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  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
121

Stress, coping et traits de personnalité (névrosisme et lieu de contrôle) chez des sauveteurs et des conseillers du Pôle Emploi

Parrocchetti, Jean-Pierre 27 October 2012 (has links)
Objectif : Il s'agit de comparer les professionnels du risque à une population tout-venant, dans les modes de réaction et d'adaptation au stress à travers l'évaluation de plusieurs dimensions (stress perçu, intensité du névrosisme, stratégie de coping, lieu du contrôle et degré de sévérité de l'ESPT) afin de mettre en évidence les différences, les similitudes et les relations entre ces variables. L'hypothèse selon laquelle les deux groupes (Sauveteurs et Pôle Emploi) se distinguent par le niveau de stress perçu, l'intensité du névrosisme, le niveau de contrôle, le type de coping et le degré de sévérité de l'ESPT a été formulée. Méthode : Population : 42 individus de sexe masculin, âgés de 24 à 55 ans (groupe étude : sauveteurs pompiers mer et montagne, gendarmes du PGHM, démineurs, pilotes hélico et mécaniciens navigants) et 42 individus (33 femmes et 9 hommes) âgés de 24 à 59 ans (groupe contrôle : conseillers du Pôle Emploi). Outils : 5 échelles ont été utilisées : la PSS (stress perçu), l'EPI (névrosisme-extraversion/introversion), l'échelle de Levenson (locus of control), la WCC (coping) et le QSPT (état de stress post-traumatique). Résultats : les résultats montrent que les sauveteurs présentent un faible niveau de stress perçu, un bas niveau de névrosisme, de LOC externe (P et C) et interne, un faible recours au coping émotionnel et à la recherche de soutien social ainsi qu'un degré de sévérité de l'ESPT plus bas que ceux retrouvés chez les conseillers du Pôle Emploi. En revanche, ces deux groupes ne se différencient pas significativement dans l'emploi du coping centré sur le problème. / Purpose: This study aims at comparing professional rescuers and ordinary people, the way they react and they adjust to stress on different levels (perceived stress, neuroticism intensity, coping strategies, locus of control and posttraumatic stress disorder severity level ) in order to highlight the differences, the similarities and the links between the variables. The following hypothesis has been expressed: both groups (rescuers and job councellors) are different regarding perceived stress, neuroticism intensity, locus of control, the type of coping and the postttraumatic stress disorder severity level. Method: Population: 42 male individuals aged 24 to 55 (survey group: sea and moutain firefighters, High Mountain Squad gendarmes, bomb disposal experts, helicopter pilots and mechanics) and 42 individuals (33 women and 9 men) aged 24 to 59 (control group: job councellors) Tools: 5 scales have been filled in : PSS (perceived stress), EPI (neuroticism – extraversion / introversion), the Levenson scale (locus of control), WCC (coping) and QSPT (posttraumatic stress disorder). Results: the results bring to light that the rescuers show a lower level of perceived stress, of neuroticism, of external (P and C) and internal LOC, of emotional coping, of social support searching and of PTSD severity level than the job councellors. However, both groups do not differ significantly regarding the problem-focused coping. Conclusion: the harmful influence of environmental factors on the personality seems to determine the adjustment to stress and its traumatic consequences.
122

Evid?ncias de Validade da PSS-10 e PSS- 14: Estudo com An?lise Fatorial e de Rede. / Evidence of Validity of PSS-10 and PSS-14: Study with Factorial and Network Analysis.

