Orientador: Sandra Leal Calais / Resumo: No Brasil há 1,5 milhão de idosos fragilizados e nesta sua dependência surge o papel do cuidador familiar, exigindo a tomada de decisões e a incorporação de atividades que passam a ser de sua inteira responsabilidade. A função de cuidador familiar pode desencadear sintomas depressivos e gerar situações estressantes. Assim, o objetivo deste estudo foi avaliar estresse, depressão, sobrecarga e existência de projeto vital dos cuidadores familiares em tempo integral e parcial de idosos dependentes. Os participantes foram 40 cuidadores e 38 idosos, sendo o Grupo A composto por 17 cuidadores em tempo parcial e 15 idosos e o Grupo B, 23 em tempo integral e 23 idosos. Destes, 45% foram captados da Organização da Sociedade Civil e 55% das redes sociais. Do Grupo A, 76,50% eram sexo feminino, sendo 70,60% filhas dos idosos e o Grupo B teve 91,30% de cuidadores mulheres e 52,20% filhas também. A média de idade do Grupo A foi de 50 anos e a do Grupo B foi de 58 anos, a idade dos grupos variou de 38 a 83 anos. Quanto à classe social, 47,10% dos cuidadores do Grupo A se encontram na classe B2 e 41,20% possuem o Ensino Superior Completo, enquanto no Grupo B 30,40% estão na classe C1 e 30,40% possuem o Ensino Fundamental Incompleto. A média de idade dos idosos do Grupo A foi de 81 anos e do Grupo B foi de 79 anos, sendo a amostra de idosos composta de 85% do sexo feminino. No Grupo A, 52,90% dos idosos apresentam o grau de dependência I e 39,10% do Grupo B, grau de dependência II. Os instrum... (Resumo completo, clicar acesso eletrônico abaixo) / Abstract: In Brazil, there are 1.5 million frail elderly people and in this dependence the role of the family caregiver arises, requiring decision making and the incorporation of activities that become their entire responsibility. The role of family caregiver can trigger depressive symptoms and generate stressful situations. Thus, the aim of this study was to assess stress, depression, burden and existence of a vital project for family caregivers in full and part-time for dependent elderly. The participants were 40 caregivers and 38 elderly, with Group A comprising 17 part-time and 15 elderly caregivers and Group B, 23 full-time and 23 elderly. Of these, 45% were raised from the Civil Society Organization and 55% from social networks. From Group A, 76.50% were female, 70.60% were daughters of the elderly and Group B had 91.30% female caregivers and 52.20% were daughters as well. The average age of Group A was 50 years and that of Group B was 58 years, the age of the groups ranged from 38 to 83 years. Regarding social class, 47.10% of Group A caregivers are in class B2 and 41.20% have completed Higher Education, while in Group B 30.40% are in class C1 and 30.40% have Education Incomplete Fundamental. The average age of the elderly in Group A was 81 years old and in Group B it was 79 years old, with the elderly sample being 85% female. In Group A, 52.90% of the elderly have a degree of dependency I and 39.10% of Group B, a degree of dependency II. The assessment instruments used were the... (Complete abstract click electronic access below) / Mestre

Bakgrund: Bröstcancer är idag den vanligaste cancersjukdomen bland kvinnor globalt. När en kvinna drabbas av bröstcancer tar ofta anhöriga ett stort ansvar för kvinnans omsorg i hemmet. Problematiken med anhörigomsorg är att anhörigas förutsättningar för att ge omsorg ser olika ut och att deras egen hälsa riskerar att påverkas. Syfte: Syftet var att belysa anhörigas upplevelser av att ge omsorg till en kvinnlig familjemedlem med bröstcancer. Metod: Metoden var en allmän kvalitativ litteraturöversikt med 11 artiklar som analyserades genom en kvalitativ innehållsanalys. Resultat: Två kategorier identifierades; Omsorgens utmaningar och Stöd i omsorgen. Under Omsorgens utmaningar identifierades två sub-kategorier; Svårigheter att ge omsorg och Känsla av att vardagen prövades. Under Stöd i omsorgen identifierades två sub-kategorier; Känsla av att stärka kvinnan och Behov av att vägledas. Slutsats: Anhöriga upplevde flera svårigheter med att ge omsorg. Den ökade belastningen på dagens hälso- och sjukvård gör att ansvaret för patientens omsorg ökar för anhöriga, vilket var svårt att ta sig an. Anhöriga upplever likväl att deras insatser gör skillnad. Trots att forskning understryker vikten av att se till alla familjemedlemmars behov och öka utrymmet för familjefokuserad omvårdnad, finns ett fortsatt behov av ytterligare forskning kring anhörigas upplevelser av familjefokuserad omvårdnad i dagens vård och omsorg. / Background: Breast cancer is the most common type of cancer among women globally. When a woman suffers from breast cancer the main responsibility of care is often taken by her relatives. The problem with relative care is that the relatives' conditions for providing care look different and that their own health risks being affected. Aim: The aim was to highlight relatives' experiences of providing care to a female family member with breast cancer. Method: The method was a general qualitative literature review with 11 articles that were analyzed through a qualitative content analysis. Result: Two categories were identified; The challenges of care and Support in care. Within The challenges of care two sub-categories were identified; The difficulties of providing care and The feeling that everyday life was tested. Within Support in care two sub-categories were identified; The feeling of strengthening the woman and Need to be guided. Conclusion: Relatives experienced several difficulties in providing care. The increased burden on today´s health care means that the responsibility for the patient's care increases for relatives, which was difficult to handle. Relatives still feel that their efforts make a difference. Although research emphasizes the importance of looking after the needs of all family members and increasing the scope for family-focused nursing, there is a continuing need for further research on relatives' experiences of family-focused nursing in today's care and nursing.

