Personalen som triagerar och placerar patienter på Södersjukhusets akutmottagning använder det digitala patientjournalsystemet TakeCare. TakeCare är ett hyllat journalsystem som används i hela Region Stockholm sedan 2013. Sjuksköterskorna som använder programmet upplever dock att det kan förbättras, särskilt när det gäller användargränssnittet för placeringen av nya patienter. Det nuvarande programmet saknar en tydlig överblick över akutmottagningens olika moduler och vårdlag, vilket försvårar sjuksköterskornas beslut om patientplacering. De behöver gå igenom varje modul för sig för att få en uppfattning om vårdbelastningen i varje modul. En prototyp för en beslutsstödjande webbapplikation med översiktlig information om belastning på varje modul skulle potentiellt kunna integreras i TakeCare och underlätta sjuksköterskornas process för placering av patienter. I denna studie skapades en webbapplikation som kan utvecklas vidare och eventuellt användas av sjukvårdspersonalen. Denna rapport bevisar att det finns förbättringspotential hos det nuvarande patientjournalsystemet och att ett beslutsstöd för placering av patienter skulle underlätta processen och förbättra vårdflödet. / The triage nurses that are responsible for the placement of patients at Södersjukhuset’s emergency department in Stockholm, Sweden, use the digital medical record system TakeCare. TakeCare is a renowned record system that has been used in Region Stockholm since 2013. However, the nurses using the system experience some difficulty, especially when it comes to the user interface when placing new patients. The current system lacks a clear overview of the emergency departments' many modules and healthcare teams, which makes it difficult to make decisions regarding the placement of incoming patients. The nurses are therefore forced to go through each module one by one to see the current strain in each team. A prototype for a decision-supporting web application with a clear overview of each module could potentially be integrated into the current medical record system and thus facilitate an easier placement process. A web application was made in this study and can eventually be used by the health care staff after further development. This report proves that there is potential for improvement for the current system and that a decision-making tool would improve the flow in the ED.

No / Two routine consultations in primary care diabetes clinics are compared using extracts from video recordings of interactions between nurses and patients. The consultations were chosen to present different styles of interaction, in which the nurse's gaze was either primarily toward the computer screen or directed more toward the patient. Using conversation analysis, the ways in which nurses shift both gaze and body orientation between the computer screen and patient to influence the style, pace, content, and structure of the consultation were investigated. By examining the effects of different levels of engagement between the electronic medical record and the embodied patient in the consultation room, we argue for the need to consider the contingent nature of the interface of technology and the person in the consultation. Policy initiatives designed to deliver what is considered best-evidenced practice are modified in the micro context of the interactions of the consultation.

This thesis focuses on the protection of the patient’s privacy in health care in Sweden. It is crucially important that the patient has confidence in the health care and that patient data are kept secret from other persons and authorities. A patient who is unsure about secrecy and confidentiality may choose not to provide data that could prove necessary for health care personnel to arrive at an accurate diagnosis. Some individuals might even avoid seeking medical help from fear that data may be spread to outsiders. Inadequate protection of sensitive data may lead to the confidence of citizens in health care eventually eroding or vanishing completely. Protection of patient privacy is thus of fundamental importance in this area. In the area of health care, the intention of the legislator is that the regulations regarding secrecy in public health care and confidentiality in private health care will guarantee protection of patient privacy. Secrecy in public health care is regulated mainly in Chapter 25, Section 1 of the Swedish Public Access to Information and Secrecy Act (2009:400). In private health care, confidentiality is regulated mainly in Chapter 6, Section 12, first paragraph, and Section 16 of the Swedish Act on Patient Safety (2010:659). The overall purpose of the thesis is to examine and analyse the legislator’s intentions and the juridical construction regarding the rules of secrecy and confidentiality, from the perspective of patient privacy. The starting point of the thesis is that the patient’s privacy should be strongly protected. One of the main conclusions is that the legal construction cannot be considered to be in accordance with the legislator’s intention that the regulation of patient privacy protection should constitute a strong protection for the patient’s privacy, be comprehensible, clear and easy to apply for health care personnel, as well as being the same in both public and private health care.

