The main aim of this research study was to explore attraction factors pertaining to the literature and to the occupational context of nursing personnel who have exhibited employment interest in a managed care organisation. A qualitative research approach was adopted in which semi-structured interviews were held to collect rich exploratory data from the purposeful sample of nine applicants with nursing qualifications. Twenty-five themes were identified through interpretive data analysis as being important factors in the pre-interview attraction process. The highest ranking of these were identified to be opportunities for professional and personal growth and the relationship with the managed care client, followed by salary and working hours. This study contributes knowledge to Personnel and Career Psychology in the field of Industrial and Organisational Psychology and is pertinent to organisations recruiting nurses, advising them in the formulation of contextually appropriate attraction strategies that attend to the most notable attraction factors / Industrial & Organisational Psychology / M.Com. (Industrial and Organizational Psychology)

Le système de santé d'aujourd'hui fait appel à de nombreuses technologies de l'information nommées TIS (Technologies de l’Information en Santé). Celles-ci ont donné naissance à de nouvelles formes d’interaction médecin-patient et ont complexifié l'approche thérapeutique dite
« centrée sur le patient ». Les TIS promettent une plus grande efficacité et l’augmentation de la satisfaction des patients par le biais d’une meilleure compréhension de la maladie pour le patient. Or, elles peuvent également devenir des sources de conflit pour le professionnel de la santé, étant donné leur utilisation en dehors des rencontres cliniques ainsi que leur tendance à agir comme des barrières communicationnelles lors des consultations. Cette recherche vise a étudier les critères de design nécessaires à la conception d’un TIS pouvant améliorer la relation médecin-patient et donc, faciliter la communication et améliorer l’alliance thérapeutique. L’étude utilise une approche centrée sur l’utilisateur et vise donc à comprendre les besoins et les attentes des médecins et des patients. En étudiant les nouvelles approches en santé et les TIS, il a été possible de comprendre le contexte et les besoins des utilisateurs en terme de communication. Ces derniers sont primordiaux au processus dit centré sur l’utilisateur. Le faible taux de rétention du discours du médecin devient une barrière communicationnelle importante, tout comme le temps pressurisé. La recherche nous montre que l’ajout d’un outil virtuel de vulgarisation peut, à l’aide de média visuels (tel que des modélisations, des animations 3D et des dessins), grandement aider la relation médecin-patient. / Today’s medical system is using an increasing number of information technologies to help healthcare professionals in their daily practice. Commonly known as HIT (Health Information Technologies), they create new forms of doctor-patient interaction and complexify the therapeutic approach called “patient centered approach”. Their use promises to improve the efficiency of the healthcare system and the overall satisfaction of the patient by improving his understanding of his illness, yet they can also become communication barriers during a consultation and even a source of conflict when used outside a clinical context. This research project aims at studying the design criteria for a Health Information tool that can help improve the doctor-patient relationship. The study uses a user-centered approach and therefore, focuses on understanding the needs and expectations of both doctors and patients. The study of the theoretical and "on the field" therapeutic approach shows that the pressurized time of the consultation, the many communication barriers and the low level of information remembered by patients are problems that can be solved by a HIT. A virtual vulgarization tool that uses multimedia such as 3D animations, 3D models and drawings can considerably help the doctor-patient relationship.

INTRODUÇÃO: O modelo epistemológico humanista na Medicina redefine o bom médico como um profissional que detém tanto excelência técnica quanto traços humanísticos. Os currículos médicos tiveram que se adaptar e se preocupar com projetos pedagógicos que dessem conta de promover o ensino/aprendizagem desses traços humanísticos. Esses projetos têm tentado resgatar a Educação Liberal nos currículos de Medicina através da introdução das Humanidades Médicas. Essa introdução tem sido tentada ao redor do mundo nos últimos 40 anos e requer cada vez mais novos projetos pedagógicos. Essa tese propõe o uso de uma atividade instrucional específica no campo das Artes Cinemáticas (enquanto Humanidade Médica) com a finalidade de mediar junto aos alunos a consecução de objetivos humanísticos pertinentes à Educação Médica. OBJETIVOS: Pretendeu-se analisar o filme And the band played on, produzindo possibilidades interpretativas sobre ele, justificando-as e comunicando-as através de uma síntese elucidativa; identificar aspectos de relevância médica cujo ensino/aprendizagem pode ser mediado pela discussão estruturada do filme como atividade instrucional; compilar esses aspectos em termos de objetivos educacionais humanísticos e de sua alocação a uma das taxonomias de objetivos educacionais nas Humanidades Médicas e prover exemplos concretos de possibilidades de ensino/aprendizagem relacionadas a essa atividade instrucional. METODOLOGIA: A análise fílmica abordou a obra nos seus aspectos narratológicos (como personagens e convenções de ponto de vista e narração) e estilísticos específicos do cinema. Observou os vários eixos que geram significação no cinema (linguagem verbal, linguagem escrita, visualidade, ruídos e música). Foi macro-analítica (analisando a obra como um todo), mas necessitou de momentos de micro-análise (seqüências e planos específicos). Envolveu a análise descritiva e formal da obra e sua interpretação através da análise interna (aspectos inerentes como iconografia e simbolismo) e externa (sistemas referenciais externos como teorias psicológicas) de sentido. Os aspectos de relevância médica passíveis de ensino/aprendizagem através dessa atividade instrucional foram procurados e alocados nos campos das grandes taxonomias que organizam os objetivos educacionais (Taxonomia de Objetivos Educacionais, Campos de Significado e Competências). RESULTADOS: Descreveram-se possibilidades de uso do filme de duas maneiras instrucionais: assistência do filme inteiro e assistência de excertos, em ambos os casos com posterior discussão. Em relação ao filme como um todo, duas propostas interpretativas diferentes foram geradas com base no seu potencial uso no ensino/aprendizagem em Medicina. A primeira baseia-se na narrativa romanesca da crise vocacional vivenciada pelo protagonista e a segunda centra-se na análise da instância narrativa e seus dispositivos. Em relação aos excertos, pinçaram-se algumas seqüências para ilustrar alguns de seus possíveis usos instrucionais. CONCLUSÕES: O filme pode ser usado instrucionalmente com vistas à abordagem educacional de objetivos humanísticos. Esses objetivos são pertinentes a diversas áreas do conhecimento, entre as quais citam-se os Domínio Afetivo e Emocional, os Campos Ético e Sinoético, e as Competências Adaptativa, Contextual, de Identidade Profissional e Motivação para Aprendizagem Continuada. Esses objetivos abordam áreas de conteúdo relevantes, como a relação médico-paciente, a vocação médica, o contar notícias ruins, a persona médica, o arquétipo do médico ferido, a comunicação humana e a identidade profissional médica, entre outras. / INTRODUCTION: The humanist epistemological model in Medicine redefines the good physician as a professional that has technical excellence, but also wields humanistic traits. Medical curricula have had to adapt themselves and make efforts to generate pedagogical projects that could foster the teaching/learning of these traits. These projects have attempted to address a Liberal Education in medical curricula by means of the introduction of the Medical Humanities. This introduction has been attempted worldwide in the latest 40 years and is still in need of new pedagogical projects. This thesis proposes the use of a specific instructional activity in the Cinematic Arts (as Medical Humanity) so as to provide mediation to the accomplishment by students of humanistic objectives. OBJECTIVES: The objectives of this thesis were to analyze the film And the band played on, producing interpretative possibilities about it, justifying them and communicating them by means of an elucidative work of synthesis; to identify aspects of medical relevance, whose teaching/learning could be mediated by the structured discussion of the film as an instructional activity; to compile these aspects in terms of humanistic educational objectives and their allocation to one of the taxonomies for educational objectives in Medical Humanities; and to provide concrete examples of teaching/learning possibilities related to this instructional activity. METHODS: Film analysis approached the movie through narratological (characters and conventions of narration and point of view) and cinema-specific stylistic aspects. The several axes that generate meaning in cinema have been considered (verbal language, written word, visuality, sounds and music). The analysis was macro-analytic (approaching the film as a whole), but contemplated micro-analysis (specific sequences). It involved the descriptive and formal analysis of the film and its interpretation in the light of internal (inherent aspects such as iconography and symbolism) and external (external referential systems such as psychological theories) analysis of meaning. The aspects of medical relevance were allocated to and searched for in the fields of the great taxonomies that organize educational objectives (Taxonomy of Educational Objectives, Realms of Meaning and Competences). RESULTS: Two instructional uses of the film were described: projection of the whole film, as opposed to the projection of excerpts. In both cases, a discussion should follow. In the first case, two different interpretative proposals were generated, based on their potential use in teaching/learning in Medicine. The first is based on a romanesque narrative about the vocational crisis experienced by the protagonist, whereas the second one focuses on the narrating instance and its dispositions. In terms of the excerpts, some sequences were pinpointed to illustrate some of their possible instructional uses. CONCLUSIONS: The film may be used instructionally within the educational approach to humanistic objectives. These objectives pertain to several areas of knowledge, among which, the Affective and Emotional Domains; Ethics and Synnoetics (Realms of Meaning); and Lifelong Learning, Professional Identity, Adaptative and Contextual Competences. These objectives comprehend relevant contents, such as the physician-patient relationship, medical vocation, breaking bad news, the medical persona, human communication and medical professional identity, among others.