Neves, Aline da Silva Boschi Martins 26 February 2018 (has links)
Submitted by SBI Biblioteca Digital (sbi.bibliotecadigital@puc-campinas.edu.br) on 2018-05-04T18:39:57Z No. of bitstreams: 1 ALINE DA SILVA BOSCHI MARTINS NEVES.pdf: 1713644 bytes, checksum: f8d45029bc62915e3c5e77690c011494 (MD5) / Made available in DSpace on 2018-05-04T18:39:57Z (GMT). No. of bitstreams: 1 ALINE DA SILVA BOSCHI MARTINS NEVES.pdf: 1713644 bytes, checksum: f8d45029bc62915e3c5e77690c011494 (MD5) Previous issue date: 2018-02-26 / Stress is one of the constructs emphasized when evaluating the health-disease process. However, because it is a latent variable, specific instruments are needed to measure it. The Perceived Stress Scale (PSS) is an instrument that has been used to assess the perception of stress in the last month. Despite numerous validations in several countries, their psychometric properties have not been consensual. The main objective of this work was to investigate the internal structure of the PSS-10 and PSS-14 versions, through exploratory factorial (AFE) and network analysis. Thus, two studies were carried out: in Study I, PSS-10 and PSS-14 were analyzed through AFE and, in study II, the scales were analyzed through network analysis. We used: a) the PSS-10 with a sample composed of 686 participants, being 175 (27.3%) men and 466 (72.7%) women (n = 641), with a mean age of 33.9 SD = 11.3) years, ranging from 18 to 73 (n = 632); and (b) the PSS-14 was answered by 690 participants, of which 304 (44.1%) were men and 386 (55.9.7%) were women, with a mean age of 34.72 (SD = 12, 56), with a range of 18 to 65. In both analyzes, the psychometric properties of PSS-10 and PSS-14 were shown to be reliable and confirmed the two-dimensional structure of distress and coping. Also, the network analysis allowed to explore the PSS in the Brazilian context, allowing new association patterns to emerge from the analyzed samples. And, even AFE being a widely used technique in the construction and evaluation of psychometric tests, network analysis has shown to be a promising and much more comprehensive tool at the level of the symptom, accommodating the numerous processes of psychological constructions. In this study, the network analysis showed how the perception of control influences the outcome of stress. Thus, in addition to providing evidence of validity of the PSS-10 and PSS-14, this study demonstrated how much the network analysis has to contribute in the psychology and health area. / O estresse ? um dos construtos enfatizados quando se avalia o processo sa?de- doen?a. No entanto, por ser uma vari?vel latente, instrumentos espec?ficos s?o necess?rios para mensur?-lo. A Escala de Estresse Percebido (Perceived Stress Scale - PSS) ? um instrumento que tem sido utilizado para avaliar a percep??o do estresse no ?ltimo m?s. Apesar de in?meras valida??es em diversos pa?ses, suas propriedades psicom?tricas n?o t?m sido consensuais. O objetivo principal deste trabalho foi investigar a estrutura interna das vers?es PSS-10 e PSS-14, por meio de an?lise fatorial explorat?ria (AFE) e de rede. Assim, dois estudos foram realizados: no Estudo I, a PSS-10 e a PSS-14 foram analisadas atrav?s da AFE e, no estudo II, analisaram-se as escalas por meio da an?lise de rede. Foram utilizadas: a) a PSS-10 com uma amostra composta por 686 participantes, sendo 175 (27,3%) homens e 466 (72,7%) mulheres (n = 641), com m?dia de idade de 33,9 (SD = 11,3) anos, com amplitude de 18 a 73 (n = 632); e b) a PSS-14 que foi respondida por 690 participantes, dos quais 304 (44,1%) s?o homens e 386 (55,9,7%), mulheres, com m?dia de idade de 34,72 (SD = 12,56) anos, com amplitude de 18 a 65. Nas duas an?lises, as propriedades psicom?tricas da PSS-10 e PSS-14 demonstraram-se confi?veis e confirmaram a estrutura bidimensional de distress e coping. Ainda, a an?lise de rede permitiu explorar a PSS no contexto brasileiro, permitindo que novos padr?es de associa??o emergissem das amostras analisadas. E, mesmo a AFE sendo t?cnica muito utilizada na constru??o e avalia??o de testes psicom?tricos, a an?lise de rede demonstra ser uma ferramenta promissora e muito mais abrangente no n?vel do sintoma, acomodando os numerosos processos das constru??es psicol?gicas. Neste estudo, a an?lise de rede evidenciou o quanto a percep??o de controle influencia no desfecho do estresse. Assim, al?m de fornecer evid?ncias de validade da PSS-10 e PSS-14, este estudo demonstrou o quanto ? an?lise de rede tem a contribuir no ?mbito da psicologia e na ?rea da sa?de.
123

