A participação de usuários de serviços de saúde mental em pesquisas acadêmicas é uma tendência recente que vem, de forma incipiente, sendo adotada no Brasil. São iniciativas interessantes na medida em que promovem a democratização da produção de conhecimento, conferindo a grupos populares a oportunidade de ter se colocarem frente às suas necessidades específicas. Rose (2003) coloca que existem vários níveis de participação e essas iniciativas não representam necessariamente a emancipação dos usuários, sendo necessário que se observe e qualifique o protagonismo dos participantes. A presente tese visa avaliar quais os efeitos do envolvimento de uma associação de usuários (a AFLORE) junto a uma aliança internacional de pesquisa (a ARUCI-SMC). Nos utilizamos da metodologia da pesquisa ação participante afim de que os membros da associação pudessem se envolver diretamente em diferentes etapas desta pesquisa, como a formulação de perguntas de pesquisa e a sistematização da experiência. As análises aqui propostas baseiam-se no conceito de paridade participativa em Nancy Fraser, que é composto por três dimensões interligadas: o reconhecimento, a redistribuição e a representação. Partiremos destas dimensões para avaliar em que medida a parceria de pesquisa promove a paridade participativa dos envolvidos. A participação de usuários em pesquisas na aliança em questão parte do reconhecimento dos mesmos enquanto sujeitos portadores de um saber único, que advém da experiência. No entanto o contrato entre universidade e comunidade e reforça estruturas sociais que bloqueiam a paridade participativa, promovendo a desigualdade. É necessário que a academia se disponha a rever aspectos como a vinculação formal com a universidade e a possibilidade de remuneração para pesquisadores comunitários. Além disso a linguagem é apresentada como aspecto que dificulta a participação de membros da comunidade. Uma estratégia de linguagem adotada nesta pesquisa é a produção audiovisual realizada de forma dialógica entre técnico do audiovisual e pesquisadores, potencializando a sistematização do conhecimento a partir das demandas do grupo de pesquisadores comunitários / The participation of mental health service consumers in academic research is a recent trend that has being adopted in Brazil. Such initiatives promote the democratization of knowledge production. This way popular groups have the opportunity to put forward their specific needs. Rose (2003) states that there are several levels of participation and these initiatives do not necessarily represent the empowerment of consumers, being necessary to observe and qualify the role of the participants. This thesis aims to assess what effects the involvement of an association of consumers (AFLORE) next to an international research alliance (the ARUCISMC). The use of participatory action research methodology enables consumers to be directly involved at different stages of this research. Consumers were involved in the formulation of research questions and the systematization of experience. The analysis proposed here is based on the concept of participatory parity in Nancy Fraser, which consists of three interrelated dimensions: recognition, redistribution and representation. We leave these dimensions to assess to what extent the research partnership promotes participatory parity of those involved. Consumers participation in the alliance research is based on the recognition that they are subjects with a unique knowledge that comes from experience. However, the contract between the university and community reinforces social structures that block the participatory parity, promoting inequality. Academy has to review aspects such as the formal link between the university and community researchers. Also the language is presented as an aspect that hinders the participation of community members. A language strategy adopted in this research is the audiovisual production

Through a research partnership with the First Nations Health Authority (FNHA) and using mixed methods participatory action research this Dissertation critically engages with dominant Western-based knowledge systems of well-being from a decolonizing standpoint to better understand the determinants of Indigenous health and well-being. This study specifically asks: what are the main factors effecting different dimensions of well-being for Indigenous peoples living in urban centres, how does engaging in traditional land-based activities and cultural ways of life affect well-being, and to what extent does intergenerational trauma impact well-being? Thirteen key informant interviews were conducted with FNHA members involved in the development of the First Nations Perspective on Health and Wellness (FNPOW) to garner knowledge about the thoughts, feelings, belief systems, values, and knowledge frameworks that are embedded in this perspective. A multi-level statistical model was developed informed by the First Nations Perspective on Health and Wellness, the 2012 Aboriginal Peoples Survey and 2011 National Household Survey, to produce health and wellness outcomes. Using a strength-based approach to well-being this study shows that the FNPOW advocates self-determination, and implementing the perspective in research work offers a pathway to generating measures of health and wellness rooted in Traditional knowledge systems, and a pathway to decolonizing bodies. These outcomes are a form of social capital reflective of Indigenous values that can be utilized as a resource to strengthen community capacity to support Indigenous self-determination. / Graduate