Atualmente o vídeo tem sido considerado por alguns autores o padrão-ouro para ensino de habilidades de comunicação e o vídeo feedback (VF) tem se mostrado eficaz no treinamento de habilidades em várias áreas profissionais. Entretanto, há poucos estudos sobre os efeitos das diferentes metodologias de VF. Este estudo propõe explorar as potencialidades, desafios e efeitos do VF de filmagem de consultas em contexto real, para uma avaliação formativa em habilidades de comunicação, com médicos residentes, em um programa de Atenção Primária. Foi conduzido um estudo pré e pós teste com um grupo controle. A intervenção constituiu-se de sessões de revisão do vídeo em pequenos grupos, na metodologia de entrevista baseada em problemas, com feedback por colegas (peer-feedback) e com um facilitador. Os 54 (cinquenta e quatro) médicos residentes responderam questionários quantitativos e qualitativos e dois avaliadores externos analisaram em vídeo, randomicamente e às cegas, cerca de 200 (duzentas) performances dos residentes com pacientes-simulados, antes e após a intervenção. Para análise dos dados foi usado ANOVA two-way de medidas repetidas e para análise qualitativa foi usado análise temática de Braun e Clarke. A metodologia de VF utilizada para avaliação formativa mostrou ser bem avaliada pelos participantes e com potencial de gerar mudança de atitudes no entrevistador. Na análise qualitativa, as principais potencialidades identificadas na metodologia foram autopercepção e o feedback por pares, e as principais mudanças na prática clínica foram a melhora da comunicação não-verbal, mudanças de comportamento, abordagem mais centrada no paciente e incorporação de prática reflexiva. Houve aumento de escores, entre os tempos, relacionados à decisão compartilhada, aviso de alerta de comunicação de má notícia e disposição para apoio ao paciente. Os desafios foram a dificuldade do facilitador em conectar o vídeo feedback com o referencial teórico e o estresse inicial para gravar-se e assistir-se em vídeo. Observamos que a análise qualitativa dos dados revelou mais informações sobre os efeitos nos participantes que a análise quantitativa. Os dados observados nos resultados qualitativos não tiveram o mesmo impacto nos resultados quantitativos. Devido à dificuldade observada em encontrar instrumentos adequados e validados para avaliar habilidades de comunicação, foi realizada em uma etapa posterior, a tradução e adaptação transcultural para o português falado no Brasil do instrumento Calgary-Cambridge Observation Guide (CCOG), com análise psicométrica. Concluímos que há uma dificuldade nos questionários em mensurar competências atitudinais e aspectos mais subjetivos de comunicação. Sugere-se mais estudos com aprofundamento na definição de parâmetros dos itens subjetivos de avaliação, conforme as competências exigidas para cada fase da formação médica. Concluímos também que para uma metodologia de VF efetiva é importante estimular a autoavaliação com uma prática reflexiva, feedback por pares focado em reforço positivo na busca de estratégias, além de um facilitador cuidadoso em relação a psicologia do aprendiz, com habilidade de conectar o feedback com uma teoria de comunicação abordada previamente. A versão brasileira do CCOG mostrou confiabilidades aceitáveis nos indicadores psicométricos, incluindo no modelo multifacetas de Rasch e assim, um instrumento adequado para auxiliar no ensino e avaliação de habilidades de comunicação no Brasil / Currently, video recordings of medical consultations have become the standard teaching approach to communication skills, and video feedback has shown to be effective in skills training in many professional areas. However, researches on the effects of different video-based feedback methodologies remains scarce. This study proposes to explore the potentials, challenges, and effects of video-based feedback methodology in real contexts for the formative assessment of communication skills of medical residents in a primary health care program. We conducted a pre/post study with a control group. The intervention was video feedback sessions with peer-feedback. Before and after the intervention, medical residents 54 (fifty four) answered quantitative and qualitative questionnaires and two raters blind assessed about 200(two hundred) video-recorded clinical examinations with simulated patients, who also scored the performances. For the data analysis, we used ANOVA two-way and for the qualitative analysis, we used the Braun and Clarke framework for thematic analysis. This video feedback methodology showed to be a well-accepted formative assessment. The main potentialities identified were self-perception and peer-feedback. The main effects in the residents\' medical practice was a better patient-centered approach, with increased scores mainly in good listening, decision-sharing, and patient support. Improvements were reported in non-verbal communication, behavior changes, and incorporation of reflective practices. Some of the challenges were the difficulty of the coordinator to link the video feedback with theoretical references and the initial stress to record and watch oneself in video. During the study, we did not find adequate and validated instruments to assess communication skills, and so in stage 2 we developed the translation and transcultural adaptation to Brazilian Portuguese of the Calgary-Cambridge Observation Guide (CCOG). This study did not find instruments that completely answered the assessment necessities regarding training in clinical communication. Further researches about assessment tools are thus required, as discussion about competence parameters in subjective items in assessment. The qualitative analysis revealed more information about the effects in communication skills than the quantitate analysis. We observed that there is a difficulty in questionnaires assessing attitudinal competences and subjective aspects in communication. We conclude that for an effective video-based feedback it becomes important to promote self-evaluation alongside reflective practices, peer-feedback focused in positive reinforcement and pursuing strategies, and a supervisor attentive to the leaner\'s psychology and able to relate the feedback with a well-defined communication theory. The Brazilian CCOG version showed acceptable reliability in the Rasch model indicators and could be part of a systematic assessment of communication skills in Brazil

