No / This paper is ed from an action research project on promoting family-centred care in Nigeria through the practice of Nigerian Primary Nursing (NMPN). This article will present results of comparative evaluation of the impact of primary nursing on the quality of care received by patients in a 37-bedded acute medical-surgical, mixed sex ward in a specialist hospital in eastern Nigeria. A total of 44 nurses' interactions with 10 patients in the pre-NMPN period and 58 nurses' interactions with eight patients in the post-NMPN period were assessed using QUALPACS (Quality Patient Care Scale.). Results showed a significant improvement in the quality of nursing care with primary nursing practice. The greatest improvement in quality of nursing appeared to be in the elements that address the individual needs of the patient, while the smallest improvements were in the area of physical care--elements of routine, technical nursing care. Implications of the study and recommendations for further studies are made.

Yes / Children’s hospices provide a range of family-centred care services, including bereavement support. Not all hospices provide specific services for grandparents. To explore how a hospice-based bereavement support group supported grandparents in their grief following the death of a grandchild. Methods: Grandparents attending a group were invited to complete an anonymous questionnaire. Questionnaires from eight groups, run between 2015 and 2019 were collated and interpreted to identify themes. Findings: 121 grandparents attended the groups; 113 returned the questionnaires (93% response). Three central themes were identified: environment and space, being with people who understand, and the opportunity to hear the stories of others. Grandparents valued hearing the stories of others, providing an opportunity to reflect on the experience of others. Conclusion: Grandparents felt supported and validated by the group. The facilitated sessions increased coping and resilience of participants, enabling grandparents to support their partner, adult children and surviving grandchildren more effectively.

Bakgrund: Barnhälsovården (BHV) genomför universella insatser till alla barn och deras föräldrar och riktade insatser till de familjer som har särskilda behov. Hembesök är en arbetsmetod som används av BHV-sjuksköterskan och kan göras av olika orsaker. Dels som en del av de universella insatserna, dels som en riktad insats till familjer i behov av extra stöd.   Syfte: Beskriva sjuksköterskors erfarenheter av att arbeta med universella och riktade hembesök inom barnhälsovården. Metod: En kvalitativ studie. Femton specialistsjuksköterskor inom BHV intervjuades. Innehållsanalys med induktiv ansats har använts som analysmetod. Resultat: BHV-sjuksköterskorna har positiva erfarenheter av hembesök som en användbar arbetsmetod både universellt och riktat, men att det är tidskrävande med hembesök. BHV-sjuksköterskornas erfarenheter visar att hembesök ger goda förutsättningar för att kunna etablera en god vårdrelation med familjen. BHV-sjuksköterskorna upplever att både barnen och föräldrarna är tryggare i hemmiljön.  Föräldrarna vågar öppna sig mer och det underlättar för BHV-sjuksköterskan att bedöma barnets hälsa när barnet är tryggare. Samarbete med andra professioner vid hembesök upplevs i vissa situationer som ett bra stöd. Slutsats: Barnet och föräldrarna upplevs tryggare i hemmet än på mottagningen och hembesök ger därför goda förutsättningar för att bygga upp en förtroendefull vårdrelation med familjen. Universella hembesök ger BHV-sjuksköterskorna möjlighet att identifiera familjer med behov av riktat stöd och riktade hembesök kan vidare bidra till att alla familjer får en ökad möjlighet till likvärdig hälsa. / Background: The Child Health Care (CHC) offer universal interventions to all children and their parents, as well as targeted intervention for families with specific needs. One method used by the CHC-nurse is home visits and they can be performed for different reasons. Partly as a component of the universal support, partly as a targeted intervention to families in need of extra support. Purpose: To describe nurses experiences working with universal as well as targeted home visits in Child Health Care. Method: A qualitative study. Fifteen specialist nurses were interviewed, and content analysis has been used to analyse the interviews. Results: The CHC-nurses find home visits as a positive and useful method, both for universal and targeted purpose. However, it is a time-consuming method. Their experiences show that the method facilitate caring relation with the family. The nurses experience that both children and their parents are much safer in their home environment. The parents dare to open up more and it makes it easier for the Child Health Care Nurses to assess the child’s health and development. Cooperation with other professions when making home visits can be supportive in certain situations. Conclusion: The child and the parents are seemingly more at ease at home than at the clinic. As a consequence, home visits lead to good opportunities to establish a caring and trustful relation with the family. Universal home visits offer the possibility to identify families in need of more targeted support. Targeted home visits can contribute to promote every families the opportunity to access equal health.

