Thesis (Ph.D.)--University of Illinois at Urbana-Champaign, 2006. / Source: Dissertation Abstracts International, Volume: 67-07, Section: A, page: 2774. Adviser: Winifred Poster. Includes bibliographical references (leaves 186-194) Available on microfilm from Pro Quest Information and Learning.

This thesis is an attempt to bring to light the value and importance of gardening and varietal diversity maintenance in the indigenous Jê-speaking Ramkokamekra-Canela community of Maranhão, Brazil. Formerly a semi-nomadic community with small garden plots, the modern-day Canela have become subsistence horticulturalists with a dual garden plot system where species and varietal diversity thrive. Thus, the thesis seeks to understand this transformation through a focus on mythic, historical, and contemporary accounts of gardening activities and practices that appear to promote and maintain cultivated crop diversity. Through a comparison with other Jê-speaking communities in northeast and central Brazil, the thesis posits that Canela gardening and varietal diversity maintenance incorporate the transformation and continuity that are common aspects of Jê 'life-worlds.' Additionally, through an exploration of everyday gardening practices and individual and communal rituals in and around garden spaces, the thesis suggests that Canela gardening can best be conceptualized as a series of multi-sensory, embodied engagements between human gardener 'parents' and their growing plant 'children.' In order to explore these engagements fully, the thesis draws on phenomenological (in particular that promoted by British anthropologist Tim Ingold) and other approaches that seek to question the boundaries between the biological, cultural, and social dimensions of life. It is argued that in the emergent Canela 'bio-sociocultural life-world,' certain relational pathways between and among human gardeners and cultivated plants become valued and meaningful through an 'aesthetics of landscape' that incorporates multiple sensory modalities. Thus, the 'bio-sociocultural aesthetics' theoretical approach is put forward as a comprehensive way of understanding the Canela life-world and the myriad human-nonhuman engagements that unfold through and within it.

With the advent of the telephonic and technological healthcare revolution, pharmaceutical corporations seek to improve patient compliance and quality of life by contracting with services providers. As an employee of one such provider, working for more than three years on a medication for the neurologically degenerative disease, multiple sclerosis, this investigation utilizes a mixed methodological approach. In order to improve and diversify the clinical services provided to patients, I was contracted as a consultant. I interviewed phone and PRN nurses, developed and released a PRN survey, and interviewed patients living in the Dallas/Fort Worth, Texas area. The combined experiences and expertise of the three groups who participated would serve to inform and develop new programs and services for patients with differing disease states. The research resulted in a re-imagining of the social networking theory of health, as well as the works of Pierre Bourdieu and Michel Foucault, to serve the evolving tele-health and technologically based healthcare workplace.

Despite advancements in research on sexual morphology as well as increasing interdisciplinary theory on gender, medicine continues to perpetuate anti-transgender stigma in health care. Research on this topic has typically lacked perspectives from health professionals, who operate in and contribute to the environments in which patients seek care. In collaboration with Dallas non-profit Trans Pride Initiative, this study seeks to begin filling this research gap, relying on a sexual stigma framework created by Gregory Herek and applying it to anti-transgender (or gender) stigma to examine its manifestations in health care environments through narrative inquiry. The data from narrative interviews with health care professionals revealed themes of inadequate schooling on transgender competency models and health needs, difficulties in resisting gatekeeper practices while addressing mental health needs, a patient-as-expert approach amongst trans-affirming providers, and understanding of patient family dynamics as a catalyst for understanding stigma. Exploration of sexual identity prior to claiming gender identity, lacking language to explain gender experiences until encountering other LGBTQ+ (lesbian, gay, bisexual, transgender, queer) people, and religious trauma as restrictive to gender exploration during childhood emerged as themes amongst transgender and gender diverse participant interviews. The practical implications of these themes present issues for institutional, social, and legal change due to the pervasiveness of sexual dimorphism (and subsequent gender binary) as a means of structuring medicine, social organization, and legal systems, respectively. Still, critical gender engagement with health professionals pre- and post- licensure has the potential for profound impacts beyond addressing anti-trans stigma in health care.

This thesis explores the lived experiences of individuals living with HIV in Tarrant County through an ethnographic research design. This study highlights four emergent themes: the beginning of one's healthcare journey, stigma within a medical care setting, the lasting provider-patient relationships that can form, and shifting relationship dynamics. Participants' experiences reveal their challenges, from discomfort in a healthcare setting to disclosing their status to their support system. Insights from these individuals informed feasible strategies to combat HIV-related stigma.

