• Refine Query
  • Source
  • Publication year
  • to
  • Language
  • 169
  • 43
  • 23
  • 16
  • 7
  • 6
  • 4
  • 3
  • 3
  • 3
  • 3
  • 3
  • 3
  • 3
  • 3
  • Tagged with
  • 320
  • 320
  • 62
  • 57
  • 48
  • 35
  • 33
  • 26
  • 25
  • 24
  • 24
  • 23
  • 22
  • 21
  • 20
  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
301

Augmented Reality-spel för att motverka social isolering

Österlind, Egil, Ingelsson Fredler, Axel January 2023 (has links)
hälsotillstånd. Individer med intellektuell funktionsnedsättning, autism, eller båda nedsättningar, har ofta högre risk att hamna i social isolering än individer utan dessa funktionsnedsättningar. Forskning saknas kring hur Augmented Reality-spel kan tillämpas för att underlätta sociala interaktioner för vuxna individer med autism, intellektuell funktionsnedsättning, eller båda funktionsnedsättningar. Tidigare forskning undersöker ämnet mer generellt och fokuserar mer frekvent på barn och unga individer som målgrupp, denna forskning har dock visat positiva resultat gällande Augmented Reality som stöd för utlärandet av viktiga vardagskunskaper. Det problem denna studie ämnar att undersöka är hur vuxna individer med dessa typer av funktionsnedsättningar har en högre risk att hamna i social isolering, samt att det idag finns en brist på forskning kring riktlinjer om hur spel kan utformas för denna målgrupp. Social isolering är när en individ upplever social ensamhet, bristfällig kontakt med familj, social oro och depression Genom att utveckla en Augmented Reality-app-prototyp ämnar författarna att undersöka dess potential för att öka sociala interaktioner mellan vuxna individer med intellektuell funktionsnedsättning, autism eller båda funktionsnedsättningar. Genom att individerna använder funktionen i appen “ring en vän” så uppstår det en chans för att de träffas. På det sättet hoppas författarna av denna studie att slutprodukten skulle kunna skapa fler sociala interaktioner. Datainsamlingen utförs genom observationer och intervjuer med personal från en daglig verksamhet som dagligen interagerar med individer från målgruppen, med syfte att ge kunskap om Augmented Reality som undervisningshjälpmedel för individer med förutnämnda funktionsnedsättningar. Författarna av denna studie kodar och kategoriserade sedan datan i teman för att undersöka resultatet. I denna studie uppkommer det att det är svårt för personalen på den dagliga verksamheten att motverka social isolering för individerna med de förutnämnda funktionsnedsättningarna. Resultatet visar att det finns intresse och potential för Augmented Reality som ett hjälpmedel för att motverka social isolering. Författarna uppfattar det som att studien har brister då den data som samlats in inte hämtats från den aktuella målgruppen. Framtida forskning skulle kunna vidareutveckla artefakten som har skapats för denna studie. Framtida forskning skulle också kunna utforska möjligheten att utveckla “ring en vän” funktionen till ett verktyg som skulle kunna appliceras på olika applikationer / Social isolation, which is when an individual is distanced from their desired or necessary social networks, can lead to deteriorated mental health. Individuals with intellectual disabilities, autism, or both disabilities often have a higher risk of experiencing social isolation compared to individuals without these disabilities. There is a lack of research on how Augmented Reality games can be applied to facilitate social interactions for adults with autism, intellectual disabilities, or both disabilities. Previous research has explored the topic more generally and has focused more frequently on children and young individuals as the target audience. However, this research has shown positive results regarding the use of Augmented Reality as a support for learning essential life skills. The problem this study aims to investigate is how adults with these types of disabilities are at a higher risk of experiencing social isolation, and there is currently a lack of research on guidelines for designing games for this target group. Social isolation occurs when an individual experiences social loneliness, lack of contact with family, social anxiety, and depression. By developing an Augmented Reality app prototype, the authors intend to examine its potential to increase social interactions among adults with intellectual disabilities, autism, or both disabilities. By using the "call a friend" feature in the app, there is an opportunity for individuals to meet face to face. In this way, we hope that the end product could create more social interactions. Data collection is performed through observations and interviews with staff from a daily activity center who interact with individuals from the target group on a daily basis. The purpose is to provide knowledge about the use of Augmented Reality as an educational tool for individuals with the aforementioned disabilities. The authors of this study then code and categorize the data into themes to investigate the results. This study reveals that it is challenging for the staff at the daily activity center to counteract social isolation for individuals with the aforementioned disabilities. The results demonstrate that there is interest and potential for Augmented Reality as a tool to counteract social isolation. The authors perceive the study to have limitations as the data collected was not obtained directly from the actual target group. Future research could further develop the artifact that has been created,and could also explore the possibility of expanding the "call a friend" function into a tool that could be applied to different applications.
302