Bakgrund: Barnhälsovården finns till för att främja alla barns hälsa, allsidiga utveckling och välbefinnande. Sjuksköterskans uppdrag inom barnhälsovården är att tidigt grundlägga god kontakt med båda föräldrarna till det nyfödda barnet samt främja båda föräldrarnas delaktighet i omvårdnaden av barnet. Som stöd för främjande av en jämställd vård infördes år 2018 ett enskilt samtal även med den ickefödande föräldern i det nationella barnhälsovårdsprogrammet. Syfte: Att undersöka hur sjuksköterskor inom barnhälsovården upplever det enskilda samtalet med den icke-födande föräldern. Metod: Studien genomfördes med kvalitativa intervjuer med stöd av semistrukturerad intervjuguide. Data analyserades med hjälp av kvalitativ innehållsanalys. Resultat: Fyra kategorier och tio underkategorier framkom i analysen. Följande kategorier presenteras: (i) Bättre kontakt med den icke-födande föräldern, (ii) Stort intresse för samtalet, (iii) Att kunna stärka föräldern i sin nya roll, och (iv) Att bekräfta betydelsen av att båda föräldrarna är lika viktiga. Konklusion: Införandet av det enskilda samtalet för den icke-födande föräldern har gjort att BVCsköterskan får möjlighet att grundlägga en bättre relation till den icke-födande föräldern och på så sätt utforma ett stöd som innebär en jämställd vård till hela familjen. / Background: The Child Health Care’s (CHC) aim is to enable all children's right to health, versatile development and wellbeing. It is important that the CHC-nurse early in the care of the newborn child develops a good relationship with both parents to create better possibilities for good health for the entire family. As a support for the CHC-nurses to be able to present an equal care for both parents a one on one conversation with the father/non-birth parent is offered when the newborn is about 3- 5 months old. Aim: The aim was to study the CHC-nurse’s experiences of the one on one conversation with the non-birth parent. Method: The study was conducted with a qualitative descriptive method including semi-structured interviews and qualitative content analysis. Result: The result is presented in the following categories: Better contact with the non-birth parent, Great interest for the conversation, To be able to support the parent in their new situation, To confirm the relevance of both parents being equally important. Conclusion: The introduction of the one on one conversation with the non-birth parent has increased the possibilities for the CHCnurse to found a better relationship with the non-birth parent. This increases the chances to offer equal care for the entire family.

Background Internationally, speech and language therapists (SLTs) are involving parents and providing home tasks in intervention for phonology-based speech sound disorder (SSD). To ensure that SLTs’ involvement of parents is guided by empirical research, a review of peer-reviewed published evidence is needed. Aims To provide SLTs and researchers with a comprehensive appraisal and analysis of peer-reviewed published intervention research reporting parent involvement and the provision of home tasks in intervention studies for children with phonology-based SSD. Methods & Procedures A systematic search and review was conducted. Academic databases were searched for peer-reviewed research papers published between 1979 and 2013 reporting on phonological intervention for SSD. Of the 176 papers that met the criteria, 61 were identified that reported on the involvement of parents and/or home tasks within the intervention. These papers were analysed using a quality appraisal tool. Details regarding the involvement of parents and home tasks were extracted and analysed to provide a summary of these practices within the evidence base. Main Contribution Parents have been involved in intervention research for phonology-based SSD. However, most of the peer-reviewed published papers reporting this research have provided limited details regarding what this involved. This paucity of information presents challenges for SLTs wishing to integrate external evidence into their clinical services and clinical decision-making. It also raises issues regarding treatment fidelity for researchers wishing to replicate published intervention research. Conclusions & Implications The range of tasks in which parents were involved, and the limited details reported in the literature, present challenges for SLTs wanting to involve parents in intervention. Further high-quality research reporting more detail regarding the involvement of parents and home tasks in intervention for SSD is needed.

