La porte d’entrée méthodologique de cette recherche repose sur l’observation participante d’une patiente atteinte de «douleur chronique» adressée pour accompagnement thérapeutique par le Qi Gong. L’énoncé fréquent de situations de conflit avec la famille, avec l’employeur ou avec les médecins, m’a amenée à y considérer la similitude entre les symptômes énoncés, les usages du corps et les attitudes mentales en lien avec une représentation mécaniste et duelle du corps. Marcel Mauss a été le premier à désigner ce rapport entre les usages du corps et les paradigmes sociétaux et culturels, à l’œuvre. Dans une ère fortement marquée par la robotisation des entreprises et des services, la dématérialisation des documents et la tyrannie des nouvelles technologies, la «douleur chronique» vient donc questionner les usages du corps contemporain dans un monde du travail axé sur la performance et la productivité. Cette recherche a pour but d’interroger en quoi la «douleur chronique» serait un symptôme des apories contemporaines, dépassant ainsi largement le champ de la médecine et en quoi elle serait comme l’arme du faible, the weapon of the weak, en contexte d’oppression (Scott, 1985). Ultimement, elle questionne l’affirmation de Michel Foucault selon laquelle «nous avons tous du pouvoir dans le corps» (1987: 27). Le recueil de récits de vie auprès de professionnels de la danse, pressentis pour leur habileté à décrire leur ressenti, y déjoue une tendance à reléguer dans le domaine de la psyché ce qui ne fait pas la preuve de son évidence. La forte crédibilité de leur parole permet en outre de mieux documenter un phénomène complexe, entâché de beaucoup d’à priori et de révéler les dynamiques de pouvoir à l’œuvre au sein d’une profession confrontée aux limites corporelles, plus que tout autre, dans l’exercice de son art. Une approche généalogique de ces histoires de douleur et leur mise côte à côte permet d’identifier les «plis» que sont l’endurance et le rejet de toute médication face à la douleur et comment ils infléchissent son évolution. Une analyse plus approfondie des six d’entre elles qui s’en sont sorties y démontre que si le pouvoir s’exerce sur un corps perçu comme docile, il peut aussi s’inverser pour contribuer à la guérison, au prix d’une insurrection de savoirs enfouis, universels, mais «assujettis», et d’un changement de paradigme. Ainsi, une meilleure compréhension de la «douleur chronique» laisse entrevoir une possible réversibilité du phénomène et une réinsertion sociale, avec ou sans réorientation de carrière, à condition de repenser nos modes de représentation, de production, de relation au travail et aux usages du corps, le rapport à l’Autre et à soi. / The methodological starting point of this research was participant observation of a patient with «chronic pain» who was being seen for therapy through qigong. The patient’s frequent statements regarding situations of conflict with the family, the employer or doctors led me to consider the similarity between the symptoms described, the uses of the body and mental attitudes related to a mechanistic, dualistic representation of the body. Marcel Mauss was the first to address this relationship between the uses of the body and societal and cultural paradigms. At a time deeply marked by the automation of businesses and services, the dematerialization of documents and the tyranny of new technologies, «chronic pain» calls into question the uses of the contemporary body in a working world based on performance and productivity. The aim of this research is to examine how «chronic pain» may be a symptom of contemporary aporias that go far beyond the sphere of medicine and how it may be «the weapon of the weak» in a context of oppression (Scott, 1985). Ultimately, this research examines Michel Foucault’s statement that «we all have power in our bodies» (1987: 27). The collected life narratives of professional dancers, who were approached because of their ability to describe their feelings, avoid the tendency to relegate to the realm of the psyche whatever cannot be demonstrably proven. The strong credibility of the acccounts makes it possible to better document a complex phenomenon marred by a great many a priori and reveal the dynamics of power at work in a profession that, more than any other, confronts the limits of the body in the exercise of its art. A genealogical approach to these stories of pain and their examination side-by-side allowed me to identify the habits of endurance and rejection of medication and how they influenced the evolution of the pain. A more detailed analysis of the six healed one’s narratives shows that while power is exercised on a body perceived as docile, it may also be reversed to support a recovery at the cost of an insurrection of buried knowledge that is universal but «subjugated» and a change of paradigm. Thus, a better understanding of «chronic pain» makes it possible to envisage its reversibility and a social reintegration, with or without a career change, on the condition that we rethink our modes of representation, production and relation to work and to the uses of the body, and our relationship to the Other and the self.