Sociala skyddsnätets paradox : En kvantitativ studie av välfärdsregimernas inverkan på sociala kontakter och nätverksdiversitet / The Paradox of the Social Safety Net : A Quantitative Study of the Impact of Welfare Regimes on Social connections and Network Diversity

Kraus, Frida, Gullstrand, Jesper January 2023 (has links)
This study examines the impact welfare regimes might have on the individual’s social network – more specifically, the study investigates the individuals' number of social contacts and the diversity in their social networks. Are there differences in the individual's social network between the different welfare regimes? Does this correlate with the social safety nets provided by the different regimes? The study also aims to compare the strength of this correlation with other variables such as gender, age, educational level, partnership, and employment. This study is based on research theories of social capital, social contacts, and social welfare regimes. The study is quantitative in its nature and uses secondary data from the International Social Survey Program (ISSP) 2017. The method used are two different binary multiple logistic regression models. The first regression model examines the number of social contacts and the second one network diversity. The results indicate that there is a correlation between the number of social contacts, network diversity and welfare regimes. According to this study the stronger the social safety net is, the less diversified the individual’s social network is - and the lower the number of social contacts. This is particularly evident among older individuals in the population. Furthermore, this study suggests that partnership, education,and employment are influential variables for network diversity and the number of social contacts. The study contributes to an understanding on how the social security of welfare regimes tends to reduce individuals' need of creating and maintaining their own social networks. This area, separate from social capital, can contribute to better understanding on how, for example, social isolation can emerge from a macro perspective. However, we recommend further research in this area to provide deeper insight on the effects that may arise.
303

L’isolement social au Sénégal rural : contribution à l’approche des réseaux sociaux en démographie

