Bakgrund: En kronisk oförutsägbar sjukdom som Crohns sjukdom framkallar fysisk, psykologisk och social stress. Sjukdomen påverkar vardagen, försämrar livskvalitet och skapar oro. För att bedriva personcentrerad vård krävs insikt i hur denna oro upplevs. Syfte: Syftet med studien var att belysa sjukdomsrelaterad oro hos personer med Crohns sjukdom. Metod: Åtta kvinnor och fyra män mellan 30 och 64 år som skattat sin sjukdomsrelaterade oro som hög eller mycket hög identifierades. Intervjuer genomfördes och analyserades med kvalitativ innehållsanalys. Resultat: Analysen genererade tre kategorier: (1) Oro för sjukdomen i sig, (2) känslor runt oron, (3) samt hantering av oron. Sjukdomens oförutsägbarhet samt nedsatt funktion till följd av trötthet och bristande kontroll över tarmfunktionen var de mest framträdande orsakerna till oro. Oron skapade känslor av stress, skuld och besvikelse. Deltagarna uttryckte önskemål att få prata om och synliggöra oron men hade också funnit egna sätt att hantera denna. Slutsats: Det finns ett kvarstående behov av att ventilera och få förståelse för sjukdomsrelaterad oro, även efter många års sjukdom. Personer med Crohns sjukdom måste få prata om sin oro, vara en aktiv partner i vården och tillsammans med vårdgivaren finna sätt att hantera oron så att denna kan lindras. / Background: A chronic, unpredictable disease as Crohn's disease provides physical, psychological and social stress. The disease affects everyday life, impairs quality of life and create worries. To conduct person-centered care requires insight into how this worry is experienced. Objective: To explore disease-related worries in persons with Crohn´s disease. Method: Eight women and four men between 30 and 64 who estimated their disease-related worries high or very high were identified. Interviews were conducted and analyzed with content analysis. Results: The analysis generated three categories: (1) Worries about the disease itself, (2) feelings around the worries, (3) management of the worries. The unpredictable course of the disease and the impaired function due to fatigue and lack of control of bowel function were the most prominent causes of worries. The worries created feelings of stress, guilt and disappointment. The participants expressed the wish to talk about and make the worries visible but had also found their own ways to handle it. Conclusion: There is a persistent need to vent and get an understanding of disease-related worries, even after many years of disease. Persons with Crohn's disease need to talk about their worries, be an active partner in healthcare and together with the health-care providers find ways to handle the worries so it can be relieved.

Background: Inflammatory bowel disease (IBD) includes Crohn´s disease (CD) and ulcerative colitis (UK). The diseases are chronic and have a pattern of relapses interspersed with relatively symptom-free periods. Common symptoms during relapse are diarrhea, abdominal pain and weight loss. Since you have IBD for life it is important to find ways to relate to and cope with the disease. In that process a nurse can be of great help. Aim: The purpose of this literature review was to increase the understanding of how adult patients with inflammatory bowel disease experience their daily lives.   Method: The method used was a literature review. A literature search was performed in two separate databases which resulted in eleven examined and analyzed articles on the subject.  Results: After the analyze of the articles three different themes emerged: Limitations in daily life, Self-image and self-esteem and finally Self-care and strategies. Several individuals felt limited one way or the other in their daily life. They also described how their self-esteem was affected. Some positive changes due to the disease were also described. For example some changed their exercise and food habits for the better. Discussion: The results are discussed through the perspective of Antonovsky’s (1991/2005) salutogenic view and were connected to how the SOC (Sense of Coherence) was affected. The importance of relatives’ support and self-care was also discussed.