Si l’alternative est de nos jours et dans nos sociétés occidentales un concept de plus en plus en vogue, son caractère lui, en demeure pas moins ambigu. En effet, et alors même que nombre de pratiques dites alternatives émergent de part et d’autre de la société, en faire allusion dans certains domaines équivaut à s’affliger soi-même d’une étiquette sur laquelle serait inscrite « New-Age » en caractère gras. Pourtant, son caractère loin d’évoquer cette seule dimension, semble par ailleurs être conséquente d un déséquilibre de plus en plus prégnant au sein même des prérogatives de l’État. Ce mémoire tente donc de rendre compte de ce phénomène tout en investiguant les répercussions de cette asymétrie sur l’intégration de pratiques médicales alternatives au Québec. Ceci dans l’intention non seulement d’explorer davantage la nature de la relation entre médecine alternative et biomédecine, mais aussi afin de poser un nouveau regard sur son expansion. Un regard, lequel permettrait potentiellement de poser les jalons nécessaires à un espace de conciliation entre les médecines, lequel découlerait alors d’un nouvel équilibre au cœur des prérogatives mêmes de l’État. / If the alternative is to our days and in our western societies a concept more and more in vogue, its character remains ambiguous. In effect, and even that number of practices called “alternatives” emerge on both sides of the society, in referring to in some areas is equivalent to plague itself-even a label on which would be marked “New-Age” in bold. Yet, its character far from referring to this single dimension, seems also be consistent to a more and more significant unbalance within the prerogatives of the State. This dissertation therefore attempts to account for this phenomenon while inquiry into the repercussions of this asymmetry on the integration of alternative medical practices in Quebec. This with the intention not only to further explore the nature of the relationship between alternative medicine and biomedicine, but also in order to install a new look on its expansion. A look, which would potentially lay the groundwork necessary to a space of conciliation between the medicines and which would lead to a new balance in the heart of the prerogatives of the State.

Cette thèse porte sur la question des origines biogénétiques au Brésil et au Québec. Elle vise à mettre en lumière les raisons, conséquences et contraintes de la recherche des origines entreprise par les personnes conçues grâce à un don de gamètes ou adoptées. La question des origines est ici analysée à partir de trois points de vue: la parenté, le droit et la science. Le cadre proposé combine les trois approches suivantes : 1) le recours à la parenté permet dřanalyser, de par son caractère hybride, social et biologique, les tensions entre nature et culture; 2) le droit balise les comportements permis et transforme les notions associées à ce qui est correct et juste en des principes d'action; 3) la science construit, sous lřangle de la vérité, la manière dont les liens entre génétique, transmission et hérédité sous-tendent les comportements sociaux. Les représentations de lřorigine mises de lřavant dans ces trois domaines influencent la décision personnelle dřentreprendre ou non la quête de ses origines et celle, éventuelle, d'introduire un « étranger » dans la famille. Ces différents angles permettront de saisir le rôle de chacun des personnages impliqués et de décrire les conditions associées à la quête identitaire et à la filiation. La construction de la thèse sřappuie sur l'histoire des pratiques d'adoption et de procréation médicalement assistée (PMA), au Brésil et au Québec et sur les études qui sřy rapportent. La comparaison entre ces deux pays ne se limite pas à identifier leurs seules différences en termes socio- économiques ; elle prend aussi en compte leur spécificité culturelle et juridique à travers le concept dř « épistémologies civiques ». La parenté, le droit et la science fournissent le contexte permettant de comprendre les raisons mises en jeu dans la recherche des origines. De fait, la valorisation des liens de parenté sociale dialogue, entre autres, avec la curiosité pour les données génétiques. De plus, la loi sřinscrit comme une médiation entre parenté et science. Lřétude des ressemblances et différences dans la pratique de l'adoption et de la PMA au Brésil et au Québec permet de suivre les étapes de la quête des adoptés et issus d'un don de gamètes, de la découverte des conditions de leur filiation jusqu'aux « retrouvailles ». La thèse aborde également le débat entre les versants personnel et collectif de lřidentité à travers l'analyse des pratiques et des discours des associations de personnes adoptées, des couples infertiles et des familles homoparentales, autour de la thématique des origines. Le but de cette thèse est de souligner l'importance de mettre en perspective ces échanges entre la parenté, le droit et la science pour comprendre les réalités complexes que nous vivons aujourd'hui. iii L'origine et sa quête sont les véhicules utilisés ici pour mettre en évidence des formes familiales plurielles qui permettent d'analyser la manière dont nous négocions de nouvelles formes de filiation et de construction des familles. / The subject of this thesis is the biogenetic origins in Brazil and Quebec. It aims to highlight the reasons, consequences and constraints of the search for origins undertaken by persons conceived by gamete donation and adopted persons. The question of origins is here analyzed from three perspectives: kinship, law and science. The proposed