abstract: Students may be situated within complex systems that are nested within each other. This complexity may also envelope institutional structures that lead to the socio-economic reification of student post-secondary opportunities by obscuring positive goals. This may be confounded by community misunderstandings about the changed world that students are entering. These changes include social and economic factors that impact personal and economic freedoms, our ability to live at peace, and the continuing trend of students graduating high school underprepared. Building on previous cycles of action research, this multi-strand mixed-methods study examined the effects of the innovation of the I am College and Career Ready Student Support Program (iCCR). The innovation was collaboratively developed and implemented over a 16-week period using a participatory action research approach. The situated context of this study was a new high school in the urban center of San Diego, California. The innovation included a student program administered during an advisory period and a parent education program. Qualitative research used a critical ethnographic design that analyzed data from artifacts, journals, notes, and the interviews of students (*n* = 8), parents (*n* = 6), and teachers (*n* = 5). Quantitative research included the analysis of data from surveys administered to inform the development of the innovation (*n* = 112), to measure learning of parent workshop participants (*n =* 10), and to measure learning, hope, and attitudinal disposition of student participants (*n* = 49). Triangulation was used to answer the studies’ four research questions. Triangulated findings were subjected to the method of crystallization to search for hidden meanings and multiple truths. Findings included the importance of parent involvement, the influence of positive goals, relational implications of goal setting and pathway knowledge on agentic thinking, and that teacher implementation of the innovation may have influenced student hope levels. This study argued for a grounded theory situated within a theoretical framework based upon Snyder’s Hope Theory and Bronfenbrenner’s Ecological System Theory. This argument asserted that influence on pathway and agency occurred at levels of high proximal process with the influence of goal setting occurring at levels of lower proximal process. / Dissertation/Thesis / Doctoral Dissertation Educational Leadership and Policy Studies 2018

Children are among those most directly affected by food insecurity, a condition in which households lack access to adequate food because of money or other resources (Gundersen & Ziliak, 2015). According to the latest United States Department of Agriculture (2016) reporting, 1 in 5 children experiences hunger on a daily basis. That ratio increases for African American and Latino children whom experience 1 in 3 ratios. While many programs exist to address this growing problem among youth and impoverished families, the efficacy of those programs is yet to be determined and the problem of hunger in America persists. This qualitative research study utilized an innovative methodological approach to explore youth food justice narratives from two cross-town middle schools in Kentucky. Through the use of photos, students identified several factors that influence their ability to meet their food needs and areas of inequity within their community. Strategies were provided for policymakers and educators to address these issues.

Youth outreach programs use innovative and community-based activities to fill in gaps of education, provide creative outlets, create access to opportunities, and empower youth.1 This research investigates, records, and compares the ways in which staff and youth participants perceive the experience at a New Orleans youth program. The purpose of the research is to provide insight towards potential program improvement. The participants of this study are from Compassion Outreach of America’s summer program Project Reach NOLA in the Upper Ninth Ward of New Orleans, Louisiana. There are twenty-nine participants, between the ages of fourteen and fifty years old. The participants are directors, staff members, and youth enrolled in the program. The mixed-methods utilized are: focus groups, interviews, surveys, and observation. The study emphasizes the inclusion of participant voices and their positioned expertise.2

Public school educators strive to address a variety of student needs. Factors such as poverty, trauma, Limited English Proficiency, and the presence or risk of disabilities contribute to students' learning profiles and require educators to rely on the best practices of an interwoven network of specialists so that they can meet these needs. Utilizing a Participatory Action Research (PAR) approach, aimed at fostering school improvement and collaborative research, this study paints an in-depth, holistic cultural portrait of a diverse PreK-5 elementary school in the mountains of northern New England. The lead researcher collaborated with the leadership of the school with the goal of creating a more inclusive learning environment. The school studied is unique in that the arts are used as a vehicle for instruction and inclusion of students from diverse backgrounds, including students with disabilities. The study weaves together feminism, ethnography, arts integration, and disability studies to explore the potential multiple benefits of arts-based instruction and a social skills curriculum for meeting the needs of diverse learners. Through interviews, observations, document review, and reflective journaling, the study collaboratively explores the beliefs and practices of three interrelated micro-cultures within the school: school leaders, classroom teachers, and parents. This study -- conducted over the course of one school year -- provides a snapshot of how one unique school community worked to create an inclusive learning environment through arts integration and a social skills curriculum. Additionally, it documents the benefits and challenges of a PAR approach to supporting and sustaining school-wide change.

