Abstrakt Bakgrund: Sverige är idag världsledande gällande överlevnaden hos extremt underburna barn. Den högspecialiserade vården i Sverige är centraliserad till regionsjukhus vilket leder till att flertalet av dessa barn behöver transporteras från hemsjukhus till regionsjukhus för fortsatt vård. Motiv: Föräldrars känslor i samband med att deras barn behöver neonatal intensivvård är väl studerat i tidigare forskning både internationellt och nationellt. Då det finns begränsat med kunskap angående dessa föräldrars behov av stöd i samband med flytt av deras extremt underburna barn till annat sjukhus finns det möjligheter till förbättring inom området. Syfte: Syftet med studien var att belysa vilket stöd föräldrar till extremt underburna barn önskade när deras barn behövde flyttas till en annan neonatalavdelning på ett annat sjukhus.Metod: Studien genomfördes som en kvalitativ enkätstudie med öppna frågor med empirisk design. Enkäterna analyserades via en kvalitativ innehållsanalys med induktiv ansats av Elo & Kyngnäs. Föräldrarna (n=63) rekryterades via ett strategiskt urval från hela Sverige. Resultat: Resultatet delas in i två huvudkategorier; ”Föräldrars behov av förberedelser inför flytt till annat sjukhus” samt ”Föräldrars behov av emotionellt och personligt stöd”. Resultatet visar att det finns ett stort behov av stöd hos föräldrarna för att minimera de negativa upplevelser som kan uppstå då deras extremt underburna barn behöver flyttas till en annan neonatalavdelning. Föräldrarna beskriver att de önskar få information om avdelningen de flyttar till avseende rutiner och faciliteter samt när flytt förväntas ske och att denna information idag är bristfällig. Föräldrarna beskriver även att deras känslor och upplevelser behöver bli bekräftade av personalen och att behovet av en kontaktperson är stort. Konklusion: Resultatet belyser vilket stöd föräldrar efterfrågar i samband med flytt av sitt extremt underburna barn vilket skapar möjligheter för en framtida utveckling av neonatalvården. Implementering av stödjande vårdrutiner samt förbättrat samarbete mellan sjukhusen skulle öka möjligheterna för en förbättrad föräldraupplevelse och därmed minskad psykisk ohälsa. / AbstractBackground: Sweden is world-leading when it comes to survival rates among extremely preterm infants. Highly specialized care units are centralized to regional hospitals, resulting in that many extremely preterm infants need to be moved from their home hospital to a regional hospital for additional care. Motive: Parents' emotions when their extremely preterm infant requires neonatal intensive care is a well-studied area in both national and international studies. The authors therefore believe that there is a reason for further research regarding parents’ need for support in connection to the relocation of their extremely preterm infant to another hospital. Since there is limited research regarding the needs of these parents, there are opportunities for improvement in the area.Aim: The purpose of this study was to illustrate what support parents of extremely preterm infants need when their infant needs to be moved to another neonatal unit at another hospital. Methods: The study was conducted as a qualitative questionnaire study with open questions with empirical design. The questionnaires were analysed using a qualitative content analysis with an inductive approach by Elo & Kyngnäs. The parents (n=63) were recruited via a strategic selection from all over Sweden.Result: The result is divided into two main categories; “Parents’ need for preparation when moving to another hospital” and “Parents’ need for emotional and personal support”. The result shows that there is a great need for support among parents to minimize the negative experiences that can occur when their extremely preterm infant needs to be moved to another neonatal unit. The parents describe that they wish to receive more information about routines and facilities at the unit they are moving to, and then the move is expected to take place. The parents also describe that their feelings and experiences could be further confirmed by the staff and that they have a need for establishing a relation with a contact person. Conclusion: The result highlights what support parents request in relation to transportation of their extremely preterm infant, creating opportunities for further improvements in neonatal care. Implementation of supportive care routines and improved collaboration between hospitals could increase the opportunities for an improved parental experience and by that reduced mental illness.