framework combines the following approaches: 1) kinship, through its hybrid nature, can analyze social and biological tensions between nature and culture, 2) law, associated with notions of what is right and just are taken as principles of action, 3) science, constructed in terms of truth and how links between genetics and transmission may underlying social behaviours. Different representations of origins are put forward in this thesis where certain areas can influence the personal decision whether to undertake the search for its origins and possible decision to introduce a "foreigner" in the family. These prospects will help us to understand the role of each of the characters involved and describe the conditions associated with the search for biological identity and parenthood. The construction of the thesis is based on the literature and the history of adoption and assisted reproduction (AR) in Brazil and Quebec. The comparison between these two countries cannot be confined to identify their differences in socio-economic terms, it has to take into account the cultural and legal particularities in both countries only through the concept "civic epistemologies". Kinship, law and science provide the context for understanding the reasons brought into play in the search for origins. In a sense, the valorization of social aspects of kinship dialogue, among other things, with the curiosity for genetic information, likewise the law comes as a mediation between kinship and science. The study of similarities and differences in the practice of adoption and AR in Brazil and Quebec allows, in this thesis devoted to the question of the origin of adopted children and donor offspring, to follow the steps going through the discover of the conditions of their affiliation, their search for the biological origins and the eventual "reunion". The thesis also examines the debate between the slopes of personal and collective identity through the analysis of the discourses and practices of associations of people adopted, infertile couples and LGBT families around the theme of origins. The purpose of this thesis is to highlight the importance to dialogue kinship

La souffrance psychologique des adolescents fait l'objet d'une attention croissante des pouvoirs publics, des mondes associatifs, et bien sûr des cliniciens et des travailleurs psychosociaux. Pour les adolescents migrants, cette souffrance, aggravée par la fragilité, les malaises et les tensions de l'adolescence, est compliquée par l'appareil de santé publique bureaucratique complexe destiné à traduire dans le langage des soins le malaise des attitudes, des comportements et des tendances qui se dégagent de leur statut de migrant tantôt mal vécu, tantôt réprouvé par leur environnement et leur parcours personnel et familial. Ce mémoire de maîtrise a exploré l'un d'entre eux, celui de la clinique de psychiatrie transculturelle, où l'écoute de ce qui se dit importe tout autant que la traduction et la gestion de ces souffrances. En utilisant une approche anthropologique, j'analyse les discours et les attitudes de dix thérapeutes et les travailleurs sociaux qui interviennent auprès de ces familles. Cette recherche montre que le cadre de gestion sociale et culturelle qui inclut les soignants et les familles, et les ambivalences de jeunes adolescents, ne peut être analysé sans référencer le contexte plus large des différences de classes, d'accès au pouvoir, d'orientations et de bagages culturels affectant à la fois le vécu des adolescents et la manière avec laquelle leurs angoisses seront communiquées et traduites. Dans cette perspective particulière, les paradoxes et les résistances de certains professionnels médicaux et sociaux, dont les positions qu'ils occupent au sein des structures du pouvoir, autrement, pourraient les tenter de s'engager dans des diagnostics faciles liés à la socialisation prétendument difficile de ces adolescences. Au lieu de cela, ils créent des stratégies uniques qui respectent les idiomes officiels encadrant leur autorité médicale et sociale. / The psychological suffering of teenagers has drawn increasing attention of the public authorities, associations, and of course clinicians and psychosocial workers. For migrant teens, this suffering, exacerbated by the fragility, discomforts and tensions of adolescence, is complicated by the complex bureaucratic public health apparatus designed to translate into the language of health care the malaise of attitudes, behaviours, and tendencies that emerge from their migrant status and history. This thesis explores one of these, the transcultural psychiatry clinic, where listening to what is said is as important as translating and managing these complaints. Using an anthropological approach, I analyze the speech and attitudes of ten therapists and social workers who work with families and teenagers. This research shows that the framework of social and cultural management that includes caregivers and families, and the ambivalencies of young teens, cannot be analyzed without referencing the broader context of class differences, power, and the past condition that influence both teen suffering and how their anguish is communicated and translated. In this particular perspective, the paradoxes and resistances of some medical and social professionals, whose position in the power structure could otherwise tempt them to engage in facile diagnoses linked to allegedly improper socialisation of these migrant teens. Instead, they create unique strategies that respect the official idioms that frame their medical and social authority.

