Global ETD Search

281	Team-patient communication of information and support at the Breast Cancer Clinic of the Johannesburg Hospital Levin, Debra 11 1900 (has links) This study addresses the effectiveness of communication between the team (doctors, sisters and social workers) and patients at the Breast Cancer Clinic of the Johannesburg Hospital. Tue needs of patients were highlighted, as well as the role of care-giver, both as a group and in their separate disciplines, in attempting to meet these needs. Tue empirical survey was carried out through the use of questionnaires as well as interview schedules. Patients, doctors, nurses and social workers were used as respondents. Results indicated that the majority of patients' needs for information and support were met by the team in general; however, a need for further social work intervention seemed to be apparent. In addition, several barriers were found to inhibit both team-patient and inter-team communication. Tue researcher used the information gathered in this study to make recommendations that will facilitate improved communication in the clinic, with specific reference to the role of the social worker. / Social Work / M.A.(Social Science: Mental Health) Patient Breast Cancer Multi-disciplinary team Information Support Communication Doctor Nurse Social Worker Roles 362.19699449 Breast -- Tumors. Death -- Psychological aspects.
282	Närståendes upplevelser av att vårda en anhörig med cancer i livets slutskede i hemmet : en litteraturöversikt / Family’s experiences of caring for a relative with cancer at the end of life at home : a literature review Mahne, Fanny, Ohlsson Moberg, Sofie January 2021 (has links) Bakgrund: Varje år behöver 70 000–75 000 människor palliativ vård, varav de flesta har en cancersjukdom. Närstående har en viktig och central del i palliativ vård och kan påverka den drabbades mående innebär att lindra symtom och lidande där fokus inte ligger på att bota sjukdomen. Sjuksköterskan har en viktig roll att stötta och involvera närstående i kommunikationen. Syfte: Syftet var att beskriva närståendes upplevelser av att vårda en anhörig med cancer i livets slutskede i hemmet.  Metod: Metoden som valdes var en litteraturöversikt. Tio vetenskapliga artiklar inkluderades i resultatet. Artiklarna analyserades enligt Fribergs metod. Resultatartiklarna hade kvalitativ design och hämtades från CINAHL Complete och MEDLINE.  Resultat: Litteraturöversikten presenterades i tre teman och fem underteman. Det första temat innefattar att bli en vårdare, med undertemat ansvar att ständigt vara på vakt. Det andra temat innefattar känslor av vårdandet, med underteman stress och tiden nära döden. Det sista temat innefattar behov av stöd, med underteman stöd från familj och vänner, stöd från hälso-sjukvården.  Slutsats: Resultatet visade att närstående kände ett ansvar av att vårda sin anhörig, detta ansvar medförde bland annat att tunga beslut låg i deras händer angående anhörigas autonomi. Ansvaret bidrog även med negativa effekter både psykiskt och fysiskt i form av utmattning. Förberedelser inför döden visade sig vara en viktig del för närståendes mentala hälsa samt att stöd från familj, vänner och vårdpersonal framkom som betydelsefullt. / Background: Every year, 70 000–75 000 people need palliative care, most of them have cancer. Relatives have an important and central part in palliative care and can affect the victim's mood. Palliative care involves relieving symptoms and suffering where the focus is not on curing the disease. The nurse has an important role to support and involve relatives in the communication. Autonomy is seen as a difficult ethical dilemma in palliative care as the sufferer may have difficulty being self-determined in the final stages of life.  Aim: The purpose was to describe relatives' experiences of caring for a relative with cancer in the final stages of life at home.  Method: The chosen method was a literature review linked to Friberg. Ten scientific articles were included in the results. The articles were analyzed according to Friberg's method. The result articles had a qualitative design and were taken from CINAHL Complete and MEDLINE.  Results: The literature review was presented in three themes and five sub-themes. The first theme includes becoming a caregiver, with the sub-theme responsibility to be constantly on guard. The second theme includes emotions of care, with the sub-theme of stress, the time close to death. The last theme includes need for support, with the sub-theme support from family and friends, support from health care.  Conclusion: The results showed that close relatives felt a responsibility to care for their relatives, this responsibility meant, among other things, that heavy decisions were in their hands regarding the relatives' autonomy. The responsibility also contributed with negative effects both mentally and physically in the form of exhaustion. Preparations for death proved to be an important part of the mental health of close relatives and that support from family, friends and care staff emerged as meaningful. Home Care Caregivers Adult Children Family Family Relationships Nuclear Family Parent Spouses Relatives Vital Events Experiences Palliative Care Terminal Care Hospice Care Vård i hemmet Vårdare Vuxna barn Familj Familjerelationer Kärnfamilj Föräldrar Makar Släktning Livsavgörande händelser Experiences Palliativ vård Terminal vård Hospicevård Nursing Omvårdnad
