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  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
531

O que significa mediar o processo de escolariza??o de alunos com defici?ncia intelectual? Concep??es e pr?ticas docentes / What does it mean to mediate the process of schooling of students with intellectual disabilities?

LIMA, Marcela Francis Costa 31 January 2017 (has links)
Submitted by Jorge Silva (jorgelmsilva@ufrrj.br) on 2018-03-14T17:15:18Z No. of bitstreams: 1 2017 - Marcela Francis Costa Lima.pdf: 2433368 bytes, checksum: 77c6ed296f04998a2e3c25cc6c60a1ea (MD5) / Made available in DSpace on 2018-03-14T17:15:18Z (GMT). No. of bitstreams: 1 2017 - Marcela Francis Costa Lima.pdf: 2433368 bytes, checksum: 77c6ed296f04998a2e3c25cc6c60a1ea (MD5) Previous issue date: 2017-01-31 / CAPES / This dissertation is linked to the line of research: Contemporary Studies and Educational Practices of the Graduate Program in Education, Contemporary Contexts and Popular Demands (PPGEduc) of the Federal Rural University of Rio de Janeiro (UFRRJ) and the Observatory of Education Program (OBEDUC), funded by the Coordination for the Improvement of Higher Education Personnel (CAPES) entitled "The schooling of students with intellectual disabilities: public policies, cognitive processes and evaluation of learning". Three postgraduate programs participate in this project: Federal Rural University of Rio de Janeiro (UFRRJ), State University of Santa Catarina (UDESC) and University of Vale do Itaja? (UNIVALI). This dissertation aims to analyze the multiple dimensions of school inclusion, at the interfaces between the teaching conceptions and the mediation processes of the learning of students with intellectual disabilities, in the common classes of schools in the Baixada Fluminense. For this, the following specific objectives were outlined: analyze the conceptions of mediation and school inclusion from the perspective of teachers; Identify the level of involvement of students with intellectual disabilities and their learning in this process. As a theoretical basis, we refer to the historical-cultural perspective of Vygotsky. The methodology was based on the qualitative perspective because we believe that research of this magnitude allows us an analysis that considers the particularities of the investigated reality. As data collection instruments, we used classroom observation, the scale of involvement, open interviews and semi-structured questionnaires. For the analysis of the data we used the content analysis that allowed us to relate the data obtained in the research with the theoretical reference that guides the study. In these aspects, after the data analysis, the results indicate that the level of involvement of the subjects with intellectual disability in the proposed activities is entirely related to the pedagogical mediations directed to them. In addition, the data showed that quality mediations work as compensatory in the schooling process of subjects with intellectual disability, providing the acquisition of scientific concepts and the development of higher psychological functions. However, it has become clear that it is not any kind of mediation that provides learning opportunities for people with intellectual disabilities. The research also presents the teaching conceptions about the policy of school inclusion, the historical-cultural perspective and its concepts. Finally, contemporary reflections on the schooling process of students with intellectual disabilities in the Baixada Fluminense are presented. / A presente disserta??o vincula-se a linha de pesquisa: Estudos Contempor?neos e Pr?ticas Educativas do Programa de P?s-Gradua??o em Educa??o, Contextos Contempor?neos e Demandas Populares (PPGEduc) da Universidade Federal Rural do Rio de Janeiro (UFRRJ) e ao Programa Observat?rio da Educa??o (OBEDUC) financiado pela Coordena??o de Aperfei?oamento de Pessoal de N?vel Superior (CAPES) intitulado ?A escolariza??o de alunos com defici?ncia intelectual: pol?ticas p?blicas, processos cognitivos e avalia??o da aprendizagem?. Participam desse projeto tr?s programas de P?s-Gradua??o, a saber: Universidade Federal Rural do Rio de Janeiro (UFRRJ), da Universidade Estadual de Santa Catarina (UDESC) e da Universidade do Vale do Itaja? (UNIVALI). Esta disserta??o tem como objetivo analisar as m?ltiplas dimens?es da inclus?o escolar, nas interfaces entre as concep??es docentes e os processos de media??o da aprendizagem de alunos com defici?ncia intelectual, nas classes comuns de escolas da Baixada Fluminense. Para isso, os seguintes objetivos espec?ficos foram delineados: analisar as concep??es de media??o e inclus?o escolar na perspectiva dos professores; identificar o n?vel de envolvimento dos alunos com defici?ncia intelectual e suas aprendizagens neste processo. Como fundamenta??o te?rica, nos remetemos a perspectiva hist?rico-cultural de Vigotski. A metodologia apoiou-se na perspectiva qualitativa por acreditarmos que pesquisas dessa envergadura nos possibilitam uma an?lise que considera as particularidades da realidade investigada. Como instrumentos de coleta de dados utilizamos a observa??o em sala de aula, a escala de envolvimento, entrevistas abertas e question?rios semiestruturados. Para a an?lise dos dados utilizamos a an?lise de conte?do que nos permitiu relacionar os dados obtidos na pesquisa com o referencial te?rico que norteia o estudo. Sob esses aspectos, ap?s a an?lise dos dados, os resultados apontam que o n?vel de envolvimento dos sujeitos com defici?ncia intelectual nas atividades propostas est? inteiramente relacionado com as media??es pedag?gicas direcionadas aos mesmos. Al?m disso, os dados evidenciaram que as media??es de qualidade funcionam como compensat?rias no processo de escolariza??o de sujeitos com defici?ncia intelectual, proporcionando a aquisi??o de conceitos cient?ficos e o desenvolvimento das fun??es psicol?gicas superiores. Contudo, ficou evidente que n?o ? qualquer tipo de media??o que propicia possibilidades de aprendizagem para os sujeitos com defici?ncia intelectual. A pesquisa tamb?m apresenta as concep??es docentes sobre a pol?tica de inclus?o escolar, a perspectiva hist?rico-cultural e seus conceitos. Por fim, s?o apresentadas reflex?es contempor?neas sobre o processo de escolariza??o de alunos com defici?ncia intelectual na Baixada Fluminense.
532