Les origines du peuplement de l’île de Madagascar ne sont encore que partiellement explorées à l’heure actuelle. Différentes populations ont contribué au peuplement de l’île, de nombreuses théories sur les origines de ce peuplement ont émergé et varient grandement selon les sources consultées. Selon l’archéologie et l’anthropologie culturelle, l’arrivée des premiers peuples remonterait à deux millénaires avant notre ère et plusieurs strates de vagues migratoires venues d’Afrique et d’Asie se sont succédées. Pour une vision complète du peuplement de toute l’île, ce sont les études en linguistique et en génétique qui ont donné les meilleures pistes en s’orientant vers une origine à prédominance indonésienne plutôt qu’africaine. Il reste cependant à confronter ces données diverses à celles issues de l’approche phénotypique, qui est peu utilisée. Mon objectif est donc d’explorer cette hypothèse à partir des données craniométriques, et ainsi de tester les modèles de peuplement proposés grâce à d’autres approches. Cet échantillon malgache (N=207) a été subdivisé sur la base de diverses données (géographie, ethnies et affiliations linguistiques). Après des analyses intra-groupe et intergroupes, ce dernier a été comparé à d’autres données craniométriques personnelles et publiées (N=1184). Deux types d’approches statistiques (multivariées classiques et issues de l’approche de la génétique des populations ou RMET) ont été utilisées afin d’obtenir des paramètres diversifiés et complémentaires. Les résultats issus des deux approches tendent vers une origine mixte (Afrique et Asie), dont la prépondérance varie en fonction de la région et du sexe. En effet, les hommes malgaches ont une origine triple (sud de l’Asie du Sud-est, sud de l’Afrique et côtes sud-est africaines), alors que les femmes ont plutôt une origine double (Afrique et Asie) selon l’approche multivariée classique. D’après les analyses RMET, on note que les individus des régions du nord et de l’est de l’île se rapprochent des populations de Tanzanie et les Malgaches présentent des similarités avec les populations indiennes. De plus, on remarque que les Malgaches du groupe nord présentent par rapport aux autres groupes un degré d’hétérogénéité plus élevé (Fst). Ce phénomène est dû probablement à des apports de populations plus diverses dès le début du peuplement de l’île dans cette région. Cette étude, basée sur un petit échantillon, confirme néanmoins les thèses antérieures sur la diversité du peuplement malgache et de plus elle démontre que les composantes prédominantes (Afrique ou Asie) varient selon les régions et le sexe. / As of now, origins of the island of Madagascar’s settlement have only been partially investigated. Various populations inhabited the island, thus numerous theories about these origins were devised and explanations vary greatly from source to source. According to archaeology and cultural anthropology, its first settlers came around two millennia before Christ and many waves of migration from Africa and Asia followed in their path. Studies in linguistics and genetics best laid the way for a comprehensive overview of that settlement and pointed to a predominantly Indonesian origin as opposed to an African one. However, comparing these many findings with those obtained through the rarely used phenotypic approach has yet to be done. My goal is therefore to explore this question using craniometric data to test settlement patterns proposed by other fields. Our Malagasy sample (N=207) was subdivided according to various factors (geography, ethnicities and linguistic affiliations). After intragroup and intergroup-based analyses, the sample was compared to more craniometric data, personal and published (N=1184). Two types of statistical approaches (classic multivariate and originating from genetics populations approach, or RMET) were used to achieve diversified and complementary parameters. Results from both approaches support the conclusion that the origins are in fact mixed (Africa and Asia) and their preponderance, linked to region and gender. Indeed, Malagasy men have three sources (south of Southeast Asia, southern Africa and southeast African coast), while women have more of a double origin (Africa and Asia) according to the classic multivariate approach. RMET analyses show that individuals from the northern and the eastern regions of the island share traits with Tanzanian populations as well as similarities with Indian populations. Furthermore, Malagasy from the northern group exhibit higher heterogeneity than other groups (Fst). This phenomenon is likely due to the influx of various populations early in the settlement of the island. This study, based on a small sample, nevertheless confirms previous theses on the diversity of the Malagasy settlement and, in addition, shows that its predominant parts (Africa and Asia) vary according to region and gender.