Bakgrund: Inflammatorisk tarmsjukdom (IBD) inkluderar ulcerös kolit och Crohns sjukdom. De är kroniska och uppkommer i skov då tarmslemhinnan blir inflammerad och sårig vilket ger en komplex symtombild med akuta diarréer, rektalblödning och buksmärtor. Behandlingen går ut på att minska symtom och förebygga uppkomst av skov. Då dessa sjukdomar påverkar det dagliga livet så påverkas också den individuella hälsorelaterade livskvaliteten, vilket mäter den fysiska, psykiska och sociala aspekten av ett hälsoproblem. Syfte: Syftet var att beskriva upplevelsen av hälsorelaterad livskvalitet hos personer med inflammatorisk tarmsjukdom. Metod: En litteraturöversikt har gjorts där tolv vetenskapliga artiklar har utgjort grunden till resultatet och skapat en översikt på befintlig forskning. De har lästs, sammanfattats och analyserats där likheter och skillnader har hittats och teman bildats. Resultat: Resultatets fyra huvudteman är Fysisk funktion, Psykisk funktion, Social funktion och Att återställa sin livskvalitet. Det framkom i resultatet att de fysiska symtomen och sjukdomsaktiviteten är det som i huvudsak styr såväl det psykiska välmåendet som de sociala restriktionerna. Detta visade sig även ha en negativ inverkan på den hälsorelaterade livskvaliteten. Men med tiden blev dock sjukdomen en normal del av livet och en bättre livskvalitet upplevdes. Diskussion: Metodens tillvägagångssätt samt fördelar och nackdelar diskuteras och analyseras. Vid diskussion av resultatet tas främst kunskap, utbildning och tidsperspektivet upp samt återkopplas till Orems egenvårdsteori. / Background: Inflammatory bowel disease (IBD) encompasses ulcerative colitis and Crohn's disease. They are chronic and occur in relapses when the mucosal becomes inflamed and ulcerated, causing complex symptoms such as acute diarrhoea, rectal bleeding and abdominal pain. The treatment aims to reduce symptoms and prevent the occurrence of relapses. As these diseases affect the daily life it also affects the individual health-related quality of life, which measures the physical, psychological and social aspects of a health problem. Aim: The purpose was to describe the experience of health-related quality of life in people with inflammatory bowel disease. Method: A literature review has been done where twelve original articles have formed the basis of the results, this creates an overview of existing research. They have been read, summarized and analysed where the similarities and differences were found and themes were formed. Results: The four main themes of the result is Physical function, Psychological function, Social function and Rebuilding their quality of life. It emerged in the results that physical symptoms and disease activity are those which essentially controls the psychological well-being as well as social constraints. This was shown in studies to have a negative impact on the health-related quality of life. But overtime the disease became a normal part of one's life and gave a better quality of life experience. Discussions: The method approach, benefits and weaknesses will be discussed and analysed. When discussing the results of the current study mainly knowledge, education, and time perspective will be addressed and analysed with Orem’s self-care theory.

Sammanfattning:  Bakgrund: Inflammatory Bowel Disease, IBD är ett samlingsnamn för kroniska inflammatoriska tarmsjukdomar som består av Crohns sjukdom (CD) och ulcerös kolit (UC). Sjukdomen går i skov och har symtom som frekventa diarréer, feber, rektal blödning, buksmärtor och viktnedgång.  Syfte:Syftet med studien var att beskriva personers upplevelser av att leva med IBD samt att presentera vilken undersökningsgrupp som beskrivits i de inkluderade artiklarna. Metod: Studien var en litteraturstudie med deskriptiv design baserad på 10 artiklar med kvalitativ ansats. Artiklarna söktes i databaser CINAHL och PubMed.  Huvudresultat:Personer med IBD upplever att både de själva och omgivningen saknar kunskaper om sjukdomen. De känner oro och osäkerhet över läkemedelseffekter, sjukdomens utveckling och återfall. Personer som hade levt med IBD under många år har utvecklat strategier för att klara av olika situationer. Deltagarna i de inkluderade studier är vuxna män och kvinnor i olika åldrar som kommer från olika länder.  Slutsats:Personer med IBD beskriver flertal upplevelser av att leva med sjukdomen. Det framkommer att en stor del av personernas problem uppstår på grund av brister på kunskap om sjukdomen. Det leder till att de drabbade personerna har svårt att hantera sina dagliga sysselsättningar och har oro inför framtiden. Patienterna behöver få bra information och individanpassat stöd för att höja KASAM, utveckla egna strategier och hantera sjukdomen på ett bättre sätt. / Abstract Background:Inflammatory Bowel Disease, IBD is a collective name for chronic inflammatory bowel disease consisting of Crohn's disease (CD) and ulcerative colitis (UC). The disease is in episode and has symptoms such as frequent diarrhea, fever, rectal bleeding, abdominal pain and weight loss. Aim: The purpose of the study was to describe people's experiences of living with IBD and to present which research group described in the included articles. Method: The study was a literature study with descriptive design based on 10 articles with qualitative approach. Articles were searched from databases CINAHL and PubMed.  Main Results: People with IBD experience that both themselves and the environment lack knowledge about the disease. They feel anxiety and insecurity about drug effects, disease development and relapse. People who had been living with IBD for many years have developed strategies to cope with different situations. Participants in the included studies are adult men and women of different ages from different countries. Conclusions: People with IBD describe several experiences of living with the disease. It appears that a large part of the people's problems arise due to lack of knowledge about the disease. This means that the affected people are having difficulty managing their daily life and are worried about the future. Patients need to get good information and personalized support to raise KASAM, to develop their own strategies and manage the disease in a better way.