Indiana University-Purdue University Indianapolis (IUPUI) / The number of patients with chronic heart failure (HF) is at an all-time high and the incidence is expected to increase as our population ages. HF patients experience impaired cognition, exertional shortness of breath, and persistent fatigue; therefore, family members are needed to assist with their care at home. Although existing literature suggests that HF caregivers experience negative physical, mental, and social outcomes, there is a lack of studies guided by a conceptual model to determine factors associated with these outcomes. The purpose of this study was to determine factors associated with HF caregiver depressive symptoms, life changes, and quality of life guided by a conceptual model derived from Lazarus and colleagues’ transactional approach to stress. Psychometric properties of a new HF caregiver-specific quality of life (HFCQL) scale were also determined. Using a descriptive design, a convenience sample of 100 HF caregivers was interviewed by telephone using established measures along with the new HFCQL scale. The 16-item HFCQL scale, which measures physical, psychological, social, and spiritual well-being demonstrated evidence of internal consistency reliability (alpha = .89); 2-week test-retest reliability (ICC = .83); construct validity, as evaluated with factor analysis (loadings > .32) and hierarchical multiple regression (59% variance, p < .001); and criterion validity, as shown with significant (p < .001) correlations with the Bakas Caregiving Outcomes Scale (r = .73), SF-36 general and mental health (r = .45; .59), and a single overall QOL item (r = .71). Using hierarchical multiple regression, the model constructs accounted for 35% variance of depressive symptoms, 46% variance of life changes, and 59% variance of HFCQL (p < .001). Factors significantly associated with these outcomes included caregiving task difficulty, uncertainty, social support, and threat appraisal. Support for the conceptual model was provided, and potential areas for intervention development were identified. The new HFCQL scale showed potential as a quality outcome measure in HF caregivers, and might be used to screen HF caregivers for poor quality of life. Further research using the proposed conceptual model and the HFCQL scale is warranted. Tamilyn Bakas, DNS, RN, Chair

Bakgrund Att drabbas av demenssjukdom leder till konsekvenser både för personen som får diagnosen och dennes anhöriga. Följderna blir särskilt påtagliga när personen som får en demensdiagnos är under 65 år då de har en annan livssituation än de som är äldre när de drabbas. Anhöriga har behov av stöd men det som erbjuds motsvarar inte behoven. Syfte Syftet med denna studie är att undersöka vilket stöd anhöriga till personer med tidigt debuterande demenssjukdom önskar i samband med flytt till särskilt boende. Metod Studien genomfördes med kvalitativ metod i form av intervjustudie med innehållsanalys. Ansatsen var induktiv och analys gjordes av både manifest och latent innehåll. Resultat Studien resulterade i två huvudkategorier med sammanlagt sju subkategorier. Resultatet visade att personalen har stor betydelse för de anhörigas upplevelse av stöd. Vidare fanns behov av externt stöd, som god man och kurator. Anhöriga påtalade också brist på stöd i ansökningsprocessen och behov av en person med kunskap och helhetssyn att vända sig till genom hela sjukdomsförloppet. Slutsats Vårdpersonalens bemötande, engagemang och tillgänglighet är av stor betydelse för anhörigas upplevelse av stöd. Möjlighet att involveras i vården av den närstående är viktigt för den anhöriga, samt att få tillgång till andra stödjande insatser. / Background A dementia diagnosis leads to consequences both for the person being diagnosed and their family caregivers. The consequences are even more significant when the person who is diagnosed with dementia is under the age of 65 due to their different life situation compared to those who are older. The family caregivers have a need for support, but the existing support does not meet their needs. Aim The aim of this study is to examine what support family caregivers of persons with young onset dementia need during the transition to a nursing home. Method The study was conducted as an interview study using qualitative content analysis. The approach was inductive and both manifest and latent content was analyzed. Results The study resulted in two main categories with a total of seven subcategories. The results showed that the nursing staff is of great importance for the family caregivers´ experience of support. Furthermore, there was a need for external support, e.g. from a legal guardianor a counselor. Family caregivers also pointed out lack of support in applying for longterm care and they also expressed the need for a case manager to turn to during the course of the disease. Conclusions The staff is of great importance for the family caregivers’ experience of receiving support. To be involved in the care and to have access to other support measures is also a priority.