The Republic of Nauru, a small Pacific island nation, has one of the highest obesity rates in the world. Obesity emerged rapidly in Nauru during the 1970s, a period characterised by political independence and unprecedented economic growth resulting from lucrative phosphate mining. In the mid-1970s, the Nauruan population was one of the first in the world in which obesity, diabetes mellitus and cardiovascular disease – co-morbidities associated with obesity – were identified as significant public health concerns. Such ‘lifestyle diseases’ continue to have debilitating effects on the Nauruan community. Obesity is generally understood to result from an energy imbalance; that is, people eat and drink more calories over time than they expend. This biomedical paradigm is implicit in the majority of research relating to obesity, such that the lifestyle to which obesity is attributed is limited to diet and activity. Yet in practice, lifestyle is much more than this. The lifestyle of a particular group is related to political, legal, religious, economic and value systems, modes of education, communication, transport and healthcare, and styles of art, music and entertainment. In this thesis I draw on ethnographic participant observation carried out in the Republic of Nauru during 2010-11, life history interviews, and diverse historical materials to answer three questions. First, what characterises the Nauruan lifestyle? Second, in what ways did the Nauruan lifestyle change over the second half of the twentieth century, the time period during which obesity and diabetes rapidly escalated? Finally, how might these changes be linked to the emergence and persistence of ‘lifestyle diseases’ in Nauru? I focus on one characteristic that stood out prominently in many different aspects of Nauruan life: ‘island time’, or the suggestion that there is ‘No Action Unless Really Urgent’. In theorisation of obesity, such living for the moment has been interpreted as laziness, pleasure-seeking or lack of self-control. However, a deeper analysis reveals that island time emerged gradually in the latter half of the twentieth century as Nauruans incorporated market-derived moral values into their everyday lives. This has led to profound changes in the way people feel when engaged in social exchanges, and is linked to temporally-shorter and more spatially dispersed social networks. I thus recast living for the moment as representative of a social trend rather than individual self-interest, and obesity as a phenomenon associated with the space between bodies rather than within each one. This leads me to consider more closely the links between social relationships and health. In Nauru, as in many societies, it is difficult to disentangle the biological and the social; the same feeling of unhealthiness, for example, is associated with being clinically ill and having a fight with a loved one. Yet many activities that are associated with tightening social networks, and which are prominent in the lifestyle characterised by island time – eating, drinking, or sitting and gossiping, for example – are also associated with obesity emergence. As a result, being biomedically healthy and feeling healthy are now somewhat incompatible in Nauru. In concluding, I argue that the adoption of economic rhetoric into everyday life has re-shaped moral values, everyday social relationships, and the demographic health profile on Nauru.

O progresso no diagnóstico precoce do câncer e terapias, bem como longevidade e o crescimento populacional, remete no aumento do número de indivíduos sobreviventes do câncer em todos os países, e com ele surge uma nova nomenclatura, a da sobrevivência ao câncer (SC). Este estudo teve como objetivo geral, analisar o conceito da SC na literatura de saúde e entre adoecidos adultos e/ou idosos diagnosticados com a doença. Para alcançar este propósito elaboramos mais quatro objetivos específicos que nos fez organizar a tese em três grandes etapas. A primeira etapa tem como objetivo analisar o conceito da SC apresentado na literatura de saúde, segundo o modelo evolucionário de análise conceitual de Rodgers. Este modelo está disposto em seis etapas, preconizando a análise dos estudos levantados pela análise temática indutiva e interpretados segundo o referencial teórico do conceito de cultura. Como resultado obtivemos os componentes do conceito, que nos auxilia na compreensão do mesmo, são eles: antecedente - ser diagnosticado com câncer; consequente - qualidade de vida dos sobreviventes do câncer (StC) e crescimento pessoal; atributos - processo de liminaridade e cuidado culturalmente congruente; termos substitutos - StC, sobrevivência em longo prazo e aquele que está vivendo após o diagnóstico do câncer, e por último os termos relacionados - sobrevida e reabilitação do câncer. Para a segunda etapa dessa pesquisa o propósito foi apreender os sentidos atribuídos a ser StC entre adoecidos, assim como, descrever os sentidos atribuídos ao conceito da SC entre adoecidos adultos e idosos por meio de sínteses narrativas. Desse modo, construímos um estudo qualitativo, com método narrativo e com referencial da antropologia médica. Realizamos entrevistas semi-estruturadas com 14 participantes diagnosticados com os diferentes tipos de câncer urológico de ambos os sexos, adultos