Parent Perceived Stress and Child Temperament: Qualities that Facilitate or Impede Child Developmental Outcomes

Klempin, Rebekah Faith 01 January 2018 (has links)
Effective parent-child relationships contribute to the development of well-adjusted children. Taxing personal and situational factors encumber a caregiver’s capacity for responsivity with his or her child. The purpose of the present study was to identify interpersonal factors that impact child outcomes in low socioeconomic status family populations. Data was collected in northeast Florida Head Start centers from 219 low income, at-risk caregivers and their children ages one and a half through almost five. Parents completed questionnaires on parent perceived stress, child temperament, and child developmental outcomes. Hierarchical regression was used to assess the influence of child temperament and parent perceived stress independently and interactively on child developmental outcomes. Although parent stress and negative child temperament significantly influenced child developmental outcomes, there was no significant interaction effect. Policies aimed at ameliorating negative child temperaments or subjective parent stress may serve families and improve child developmental outcomes. Researchers should investigate the potential moderating influence of parent sensitive responding on the relationship between parent stress and child developmental outcomes.
124

Looking inwards, speaking out : exploring meditation with novice meditators taking part in a short-term meditation program

Basnett, Denice 04 1900 (has links)
The regular practice of meditation has been shown to reduce stress and increase well-being. However, there is limited information on how meditation feels or is subjectively experienced by the meditator. This naturalistic inquiry uses a phenomenological approach to explore the phenomenon of meditation as lived experience with a group of novice meditators taking part in a 4-week mindfulness meditation program. Nineteen college students were divided into 4 groups. Each group met once a week for a 30-minute guided meditation session followed by a 30-minute focus group during which participants shared their experiences. Individual interviews were conducted at the end of the study. The focus groups and individual interviews were audio recorded. Analysis of the transcribed data revealed 12 key constituents of the experience of meditation occurring at different stages of the meditation process. The key constituents were then placed along a timeline of a typical 30-minute session. A diagrammatic representation was created to illustrate the general "shape" of a meditation session. The variable nature of the meditation experience was also revealed: no two meditation sessions were experienced in the same way by the same meditator, and no two meditators had identical meditation experiences, although there were inherent similarities. A sample of the language novice meditators use to describe their experiences was also documented. The Perceived Stress Scale (PSS-14) was administered pre-study and post-study to measure changes in perceived stress over the course of the study. Reductions in perceived stress were measured in 76.5% of the participant group, or 13 of the 17 students who completed the study. These results were significant, t (16)=3.49, p=0.003. The findings in this study show meditation to have the distinctive characteristics of an altered state of consciousness. Meditation may be regarded as a self-induced, adaptive, altered state of consciousness that enables the meditator to relax and effectively reduce levels of perceived stress. These findings provide a new perspective of meditation, particularly with regard to how meditation is subjectively experienced by novice meditators. This information may help to demystify meditation and encourage those considering this healthful practice. / Psychology / D. Litt. et Phil. (Psychology)
125

Perceived stress and high fat intake: A study in a sample of undergraduate students

