This study focuses on investigating the dynamics of language brokering as Korean immigrant families experience environmental challenges associated with immigration. This study was conducted with qualitative research design with purposive sampling of Korean immigrant families. Six parent-child dyads were recruited and participating children were between 12 to 16 years old. Semi-structured interviews were conducted separately with parents and children in either English or Korean. Thematic analysis was employed for analyzing the transcribed interviews. The Dedoose software program was applied to assist the coding process. 12 subthemes were revealed under four main themes, which were aligned to the study's research questions. The twelve subthemes included parents' dependence on children, vulnerability and resilience of Korean immigrant families, children's socioemotional development through language brokering, and the role of first-born daughter in the family. Parent and child responses indicated how language brokering affects can be a risk in relation to children's development (i.e., with responsibility of language brokering leading the child to experience stress or experience the responsibility of translation as a burden. Positively, respondents indicated that the parent and child experienced a greater sense of empathy for each other's roles. The results derived from this study were aligned with the results of previous research conducted in the field in that language brokering affects parent-child relationship and the socioemotional development of children. The study adds to the literature with the interviewing both parents and children, thereby hearing both perspectives and experiences of parents and children on language brokering and parent-child relationships could be obtained. This study targeted Korean immigrant families since there is a lack in literature that have studied this population in relation to language brokering.

Mobility within the community is a necessary part of urban life for enhancing personal well-being and happiness. However, autistic individuals may not be the natural players in this context and have risks of using public transport, including getting disoriented, meltdown or shutdown, and being discriminated against in motion. This can be attributed to their difficulties in social communication and cognitive abilities brought about by autism. However, autistic individuals’ lived experience is rarely explored in the field. Thus, this study aims to examine their personal experiences and pay attention to how autism is enacted in public transport settings, and various encounters in a material environment. A two-month ethnographic study was used from the perspective of a micro-lens of a specific autistic adult individual. Through a narrative analysis of “key events” happening in the process of movements, the materiality of mobility by taking public transport for autistic individuals’ ordinary life was presented.  The findings and analysis are unfolding from three oriented dimensions. Firstly, I point out that as a material practical form of moving, encounters of the autistic participant with other passengers in a public moving space are merely a temporary gathering, shaping a relationship that avoids communication. Additionally, risks exist including information overload and being disoriented that show how autism is enacted in public transportation settings. Secondly, I suggest that as the material basis of the movements of taking public transport, the outside landscape presents the materialistic appearance of the modern city, bringing a sense of security as well as a channel for the autistic participant to learn new things, but at the same time the de-naturalization and modernity exacerbates the autistic one’s negative relation to the urban environment. Last, I demonstrate how the coercive nature of the technological objects intervenes in the originally pure tension between autistic individual and moving services, thus indirectly exposing the loss of discursive power and resources experienced by the participant.  Based on these findings, I draw on the discussions of the strategies and the built environment. From the standpoint of the former, it shows that prioritizing fast mobility has led to the neglect of actual needs for a higher standard of moving experience. This also indicates that the autistic one's resistance to movement often manifests as an attachment to the fixed and secure space of the home, forming the strategies of responsiveness and resistance. The latter suggests the ‘perspective turn’ to the social model of disability, realizing that being disabled might be a universal experience of a person, and everyone could be in a state of disability either permanently or temporarily. Therefore, optimizing the built environment of public transport not only benefits autistic individuals but also represents an investment in broader social well-being.