e idosos, com no mínimo três meses pós-tratamento. Após transcrição dos dados, os mesmos foram analisados segundo a análise temática indutiva e duas sínteses narrativas foram elaboradas, a primeira delas é as dualidades da vida após o tratamento: da perda do autocontrole, da incerteza da recorrência da doença ao otimismo e esperança. Nessa síntese, discutimos acerca da experiência do sobrevivente com a doença, a perda de controle que a doença desencadeia e o consequente crescimento pessoal e aquisição do otimismo apesar das circunstâncias vividas. A segunda síntese é intitulada, o que eu sou? Sou um sobrevivente do câncer? Autorreflexão da identidade após o tratamento primário do câncer. Nela apreendemos a reflexão dos participantes sobre como se enxergam e veem a si mesmo e atribuem sentidos a ser ou estar doente, curado, vítima e principalmente StC. Com essas duas sínteses narrativas conseguimos descrever e nos aproximar dos sentidos atribuídos a SC. A terceira etapa foi desenvolvida em três tópicos, o primeiro consiste na comparação dos resultados da etapa um com a etapa dois, complementando com a importância da enfermagem oncológica no cuidado aos StC e uma reflexão sobre as políticas de saúde públicas atuais. Essa tese atualiza o conceito da SC e traz novas perspectivas sobre ele, contribuindo para a enfermagem oncológica / The progress in the early diagnosis of cancer and therapies, as well as the longevity and population growth remit to an increased number of cancer survivors around the world, giving rise to a new term, that of cancer survivorship (CS). The general objective in this study was to analyze the concept of CS in the health literature and among adult and/or elderly patients diagnosed with the disease. To achieve this objective, we elaborated four specific objectives, which made us organize the dissertation in three main phases. The objective of the first phase is to analyze the concept of CS presented in the health literature, according to Rodgers\' evolutionary model of concept analysis. This model is arranged in six steps, recommending the analysis of the studies surveyed by means of inductive thematic analysis and their interpretation according to the theoretical framework of the culture concept. As a result, we obtained the components of the concept, which help us understand it. These are: antecedent - being diagnosed with cancer; consequent - quality of life of cancer survivors (StC) and personal growth; attributes - liminality process and culturally congruent care; substitute terms - StC, long-term survival and individuals living after the cancer diagnosis, and finally the related terms - cancer survival and rehabilitation. For the second phase, the purpose was to apprehend the meanings attributed to being StC among the patients, as well as to describe the meanings adult and elderly patients attribute to the CS concept through narrative syntheses. Thus, we built a qualitative study, using the narrative method and the reference framework of medical anthropology. We held semistructured interviews with 14 participants diagnosed with different types of urological cancer, male and female, adult and elderly, with at least three months post-treatment. After transcribing the data, they were analyzed according to inductive thematic analysis and two narrative syntheses were elaborated, the first being the dualities of life after the treatment; from loss of self-control, the uncertainty of the disease relapse to optimism and hope. In this synthesis, we discuss the survivor\'s experience with the disease, the loss of control the disease triggers and the consequent personal growth and gaining of optimism despite the circumstances experienced. The second synthesis is entitled: Who am I? Am I a cancer survivor? Self-reflection on the identity after the primary cancer treatment. In this synthesis, we apprehend the participants\' reflection on how they see themselves and attribute meanings to being ill, cured, victim and mainly StC. These two narrative syntheses allowed us to describe and get closer to the meanings attributed to CS. The third phase was developed in three topics, the first being the comparison between the results of phase one and phase two, complemented with the importance of oncology nursing in care for StC and a reflection on the current public health policies. This dissertation updates the concept of CS and offers new perspectives, contributing to oncology nursing

O diagnóstico do câncer urológico causa profundas consequências na vida dos pacientes. Ainda que sejam considerados tumores com boas respostas terapêuticas, tal diagnóstico não é isento de sofrimento e interfere na qualidade de vida. O objetivo deste estudo foi analisar os sentidos atribuídos à QV por sobreviventes do câncer urológico. Para subsidiar essa compreensão, foram utilizados o referencial teórico da antropologia médica e a metodologia narrativa. Participaram do estudo 12 participantes com diagnóstico de câncer urológico sob seguimento terapêutico em um hospital público no interior de São Paulo. A coleta de dados ocorreu de novembro de 2016 a novembro de 2017, por meio de entrevistas semiestruturas gravadas e observação direta, realizadas nos domicílios dos participantes e nas dependências da instituição de saúde. Com base nas