The present study aimed to investigate a locally-driven action research project to improve connections between Spanish-speaking Latinx parents and the high school that their children attend. Using Participatory Action Research (PAR), the study sought to create a collaborative research agenda that would empower the participants to study their own culture and practices at the school, and how the two combined to create a home-school partnership. Six parents and two members of the school’s bilingual staff comprised the PAR team, with a total of nine members including the principal investigator. The project began with the creation of a public sphere in which all members of the PAR team were encouraged to freely contribute to the design and implementation of the research project. Focus group recordings were reviewed and interpreted by two members of the PAR team in the original language of Spanish, and Spanish documents and resources were made to provide easy access to information requested by the team. In this study, I did not attempt to create generalizable knowledge about any culture. Results indicated that the parent participants’ priorities differed from those initially defined before recruitment, and that parents were comfortable enough to express differing views in the public sphere. The project was reported to be helpful to the parents, and the school administration agreed to incorporate the results of the project into a parent outreach project for the coming year. Implications for research and practice are discussed.

<p><strong>Bakgrund:</strong> Demens är ett sjukdomstillstånd som innebär en bestående nedsättning av kognitiva funktioner. Därför behöver personer med demenssjukdom och närstående stöd för att klara vardagen bättre. <strong>Syfte:</strong> Syftet var att tillsammans med en personalgrupp vid en dagsjukvårdsenhet utarbeta ett underlag för en kommande utvärdering av ett projekt vars syfte var att ge stöd i relationen mellan personer med demenssjukdom och deras närstående. <strong>Metod:</strong> Studien genomfördes med deltagarbaserad aktionsforskning med en fokusgruppsintervju och en enskild intervju. Deltagarna var en personalgrupp på en dagsjukvårdsenhet. <strong>Resultat:</strong> Dagsjukvårdsenheten önskade stödja relationen mellan personer med demenssjukdom och deras närstående. Stödet planeras genomföras vid fem tillfällen under fem veckor. Dessa fem tillfällen har olika teman som handlar om hur paren kan hantera vardagen på ett annat sätt. Genom dessa tillfällen har dagsjukvårdsenheten som mål att exempelvis underlätta vardagen för paren. <strong>Diskussion:</strong> Ett av de centrala fynden var att personer med demenssjukdom och deras närstående behöver både individuellt och gemensamt stöd i relationen. Ett annat fynd var att personalguppen är av den åsikten att vardagen kan underlättas om paren får ta del av andras erfarenheter. En samordnad stödform mellan kommun och landsting kan underlätta för att kunna ge bästa stöd till personer med demenssjukdom tillsammans med närstående.</p> / <p><strong>Background:</strong> Dementia is a disease which involves a permanent reduction of cognitive functions. Therefore people with dementia and their relatives need support to cope with problems in the daily life. <strong>Aim:</strong> The aim was to work with personnel at a day care unit to prepare a basis for a future evaluation of a project which purpose was to provide support in the relationship between people with dementia and their relatives. <strong>Method:</strong> The study was conducted as participatory action research with a focus group interview and an individual interview. Participants were personnel at the day care unit. <strong>Results:</strong> The day care unit wished to support the relationship between people with dementia and their relatives. The support was planned to be done at five occasions during five weeks. These five occasions have different themes which are about how the couples could handle the everyday life in a different way. Through these occasions the day care unit has as a goal for example to simplify everyday life for the couples. <strong>Discussion:</strong> One of the key findings was that people with dementia and their relatives need, both individually and jointly, support in the relationship. Another finding was that the personnel group is of the opinion that life can be facilitated if the couples may take part of other’s experiences. A coordinated assistance between municipalities and county councils can help to provide the best support for people with dementia together with their relatives.</p>

