definition, förhållandet till religiositet och olika kulturer. De olika definitionerna utmanar tillämpningen av begreppen i olika kontexter och kulturer. Slutsats: Då forskning kring existentiell hälsa är begränsad och relativt outforskat behöver framtida forskning fler kvalitativa och kvantitativa forskningsinsatser för att analysera faktorer som påverkar den existentiella hälsan utifrån ett kulturellt och kontextuellt perspektiv. Teorier och metoder kan på så sätt utvecklas för att skapa en evidensbaserad existentiell hälsointervention. / Introduction: According to the World Health Organisation (WHO), health is defined as a state of physical, mental and social well-being and not merely the absence of disease. Based on this definition, a person can experience health and quality of life throughout their life, regardless of age, diagnosis or prognosis. The approach to life affects the self-assessed mental, physical and social health. In Sweden, the term existential is used, while the term spiritual is most often used internationally. Both existential and spiritual relate to an inner dimension that interacts with the outer world; one's own body, other people and the secular or religious systems to which an individual can relate. Purpose: The purpose is to assess how the WHO's eight factors of existential health are defined and how they are used in scientific studies. Method: The study is based on a literature study in which twenty scientific articles were reviewed and analyzed. Both qualitative and quantitative studies investigating existential health have been included. In order to answer the research question and fulfill the purpose of the study, a qualitative method with an inductive approach has been chosen to seek a conclusion based on previous research. The scientific articles that have been selected have been obtained via reliable databases such as PsychInfo, PubMed, SwePub, Google Scholar, and from the Journal of Social Medicine. Results: When analyzing the content of the articles, the following themes were used to categorise findings: spiritual contact, meaning and purpose in life, experience of wonder, wholeness and integration, spiritual strength, harmony and inner peace, hopefulness and optimism and faith as a resource. Out of theseeight themes, the need for optimism, inner peace and hope came first. In second place came the need for meaning and purpose in life. Results showed that it is notoriously difficult to define and measure spirituality due to its contested definition, relationship to religiosity and different cultures. The different definitions challenge the application of the concepts in different contexts and cultures. Conclusion: As research on existential health is limited and relatively unexplored, future research needs more qualitative and quantitative research efforts to analyze factors that affect existential health from a cultural and contextual perspective. Theories and methods can thus be developed to create an evidence-based existential health intervention.

Submitted by Cássio da Cruz Nogueira (cassionogueirakk@gmail.com) on 2017-09-11T18:38:59Z No. of bitstreams: 2 license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) Tese_QualidadeVidaPacientes.pdf: 2921092 bytes, checksum: 9e31e5b8c539077daa663ef07bbb8ddd (MD5) / Approved for entry into archive by Irvana Coutinho (irvana@ufpa.br) on 2017-09-19T14:00:28Z (GMT) No. of bitstreams: 2 license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) Tese_QualidadeVidaPacientes.pdf: 2921092 bytes, checksum: 9e31e5b8c539077daa663ef07bbb8ddd (MD5) / Made available in DSpace on 2017-09-19T14:00:28Z (GMT). No. of bitstreams: 2 license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) Tese_QualidadeVidaPacientes.pdf: 2921092 bytes, checksum: 9e31e5b8c539077daa663ef07bbb8ddd (MD5) Previous issue date: 2014-11-20 / A Hanseníase é uma doença infecciosa que atinge pele, nervos periféricos, provoca dor, sequelas físicas e psicológicas. Pouco