A Sala de Recursos Multifuncional: a proposta oficial para o trabalho docente frente às necessidades educacionais dos alunos com deficiência intelectual / The Multifunctional Room Features: the official proposal for the teaching work forward to the educational needs of students with intellectual disabilities

Pertile, Eliane Brunetto 12 March 2014 (has links)
Made available in DSpace on 2017-07-10T16:16:56Z (GMT). No. of bitstreams: 1 Eliane Pertile.pdf: 1300783 bytes, checksum: 5901f9178110708c11e0744e1fe1ff6b (MD5) Previous issue date: 2014-03-12 / The present study aimed to understand the proposal released by the Ministry of Education (MEC) for teaching work in Rooms Multifunction Resources (SRM), with students with intellectual disabilities. The survey was conducted through documentary and bibliographical study. On desk research, we selected regulations that establish special education in inclusive perspective and guiding materials for pedagogical issues, published by the MEC. The literature, in turn, made the analysis of these documents by understanding the social context that determines the depth and specificity on the development of people with intellectual disabilities, through the prism of Historical-Cultural Theory. We undertook an analysis of the underlying language meanings expressed in the documents as identification of intentionality that they serve. We understand that this approach is relevant considering that the SRM was disseminated nationally, gained prominence in referrals for special education in inclusive perspective and constituted as an official proposal to meet students, with priority space for the realization of Specialized Educational Services (ESA ). The study had developed the understanding that the argumentative framework expressed by advisors, published and disseminated by the MEC documents, is compatible with these principles in constructivist theory, presents a conception of human development spontaneist, sustained a biological understanding, the learner's own regulates their development and thus empties the mediations inherent in the process of schooling, since devalues school content and the act of teaching. Based on the research that we use, it was possible to understand that such guidelines are consistent with the formation of the right man for the composition of the workforce updated with the requirements of the contemporary production process. Thus, they predict a unilateral training with restricted and immediate acquisition of skills targeted at the work. We understand, therefore, that once they are in agreement with the demands of training expected to reproduction of existing conditions, the proposals for the teaching job does not converge to the humanization of individuals with intellectual disabilities / O estudo apresentado teve o objetivo de compreender a proposta divulgada pelo Ministério da Educação (MEC) para o trabalho docente nas Salas de Recursos Multifuncionais (SRM), junto a alunos com deficiência intelectual. A pesquisa foi realizada por meio de estudo documental e bibliográfico. Na investigação documental, selecionamos normativas que estabelecem a educação especial na perspectiva inclusiva e materiais orientadores para as questões pedagógicas, divulgados pelo MEC. A pesquisa bibliográfica, por sua vez, subsidiou a análise desses documentos por meio da compreensão do contexto social que os determina e do aprofundamento sobre a especificidade do desenvolvimento da pessoa com deficiência intelectual, sob o prisma da Teoria Histórico-Cultural. Empreendemos a análise dos sentidos subjacentes à linguagem expressa nos documentos como forma de identificação da intencionalidade a que estes atendem. Compreendemos que tal abordagem é relevante tendo em vista que a SRM foi disseminada nacionalmente, ganhou destaque nos encaminhamentos da educação especial na perspectiva inclusiva e se constituiu como proposta oficial para o atendimento aos alunos, sendo espaço prioritário para a realização do Atendimento Educacional Especializado (AEE). O estudo desenvolvido apresentou a compreensão de que o quadro argumentativo expresso pelos documentos orientadores, publicados e divulgados pelo MEC, é compatível com os princípios presentes na teoria Construtivista, apresenta uma concepção de desenvolvimento humano espontaneísta, sustentada