Deslauriers, Véronique 05 1900 (has links)
En Afrique subsaharienne, d’importantes mutations sociales, économiques et démographiques sont en cours. Leurs conséquences sur les formes et la force des solidarités familiales posent des défis à la procuration de soutien social. Malgré ces transformations, l’isolement social y demeure peu abordé. L’objectif principal de la thèse est de proposer un approche démographique ancrée dans le paradigme des réseaux sociaux pour étudier le phénomène de l’isolement social chez les Siin Sereer de Niakhar, un groupe ethnique du bassin arachidier au Sénégal rural. Le premier article de cette thèse vise à identifier un cadre théorique pour étudier l’isolement social en Afrique subsaharienne rurale et décrire les formes de cet isolement ainsi que les évènements à son origine. Des entretiens qualitatifs individuels ont permis d’identifier le niveau d’intégration au sein du système d’assurance informelle et la (mauvaise) qualité des relations sociales comme dimensions principales de l’isolement social. Le cadre théorique des sociétés de solidarités et des principes de l’économie morale permettent de cerner l’organisation sociale ainsi que le système de protection sociale prévalant dans ce contexte. Ce faisant, les motifs de l’isolement social sont compris de manière contextuelle. À partir des résultats de l’analyse qualitative, le deuxième article de la thèse vise à développer une typologie des réseaux sociaux capable de rendre compte de l'isolement social et décrire les caractéristiques socio-démographiques des individus dans les différents types de réseaux sociaux identifiés. Cette approche par méthodes mixtes permet de développer une classification sensible aux spécificités culturelles, fondée sur l'expérience locale de la sociabilité et de l'isolement social. En plus des groupes intégrés localement et élites locales, les résultats suggèrent l’existence de deux réseaux dépourvus socialement (isolés localement et relations contraintes) qui représentent près de la moitié des résidents du village. Cette distribution suggère que la vulnérabilité socialeest un enjeu important dans ce contexte. La description socio-démographique des réseaux indique que les femmes sont surreprésentées dans les deux types de réseaux sociaux dépourvus socialement. Le dernier article de la thèse étudie les déterminants de la dimension subjective de l’isolement social, la solitude. Nous incluons dans nos analyses les caractéristiques socio-démographiques des répondants ainsi que leur niveau d’intégration sociale, opérationnalisée à travers notre typologie des réseaux sociaux qui est capable de rendre compte de l'isolement social. Nos analyses révèlent qu’à Niakhar, certains déterminants de la solitude sont spécifiques aux hommes ou aux femmes, et d’autres leur sont communs. Aussi, l’étude suggère que l’effet du niveau d’intégration sociale sur la solitude varie selon l’âge et le sexe. Comparativement aux hommes, pour les femmes, un niveau élevé d’intégration sociale n’est pas garant d’une absence de solitude et de déprime. Pour elles, les enjeux autour de ces sentiments négatifs résident plus fortement dans la proximité avec leurs enfants. Les résultats de cette thèse contribuent à la fois à une meilleure compréhension et une mesure plus adéquate de l’isolement social dans un contexte différent des sociétés industrialisées où, face aux changements sociaux en cours, l’effritement des solidarités sociales risque d’entraîner un agrandissement des inégalités sociales et de vulnérabiliser une proportion croissante de résidents des milieux ruraux. / In sub-Saharan Africa, major social, economic, and demographic changes are underway. Their consequences on the forms and strength of family solidarities challenge the provision of social support. Despite these transformations, social isolation remains little studied and understood. This dissertation aims to propose a demographic approach anchored in the social network paradigm to study social isolation among the Siin Sereer, an ethnic group in the groundnut basin of rural Senegal. The first article aims to identify a theoretical framework for studying social isolation in rural sub-Saharan Africa and to describe the forms as well as the events leading to social isolation. Individual qualitative interviews were used to identify the level of integration within the informal insurance system and the quality of social relations as the main dimensions of social isolation. The theoretical framework of solidarity societies and the principles of the moral economy are used to identify the social organization and the social protection system prevailing in this context. In this way, social isolation is understood in a contextual way. Based on the findings of the qualitative analysis, the second paper aims to develop a typology of social networks capable of accounting for social isolation and to describe the socio-demographic characteristics of individuals in the different types of social networks identified. This mixed-methods approach allows for the development of a culturally sensitive classification based on the local experience of sociability and social isolation. In addition to the locally integrated and local elite groups, the results suggest the existence of two socially deprived networks (locally isolated and constrained relationships) that account for almost half of of the village residents. This distribution suggests that social vulnerability is an important issue in this context. The socio-demographic description of the networks indicates that women are over-represented in both types of socially deprived networks. The last paper investigates the determinants of the subjective dimension of social isolation, loneliness. We include in our analyses the socio-demographic characteristics of the respondents as well as their level of social integration, operationalized through our typology of social networks which can capture social isolation. Our analyses reveal that in Niakhar, some determinants of loneliness are specific to men or women, and others are common to both sexes. Also, the study suggests that the effect of the level of social integration on loneliness varies with age and sex. Compared to men, for women, a high level of social integration does not guarantee an absence of loneliness and depression. For them, the issues surrounding these negative feelings lie more strongly in the proximity to their children. This dissertation contributes to both a better understanding and a more adequate measurement of social isolation in a context different from that of industrialized societies where, in the face of ongoing social change, the erosion of social solidarities risks leading to an increase in social inequalities and the vulnerability of a growing proportion of rural residents.
304