283	Honouring sacred spaces : voicing stories of terminal illness Scrimgeour, Elizabeth 30 November 2002 (has links) The marginalisation of palliative and pastoral care practices by conventional approaches to care for terminally ill patients, motivated the research curiosity. The significance of terminal patient's spirituality, their language practices and communities of concern are endorsed as being the major contributing factor to meaningful 'living' with terminal illness. Listening to stories has been the qualitative research practice, revealing meaning-making, quest stories. Feminist theology and post-modern ideas and discourses have assisted me, and the participants, in the deconstruction of power, patriarchy and dualism as the primary contributing factors to marginalisation of people due to illness, race, gender, poverty, culture and education. Pastoral care practices and feminist theology have guided us to emphasise the necessity to recognise the God of Grace as an important part to ensuring holistic patient care. Recognising the 'God-Self, respectful narrative and pastoral care practices paved the way to honour sacred spaces and voice stories of terminal illness. / Philosophy, Practical and Systematic Theology / M.Th (Specialisation Pastoral Therapy) Palliative care Feminist theology Dualism Marginalisation Pastoral care Narrative pastoral therapy Patriarchy Grace Holism Choice Meaning-making Doing hope Ethical care Relationship Interconnectedness Languaging Sacred spaces Storytelling Community Deconstruction Terminally ill -- Religious life Terminal care -- Religious aspects Death -- Religious aspects Church work with the terminally ill Narrative therapy Feminist theology
284	End-of-life decision-making among African Americans with serious illness Smith-Howell, Esther Renee 07 May 2015 (has links) Indiana University-Purdue University Indianapolis (IUPUI) / African Americans' tendency to choose life-prolonging treatments (LPT) over comfort focused care (CFC) at end-of-life is well documented but poorly understood. There is minimal knowledge about African American (AA) perceptions of decisions to continue or discontinue LPT. The purpose of this study was to examine AA family members' perceptions of factors that influenced end-of-life care decision-making for a relative who recently died from serious illness. A conceptual framework informed by the literature and the Ottawa Decision Support Framework was developed to guide this study. A retrospective, mixed methods design combined quantitative and qualitative descriptive approaches. Forty-nine bereaved AA family members of AA decedents with serious illness who died between 2 to 6 months prior to enrollment participated in a one-time telephone interview. Outcomes examined include end-of-life treatment decision, decision regret, and decisional conflict. Quantitative data were analyzed using descriptive statistics, independent-sample t-tests, Mann-Whitney U tests, chi-square tests, Spearman and Pearson correlations, and linear and logistic regressions. Qualitative data were analyzed using content analysis and qualitative descriptive methods. Family members' decisional conflict scores were negatively correlated with their quality of general communication (rs = -.503, p = .000) and end-of-life communication scores (rs = -.414, p = .003). There was a significant difference in decisional regret scores between family members of decedents who received CFC versus those who received LPT (p = .030). Family members' quality of general communication (p = .030) and end-of-life communication (p = .014) were significant predictors of family members' decisional conflict scores. Qualitative themes related to AA family members' experiences in end-of-life decision-making included understanding (e.g., feeling prepared or unprepared for death), relationships with healthcare providers (e.g., being shown care, distrust) and the quality of communication (e.g., being informed, openness, and inadequate information). Additional qualitative themes were related to perceptions of the decision to continue LPT (e.g., a lack of understanding, believe will benefit) or discontinue LPT (e.g., patient preferences, desire to prevent suffering). In conclusion, this study generated new knowledge of the factors that influenced AA bereaved family members' end-of-life decision-making for decedents with serious illnesses. Directions for future research were identified. African American Communication Decision-making End-of-Life Care Family Members Palliative Care Bereavement -- African Americans
285	Motivations and expectations of a locally specific group of volunteer home based carers serving people with HIV/AIDS in the Mariannhill region Mahilall, Ronita 31 January 2006 (has links) South African health systems are struggling to cope with the HIV/AIDS pandemic. Home based care has become an invaluable resource that relieves overburdened and under-resourced hospitals. Home based carers provide basic nursing care and support to patients and their families, in the patient's home. Little is know about what motivates home based carers. Minimal research has been undertaken to investigate the expectations and experiences of these noble voluntary helpers. This study was conducted with a sample of home based carers at Community Outreach Centre, St Mary's, Mariannhill. Being field focused it used a qualitative research approach and participatory action research methodology. Focus group discussions were conducted with home based carers to explore their needs, motivations and expectations of Community Outreach Centre. The study enlightens us about issues related to home based care that directly affect them. Despite the painful realities of their lives, they appeared positive about serving as volunteer home based carers. / Social work / M.A. Social Science (Social Work) 362.1969792009684