Neste trabalho realizou-se a avaliação de pacientes com doenças inflamatórias intestinais (DII) - doença de Crohn (DC) e retocolite ulcerativa idiopática (RCUI) quanto às variáveis psicológicas estresse e modos de enfrentamento utilizado frente à situação de doença. Investigaram-se, ainda, as relações entre estas variáveis e diferentes aspectos clínicos das DII. Os grupos de pacientes com DC e RCUI foram compostos por 25 integrantes cada, que foram comparados com igual número de controles doentes (CD) e saudáveis (CS), sendo estes últimos selecionados dentre os acompanhantes dos pacientes. Empregaram-se instrumentos padronizados e validados de avaliação psicológica: escala de eventos vitais e inventário de enfrentamento. Os resultados mostraram que proporções elevadas e semelhantes (64 80%) dos integrantes dos quatro grupos apresentaram-se sob estresse intenso, ocorrendo, porém, diferenças entre os grupos quanto aos tipos de eventos vitais estressantes experimentados. O estresse intenso se mostrou maior e associado significativamente à idade mais avançada na DC e à doença em atividade na RCUI. Quanto aos modos de enfrentamento, na DC e na RCUI, verificaram-se proporções semelhantes e significativamente superiores à do grupo CD de casos utilizando a estratégia de confronto (40% vs. 12%; p=0,01). Na DC, a proporção de pacientes utilizando a estratégia de resolução de problemas foi significativamente maior que na RCUI (96% vs. 80%; p=0,05). Na RCUI, a proporção de pacientes utilizando a estratégia de fuga/esquiva (96%) foi significativamente maior (p=0,05) que nos grupos CD (80%) e CS (76%). A utilização das várias estratégias de enfrentamento parece ser afetada, na DC, por sexo, escolaridade e estado de atividade da doença. Na RCUI, houve efeito das variáveis: escolaridade, estado de atividade e duração da doença e estresse intenso. Estes dados indicam a ocorrência de estresse intenso nos pacientes, independente do tipo de doença e, também nos acompanhantes. A DC e a RCUI se diferenciam quanto às estratégias de enfrentamento mais utilizadas e pelos fatores que as afetam, o que deve ser levado em consideração no estabelecimento de medidas de intervenção psicológica necessárias ao cuidado integral ao paciente. / This work aimed at assessing emotional stress and coping strategies in patients with inflammatory bowel diseases (IBD): Cohns disease (CD) and ulcerative colitis (UC), as well as studying the relationships between this psychological variables and demographical and clinical characteristics. Groups of patients with CD and UC (N=25) were compared with equal number of subjects from two control groups: healthy caregivers (HC) and patients with other digestive diseases (DC). Validated and standardized psychological tools, such as a stressful live events scale and a ways of coping questionnaire were utilized. Results showed that substantial proportions (64 80%) of subjects pertaining to each of the four groups were under severe stress, with a number of inter-group differences regarding the most quoted stressful event. Severe stress was associated with older age in CD patients, and with disease activity in UC patients. Regarding coping strategies, IBD patients showed an increased proportion of utilization of confrontation (40% vs. 12%; p=0.01), when compared to the DC group. In the CD group, there was a higher proportion of patients utilizing the problem solving strategy, than in the UC group (96% vs. 80%; p=0.05). In the UC group, the proportion of patients utilizing the avoidance strategy (96%) was significantly greater (p=0.05) than in both DC (80%) and HC (76%) groups. In IBD patients, coping styles seemed to be affected by sex (only in the CD group), educational level and disease activity, as well as by disease duration and severe stress (only in the UC group). Our data therefore show that severe emotional stress occurs not only in IBD and other digestive disease patients but also in their caregivers. CD and UC patients show different coping styles, which seems also to be affected by distinct demographical and clinical variables. These findings should be taken into account when designing psychological interventions, which are needed for a more comprehensive health care.

