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Bakgrund: Den palliativa vården ska se till hela familjens behov av stöd. Lagen är tydlig vad gäller barns rättigheter när en förälder är sjuk, men syskon som grupp blir ofta förbisedda. Syskon som mist en närstående har ökad risk för ångest och depression, men löper även högre risk för missbruk, och detta kan relateras till hur syskonen upplevde situationen när deras bror eller syster var sjuk. Barn och unga är en särskilt sårbar grupp som behöver extra omsorg i och med en högre risk för komplicerad och långvarig sorg, och sjukvården har ett ansvar i att stötta dessa individer. Genom ökad kunskap om syskons erfarenheter av att leva med en svårt sjuk bror eller syster kan vi konstruera adekvat stöd baserat på deras behov. Syfte: Att beskriva syskons erfarenheter av att leva med en svårt sjuk bror eller syster. Metod: En litteraturöversikt baserad på 13 originalartiklar, insamlade från två databaser, publicerade mellan 2013–2023. En tematisk analys gjordes utifrån Braun och Clarkes analysmodell. Resultat: Tre huvudteman framkom vid sammanställning av resultat: Att hantera sig själv och sina känslor beskriver syskonens utsatthet och känsla av isolering - en känsla av att hamna i skuggan av sin bror eller systers sjukdom, där en stark önskan om att bli sedd, men en ovilja att ta plats framkom, och stöd från omgivningen var uppskattat. Känslan av förståelse beskriver att information och inkludering uppskattas - att de oftast vet om när saker går osagda och att de själva tvingas läsa mellan raderna kring vad de ser och vad som sägs. Det nya normala beskriver förändring i situation och vardag - där familjen blev allt viktigare, men att rollerna inom familjen förändrades, och det ständigt fanns en närvaro av oro kring den sjuka brodern eller systern. Slutsats: Sjuksköterskor och annan vårdpersonal bör känna till och beakta syskons känsloliv och önskningar för att på bästa sätt kunna stötta och hjälpa syskonet genom den svåra tiden. För att nå upp till barnkonventionen, som numera är lag, gäller detta även för sjukvårdspersonal inom vuxenvården, då barn som har palliativa vårdbehov många gånger vårdas inom vuxenkliniker. / Background: Palliative care must take care of the entire family's need for support. The law is clear regarding children's rights when a parent is ill, but siblings as a group are often overlooked. Siblings who have lost a loved one have an increased risk of anxiety and depression, but are also at higher risk of substance abuse, and this can be related to how the sibling experienced the situation when their brother or sister was ill. Children and young people are a particularly vulnerable group that needs extra care due to a higher risk of complicated and prolonged grief, and the healthcare system has a responsibility to support these individuals. Through increased knowledge of siblings' experiences of living with a seriously ill brother or sister, we can construct adequate support for these children based on their needs.  Aim: To describe the siblings' experiences of living with a seriously ill brother or sister. Method: A literature review based on 13 original articles, collected from two databases, published between 2013-2023. A thematic analysis was made based on Braun and Clarke's analysis model. Results: Three main themes emerged when compiling results: Dealing with oneself and one's feelings - describes the sibling's vulnerability and sense of isolation, a feeling of being overshadowed by their brother or sister's illness, where a strong desire to be seen, but an unwillingness to take place emerged, and support from the environment was appreciated. The feeling of understanding - describes that information and inclusion are appreciated, that they usually know when things are left unsaid and that they themselves are forced to read between the lines regarding what they see and what is said. The new normal - describes a change in situation and everyday life, where the family became increasingly important, but the roles within the family changed, and there was a constant presence of concern around the sick brother or sister. Conclusion: Nurses and other healthcare personnel should know and consider the sibling's emotional life and wishes in order to best support and help the sibling through the difficult time. In order to meet the Convention on the Rights of the Child, which is now law, this also applies to healthcare staff in adult care, as children who have palliative care needs are often cared for in adult clinics.

