The aim of this undergraduate thesis was to explore how the welfare officers at palliative units in Stockholm respond to the patients’ thoughts and experiences during the last phase of life, as well as exploring their picture of the patients experiences. The research questions of the study were: ▪ How do the welfare officers relate to the patients’ experience of their death? ▪ In what way do the welfare officers respond to the dying patient and his or her experiences? ▪ What knowledge/experience do the welfare officers have and what knowledge/experience do they consider is needed in their profession? To answer the research questions a qualitative method was used where five welfare officers in three different palliative units were interviewed. The empirical material was analysed through meaning concentration and are presented using exact quotations. It was discovered that the patients experiences cannot be generalized. However, common feelings are those of anxiety, fear and hope, which the welfare officers deal with through methods of counselling, i.e. they listen, ask questions and accommodate. The study revealed that the welfare officers viewed life experience, in different areas, as the most important aspect in order to cope with their work. The result of the study was analysed hermeneutically and phenomenologically. The theoretical framework used in the analysis was experience psychology and counselling as a method.

The aim of this essay was to study children’s experiences of their participation in a programme for children who have a parent with a mental illness. The study was written at the request of the Psychosis care in Örebro and was accomplished by qualitative interviews with five children at the ages of 11 to 16 years old. Previous research concerning children who have a parent with a mental illness and programmes for these children is accounted for. Antonovsky´s conception KASAM together with the conceptions of guilt and shame were used as the theoretical frame, from which the results of the interviews were analysed. Results from the analysis include children’s increased knowledge about mental illness, an increased KASAM and that the children found it positive meeting other children with similar experiences. Overall, the experiences from the programme seem to be positive, but a few ideas for improvements are given, amongst them equal gender and ages in the group. Finally a discussion is held where increased knowledge and research concerning children with mentally ill parents is desired.

Sammanfattning Undersökningen är riktad till dem som är intresserade av ett väldigt utmanande, nytt och framtidstänkande arbete med sörjande föräldrar. Ambitionen med studien har varit att få en fördjupad kunskap kring family support teamets arbete, roller och funktioner på ett barnhospice. Med hjälp av en kvalitativ metod har jag uppnått studiens syfte. I undersökningen har jag använt mig av frågeställningarna: Hur beskriver family support teamet sina arbetsuppgifter med obotligt sjuka barn och deras familjer? Samt vilket samarbete finns det mellan family support teamet och de övriga professionerna på Ty Hafan? Studieresultaten har jag relaterat till ett rollteoretiskt - samt organisationsteoretiskt perspektiv. Studiens huvudresultat är att family support teamets arbetare har flera olika roller där rollerna styrs av familjernas behov. Teamet ger ett emotionellt och psykosocialt stöd till barnen som har en obotlig sjukdom, deras familjer och anhöriga samt att delar av teamet handleder de andra teamen på barnhospicet. Teamet har en stor handlingsfrihet, dvs. organisationen (Ty Hafan) har inga speciella riktlinjer som family support teamet måste följa i deras arbete. I studien framkom det att yrkesprofessionerna på barnhospicet fungerar som ett komplement för varandra. Därför måste det finnas ett bra samarbete dem emellan. Den största skillnaden mellan family support teamet och de övriga teamen är att family support teamet är de enda professionella som är kvar i familjernas liv efter barnets död. Teamet finns som ett stöd för familjerna tills familjerna själva känner att de inte är i behov av teamets stöd längre. / Abstract The study is aimed for people who are interested in a very demanding, new and forward thinking work with grieving parents. The ambition with the study has been to gain a deepened knowledge about the family support team’s duties, roles and functions within a children’s hospice. With a qualitative method I have achieved the purpose of the study. In the study, I have been using the following questions: How does family support team describe their work duties with children with life-limited illnesses and their families? Also in what way does the family support team co-operate with other professionals at Ty Hafan? The results from the study have been related to a role theoretical and also organisation theoretical perspective. The study’s main result is that the family support team’s employers have many different work duties, where the duties are being regulated by the families’ needs. The team gives an emotional psychosocial support to the children with a life limited illness, their families and the relatives, also parts of the team guide the other teams in the Children’s hospice. The team have a great freedom of action, i.e. the organisation (Ty Hafan) does not have any specific guidelines that the family support team must follow in their work. It came out from the study that the professionals at the Children’s hospice complete each other. The greatest difference between the family support team and the other teams is that the family support team are the only ones who stay in contact with the families after their child’s death. The team works as a support for the families until they feel that they are not needed anymore.