estudos descrevem a qualidade de vida (QV) em pacientes com dor neuropática hansênica (DNH), presente na doença. O objetivo desta pesquisa foi avaliar a QV de pacientes acometidos pela hanseníase utilizando os questionários WHOQOL-Bref e SF-36 e, investigar a influência da atividade física na QV de pacientes com DNH. Trata-se de um estudo Transversal e de Intervenção Self-control, em que foram selecionados 80 pacientes a partir de amostra de conveniência da Unidade Básica de Saúde da Vila Santo Antônio do Prata (Igarapé Açú/Pará) e Ambulatório de Dermatologia do Núcleo de Medicina Tropical da Universidade Federal do Pará (Belém/Pará). Os pacientes responderam aos questionários de avaliação de QV propostos e os casos diagnosticados com DNH participaram pelo período de 90 dias de um protocolo de Exercício Físico. No dia zero e após o período da intervenção, foram aferidas a força da preensão palmar e a flexibilidade de membros superiores e inferiores. Os resultados mostram maiores médias de QV em pacientes com ausência de DNH. Houve melhora significativa nos domínios da QV do grupo com DNH após o período de intervenção. O exercício físico deve ser incentivado enquanto proposta terapêutica para prevenção de sequelas físicas e de DNH crônica. A avaliação da QV relacionada à saúde de pacientes hansenianos pode ser uma estratégia preponderante para melhor prevenir, tratar e curar a doença nas regiões endêmicas do Brasil. / Leprosy is an infectious disease that affects the skin, peripheral nerves, causes pain, physical and psychological consequences. Some studies describe the quality of life (QOL) in patients with leprosy neuropathic pain (DNH) in this disease. The objective of this research was to evaluate the QL of patients affected by leprosy using the WHOQOL-Bref questionnaire and SF-36 and investigate the influence of physical activity on QL in patients with DNH. This is a Transversal study and intervention Self-control, in which 80 patients were selected from a convenience sample of Basic Health Unit of Vila Santo Antonio do Prata (Igarapé Açú / Pará) and the Dermatology Clinic of the Center for Tropical medicine, from Federal University of Pará (Belém / Pará). The patients answered evaluation questionnaires of QL proposed and diagnosed cases with DNH attended by 90 days of physical activity protocol. On zero day and after the intervention period were measured the power of palmar prehension and flexibility of upper and lower limbs. The results show higher averages of QL in patients with absence of DNH. There were significant improvements in the dominion of QL with DNH group after the intervention period. Physical activity should be encouraged as a therapeutic proposal for the prevention of chronic physical consequences and DNH and the evaluation of QL associated with health of leprosy patients can be a predominant strategy to better prevent, treat and cure the disease in endemic regions of this country.

I analyzed the 2004 and 2006 Health and Retirement Study data to test structural equation models of the quality of life (QOL) construct. The participants (N = 1352) were non-institutionalized individuals aged 42 and older (M = 65.70, SD = 10.88), with an average education of 12.73 years (SD = 2.96) and of varied ethnicities. The results indicated that physical functioning, affective experience, life satisfaction and social support could serve as indicators for a second order QOL factor. Furthermore, the developed QOL model explained 96% of the variance of the CASP-19 (Control, Autonomy, Self-realization and Pleasure), a QOL measure that reflects fulfillment of psychological needs. The results also indicated that Depression and Life Satisfaction are related through reciprocal causation and that Physical Functioning is more likely to cause a change in Depression than the reverse. The results suggest that QOL is a complex, multidimensional concept that should be studied at different levels of analysis.