Introdução: O envolvimento gastroduodenal pode ocorrer na doença de Crohn (DC). Seu diagnóstico histológico definitivo é habitualmente realizado através da demonstração do granuloma não caseoso. O achado de gastrite focal H. pylori negativa em biopsias gástricas de pacientes com DC ileal e/ou colônica, apesar de não ser específico, também sugere o envolvimento da doença neste segmento. Objetivos: avaliar a frequência da gastrite focal em pacientes com DC comparada à de pacientes com retocolite ulcerativa (RCU) e controles, assim como as frequências da infecção pelo H. pylori nessas populações e correlacioná-las com a presença de gastrite focal; avaliar a capacidade da imunohistoquímica em diferenciar a gastrite focal nos três grupos; avaliar as associações entre dados demográficos, aspectos clínicos, laboratoriais, uso de medicamentos, presença de sintomas do trato gastrintestinal (TGI) superior e achados endoscópicos com presença de gastrite focal em pacientes com doença inflamatória intestinal (DII); e avaliar a associação entre uso de medicamentos nesses pacientes e infecção pelo H. pylori. Métodos: Foram estudados 62 pacientes com DC, 35 pacientes com RCU e 40 pacientes controles. Todos foram submetidos à endoscopia digestiva alta (EDA) com biopsias para o teste da urease, exame histológico e imunohistoquímico. Resultados: Dos 137 pacientes estudados foram excluídos dois pacientes com DC e um com RCU. Não houve diferença estatisticamente significante entre os grupos com relação à idade (p=0,921) e sexo (p=0,192). A maioria dos pacientes com DC estava em remissão clínica (75%). Cerca de 80% dos pacientes com DC faziam uso de azatioprina. H. pylori foi positivo em 18/60 (30%) pacientes com DC, 12/34 (35%) na RCU e 20/40 (50%) no grupo controle sem diferença estatisticamente significante entre os grupos (p=0,131). Não foram observadas associações estatisticamente significantes entre uso de medicamentos e infecção pelo H. pylori nos pacientes com DII. A gastrite focal H. pylori negativa foi diagnosticada em 7/42 (16,7%) na DC, 3/22 (13,6%) na RCU e 2/20 (10%) no grupo controle, sem diferença estatisticamente significante entre eles (p=0,919). A gastrite focal H. pylori positiva foi diagnosticada em 2/18 (11%) na DC, 3/12 (25%) na RCU e 7/20 (35%) no grupo controle, sem diferença estatisticamente significante (p=0,213). Não foram observadas associações estatisticamente significantes entre características clínicas, laboratoriais, uso de medicamentos, sintomas do TGI superior, achados endoscópicos e gastrite focal. No entanto, foi observado que o uso de azatioprina nos pacientes com DC H. pylori negativos apresentou uma tendência a reduzir a gastrite focal. A imunohistoquímica da gastrite focal dos pacientes com DC e RCU H. pylori negativos foi semelhante e diferiu do grupo controle por este apresentar um maior acúmulo de linfócitos B (CD20). Já a imunohistoquímica da gastrite focal dos pacientes com DC, RCU e controles H. pylori positivos foi indistinguível. Conclusões: Pacientes com DII tendem a ser menos infectados pela bactéria H. pylori. A frequência de gastrite focal H. pylori negativa diagnosticada em nosso estudo foi menor do que a descrita na literatura. O uso de imunossupressor (azatioprina) pode estar relacionado com tal achado / Introduction: Gastroduodenal involvement may occur in Crohns disease (CD). Definitive histological diagnosis of CD in the upper gastrointestinal (GI) tract normally relies on the demonstration of epitheloid granuloma which is considered the histological hallmark of gastric CD. If granulomas are absent, the description of focally enhanced gastritis (FEG) or focal active gastritis in gastric biopsies of patients with known ileal and/or colonic CD, although not exclusive to CD, suggests the involvement of the disease at this site. Objectives: To access the prevalence of FEG in CD patients compared with a group of ulcerative colitis (UC) and CD/UC-free controls, as well as the frequencies of H. pylori infection in those population and correlate them to the presence of FEG; evaluate the capacity of immunohistochemistry in differentiating FEG in the three groups; evaluate the correlation with demographic and clinical characteristics, laboratory findings, current medical therapy as well as the presence of forgut