Nonvocal alert patients in the intensive care unit setting often struggle to communicate due to inaccessible or unavailable tools for augmentative and alternative communication. A novel communication tool, the Manually-Operated Communication System (MOCS), was developed for use in intensive care settings for patients unable to speak due to mechanical ventilation. It is a speech-generating device designed for patients whose limited manual dexterity precludes legible writing. In a single-arm device feasibility trial, 14 participants (11 with tracheostomies, 2 with endotracheal tubes, and 1 recently extubated) used MOCS. Participants, family members, and observing nurses were interviewed whenever possible. Interviews included a modified version of the System Usability Scale (SUS) as well as open-ended questions; a qualitative immersion/crystallization approach was used to evaluate these responses. Participants with a tracheostomy and their family members/care providers rated MOCS on the SUS questions as consistently “excellent” (average rating across all groups was 84 +/- 17; all subgroups also rated the device highly). Through a qualitative interview process, these stakeholders expressed support for the use of MOCS in the ICU. Based on these data, MOCS has the potential to improve communication for nonvocal patients with limited manual dexterity.

Infant hearing screening (IHS) programs are not yet widespread in developing countries, such as South Africa. In order to ensure that the benefits of early hearing detection and intervention (EHDI) programs reach all infants, initial recommendations for the implementation of IHS programs in South Africa have been made by the Year 2002 Hearing Screening Position Statement by the Health Professions Council of South Africa. One of the platforms recommended for IHS in South Africa is the neonatal intensive care unit (NICU). South African NICU infants are at an increased risk for hearing loss, resultant of their high-risk birth histories, as well as the prevalence of context-specific environmental risk factors for hearing loss. There is currently a general scarcity of contextual data regarding the prevalence of risk indicators for hearing loss, and the prevalence of auditory impairment in the South African NICU population. The objective of this study was to describe an IHS program for NICU infants at a secondary hospital in Gauteng, South Africa. A quantitative descriptive research design was used to report on a cohort of 129 NICU infants followed up during a 29 month period. The objective of the study was achieved by describing the sample of infants in terms of the presence of specific risk indicators for hearing loss, the efficiency of the IHS program, and the incidence of auditory pathologies. Infants received their initial hearing screening as part of their medical and developmental follow-up visit at the hospital at three months of age. Routine rescreening visits were scheduled three monthly, whilst infants who failed the hearing screening were requested to return after three weeks for a follow-up. A data collection sheet was used to collect biographical information and risk indicators for hearing loss. Immittance measurements were recorded in the form of high-frequency and low-frequency tympanometry. Distortion product otoacoustic emissions (DPOAE) and automated auditory brainstem responses (AABR) were recorded, as well as diagnostic auditory brainstem responses (ABR) in cases where infants referred the screening protocol. Results revealed that environmental risk factors present in this sample included poor maternal education levels and prenatal HIV/AIDS exposure. At least 32% of mothers participating in this study did not complete high school. Prenatal HIV/AIDS exposure was present in at least 21% of the current sample of infants. The screening coverage rate fell short of the 95% benchmark set by the Joint Committee on Infant Hearing (JCIH, 2000). A 67% coverage rate was achieved with AABR screening, and an 88% coverage rate was achieved with DPOAE screening. 