An estimated 300,000 people contract Lyme disease in the USA every year, 10-20% of whom will experience long-term symptoms even after antibiotic treatment. These patients are said to have Chronic Lyme Disease (CLD). However, diagnostic guidelines, treatment protocols, and the etiological existence of CLD have been the subject of much controversy in the biomedical field, leading to negative mental and physical health outcomes for of patients with CLD. Patient support networks focused on illness experience, known as biosocialities, have formed in response to this controversy. CLD biosocialities create opportunities for patients to participate in biomedical activism and the scientific research process. A historical precedent for biosocial impact on biomedical knowledge and improved health outcomes has been established from patient activists with HIV/AIDS, breast cancer, and PTSD. The impact of CLD patients’ biosocial activism on a scientific and sociological level is evaluated through an examination of the publications of CLD support networks and biomedical research publications. CLD biosocial activism has resulted in more patient-centered research endeavours, etiological proof of CLD, improved diagnostic technologies, and new treatment protocols. These biomedical results have implications for improved CLD patient health outcomes and credibility for CLD as a legitimate disease on a biological and sociological level.

Submitted by Jaqueline Silva (jtas29@gmail.com) on 2016-09-19T20:36:23Z No. of bitstreams: 2 Dissertação - Augusto Flamaryon Cecchin Bozz - 2016.pdf: 1918964 bytes, checksum: c0e1c87de2d2231c04a7d484faa38f27 (MD5) license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) / Approved for entry into archive by Jaqueline Silva (jtas29@gmail.com) on 2016-09-19T20:36:37Z (GMT) No. of bitstreams: 2 Dissertação - Augusto Flamaryon Cecchin Bozz - 2016.pdf: 1918964 bytes, checksum: c0e1c87de2d2231c04a7d484faa38f27 (MD5) license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) / Made available in DSpace on 2016-09-19T20:36:37Z (GMT). No. of bitstreams: 2 Dissertação - Augusto Flamaryon Cecchin Bozz - 2016.pdf: 1918964 bytes, checksum: c0e1c87de2d2231c04a7d484faa38f27 (MD5) license_rdf: 0 bytes, checksum: d41d8cd98f00b204e9800998ecf8427e (MD5) Previous issue date: 2016-02-25 / The second half of the twentieth century is highlighted as the period in which patients with cancer began to schematize collective support that, from 1970, triggered interventions in science and policy in favor of new rights to health. Before that, cancer and death were considered two areas of extreme privacy. We are leaving an increasingly "experience of illness" that segregates, excludes, as the "model of leprosy" (DELEUZE, 2005; FOUCAULT, 2013) and entering an experience sharing, associates, connects, controls the flows. Emerge "body-information" (JACOB, 1983) as the new model. On the horizon this sneaky mutation, is worth divert attention to the close relationship between the collective of patients with cancer and communication practices that constitute what Rose (2013) calls the digital biosociality. In this way, the question: what were the conditions of possibility for the correlation between the collective of patients with cancer and the new communication technologies? Our goal is to map the living conditions of the digital biosociality of cancer patients. We have used the archaeo-genealogical method (FOUCAULT, 2014a, b, c, 2010a, b, c, d, 2007) and the notion of biopower and biosociality to describe the ways of being and to be inherent power over life, creation of subject inherent in the experience of illness. We conclude that the cancer patient is a historical fabrication. This does not mean that it is fictional, but that emerges as a position of observation and "administration itself" (FOUCAULT, 2010b) correlative to the objectification of the disease, strategies to control and regulate people's health and therapeutic institutions. Concomitant with the objectification of cancer, occurs the formation of a practice of self that aims at constitute an active subject-patient, militant, activist. This subjectivity, there is look over himself and take himself that produce a certain truth about himself, a particular way of connecting to this truth and also ways and rules to drive the conduct of another patient, guide him, advise him, support him. From the 1990s, patients began to tell their stories and make activism on the Internet. This occurs because the elaboration of a device at the center of rationalization of the conduct of government strategies, putting on the scene the ethics of the association, connection and sharing. It is a reorganization of the strategies of knowledge and power, in the late twentieth century, which integrates the collective of patients with new communication technologies. Thus, it is possible to consider the communication practices, they too, as a historical fabrication operating, without doubt, in the formation of subjectivity. / A segunda metade do século XX é destacada como o período em que os pacientes com câncer começaram a esquematizar coletivos de apoio que, a partir de 1970, acionaram intervenções na ciência e na política em favor de novos direitos à saúde. Antes disso, o câncer e a morte eram tidos como dois domínios de extrema privacidade. Estamos deixando cada vez mais uma “experiência da doença” que segrega, exclui, como o “modelo da lepra” (DELEUZE, 2005; FOUCAULT, 2013) e ingressando em uma experiência que compartilha, associa, conecta, controla os fluxos. Emerge o “corpo-informação” (JACOB, 1983) como o novo modelo. No horizonte