entrevistas, foram construídas as narrativas, segundo o modelo centrado na experiência, utilizando os modelos explicativos empregados pelos participantes. A análise dos dados narrativos fundamentou-se na análise temática indutiva, e esses foram integrados em três sínteses narrativas temáticas, que correspondem às unidades de sentido. A primeira, O itinerário do câncer urológico: descobrindo-se como sobrevivente, destacou o processo de busca para identificação da anormalidade no corpo. A reação ao diagnóstico foi de surpresa e medo diante uma doença culturalmente associada à morte. Porém, de acordo com o modelo cultural dos participantes, diante de uma doença grave, faziase necessário aderir aos tratamentos médicos propostos, ainda que causassem sofrimento. A segunda síntese narrativa, O que eu era e o que sou hoje: as limitações no corpo e na vida, descreveu as complicações causadas pela tentativa de eliminar o câncer por meio dos diversos protocolos terapêuticos, o que ocasionou sofrimento do corpo físico, social, tristeza e baixa autoestima. Assim, essa síntese apresentou como sentido a liminaridade, pois, após o adoecimento, os sobreviventes assumiram outra identidade, que implicou viver com um novo conceito de normalidade de vida. Na terceira síntese, Qualidade de vida: sobreviver com harmonia, diante do processo de liminaridade vivenciado pelos sobreviventes e com base nas reações culturais aprendidas e compartilhadas pela comunidade onde estavam inseridos, eles buscaram harmonia para continuarem a viver e viver com QV. O sentido revelado por esta síntese foi sobreviver em harmonia com o corpo e suas limitações, assim como na esfera social e familiar, ter esperança e espiritualidade. Esta investigação permitiu analisar os sentidos atribuídos à QV por sobreviventes do câncer urológico e evidenciou como a cultura exerce influência na experiência da QV durante a sobrevivência a este tipo de câncer / The diagnosis of urologic cancer causes profound consequences in the life of patients. Although they are considered tumors with good responses to therapy, their diagnosis is not free from suffering and this interferes in their quality of life. The objective of this study was to analyze the meanings attributed to QOL for urologic cancer survivors in the medical anthropology approach. To support this understanding, we chose the theoretical framework of Medical Anthropology and the narrative method. After ethical approval, data collection began. Twelve participants diagnosed with urologic cancer were included in a therapeutic follow-up at a public hospital in the interior of São Paulo. Data collection took place from November 2016 to November 2017, through recorded semi-structured interviews and direct observation, carried out at the participants\' homes and in the premises of the health institution. Based on the interviews, the narratives were constructed according to the experience-centered model, using the explanatory models employed by the participants. The analysis of the narrative data was executed occurred according to the thematic and inductive analysis, where these were integrated into three thematic narrative syntheses, corresponding to the units of meaning. The first synthesis, The path of urologic cancer: discovering oneself as a survivor, highlighted the search process to identify the abnormality in the body. The reaction to the diagnosis was of surprise and fear when faced with a disease culturally associated with death. In their cultural model, however, in the face of a serious illness, adherence to the proposed medical treatments is necessary, even if it entails a burden of suffering. The second narrative synthesis, What I was and what I am today: limitations in the body and in life, describes the complications caused by the attempt to eliminate cancer from the body through the therapies, causing suffering of the physical and social body, sadness and low self-esteem. Thus, this synthesis presented liminality as a meaning because, after the illness, the survivors assume another identity, which implies living with a new normality in life. In the third synthesis, Quality of life: surviving with harmony, in view of the liminality process the survivors experience, based on cultural reactions learned and shared by their community, the survivors seek a harmony to continue living and to live with QoL. The sense of this synthesis is to survive in harmony with the body and its limitations, with the social, with the family, to have hope and spirituality. This research allowed us to analyze the meanings attributed to QoL for survivors of urologic cancer. The results presented show how culture influences the QoL experience in urologic cancer survival