Bakgrund Amyotrofisk lateralskleros är en dödlig sjukdom som påverkar såväl den drabbade som anhöriga. Anhöriga har en betydande roll då de ofta vårdar den närstående i hemmet, och på grund av sjukdomens progression kan det bli en omfattande livsförändring. Sjuksköterskor ska utgå ifrån ett palliativt personcentrerat förhållningssätt där anhöriga behöver praktiskt och emotionellt stöd. En anhörig som vårdar en person med långvarig sjukdom ska erbjudas stöd för att minska belastning och förbättra livssituationen. Syfte Syftet var att beskriva anhörigas erfarenheter av att ge stöd till en person med Amyotrofisk lateralskleros. Metod En litteraturöversikt med elva vetenskapliga artiklar användes. Artiklarna hämtades från databaserna Cinahl Complete och PubMed. Artiklarna analyserades med stöd av Fribergs analysmodell. Resultat Tre teman identifierades i resultatet: (1) Inre känslor, (2) Förändringar inom familjen och (3) Hälso- och sjukvårdspersonalens påverkan. Två underteman framkom: Förändrade familjerelationer och Förändrade roller. Sammanfattning Litteraturöversikten visade att det fanns ett behov av information och stöd från sjukvården och övriga anhöriga. Att vara anhörigvårdare medförde en känslomässig påverkan på grund av hög belastning och ansvarskänslor. Sjukdomen bidrog till förändringar inom familjen så som förändrade familjerelationer och nya roller och anhörigvårdare upplevde olika utmaningar som att bibehålla en normal vardag och åsidosätta sina egna behov. / Background Amyotrophic lateral sclerosis is a deadly disease that affects both the person affected by illness and their relatives. Relatives have a significant role as they often provide care for the person at home, and due to the progression of the disease there can be an extensive life change. Nurses shall focus on a palliative person-centered care where relatives need practical and emotional support. A relative who cares for a person with a long-term illness must be offered support to reduce the burden and improve the living situation. Aim The aim was to describe relatives’ experiences of providing support to a person with Amyotrophic Lateral Sclerosis Method Literatur review with eleven scientific articles were used. The articles were retrieved from the databases Cinahl Complete and PubMed. Friberg’s analysis model were used to analyze the articles. Results Three themes were identified in the result: (1) Inner feelings, (2) Changes within the family and (3) The impact of health care professionals. Two sub-themes emerged: Changed family relationships and Changed roles. Summary The literature review showed that there was a need of information and support from the healthcare system and other relatives. Family caregivers experienced an emotional impact due to high workload and feelings of responsibility. The disease contributed to changes such as changing family relationships and new roles, and family caregivers experienced various challenges such as maintaining a normal everyday life and overriding their own needs.