Bakgrund: Övervikt hos barn är ett växande folkhälsoproblem som hotar barns psykiska och fysiska hälsa. Distriktssköterskan har i uppdrag att främja barns hälsa i sitt arbete på barnavårdscentralen och kan med hjälp av familjefokuserad omvårdnad se till barnets helhet. Föräldrarna har ett stort inflytande över sina barns levnadsvanor och det är därmed av stor vikt att undersöka upplevelsen av det hälsofrämjande arbetet utifrån deras perspektiv. Syfte: Syftet med studien är att belysa hur föräldrar till barn med övervikt upplever distriktssköterskans hälsofrämjande arbete på barnavårdscentralen. Metod: Kvalitativ intervjustudie med induktiv ansats. Semistrukturerade intervjuer med 9 föräldrar som erhåller eller har erhållit stöd och behandling via barnavårdscentralen när barnet var i åldern 2 – 5 år. Data analyserades utifrån kvalitativ latent innehållsanalys. Resultat: Resultatet redovisas i 2 huvudkategorier: ”Baksidan av tillväxtkontroller” och ”Skiftande uppfattningar om det hälsofrämjande arbetet”. I “Baksidan av tillväxtkontroller” identifierades 2 underkategorier: “Olika syn på barnets övervikt” och “Känslan av att vara övervakad utan nytta”. I “Skiftande uppfattningar om det hälsofrämjande arbetet” identifierades fyra underkategorier: “Konkret rådgivning”,“Användbar rådgivning och positiva effekter”, “Brister i rådgivning och kompetens” och“Kampen mellan att följa råden och göra det bästa för sitt barn”. Slutsats: Behandlingen på barnavårdscentralen väckte mycket känslor hos föräldrarna och de hade sitt barns bästa i fokus huruvida de valde att följa behandlingen eller inte. Föräldrarna beskrev både positiva och negativa upplevelser av distriktssköterskans rådgivning och bemötande, vilket till stor del påverkade om familjen förändrade sina levnadsvanor. / Background: Obesity in children is a growing public health problem that threatens children's mental and physical health. The district nurse is tasked with promoting children's health through her work at the childcare centre and, with the help of family-centred care, can taken care of the child as a whole. Parents have a great influence over their children's lifestyle and it is therefore of great importance to examine the experience of the health promotion work from their perspective. Aim: The purpose of the study is to shed light on how parents to overweight children experience the district nurse's health promotion work at the childcare centre. Method: Qualitative interview study with an inductive approach. Semi-structured interviews with 9 parents who receive or have received support and treatment via the childcare centre when the child was aged 2 -5 years. The data was analysed based on qualitative latent content analysis. Results: The results are reported in 2 main categories: “The back side of growth controls” and “Changing perceptions of health promotion work". In "The back side of Growth controls" could 2 subcategories be identified: "Different views on the child's obesity" and "The feeling of being observes without benefit". In "Changing perceptions of health promotion work" 4 subcategories could be identified: "Concrete advice", "Useful advice and positive effects", "Deficits regarding advice and competence" and "The struggle between following the advice and doing the best for one's child". Conclusions: The treatment at the childcare centre aroused a lot of emotion in the parents and they had their child's best interests in focus regardless they chose to follow the treatment or not. The parents described both positive and negative experiences of the district nurse's advice and treatment, which largely influenced whether the family changed their lifestyle.