No description available.

En intensivvårdssjuksköterska kommer i sin yrkesutövning ofta att möta närstående till svårt sjuka patienter. Tidigare studier har påvisat närståendes betydelse inom intensivvården och hur komplicerat samspelet med närstående kan vara, under de speciella omständigheter som råder på en intensivvårdsavdelning. Syftet med denna studie var att belysa intensivvårdssjuksköterskans erfarenheter av aspekter som bidrar till att främja ett gott samspel med patientens närstående. En kvalitativ ansats har använts i studien. Datainsamling utfördes via halvstrukturerade intervjuer, styrda av en intervjuguide. Tio intervjuer genomfördes med intensivvårdssjuksköterskor som arbetade på två olika intensivvårdsavdelningar i mellansverige. Inklusionskriterier var sjuksköterskor med specialistutbildning inom intensivvård med minst tre års erfarenhet av arbete inom specialiteten. Innehållsanalys av data genomfördes och tre huvudkategorier framträdde: Aspekter i intensivvårdsmiljön, Aspekter i den egna kompetensen samt Aspekter hos närstående. Resultatet visar att det finns åtskilliga aspekter, såväl i intensivvårdsmiljön som hos sjuksköterskorna själva samt hos de närstående, som kan bidra till att främja ett gott samspel. Intensivvårdsjuksköterskorna framhåller vikten av att vara förberedd samt att etablera en relation till de närstående. Hur väl detta lyckas påverkas av såväl yttre förutsättningar i intensivvårdsmiljön som den egna kompetensen. Resultatet indikerar även att färdigheter i att möta närstående erhålls genom yrkeserfarenhet, vilket väcker frågor om hur en oerfaren intensivvårdssjuksköterska hanterar samspelet med närstående. / A critical care nurse will in the course of her work often meet relatives of severely ill patients. Previous studies have confirmed the importance of relatives in intensive care and how complex the interaction with these may be, due to the special conditions existing in an intensive care unit. The purpose of this study was to highlight the critical care nurse's experiences of aspects that help improve a sound relationship with the patient's relatives. A qualitative approach was used in the study. Data collection was conducted through semi-structured interviews, guided by an interview guide. Ten interviews were conducted with ICU nurses who worked in two different intensive care units in central Sweden. Inclusion criteria were nurses with specialist training in intensive care, with at least three years experience of working in the ICU. Content analysis was conducted and three main categories emerged: Aspects of the intensive care environment, Aspects of their own competence and Aspects of significant others. The results show that there are several aspects. Both the intensive care environment, the nurses themselves as well as the patients relatives can help promote a sound relationship. Intensive care nurses stressed the importance of being prepared and to establish a relationship with the relatives. How well this succeeds is affected by both external conditions in the intensive care environment and the nurses own competence. The results also indicate that skills in meeting relatives is obtained by work experience, which raises questions about how an inexperienced ICU nurse does interact with relatives of patients.