dessa sorrateira mutação, vale desviar a atenção para a estreita relação entre os coletivos de pacientes com câncer e as práticas comunicacionais que constituem o que Rose (2013) chama de biossociabilidade digital. Deste modo, cabe perguntar: quais foram as condições de possibilidade para a correlação entre os coletivos de pacientes com câncer e as novas tecnologias de comunicação? O nosso objetivo é cartografar as condições de existência da biossociabilidade digital dos pacientes com câncer. Valemo-nos do método arqueo-genealógico (FOUCAULT, 2014a,b,c, 2010a,b,c,d, 2007) e da noção de biopoder e biossociabilidade para descrever os modos de ser e estar inerentes ao poder sobre a vida, a criação do sujeito inerente a experiência da doença. Concluímos que o paciente com câncer é uma fabricação histórica. Isso não significa que ele seja fictício, mas que surge como uma posição de observação e “administração de si” (FOUCAULT, 2010b) correlata à objetivação da doença, nas estratégias de controlar e regular a saúde da população e nas instituições terapêuticas. Concomitante à objetivação do câncer, ocorre a formação de uma prática de si que visa constituir um sujeito-paciente ativo, militante, ativista. Nessa subjetivação, destaca-se o olhar sobre si e o exame de si que produz uma certa verdade sobre si mesmo, um modo particular de se ligar a essa verdade e também maneiras e regras de conduzir a conduta de outro paciente, orientá-lo, aconselhá-lo, apoiá-lo. A partir da década de 1990, os pacientes passaram a narrar suas histórias e realizar ativismos na internet. Isso porque ocorreu a elaboração de um dispositivo no cerne da racionalização das estratégias de governo da conduta, pondo em cena a ética da associação, da conexão e do compartilhamento. Trata-se de uma reorganização das estratégias de saber e poder, no final do século XX, que integra os coletivos de pacientes com as novas tecnologias de comunicação. Assim, é possível considerar as práticas comunicacionais, também elas, como uma fabricação histórica que operam, sem dúvida alguma, na conformação da subjetividade.

Submitted by Adriana Alves Rodrigues (aalves@espm.br) on 2018-10-05T19:08:03Z No. of bitstreams: 1 ppgcom - renato pezzotti.pdf: 6860607 bytes, checksum: 5e44ad543a1e9f5c2f20f20e56c44653 (MD5) / Approved for entry into archive by Adriana Alves Rodrigues (aalves@espm.br) on 2018-10-05T19:08:31Z (GMT) No. of bitstreams: 1 ppgcom - renato pezzotti.pdf: 6860607 bytes, checksum: 5e44ad543a1e9f5c2f20f20e56c44653 (MD5) / Approved for entry into archive by Debora Cristina Bonfim Aquarone (deborabonfim@espm.br) on 2018-10-08T11:53:47Z (GMT) No. of bitstreams: 1 ppgcom - renato pezzotti.pdf: 6860607 bytes, checksum: 5e44ad543a1e9f5c2f20f20e56c44653 (MD5) / Made available in DSpace on 2018-10-08T11:55:03Z (GMT). No. of bitstreams: 1 ppgcom - renato pezzotti.pdf: 6860607 bytes, checksum: 5e44ad543a1e9f5c2f20f20e56c44653 (MD5) Previous issue date: 2018-03-27 / The main theme of this study is the self-management convocation strategies sighted in Bravus Race’s media images - a national sporting event. Thus, the research problem defined is: how the media biossociability convocation strategies are produced in Bravus Race’s obstacle photos, regarding the meanings attributed to the body and the self? We deepen the phenomenon of consumption and management of the self in contemporary society, approaching notions as interdisciplinary, interconnectedness and imaginary discursive memory of the French discourse analysis. The discourse analysis theoretical inspiration is Courtine (2011) and Milanez’s (2013) methodology, crossing elements of the rhetoric image, with Barthes (1990) and Eco (2001). The general theoretical framework is organized in three axes: the first tracks the path of communication, media, and contemporary society’s interfaces, for which we rely on authors such as Silverstone (2002), Prado (2013) and Hoff. (2016). The second finds its foundations in the rhetoric and interconnectivity of the image, passing through the narrative space of the photographic reportages. Finally, the third addresses the body, the high performance worship and the biossociability, with Rose (2006), Rabinow (2002), Ehrenberg (2010), Ortega (2003) and Hoff (2016). Therefore, the corpus is composed by a photo-portal published on Veja's website, which houses 38 photos of one of the stages of Bravus Race, held in São Paulo. Alongside our methodological course, we divided the images into six distinct groups, starting from the identification and classification of imagery composition techniques, revealing composition elements and what each one of them intends to transmit in a connotative way. Following on, we analyzed the interconnectivity in the competition’s photos, relating Barthes' techniques to the concept developed by Courtine (2011). At last, we refer to codification levels; identifying the figures of speech present in the images and how the discursive memory founds the production of sense. In conclusion, we investigated the self/body-management convocation according to biossociability concept. The results demonstrate that these media biossociability convocations are in line with the contemporary capitalism “spirit”. In addition, the production of meaning privileges a self-management, through the “conduct of the body/self” - both in physical and mental dimension. / Esta dissertação tem como tema as estratégias de convocação para gestão de si em imagens midiáticas de um evento esportivo nacional. Deste modo, definimos o problema de pesquisa: como são produzidas as estratégias midiáticas de convocação de biossociabilidade nas fotos da