A assistência ao parto e ao nascimento no Brasil passou por amplas reformulações nas últimas décadas baseadas na necessidade de melhorar a qualidade e a satisfação das mulheres, crianças e suas famílias. Em busca das redefinições das práticas, estabeleceu-se, no país, o movimento de humanização do parto e nascimento (MHPN). Neste estudo, buscou-se compreender os significados e as práticas construídos a partir do conceito de parto presentes no campo da humanização do parto e do nascimento. Trata-se de uma pesquisa que utilizou a metodologia qualitativa com abordagem etnográfica, realizada em dois grupos participantes do MHPN que tinham como objetivo comum a melhoria da humanização do parto e do nascimento no âmbito do Sistema Único de Saúde. O trabalho de campo ocorreu entre os anos de 2014 e o segundo semestre de 2016. A coleta de dados foi realizada por meio de entrevistas semiestruturadas e de observação participante nas atividades dos grupos e em eventos do MHPN, em que foram efetuadas 10 interlocuções com os militantes do movimento. Os dados foram analisados mediante a técnica de análise de conteúdo, organizados em três eixos principais: a militância e os contextos de cuidado, parto e nascimento em suas trajetórias e significados e práticas ao redor do parto e do nascimento. Permitiu-se compreender que esses militantes almejam um parto que chamamos de parto respeitoso, baseados em um cuidado individualizado, em evidências científicas e na garantia de direitos. / Labor and birth care in Brazil have undergone broad reformulations in the last decades based on the need to improve the quality and satisfaction of women, children and their families. In searching for the redefinition of the practices it was established in the country the humanization of labor and birth movement (MHPN). In this study, we sought to understand the meanings and the practices, built from the concept of labor, existent in the field of humanization of labor and birth. It is a research that used the qualitative methodology with ethnographic approach, made in two MHPN participant groups, that had as a common objective the improvement of humanization of labor and birth in the scope of the Unified Health System. Field work took place between the year of 2014 and the second semester of 2016. Data collection was made by means of semi-structured interviews and participant observation in the activities of MHPN groups and events, in which 10 interlocutions with the movement militants were carried out. Data were analyzed using the technique of content analysis, organized in three main branches: militance and care contexts, labor and birth in their trajectories and meanings, and practices surrounding labor and birth. It was possible to understand that such militants desire what we call a respectful labor, based on individualized care, scientific evidence and guarantee of rights.

Ce mémoire interroge les possibilités présentes et futures d’actions concertées pour remettre en question les structures sociales d’exclusion qui affectent des groupes désignés à risque, entre autres en les rendant plus vulnérables à l’infection au VIH. En Inde, l’attention grandissante portée aux travailleuse(r)s du sexe (TS) par la santé publique dans les interventions contre le VIH contribue à façonner l’identité des groupes ciblés en les associant à l’épidémie du VIH et à sa prévention. L’acceptation et la réorganisation de cette catégorie servent de base d’organisation d’efforts collectifs pour un groupe de TS de Mysore, dans l’état du Karnataka. Les membres de ce collectif, nommé Ashodaya, déploient des actions concertées pour remettre en question les limites de catégories qui leur sont assignées (avec des tentatives pour désamorcer certaines dynamiques d’exclusion sociale -en limitant la stigmatisation), et s’imposer comme un groupe de citoyennes à part entière en s’incluant dans des sphères civiles comme citoyens, comme représentants d’une occupation et non comme individus marginalisés ou « représentants » d’une maladie. L’inclusion d’Ashodaya dans les efforts de prévention du VIH offre un accès à des ressources humaines et matérielles qui lui seraient autrement inaccessibles, mais limitent les possibilités d’actions du groupe en restreignant sa participation à la prévention. Le contexte particulier de l’engagement et du programme d’Avahan, branche indienne de la Bill and Melinda Gates souligne la fragilité des acquis de groupes comme Ashodaya. / This thesis questions the present and future possibilities for concerted actions to challenge social exclusion structures affecting social groups designated as being at risk, in part by making them more vulnerable to HIV infection. In India, the increasing attention given to sex workers (SW) by public health instances in HIV prevention contributes in shaping the identities of the targeted groups as associated to the epidemic and its prevention. The acceptance and reorganization of this label of SW act as basis for the organization of collective efforts for a SW organization in Mysore, in the state Karnataka. The members of this collective, named Ashodaya, use concerted actions to question the limits of these assigned labels (with attempts to defuse certain dynamics of social exclusion associated with stigmatization), and impose itself as a group of full-fledge citizens by including themselves in civil life as citizens representing an occupation, and not as marginalized individuals or “representative” of a disease. The inclusion of Ashodaya in the HIV prevention efforts offers an access to human and material resources that would not be otherwise available. However, it also limits its action possibilities in restricting its participation to prevention. The particular context of the engagement and the program of Avahan, Indian chapter of the Bill and Melinda Gates foundation, highlight the fragility of the work of groups like Ashodaya.