Submitted by PPG Direito (ppgdir@pucrs.br) on 2018-06-04T13:38:03Z No. of bitstreams: 1 Andrei_Ferreira_de_Arau?jo_Lima_DIS.pdf: 2336908 bytes, checksum: 566fe92260d6a118f2a36da3cfd3cc73 (MD5) / Approved for entry into archive by Sheila Dias (sheila.dias@pucrs.br) on 2018-06-11T13:15:40Z (GMT) No. of bitstreams: 1 Andrei_Ferreira_de_Arau?jo_Lima_DIS.pdf: 2336908 bytes, checksum: 566fe92260d6a118f2a36da3cfd3cc73 (MD5) / Made available in DSpace on 2018-06-11T13:29:04Z (GMT). No. of bitstreams: 1 Andrei_Ferreira_de_Arau?jo_Lima_DIS.pdf: 2336908 bytes, checksum: 566fe92260d6a118f2a36da3cfd3cc73 (MD5) Previous issue date: 2018-03-27 / Coordena??o de Aperfei?oamento de Pessoal de N?vel Superior - CAPES / This work is the result of an interdisciplinary study between the Science of Law and Bioethics. It aims to understand the ethical and legal limits of the possible right to die, specifically euthanasia. In order to achieve that goal, we will investigate the conflict and the conformation between the fundamental right to life, to human dignity and the autonomy of the will, taking into account both doctrine and national and international jurisprudence. The main reason for the reincorporation of the subject of euthanasia into the medical and legal debate (both academic and jurisprudential) refers to the fast-moving and efficient evolution of medical science, developing treatments that can prolong the patient?s life, possibly, depending on the sickness, forever. In face of this reality, one can perceive the alteration of certain paradigms of Bioethics, such as the breaking of the paternalistic relationship between doctor and patient, the principle of beneficence according to what would be best for the patient, and the removal of unreasonable obstinacy, based on the autonomy of the will and in human dignity. In this scenario, the patients? rights are increasingly debated and new contour to the state?s duty to protect life are being given, especially when in conflict with the dignity and autonomy of the patient. In this scenario, it?s debated a possible right to die with dignity. This right promotes numerous questions, especially concerning the ethical and legal limits in cases of euthanasia, requiring the establishment of clear criteria, having as a basic principle the maximum protection of the patient?s dignity. It is emphasized that, in spite of the varied forms of assisted death, as well as the recent incorporation of ortotan?sia (term in Portuguese used for terminal patients who decline useless treatments and have their right to die granted) as legal conduct in medical ethics in Brazil, the work seeks to solve questions related to euthanasia. First classifying it, in order to avoid any form of semantic confusion. In the following points it will be discussed as a possible establishment of legal criteria as well as the practical developments, taking into account both the medical deontology and the patient?s fundamental rights. / O presente trabalho de disserta??o ? fruto de um estudo interdisciplinar entre a Ci?ncia do Direito e a Bio?tica, buscando compreender quais s?o os limites ?ticos e jur?dicos relativos a um poss?vel direito ? morte, especificamente ? eutan?sia. Para tanto, se investigar? o conflito e a conforma??o entre os direitos fundamentais ? vida, ? dignidade e ? autonomia, levando em considera??o tanto a doutrina quanto a jurisprud?ncia nacional e internacional. Elucida-se que o principal motivo para a reincopora??o da tem?tica da eutan?sia no debate m?dico e jur?dico (tanto em n?vel acad?mico quanto jurisprudencial), se refere ? r?pida e eficaz evolu??o da ci?ncia m?dica, desenvolvendo tratamentos que possam prolongar a vida de um paciente, por vezes, de modo ad eternum. Frente a essa realidade, se percebe a gradativa altera??o de determinados conceitos da Bio?tica, como a quebra da rela??o paternalista entre m?dico e paciente, o princ?pio da benefic?ncia de acordo com o que seria melhor para o paciente, e o afastamento da obstina??o irrazo?vel, todos calcados na autonomia da vontade e na dignidade da pessoa humana. Nesse cen?rio, os direitos dos pacientes s?o cada vez mais debatidos e o dever de prote??o da vida por parte do Estado passa a receber novos contornos, impondo-se limites ? dimens?o objetiva do direito fundamental ? vida, podendo prevalecer, em casos espec?ficos, a dimens?o subjetiva desse mesmo direito. Dessa rela??o entre vida, dignidade e autonomia, fala-se em um poss?vel direito ? morte digna. Contudo, restam in?meras quest?es quanto aos limites desse direito, tanto em um sentido ?tico quanto jur?dico, pois por mais que se conclua pela exist?ncia de um direito ? morte, necess?rio ser? o estabelecimento de crit?rios, limitando a autonomia dos pacientes, tendo como norte a prote??o m?xima de sua dignidade. Frisa-se que, em que pesem as mais variadas formas de morte assistida, bem como a recente incorpora??o da ortotan?sia como conduta legal na ?tica m?dica brasileira, o trabalho buscar? resolver quest?es relacionadas ? eutan?sia. Primeiro classificando-a, de modo a evitar qualquer forma de confus?o sem?ntica, para nos pontos seguintes estabelecer os crit?rios jur?dicos, bem como os desdobramentos pr?ticos calcados na deontologia m?dica.