num entendimento biológico, em que o próprio aluno regula seu desenvolvimento e, assim, esvazia as mediações inerentes ao processo de escolarização, uma vez que desvaloriza os conteúdos escolares e o ato de ensinar. Com base nos pesquisadores a que recorremos, foi possível entender que tais orientações são coerentes com a formação do homem adequado para a composição da mão de obra atualizada às exigências do processo produtivo contemporâneo. Assim, elas preveem uma formação unilateral, com aquisição de competências restritas e imediatas direcionadas para o trabalho. Compreendemos, portanto, que uma vez que estejam em concordância com as demandas da formação esperada para a reprodução das condições vigentes, as proposições para o trabalho docente não convergem para a humanização dos sujeitos com deficiência intelectual
533

Développement de la lecture chez des enfants présentant une déficience intellectuelle bénéficiant d'une ULIS École : étude longitudinale / Reading development in children with intellectual disabilities in ULIS School (localized unit for inclusive education) : longitudinal study

Guihard-Lepetit, Sylviane 14 November 2018 (has links)
Le paradigme actuel de pleine participation sociale place la lecture en compétence fondamentale. Dans ce contexte, notre thèse cherche à comprendre le développement de la lecture dans la déficience intellectuelle et d’approcher des interrelations possibles entre les différents domaines cognitifs et la lecture. Notre étude longitudinale suit le développement de la lecture d’une trentaine d’enfants non-lecteurs bénéficiant d’un dispositif Ulis Ecole dans l’Académie de Rouen. Le protocole expérimental évalue la lecture et des compétences générales et spécifiques impliquées en lecture durant trois années scolaires. Pour comparaison, une trentaine d’enfants non-lecteurs ne présentant pas de déficience intellectuelle est évaluée avec le même protocole de la grande section au CE1.Les séquences développementales de la lecture observées mettent en évidence l’importance de la connaissance du nom et du son des lettres dans le développement de la lecture dans la déficience intellectuelle, tandis que les compétences phonologiques se développeraient en appui sur ces connaissances de la langue écrite. Toutefois, ces enfants peuvent présenter des profils de lecteurs en développement identiques à ceux d’enfants au développement typique. Ces résultats questionnent la définition et le développement de la conscience phonologique, ses interrelations avec la mémoire phonologique et son impact sur le niveau de lecture ultérieur. Les retombées sociales de notre recherche visent un changement de représentation du potentiel de développement de la lecture dans la déficience intellectuelle pour une école inclusive où les besoins doivent guider la réponse à l’intervention et non le diagnostic. / Today, full social participation paradigm places reading in fundamental competence. In this context, our thesis seeks to understand reading development in intellectual disability and to approach possible interrelations between different cognitive domains and reading. Our longitudinal study follows reading development of thirty non-reading children in Ulis School in Rouen Academy. The experimental protocol measures reading skills and general and specific skills involved to read during three school years. For comparison, 30 non-readers children without intellectual disability are evaluated with the same protocol from preschool third year to primary school second year. The developmental sequences of reading observed further highlight the importance of knowledge of the name and sound of letters in the development of reading in intellectual disability, while phonological skills would develop due to this written language knowledge. However, these children may have similar developing reader profiles to those of typically developing children. These results question the definition and development of phonological awareness, its interrelations with phonological memory and its impact on the future level of reading. The social benefits of our research aim to change the representation of the reading developmental potential in intellectual disability for an inclusive school where needs must guide the response to the intervention and not the diagnosis.
534