93% of infants had immittance screening performed on their initial visit to the IHS program. According to the Fisher’s two-sided exact test and the logistic regression procedure, high frequency tympanometry proved to be more effective than low frequency tympanometry, when assessing the middle ear functioning of infants younger than seven months when compared with DPOAE results. Normative pressure and admittance data was compiled for the use of high frequency tympanometry in NICU infants. Poor follow-up rates were recorded for both routine and non-routine visits, but are expected to improve over time. Furthermore, results indicated a high incidence of hearing impairment. Permanent congenital hearing loss was identified in 3% (n=4) of the sample. Half of these presented with sensorineural hearing loss, whilst the other half had auditory neuropathy. The incidence of auditory impairment is estimated to be 3.75% if the percentage of infants who did not return for follow-up is taken into account. A high incidence of middle ear pathology was recorded, with an incidence rate of 60.4%, including bilateral and unilateral middle ear pathology. The high prevalence of auditory impairment in South African NICU infants, and the lack of widespread IHS programs, indicates that many vulnerable infants are being the denied the benefits of early identification of and intervention for hearing loss. The implementation of widespread IHS programs in South Africa is therefore essential, in order to ensure that all South African infants receive the benefits of EHDI programs. / Dissertation (MCommunication Pathology)--University of Pretoria, 2007. / Speech-Language Pathology and Audiology / unrestricted

Bakgrund: Varje år vårdas barn på allmänna intensivvårdsavdelningar i Sverige, där det generellt vårdas mer vuxna än barn. Att vårda ett barn på en allmän intensivvårdsavdelning händer sällan vilket inte ger samma erfarenhet som att vårda en vuxen. Syfte: Syftet med studien var att beskriva intensivvårdssjuksköterskans upplevelse av att vårda barn under 12 år på en allmän intensivvårdsavdelning. Metod: Studien har en induktiv kvalitativ ansats och tio intensivvårdssjuksköterskor har intervjuats. Induktiv latent innehållsanalys har använts för att analysera insamlad data. Resultat: Resultatet gällande intensivvårdssjuksköterskors upplevelser genererade i åtta subkategorier och tre generiska kategorier; Ingen sedvana, Att hantera sin osäkerhet och Hela familjen behöver vård. Dessa ledde fram till temat; Det är en känsla av att bli berörd och att samtidigt försöka skapa omtänksamhet i en ovan situation. Resultatet visar på vikten av att tillsammans kunna stötta varandra för att skapa en trygghet vid vården kring ett svårt sjukt barn. Då det på en allmän intensivvårdsavdelning är en ovanlig situation för intensivvårdssjuksköterskorna att vårda barn så upplevdes det extra viktigt att vara väl förberedd, ha en god kommunikation och ett sammansvetsat team. Slutsats: Att vårda ett barn på allmän intensivvårdsavdelning väcker mycket känslor såsom osäkerhet och frustration vilket påverkade hela teamet. Då det är en händelse som sker allt för sällan så ger det en anspänning och en rädsla för att göra fel. Kontinuerlig utbildning och bra rutiner på arbetsplatsen kan minska osäkerheten och bidra till ett bättre välbefinnande för både personal, föräldrar och barn. Nyckelord: Allmän intensivvårdsavdelning, familj, intensivvård, intensivvårdssjuksköterska, kritiskt sjuka barn, livsvärld, omvårdnad, upplevelse, vårdvetenskap.  Nubb: Tack alla respondenter som tog sig tid och gjorde denna studie möjlig. Tack till vår handledare Susanne Knutsson som hjälpt oss på vägen och tack till våra familjer som har funnits där för oss hela tiden. / Bakgrund: Varje år vårdas barn på allmänna intensivvårdsavdelningar i Sverige, där fler vuxna i allmänhet vårdas än barn. Att ta hand om ett barn på en allmän intensivvårdsavdelning är något som sällan händer, vilket inte ger samma upplevelse som att ta hand om en vuxen. Syfte: Syftet med studien var att beskriva intensivvårdssjuksköterskans erfarenhet av att ta hand om barn under 12 år på en allmän intensivvårdsavdelning. Metod: Studien har ett induktivt kvalitativt förhållningssätt och tio intensivvårdssjuksköterskor har intervjuats. Induktiv latent innehållsanalys har använts för att analysera insamlade data. Resultat: Resultaten av intensivvårdssjuksköterskornas erfarenheter i åtta underkategorier och tre generiska kategorier. Ingen vana, för att hantera sin osäkerhet och hela familjen behöver vård. Dessa ledde till temat; Det är en känsla av att bli rörd och samtidigt försöka skapa eftertänksamhet i en sällsynt situation. Resultaten visar vikten av att kunna stötta varandra tillsammans för att skapa en känsla av trygghet i vården av ett kritiskt sjukt barn. Eftersom det är en ovanlig situation för intensivvårdssköterskorna att ta hand om barn på en allmän intensivvårdsavdelning upplevde de vikten av att vara väl förberedda, ha god kommunikation och samarbete i teamet. Slutsats: Att ta hand om ett barn på en allmän intensivvårdsavdelning väcker många känslor som osäkerhet och frustration som påverkar hela teamet. Eftersom det är en händelse som händer sällan, ger det en spänning och en rädsla för att göra ett misstag. Kontinuerlig utbildning och bra rutiner på arbetsplatsen kan minska otryggheten och bidra till bättre välbefinnande för både personal, föräldrar och barn.