Background: This thesis aimed to develop, implement, and evaluate a multi-faceted integrated knowledge translation (iKT) intervention to disseminate and support adoption of the ‘F-words in Childhood Disability’. Grounded in the WHO’s ICF framework, the ‘F-words’ (Function, Family, Fitness, Fun, Friends, and Future) offer a holistic family-centred approach to childhood disability. Methods: This thesis was guided by the action cycle of Graham et al.’s (2006) knowledge-to-action (KTA) framework. Chapter 2 reports a knowledge translation (KT) initiative (i.e., an online video) to disseminate the ‘F-words’ and explore people’s reception of these ideas. Chapter 3’s scoping review identifies and assesses KT strategies that directly target families raising children and youth with special health care needs. Chapter 4 describes a pilot study to evaluate the usability and utility of an online ‘F-words’ KT resource. Chapter 5 reports a case study of our longitudinal KT research program, and uses Diffusion of Innovation (DOI) theory to understand the factors that contributed to the adoption of the ‘F-words’. Results: Multi-faceted KT strategies, co-developed with stakeholders, were essential to moving the ‘F-words’ into practice. The video (Chapter 2) reached >700 views in two months and 98% of 137 survey respondents indicated they ‘extremely liked’/‘liked’ the ideas. The scoping review (Chapter 3) identified six studies, all of which evaluated educational materials and deemed them to be useful and important to families. The pilot evaluation (Chapter 4) revealed the online resource to have positive usability and utility for families and service providers. The case study (Chapter 5) highlighted that diffusion, dissemination and implementation strategies were all needed and that DOI factors (i.e., the innovation characteristics, communication channels, social networks, and time) contributed to the adoption of the ‘F-words’. Based on a multi-faceted integrated KT research program we now have extensive examples of ‘F-words’ adoption by families, service providers, and health care organizations. Conclusions: This thesis illustrates a step-wise theory-informed approach to the development and evaluation of a multi-faceted iKT intervention. By studying each step of the action cycle, this work contributes new knowledge to both the processes involved in disseminating research evidence, and associated outcomes from a multi-faceted iKT intervention. Findings from this thesis contribute new discoveries to both KT practice and science. / Thesis / Doctor of Philosophy (PhD) / In the 21st century, research supports a holistic family-centred approach to childhood disability. Unfortunately, a research to practice gap remains, and the professional-led biomedical approach still informs many practices. In 2012, Rosenbaum and Gorter published “The ‘F-words’ in childhood disability: I swear this is how we should think!” They highlighted the importance of ‘Function, Family, Fitness, Fun, Friends, and Future’, grounded in the World Health Organization’s framework for health. This thesis developed and evaluated a knowledge translation research program to move the ‘F-words’ into practice. Objectives, all achieved, were to: i) apply strategies to spread awareness of the ‘F-words’ and explore people’s reception of these ideas; ii) identify and assess strategies to share research with families; iii) develop and evaluate an online resource to support use of the ‘F-words’; and iv) study the processes involved and factors that contributed to the ‘F-words’ adoption. These findings have implications for both doing and studying knowledge translation.

Yes / Children’s hospices provide a range of services for babies, children and young people who have life-shortening conditions, including care after death in specialist ‘cool bedrooms’. Caring for children after death is a challenging area of hospice care, with variation seen within, and between organisations. The study aims to identify current practices and to produce guidelines that promote safe practice in moving and handling and managing physiological deterioration of children after death. An electronic questionnaire was sent to all 54 British children’s hospices; 33 responded (=62% of hospices). Variation in the way in which children’s hospices delivered care after death was identified, in terms of the length of stay, care provision and equipment used, owing to demands of individual families and the experience and confidence of practitioners. Internal variation in practice can lead to practitioner anxiety, and risk-taking when providing care, particularly in the presence of family members. Practice recommendations have been made that reflect the practical demands of caring for a child’s body after death; these have been split into two parts: moving and handling considerations and managing physiological deterioration. These recommendations should be used to support the development of policy and practice, allowing organisations to standardise staff expectations and to support practitioners when caring for children after death.

Bakgrund: Alla barn i Sverige erbjuds från födseln upp till fem år barnhälsovårdens nationella program. Syftet med programmet är att förebygga ohälsa hos barn och att i ett tidigt skede uppmärksamma och åtgärda problemen. Det innebär att BVC-sjuksköterskan måste ha kunskap kring hur föräldrar ser till att hjälpa sina spädbarn till god sömn. Syfte: Att belysa föräldrars upplevelse av stöd från BVC-sjuksköterskan kring spädbarns sömn. Metod: Kvalitativ gruppintervjustudie. Datainsamling med tolv föräldrar till spädbarn i åldrarna 3-12 månader. Fyra gruppintervjuer genomfördes med tre deltagare i vardera. Data analyserades med innehållsanalys av Graneheim och Lundman (2004). Resultat: Tre huvudkategorier med vardera fem, fyra och sex underkategorier framkom. Huvudkategorierna resulterade i; uteblivet stöd, ouppfyllda behov av stöd, uppfyllda behov av stöd. Slutsats: BVC-sjuksköterskans stöd till föräldrar gällande spädbarns sömn visade till viss del ett motsägelsefullt resultat. Vilket kan stå för flera olika faktorer. De mest avgörande fynden var ändå att trots olika eller obefintliga upplevelser av stöd fanns det ett stort förtroende för BVC. Råden kring samsovning behöver bli tydligare. Det vore också värdefullt om fler studier görs kring BVC-sjuksköterskans stöd om sömn till mammor i jämförelse hur bemötandet och stödet blir till partnern.