symptoms and mucosal lesions at endoscopy with the presence or absence of FEG in patients with inflammatory bowel disease (IBD) and evaluate the association between medical therapy and H. pylori infection in IBD patients. Methods: We studied 62 patients with CD, 35 patients with UC and 40 patients from control group. All underwent upper GI endoscopy. Biopsy specimens taken from angulus, antrum and gastric body were evaluated by urease test, histology and immunohistochemistry. Results: Of the 137 patients studied we excluded 2 patients with CD and 1 with UC. There was no statistically significant difference among the groups in terms of age (p=0.921) and gender (p=0.192). The majority of CD patients were in clinical remission (75%). Around 80% of CD patients were taking azathioprine. H. pylori was positive in 18/60 (30%) CD patients, in 12/34 (35%) UC and in 20/40 (50%) controls with no statistically significance difference among the groups (p=0.131). No association was found between use of medications and H. pylori infection in IBD patients. In H. pylori negative patients, FEG was diagnosed in 16.7% cases (7/42) of CD, compared with 13.6% (3/22) of UC patients and 10% (2/20) of controls, with no statistically significance difference among them (p=0.919). In H.pylori positive patients, FEG was diagnosed in 11% cases (2/18) of DC, 25% (3/12) in UC and 35% (7/20) of controls with no significant difference among them (p=0.213). There was no statistical interrelationship between FEG and demographic and clinical characteristics, laboratory findings, use of medications, upper GI symptoms and endoscopic findings. However, it was observed that use of azathioprine in H. pylori negative CD patients presented a tendency to reduce FEG. In H. pylori negative patients, immunohistochemistry of FEG of CD and UC was similar and differed from controls as it presented a higher accumulation of B lymphocytes (CD20). On the other hand in H. pylori positive IBD patients, immunohistochemistry of FEG was indistinguishable from controls. Conclusions: IBD patients tend to be less infected by H. pylori. The frequency of H. pylori negative FEG diagnosed in our study was lower than described in literature. The use of immunossupressants (azathioprine) may be related to such findings

Bakgrund: Crohns sjukdom och ulcerös kolit är kroniska, inflammatoriska tarmsjukdomar som under de senaste decennierna har ökat påtagligt. De kan drabba människor i alla åldrar och ha en negativ påverkan på patienternas livskvalitet. Sjuksköterskan har en viktig roll i att se till att patienterna får tillräckligt med information och stöd för att klara av att sköta sin egenvård. Syfte: Syftet var att belysa hur patienter med Crohns sjukdom och ulcerös kolit upplevde symtomens påverkan i det dagliga livet och hur de anpassat sin tillvaro efter sjukdomen. Metod: En litteraturöversikt grundad på elva vårdvetenskapliga studier med kvalitativ design genomfördes. Studierna analyserades utifrån det valda syftet och nyckelfynd sammanställdes under två huvudteman. Resultat: Litteraturöversikten belyste hur deltagarna upplevde sjukdomarnas symtom och vilken påverkan de hade på det vardagliga livet. Här beskrevs påverkan på familjeliv, relationer, sociala sammanhang och arbetsliv. Sammanfattande utgjorde sjukdomarna ett hinder. Vidare beskrevs sjukdomarnas emotionella påverkan och hur deltagarna upplevde att de led av en osynlig sjukdom. Avslutningsvis visas vilka attityder deltagarna hade mot livet, vilka strategier som använts för att hantera sjukdomen och att acceptans av sjukdomen var viktig för att lära sig att leva med den. Diskussion: Resultatfynden har diskuterats utifrån Callista Roys adaptionsmodell och kopplats till andra vetenskapliga studier. Livet med en kronisk sjukdom innebär ständiga förändringar och sjuksköterskan kan genom att identifiera faktorer som påverkar adaptionen hjälpa patienten att uppnå balans. / Background: Crohn's disease and ulcerative colitis are chronic inflammatory bowel diseases that have increased significantly in recent decades. The diseases can debut at all ages, and they have a negative effect on the patients´ quality of life. A nurse has an important part of ensuring that patients receive sufficient information and support to manage their self-care. Aim: The purpose was