286	Motivations and expectations of a locally specific group of volunteer home based carers serving people with HIV/AIDS in the Mariannhill region Mahilall, Ronita 31 January 2006 (has links) South African health systems are struggling to cope with the HIV/AIDS pandemic. Home based care has become an invaluable resource that relieves overburdened and under-resourced hospitals. Home based carers provide basic nursing care and support to patients and their families, in the patient's home. Little is know about what motivates home based carers. Minimal research has been undertaken to investigate the expectations and experiences of these noble voluntary helpers. This study was conducted with a sample of home based carers at Community Outreach Centre, St Mary's, Mariannhill. Being field focused it used a qualitative research approach and participatory action research methodology. Focus group discussions were conducted with home based carers to explore their needs, motivations and expectations of Community Outreach Centre. The study enlightens us about issues related to home based care that directly affect them. Despite the painful realities of their lives, they appeared positive about serving as volunteer home based carers. / Social work / M.A. Social Science (Social Work) 362.1969792009684
287	Identification of factors affecting the survival lifetime of HIV+ terminal patients in Albert Luthuli municipality of South Africa / Identification of factors affecting the survival lifetime of HIV positive terminal patients in Albert Luthuli municipality of South Africa Bengura, Pepukai 19 December 2019 (has links) The objective of the study was to identify the factors that affect the survival lifetime of HIV+ terminal patients in rural district hospitals of Albert Luthuli municipality in the Mpumalanga province of South Africa. A cohort of HIV+ terminal patients was retrospectively followed from 2010 to 2017 until a patient died, was lost to follow-up or was still alive at the end of the observation period. Nonparametric survival analysis and semiparametric survival analysis methods were used to analyse the data. Through Cox proportional hazards regression modelling, it was found that ART adherence (poor, fair, good), Age, Follow-up mass, Baseline sodium, Baseline viral load, Follow CD4 count by Treatment (Regimen 1) interaction and Follow-up lymphocyte by TB history (yes, no) interaction had significant effects on survival lifetime of HIV+ terminal patients (p-values<0.1). Furthermore, through quantile regression modelling, it was found that short, medium and long survival times of HIV+ patients, respectively represented by the 0.1, 0.5 and 0.9 quantiles, were not necessarily significantly affected by the same factors. / Statistics / M. Sc. (Statistics) Survival time Follow-up time HIV/AIDS disease Antiretroviral therapy ART adherence CD4 cell count Cox proportional hazards regression Logistic regression Quantile regression Kaplan-Meier estimator Log-rank test 362.1969792050968278
288	Caring for the caregiver in HIV and AIDS programmes Primo, Marlene Wilma 31 March 2007 (has links) Many of the caring tasks previously done by health care professionals are these days handled by caregivers. Caregivers are selected, trained and to a certain extend supervised. Little attention is however given to the effects that care giving has on their physical and mental health and own needs for caring and support. This study is an exploratory, qualitative and quantitative investigation into the effects of care giving on the physical and mental health of caregivers in HIV and AIDS programmes to determine their needs for ongoing support. A literature study was supplemented by an empirical investigation. The literature study and empirical investigation proved that care giving has a tremendous impact on the lives of caregivers. Recommendations resulting from the study are the need for more education and skills for caregivers, support through counselling, debriefing and support groups, policies and guidelines that makes provision for caregivers to be registered and receive a fixed income. / Social Work / M. A. ((SS)(Mental Health)Social Work) Caring Care giving Caregiver Mental health Physical health Secondary traumatic stress Volunteer Volunteerism 362.196979200968224 Caregivers -- South Africa -- Nigel