Objectives: The objectives of this research were to describe the interactions (formal and informal) in which macrocognitive functions occur and their location on a pediatric intensive care unit (PICU); describe challenges and facilitators of macrocognition using three constructs of space syntax (openness, connectivity, and visibility); and analyze the health care built environment (HCBE) using those constructs to explicate influences on macrocognition. Background: In high reliability, complex industries, macrocognition is an approach to develop new knowledge among interprofessional team members. Although macrocognitive functions have been analyzed in multiple health care settings, the effect of the HCBE on those functions has not been directly studied. The theoretical framework, “Macrocognition in the Health Care Built Environment” (m-HCBE) addresses this relationship. Methods: A focused ethnographic study was conducted, including observation and focus groups. Architectural drawing files used to create distance matrices and isovist field view analyses were compared to panoramic photographs and ethnographic data. Results: Neighborhoods comprised of corner configurations with maximized visibility enhanced team interactions as well as observation of patients, offering the greatest opportunity for informal situated macrocognitive interactions (SMIs). Conclusions: Results from this study support the intricate link between macrocognitive interactions and space syntax constructs within the HCBE. These findings help to advance the m-HCBE theory for improving physical space by designing new spaces or refining existing spaces, or for adapting IPT practices to maximize formal and informal SMI opportunities; this lays the groundwork for future research to improve safety and quality for patient and family care.

La transition du milieu académique au milieu clinique vécue difficilement par les infirmières nouvellement diplômées intégrées sur les unités de soins intensifs a été maintes fois documentée. La pratique professionnelle autonome est, notamment, une des difficultés partagées par les infirmières nouvellement diplômées intégrées sur ces unités. Cette étude a pour but d’explorer les perceptions d’infirmières nouvellement diplômées et de préceptrices quant au développement de l’autonomie professionnelle des infirmières nouvellement diplômées dans un contexte d’intégration, ayant une structure de programme de résidence infirmier, sur une unité de soins intensifs. Les programmes de résidence infirmiers sont des programmes d’intégration développés pour faciliter les expériences de transition des infirmières nouvellement diplômées. Dans ces programmes, le profil de compétences cliniques qui permet d’évaluer le développement des compétences peut se baser principalement sur l’autonomie des infirmières nouvellement diplômées. Rares sont les études sur le développement de l’autonomie professionnelle des infirmières nouvellement diplômées. Comme cadre conceptuel, un modèle prenant appui à la fois sur le modèle des niveaux de développement de la compétence infirmière de Benner (1982), sur l’approche d’évaluation des compétences de Tardif (2006) et sur la définition de l’autonomie professionnelle telle que suggérée par Létourneau (2017) est proposé. Pour la réalisation de cette étude qualitative exploratoire descriptive, des entretiens individuels semi-structurés ont permis de collecter les données auprès d’infirmières nouvellement diplômées (n=6) alors que des préceptrices (n=4) ont partagé leurs perceptions au cours de groupes de discussion. L’analyse de contenu de Van der Maren (1996) a été utilisée pour l’analyse des données. Les résultats de cette étude réalisée dans un contexte de soins critiques portent sur le début de carrière difficile des infirmières nouvellement diplômées sur les unités de soins intensifs, une définition de l’autonomie professionnelle et les facteurs influençant le développement de l’autonomie professionnelle des infirmières nouvellement diplômées. Les facteurs influençant le développement de l’autonomie professionnelle des infirmières nouvellement diplômées et la définition de l’autonomie professionnelle ont été mis en relation dans une carte conceptuelle schématisant le concept à l’étude. En regard de ces résultats, des retombées sont proposées pour la pratique, la recherche, la formation et la gestion en sciences infirmières. / The barriers in transition-to-practice for newly graduated nurses on intensive care units has been well documented. Independent professional practice is, in particular, one of the barriers shared by newly graduated nurses integrating an intensive care unit. This research aims to explore the perceptions of newly graduated