Made available in DSpace on 2016-06-02T20:18:13Z (GMT). No. of bitstreams: 1 3412.pdf: 2933565 bytes, checksum: 8544d3a9bb4c99e3e0212cdacbbc304d (MD5) Previous issue date: 2011-02-03 / Financiadora de Estudos e Projetos / Different programs adapted to the elderly have been proposed in order to assist and promote healthy aging, including physical therapy interventions. The effects of these programs on the participants quality of life and physical parameters are often unknown, and require investigation. This study s purpose was to develop a physical therapy collective intervention and understand how the programs São Carlos Senior University and the Geriatric Revitalizations influence quality of life, strength, flexibility, dynamic balance and physical conditioning of the participants. As a result of this study, four papers were produced. Paper one discusses the physical therapist participation at Senior Universities for physical training in a community-based program. It also describes an intervention group therapy as a part of an interdisciplinary program at São Carlos Senior University. The second paper compares the psychometric properties and correlations of two quality of life instruments, the Medical Outcomes Study 36 Item Short-Form health survey (SF-36) and The World Health Organization Quality of Life (WHOQOL)-BREF, in a sample of Brazilian elderly. Both scales showed acceptable reliability, but a poor correlation was observed between the two questionnaires related fields. The WHOQOL-BREF seems to be a better choice for an overall assessment of quality of life and the SF-36 can better discriminate between health-related known groups. The third paper presents the influence on quality of life of middle-aged and elderly post 10-month intervention at São Carlos Senior University and Geriatric Revitalization Program. UATI Group showed significant increase in quality of life level according to the overall WHOQOL bref score; REVT Group showed significant increase in health related domains. Both groups showed improvement when compared to the Control Group. The forth paper presents a 6-month, 1, 2 and three-year follow-up of Senior University and Geriatric Revitalization in the physical variables of the participants. REVT Group showed better results than UATI Group. Both intervention-groups showed better results than Control Group. These community-based programs contributed to strength, flexibility, dynamic balance and physical conditioning improvement or maintenance. Despite the differences, both programs improved quality of life and physical parameters in the participants. Senior University and Geriatric Revitalization can be considered valid choices as assistance programs in the aging process. / Diferentes programas específicos para idosos tem sido propostos para assistir e promover envelhecimento saudável, inclusive protocolos de Fisioterapia. Os efeitos de muitos desses programas na qualidade de vida e parâmetros físicos dos participantes ainda requerem investigação. Este trabalho teve como objetivo geral desenvolver uma intervenção de fisioterapia em grupo e avaliar a influência dos programas da Universidade Aberta da Terceira Idade e do Projeto de Revitalização Geriátrica sobre a qualidade de vida, força muscular, flexibilidade, controle postural e condicionamento nos participantes. São apresentados quatro artigos. O artigo um discute a inserção do fisioterapeuta no contexto da Universidade da Terceira Idade para treinamento físico de idosos e atenção coletiva. Além disso, descreve a experiência do programa de fisioterapia em grupo como parte de um trabalho transdisciplinar da Universidade da Terceira Idade de São Carlos. O segundo artigo compara as propriedades psicométricas e correlações entre duas medidas de qualidade de vida: o Medical Outcomes Study 36 Item Short-Form health survey (SF-36) e o Instrumento de Avaliação de Qualidade de Vida da Organização Mundial de Saúde (WHOQOL-BREF). Os instrumentos apresentaram boa confiabilidade, mas uma fraca correlação foi observada entre domínios correlatos dos questionários. O WHOQOL-BREF mostrou ser o instrumento mais adequado para avaliação da qualidade de vida percebida, de uma maneira global e o SF-36 parece adaptar-se melhor a populações com condições clínicas mais homogêneas. O terceiro artigo apresenta os resultados da melhoria de qualidade de vida após 10 meses de intervenção desses dois programas. O Grupo da Universidade da Terceira Idade melhorou nos Domínios da qualidade de vida, apresentando melhor resultado que o Grupo da Revitalização Geriátrica, que melhorou nos aspectos ligados à saúde e ao físico. Porém ambos os grupos foram melhor que o Grupo Controle. O quarto artigo apresenta os resultados do acompanhamento dos parâmetros físicos após seis meses, um, dois e três anos desses programas. O Grupo da Revitalização Geriátrica apresentou melhores resultados que o Grupo da Universidade da Terceira Idade. Ambos os grupos foram melhor que o Grupo Controle. Esses programas contribuíram para o aumento ou manutenção da força muscular, flexibilidade, equilíbrio e condicionamento físico dos participantes. A Universidade da Terceira Idade de São Carlos e a Revitalização Geriátrica contribuíram para o aumento da qualidade de vida de acordo com o WHOQOL-BREF e parâmetros físicos dos participantes, representando uma opção na atenção ao idoso.