Social isolation, frailty, and health outcomes among community-dwelling older adults : a longitudinal study in Quebec

Mehrabi, Fereshteh 04 1900 (has links)
Introduction : L’isolement social est un problème de santé publique qui est lié à des résultats de santé négatifs. Cependant, le niveau d’association entre l’isolement social et la santé reste inconnu. Cette association peut être influencée par des facteurs biologiques associés à l’âge, tels que la fragilité. L’objectif général de cette thèse était d’examiner les interrelations entre l’isolement social, la fragilité et les résultats de santé physique, mentale et cognitive chez les personnes âgées au Québec. Méthodes : Les données proviennent des trois phases de l’étude longitudinale FRéLE, une étude de population auprès de 1643 personnes âgées de 65 ans et plus vivant à domicile dans la province de Québec au Canada. S’appuyant sur la théorie de Berkman, nous avons mesuré l’isolement social par la participation sociale, les réseaux sociaux et le soutien social provenant de différents liens sociaux tels que les amis, la famille nucléaire et la famille élargie. Nous avons opérationnalisé la fragilité en utilisant le phénotype de fragilité de Fried. Les résultats de santé comprenaient l’incapacité physique, la comorbidité, la dépression et la fonction cognitive. Pour atteindre notre objectif, premièrement nous avons effectué un examen de la portée afin de synthétiser la littérature existante sur l’interrelation entre l’isolement social, la fragilité et la santé ainsi que leurs modérateurs et médiateurs. Deuxièmement, nous avons réalisé une série de modèles de régression multivariés pour examiner si la fragilité joue un rôle modérateur sur les relations entre l’isolement social et la santé dans un premier temps. Troisièmement, nous avons réalisé une série de modèles de croissance pour examiner l’effet modérateur des changements de la fragilité sur les associations entre les changements de la relation sociale et la santé en deux ans. Résultats : Les résultats de l’examen de la portée ont révélé que la fragilité était fortement liée à la mauvaise santé. Cependant, peu d’études ont trouvé une association entre l’isolement social et la santé. En outre, l’association entre le soutien social et les résultats de santé était plus significative que celle des réseaux sociaux et la participation sociale (étude 1- Chapitre 4). Conformément aux résultats de l’examen de la portée, l’analyse transversale a démontré que l’isolement social, plus précisément ou particulièrement le soutien social est lié à la santé mentale et cognitive plutôt qu’à la santé physique chez les personnes âgées. L’analyse de modération a montré que les personnes âgées fragiles qui recevaient du soutien social de leurs amis, participaient à des activités sociales et qui avaient des amis et des fratries étaient en meilleure santé mentale et cognitive que les robustes (étude 2- Chapitre 5). L’analyse de modération longitudinale a révélé que les changements dans la fragilité ont un effet modérateur sur l’association entre les changements dans la participation sociale, le soutien social ainsi que les contacts sociaux avec les amis sur les changements dans la santé cognitive et mentale (étude 3- Chapitre 6). Conclusion : Cette étude longitudinale suggère que le soutien social et la qualité de la relation jouent un rôle compensatoire dans l’amélioration de la santé mentale des personnes âgées fragiles dès le début et au fil du temps. Les résultats éclairent davantage le rôle central des amitiés et de la participation sociale dans l’amélioration de l’état de santé des personnes âgées sur deux ans. / Introduction: Social isolation is a public health issue that is linked to various adverse health outcomes. However, the strength of the association between social isolation and health remains unknown. This association may be influenced by biological factors related to increasing age, such as frailty. Hence, the overall aim of this dissertation was to examine the interrelationships between social isolation, frailty, and physical, mental, and cognitive health outcomes among community-dwelling older adults in Québec. Methods: Data came from three waves of the FRéLE longitudinal study, a population-based study among 1643 community-dwelling older adults aged 65 and over in the province of Québec in Canada. Based upon Berkman’s theory, we measured social isolation through social participation, social networks, and social support from different social ties, namely friends, nuclear, and extended family. We assessed frailty using Fried’s frailty phenotype. Health outcomes included disability, comorbidity, depression, and cognitive function. To achieve our overall goal, we first conducted a scoping review to map and synthesize the existing evidence on the interrelationship between social isolation, frailty, and health outcomes and their possible moderators and mediators. Second, we performed a series of multivariate regression models to examine whether frailty cross-sectionally moderated the relationships between social isolation and health outcomes. Third, we performed a series of latent growth models to examine the moderating role of changes in frailty on the associations between changes in social relationships and health outcomes. Results: The results of the scoping review revealed that frailty was strongly linked to poor health outcomes; however, few studies found an association between social isolation and health outcomes. In addition, social support had a more significant association with health outcomes than with social networks and social participation (Study 1- Chapter 4). In accordance with the results of the scoping review, the cross-sectional analysis demonstrated that social isolation, particularly social support, is linked to mental and cognitive health rather than physical health among older adults. The moderation analysis demonstrated that frail older adults who received social support from friends, participated in social activities, and had friends and siblings were in better mental and cognitive health than robust peers (Study 2 - Chapter 5). The longitudinal moderation analysis revealed that changes in frailty moderated the association between changes in social participation, support from friends, nuclear, and extended family members, and social contacts with friends were associated with greater changes in cognitive and mental health among older adults (Study 3 - Chapter 6). Conclusion: This longitudinal study suggests that social support and the quality of the relationship have a compensatory role in improving mental health among frail older adults at baseline and over time. The findings further elucidate the pivotal role of friendships and social participation in enhancing health status among older adults in two years.
305