Si le nombre de nouveaux cas de tuberculose au Québec a considérablement baissé au cours des dernières décennies, l’épidémiologie mondiale rappelle toutefois que cette maladie est responsable de plus de deux millions de morts par an. Au Canada, certains groupes seraient plus vulnérables, notamment les immigrants provenant de pays où la tuberculose est endémique. La Clinique de tuberculose du Centre hospitalier universitaire Sainte-Justine est un outil de lutte active contre cette maladie, entre autres grâce à son programme de dépistage scolaire auprès des enfants immigrants. Ce dépistage vise à identifier les porteurs de la tuberculose latente, c’est-à-dire la forme non contagieuse de la maladie. Un traitement préventif de neuf mois est offert aux enfants qui présentent un résultat positif afin de prévenir le développement de la tuberculose maladie (forme active). Dans 28 % des cas, ce traitement n’est pas adéquatement complété et dans 11 % des cas, il est refusé. La présente étude porte à la fois sur la question de l’observance thérapeutique et sur les conditions de vie post-migratoires. L’observation de consultations à la Clinique de tuberculose et les entrevues auprès des soignants et des familles ont engendré une réflexion sur la prévention de la tuberculose en contexte migratoire de même que sur le caractère multifactoriel de la non-observance thérapeutique. L’analyse des données fait ressortir l’impact du vécu migratoire et des conditions de vie (le logement, l’emploi, la maîtrise de la langue, etc.) sur la prise irrégulière du médicament, permettant une meilleure compréhension de ce comportement (chapitre 4). Il a également été possible de documenter une distinction entre les conduites (l’observance) et les attitudes (l’adhésion) nuançant la compréhension des diverses trajectoires thérapeutiques à l’aide de rationalités plurielles et diversifiées (chapitres 5 et 6). Il s’en dégage une réflexion sur le caractère normatif de la catégorisation de « groupe » et de « comportement » à risque laissant place aux différents univers référentiels et, plus globalement, aux conditions de vie des familles (chapitre 7). / While the number of new tuberculosis cases in Quebec has dropped considerably in recent decades, global epidemiology nonetheless shows that this disease is responsible for more than two million deaths every year. In Canada, some groups are more vulnerable than others; for example, immigrants from countries where tuberculosis is endemic. The Clinique de tuberculose du Centre hospitalier universitaire Sainte-Justine constitutes an active tool in the fight against this disease, notably through its school screening program for immigrant children. This screening identifies carriers of latent tuberculosis, i.e. non-contagious form of the disease. A nine-month preventive course of treatment is provided to children with a positive result so as to forestall the development of tuberculosis disease (active form). In 28 % of cases, this treatment is not completed properly and in 11 % of cases, it is declined. This study focuses on both the issue of medical compliance and post-migration life conditions. Observations of consultations at the Tuberculosis Clinic and interviews with caregivers and families have led to a reflection on the prevention of tuberculosis in the context of migration, as well as the multifactorial nature of non-compliance. Data analysis reveals the impact of migration and living conditions (e.g. housing, employment and language proficiency, etc.) on the irregular intake of medication, allowing for a better understanding of this behaviour (Chapter 4). It was also possible to document a distinction between behaviour (compliance) and attitudes (adherence), nuancing the understanding of various therapeutic trajectories using multiple and diverse rationalities (Chapters 5 and 6). All this allows for reflection on the normative nature of categories such as "risk groups" and "risk behaviour", while leaving room for different referential universes and the impact of the overall living conditions of families (Chapter 7).