The benefits of using electronic medical records (EMRs) have been well documented; however, despite numerous financial benefits and cost reductions being offered by the federal government, some healthcare professionals have been reluctant to implement EMR systems. In fact, prior research provides evidence of failed EMR implementations due to resistance on the part of physicians, nurses, and clinical administrators. In 2010, only 25% of office-based physicians have basic EMR systems and only 10% have fully functional systems. One of the hindrances believed to be responsible for the slow implementation rates of EMR systems is resistance from healthcare professionals not truly convinced that the system could be of substantive use to them. This study used quantitative methods to measure the relationships between six constructs, namely computer self-efficacy (CSE), perceived complexity (PC), attitude toward EMR (ATE), peer pressure (PP), anxiety (AXY), and resistance to use of technology (RES), are predominantly found in the literature with mixed results. Moreover, they may play a significant role in exposing the source of resistance that exists amongst American healthcare professionals when using Electronic Medical Records (EMR) Systems. This study also measured four covariates: age, role in healthcare, years in healthcare, gender, and years of computer use. This study used Structural Equation Modeling (SEM) and an analysis of covariance (ANCOVA) to address the research hypotheses proposed. The survey instrument was based on existing construct measures that have been previously validated in literature, however, not in a single model. Thus, construct validity and reliability was done with the help of subject matter experts (SMEs) using the Delphi method. Moreover, a pilot study of 20 participants was conducted before the full data collection was done, where some minor adjustments to the instrument were made. The analysis consisted of SEM using the R software and programming language. A Web-based survey instrument consisting of 45 items was used to assess the six constructs and demographics data. The data was collected from healthcare professionals across the United States. After data cleaning, 258 responses were found to be viable for further analysis. Resistance to EMR Systems amongst healthcare professionals was examined through the utilization of a quantitative methodology and a cross-sectional research measuring the self-report survey responses of medical professionals. The analysis found that the overall R2 after the SEM was performed, the model had an overall R2 of 0.78, which indicated that 78% variability in RES could be accounted by CSE, PC, ATE, PP, and AXY. The SEM analysis of AXY and RES illustrated a path that was highly significant (β= 0.87, p < .001), while the other constructs impact on RES were not significant. No covariates, besides years of computer use, were found to show any significance differences. This research study has numerous implications for practice and research. The identification of significant predictors of resistance can assist healthcare administrators and EMR system vendors to develop ways to improve the design of the system. This study results also help identify other aspects of EMR system implementation and use that will reduce resistance by healthcare professionals. From a research perspective, the identification of specific attitudinal, demographic, professional, or knowledge-related predictors of reference through the SEM and ANCOVA could provide future researchers with an indication of where to focus additional research attention in order to obtain more precise knowledge about the roots of physician resistance to using EMR systems.

Bakgrund: Bedömning av näringstillstånd och näringstillförsel är komplicerad vid svår sepsis och septisk chock beroende på sjukdomenskomplexitet. Patienternas upplevelser om mat, dryck och ätande under och efter intensivvård utgör en viktig parameter för bedömning avnäringstillförsel men är sparsamt undersökt. Syftet var att kartlägga dokumenterad bedömning av näringstillstånd och näringstillförsel samt undersöka patientens upplevelse om mat, dryck och ätande vid svår sepsis och septisk chock. Metod: Studien genomfördes med case study design där mixade metoder användes. En kvantitativ journalgranskning av näringstillförsel och näringstillstånd kombinerades med en kvalitativ innehållsanalys av fem patienters upplevelser och minnen. Resultat: Skiftande bedömning av näringstillstånd och näringstillförsel framkom, alltifrån detaljerad dokumentation till sparsam och fragmenterad. Fastlagda rutiner för näringsbedömning följdes inte. Etablerade metoder fångade inte risk för näringsproblem. Dokumentation om näringstillförsel var detaljerad under intensivvårdstiden och mer knapphändig under vårdtid på vårdavdelningarna. Patienterna hade unika minnen och upplevelser, av törst, förlorad hungerkänsla och förvåning över hur fort orken försvann, men sedan kom tillbaka.Slutsats: En systematisk och regelbunden uppföljning av näringstillförsel och en individuell, personinriktad vård behövs för förståelse för patientens unika tillstånd vid kritisk sjukdom. Ytterligare studier behövs för utveckling av instrument för detektering av näringsproblem under och efter intensivvård. / Background: Assessment of nutritional status and support are complicated in the care of patients with severe sepsis and septic chock due to complexity of disease. Patient opinions on food and food intake may serve as important parameters when deciding the amount and kind of nutritional support but are sparsely investigated. The purpose was to describe assessment of nutritional status and nutritional support in patients with severe sepsis and septic chock and to investigate patient experiences of food, drinking and eating during and after intensive care. Method: A case study design was conducted using mixed methods. Assessment of nutritional status and support in medical record were investigated quantitatively in five patients. Experiences and memories were analysed qualitatively using content analysis. Result: Diverse results emerged from detailed to sparse and fragmented judgements, planning and measures taken. Established assessment tools didn´t capture nutritional problems. ICU documentation was detailed while documentation during ordinary ward care was scanty. The patients had unique experiences and memories of thirst, weight, loss of hunger and astonishment of quick loss and return of energy. Conclusion: A systematic and regular control of nutritional support and individual care is required to understand the uniqueness of patient status incritical disease. Further investigation is needed concerning tools for detection of nutritional problems during and after intensive care.

Several factors are driving the transition from paper-based health records to electronic health record systems. In the United States, the adoption rate of electronic health record systems significantly increased after "Meaningful Use" incentive program was started in 2009. While increased use of electronic health record systems could improve the efficiency and quality of healthcare services, it can also lead to a number of security and privacy issues, such as identity theft and healthcare fraud. Such incidents could have negative impact on trustworthiness of electronic health record technology itself and thereby could limit its benefits. In this dissertation, we tackle three challenges that we believe are important to improve the security and privacy in electronic health record systems. Our approach is based on an analysis of real-world incidents, namely theft and misuse of patient identity, unauthorized usage and update of electronic health records, and threats from insiders in healthcare organizations. Our contributions include design and development of a user-centric monitoring agent system that works on behalf of a patient (i.e., an end user) and securely monitors usage of the patient's identity credentials as well as access to her electronic health records. Such a monitoring agent can enhance patient's awareness and control and improve accountability for health records even in a distributed, multi-domain environment, which is typical in an e-healthcare setting. This will reduce the risk and loss caused by misuse of stolen data. In addition to the solution from a patient's perspective, we also propose a secure system architecture that can be used in healthcare organizations to enable robust auditing and management over client devices. This helps us further enhance patients' confidence in secure use of their health data.