<p>Sammanfattning</p><p>Undersökningen är riktad till dem som är intresserade av ett väldigt utmanande, nytt och framtidstänkande arbete med sörjande föräldrar. Ambitionen med studien har varit att få en fördjupad kunskap kring family support teamets arbete, roller och funktioner på ett barnhospice. Med hjälp av en kvalitativ metod har jag uppnått studiens syfte. I undersökningen har jag använt mig av frågeställningarna: Hur beskriver family support teamet sina arbetsuppgifter med obotligt sjuka barn och deras familjer? Samt vilket samarbete finns det mellan family support teamet och de övriga professionerna på Ty Hafan? Studieresultaten har jag relaterat till ett rollteoretiskt - samt organisationsteoretiskt perspektiv. Studiens huvudresultat är att family support teamets arbetare har flera olika roller där rollerna styrs av familjernas behov. Teamet ger ett emotionellt och psykosocialt stöd till barnen som har en obotlig sjukdom, deras familjer och anhöriga samt att delar av teamet handleder de andra teamen på barnhospicet. Teamet har en stor handlingsfrihet, dvs. organisationen (Ty Hafan) har inga speciella riktlinjer som family support teamet måste följa i deras arbete. I studien framkom det att yrkesprofessionerna på barnhospicet fungerar som ett komplement för varandra. Därför måste det finnas ett bra samarbete dem emellan. Den största skillnaden mellan family support teamet och de övriga teamen är att family support teamet är de enda professionella som är kvar i familjernas liv efter barnets död. Teamet finns som ett stöd för familjerna tills familjerna själva känner att de inte är i behov av teamets stöd längre.</p> / <p>Abstract</p><p>The study is aimed for people who are interested in a very demanding, new and forward thinking work with grieving parents. The ambition with the study has been to gain a deepened knowledge about the family support team’s duties, roles and functions within a children’s hospice. With a qualitative method I have achieved the purpose of the study. In the study, I have been using the following questions: How does family support team describe their work duties with children with life-limited illnesses and their families? Also in what way does the family support team co-operate with other professionals at Ty Hafan? The results from the study have been related to a role theoretical and also organisation theoretical perspective. The study’s main result is that the family support team’s employers have many different work duties, where the duties are being regulated by the families’ needs. The team gives an emotional psychosocial support to the children with a life limited illness, their families and the relatives, also parts of the team guide the other teams in the Children’s hospice. The team have a great freedom of action, i.e. the organisation (Ty Hafan) does not have any specific guidelines that the family support team must follow in their work. It came out from the study that the professionals at the Children’s hospice complete each other. The greatest difference between the family support team and the other teams is that the family support team are the only ones who stay in contact with the families after their child’s death. The team works as a support for the families until they feel that they are not needed anymore.</p>

Background: Touching exists in different forms and can be experienced through the skin. By touching oxytocin is released like a relaxing hormone which counteracts anxiety and depression. Therapeutic contact and healing touch are methods nurses’ uses to give positive feeling of serenity, warmth and wellbeing for the patients. Touching can be a method for communication and happiness when word is not enough. By touching can nurses notice if a patient is, for example, anxious. The hands of the nurse are important caring of the patient such as adequate touching calms and sooths anxiety and pain. Aim:  To describe the significance to give touch in nursing. Method: A literary summary of scientific articles published between 1995 until 2012, where seven of them have qualitative approach and three have quantitative and all of them found via the databases CINAHL and MEDLINE. Result: Nurses were describing how touching had positive significance for the patients. The nurses could by touching reduce the patient’s pain, anxiety and worries. Different sorts of touching was mentioned like massage. A general theme was touching by non-verbal communication which gave a sense of security to the patients. The nurses’ attitude to touch became a problem since the nurses only touched the patients when necessary, for example when caring by hygiene without respecting the patients’ integrity. Discussion: In the result discussion it was described how the limited knowledge by the nurses of touching. By training (and education) they could carry though touching with help of different types of touching, massage, tactile touching, therapeutic touch etc. It relieved the state of pain, anxiety, and it also created security, closeness, better sleep and well-being of the patient. The touch adapted to the patients’ needs was described as positive and meaningful. To build an interpersonal relationship was essential and fundamental before the nurse approached the patient.

Diss. (sammanfattning) Uppsala : Uppsala universitet, 2005. / Härtill 4 uppsatser.

Diss. (sammanfattning) Stockholm : Karolinska institutet, 2005. / Härtill 5 uppsatser.

Diss. (sammanfattning) Stockholm : Karolinska institutet, 2006. / Härtill 5 uppsatser.