Bakgrund: Inflammatorisk tarmsjukdom innefattar både ulcerös kolit och Crohns sjukdom, vilka är kroniska inflammatoriska tarmsjukdomar. De båda sjukdomarna löper i skov med plötsliga försämringsperioder och långa perioder utan besvär. Det är viktigt att sjuksköterskan vidtar specifika omvårdnadsåtgärder samt förhåller sig personcentrerat där värden som värdighet bevaras för att stödja personen. Syfte: Att beskriva personers erfarenheter av att leva med inflammatorisk tarmsjukdom. Metod: Till metod valdes en litteraturöversikt och de databaser som användes var PubMed samt Cinahl Complete. Inklusionskriterier var vetenskapliga originalartiklar, genomgått peer-review, engelskt språk samt publicerade från år 2014 till 2024. Genom ett systematiskt urval arbetades tio artiklar fram, varav nio med kvalitativ design och en med mixad metod. Resultat: I litteraturöversiktens resultat framkom det att personer med inflammatorisk tarmsjukdom hade erfarenheten av att sjukdomen påverkade deras dagliga liv, både i det sociala livet och yrkeskarriären. Personer med inflammatorisk tarmsjukdom hade även erfarenheter att sjukdomen påverkade det emotionella välbefinnandet. Det lyftes även fram hur personer hanterade sjukdomen, vilka strategier som användes och stödets betydelse beskrevs. Slutsats: Litteraturöversikten visade att personer med inflammatorisk tarmsjukdom möter utmaningar inom många områden i livet. På grund av de anpassningar som individen måste genomgå är det viktigt att sjuksköterskan bidrar med stöd för att möjliggöra effektiv sjukdomshantering. Roys adaptionsteori kan ge sjuksköterskan en bättre förståelse för personernas anpassningsförmåga och kompensera med stöd för att hälsa och livskvalité ska upprätthållas. / Background: Inflammatory bowel disease encompasses both ulcerative colitis and Crohn's Disease, which are chronic inflammatory bowel diseases. Both diseases are characterized by periods of flare-ups with sudden exacerbations and long periods of remission. It is important for nurses to implement specific nursing interventions and to maintain a person-centered approach where values like dignity are preserved to support the person. Aim: To describe people's experiences of living with inflammatory bowel disease. Method: The chosen method was a literature review, with PubMed and CINAHL Complete as the selected databases. Inclusion criteria were scientific original articles that had undergone peer review, were in English, and were published from 2014 onwards. Through a systematic selection process, ten articles were identified, of which nine had a qualitative design and one used mixed methods. Results: In the results of the literature review, it was found that individuals with inflammatory bowel disease experienced the impact of the disease on their daily lives, including their social life and professional careers. They also reported that the disease affected their emotional well-being. Additionally, the review highlighted how individuals managed the disease, the strategies they used, and the significance of support. Conclusion: The literature review showed that individuals with inflammatory bowel disease face challenges in many areas of life. Due to the adaptations that the individual must undergo, it is important for nurses to provide support to enable effective disease management. Roy`s adaption theory can provide the nurse with a better understanding of individual`s adaptability and compensate with support to maintain health and quality of life.

Det har sedan början av 2000-talet skett en gradvis ökning av andelen som får vård för psykiatriska tillstånd. Specialistsjuksköterskan med inriktning mot psykiatrisk vård har flera specifika åtaganden, varav ett är att ansvara för att patienten får stöd och insatser för att stärka förmågan till egenvård och återhämtning. När specialistsjuksköterskan aktivt skapar tillitsfulla relationer, arbetar med en etisk medvetenhet, empati och gör patienten delaktig i utformningen av sin vårdplan, kan hon stötta patienten till egenvård och återhämtning. Specialistsjuksköterskan bör etablera god kontakt med anhöriga och ha insikt i att psykisk sjukdom drabbar hela familjen och inte bara den enskilde individen. Sjukvården har ansvar för att fånga upp patienter med svår psykisk sjukdom i ett tidigt skede för att minska lidande och återinsjuknande, men även för att spara på sjukvårdens resurser och ekonomi. Syftet med denna studie var att