Sexualité et handicap mental : enquête sur le traitement social de la sexualité des personnes désignées comme « handicapées mentales » en France et en Suisse / Sexuality and Intellectual Disability : the Social Construction of the Sexuality of People Labelled as « Intellectually Disabled » in France and Switzerland

Nayak, Lucie 01 July 2014 (has links)
Le propos de la thèse est d’étudier le traitement social de la sexualité des personnes désignées comme « handicapées mentales » en Suisse et en France, par le biais d’une enquête qualitative réalisée par entretiens avec des personnes considérées comme « handicapées mentales », des parents, des éducateurs spécialisés et des assistants sexuels.Une première partie étudie les représentations des personnes désignées comme « handicapées mentales » au sujet de la sexualité et met en lumière des formes de leur vie sexuelle, souvent commentée mais qui restait inexplorée. Puis, la deuxième partie porte sur l’analyse des représentations et des pratiques institutionnelles et parentales relatives à l’accompagnement de la sexualité des personnes « handicapées mentales » dans le contexte actuel de la « santé sexuelle ». Enfin, la troisième partie de la thèse est consacrée à l’étude de l’assistance sexuelle telle que cette activité est récemment apparue en Suisse.En mobilisant le handicap mental et la sexualité comme des révélateurs mutuels, cette recherche se donne ainsi pour objectif d’analyser comment les différentes catégories d’acteurs impliqués dans l’accompagnement de la sexualité des personnes « handicapées mentales » co-construisent les normes qui régissent la vie sexuelle de ces dernières. Elle vise à offrir une étude la plus complète possible du traitement social de leur sexualité et des logiques qui le sous-tendent. / The subject of this dissertation is to study the social construction of the sexuality of people labelled as « intellectually disabled » in Switzerland and in France by means of a qualitative survey realized through interviews with persons considered as « intellectually disabled », parents, specialized educators and sexual assistants.A first part deals with the analysis of the representations of persons labelled as « intellectually disabled » regarding sexuality and with bringing to light the forms of their sexual life, often commented but still unexplored. The second part aims at analyzing the institutional and parental representations and practices towards the sexuality of people considered as « intellectually disabled » in the current context of « sexual health ». Finally, the third part of this dissertation studies the recent activity of sexual assistance in Switzerland.By mobilizing intellectual disability and sexuality together, this research aims at analyzing how the different categories of actors implied in accompanying « intellectually disabled» people in their sexuality co-build the norms that govern their sexual life. It aims at proposing a complete study of the social treatment of their sexuality and the logics that underlie them.
535