nurses and preceptors regarding the professional autonomy development of the newly graduated nurses in a nursing residency program on intensive care units. Nursing residency programs were developed in order to facilitate transition-to-practice of newly graduated nurses. In these programs, the evaluation that assesses clinical competence development can be primarily based on the newly graduated nurse’s autonomy. However, few studies focus on the development of professional autonomy of newly graduated nurses. As study framework, a model that includes Benner's stages of clinical competence (1982), Tardif's competency assessment approach (2006) and a definition of professional autonomy as suggested by Létourneau (2017) is proposed. By conducting a descriptive exploratory study, semi-structured individual interviews collected the data from newly graduated nurses (n=6), while preceptors (n= 4) shared their perceptions during focus groups. Content analysis by Van der Maren (1996) was used for data analysis. The results include the barriers encountered in the early career of the newly graduated nurses in critical care setting, a definition of professional autonomy and the influences of the newly graduated nurses’ professional autonomy development. The influences of the newly graduated nurses’ professional autonomy development and the definition of professional autonomy have been linked in a concept map. Considering these findings, implications for practice, research, education and management in nursing were made.

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Cette étude se concentre sur l'administration de sucrose pour soulager la douleur chez les nouveau-nés prématurés en unité de soins intensifs néonatals (USIN). En utilisant la Théorie du Comportement Planifié (TCP) d'Ajzen, les chercheurs ont examiné le comportement, l'intention, les attitudes, les normes subjectives et la perception de contrôle des infirmières travaillant dans une USIN d'un centre hospitalier universitaire de niveau III. Les résultats ont révélé que la majorité des infirmières ont déclaré avoir administré du sucrose aux nouveau-nés prématurés au cours des deux dernières semaines de travail en USIN, et qu'elles avaient l'intention de continuer à le faire lors des prises de sang au talon. De plus, les attitudes, les normes subjectives et la perception de contrôle des participantes étaient favorables à l'utilisation du sucrose pour soulager la douleur des prématurés. Ces résultats soulignent l'importance de sensibiliser et de former les infirmières à l'utilisation appropriée des interventions non pharmacologiques, telles que l'administration de sucrose, pour soulager la douleur chez les nouveau-nés prématurés. Ils mettent en évidence le rôle crucial des infirmières dans la gestion de la douleur chez cette population vulnérable et suggèrent des pistes d'amélioration pour une prise en charge optimale. En conclusion, cette étude met en lumière les facteurs influençant le comportement des infirmières concernant l'administration de sucrose pour soulager la douleur des prématurés en USIN. Elle souligne l'importance de considérer les variables de la TCP dans la planification des stratégies visant à améliorer les soins et à réduire la douleur chez les prématurés en USIN. / This study focuses on the administration of sucrose for pain relief in preterm infants in the neonatal intensive care unit (NICU). Using Ajzen's Theory of Planned Behavior (TPB) as a theoretical framework, the researchers examined the behavior, intention, attitudes, subjective norms, and perceived control of nurses working in a level III university hospital NICU. The results revealed that the majority of nurses reported administering sucrose to preterm infants in the past two weeks of their work in the NICU, and they had the intention to continue doing so during heel-stick procedures. Furthermore, nurses' attitudes, subjective norms, and perceived control were favorable towards the use of sucrose for pain relief in preterm infants. These findings highlight the importance of raising awareness and providing training for nurses regarding the appropriate use of non-pharmacological interventions, such as sucrose administration, for pain relief in preterm infants. They underscore the crucial role of nurses in managing pain in this vulnerable population and suggest avenues for improvement in optimizing care. In conclusion, this study sheds light on the factors influencing nurses' behavior regarding the administration of sucrose for pain relief in preterm infants in the NICU. It underscores the importance of considering the variables of the TPB in planning strategies to enhance care and reduce pain in preterm infants in the NICU.