Made available in DSpace on 2015-05-07T15:09:58Z (GMT). No. of bitstreams: 1 arquivototal.pdf: 2374514 bytes, checksum: 4986d747fab2d74a974c9162a06163f1 (MD5) Previous issue date: 2010-10-05 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior / This study aims at identifying and analysing those factors that foster the development of selfadvocacy of young people with disability in the contexto of the Extra-mural Project Pró-Leader: promoting self-advocacy of young people with disability. In this study, selfadvocacy is defined as na action and voice of a person or a group of people on their own behalf with the purpose to promote and defend their rights, without the intervention os a third part. This study inserts the theme of disability and youth in the Field of Cultural Studies in Education, insofar as when these two human features are articulate they characterize na extreme social vulnerabilityof this group that are at the rrots of their invisibility. Studying this phenomena is crucial for the advancement of knowledge about processes of autonomy and independency of young people with disability with the view of supporting them to breaking the cycle of invisibility within which they have been immersed in for many centuries. It also places the young people with disability in the context of the development of the Brazilian public policy, area of knowledge still full of gaps. For this purpose, this study adopts the Foucault Theory of Poweer relations, in order to analyse the emerging data and to draw conclusions from it. Participatory research and the Corbin and Strauus (2008) Grounded Theory have been the methodology adopted to lead this investigation. Data analysis shows that there are four dimensões into place in the processo f developing the role of self advocates for youngster with disability, which are, (1) achieving a deeper understanding on the moto ´nothing about us without us´; (2) achieving and developing self-knowledge and knowledge of others; (3) resisting to subjection: facilitatior factors and, finaly, (4) rupture of subjection: exercising self-advocacy. The study shows that there are strong links between these four dimensions and the relevance of the extra-mural activity in this process. / Este estudo tem como objetivo identificar e analisar os fatores que favorecem o desenvolvimento da autoadvocacia de jovens com deficiência no âmbito do Projeto de Extensão Universitária Pró-Líder: promovendo a autoadvocacia de jovens com deficiência. Autoadvocacia, neste estudo é compreendida como a ação ou expressão da voz de uma pessoa ou grupo de pessoas em seu próprio nome, sem a intervenção de terceiros, na luta por seus direitos. Esta dissertação insere o tema deficiência e juventude no campo de conhecimento dos Estudos Culturais em Educação, uma vez que essas duas condições humanas associadas caracterizam a extrema vulnerabilidade social dos jovens com deficiência e estão na raiz de sua invisibilidade. O fenômeno aqui investigado é crucial para o avanço do conhecimento sobre o processo de formação da autonomia e independência de jovens com deficiência, pois visa apoiá-los para romper o ciclo da invisibilidade dentro do qual estão imersos. Além disso, coloca os jovens com deficiência no contexto do desenvolvimento das políticas públicas para juventude, área de conhecimento ainda cheia de lacunas a serem preenchidas. Para tanto, este estudo adota a teoria das relações de poder de Foucault, a fim de analisar os achados emergentes dos dados e as conclusões. Adotamos como metodologia a pesquisa participante e a teoria fundamentada de Strauss e Corbin (2008) com vistas ao desenvolvimento de teoria sobre a autoadvocacia. A análise dos dados evidencia quatro dimensões no processo de desenvolvimento do papel de autoadvogado: (1) adquirir uma compreensão mais profunda sobre o lema Nada sobre nós sem nós‟; (2)adquirir e desenvolver conhecimento de si próprio e do outro; (3) resistir ao assujeitamento: eixos facilitadores e, finalmente, (4) romper do assujeitamento: exercício da autoadvocacia. Há evidencias consistentes acerca da intima relação entre as quadro dimensões e a importância da ação de extensão universitária neste processo.

Legislation, social awareness, and advancements in medicine and assistive technology have created meaningful postsecondary opportunities for students with disabilities over the past 30 years. Mainstreaming, inclusion, and transition planning in elementary and secondary schools also greatly contributed to the increased achievement of students with disabilities. Today, 15% of students with disabilities attend four-year colleges. Current federal data show 88% of private and 99% of public universities report students with disabilities enrolled at their institutions. Much of the current research focuses on institutional practice and need. There is a gap in the research when looking at student needs and experiences. This quantitative dissertation study analyzed the relationships between student perceptions, self-advocacy awareness and confidence levels, and available disability accommodations at two institutions of higher learning, one public and one private. One hundred and thirteen undergraduate students with disabilities completed an online survey. Thirty-four respondents attend the private university, and 79 respondents attend the public university. Descriptive and associative statistics were analyzed for comparative experiences between the two settings, knowledge and confidence of self-advocacy skills, and relationships between these variables and disclosure patterns. The sample population of undergraduate students with disabilities appears to have similar experiences. In both settings, public and private, students have similar identification patterns, accommodation experiences, and support experiences. Students in both settings are satisfied with their academic support office and staff. The accommodations students find useful are alternative exam formats, documentation sent to faculty, and registration assistance. Students report having an awareness of and confidence using self-advocacy skills, but have had little to no training in these skills. Students report weak understanding of their legal rights, disability, and accommodations. Students also report poor transition experiences from secondary to postsecondary education, a finding that matches current research. Transition planning at the secondary level must be purposeful in preparing students for four-year college settings when appropriate. Students need self-advocacy skills and disability awareness training before transitioning to postsecondary settings. Future research should also include revisiting the usefulness of accommodations offered in postsecondary settings, studying effective transition models, and looking at the relationship between self-advocacy confidence levels and postsecondary retention rates.