corrida de obstáculos Bravus Race, considerando os sentidos atribuídos ao corpo? Problematizamos o fenômeno do consumo e a gestão de si na sociedade atual, aproximando as noções de interdiscurso, intericonicidade e memória discursiva imagética da análise de discurso francesa. A inspiração teórica geral deste trabalho é a análise de discurso, a partir de Courtine (2011) e Milanez (2013), utilizando elementos da retórica imagem, com Barthes (1990) e Eco (2001). O referencial teórico organiza-se em três eixos: o primeiro trilha o caminho das interfaces de comunicação, mídia e consumo na sociedade atual, para o qual nos apoiamos em autores como Silverstone (2002), Prado (2013) e Hoff (2016). O segundo, por sua vez, encontra seus alicerces na retórica da imagem e na intericonicidade, a partir de Barthes, Eco e Courtine, respectivamente, passando pelo espaço narrativo da fotorreportagem. Por fim, o terceiro aborda o corpo, o culto da performance e a biossociabilidade, com Rose (2006), Rabinow (2002), Ehrenberg (2010), Ortega (2003) e Hoff (2016). O corpus é composto por uma fotorreportagem publicada no portal de internet da Revista Veja, que abriga 38 fotos de uma das etapas da Bravus Race, prova esportiva disputada em São Paulo. Em nosso percurso metodológico, dividimos as imagens em seis grupos distintos, a partir da identificação e classificação de técnicas de composição imagética, demonstrando quais os elementos de composição presentes e o que cada um deles pretende transmitir de forma conotativa. Após esta etapa, analisamos a intericonicidade das fotografias, relacionando as técnicas de Barthes com o conceito desenvolvido por Courtine e, por fim, remetemos aos níveis de codificação, identificando quais figuras de linguagem estão presentes nas imagens e como a memória discursiva alicerça a produção de sentido. Por fim, investigamos as convocações para gestão do corpo à luz do conceito de biossociabilidade. Os resultados alcançados demonstram que as convocações midiáticas de biossociabilidade estão em consonância com os sentidos do capitalismo contemporâneo e que a produção de sentido privilegia a gestão de si, por meio da gestão do corpo – seja na dimensão física, seja na dimensão mental.

I hope this can be used for a greater good than pure study. / This study used a novel combination of interview methodologies, made possible through the nature of instant messaging, and ethnographic methods in order to determine the value of the autistic community on Tumblr.com to its members. Ethnographic study yielded insights about the dialectic quality of any community on Tumblr, autistic community included, as well as the sense of autonomy users have on the site that is different if not greater than what they may practice in the physical world. Interview data suggest a neutral to positive view of the community and its culture overall, though further research with a greater sample of participants is required in order to confirm these findings. Information can be shared quickly between members, and this information provides greater insight into a given user’s autism, be it diagnosed or otherwise, or insight into navigating the neurotypical world. Autism positivity and neurodiversity advocacy is common among participants and the blogs they subscribe to, popularising the idea thereof in the mainstream while validating the identity of autistic people online and offline. This ethos makes its way into more casual site discussions, with memes and other entertainment being shaped by these experiences. The autistic community on Tumblr is an excellent example of a modern biosocial community online, and serves as Hacking’s engine of normalisation both on the site outside of the autistic community and in the physical world through real life events and adoption of site terminology and discourse. / Thesis / Master of Arts (MA) / Using a purpose-built blog to learn about site culture and a series of online interviews to discover participant experiences, this study explores the culture of the autistic community on Tumblr and its impact on its members. The autistic community on Tumblr is a place that its members have more freedom to act and express themselves (through art, videos, shared stories etc.) than in the physical world. Through being a way to vent difficult experiences, get information, and enjoy site content made by and for them (in addition to broader appeal media), site users report a neutral to positive effect on their overall quality of life because of the site. Further research is required to confirm any of the patterns in the work.

Direct-to-consumer genomics (DTCG) health testing offers great promise to humanity, however to date adoption has lagged as a result of consumer awareness, understanding, and previous government regulations restricting DTCG companies from providing information on an individual's genetic predispositions. But in 2017 the broader DTCG market which also includes genealogical testing demonstrated exponential growth, implying that DTCG is starting to diffuse as an innovation. To better understand the sociocultural forces affecting diffusion, adoption, and satisfaction, qualitative ethnographic research was conducted with DTCG genealogy and health consumers. The data was qualitatively analyzed using thematic analysis to understand the similarities and differences in beliefs, attitudes, intentions, and mediating factors that have influenced consumers. Design anthropology theory and methods were used to produce ethnographically informed insights. The insights were then translated into actionable product management and business strategy recommendations.