Le diagnostic de prédisposition génétique du cancer du sein et de l’ovaire est détenu par la firme de biotechnologie Myriad Genetics depuis 1996, sous la forme d’un brevet, qui lui octroie une licence d’exploitation internationale, infirmant le droit d’analyse moléculaire aux autres laboratoires. Ce monopole, lui permet de statuer sur un prix excessivement plus élevé qu’en milieu public et d’astreindre en justice, les laboratoires contrevenants. Depuis 2001, le Québec est la seule province qui se soumet (en partie) au brevet, en faisant appel à la compagnie pour le séquençage complet. À travers cette recherche, j’analyse les politiques de brevetage génétique, dans sa construction juridique de la propriété intellectuelle et dans les significations culturelles des biotechnologies. Je m’appuie sur un cadre analytique des théories de propriété et sur la recherche en biomédical. Je procède également à l’analyse du discours des médecins et conseillers généticiens au Québec, à travers des entrevues conduites dans des centres hospitaliers de la région de Montréal et de Sherbrooke. Cette étude qualitative identifie comment les conseillers et médecins généticiens conçoivent le rôle des brevets dans les dépistages et diagnostics du cancer et comment les brevets génétiques expriment une culture médicale. Je cherche à déterminer comment sont perçus par des professionnels de santé les brevets génétiques en analysant et en comparant les variations entre limites idéologiques et limites pratiques. / The biotechnology company Myriad Genetics owns the diagnosis of genetic predisposition of breast and ovarian cancer since 1996. The patent, which grants an international license, reverses the right of molecular analysis by other laboratories. This monopoly allows the company to apply an excessively higher price than public laboratories and pursue the offenders in justice. However, since 2001, Quebec is the only province to respect (in part) the patent, using the company for the complete sequencing. This research analyzes the gene patent politics in its legal structure of intellectual property and the cultural meanings of biotechnology. I rely on an analytical framework of theories of property and biomedical research. I also proceeded to the discourse analysis of physicians and genetic counsellors in Quebec through interviews conducted in hospitals in the region of Montreal and Sherbrooke. This qualitative study identifies how doctors and genetic counsellors analysis the role of patents in the screening and diagnosis of cancer and how genetic patents express a medical culture. The study aims to explore how gene patents are perceived in analyzing and comparing the variations between ideological limits and practical limits.

Ce mémoire s’inscrit dans un contexte où les inégalités sociales ne cessent d’augmenter. Dans les sociétés occidentales, le fossé entre les riches et les pauvres se creuse de plus en plus et celui-ci influence les inégalités de santé. À Montréal, il existe un écart d’espérance de vie de plus de dix ans entre les résidents des quartiers les plus riches et ceux des plus pauvres. Ce mémoire se penche sur ce phénomène en s’attardant aux liens entre les inégalités de santé et le sentiment d’appartenance des résidentes d’Hochelaga-Maisonneuve. À travers l’analyse d’un corpus de données recueillies par une recension des écrits, par des entretiens semi-dirigés ainsi que par des séances d’observations participantes, des pistes de réflexion à ce sujet s’en dégagent. Après avoir exposé une recension des écrits brossant les principaux concepts utilisés dans ce mémoire, ainsi qu’un cadre méthodologique décrivant la cueillette de données et le contexte de l’étude, la perception qu’ont les répondantes de leur santé, ainsi que les facteurs y contribuant sont adressés. Les inégalités de santé étant comprises au-delà de leur aspect individuel, ce projet met de l’avant l’importance des environnements physique et social ainsi que des dynamiques d’inclusion et d’exclusion sur la création de celles-ci. / This thesis was conducted amidst a context of growing social inequalities. In our western societies the gap between rich and poor is widening which influence health inequalities. In Montreal, there is a ten year gap in life expectancy between rich and poor. This thesis is linking health inequalities with a sense of belonging of women living in Hochelaga-Maisonneuve, an area of Montreal. Through datas, gathered by litterature review, interviews and participant observation, we opened up areas to think about our theme. First of all, we write a literature review which describes the basic concepts as health, sense of belongings and social inclusion or exclusion, of this project. The methodology is explained through data collection and the context of the study. After, health is studied through women’s perception and factors which are contributing to it. The fourth chapter is studying the impact of physical and social environment on health. Finally, social exclusions are linked with health inequalities. Consequently, this project is not only understanding health inequalities by their individual aspects.