Forskningsresultat når inte alltid ut i vården till patienter och kliniskt verksam personal. Detta kan leda till att den vetenskapliga grund, som vården enligt svensk lagstiftning ska vila på, inte erbjuds. Anledningen till att vetenskapligt belagd kunskap inte når ut kan vara til lexempel avsaknad av kunskap om hur forskningsresultat sprids och om hur resultat kan omsättas till den egna verksamheten. Ett omfattande forskningsfält inom omvårdnad rör samtal, kommunikation och reflektion kopplat till relationen mellan vårdpersonal och patient. Reflektion bör ses som en central företeelse inom vården dels för att förstå patienten dels för att förändring skall komma till stånd. Reflektioner inom ramen för ett aktionsforskningsprojekt torde leda till förändringar i relation till vårdpersonals förståelse och attityder till patienten. Syftet med studien var att undersöka om förändringar sker i personals syn på sig själv och på patienten i samband med att de deltog i ett aktionsforskningsbaseratutvecklingsarbete. Fokus för utvecklingsarbetet var bedömning av patienters smärta. Studien är kvalitativ. Data har inhämtats i samband med fokusgruppsamtal, transkriberats och analyserats utifrån en hermeneutisk analysmetod. Följande tre huvudteman framkom vid analysarbetet; patienten blir en person; professionell identitet blir tydligare; teamanda förstärks. Innebörderna i dessa tre teman tolkas i relation till teorier om personcentrerad vård och transition. Deltagarbaserad aktionsforskning kan vara ett sätt att öka användning av forskning och omsätta den nya kunskapen till egen handling. I studien gav deltagarna uttryck för att deras arbete resulterade i ett förändrat arbete med smärta och smärtbedömning mot en patientnärmre vård. / Research results do not always reach out in care to patients and clinically active personnel. This can lead to the result that the scientific basis, as health care, according to Swedish law must rest upon are not offered. The reason that scientifically knowledge does not reach out can be such a lack of knowledge about how research is disseminated and how the results can be translated into its own practice. An extensive field of research in nursing relates conversation, communication and reflection related to the relationship between health professionals and patients. Reflection should be seen as a central phenomenon in health care to gain new understanding and lead to develop and change. Reflection in the context of anaction research project should lead to changes in relation to health professionals understanding and attitudes to the patient. The purpose of this study was to investigate whether changes occur in the staff´s view of oneself and the patient in an action research basedproject. Focus of the development project was the assessment of patients' pain. The study is qualitative. Data have been collected during focusgroup, transcribed and analyzed based on a hermeneutic method of analysis. Three main themes emerged from the analysis:the patient becomes a person, professional identity becomes clearer, team spirit is strengthened. Meanings of these three themes interpreted in relation to theories of personcentered care and transition. Participatory action research can be a way to increase the use of research and translate new knowledge to its own practice. In the study, participants expressed that their work resulted in a changed work with pain and pain assessment.

Therapeutic relationships were explored using participatory action research in recreation therapy at Sunnybrook Health Sciences Centre (SHSC). The 22 recreation therapists at SHSC comprised the research team and were actively involved throughout the research process; they determined the research questions, the research process, and engaged in data collection and data analysis. This study explored how recreation therapists understood their therapeutic relationships, how different waves of influences were negotiated and philosophies of care that emerged in their therapeutic relationships. At first glance, therapeutic relationships were understood as meaningful connections and shared experiences that developed over time between a recreation therapist and individual receiving care. Later on, therapeutic relationships emerged as a complex process with welcoming, continuing and closing phases. Positive therapeutic relationships were defined by qualities such as caring, trust, respect, and non-judgment for everyone involved. Therapeutic relationships were also influenced by the organizational context, unit specific cultures, family, and staff members and recreation therapists continually negotiated the expectations, power and boundaries of these influences within their therapeutic relationships. The recreation therapists also discussed the different roles, they and the individuals receiving care could engage in during their therapeutic relationships ranging from the traditional, contemporary or controversial. Findings revealed that recreation therapists’ practices were predominantly influenced by person-centered care philosophies, although the biomedical model and relationship-centred care philosophies were also apparent. The practice of being in the moment emerged as a means of enhancing therapeutic relationships, whereas self-reflective practice assisted the recreation therapists to negotiate different waves of influence on their therapeutic relationships.