beskriva specialistsjuksköterskor inom psykiatrisk vårds levda erfarenheter av att vårda patienter enligt lagen om psykiatrisk tvångsvård. Enskilda, kvalitativa intervjuer genomfördes med åtta specialistsjuksköterskor inom psykiatrisk vård för att utforska fenomenet. Analysen av intervjuerna gjordes utifrån ett fenomenologiskt perspektiv med induktiv ansats. Resultatet presenteras i tre huvudkategorier och elva underkategorier. Huvudkategorierna benämns Professionell utveckling, Etiska överväganden och Vårdande förhållningssätt. Professionell utveckling består av underkategorierna Växa över tid, Reflektion, Kompetensutveckling och Självinsikt. Etiska överväganden utgörs av underkategorierna Etisk medvetenhet, Värna patientens Integritet och Intressekonflikter. Vårdande förhållningssätt utgörs av underkategorierna Lyhörd, Patientens delaktighet, Vårdande miljö samt Organisation och resursfördelning. I diskussionen förs resonemang kring studiens resultat utifrån en fenomenologisk livsvärldsteoretisk ansats. / Since the early 2000s, there has been a gradual increase in people receiving care for psychiatric conditions. The specialist nurse in psychiatric care has several specific commitments. The specialist nurse can support the patient in self-care and recovery with trusting relationships, an ethical awareness and involve the patient in the design of their care plan. The specialist nurse should involve relatives in the care and be aware that mental illness affects the whole family and not just the individual. The healthcare system must identify patients with severe mental illness at an early stage to reduce suffering and recurrence, and also to save healthcare resources and finances. The purpose of this study was to describe specialist nurses in psychiatric care's lived experiences of caring for patients according to the law on compulsory psychiatric care. Individual, qualitative interviews were conducted with eight specialist nurses in psychiatric care to explore the phenomenon. The analysis of the interviews was done from a phenomenological perspective with an inductive approach. The results are presented in three main categories and eleven subcategories. The main categories are called Professional Development, Ethical Considerations and Nurturing Approaches. Professional development consists of the subcategories Grow over time, Reflection, Competence development and Self-insight. Ethical considerations consist of the subcategories Ethical awareness, Protecting the patient's integrity and Conflicts of interest. Caring approaches consist of the subcategories Responsive, Patient participation, Caring environment and Organization and resource allocation. In the discussion, the results of the study are discussed based on a phenomenological life-world theoretical approach.

This study examines how scent can be used as a tool in a museum context to deepen the learning for visitors. When scent is brought into a museum context, it creates new conditions for enhancing a visitor’s experience of a museum visit. Therefore, the purpose of this essay is to highlight if scent has a potential as a tool for learning in a museum context and how our sense of smell can make us remember. Through a reading of previous research in the field and with two qualitative interviews, one with and museum curator and one with a fragrance creator, the picture of how museums have worked with scent as a multisensory tool has deepened. This study is based on three different theoretical frameworks. The first theory is based on J. Douglas Porteous’ concept of smellscapes. The second theory is based on Karin Johannisson’s concept of nostalgia. The last theory is based on Richard Stevenson’s five approaches to incorporating scent into a museum environment. The study shows that by using multisensory tools in exhibitions it may be easier for a visitor to remember an exhibition or a museum visit if another sense than vision is integrated. By analysing the qualitative interviews based on the theoretical frameworks, the study shows how scent incorporated in a museum context can deepen the learning for visitors and change the way knowledge is communicated by incorporating multiple senses, in this case focusing on smell. By using smell visitors can, through own lived experiences, remember different memories connected to it. The analysis has shown that scent has a potential to deepen the learning in a museum context.