289	Die Begleitung von Schwerkranken und Sterbenden unter Berücksichtigung des Copingmodells von Richard S. Lazarus und dessen Bedeutung für die Seelsorgearbeit = Pastoral counselling of seriously ill and dying humans with regard to the "coping model" by Richard S. Lazarus and its significance for spiritual guidance / Pastoral counselling of seriously ill and dying humans with regard to the "coping model" by Richard S. Lazarus and its significance for spiritual guidance Menn, Gerhard 07 December 2007 (has links) Text in German / Forschungsgegenstand dieser Arbeit ist das Bewältigungsverhalten von schwer kranken und sterbenden Menschen, die in einer Gesellschaft ihren bevorstehenden Tod bewältigen müssen, die ambivalent mit dieser Thematik umgeht. Die unterschiedlichen menschlichen Bewältigungsformen können mit den bisher gängigen Zugangswegen über Phasenmodelle nicht immer befriedigend erklärt werden. Hilfreich erscheint hier das aus der Stressforschung stammende Copingmodell von Richard S. Lazarus und seiner Forschungsgruppe, um Menschen verstehen zu lernen. In wieweit dieses Verstehensmodell aus einem säkularen Forschungszweig für die Seelsorgearbeit unterstützend sein kann, soll in dieser Arbeit geklärt werden. Als Grundlage dienen Seelsorgegespräche mit unterschiedlichen Menschen, die eine große Bandbreite an Bewältigungsverhalten demonstrierten. Die Herausforderung lag darin, Menschen in ihrem Sterben umfassend wahrzunehmen, um möglichst viele Impulse zu erkennen, die ihr Bewältigungsverhalten beeinflussten. Aus der Aufarbeitung dieses Verhaltens ergaben sich Perspektiven für die Begleitung sterbender Menschen. Dies hat gleichbedeutend Konsequenzen für den seelsorgerlichen Umgang mit Sterbenden. Das Wissen um das christlich-biblische Menschenbild und die umfassende Kenntnis der Copingforschung können sich durchaus gegenseitig befruchten, denn beide gehen auf die Individualität des Menschen ein und unterstützen ihn seinen eigenen Zugang zu seinem Leben und seinem Tod finden zu lassen. Dies führt letztlich zu einer intensiven Kommunikation zwischen Patient und Seelsorger, der den Mut und das Vertrauen haben darf, dem Sterbenden eigenständig sein Leben bewältigen zu lassen. Die Ansätze der Copingforschung bieten weitreichende Impulse für vielfältige seelsorgerliche Fragestellungen auch außerhalb der Sterbebegleitung. Object of research of this thesis is the specific behaviour of seriously ill and dying humans coping with their impending death and being members of a society having an ambivalent attitude towards death. People's different and individual ways of coping cannot always be sufficiently explained by the current use of phasing models. In this context the "Coping Model" by Richard S. Lazarus and his stress research group seems to be helpful in understanding dying humans. In how far this comprehension model from a secular branch of research can be supportive of pastoral counselling is the objective of this thesis. Counselling dialogues with different persons who show a wide range of coping form the basis of this research. The challenge of this paper was to observe and sense humans in their death experiences from a broader point of view in order to identify as much as possible kinds of impulses crucial to their coping behaviour. Analysing the behaviour of dying humans led to new perspectives on spiritual guidance. Tantamountly, this has its consequences for spiritual dealing with dying humans. The comprehension of the biblical Christian idea of man and a detailed knowledge of coping research can, by all means, be interactive and thus show positive results as both respond to a person's individuality and support them in their own ways of approach to life and death. Finally, this leads to an intensive dialogue between patient and pastor who can have the courage and the confidence in letting the person find his own way of coping. The different kinds of approach of the coping model research offer far-reaching impulses to various pastoral questions going even beyond terminal care. / Philosophy, Practical & Systematic Theology / D.Th. (Practical Theology) Abwehr Allgemeines Adaptionssyndrom Angst Auferstehung BeFo Begleiten Bewältigungsformen Distress Eustress Heilsdimension Kognitive Bewertung Kommunikation Krebskranke Elisabeth Kübler-Ross Richard S. Lazarus Menschenbild Schwerkranke Seelsorge Sterbebegleitung Sterben Sterbephasen Stress Tod Transaktionales Stresskonzept Wahrnehmung Defence/Repulsion General Adaption Syndrome Fear Resurrection Counselling Coping Models Coping Positive Stress Healing Dimension Cognitive Assessment Communication Cancer Patients Idea of Man Terminal Ill Terminal Care Dying Phases of Dying Death Transactional Stress Concept Perception 259.4175 Lazarus, Richard S. Kübler-Ross, Elisabeth Church work with the terminally ill Terminally ill -- Pastoral counseling of Terminally ill -- Mental health Death -- Psychological aspects
290	Caring for the caregiver in HIV and AIDS programmes Primo, Marlene Wilma 31 March 2007 (has links) Many of the caring tasks previously done by health care professionals are these days handled by caregivers. Caregivers are selected, trained and to a certain extend supervised. Little attention is however given to the effects that care giving has on their physical and mental health and own needs for caring and support. This study is an exploratory, qualitative and quantitative investigation into the effects of care giving on the physical and mental health of caregivers in HIV and AIDS programmes to determine their needs for ongoing support. A literature study was supplemented by an empirical investigation. The literature study and empirical investigation proved that care giving has a tremendous impact on the lives of caregivers. Recommendations resulting from the study are the need for more education and skills for caregivers, support through counselling, debriefing and support groups, policies and guidelines that makes provision for caregivers to be registered and receive a fixed income. / Social Work / M. A. ((SS)(Mental Health)Social Work) Caring Care giving Caregiver Mental health Physical health Secondary traumatic stress Volunteer Volunteerism 362.196979200968224 Caregivers -- South Africa -- Nigel

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