Ce mémoire interroge les possibilités présentes et futures d’actions concertées pour remettre en question les structures sociales d’exclusion qui affectent des groupes désignés à risque, entre autres en les rendant plus vulnérables à l’infection au VIH. En Inde, l’attention grandissante portée aux travailleuse(r)s du sexe (TS) par la santé publique dans les interventions contre le VIH contribue à façonner l’identité des groupes ciblés en les associant à l’épidémie du VIH et à sa prévention. L’acceptation et la réorganisation de cette catégorie servent de base d’organisation d’efforts collectifs pour un groupe de TS de Mysore, dans l’état du Karnataka. Les membres de ce collectif, nommé Ashodaya, déploient des actions concertées pour remettre en question les limites de catégories qui leur sont assignées (avec des tentatives pour désamorcer certaines dynamiques d’exclusion sociale -en limitant la stigmatisation), et s’imposer comme un groupe de citoyennes à part entière en s’incluant dans des sphères civiles comme citoyens, comme représentants d’une occupation et non comme individus marginalisés ou « représentants » d’une maladie. L’inclusion d’Ashodaya dans les efforts de prévention du VIH offre un accès à des ressources humaines et matérielles qui lui seraient autrement inaccessibles, mais limitent les possibilités d’actions du groupe en restreignant sa participation à la prévention. Le contexte particulier de l’engagement et du programme d’Avahan, branche indienne de la Bill and Melinda Gates souligne la fragilité des acquis de groupes comme Ashodaya. / This thesis questions the present and future possibilities for concerted actions to challenge social exclusion structures affecting social groups designated as being at risk, in part by making them more vulnerable to HIV infection. In India, the increasing attention given to sex workers (SW) by public health instances in HIV prevention contributes in shaping the identities of the targeted groups as associated to the epidemic and its prevention. The acceptance and reorganization of this label of SW act as basis for the organization of collective efforts for a SW organization in Mysore, in the state Karnataka. The members of this collective, named Ashodaya, use concerted actions to question the limits of these assigned labels (with attempts to defuse certain dynamics of social exclusion associated with stigmatization), and impose itself as a group of full-fledge citizens by including themselves in civil life as citizens representing an occupation, and not as marginalized individuals or “representative” of a disease. The inclusion of Ashodaya in the HIV prevention efforts offers an access to human and material resources that would not be otherwise available. However, it also limits its action possibilities in restricting its participation to prevention. The particular context of the engagement and the program of Avahan, Indian chapter of the Bill and Melinda Gates foundation, highlight the fragility of the work of groups like Ashodaya.

Ce mémoire explore le parcours de guérison de pratiquants du Yoga Sivananda dans un contexte de réenchantement du monde. Les répondants ont été recrutés à l'ashram Sivananda de Val-Morin (Québec) qui a été défini comme un territoire transnational et cosmopolite favorisant l'hybridité religieuse et l'accès à des ressources symboliques et thérapeutiques multiples. À travers une approche phénoménologique qui privilégie la subjectivité de l'individu, nous proposons d'identifier les facteurs-clés de guérison propres à chacun des répondants et d'observer comment ils composent avec les univers de sens et les diverses représentations du corps, de la maladie et de la guérison qui circulent dans la société. Nous définirons la place qu'occupe la ressource spirituelle à l'intérieur de ce parcours et comment la ressource biomédicale s'ancre à l'intérieur de la ressource spirituelle. Nous verrons comment les personnes bricolent leur propre système de représentations et s'arrangent pour donner un sens à la maladie et la réinscrire dans une dimension holiste, tout en profitant pour la plupart de la technologie du système biomédical, ceci pour multiplier les chances de guérison. Il a été présumé que le déclenchement des mécanismes de guérison dépend de la subjectivité de la personne et que celle-ci contient – au moins en partie – les clés de sa guérison. Ces clés sont propres à chacun et la recherche démontre que chaque parcours est unique. Aussi, en faisant référence à cette subjectivité, la question principale de ce mémoire est-elle de savoir à quoi les répondant attribuent leur guérison. / This dissertation explores the healing journey of Sivananda yoga practioners in the context of the re-enchantment of the world. All respondents have been recruited at Sivananda Ashram in Val-Morin (Quebec) which has been defined as a transnational cosmopolitan territory that stimulates religious hybridity and promotes access to multiple symbolic and therapeutic resources. Through a phenomenological approach that emphasises the subjectivity of the individual, we propose to identify the key factors of healing proper to each interviewee are identified and to observe how they deal with worlds of meanings and various representations of the body, illness and healing circulating throughout society. We will define the position of the spiritual resource within this journey and observe how the biomedical resource is embedded in this spiritual resource. We are interested in how individuals are building up their own system of representations and manage to find a meaning to their illness and enlarge the scope of it beyond a holistic dimension while taking at the same time advantage of the biomedical technology in order to multiply their chances of healing. In my approach, I assume that the triggering of self-healing mechanisms depends upon the subjectivity of the individuals and that this subjectivity contains the keys of their healing. These keys are proper to each person and the research shows that each journey is unique. So, regarding this subjectivity, the main question of this thesis is to what participants attribute their healing.