Life stories of anxious people

Stanton, Mari Isabell 30 June 2005 (has links)
This study was aimed at giving a voice to two people, constructed as anxious. The epistemological framework is social constructionism. Two in-depth interviews with individuals who constructed themselves, or accepted the constructions of others of themselves as anxious, were done. The 'case study approach' was chosen as most suitable method to gain access to the information. 'Thematic content analysis' was the method of analysis. The life stories of participants were reconstructed in terms of themes. Recurring themes in these life stories were elucidated and linked with the literature. This study allowed valuable and rich information about the life stories of two anxious people to emerge. Amongst the identified themes, 'sensitivity' and the need for 'authenticity' were identified as particularly important areas for clinical practice and future research. Lay people wishing to gain a better understanding of either their own or their loved one's anxiety could also benefit from this study. / Psychology / M.A. (Clinical Psychology)
306

Social exclusion among students with visual impairments at UKZN Edgewood and Howard College campuses.

Subrayen, Roshanthni. January 2011 (has links)
Title: Social exclusion amongst students with visual impairments at UKZN Howard College and Edgewood Campuses. This research used a qualitative study exploring thick descriptions, inside voices and perspectives of “otherization”, powerlessness and voiceless-ness resulting from social exclusionary processes perpetuated by social and university structures and poverty. Convenience sampling was used. Semi structured individual interviews and focus group discussions were used to explore the key research questions focusing on social and university challenges experienced by students with visual impairments at UKZN in their social and university environments. The data was interpreted through The Anti Oppressive Approach (Dominelli, 2002) which gave support to understanding how continuing to ignore marginalized persons with visual impairments out of mainstream systems of development, perpetuated “othering”, powerlessness and voiceless-ness. This study provided evidence of the multi dimensional and multi structural nature of the social exclusionary process with key focus on abuse of power by dominant groups (sighted persons), violation of human rights and visual impairment as confinement as experienced by students with visual impairments either in their social or university environments or both. In addition, this theory looked at the manner in which dominant or superior groups arrange resources around them to benefit them and exclude persons with disabilities. This research also gave a voice to women with visual impairments being oppressed by sighted women as well as poverty as a social exclusionary process. Keywords: Anti Oppressive Theory, Visual Impairments, Social Exclusion / Thesis (M.A.)-University of KwaZulu-Natal, Durban, 2011.
307