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The purpose of this research was to determine relationships among depression, anxiety, self-rated physical and mental health, self-advocacy, internalized homophobia, and quality of patient-provider communication to satisfaction with health care interactions. These were measured while controlling for select demographic variables: age; ethnicity; urban or rural domicile; relationship status; household income; highest educational attainment; health insurance; disclosure to health care provider as a gay man; reason for last healthcare visit; and, general health self-rating. The specific aims of this study were to: 1) identify general characteristics of gay men in this sample; 2) examine how levels of satisfaction with health care differed by each characteristic; 3) assess relationships between each potential predictor of satisfaction and the level of satisfaction; and, 4) determine the relationship between each predictor and satisfaction after controlling for the most significant covariate(s). A quantitative study was conducted in which 42 adult gay men participated. The author hypothesized that gay men who reported lower levels of depression, higher self-rated physical and mental health, lower levels of anxiety, higher self-advocacy scores, lower levels of internalized homophobia, and stronger evaluations of patient-provider communication would report more positive satisfaction with health care interactions. The hypothesis was supported by results of this research. This research established that variables with the strongest effect on gay men’s satisfaction with health care interactions were whether the patient had revealed his sexual orientation to the provider, how he rated his anxiety, and how he rated the quality of communication with his provider. These results emphasize the importance of health care providers’ awareness of specific psychosocial factors that influence communication during care of gay men, who understand their sexual orientation places them at a disadvantage when receiving health care services. Despite the pursuit of equitable, high quality, and satisfying health care, its achievement has been hampered by barriers that gay men encounter. Understanding those barriers while addressing health related needs of gay men will be important for providers who seek to improve satisfaction with health care interactions.

Purpose: The purpose of this study was to investigate the effects of spoken self-disclosure scripts on nonaphasic listeners’ perceptions of people with aphasia (PWA). Self-disclosure is a tool that PWA can utilize in the event that they want a conversation partner to know of their communication disorder. However, limited research has been conducted on the effects of aphasia self-disclosure or whether it affects perceptions of PWA from neurotypical communication partners. If self-disclosure is determined to make a positive impact on a communicative interaction, it could be grounds for encouraging PWA who are interested to develop a self-disclosure script or use an aphasia identification card. Methods: 239 middle-aged adults participated in this study, which was a remote survey conducted on Qualtrics via Prolific. Aphasia self-disclosure scripts from two speakers (one female and one male), as well as neutral scripts from the same two speakers, were used as stimuli. After hearing either the self-disclosure or the neutral script, participants were asked to rate various speaker attributes (i.e., intelligence, confidence, friendliness, and kindness), as well as their own experience (i.e., engagement, patience, comfort, and ease of listening) while listening to the speaker. Results: Overall, the listeners who heard the aphasia self-disclosure scripts rated the speakers’ attributes more highly than the listeners who heard the script containing neutral information. In addition, those in the self-disclosure listening group rated their listening experience more highly than the group of participants who received the neutral information. The aphasia self-disclosure script appeared to have a larger effect on perceptions of the male speaker as compared to the female speaker. Conclusion: Nonaphasic listeners’ attitudes about PWA, as well as their listening experience, improve when spoken self-disclosure is involved in communication. Future research should examine the impact of self-disclosure on remote and in-person interactions between neurotypical individuals and PWA, as well as investigate the effectiveness of implementing virtual Communication Partner Training (CPT) programs.

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The diploma thesis "Health and Socio-economic Indicators - reliability and validity testing of the PSAS" deals with a theoretical concept of health and its socio-economic indicators. A substantial part of the work concentrates on the application of PSAS tools to the Czech population and determining whether the range is reliable and valid for Czech respondents. To determine the reliability, a complex test is used for the whole range through the value of Cronbach's Alpha, and then the Item Response Theory (IRT) is also tested. The IRT test is done using the 18-point Likert's range of responses, of which is the PSAS composed. The validity is tested based on confirmatory factor analysis, using the construct validity as well as analysis of cognitive interviews for face validity. The secondary data analysis is done in SPSS, MPLUS, R, and IRTPRO programs. The last two programs are used to test the lesser known Item Response Theory.

I hope this can be used for a greater good than pure study. / This study used a novel combination of interview methodologies, made possible through the nature of instant messaging, and ethnographic methods in order to determine the value of the autistic community on Tumblr.com to its members. Ethnographic study yielded insights about the dialectic quality of any community on Tumblr, autistic community included, as well as the sense of autonomy users have on the site that is different if not greater than what they may practice in the physical world. Interview data suggest a neutral to positive view of the community and its culture overall, though further research with a greater sample of participants is required in order to confirm these findings. Information can be shared quickly between members, and this information provides greater insight into a given user’s autism, be it diagnosed or otherwise, or insight into navigating the neurotypical world. Autism positivity and neurodiversity advocacy is common among participants and the blogs they subscribe to, popularising the idea thereof in the mainstream while validating the identity of autistic people online and offline. This ethos makes its way into more casual site discussions, with memes and other entertainment being shaped by these experiences. The autistic community on Tumblr is an excellent example of a modern biosocial community online, and serves as Hacking’s engine of normalisation both on the site outside of the autistic community and in the physical world through real life events and adoption of site terminology and discourse. / Thesis / Master of Arts (MA) / Using a purpose-built blog to learn about site culture and a series of online interviews to discover participant experiences, this study explores the culture of the autistic community on Tumblr and its impact on its members. The autistic community on Tumblr is a place that its members have more freedom to act and express themselves (through art, videos, shared stories etc.) than in the physical world. Through being a way to vent difficult experiences, get information, and enjoy site content made by and for them (in addition to broader appeal media), site users report a neutral to positive effect on their overall quality of life because of the site. Further research is required to confirm any of the patterns in the work.

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