Vidal, E. Jair, Alvarez, Daily, Martinez-Velarde, Dalia, Vidal-Damas, Lorena, Yuncar-Rojas, Kelly A., Julca-Malca, Alesia, Bernabe-Ortiz, Antonio 09 March 2018 (has links)
Objectives Different studies have reported the association between perceived stress and unhealthy diet choices. We aimed to determine whether there is a relationship between perceived stress and fat intake among undergraduate medical students. Methods/Principal findings A cross-sectional study was performed including first-year medical students. The outcome of interest was the self-report of fat intake assessed using the Block Screening Questionnaire for Fat Intake (high vs. low intake), whereas the exposure was perceived stress (low/ normal vs. high levels). The prevalence of high fat intake was estimated and the association of interest was determined using prevalence ratios (PR) and 95% confidence intervals (95% CI). Models were created utilizing Poisson regression with robust standard errors. Data from 523 students were analyzed, 52.0% female, mean age 19.0 (SD 1.7) years. The prevalence of high fat intake was 42.4% (CI: 38.2%–46.7%). In multivariate model and compared with those with lowest levels of stress, those in the middle (PR = 1.59; 95%CI: 1.20–2.12) and highest (PR = 1.92; 95%CI: 1.46–2.53) categories of perceived stress had greater prevalence of fat intake. Gender was an effect modifier of this association (p = 0.008). Conclusions Greater levels of perceived stress were associated with higher fat intake, and this association was stronger among males. More than 40% of students reported having high fat consumption. Our results suggest the need to implement strategies that promote decreased fat intake.
126

Effets du statut personnel et du statut professionnel vis-à-vis du stress au travail dans une organisation industrielle en France / Effects of personal status and professional status on Work related Stress into a french industrial organization

Boroumand Jazi, Behnaz 05 October 2015 (has links)
De manière générale, avoir un emploi est un élément de satisfaction pour la plupart des personnes. En revanche, beaucoup de salariés sont sujets au stress, ce qui a une incidence non négligeable à la fois sur les individus et sur les structures. Ces dernières ne possèdent souvent pas de modèles appropriés pour évaluer de manière approfondie ce phénomène. Le manque de connaissances précises du stress au travail, et de ses origines, particulièrement les deux dimensions du statut personnel et le statut professionnel en France, nous a conduits à réaliser un diagnostic approfondi pendant plusieurs années au sein d’une grande entreprise industrielle sur plusieurs sites. L’entreprise choisie est emblématique de l’organisation du travail industriel en France. La cartographie du stress au travail, avec l’identification des populations principalement exposées, devrait être applicable à d’autres organisations afin de définir rapidement un plan d’actions anti-stress, sans avoir à réaliser préalablement un état des lieux détaillé ; pour le plus grand bénéfice des salariés, de l’ambiance de travail et de la production. Les différentes parties prenantes au déploiement d’une politique contre le stress, à savoir : les salariés, l’encadrement, les directions des ressources humaines, les psychologues du travail, les médecins du travail ont été sollicités dans le cadre de cette recherche.Après un diagnostic général, face au grand nombre de thèmes de recherches possibles et du fait de l’insuffisance d’études sur la relation entre le statut personnel et la situation de travail avec les autres facteurs déjà intégrés aux modèles classiques sur le stress au travail, nous nous sommes concentrés sur ce sujet en définissant un modèle théorique à valider expérimentalement au travers de questionnaires. Dans la recherche présente, nous expliquons comment nous avons constaté que, parmi les facteurs liés au stress professionnel, la catégorie « situation de travail » influence plus ce phénomène que la catégorie « statut personnel ». Parmi les facteurs présents dans la catégorie « situation de travail », les plus importants par ordre décroissant sont : la catégorie socioprofessionnelle, la pratique de l’anglais, et l’ancienneté. Parmi les facteurs présents dans la catégorie « statut personnel », les plus importants par ordre décroissant sont : le niveau de formation, le genre et l’âge. Ce constat est plutôt une bonne nouvelle pour les entreprises, car elles pourront diminuer le stress au travail en agissant sur la situation de travail, sachant qu’elles ne peuvent intervenir sur le statut personnel des salariés. Cette contribution devra être complétée par d’autres recherches afin de renforcer l’exhaustivité du diagnostic sur le stress au travail et de conduire des plans d’action complets couvrant tous les thèmes. / In general, having a job is a satisfactory factor for the majority of persons. However, most of the employees are stress-prone, which has an important effect both on individuals and on structures. Those structures often do not possess relevant standards to thoroughly evaluate this phenomenon.The lack of precise knowledge about stress at work and its origins, especially the two dimensions of personal status and professional status in France, has led us to conduct a thorough diagnosis for several years on several plants of a large industrial company. The chosen company is emblematic of the industrial labour organization in France. The mapping of stress at work, with the identification of mainly exposed populations, should be applicable to other organizations to quickly set an anti-stress action plan, without first making a detailed inventory; for the greatest benefit of employees and the work environment and production. The different stakeholders interested in deploying a policy against stress, the employees, the hierarchy, Human Resources Departments, occupational psychologists, occupational doctors have been solicited as part of this research. After a general diagnosis, facing the large number of possible research topics and because of the lack of studies on the relationship between staff’s personal status and "professional situation" with the other factors already integrated within conventional models about stress at work, we focused on this issue by defining a theoretical model to be validated experimentally through questionnaires. In this research we explain how we found that among the factors related to stress at work, the category "professional situation" influenced this phenomenon more than the "personal status" category.Among the factors in the category "professional situation", the most important in decreasing order are: socio-professional category, English practice, and seniority. Among the factors in the "personal status" category, the most important in decreasing order are: the level of education, gender and age. This finding is rather good news for companies because they will be able to reduce stress at work by acting on the "professional situation", knowing that they cannot interfere with the personal status of employees. This contribution should be supplemented by other researches to enhance the completeness of the diagnosis about stress at work and to conduct complete actions plans covering all topics.
127