Life stories of anxious people

Stanton, Mari Isabell 30 June 2005 (has links)
This study was aimed at giving a voice to two people, constructed as anxious. The epistemological framework is social constructionism. Two in-depth interviews with individuals who constructed themselves, or accepted the constructions of others of themselves as anxious, were done. The 'case study approach' was chosen as most suitable method to gain access to the information. 'Thematic content analysis' was the method of analysis. The life stories of participants were reconstructed in terms of themes. Recurring themes in these life stories were elucidated and linked with the literature. This study allowed valuable and rich information about the life stories of two anxious people to emerge. Amongst the identified themes, 'sensitivity' and the need for 'authenticity' were identified as particularly important areas for clinical practice and future research. Lay people wishing to gain a better understanding of either their own or their loved one's anxiety could also benefit from this study. / Psychology / M.A. (Clinical Psychology)
308

Jak se žije rodičům na rodičovské dovolené v ČR? / How is the parents' life on parental leave in the Czech republic?

Keprová, Lydie January 2009 (has links)
The diploma thesis named "How is the parents' life on parental leave in the Czech republic?" identifies and analyzes the conditions of Czech parents, who are taking the leave to take care of their children, i.e. the parental leave, and the coherent allowance. Their situation is reviewed from three angles. From the economical point of view, the thesis identifies worsened financial situation of parents on parental leave, compensated only with the parental allowance. The comparison of the leave and the allowance in various European countries indicates different configurations due to their sociocultural context and historical background. In the research in childcare services is pointed out that the offer is insufficient and that the parents, who use them temporarily, are at disadvantage. In the other hand, the diploma thesis introduces new and more suitable services being provided. In the prevention of social isolation of parents with small children, numerous services provided by non-governmental organizations (in contrast with the governmental and commercial sectors) are described, considering also the disproportional geographical configuration of these subjects. The stakeholder analysis refers about interest, influence and attitude of people, communities and organizations involved. The conclusion of...
309

Äldre människor i en pandemi : Den sociala isoleringens inverkan på äldres hälsa / Elderly in a pandemic : The impact of social isolation on older people’s health