Xhosa people practise the circumcision ritual. The exciting period is during the pre- circumcision. It is also the time when Xhosa teenage boys experience various problems associated with the ritual. The main purpose of the study was to explore and describe Xhosa teenage boys' experiences of the period prior to the circumcision ritual in East London in the Eastern Cape Province. A descriptive, exploratory and descriptive qualitative research design was followed and 28 participants volunteered to participate. In-depth phenomenological focus group interviews were conducted. Data analysis revealed two themes: social pressure on teenage Xhosa boys associated with the ritual, and depression associated with the treatment of teenage Xhosa boys by their communities. The study recommends that all stakeholders be involved in the performance of the ritual. A limitation of the study was failure to include stakeholders. The researcher recommends further research to involve all stakeholders of the ritual. / Health Studies / M.A. (Public Health)

Les jeunes avec antécédents de placement sont surreprésentés parmi les jeunes adultes qui ont vécu un passage à la rue. Ce qui pourrait être interprété par certains comme un naufrage est vécu par d’autres comme une opportunité : l’expérience de la rue que font les jeunes est façonnée par leurs expériences antérieures. L’objectif de cette recherche était de combler un trou dans les connaissances concernant l’articulation entre l’expérience de placement et l’expérience de rue chez les jeunes. À partir de la méthodologie des récits de vie, j’ai rencontré six jeunes adultes en situation de rue qui, durant l’enfance ou l’adolescence, avaient fait l’objet d’un retrait du milieu familial en vertu de la Loi sur la protection de la jeunesse au Québec. Leur trajectoire a été étudiée sous l’angle de la « vulnérabilisation », un processus double d’appauvrissement matériel et de refoulement vers une position sociale dévalorisée. Les jeunes de mon étude ont vécu trois formes de vulnérabilisation dans le contexte du placement : la déliaison familiale, la disqualification professionnelle et sociale, et la stigmatisation. Les jeunes ont répondu à ces dynamiques en acceptant et en intériorisant la vulnérabilité, en la niant ou en la refusant, ou encore en la rationalisant et en la négociant. Cette étude permet de mieux comprendre l’articulation entre l’expérience du placement et celle de la rue chez les jeunes. Les résultats sont utiles pour informer d’autres études, ainsi que pour éclairer les pratiques auprès de cette population spécifique. / Youth with a history of out-of-home placement are overrepresented among young adults who end up on the streets. What could be viewed as a failure by some is experienced as an opportunity by others: youth’s lived experience of the streets is shaped by what they’ve known prior to arriving on the streets. The goal of this research was to fill a gap in our knowledge around the connection between the lived experience of out-of-home care and the lived experience of homelessness among youth. Using the method of récits de vie, I met with six young people who were living on the streets and, as children or adolescents, had been removed from their families to be placed in out-of-home care under youth protection laws in Quebec (Canada). Their life trajectories were studied through the lens of “vulnerabilisation”: a process leading to both material impoverishment and relegation to an unfavourable social position. While in care, the young people in my study experienced three forms of vulnerabilisation: weakening of family ties, professional and social disqualification, and stigmatisation. The youth responded to these processes by accepting and identifying with their vulnerable status, by refusing or negating this status, or by rationalizing and negotiating their status. This study helps us better understand how the experience of out-of-home care and street life are connected in young people’s lives. My results could support further studies, as well as inform practices with this specific population.