Demenssjukdomars neurodegenerativa och progressiva förlopp leder till bristande förmåga att förmedla behov och önskemål. Många vårdas i livets slut på äldreboende där anhörigas delaktighet i vårdplanering ofta behövs vid beslut om vårdinsatser. Sjuksköterskan ansvarar för att planera och samordna vårdinsatser enligt ett personcentrerat förhållningssätt. Det inkluderar att ta hänsyn till anhörigas välbefinnande och ge praktiskt och emotionellt stöd under sjukdomsförloppet. Syftet med studien var att undersöka anhörigas erfarenheter av vård given i livets slut för personer med demenssjukdom på äldreboende. Studien genomfördes enligt metod för allmän litteraturöversikt där originalstudier mellan 2013-2023 erhölls genom systematisk sökning i databaserna PubMed och CINAHL. Sökningar genererade i femton originalartiklar, relevanta data extraherades och syntetiserades i en integrerad analys. Studiens resultat antyder att anhörigas erfarenheter och emotionella upplevelser berodde på hur väl de hölls uppdaterade om sin närståendes hälsa, prognos och förväntade symtom. Vid delaktighet i vårdplanering kunde bristande kunskap och information om sjukdomsprocess leda till ökad emotionell börda. Upprätthållande av kontinuerlig dialog kunde stärka upplevelsen av att inkluderas som vårdpartner och bidra till känsla av att ha fått stöd. Resultatet visade att upplevelse av att ha fått få stöd kunde påverkas av vårdpersonals förhållningssätt och bemötande. Studiens slutsats visar att anhöriga är i behov av kontinuerlig dialog kring hälsotillstånd, prognos och behandlingsmöjligheter under hela sjukdomsförloppet. En personlig och trygg vårdrelation kunde minska emotionell börda vid vårdplanering och möjliggöra emotionell förberedelse inför döden. / The neurodegenerative and progressive courses of dementia diseases lead to diminishing ability to communicate needs and wishes. Many individuals receive end-of-life care in nursing homes, involvement of family members is essential to support in decisionmaking regarding care interventions. Nurses are responsible for planning and coordinate care interventions in line with a person-centered approach. This involves considering the well-being of family members and providing practical and emotional support throughout the course of the disease. The aim of the study was to investigate family members' experiences of end-of-life care provided to individuals with severe dementia in nursing homes. The study was conducted following a methodology for a general literature review, where original studies conducted between 2013 and 2023 were obtained through systematic searches in the PubMed and CINAHL databases. These searches yielded fifteen original articles, the relevant data were synthesized through an integrated analysis. The findings of the study suggest that the experiences and emotional responses of family members depended on how well they were kept informed about the health, prognosis, and expected symptoms of their loved ones. Involvement in care planning could be hindered by a lack of knowledge and information about the disease process, leading to increased emotional burden. Maintaining continuous dialogue could strengthen the perception of being included as a care partner and contribute to a sense of having received support. The results also indicated that the perception of receiving inadequate support could be influenced by the attitudes and interactions of healthcare personnel. The study concludes that family members require ongoing dialogue regarding the health status, prognosis, and treatment options throughout the entire course of the illness. A personal and supportive care relationship could reduce emotional burden during care planning and facilitate emotional preparation for death.

Bakgrund: Demens förväntas öka i Sverige, cirka 130 000–150 000 personer lider idag av demens och 20 000–25 000 nya personer insjuknar årligen. Anhörigvårdare har en avgörande roll för patienter med demens, och deras behov av adekvat stöd är av yttersta vikt. Stödet till anhöriga är i nuläget ej tillräckligt. Att belysa deras situation skulle kunna ge sjuksköterskor ökade kunskaper om demens och förbättra stödet till patienter och deras anhöriga, samt att anpassa vården efter deras unika behov. Syfte: Att belysa anhörigas upplevelser av att vårda en närstående med demens. Metod: En allmän litteraturstudie, bestående av fem kvalitativa och fyra kvantitativa artiklar samt en studie med mixad metod. Resultat: Demenssjukdom innebär ett krävande ansvar för anhörigvårdare. Bristande kunskap om symtom leder till att varningssignaler förbises. Förutom det yttre stödet krävs mer hjälp för att lindra vårdansvaret. Ömsesidighet och förberedelse minskar anhörigvårdares stress. Tidig intervention och utbildning är viktigt för att förbättra situationen för både patienter och deras familjer. Konklusion/implikation: Studien belyser det akuta behovet av omfattande stöd för de anhöriga vårdarna. Anhörigstöd kräver inte bara medicinsk expertis utan även ett känslomässigt stödsystem. Att erbjuda stöd är betydande för att minska den fysiska och psykiska belastningen på de anhöriga. / Background: Dementia is expected to increase in Sweden, approximately 130,000–150,000 people suffer from dementia today and 20,000–25,000 new people become ill annually. Carers have a crucial role for patients with dementia, and their need for adequate support is of the utmost importance. Support for relatives is currently insufficient. Elucidating their situation could provide nurses with increased knowledge about dementia and improve support for patients and their relatives, as well as adapting care to their unique needs. Aim: To shed light on relatives' experiences of caring for a loved one with dementia. Method: A general literature study, consisting of five qualitative and four quantitative articles and a mixed method study. Results: Dementia entails a demanding responsibility for family caregivers. Lack of knowledge about symptoms leads to warning signs being overlooked. In addition to external support, more help is required to alleviate the care responsibilities. Reciprocity and preparation reduce caregiver stress. Early intervention and education are important to improve the situation for both patients and their families. Conclusion/implication: The study highlights the urgent need for extensive support for family caregivers. Family support requires not only medical expertise but also an emotional support system. Offering support is important in reducing the physical and psychological burden on the relatives.