DESISTANCE FROM CRIME OF SERIOUS JUVENILE OFFENDERS: EXAMINING THE SOCIAL AND INDIVIDUAL DIFFERENCES

Dunkley, Lisa 01 January 2018 (has links)
There is an overrepresentation of youths with disabilities in the juvenile justice system. As a result, each year thousands of juvenile offenders despite of the seriousness of the crimes committed, are released from incarceration with the hopes of living a successful life in society. Despite progressive research on identifying factors associated with desistance, it is still unclear what factors contribute to desistance for serious juvenile offenders and especially those with disabilities. The current study investigated the individual differences (e.g., moral disengagement, motivation to succeed and impulse control) and social factors (e.g., employment, education and maternal warmth) that are important in the process of desistance for serious juvenile offenders. The sample of 14 to 17-year-old male and female offenders (N =1354) was composed primarily of ethnically marginalized youths who have committed serious offenses. Results of the study indicated that both social and individual factors are significant predictors of desistance from crime. However, varied significance was found as it relates to Aggressive, Income Offending and desistance. Results obtained are applicable to scholarship across multiple disciplines, as well as inform policy, practice and future research on desistance from crime. Limitations of the study were also stated.
536

THE EFFECTS OF VIDEO ACTIVITY SCHEDULES ON LIFE SKILLS FOR INDIVIDUALS WITH MILD INTELLECTUAL DISABILITY

Ortiz, Kaylee A. 01 January 2017 (has links)
This study used a multiple probe across settings design to evaluate the effects of video activity schedules (VidAS) on the acquisition of life skills in various settings within the home. In a technology training phase, participants were taught how to navigate a mobile application and use the pause and play feature of the video using a system of least prompts. In baseline, participants were given a task direction to complete the tasks within each setting with access to a static picture schedule. During intervention, participant task completion was evaluated when self-instructing with the use of VidAS in each setting. One participant’s settings consisted of the living room, kitchen, and outdoor schedule, the other participant’s settings consisted of a checkbook, kitchen, and laundry schedule. One participant learned to self-instruct using the mobile technology and independently complete and navigate between and within tasks within each schedule.
537

Autonomy in the California Disability Services System

Carbone, Lisa Ann S. 01 January 2015 (has links)
Legislation concerning California residents with intellectual and developmental disabilities (ID/DD) requires recipients of services to be treated as independent individuals while emphasizing self-determination. At the same time, under regulatory procedures, recipients are considered dependent on the delivered services and not self-determinant. Neither the California Department of Developmental Services nor the trade associations representing community service providers have established a unified, systematic practice to support self-determination. This phenomenological study explored the experience of adults with ID/DD working toward self-determination. Specifically, it explored how medical and social models contribute to shaping and actualizing the independence of this population. Interviews with eight adults with ID/DD explored the perceived barriers to, and opportunities for, achieving independence through self-determination. Under the current statutory regulations, the study viewed two conceptual lenses. The first lens, social role valorization, is based on the study of normalization. The second lens, social reaction, emphasizes a response to the disparities that acknowledge the political, cultural, and social beliefs associated with theories of deviance and social role valorization. The findings demonstrated that self-determination requires collaboration between coordinated services, primary social systems, and theoretical services supporting social role value. The discovery of these key elements may help California's disability service system fulfill legislative requirements to increase opportunities for personal choice.
538

Undervisning i en skola för alla : Specialpedagogiska perspektiv i rektorers och lärares beskrivningar kring undervisning av grundsärskoleelever i grundskolan / : Special educational perspectives in principals' and teachers' descriptions of teaching pupils with intellectual disability in regular compulsory school