Text in English / This study aimed at exploring the “lived experiences” and “meanings” of employees who had been diagnosed with work related stress, anxiety, depression and/or burnout, referred to as work dysfunctions. The researcher wished to create an opportunity and safe environment that would allow the participants to have their “voices and stories” told, heard and understood. The researcher adopted social constructionism as an epistemological framework for dialogue with the participants. Five in-depth, semi-structured conversational interviews, using the qualitative research approach and the case study method, were conducted. Participants’ selection was effected through purposive sampling. The thematic content analysis method was used to analyse the data and later align it to the relevant literature. Thematically analysed content was reconstructed into individual participants’ stories. The conversational and relational process with the researcher also generated new meanings and insights beneficial for the participants. The rich and in-depth information around their unique experiences and realities contributed towards a better understanding of work dysfunctions and also towards the improvement of the well-being interventions. It is also argued that additional insights from the study would add value to the organisational incapacity management process of employees with work dysfunctions. / Psychology / Ph. D. (Consulting Psychology)

The Countried experience of Aboriginal and Torres Strait Islander Peoples of (Australia), ground a resilience and strength in sovereign thinking through the Stories we share laterally with family and inter-ancestrally through our connections to the Dreaming. The stories we share develop a sense of inalienability we have that is connected to the Countries of origin we share and identify with across the continental scape of Land, Water and Sky Country. As a formative philosophical assumption, the Countried existence that this dissertation develops, illuminates the significance of this research thinking to contribute to the continued development of Indigenous education for Aboriginal and Torres Strait Islander students attending secondary high schools across (Australia). By attending to the ways Elders as significant Indigenous leaders describe and develop their storied lives through lived experience, this Countried philosophy emerges through the Storied knowing of Country. By examining the approaches to learning Aboriginal and Torres Strait Islander students adopt, further evidence can be contributed to the research surrounding Indigenous thinking and cognitive approaches to thinking through education learning tasks. By examining the perceptions and beliefs of non-indigenous teachers, this dissertation aims to contribute evidence to Indigenous pedagogies that teachers can deploy in the delivery of meaningful Indigenous Knowledge curricula content. Summatively, this thesis found that when deep engagements are made into the notion of inalienability of Countried experience, salient avenues of thinking and learning and teaching emerge surrounding the ways education can continue to elaborate and relate meaningfully to the First Peoples of Australia.

L'oncogénétique, l'étude des prédispositions héréditaires au cancer, constitue une discipline médicale dynamique, faisant l'objet de nombreuses innovations, tant technologiques que thérapeutiques. Les progrès scientifiques en oncogénétique rendent le recours aux tests génétiques à la fois moins coûteux, plus rapide et plus efficace, ce qui soulève ou réactualise paradoxalement de nombreux enjeux éthiques et psychosociaux tels que la capacité des patients à formuler un consentement éclairé ou le risque de dérives liées à des mésusages des tests génétiques. Face à ces changements, nous avons choisi d’explorer la façon dont est mobilisée l'expérience vécue ou projetée dans la mise en sens des enjeux éthiques et psychosociaux liés aux innovations technologiques et thérapeutiques en oncogénétique. Ce travail de recherche, résolument ancré en psychologie sociale, s'inscrit dans une approche critique des questions de santé où sont interrogés à la fois les besoins, attentes et contraintes des professionnels et usagers du système de soins, et les relations de pouvoir qui s'exercent tant au niveau interindividuel qu'au niveau plus large des politiques de santé. C'est grâce à la notion d'expérience vécue ou projetée que nous avons cherché à comprendre la façon dont les individus font sens de leur monde, et plus particulièrement des évolutions qui touchent l'oncogénétique. L'expérience, nécessairement sociale et socialement construite, est multidimensionnelle, nous proposons d'investiguer plus particulièrement trois de ces dimensions : - une dimension pratique centrée sur l’étude des relations soignants-patients, - une dimension de connaissances étudiée au travers de la négociation des connaissancesexpertes et du savoir de sens commun grâce à la théorie des représentations sociales, - et enfin une dimension émotionnelle envisagée sous l'angle des phénomènes de partage social des émotions et de régulation émotionnelle.Afin de répondre à ces objectifs, deux études complémentaires reposant sur des méthodologies qualitatives ont été mises en place dans une perspective de triangulation des données. La première étude a visé à investiguer la mise en sens des pratiques professionnelles ainsi que la façon dont les soignants se