L’insuffisance cardiaque (IC) est une maladie chronique dont les symptômes sévères peuvent mener à des hospitalisations répétées. Pour gérer ces symptômes, le plan de traitement implique plusieurs auto-soins, par exemple une diète limitée en sel et en liquide, ce qui est parfois difficile à respecter. Le but de la présente étude pilote randomisée à deux groupes (n = 16 / groupe) était d’évaluer la faisabilité, l’acceptabilité et l’efficacité préliminaire d’une intervention infirmière favorisant la pratique des auto-soins des patients atteints d’IC. L’intervention est basée sur la théorie de l’autodétermination (TAD) qui promeut l’autonomie dans la pratique des auto-soins. L’autodétermination est favorisée par le sentiment de compétence perçue, d’autonomie et d’affiliation. Pour soutenir le besoin d’affiliation, un aidant principal participe à l’intervention qui consiste en cinq entrevues chez le groupe d’intervention (GI) dont deux durant l’hospitalisation et trois par un appel téléphonique suite au congé. Les interventions découlant de cette théorie incluent par exemple de proposer des choix plutôt que d’imposer des restrictions, d’éviter la critique, de favoriser l’empathie et le renforcement positif. Les entrevues ont servi également à guider les aidants principaux pour qu’ils soutiennent à leur tour l’autodétermination de leur parent atteint d’IC. Les résultats soutiennent la faisabilité et l’acceptabilité de l’intervention évaluée dans la présente étude et permettent d’améliorer la pratique des auto-soins avec des résultats favorables pour la majorité des hypothèses évaluées. Ces résultats prometteurs permettront de guider la pratique clinique et offrent des pistes de recherches futures. / Heart failure (HF) is a chronic disease with severe symptoms that may lead to repeated hospitalizations. To manage these symptoms, the treatment plan involves several self-cares, such low-salt diet and fluid restriction, which is sometimes difficult to achieve. The purpose of this randomized pilot study of two groups (n = 16 / group) was to assess the feasibility, acceptability and preliminary effectiveness of a nursing intervention aimed at improving the self-care practice in HF patient’s. The intervention is based on self-determination theory (SDT) which promotes autonomy in self-care practice. Seldetermination is enhanced by individual’s perceived competence, autonomy and relatedness. To sustain affiliation need, a primary caregiver participates in the intervention, which consists of five interviews with the experimental group (EG), two during hospitalization and three by a telephone follow-up after discharge. Interventions based on this theory include offering choice rather than imposing restrictions, avoiding criticism, encouraging empathy and positive reinforcement. The interviews were also used to guide the primary caregivers so they could themselves support their HF relatives’ with self-determination. The results support the feasibility and acceptability of the intervention evaluated in this study and help improve self-care practice with positive results for the majority of the hypotheses tested. These promising results will guide clinical nursing practice and provide avenues for future research.