Bakgrund: Den palliativa vården ska se till hela familjens behov av stöd. Lagen är tydlig vad gäller barns rättigheter när en förälder är sjuk, men syskon som grupp blir ofta förbisedda. Syskon som mist en närstående har ökad risk för ångest och depression, men löper även högre risk för missbruk, och detta kan relateras till hur syskonen upplevde situationen när deras bror eller syster var sjuk. Barn och unga är en särskilt sårbar grupp som behöver extra omsorg i och med en högre risk för komplicerad och långvarig sorg, och sjukvården har ett ansvar i att stötta dessa individer. Genom ökad kunskap om syskons erfarenheter av att leva med en svårt sjuk bror eller syster kan vi konstruera adekvat stöd baserat på deras behov. Syfte: Att beskriva syskons erfarenheter av att leva med en svårt sjuk bror eller syster. Metod: En litteraturöversikt baserad på 13 originalartiklar, insamlade från två databaser, publicerade mellan 2013–2023. En tematisk analys gjordes utifrån Braun och Clarkes analysmodell. Resultat: Tre huvudteman framkom vid sammanställning av resultat: Att hantera sig själv och sina känslor beskriver syskonens utsatthet och känsla av isolering - en känsla av att hamna i skuggan av sin bror eller systers sjukdom, där en stark önskan om att bli sedd, men en ovilja att ta plats framkom, och stöd från omgivningen var uppskattat. Känslan av förståelse beskriver att information och inkludering uppskattas - att de oftast vet om när saker går osagda och att de själva tvingas läsa mellan raderna kring vad de ser och vad som sägs. Det nya normala beskriver förändring i situation och vardag - där familjen blev allt viktigare, men att rollerna inom familjen förändrades, och det ständigt fanns en närvaro av oro kring den sjuka brodern eller systern. Slutsats: Sjuksköterskor och annan vårdpersonal bör känna till och beakta syskons känsloliv och önskningar för att på bästa sätt kunna stötta och hjälpa syskonet genom den svåra tiden. För att nå upp till barnkonventionen, som numera är lag, gäller detta även för sjukvårdspersonal inom vuxenvården, då barn som har palliativa vårdbehov många gånger vårdas inom vuxenkliniker. / Background: Palliative care must take care of the entire family's need for support. The law is clear regarding children's rights when a parent is ill, but siblings as a group are often overlooked. Siblings who have lost a loved one have an increased risk of anxiety and depression, but are also at higher risk of substance abuse, and this can be related to how the sibling experienced the situation when their brother or sister was ill. Children and young people are a particularly vulnerable group that needs extra care due to a higher risk of complicated and prolonged grief, and the healthcare system has a responsibility to support these individuals. Through increased knowledge of siblings' experiences of living with a seriously ill brother or sister, we can construct adequate support for these children based on their needs. Aim: To describe the siblings' experiences of living with a seriously ill brother or sister. Method: A literature review based on 13 original articles, collected from two databases, published between 2013-2023. A thematic analysis was made based on Braun and Clarke's analysis model. Results:Three main themes emerged when compiling results: Dealing with oneself and one's feelings - describes the sibling's vulnerability and sense of isolation, a feeling of being overshadowed by their brother or sister's illness, where a strong desire to be seen, but an unwillingness to take place emerged, and support from the environment was appreciated. The feeling of understanding - describes that information and inclusion are appreciated, that they usually know when things are left unsaid and that they themselves are forced to read between the lines regarding what they see and what is said. The new normal - describes a change in situation and everyday life, where the family became increasingly important, but the roles within the family changed, and there was a constant presence of concern around the sick brother or sister. Conclusion: Nurses and other healthcare personnel should know and consider the sibling's emotional life and wishes in order to best support and help the sibling through the difficult time. In order to meet the Convention on the Rights of the Child, which is now law, this also applies to healthcare staff in adult care, as children who have palliative care needs are often cared for in adult clinics.