Embora sejam grandes os progressos com a promulgação da Constituição de 1988, que garante constitucionalmente a saúde como direito de todos e dever do Estado, esse direito não tem sido assegurado no mesmo nível e com a mesma qualidade de atenção, em especial, para a população negra. Depois de uma revisão sobre a história a influência das teorias racialistas e de gênero como categoria de análise na medicina, discute-se uma síntese da história recente das práticas médicas no Brasil e a reflexão critica sobre essas práticas centradas no tecnicismo. O objetivo deste estudo, parte da linha de pesquisa Pesquisa Psicossocial da Desigualdade: Relações Étnico-raciais, foi descrever que sentidos e significados médicos e médicas conferem aos temas médico-sociais na sua trajetória e formação, especialmente como concebem os determinantes sociais de gênero e raça Foram entrevistados 25 médicos (13 médicos e 12 médicas) que orientam e são preceptores de alunos da residência médica em um hospital universitário. O roteiro abordava o perfil sócio-demográfico e sua trajetória profissional; o seu nível de conhecimento e contato com os determinantes sociais (pobreza, gênero, cor/raça, nacionalidade, religião dos diferentes grupos populacionais) durante a formação acadêmica; que fatores consideravam relevantes para uma boa relação médico-paciente; seu conhecimento sobre Direitos Humanos e os princípios do Sistema Único de Saúde; as experiências na relação médico-paciente e de cuidado. Depois de um aquecimento propiciado pela situação da entrevista, entre os resultados, o estudo permitiu observar como os médicos entrevistados reconhecem alguns marcadores sociais da diferença que se transformam em desigualdade, os lugares sociais diferentes para homens e mulheres, brancos, amarelos e negros, lugares de maior ou menor privilégio e de obstáculo para o sucesso técnico. As diferenças e desigualdade de gênero foram mais fáceis de serem explicitadas e os entrevistados articulavam um repertório levemente maior para o tema. Todos os entrevistados, em algum momento, usaram o discurso sobre o instintivo e natural, e a maior parte deles compreende o masculino e o feminino de um modo muito conservador, com problemas para encontrar definições para perguntas supostamente simples. No caso da desigualdade racial, observamos que houve uma polarização: de um lado a negação das desigualdades entre brancos e não brancos, do outro temos a valorização da identidade branca, compondo bem com o racismo à brasileira. O contexto social foi associado à pobreza mais que qualquer outro indicador da desigualdade social. Cenas de racismo e sexismo institucional foram frequentes. Os poucos entrevistados que tinham uma noção mais sofisticada sobre gênero e raça eram aqueles que contaram com a oportunidade de desenvolver uma atividade de extensão, a iniciação científica ou que tiveram uma formação mais generalista, mais social. A trajetória trilhada na faculdade contribui, portanto, para a formação / Brazil\'s 1988 Constitution grants health as a human right to all and a duty of the State. Although great progress has been made since its enactment, this right has not been ensured at the same level and with the same service quality, particularly with regard to Afro-Brazilians. With close attention to history and the influence of racial and gendered theories, this article discusses the recent history of medical practices in Brazil and provides critical reflection on those practices that are centered on technique. The main purpose of this study, a part of the Psycho-social research on inequality: ethnic-racial relations research line, is to describe the meanings and significance that doctors give to medical social issues in their education. Special attention is given to their conception of the social determinants of gender and race. Twenty-five doctors (13 men and 12 women) were interviewed. All of them mentor medical students pursuing their residency at a University Hospital. The interviews script centered on their socio-demographic profile, their professional path and the degree of knowledge or contact with social determinants (poverty, gender, race/color, nationality, religion of the different population groups) during their academic formation, the factors they considered as relevant to a good doctor-patient relationship, their knowledge of Human Rights and the principles of the Sistema Único de Saúde (SUS) and their experiences in the care and doctor-patient relationships. Among its results, the study shows how the interviewed doctors recognize several social markers of difference that convert into inequity, the different social places for men and women, the white, the people of Asian descent and the black, places of greater or lower privilege and obstacle for technical success. The gender differences and inequalities were more easily explained and respondents articulated a slightly larger repertoire for the topic. All of the interviewees, at some moment, used the discourse on the instinctive and the natural, and most of them have a very conservative comprehension of the feminine and the masculine, and encountered problems in finding definitions for apparently simple questions. With regards to racial inequality, there was a polarization: on the one hand, the denial of inequalities among the white and the non white, on the other, a consistent evaluation of white identity, linked to the Brazilian racism. The social context was associated with poverty rather than any other indicator of social inequality. Evidence of racism and sexism were frequently observed in the interviews. The few interviewees that had a more sophisticated notion of gender and race were those who had had the chance to develop an extracurricular activity, the scientific initiation, or those who had had a more generalist and social education. Thus, the experience acquired during university contributes to the formation of their notions of social determinants in health