Submitted by SBI Biblioteca Digital (sbi.bibliotecadigital@puc-campinas.edu.br) on 2017-04-28T13:57:07Z No. of bitstreams: 1 CARLA FABIANA CARLETTI PESSOTTI.pdf: 1686396 bytes, checksum: cae4805c98f9d020da8253219f182a5e (MD5) / Made available in DSpace on 2017-04-28T13:57:08Z (GMT). No. of bitstreams: 1 CARLA FABIANA CARLETTI PESSOTTI.pdf: 1686396 bytes, checksum: cae4805c98f9d020da8253219f182a5e (MD5) Previous issue date: 2017-02-07 / Introduction: The longevity of the population results in a natural increase in the prevalence of diseases associated with aging, such as dementias, according to the current classification of DSM 5 (2013); dementias are in the Major Cognitive Disorder category; Occur in several pathological conditions, has characteristic the multiple development of cognitive deficits with impairments in basic and instrumental activities of daily living (AIVD/AVD), and specific care is required. In Brazil, caring for family/caregivers is common. The objective of this study was to describe the quality of life and the burden of family/caregivers of patients with dementia; analyze and compare the relationships between quality of life and the caregiver's burden. Procedures: 50 family/caregivers (GFC) and 50 patients with dementia (GDM) corresponding to family/caregivers were studied. In the GFC were evaluated sociodemographic aspects, quality of life, burden, depressive symptoms, religiosity index and resilience through the Qvd-DA instruments; Burden Interviw, BDI, PDUREL and Resilience Scale. In the GDM, sociodemographic, cognitive, neuropsychiatric and AIVD/AVD aspects were evaluated through the MEEM, INP, Semantic Verbal Fluency Test, Clock Drawing Test and DAD. The data were analyzed, related and compared between GFC, GDM, GDA and GNDA. Statistical tests were used with significance level p <0.05. Results: GFC predominated in the female gender (88%), mainly daughters (54%) and wives (32%), most married, with a mean age between 50 and 60 years and 8 years of schooling, years and 19 hours per day on average. GDM had a homogeneous distribution between genders, with a predominance of AD (68%), married (44%) and widowers (52%), above 70 years of age (78%), 82% of the patients had some kind of income. The GFC presented moderate burden, without depressive symptoms, high intrinsic religiosity index with daily practices of individual religious rituals and regular attendance to religious institutions, high perception of quality of life and high resilience index. Regarding severity of cognitive and neuropsychiatric impairment, GDA patients presented better performance than GNDA patients. Conclusion: The task of caring for patients with dementia is costly; the findings suggest that family/caregivers adapt to the situation they have experienced; they have shown moderate burden; minimal depressive symptoms; engagement in religious practices; high perception of quality of life and high resilience response to different situations. Family/caregivers with depressive symptoms presented greater perception of burden, lower resilience response, greater perception of quality of life impairment and greater intrinsic religiosity. Those who had greater resilience responses had a lower occurrence of depressive symptoms, a lower perception of burden, and a higher perception of a better quality of life. This data indicates that caregivers with resilience responses have fewer depressive symptoms. / Introdu??o: A longevidade da popula??o traz como decorr?ncia natural o aumento na preval?ncia de doen?as associadas ao envelhecimento como as dem?ncias, de acordo com a classifica??o atual do DSM 5 (2013), as dem?ncias est?o na categoria Transtorno Cognitivo Maior, ? uma s?ndrome que pode ocorrer em diversas condi??es patol?gicas, tem como caracter?stica o desenvolvimento m?ltiplo de d?ficits cognitivos com preju?zos em atividades b?sicas e instrumentais da vida di?ria (AIVD/AVD), sendo necess?rios cuidados espec?ficos. No Brasil ? comum os cuidados por familiares/cuidadores. O objetivo deste estudo foi descrever qualidade de vida e sobrecarga de familiares/cuidadores de pacientes com dem?ncia; analisar e comparar as rela??es entre qualidade de vida e sobrecarga do cuidador. Casu?stica e procedimentos: Foram estudados 50 familiares/cuidadores (GFC) e 50 pacientes com dem?ncia (GDM) correspondentes aos familiares/cuidadores. No GFC foram avaliados aspectos sociodemogr?ficos, qualidade de vida, sobrecarga, sintomas depressivos, ?ndice de religiosidade e resili?ncia atrav?s dos instrumentos Qvd-DA; Burden Interviw, BDI, PDUREL e Escala de Resili?ncia. No GDM foram avaliados aspectos sociodemogr?ficos, cognitivos, neuropsiqui?tricos e AIVD/AVD atrav?s dos instrumentos MEEM, INP, Teste