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The subject of this thesis is "Protection of personality in health care" which is an important and especially current topic. After the recodifications of relevant legislation - particularly the recent Civil Code (which is built on the natural law concept) - is more focused on the protection of personality and it generally changed perception of harm to personal rights. It is newly called "compensation for personal harm to the natural rights of person" and claims for compensation for damages and recompense of non-pecuniary damages is tied to a single court proceedings. The thesis is divided into four parts. The first part introduces the basic concepts related to personal rights and to certain medical terminology including explanation of the term "lege artis". The second part presents the relevant legislation, both national and international. The third and largest section is devoted to the protection of patient's personality which is defined by the individual rights of patient in health care. It refers to the patient's right to be treated "lege artis" during receiving of health services, patients' right to be informed and provide related informed consent (on which the thesis is particularly focused), medical confidentiality of health workers and issues related to handling the patient's medical...

Many of the technological and social systems our society has come to depend on can be classified as complex adaptive systems (CAS). These systems are made of many individual parts that self-organize to respond and adapt to changing outside and inside influences affecting the system and its actors. These CAS can be placed on a spectrum ranging from loosely- to tightly-coupled, depending on the degree of interrelatedness and interdependence between system components. This research has explored how the process of collaboration occurs in both a loosely- and tightly-coupled setting using one exemplar of each system. The loosely-coupled exemplar related to disaster risk reduction in two Canadian communities while the tightly-coupled one involved the implementation of a surgical information management system in a Canadian hospital. A list of core elements of collaboration that should be considered essential to the success of all collaborative endeavours was developed as a result: Engagement, Communication, Leadership, Role Clarity, Awareness, Time, and Technical Skills and Knowledge. Based on observing how the core elements of collaboration interacted with one another within each of these example systems, two models were created to represent their relationships. A list of considerations that collaborative tool designers should consider was also developed and the implications of these considerations were discussed. As businesses and other organizations increasingly incorporate team-based work models, they will come to depend more heavily on technology-based solutions to support collaboration. By incorporating collaborative technologies that properly support the activity of these teams—based on the specific type of complex adaptive system in which their organization exists—organizations can avoid wasting time and resources developing tools that hinder collaboration.

Un requerimiento esencial para las organizaciones de salud es garantizar la privacidad y la óptima distribución de los registros médicos electrónicos (RME) debido a que almacenan toda la información médica sensible de los pacientes. Sin embargo, las organizaciones privadas de salud presentan riesgos y deficiencias en la seguridad e interoperabilidad de los RME afectando la adecuada distribución y autenticación de los registros médicos. Las arquitecturas y soluciones encontradas en la literatura se desarrollan utilizando la tecnología Blockchain; sin embargo, estas no contemplan todas las necesidades requeridas por las organizaciones privadas de salud y no ofrecen al paciente el control completo de toda la información en sus registros médicos. El objetivo de esta investigación es determinar la utilidad e importancia de la tecnología Blockchain en la propuesta de una arquitectura tecnológica para la gestión de los RME en organizaciones privadas de salud. La metodología empleada se basa en el análisis de trabajos y soluciones de diversos autores relacionados con el uso de la tecnología Blockchain para la gestión de los registros médicos en organizaciones de salud. De esta manera, se puede determinar el aporte brindado ante la deficiente gestión y seguridad de los registros médicos, detallar todo el proceso del resultado de la propuesta de una arquitectura tecnológica que use la tecnología Blockchain para garantizar la integridad y confidencialidad de los datos médicos junto con la protección de la privacidad del paciente; y, proponer investigaciones a futuro que complementen la propuesta y su implementación en el sector de salud. / An essential requirement for healthcare organizations is to ensure the privacy and optimal distribution of electronic medical records (EMRs) because they store all sensitive medical information of patients. However, private health organizations present security risks and have deficiencies with the interoperability of EMRs, affecting the proper distribution and authentication of medical records. The architectures and solutions found in the literature are developed using Blockchain technology; however, these do not meet all the needs required by private health organizations and do not offer the patient complete control of all the information in their medical records. The objective of this research is to determine the use and importance of Blockchain technology in the proposal of a technology architecture for the management of EMRs in private health organizations. The methodology used is based on the analysis of works and solutions of various authors related to the application of Blockchain technology for the management of medical records in health organizations. In this way, it is possible to determine the contribution provided to the deficient management and security of medical records, to detail the entire process of the result of the proposal of a technological architecture that uses Blockchain technology to guarantee the integrity and confidentiality of medical data along with protection of patient privacy; and to propose future research that complements the proposal and its implementation in the health sector. / Trabajo de investigación