L'oncogénétique, l'étude des prédispositions héréditaires au cancer, constitue une discipline médicale dynamique, faisant l'objet de nombreuses innovations, tant technologiques que thérapeutiques. Les progrès scientifiques en oncogénétique rendent le recours aux tests génétiques à la fois moins coûteux, plus rapide et plus efficace, ce qui soulève ou réactualise paradoxalement de nombreux enjeux éthiques et psychosociaux tels que la capacité des patients à formuler un consentement éclairé ou le risque de dérives liées à des mésusages des tests génétiques. Face à ces changements, nous avons choisi d’explorer la façon dont est mobilisée l'expérience vécue ou projetée dans la mise en sens des enjeux éthiques et psychosociaux liés aux innovations technologiques et thérapeutiques en oncogénétique. Ce travail de recherche, résolument ancré en psychologie sociale, s'inscrit dans une approche critique des questions de santé où sont interrogés à la fois les besoins, attentes et contraintes des professionnels et usagers du système de soins, et les relations de pouvoir qui s'exercent tant au niveau interindividuel qu'au niveau plus large des politiques de santé. C'est grâce à la notion d'expérience vécue ou projetée que nous avons cherché à comprendre la façon dont les individus font sens de leur monde, et plus particulièrement des évolutions qui touchent l'oncogénétique. L'expérience, nécessairement sociale et socialement construite, est multidimensionnelle, nous proposons d'investiguer plus particulièrement trois de ces dimensions : - une dimension pratique centrée sur l’étude des relations soignants-patients, - une dimension de connaissances étudiée au travers de la négociation des connaissancesexpertes et du savoir de sens commun grâce à la théorie des représentations sociales, - et enfin une dimension émotionnelle envisagée sous l'angle des phénomènes de partage social des émotions et de régulation émotionnelle.Afin de répondre à ces objectifs, deux études complémentaires reposant sur des méthodologies qualitatives ont été mises en place dans une perspective de triangulation des données. La première étude a visé à investiguer la mise en sens des pratiques professionnelles ainsi que la façon dont les soignants se projettent dans un champ disciplinaire en pleine transition et dans leurs pratiques futures. Nous avons mené des entretiens semi-directifs auprès de 27 professionnels en oncogénétique (oncogénéticiens et conseillers en génétique). Les données recueillies ont fait l'objet d'une analyse interprétative phénoménologique (IPA) adaptée à un large échantillon sur les données recueillies, en nous appuyant sur le logiciel d'aide à l'analyse N-Vivo. La seconde étude avait pour objectif d'explorer la co-construction des représentations liées aux nouveaux usages de l'oncogénétique, ainsi que d'étudier l'impact de la l'expérience vécue sur la compréhension des enjeux éthiques liés àl'oncogénétique. Dix focus groups, reposant principalement sur la résolution de dilemmes éthiques, ont été réalisés auprès de 18 femmes ayant l'expérience d'au moins une consultation en oncogénétique et 21 femmes n'ayant pas d'expérience similaire, toutes recrutées par le biais de la plateforme Les Seintinelles, qui constitue une communauté d'intérêt autour du cancer. Une analyse inspirée de l'IPA a été réalisée sur les données ainsi recueillies avec appui sur le logiciel N-Vivo.Notre recherche a permis de souligner le caractère résolument social de la recherche de prédispositions génétiques en oncologie. L’oncogénétique est définie socialement autour de deux de ces objectifs : permettre de mettre en place des mesures de prévention destinées aux individus porteurs d’une mutation génétique, et donner une explication à une histoire familiale de cancer..... / Genetic testing for cancer, which aims to identify hereditary predispositions to cancer, is a dynamic medical field, where many technological and therapeutic innovations emerge. Scientific progress allows genetic testing to be both less expensive, faster and more efficient, which paradoxically raises new ethical and psychosocial issues, such as the patient’s ability to give informedconsent, or the risk of misuses of genetic testing. These changes led us to explore how lived experience is mobilized in the process of making sense of the ethical and psychosocial issues related to innovations in the field of genetic testing of cancer. This research, anchored in social psychology, is based on a critical approach of health issues, which questions the needs, expectations and constraints of health professionals and patients, and the power relationships that take place both at the interindividual level and, on a larger scale, within health policies. Based on the theoretical notion of lived experience, we aimed to understand how individuals make sense of their world, and more particularly of innovations in the field of genetic testing. Lived experience, necessarily social and socially constructed, has many dimensions, among which we chose to investigate the following three: - A practical dimension, based on the study of doctor patient-relationship, - A knowledge dimension, investigated through the negotiation of expert knowledge and common sense thanks to the social representations theory, - And an emotional dimension, based on the study of the phenomena of emotion regulation and social sharing of emotions.Based on the principles of methodological and data triangulation, our exploration was based on two complementary qualitative studies. The first study aimed to investigate sense making processes related to professional activities and how health professionals working in genetic testing for cancer imagine their future and the future of genetic testing. We led 27 semi-structured interviews with genetic counsellors and clinical geneticists. An Interpretative Phenomenological Analysis (IPA) was performed analyze the data gathered, with the assistance of N-Vivo software. The second study aimed to explore the co-construction of representations related to new uses to genetic testing of cancer, and to investigate the impact of lived experience on the understanding of ethical issues related to genetic testing. We led ten focus groups, based mostly on the resolution of ethical dilemmas, with 18 women who attended at least one genetic counselling consultation, and 21 women who did not have a similar experience. All women were recruited thanks to the online collaborative research platform “Les Seintinelles”, which constitutes a cancer related community of interest.This research allowed us to highlight the social nature of genetic testing of cancer. This medical field is defined by two main goals: allowing carriers of genetic predisposition to undergo preventive measures, and making sense of a family history of cancer. Genetic counselling professionals report a high level of personal involvement in their work and emotion regulation strategies acquired on purpose and based on a strict division between their personal and professional life. The acknowledgement oftheir professional skills and the perceived quality of their relationships with their patients contribute highly to the work-related satisfaction of genetic testing professionals. The doctor-patient relationship is structured by an ideal of non-directivity, which can be questioned by the need to accompany and protect the patients, who are considered as vulnerable. Because of the risks of misuses of genetic testing, the strict legislation related to these practices in France is most often considered as valuable.Clinical geneticists and genetic counsellors are considered the most likely to provide genetic testing within an ethical framework.