Westman, Anna January 2019 (has links)
Syftet med denna studie är att undersöka vilka specialpedagogiska perspektiv som framträder när några grundskollärare, lärare i grundsärskolan och rektorer beskriver undervisning av integrerade grundsärskoleelever i grundskolan. Syftet utmynnar i frågeställningar som handlar om hur de tre yrkeskategorierna beskriver förberedelse, genomförande samt utvärdering av sådan undervisning. För att besvara dessa frågeställningar har kvalitativa, halvstrukturerade intervjuer genomförts med två rektorer, två grundskollärare och två lärare i grundsärskolan, med erfarenheter av integrerade grundsärskoleelever. Studien tar sin utgångspunkt i den didaktiska triangeln och resultaten har sedan analyserats utifrån tre specialpedagogiska perspektiv; det kompensatoriska perspektivet, det kritiska perspektivet och dilemmaperspektivet. Resultatet visar att informanternas beskrivningar av undervisningens planering, genomförande och utvärdering har inslag av samtliga tre specialpedagogiska perspektiv, men att det kompensatoriska perspektivet dominerar. Lärarna uppger att de i mycket liten utsträckning samarbetar med lärare i den andra skolformen kring planering och genomförande av den integrerade undervisningen. I den utvärderande fasen sker ingen samverkan alls. Grundskoleelevernas roll vid integreringen nämns inte av någon av studiens informanter. En slutsats utifrån resultatet är att rektor kan, genom en större tydlighet, bidra till en bättre samverkan kring undervisning av grundsärskoleelever i grundskolan. En annan slutsats är att specialpedagogisk personal bör se alla elever i klassen som viktiga aktörer i inkluderingsarbetet och därför rikta socialt stöd till både grundskoleelever och grundsärskoleelever.Studien synliggör hur följder av kompensatoriska arbetsformer kan påverka den integrerade undervisningens olika faser, samt vikten av rektors roll för samverkan. / The aim of this study is to examine which special educational perspectives appear, when teachers in compulsory regular school, teachers in compulsory school for pupils with intellectual disability and principals, describe mainstreaming in regular school. This aim leads to questions about how representatives of the three professions describe planning, implementation and evaluation of such teaching. In order to answer these questions qualitative, semi structured interviews have been carried through with two teachers in compulsory regular school, two teachers in compulsory school for pupils with intellectual disability and two principals, with experience of mainstreaming of pupils with intellectual disability in compulsory regular school. The theoretical framework of this study is linked to the didactic triangle and the result was analyzed on the basis of three special educational perspectives; the compensatory perspective, the critical perspective and the dilemma perspective. The result indicates that the participants’ descriptions of the instructional phases, planning, implementation and evaluation, shows elements of all three perspectives, though with a predominance of the compensatory perspective. The teachers state that they cooperate on planning and implementing instruction, to a very small extent, with teachers from the other type of school. When it comes to the evaluation phase, there is no cooperation at all. The role of the pupils in the compulsory regular school when mainstreaming is not mentioned by any of the studies participants. One conclusion from the result is that principles can, with a greater clarity, contribute to a better instructional cooperation in mainstreaming education. Another conclusion is that special education staff should regard all pupils of/in the class as important actors in inclusive education and therefore offer social support to pupils with and without intellectual disabilities.This study makes visible how consequences of compensatory practices can affect the instructional phases of mainstreaming education, and the importance of principals’ role for cooperative work.
539

Sleep problems in children with an intellectual disability: The role of child and parent factors, and treatment efficacy using the Signposts program