Due to the successful rollout of the Antiretroviral Therapy Program, an increasing number of perinatally HIV infected adolescents are emerging into young adulthood throughout Botswana. Young adulthood is a critical period of human development, with long-lasting implications for a person’s economic security, health and well-being. During this time, young women and men normally complete school, find employment and start working, develop relationships, form families, bear children and pursue those things that help set them on the path to healthy and productive adult life. However, the presence of a chronic illness such as HIV can interfere with the achievement of the developmental milestones of young adulthood and affect their Health Related Quality of Life (HRQOL). The purpose of this study was to identify the factors that affected the HRQOL of young adults living with perinatally acquired HIV (YALPH) and to propose policy guidelines to promote their HRQOL. A mixed-methods sequential explanatory research design was used. HRQOL assessments were made using the WHOQOL-HIV BREF instrument. Data about the clinical characteristics of the respondents was obtained from medical records. In-depth interviews were conducted with a purposefully selected subsample of respondents who completed the WHOQOL-HIV BREF instrument. All the respondents were recruited from Botswana-Baylor Children’s Clinical Centre of Excellence, in Gaborone, Botswana. Data were analyzed using SPSS Inc. software version 16.0 (statistical package for social science, SPSS Inc, Chicago, IL, USA). The study population consisted of 509 YALPH including 255 (50.1%) females and 254 (49.9%) males. The mean age of the population was 21.7 (± 2.6) years (range 18-29.8 years). The majority of the respondents were single (98.1%), living in their parental homes (90.8%), neither in school nor working (47.35%) and 14% were parents (range 1-3 children). The mean duration on ART was 12.4 years (± 4.0). Based on the BMI classifications by WHO, 38.5% of respondents were underweight (BMI < 18.5 kg/m2) and 7.3% were overweight (BMI ≥ 25.0 kg/m2). Unsuppressed viral load (>400 cell/mL) occurred in 13.4% of the sample. Most respondents had good HROQL (78.4%). The highest mean HRQOL score was recorded in the Physical domain (15.4 (± 2.9) and the lowest in the Environment domain 13.8 (± 2.7). The results fitted using the multivariable logistic regression suggest the odds for good general QOL were increased amongst individuals with a higher level of education and 6 those who were employed. The odds for good general QOL were reduced for individuals with unsuppressed viral load (> 400 cells/mm2) and those who had illnesses (self-reported). The odds for good general QOL increased by almost two folds (OR = 1.97, 95% CI = (1.11 – 3.48)) when comparing respondents with higher level of education against those with lower education. The odds for good general QOL were increased for employed respondents OR = 1.73 (95% CI = (0.92 – 3.23) when compared to the unemployed group. Whereas the odds for good general QOL declined by almost two folds (OR = 0.60, 95% CI = (0.33 – 1.08)) amongst patients with VL > 400 cell/mm2 compared to those with VL < 400 cells/mm2. Also, respondents who were ill had lower odds ratios for good general QOL compared to those who were not ill (OR = 0.42, 95% CI = (0.25 – 0.70)). The results of in-depth interviews with 45 respondents showed that the majority of YALPH were in good physical health and they had positive perspectives about the future including health, completing school, finding employment, marriage and childbearing. The main sources of social support for YALPH were close family members and health care workers (HCWs). However, worries and concerns about disclosure, fear of stigma, lack of financial independence, and limited social relationships and networks were the most identified stressors that put the YALPH at risk of compromised HRQOL. Some sub-groups of YALPH were at higher risk for poor HRQOL including: young mothers, YALPH who were aging out of institutional care, YALPH with disabilities and impairments, YALPH who were neither in school nor working and YALPH with maladaptive coping strategies. Therefore, the promotion of the HRQOL of YALPH will require policies and interventions to increase educational attainment, provide employment and livelihood opportunities, promote good ART adherence and VL suppression, and effectively prevent and manage illnesses. Special attention should be paid to sub-groups of YALPH who are at increased risk of compromised HRQOL. / Health Studies / D. Litt. et Phil. (Health Studies)