Embora sejam grandes os progressos com a promulgação da Constituição de 1988, que garante constitucionalmente a saúde como direito de todos e dever do Estado, esse direito não tem sido assegurado no mesmo nível e com a mesma qualidade de atenção, em especial, para a população negra. Depois de uma revisão sobre a história a influência das teorias racialistas e de gênero como categoria de análise na medicina, discute-se uma síntese da história recente das práticas médicas no Brasil e a reflexão critica sobre essas práticas centradas no tecnicismo. O objetivo deste estudo, parte da linha de pesquisa Pesquisa Psicossocial da Desigualdade: Relações Étnico-raciais, foi descrever que sentidos e significados médicos e médicas conferem aos temas médico-sociais na sua trajetória e formação, especialmente como concebem os determinantes sociais de gênero e raça Foram entrevistados 25 médicos (13 médicos e 12 médicas) que orientam e são preceptores de alunos da residência médica em um hospital universitário. O roteiro abordava o perfil sócio-demográfico e sua trajetória profissional; o seu nível de conhecimento e contato com os determinantes sociais (pobreza, gênero, cor/raça, nacionalidade, religião dos diferentes grupos populacionais) durante a formação acadêmica; que fatores consideravam relevantes para uma boa relação médico-paciente; seu conhecimento sobre Direitos Humanos e os princípios do Sistema Único de Saúde; as experiências na relação médico-paciente e de cuidado. Depois de um aquecimento propiciado pela situação da entrevista, entre os resultados, o estudo permitiu observar como os médicos entrevistados reconhecem alguns marcadores sociais da diferença que se transformam em desigualdade, os lugares sociais diferentes para homens e mulheres, brancos, amarelos e negros, lugares de maior ou menor privilégio e de obstáculo para o sucesso técnico. As diferenças e desigualdade de gênero foram mais fáceis de serem explicitadas e os entrevistados articulavam um repertório levemente maior para o tema. Todos os entrevistados, em algum momento, usaram o discurso sobre o instintivo e natural, e a maior parte deles compreende o masculino e o feminino de um modo muito conservador, com problemas para encontrar definições para perguntas supostamente simples. No caso da desigualdade racial, observamos que houve uma polarização: de um lado a negação das desigualdades entre brancos e não brancos, do outro temos a valorização da identidade branca, compondo bem com o racismo à brasileira. O contexto social foi associado à pobreza mais que qualquer outro indicador da desigualdade social. Cenas de racismo e sexismo institucional foram frequentes. Os poucos entrevistados que tinham uma noção mais sofisticada sobre gênero e raça eram aqueles que contaram com a oportunidade de desenvolver uma atividade de extensão, a iniciação científica ou que tiveram uma formação mais generalista, mais social. A trajetória trilhada na faculdade contribui, portanto, para a formação / Brazil\'s 1988 Constitution grants health as a human right to all and a duty of the State. Although great progress has been made since its enactment, this right has not been ensured at the same level and with the same service quality, particularly with regard to Afro-Brazilians. With close attention to history and the influence of racial and gendered theories, this article discusses the recent history of medical practices in Brazil and provides critical reflection on those practices that are centered on technique. The main purpose of this study, a part of the Psycho-social research on inequality: ethnic-racial relations research line, is to describe the meanings and significance that doctors give to medical social issues in their education. Special attention is given to their conception of the social determinants of gender and race. Twenty-five doctors (13 men and 12 women) were interviewed. All of them mentor medical students pursuing their residency at a University Hospital. The interviews script centered on their socio-demographic profile, their professional path and the degree of knowledge or contact with social determinants (poverty, gender, race/color, nationality, religion of the different population groups) during their academic formation, the factors they considered as relevant to a good doctor-patient relationship, their knowledge of Human Rights and the principles of the Sistema Único de Saúde (SUS) and their experiences in the care and doctor-patient relationships. Among its results, the study shows how the interviewed doctors recognize several social markers of difference that convert into inequity, the different social places for men and women, the white, the people of Asian descent and the black, places of greater or lower privilege and obstacle for technical success. The gender differences and inequalities were more easily explained and respondents articulated a slightly larger repertoire for the topic. All of the interviewees, at some moment, used the discourse on the instinctive and the natural, and most of them have a very conservative comprehension of the feminine and the masculine, and encountered problems in finding definitions for apparently simple questions. With regards to racial inequality, there was a polarization: on the one hand, the denial of inequalities among the white and the non white, on the other, a consistent evaluation of white identity, linked to the Brazilian racism. The social context was associated with poverty rather than any other indicator of social inequality. Evidence of racism and sexism were frequently observed in the interviews. The few interviewees that had a more sophisticated notion of gender and race were those who had had the chance to develop an extracurricular activity, the scientific initiation, or those who had had a more generalist and social education. Thus, the experience acquired during university contributes to the formation of their notions of social determinants in health