Bakgrunden betonar vikten av organdonation för att rädda liv och förbättra livskvaliteten för patienter med terminal organsvikt. Trots ökningen av transplantationer globalt finns det fortfarande en betydande brist på tillgängliga organ, vilket leder till hög dödlighet bland väntande patienter. Närstående spelar en central roll i processen genom att ofta fatta beslut om organdonation när den potentiella donatorn inte själv har uttryckt en vilja. Intensivvårdssjuksköterskor har en nyckelroll i att stödja och kommunicera med närstående under denna känsloladdade process. Familjecentrerad vård är avgörande för att ge stöd och vägledning till familjer genom svåra beslut och sorgearbete.  Syftet var att beskriva upplevelsen av donationsprocessen ur ett närståendeperspektiv. Metoden omfattande en strukturerad litteraturöversikt med en kvalitativ ansats. Genom systematiska sökningar i CINAHL och PubMed har relevant litteratur inom området identifieras och analyserats i teman, för att få en djupare förståelse för ämnet. Totalt identifierades 17 artiklar. Dataanalysen genomfördes med hjälp av Braun och Clares metod för tematisk analys.  Resultatet avslöjar tre teman som belyser närståendes upplevelse av donationsprocessen. Det första temat stormens förståelse, symboliserar en tid av kaos och utmaningar där närstående upplevde olika aspekter av information och kommunikation. Samtidigt som de präglades av svårigheter att acceptera den juridiska dödförklaringen. Det andra temat stormens öga avslöjade närståendes erfarenheter av bemötande, stöd och beslutsfattande i samband med donation. Det tredje temat brisen efter stormen, belyser närståendes upplevelser av generositet och känslomässig kontakt med mottagaren. Dessa teman ger insikt i den emotionella resa och de utmaningar som närstående möter under donationsprocessen.  Slutsatsen är att närståendes upplevelse i donationsprocessen har en direkt koppling till familjecentrerad vård. Där en familjecentrerade vård på intensivvårdsavdelningar kan bidra till utvecklingen av framtida vårdstrategier och riktlinjer. / The background emphasises the importance of organ donation to save lives and improve the quality of life for patients with terminal organ failure. Despite the increase in transplants globally, there is a significant shortage of available organs, which results in high mortality among waiting patients. Family members play a central role in the process by often making decisions about organ donation when the potential donor has not expressed their wishes. Intensive care nurses have a pivotal role in providing support and communicating with families and loved ones during this emotionally intense process. Family centred care is crucial in order to support and guide families through difficult decisions and grief work. The aim was to describe the experience of the donation process through the perspective of family members and loved ones.  The method comprised a structured literature review utilising a qualitative approach. Systematic searches were conducted in CINAHL and PubMed to identify and analyse relevant literature within the field, in order to achieve a deeper comprehension of the topic. A total of 17 articles were selected for inclusion. Data analysis was performed using Braun and Clare’s method of thematic analysis.  The results reveal three central themes that highlight the experiences of families in the organ donation process, providing insight into the emotional journey and challenges faced by loved ones. The first theme, ‘Understanding the Storm’, symbolises a time of chaos and challenges where family members experienced different aspects of information and communication, whilst they faced difficulties in accepting the legal declaration of death. The second theme, ‘The Eye of the Storm’, featured the families experiences of treatment, support and decision making in the context of organ donation. The third theme, ‘The Breeze After the Storm’, highlights the families experiences of generosity and emotional connection with the recipient.  The conclusion determines that the experiences of next of kin in the donation process are intricately connected to family centred care. Implementing such care in intensive care units could significantly contribute to the development of future care strategies and guidelines.