projettent dans un champ disciplinaire en pleine transition et dans leurs pratiques futures. Nous avons mené des entretiens semi-directifs auprès de 27 professionnels en oncogénétique (oncogénéticiens et conseillers en génétique). Les données recueillies ont fait l'objet d'une analyse interprétative phénoménologique (IPA) adaptée à un large échantillon sur les données recueillies, en nous appuyant sur le logiciel d'aide à l'analyse N-Vivo. La seconde étude avait pour objectif d'explorer la co-construction des représentations liées aux nouveaux usages de l'oncogénétique, ainsi que d'étudier l'impact de la l'expérience vécue sur la compréhension des enjeux éthiques liés àl'oncogénétique. Dix focus groups, reposant principalement sur la résolution de dilemmes éthiques, ont été réalisés auprès de 18 femmes ayant l'expérience d'au moins une consultation en oncogénétique et 21 femmes n'ayant pas d'expérience similaire, toutes recrutées par le biais de la plateforme Les Seintinelles, qui constitue une communauté d'intérêt autour du cancer. Une analyse inspirée de l'IPA a été réalisée sur les données ainsi recueillies avec appui sur le logiciel N-Vivo.Notre recherche a permis de souligner le caractère résolument social de la recherche de prédispositions génétiques en oncologie. L’oncogénétique est définie socialement autour de deux de ces objectifs : permettre de mettre en place des mesures de prévention destinées aux individus porteurs d’une mutation génétique, et donner une explication à une histoire familiale de cancer..... / Genetic testing for cancer, which aims to identify hereditary predispositions to cancer, is a dynamic medical field, where many technological and therapeutic innovations emerge. Scientific progress allows genetic testing to be both less expensive, faster and more efficient, which paradoxically raises new ethical and psychosocial issues, such as the patient’s ability to give informedconsent, or the risk of misuses of genetic testing. These changes led us to explore how lived experience is mobilized in the process of making sense of the ethical and psychosocial issues related to innovations in the field of genetic testing of cancer. This research, anchored in social psychology, is based on a critical approach of health issues, which questions the needs, expectations and constraints of health professionals and patients, and the power relationships that take place both at the interindividual level and, on a larger scale, within health policies. Based on the theoretical notion of lived experience, we aimed to understand how individuals make sense of their world, and more particularly of innovations in the field of genetic testing. Lived experience, necessarily social and socially constructed, has many dimensions, among which we chose to investigate the following three: - A practical dimension, based on the study of doctor patient-relationship, - A knowledge dimension, investigated through the negotiation of expert knowledge and common sense thanks to the social representations theory, - And an emotional dimension, based on the study of the phenomena of emotion regulation and social sharing of emotions.Based on the principles of methodological and data triangulation, our exploration was based on two complementary qualitative studies. The first study aimed to investigate sense making processes related to professional activities and how health professionals working in genetic testing for cancer imagine their future and the future of genetic testing. We led 27 semi-structured interviews with genetic counsellors and clinical geneticists. An Interpretative Phenomenological Analysis (IPA) was performed analyze the data gathered, with the assistance of N-Vivo software. The second study aimed to explore the co-construction of representations related to new uses to genetic testing of cancer, and to investigate the impact of lived experience on the understanding of ethical issues related to genetic testing. We led ten focus groups, based mostly on the resolution of ethical dilemmas, with 18 women who attended at least one genetic counselling consultation, and 21 women who did not have a similar experience. All women were recruited thanks to the online collaborative research platform “Les Seintinelles”, which constitutes a cancer related community of interest.This research allowed us to highlight the social nature of genetic testing of cancer. This medical field is defined by two main goals: allowing carriers of genetic predisposition to undergo preventive measures, and making sense of a family history of cancer. Genetic counselling professionals report a high level of personal involvement in their work and emotion regulation strategies acquired on purpose and based on a strict division between their personal and professional life. The acknowledgement oftheir professional skills and the perceived quality of their relationships with their patients contribute highly to the work-related satisfaction of genetic testing professionals. The doctor-patient relationship is structured by an ideal of non-directivity, which can be questioned by the need to accompany and protect the patients, who are considered as vulnerable. Because of the risks of misuses of genetic testing, the strict legislation related to these practices in France is most often considered as valuable.Clinical geneticists and genetic counsellors are considered the most likely to provide genetic testing within an ethical framework.