Denna studie syftar till att undersöka hur barn vars syskon har en neuropsykiatrisk funktionsnedsättning eller intellektuell funktionsnedsättning påverkas och upplever att det är att leva med ett syskon med en funktionsnedsättning. Studien utförs som en kvalitativ litteraturstudie i form av en scoping-review. 15 vetenskapliga artiklar identifierades och sammanställdes utifrån tematisk analysmetod. De vetenskapliga artiklarna analyserades efter Goffmans teori om stigma, Eriksons utvecklingsteori och Bronfenbrenners utvecklingsekologiska perspektiv. Resultatet visade att barn vars syskon har en neuropsykiatrisk funktionsnedsättning eller intellektuell funktionsnedsättning behöver göra anpassningar och kompromisser i sin vardag relaterat till syskonets svårigheter och behov av anpassningar. Flertalet sociala konsekvenser identifierades då barnen sällan vågade bjuda hem vänner samt valde att stanna hemma för att inte riskera att bli mobbad eller retad på grund av sitt syskon. Många av barnen behövde ta ett stort ansvar för sitt syskon i en tidig ålder vilket resulterade i att de mognade snabbare än andra jämnåriga. Det framkom även att barnen utvecklade positiva egenskaper som empati, tålamod och acceptans. / The aim of this study is to investigate how children with siblings who have a neuropsychiatric disability or intellectual disability experience their everyday life and how it has affected them. The study is conducted as a qualitative literature review as a scoping review. Fifteen scientific articles were identified and compiled using thematic analysis methods. The scientific articles were analyzed based on Goffman's theory of stigma, Erikson's developmental theory, and Bronfenbrenner's ecological systems theory. The results showed that children with siblings who have a neuropsychiatric disability or intellectual disability need to make adjustments and compromises in their daily lives related to their sibling's difficulties and need for adaptation. Several social consequences were identified, as the children rarely dared to invite friends home and often chose to stay at home to avoid the risk of being bullied or teased because of their sibling. Many of the children had to take on significant responsibilities for their sibling at an early age, which resulted in them maturing faster than their peers. It also emerged that the children developed positive qualities such as empathy, patience, and acceptance.

The diploma thesis - "Psychosocial Aspects of Changes in Human Mobility," focuses on family and siblings of people with physical disabilities, as well as on finding the appropriate support for these families in their specific situation. It particularly deals with people suffering cerebral palsy and spina bifida and possibilities to support the families with disabled individuals in the Czech Republic. The thesis is based on theoretical knowledge gained from publications and laws, hands-on experience acquired in service as a personal care assistant, as well as own research project on siblings of people with physical disabilities. In the first part of the thesis, the author gives basic information about classifications, diagnostics and manifestations of cerebral palsy and spina bifida with major influence of the change in human mobility. In addition, the thesis focuses on the relationship of both parents and siblings, to the handicapped child. The next part is devoted to a research project called "Life with a Sibling with Physical Disability". The research project deals with the direct experience of siblings of people with physical disabilities, critical moments in their lives, resources of coping with this difficult life situation, but also looks at benefits for their personal growth. The aim of...

Against the background of evidence that parent involvement benefits learners, parents, schools and communities, a need has arisen for effective parent involvment strategies to be developed particularly in rural and disadvantaged communities. A literature study investigated models of parent involvementand the provision of education in North West Province. Barriers to parent involvement in schools were also investigated. A qualitative methodology was used to investigate parent involvement in three rural schools in North West Province. Data were gathered by means of observation, semi-structures focus group interviews with parents and educators and semi-structures in-depth interviewswith principals of participating schools. Thus parents and educators blame each other for lack of participation. Other findings relate to the lack of resources and facilities in schools. Guidelines for proper parent involvement were proposed. / Educational Studies / M.Ed. (Comparative Education)

Syftet med denna retrospektiva kvalitativa studie är att öka kunskapen om tre systrars upplevelse av sina relationers utveckling före och efter båda föräldrarnas död. Som forskningsdesign valdes en kvalitativ metod. Två syskongrupper om tre systrar i medelåldern 49-62 år intervjuades. Datamaterialet analyserades med empirisk tematisk analys. I resultatet framträdde en struktur med fyra olika tidsintervall med femton teman. Resultaten visar att trots de oerhört starka anknytningarna av dysfunktionell natur i ursprungsfamiljerna får systrarna syn på varandra när föräldrarna dör. Syskonrelationerna har kommit i skymundan av föräldrarnas närvaro och deras problem. Det har påverkat syskonrelationerna. Relationerna mellan systrarna och rollerna förändrades i processen före och efter föräldrarnas död och mognar till något annat. Detta går som en röd tråd genom hela materialet; att existera i tillvaron, syskonrelationer omprövas och detta leder till närhet, autonomi och differentiering, en acceptans att alla är olika i triaden som vägleder dem till att värna om varandra än mer i medelåldern. / The aim of this retrospective qualitative study is to increase knowledge about three sisters' experience of the development of their relationships before and after both parents death. A qualitative research method was chosen. Two sibling groups of three sisters in middle age 49-62 years were interviewed. The data were analyzed with empirical thematic analysis. The result showed a structure with four different time intervals with fifteen themes. Despite the extremely strong dysfunctional nature of the relations in their origin families the sisters caught sight of each other when the parents died. The sibling relationships have been overshadowed by the parents' presence and their problems. Relationships and roles changed in the process before and after parental death between the sisters and matured into something else. This runs as a thread throughout the material; to exist in life, sibling relationships are reviewed, and it leads to intimacy, autonomy and differentiation, an acceptance that everyone is different in the triad that guides them to protect each other even more in middle age.