to illuminate how patients with Crohn's disease and ulcerative colitis experienced the effects of the symptoms in their daily lives and how they adapted to the disease. Method: A literature review based on eleven nursing studies with qualitative design was conducted. The studies were analyzed based on the chosen purpose and key findings were compiled under two main themes. Results: The literature review illustrated how the participants experienced the symptoms of the disease and what impact they had on everyday life. The impact on family life, relationships, social contexts and working life were described. In summary, the disease was an obstacle. The emotional impact of the disease and how the participants perceived that they suffered from an invisible disease were described. Finally, what attitudes the participants had towards life, what strategies were used to manage the disease, and that acceptance of the disease was important for learning to handle it. Discussion: The findings have been discussed based on Callista Roys adaptation model and linked to other scientific studies. Life with a chronic disease involves constant changes, and the nurse can help the patient to achieve balance by identifying factors that affect the adaptation.

Bakgrund: Inflammatorisk tarmsjukdom (IBD) är samlingsnamn för kroniska mag-och tarmsjukdomar och innefattar Crohns sjukdom (CD) samt Ulcerös kolit (UK). Båda sjukdomar löper i skov med återkommande, långvariga diarréer med förbättrings-och försämringsperioder och kan relateras till fysiska, psykiska samt sociala faktorer. Då uppenbara orsaker eller symtom ej finns är det på många sätt en dold sjukdom och kan skapa otillräcklig förståelse för patientens specifika behov. För att patienten ska få rätt stöd i hanteringen av sjukdomen samt få en god omvårdnad, bör sjuksköterskan att ha gott bemötande, tillräcklig kunskap där vården ges på ett personcentrerat, evidensbaserat sätt. Syfte: Syftet var att beskriva patienters upplevelse av att leva med inflammatorisk tarmsjukdom, IBD. Metod: En litteraturöversikt valdes som metod och baserades på tio kvalitativa artiklar. Databassökningar gjordes från CINAHL Complete och Medline with full text. Artiklarna analyserades enligt Fribergs fem steg. Resultat: I resultatet framkom sex teman utifrån patienternas upplevelse; påverkan av IBD på självbilden, påverkan av IBD i relationer och sociala sammanhang, patienters upplevelse av hälso- och sjukvården, känslomässig påverkan, utveckling och acceptans samt påverkan av IBD i arbetslivet. Diskussion: Resultatdiskussionen diskuterades av författarna utifrån Katie Erikssons caritativa teori om att lindra lidande och utifrån centrala fynd utifrån temaområden i resultatet. / Background: Inflammatory bowel disease (IBD) is the collective name for chronic gastrointestinal disorders and includes Crohn's disease (CD) and Ulcerative colitis (UK). Both diseases relapses with recurring, long-term diarrhea with improvement and deterioration periods and can be related to physical, mental and social factors. In the absence of obvious causes or symptoms, it is in many ways a hidden disease and can create scarce understanding of the patient's specific needs. In order for the patient to receive the right support in the management of the disease and to receive good nursing care, the nurse have to give good care, have sufficient knowledge and care for the patient in a person-centered, evidence-based way. Aim: The purpose was to describe the patient’s experiences of living with inflammatory bowel disease, IBD. Method: A literature review was chosen as the method and was based on ten qualitative articles. Database searches were performed from CINAHL Complete and Medline with full text. The articles were analyzed according to Friberg's five steps. Results: In the result, six themes emerged from the patients' experience; the influence of IBD on the self-image, the influence of IBD in relationships and social contexts, patients' experience of health care, emotional impact, development and acceptance, and the influence of IBD in working life. Discussion: The results discussion was discussed by the authors on the basis of Katie Eriksson's charitable theory of alleviating suffering and on the basis of central findings based on thematic areas in the result.