Is there an association between the level of stress and the presence of musculoskeletal disorders in doctors? / ¿Existe asociación entre el nivel de estrés y la presencia de trastornos musculoesqueléticos en médicos?

Barahona Bustamante, Déborah Jael, Montoya Machuca, Stephanny Macold 20 April 2020 (has links)
Objective: To determine the association between perceived stress and the presence of musculoskeletal disorders in physicians at La Caleta de Chimbote Hospital and Eleazar Guzmán Barrón Regional Hospital in Ancash, Peru. Methods. An exploratory cross-sectional analytical study was conducted in 116 physicians. The Nordic Questionnaire was used to determine the areas of musculoskeletal pain and the Perceived Stress Scale (PSS-10) to assess the level of stress. The sociodemographic and occupational characteristics of the population were evaluated from the measurement of proportions and measures of central tendency and dispersion. For the bivariate analysis, Fisher's exact test and Chi2 were used. Finally, the multivariate analysis, based on a Logistics Regression model, was calculated with the crude and adjusted Odd Ratio (OR) [95% Confidence Intervals (CI)]. Results: The responses of 71 evaluations from a group of people between ages 34 to 59 (median 48) with a higher predominance of males (72%) were analyzed. No statistically significant association was found between the presence of non-specific musculoskeletal disorders and the perception of stress (p = 0.066); However, cervical, lumbar, hip / leg and ankle / foot pain specifically did show a significant association (p = 0.009; p = 0.033; p = 0.033 and p = 0.034, respectively). Finally, the cervical area maintained its association when performing the crude analysis and adjusted to physical activity (ORc = 7.29; 95% CI = 1.51-35.21 / ORa = 7.29 95% CI = 1.25-42.37). Anatomical areas such as lumbar, hip / leg and ankle / foot showed a non-significant association when performing the multivariate analysis. / Objetivo: Determinar la asociación entre el nivel de estrés percibido y la presencia de trastornos musculoesqueléticos en médicos del hospital La Caleta de Chimbote y Hospital Regional Eleazar Guzmán Barrón en Ancash, Perú. Métodos. Se realizó un estudio exploratorio de tipo transversal analítico en 116 médicos. Se utilizó el cuestionario nórdico para determinar las zonas de dolor musculoesqueléticos y la Escala de Estrés Percibido (EEP-10) para valorar el nivel de estrés. Se evaluaron las características sociodemográficas y ocupacionales de la población a partir de la medición de proporciones y medidas de tendencia central y dispersión. Para la realización del análisis bivariado se utilizó la prueba exacta de Fisher, Chi2. Finalmente, el análisis multivariado, a partir de un modelo de Regresión de Logística, se calculó con el Odd Ratio (OR) crudo y ajustado [Intervalos de Confianza (IC) al 95%]. Resultados: Se analizaron las respuestas de 71 evaluaciones de un grupo de personas de entre 34 a 59 años (mediana 48) con mayor predominio del sexo masculino (72%). No se encontró asociación estadísticamente significativa entre la presencia de trastornos musculoesqueléticos de manera inespecífica y la percepción de estrés (p=0.066); sin embargo, el dolor cervical, lumbar, cadera/pierna y tobillo/pie específicamente sí mostraron asociación significativa (p=0,009; p=0.033; p=0.033 y p=0.034, respectivamente). Finalmente, la zona cervical mantuvo su asociación al realizar el análisis crudo y ajustado a la actividad física (ORc=7.29; IC95%=1.51-35.21 / ORa=7.29 IC95%=1.25-42.37). Zonas anatómicas como lumbar, cadera/pierna y tobillo/pie mostraron asociación no significativa al realizar el análisis multivariado. / Tesis
128