Réalisé sous la co-direction de Linda Booij, Catherine Herba et Patricia Garel / Contexte : la présence d’un biais cognitif négatif chez les individus qui souffrent de dépression majeure (DM) et ceux qui y sont à haut risque (e.g. enfants de mères qui souffrent de DM) est maintenant établie. Aucune étude portant sur la vulnérabilité cognitive (VC) des membres de la fratrie n’est rapportée. Objectifs : la présente étude a pour but de vérifier si la fratrie des adolescents qui souffrent de DM présentent une VC qui les prédisposent à la DM. Méthode : cette étude porte sur 49 adolescents (18 participants traités pour une DM, 16 membres de la fratrie et 15 participants témoin), âgés entre 12 et 20 ans. La VC de chaque participant est quantifiée via un questionnaire qui mesure la réactivité cognitive (RC), soit le LEIDS-R, et une tâche de reconnaissance des expressions faciale (REF). La cognition sociale des participants est mesurée par le MASC, un outil qui évalue la cognition sociale par médium vidéo et que notre équipe a traduit de l’allemand au français. Résultats : les résultats préliminaires de la présente étude indiquent qu’une différence de réactivité cognitive est présente entre les adolescents traités pour une DM et les participants du groupe témoin (p < 0,001). L’analyse préliminaire tend à indiquer qu’une différence est présente entre la fratrie et le groupe contrôle. Conclusion : plusieurs de nos résultats tendent en faveur de la présence d’une VC prédisposant à la DM chez la fratrie des adolescents souffrant de DM. Ces résultats préliminaires doivent être confirmés par des études longitudinales. / Background: a negative cognitive bias is present among individuals who suffers from major depression. This bias is also reported among individuals at high risk of major depression (e.g. child of depressed mother). No study to date aimed to evaluate cognitive vulnerability of siblings of depressed individuals. Objectives: the present study aim to verify if siblings of depressed adolescents present a cognitive vulnerability that would predispose them to develop a major depression. Method: This study evaluates 49 adolescents (18 participants treated for depression, 16 siblings and 15 controls), aged between 12 and 20 years old. The cognitive vulnerability of every participant has been assessed using an auto-report questionnaire of symptoms (LEIDS-R) that evaluates cognitive reactivity and a task of facial recognition. Social cognition of participants is measured using the Movie for Assessment of Social Cognition (MASC) that we translated from german to french. Results: the preliminary analyses of this study concludes that a significant difference of cognitive reactivity is present between adolescents treated for depression and controls (p < 0.001). Conclusion: some of our results tend to confirm the presence of a cognitive vulnerability to depression among siblings of depressed adolescents. Those results are still preliminary and need to be confirmed by longitudinal studies.

The diploma thesis is concerned with the long-term foster care; particularly with the experience of foster carer's own children. It provides knowledge of the alternative care system in the Czech Republic and the particularities of foster families. It describes how own children of foster carers experience the period of time before their foster sibling's arrival, what are their feelings and reactions after the arrival, how their positions in the family change, how their relationships are formed and how they perceive their parent's decision retrospectively. The theoretical part is followed by empirical part which is composed of quantitative and qualitative research. The results of quantitative research introduce the experience of biological children and create a basic idea of the situations in foster families. The conclusions of the qualitative research are then an addition of the quantitative part and help to a better imagination of the life in foster families. This thesis should contribute to foster care applicants, their children and specialists who work with foster families. Key words alternative family care, foster care, foster family, biological child, foster children, foster carers training, siblings

This diploma thesis focuses on the perception of parents by their adolescent children. Since the topic is very wide the thesis considers only selected specifics. The theoretical part is divided into three chapters. First part describes parenthood especially in the time with adolescent child and the next topic is adolescence, its history and main characteristics and the change of personality of adolescent. The next part is devoted to describing the social context which influences the adolescent child and forms their perception of parent. The examples of variability of this relationship are presented in the last part. The research target was to find how Czech adolescents perceive their parents. A questionnaire was used as a means to reach this aim. Gained data were sorted and the outcome is presented in the thesis.