Robinson, Anthony, trobinson@parentingrc.org.au January 2007 (has links)
The current research considered parent report of sleep problems in children with an intellectual disability (ID). Of specific interest were parents who reported child sleep issues/disturbances but who did not consider their child to have a sleep problem. Also of interest was the use of a general parent-training program to treat both the sleep and behaviour problems in children with an ID. Study 1 examined parent perceptions regarding sleep in children with an ID. Parents who reported a child sleep problem provided information on the types of sleep treatment tried and rated their effectiveness. Overall, 243 questionnaires were completed by parents of children with a range of disabilities aged between 3.1 to 18.7 years. While 62% of parents rated their child as displaying problematic night settling, night waking, early waking, or other disturbing sleep behaviours, only 27% of parents considered their child to have a sleep problem. A higher number of parents (75%) than expected had tried at least one type of intervention, although it was not possible to discern 'self help' treatments from 'professionally sought' treatments. Study 2 investigated child and parent factors associated with parent perception of sleep problems in children with an ID. Seventy-six parents from Study 1 completed measures in relation to child adaptive and daytime behaviour, parent stress, locus of control, personality (extraversion, neuroticism, and psychoticism), parenting competence, and perceived control over the child's sleep and daytime behaviour. Based on parent report on a sleep measure and response to the question 'do you think your child has a sleep problem' parents were allocated into one of three sleep groups: Parents who recognised a sleep problem (RSP, N=20), parents whose child did not have a sleep problem (NSP, N=35), and parents who did not recognise their child to have a sleep problem (USP, N=21). The results revealed differences between parents who do (RSP) and parents who do not (USP) recognise their child's sleep problem. These differences related to amount of child sleep (as reported by parents) and parent perceived control over the child's sleep and daytime behaviour. Study 3 examined the efficacy of a general parent-training (behaviour management) program, with sleep used as the training exemplar, for the treatment of sleep problems in children with an ID. Of the 20 parents in the RSP group in Study 2, five agreed to take part in Study 3 and three completed the intervention. The effect of the intervention on (a) a targeted sleep problem, (b) a targeted behaviour problem, (c) other sleep and daytime behaviours, (d) parent stress, (e) parent sleep, (f) parent sense of competence, and (g) parent perceived control over the child's sleep and daytime behaviour were examined. All parents reported an improvement in target sleep behaviour, and at follow-up all of the parents no longer considered their child to have a sleep problem. One parent reported a decrease in stress and an increase in measures of perceived control, and parenting competence, while two parents showed minimal to no improvement on child and parent outcomes.
540

Villkorat vuxenskap : Levd erfarenhet av intellektuellt funktionshinder, kön och ålder / Conditional Adulthood : Lived experience of intellectual disability, age and gender

Lövgren, Veronica January 2013 (has links)
The aim of this thesis is to explore and analyse lived experience of social categorisations such as intellectual disability, gender and age. The following overarching questions will direct the focus of the thesis, on how 13 middle-aged (aged 38-60 years) women and men who receive disability services according to the Act (1993:387) concerning Support and Service for Persons with Certain Functional Impairments (LSS), describe their everyday life practices: - In what way(s) are the social categorisations disability, gender, and age expressed in the interviews? How do the participants relate their lived experience of the social categorisation in relation to arenas such as work, family, and leisure time? How can this lived experience be understood in relation to the structures and conditions that form the institutions within the disability services? With a hermeneutic-phenomenological approach, the thesis is based on repeated audio- and video-recorded qualitative semi-structured interviews and field visits. The altogether 16 participants were divided into two groups: the main group consisted of 13 adults and a reference group, which consisted of 3 younger informants (aged 25-29 years). Despite political ambitions that state that people with disabilities should have opportunity to live like others, this thesis shows that their everyday life is, in fact, conditioned by institutional structures. The structures that conditions the disability services together with the social construction of disability, but also of age and gender, frames leisure time, social networks, family life, practicing partnership, mobility (especially for women), and working life – in short, these conditions their abilities to fulfil the expectations that are imbedded throughout the social construction of adulthood. The relationship with the labour force can be seen as an illustrative example: The ability to be part of a regular working force was central for the interviewees. However, the analysis showed that the work that was available for the participants, is a welfare state effort, that is situated in an intersection where a logic of care meets a logic derived from the open labour market, thereby creating a situation filled with contradictions. On the one hand, the informants felt an obligation to fulfil an almost Protestant work ethic. One the other hand, their work efforts are not acknowledged by society as work. On the one hand, daily activity is a voluntary right, on the other hand; the informants have little opportunity to relinquish this right, depending on the particular organisation of the disability services. The participants also expressed concerns about losing this work, a worry that can be seen as paradoxical in respect of their legislative right to daily activity.  The analysis has highlighted how the participants, in many situations, suffer a disadvantageous position with regard to hermeneutical resources to make sense of their experience. They also face structural obstacles to fully live an adult life. This could be described as experiencing societal norms of what one is expected to live up to, but at the same time be deprived of real opportunities to fulfil these requests – thereby, to live a contradiction. Lived experience of intellectual disability, gender and age, can therefore be considered as being a lived experience of a conditional adulthood.

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