No description available.

Bakgrund: Inflammatorisk tarmsjukdom innefattar både ulcerös kolit och Crohns sjukdom, vilka är kroniska inflammatoriska tarmsjukdomar. De båda sjukdomarna löper i skov med plötsliga försämringsperioder och långa perioder utan besvär. Det är viktigt att sjuksköterskan vidtar specifika omvårdnadsåtgärder samt förhåller sig personcentrerat där värden som värdighet bevaras för att stödja personen. Syfte: Att beskriva personers erfarenheter av att leva med inflammatorisk tarmsjukdom. Metod: Till metod valdes en litteraturöversikt och de databaser som användes var PubMed samt Cinahl Complete. Inklusionskriterier var vetenskapliga originalartiklar, genomgått peer-review, engelskt språk samt publicerade från år 2014 till 2024. Genom ett systematiskt urval arbetades tio artiklar fram, varav nio med kvalitativ design och en med mixad metod. Resultat: I litteraturöversiktens resultat framkom det att personer med inflammatorisk tarmsjukdom hade erfarenheten av att sjukdomen påverkade deras dagliga liv, både i det sociala livet och yrkeskarriären. Personer med inflammatorisk tarmsjukdom hade även erfarenheter att sjukdomen påverkade det emotionella välbefinnandet. Det lyftes även fram hur personer hanterade sjukdomen, vilka strategier som användes och stödets betydelse beskrevs. Slutsats: Litteraturöversikten visade att personer med inflammatorisk tarmsjukdom möter utmaningar inom många områden i livet. På grund av de anpassningar som individen måste genomgå är det viktigt att sjuksköterskan bidrar med stöd för att möjliggöra effektiv sjukdomshantering. Roys adaptionsteori kan ge sjuksköterskan en bättre förståelse för personernas anpassningsförmåga och kompensera med stöd för att hälsa och livskvalité ska upprätthållas. / Background: Inflammatory bowel disease encompasses both ulcerative colitis and Crohn's Disease, which are chronic inflammatory bowel diseases. Both diseases are characterized by periods of flare-ups with sudden exacerbations and long periods of remission. It is important for nurses to implement specific nursing interventions and to maintain a person-centered approach where values like dignity are preserved to support the person. Aim: To describe people's experiences of living with inflammatory bowel disease. Method: The chosen method was a literature review, with PubMed and CINAHL Complete as the selected databases. Inclusion criteria were scientific original articles that had undergone peer review, were in English, and were published from 2014 onwards. Through a systematic selection process, ten articles were identified, of which nine had a qualitative design and one used mixed methods. Results: In the results of the literature review, it was found that individuals with inflammatory bowel disease experienced the impact of the disease on their daily lives, including their social life and professional careers. They also reported that the disease affected their emotional well-being. Additionally, the review highlighted how individuals managed the disease, the strategies they used, and the significance of support. Conclusion: The literature review showed that individuals with inflammatory bowel disease face challenges in many areas of life. Due to the adaptations that the individual must undergo, it is important for nurses to provide support to enable effective disease management. Roy`s adaption theory can provide the nurse with a better understanding of individual`s adaptability and compensate with support to maintain health and quality of life.