Influence des variables de trait et d'état sur le contenu affectif des rêves de tous les jours

Samson-Daoust, Eugénie 04 1900 (has links)
Bien que des émotions soient rapportées dans une vaste majorité de rêves, nous en savons encore peu sur les facteurs qui expliquent les variations d’une nuit à l’autre et d’une personne à l’autre dans l’expérience affective des rêves. Nous avons examiné la relation entre des variables de trait et d’état à l’éveil en testant des modèles multiniveaux destinés à prédire la valence affective des rêves de tous les jours. Des participants de la population générale ont complété des mesures de personnalité et d’historique de traumatismes, suivies de trois semaines de questionnaires quotidiens sur leur rappel de rêves, la valence des émotions rêvées, ainsi que leurs niveaux de stress perçu dans la journée et avant le coucher. Les effets intra-individuels étaient responsables d’une majorité de la variance en valence émotionnelle des rêves. L’anxiété de trait était la seule variable à prédire de façon statistiquement significative la valence émotionnelle des rêves au niveau inter-individuel. En accentuant le besoin de mesures plus affinées dans ce domaine de la recherche sur les rêves, nos résultats font ressortir des limites et biais méthodologiques associés à l’estimation rétrospective de l’affect général à l’éveil et en rêve, en plus de mettre en évidence des variables d’état qui pourraient mieux expliquer la variance intra-individuelle des émotions vécues dans les rêves de tous les jours. / Although emotions are reported in a large majority of dreams, little is known about the factors that account for night-to-night and person-to-person variations in people’s experience of dream affect. We investigated the relationship between waking trait and state variables and dream affect by testing multilevel models intended to predict the affective valence of people’s everyday dreams. Participants from the general population completed measures of personality and trauma history followed by a three-week daily journal in which they noted dream recall, valence of dreamed emotions, as well as their level of perceived stress for the day and prior to sleep onset. Within-subject effects accounted for most of the variance in the reported valence of dream affect. Trait anxiety was the only variable that significantly predicted dream emotional valence at the between-subjects level. While highlighting the need for more fine-grained measures in this research field, our results point to methodological limitations and biases associated with retrospective estimates of general dream and waking affect, and bring into focus state variables that may best explain observed within-subject variance in emotions experienced in everyday dreams.
129

Gendered experiences of work environment : A study of stress and ambiguity among dental students in Sweden / Könade upplevelser av arbetsmiljö :  En studie av stress och ambiguitet bland tandläkarstudenter i Sverige