de Flu?ncia Verbal Sem?ntica, Teste do Desenho do Rel?gio e DAD. Os dados foram analisados, relacionados e comparados entre os GFC, GDM, GDA e GNDA. Foram utilizados testes estat?sticos com n?vel de signific?ncia p< 0,05. Resultados: GFC predominou o g?nero feminino (88%), principalmente filhas (54%) e esposas (32%), a maioria casada, com idade m?dia entre 50 e 60 anos e com 8 anos de escolaridade, tarefa de cuidar h? 4 anos e 19 horas di?rias em m?dia. GDM houve distribui??o homog?nea entre g?neros, acima dos 70 anos (78%) com predom?nio na DA (68%), casados (44%) e vi?vos (52%), 82% dos pacientes possu?am algum tipo de renda. GFC apresentou sobrecarga moderada, sem sintomas depressivos, elevado ?ndice de religiosidade intr?nseca com praticas di?rias de rituais religiosos individuais e frequ?ncia regular a institui??es religiosas, elevada percep??o de qualidade de vida e alto ?ndice de resili?ncia. Quanto ? gravidade do comprometimento cognitivo e neuropsiqui?trico, os pacientes do GDA apresentaram melhor desempenho do que pacientes do GNDA. Conclus?o: A tarefa de cuidados ? pacientes com dem?ncia ? onerosa, os achados sugerem adapta??o dos familiares/cuidadores ? situa??o vivenciada, demonstraram sobrecarga moderada; sintomas depressivos m?nimos; engajamento em pr?ticas religiosas; elevada percep??o de qualidade de vida e elevada resposta de resili?ncia frente ?s diversas situa??es. Familiares/cuidadores com sintomas depressivos apresentaram maior percep??o de sobrecarga, menor resposta de resili?ncia, maior percep??o de comprometimento da qualidade de vida e maior religiosidade intr?nseca. Aqueles que possu?am maiores respostas de resili?ncia, apresentaram menor ocorr?ncia de sintomas depressivos, menor percep??o de sobrecarga e conseq?ente maior percep??o de melhor qualidade de vida. Esse dado indica que cuidadores com respostas de resili?ncia apresentam menos sintomas depressivos.

Made available in DSpace on 2017-07-21T14:42:59Z (GMT). No. of bitstreams: 1 Lucimar Aparecida Garcia Coneglian.pdf: 826784 bytes, checksum: 94a9617f38606e186df7a0fb8a7a5cf6 (MD5) Previous issue date: 2011-02-04 / This thesis records the research developed in CAPS in the region of Campos Gerais in the cities Arapoti, Campo Largo, Castro, Lapa, Ponta Grossa, Rio Negro and Telêmaco Borba, of Paraná State. The method chosen was to select successful cases of psychological distress in people who take care in these institutions. Also covered are the success criteria identified by professionals working in the Campos Gerais CAPS and the elements of success contained in the discourse of family caregivers. It is part of the field research the record of institutional profile, the profile of workers and the profile of ‘users’ CAPS surveyed. CAPS workers in the Campos Gerais area defined the criteria they considered relevant to identify successful experiences, and they also indicated the success stories, selected for the interviews with family members, caregivers. From the interviews with the caregivers were discussed some elements that may be related to successful treatment. Through analysis of data collected, it is noted that the question of success in treating psychological distress of the person is permeated by contradictions, where the constructs of the brasilian Psychiatric Reform coexist with the principles of biomedical psychiatry. / Essa dissertação registra a pesquisa desenvolvida nos CAPS da região dos Campos Gerais das cidades paranaenses de Arapoti, Campo Largo, Castro, Lapa, Ponta Grossa, Rio Negro e Telêmaco Borba. A opção metodológica foi a de selecionar casos exitosos de pessoas em sofrimento psíquico que fazem tratamento nestas instituições. Também estão contemplados os critérios de sucesso no tratamento identificados pelos profissionais que atuam nos CAPS dos Campos Gerais e os elementos do êxito contidos no discurso dos cuidadores, em relação ao se familiar que freqüenta a instituição. Faz parte da pesquisa de campo o registro do perfil institucional, do perfil dos trabalhadores e do perfil dos ‘usuários’ dos CAPS pesquisados. Os trabalhadores dos CAPS dos Campos Gerais definiram os critérios que consideraram relevantes para identificar as experiências exitosas, sendo que eles também indicaram os casos de sucesso, selecionados para as entrevistas com os familiares-cuidadores. A partir das entrevistas com os cuidadores foram discutidos alguns elementos que podem estar relacionadas ao êxito no tratamento. Através da análise dos dados coletados, foi possível perceber que a questão do êxito no tratamento da pessoa em sofrimento psíquico está permeada por contradições, onde os constructos da Reforma Psiquiátrica brasileira coexistem comos preceitos da psiquiatria biomédica.