Elg, Pernilla, Jonasson, Linnea January 2021 (has links)
Background: In 2019 a new virus by the name Sars-coronavirus-2 that caused a disease named Covid-19 and spread globally creating a pandemic. Due to the pandemic, restrictions were created that limited people's everyday life. There were many variations of the restrictions between countries, but they were all based on distancing. The nursing theorist Katie Eriksson describes the suffering in life and everything it means to be a human among humans which makes the pandemic a part of the humans suffering.  Nurses have many ethic codes and core competencies to apply in their work to prevent suffering. Aim: To illustrate the impact of social isolation on the elderly's health during the covid-19 pandemic from a nursing perspective Method: A systematic literature study including 13 scientifically articles that related to the aim. Result: Three themes and five subthemes were identified. These indicate a reduced health among older people, mostly regarding loneliness, worrying, anxiety but also subjective age, ageism and resources and the use of resources among the elderly in order to handle the situation. Conclusion: The health among the elderly have decreased due to the social isolation which, according to Katie Eriksson is part of the human suffering in life. Nurses have, with support from their core competencies and ethics codes a big responsibility to reduce the suffering and encourage health during the pandemic / Bakgrund: År 2019 upptäcktes de nya viruset Sars-coronavirus-2 som gav upphov till sjukdomen Covid-19 vilket fick global spridning och utvecklades till en pandemi. Till följd av pandemin skapades ett flertal restriktioner som begränsat människor i sin vardag. Det fanns stora variationer mellan olika länders restriktioner men de hade distansering som gemensam nämnare. Omvårdnadsteorietikern Katie Eriksson beskriver att livslidande är allt det innebär att vara människa bland människor, vilket gör pandemin till en del av människans livslidande. Sjuksköterskorna har flera etiska koder och kärnkompetenser att förhålla sig till i arbetet mot att lindra lidandet för människor.  Syfte: Att belysa den sociala isoleringens inverkan på äldre människors hälsa under covid-19 pandemin ur ett omvårdnadsperspektiv. Metod: Systematisk litteraturstudie som inkluderade 13 vetenskapliga artiklar som svarade på syftet. Resultat: Tre teman och fem underteman identifierades. Dessa påvisar en ökad ohälsa bland äldre människor, främst i form av ökad ensamhet, oro och ångest men även problem som berör subjektiv ålder, åldersdiskriminering samt vilka resurser äldre människorna har och hur de använt dessa för att hantera sin situation. Konklusion: Det finns en ökad ohälsa bland de äldre människorna till följd av den sociala isoleringen vilket enligt Katie Eriksson är en del av människans livslidande. Sjuksköterskan har med stöd i sina kärnkompetenser och etiska koder ett stort ansvar för att lindra lidandet och främja hälsan under pandemin.
310

Measures of Cancer-related Loneliness and Negative Social Expectations: Development and Preliminary Validation

Adams, Rebecca N. 21 January 2016 (has links)
Indiana University-Purdue University Indianapolis (IUPUI) / Loneliness is a known risk factor for poor mental and physical health outcomes in the general population, and preliminary research suggests that loneliness is linked to poorer health in cancer patients as well. Various aspects of the cancer experience (e.g., heightened existential concerns) lend themselves to making patients feel alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Thus, loneliness interventions in cancer should be tailored to address illness-related social conditions and negative social expectations. Prior to the development of loneliness interventions for cancer populations, cancer-specific tools are needed to assess: (1) loneliness attributed to cancer (i.e., cancer-related loneliness), and (2) negative social expectations related to cancer. In the current project I developed measures of cancer-related loneliness and cancer-related negative social expectations for use in future theory-based loneliness research. A mixed-methods study design was employed. First, I developed items for the measure of cancer-related loneliness (i.e., the Cancer Loneliness Scale) based on theory, prior research, and expert feedback. Second, I conducted a clinic-based qualitative study (n=15) to: (1) obtain cancer patient feedback on the Cancer Loneliness Scale items, and (2) inform development of the item pool for the measure of negative social expectations (i.e., the Cancer-related Negative Social Expectations Scale). Interviews were audiotaped, transcribed verbatim, and then transferred to Atlas.ti for analysis. Content analysis was used to analyze data regarding patient feedback and theoretical thematic analysis was used to analyze data regarding negative social expectations. Overall, patients said they liked the Cancer Loneliness Scale and no changes were made to the items based on patient feedback. Based on results, I also created five content domains of negative social expectations that were represented in the item pool for the Cancer-related Negative Social Expectations Scale. Third, I conducted a telephone and mail-based quantitative study (n=186) to assess psychometric properties of the two new measures. Dimensionality was determined using confirmatory factor analysis. Reliability was assessed by examining internal consistency coefficients and construct validity was assessed by examining theoretical relationships between the Cancer Loneliness Scale, the Cancer-related Negative Social Expectations Scale, and existing reliable and valid measures of health and social well-being. The final products of the project included a 7-item unidimensional Cancer Loneliness Scale and 5-item unidimensional Cancer-related Negative Social Expectations Scale. Excellent evidence for reliability and validity was found for both measures. The resulting measures have both clinical and research utility.

Page generated in 0.1065 seconds