Schéle, Ingrid January 2011 (has links)
This thesis explores how dental students experience their education. We aim to generate ways to understand which elements relate to the students’ experience based on current theories and models regarding the quality of working life and gender (and) power relations.   Methods Twelve interviews with Umeå dental students in their clinical semesters were analysed with a Grounded Theory (GT) as well as a content analysis approach. A web-survey was sent to all clinical dental students in Sweden (P ≈ 805) with a response rate of 40% (p = 322). The quantitative methods included structural equation modelling and cluster analysis. Results The GT analysis resulted in the core category “Experiencing ambiguity,” that captured the student’s role-ambiguity. Central categories focused on perceived stress and performance assessment in relation to ambiguous inner and outer demands. The content analysis resulted in three categories: “Notions of inequalities,” “Gendering,” and “The student position.” These categories present the ways groups of students are constructed in relation to the student/dentist norm and social gender relations, and how women and men of foreign descent risk subordination and stereotyping. The SEM-model contained psychosocial work environment, tolerance for ambiguity, perceived stress, and student satisfaction. Work environment influenced both perceived stress and satisfaction, and stood for almost all of the explained variance in perceived stress for women, indicating that women are constructed as co-responsible for the work environment. About half of the variance for the men was explained by tolerance for ambiguity, indicating that the feeling of uncertainty may lead to stress in men who include “being in control” in their gender identity. The cluster analysis resulted in a six-cluster solution ranging from “The fresh and positive” to “The worn critiques.” Psychosocial work environment again appeared to be the main factor. Gender also appears to be a factor as the gender distribution in the best as well as the two worst clusters differs from the population. Conclusion Work environment stands out among the factors that relate to the students wellbeing and satisfaction, but the student group is heterogeneous and the ways students perceive their work environment relate to different processes and experiences. We suggest that the ways gender and ethnicity appear to be constructed in relation to the sociocultural gender power relations and the (traditional) medical hierarchy could be of importance for how the students’ experience their psychosocial work environment.
130

Information till föräldrar som har barn med cancer

Ringnér, Anders January 2013 (has links)
Bakgrund. Föräldrar till barn som har cancer upplever en livssituation som präglas av osäkerhet och oro och de ställs inför sociala och känslo­mässiga utmaningar. Jämfört med föräldrar till friska barn, upplever de också högre stress och drabbas i större utsträckning av posttraumatiska stres­symptom. Trots att information om barnets sjukdom är ett centralt behov för föräldrarna, upplever de otillfredsställelse med den information som ges. Syfte. Syftet med denna avhandling var att inom barnonkologisk vård beskriva vårdares och föräldrars upplevelser av information, studera deras inbördes interaktion samt beskriva upplevelser och effekter av en intervention för personcentrerad information till föräldrar. Metod. I delstudie I–III användes fokusgruppintervjuer (I, II), individ­uella intervjuer (II, III) och deltagande observationer (III). Deltagarna bestod av 20 vårdare (I), 14 föräldrar till barn med cancer (II) respektive 25 vårdare och 25 föräldrar (III). Data analyserades med kvalitativ innehållsanalys (I, II) och diskurspsykologi (III). I delstudie IV testades en intervention för per­son­cen­tre­rad information på åtta föräldrar med hjälp av en experimentell single-case-design. Data samlades in med kvalitativa intervjuer och internetenkäter. Upplevd stress, kroppsliga symptom på stress, ångest, nedstämdhet och tillfredsställelse med information var utfallsmått. Resultat. I delstudie I bestod resultatet av två teman: anpassa mängden information till föräldrarnas behov, som handlade om skillnader i hur mycket information som gavs till föräldrarna utifrån vårdarnas bedömning av föräldrarnas behov, och navigera i en vag struktur, som handlade om brister i ansvar, miljö, tajming och språk när informationen lämnades. I delstudie II konstruerades två teman. Känna sig bekräftad som en viktig person handlade om att föräldrarna kände sig trygga, kunde hålla hoppet uppe och fick stöd från andra föräldrar. Temat var mer framträdande under behandlingens tidiga skeden. Det andra temat var känna sig som en objuden gäst vilket handlade om att kännas övergiven vid viktiga milstolpar, att tvingas tjata sig till information och att belastas av att själv behöva informera andra inom sjukvården. I delstudie III använde vårdarna tolkningsrepertoarer som var barn-, föräldra- eller familjeorienterade, vilket avspeglade deras primära fokus i interaktionen. Föräldrarna använde tolkningsrepertoarer som talesperson, observatör eller familjemedlem. Hur dessa kombinerades inbördes påverkade interaktionen. I delstudie IV erfor föräldrarna stor tillfredsställelse med den per­son­cen­tre­rade informationen och upplevde att de hade nytta av att på egen hand få diskutera barnets sjukdom och ställa frågor de annars inte skulle ställt. Interventionen visade ingen effekt på stress eller kroppsliga symptom på stress, ångest och nedstämdhet. Slutsatser. För att förbättra information till föräldrar som har barn med cancer är det en central uppgift att bedöma hur mycket och vilken information som ska ges vid varje tillfälle, att uppmärksamma att föräldrarna kan ha andra informationsbehov än barnet och att möten med föräldrarna ska ske i lugn och ro samt att organisera vården så att ansvaret är tydligt. I synnerhet bör det ske förbättringar kring det som föräldrarna upplever som viktiga milstolpar under barnets sjukdomstid. Interventionen för per­son­cen­tre­rad information uppskattades av föräldrar som har barn med cancer men effekten på föräldrarnas psykosociala välbefinnande behöver utforskas ytterligare. / Background. Parents of children with cancer experience a life situation characterised by uncertainty and worries, and they face ongoing social and emotional challenges. Compared to parents of healthy children, they also experience increased levels of perceived stress and they suffer to a greater extent from post-traumatic stress symptoms. Even though information about the child’s disease is crucial for parents, they still experience low satis­faction with the information given to them. Aim. The aim of this thesis was to, within the field of paediatric oncology care, describe health care professionals’ and parents’ experiences from infor­mation, study their joint interaction and describe experiences and effects from an intervention based on person-centred information to parents. Methods. For study I–III, focus group interviews (I, II), individual inter­views (II, III), and participant observations (III) were used. Participants were 20 health care professionals (I), 14 parents of children with cancer (II) and 25 health care professionals and 25 parents (III). Data were analysed by qualitative content analysis (I, II) and discursive psychology (III). In study IV, an intervention for person-centred information was tested on 8 parents using a single-case experimental design. Data were collected with qualitative interviews and web questionnaires. Outcome measures were perceived stress, physical symptoms from stress, anxiety, depression, and satisfaction with information. Results. In study I, the analysis resulted in two themes, Matching the amount of information to the parents’ needs, which dealt with differences in the amount of information provided to parents according to the health care professionals’ assess­ment of parental needs, and Navigating through a vague structure, which was about shortcomings in responsibilities, setting, timing, and language when parents were informed. In study II, two themes were constructed. Feeling acknowledged as a person of significance was about feeling safe and secure, having one’s hopes supported and getting relief from other families. This was accentuated early in the treatment trajectory. Feeling like an unwelcome guest was about feeling abandoned at important milestones, feeling forced to nag for information and being burdened by informing others. In study III, the health care professionals used interpretative repertoires that were child, parent, or family oriented, which mirrored the primary focus of the inter­action. Parents used repertoires as a spokesperson, an observer, or a family member. The combination of the repertoires steered the interaction. In study IV, parents reported a high satisfaction with the person-centred information intervention and perceived benefits from having their own time to discuss the child’s disease and pose questions that they otherwise would not have an opportunity to ask. No effects from the intervention were demon­strated on perceived stress, physical symptoms of stress, anxiety, and depressive mood. Conclusion. To improve information to parents of children with cancer, a central task is to assess the amount of and what information given to parents, pay attention to possible differences in infor­mation needs between parents and children, as well as to organise the care so that the respon­si­bilities are clear and that parents are met in a calm setting. Improvements at important milestones during the illness period should be pri­ori­tised. A person-centred information inter­ven­tion is perceived as bene­ficial by parents, however, its effect on perceived parental stress has further to be investigated.

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