Introdução: Calor humano (calidez em espanhol) é um atributo de grande importância na saúde, mas pouco estudado. Não existe um conceito universalmente aceito sobre calor humano, quais os fatores que o compõem ou como medi-lo. Os objetivos do estudo foram identificar os comportamentos e fatores de calor humano, construir definição desse construto e uma escala para medí-lo. Método: Estudo metodológica para construir e validar uma escala. Foi desenvolvido em três fases, de acordo com o proposto por Pasquali. Na fase de procedimentos teóricos foram identificados na literatura e por meio de entrevistas a 23 pacientes e 25 enfermeiras, comportamentos representativos de calor humano em enfermagem. Na fase empírica, esses comportamentos foram testados junto a pacientes internados. A fase analítica foi a identificação de fatores e das propriedades psicométricas. Resultados: A escala foi testada em 476 pacientes de instituições públicas e privadas. A análise psicométrica foi realizada utilizando o método de factores comuns, eixos principais e a rotação oblíqua. A Análise Fatorial Exploratória identificou 5 fatores e 35 itens e o Alfa de Cronbach testo a confiabilidade. Os fatores foram: F1-Conexão- relação não-verbal para o outro ( =0,943), F2-Empatia ( =0,909), F3- Conexão- relação verbal para o outro ( =0,914), F4- Inclusão ( =0,858) e F5- Confiança ( =0,852). O Alfa Cronbach total foi 0,93. O Índice de Tucker Lewis foi de 0,901. É possível obter-se escore por fator e total da ECAE e quando mais alto o escore, maior o calor humano. Após as fases teórica, empirica e analítica do estudo o conceito de calor humano foi estabelecido como O calorhumano é a capacidade de estabelecer e manter um relacionamento próximo e acolhedor que demonstre por meio de comportamentos verbais e não verbais, conexão e relacionamento com os outros, empatia, inclusão e confiança, de modo que, para o outro, significa uma experiência agradável. Conclusão: Construíu-se a Escala de Calor Humano em Enfermagem (ECAE), propos-se o conceito de calor humano em enfermagem e chave de escore para medir esse fenômeno. Trata-se de contribuição original que pode ser útil na clínica, ensino e pesquisa para a avaliação das competências interpessoais em enfermagem. / Introduction: Warmth is an important attribute in health care; however, it is a scarcely studied phenomenon. There is no universally accepted concept of warmth, component description and/or measurement. The purposes of this research were to identify behaviors and factors associated with warmth, build a definition of this construct and a scale to measure it. Method: Methodological study about the building and validation of a measurement scale, developed in three phases, as proposed by Pasquali. In the theoretical phase, behaviors associated with warmth in nursing were identified by reviewing the literature and interviewing 23 patients and 25 nurses. In the empirical phase, these behaviors were tested with inpatients. In the analytical phase, factors and psychometric properties were identified. Results: The scale was applied to 476 patients of public and private institutions. The psychometric analysis was performed using the common factor method, main axes and oblique rotation. The Exploratory Factor Analysis identified 5 factors and 35 items, and Cronbachs Alpha measured reliability. The factors were: F1 - Non-verbal connection-relationship with the other (=0.943), F2 - Empathy (=0.909), F3 - Verbal connection-relationship with the other (=0.914), F4 - Inclusion (=0.858) and F5 - Confidence (=0.852). The total Cronbachs Alpha was 0.93. The Tucker-Lewis index was 0.901. It is possible to obtain a score by factor and by total, and the higher the score, the higher the human warmth. After the theoretical, empirical and analytical phases of the study, the construct was established as warmth is the ability to establish and maintain a close, welcoming relationship that demonstrates, through verbal and non-verbal behaviors, connection and relationship with the other person, empathy, inclusion and confidence, so that it finally means a pleasant experience for the other person. Conclusion: The Nursing Warmth Scale (ECAE) was developed, and a concept of warmth in nursing and a measurement scale were proposed. It is an original contribution that may be useful in clinical practices, teaching and research for the evaluation of interpersonal skills in nursing.

This thesis researches the phenomenon ‘caring relationship’. The empirical studies in this thesis were carried out in China with the aim to describe the caring relationship in China through the lifeworld experiences of professional caregivers and patients. The result of this study will later on relate to a study of Swedish caring relationships. For this phenomenological study 9 patients, 10 medical and healthcare workers and 4 nursing tutors were interviewed. They were from 5 different medical and care units from two hospitals, one private clinic and a nursing school in Southern China. This study shows that caring relationship in China has many layers. Embedded in the basic interpersonal relationship is a ‘relationship of need’. The relationship carries a goal: to help the patient to restore a personal harmonic existence and regain the responsibility for their health. The relationship is temporary and normally ends when the goal is achieved. The relationship is initiated by the patients need for help. The two main actors in the caring relationship are the patient and the caregiver with their roles as care seeker and care provider. This study shows that to become a patient is a process of diminishing the natural ordinary self which makes the person feel vulnerable. Caregivers take a leading role which carries responsibility. They feel an obligation to use all their knowledge and resources for the benefit of the patients. They teach them how to live and how to stay healthy. A main function in the caring relationship is the transfer of knowledge. The caregivers feel the need to create a dialog to get access to the patients’ unique knowledge about themselves so that the caregiver’s general knowledge of health and care can be applied to the individual. Through the informal chats they share the patient’s experiences, emotions and history. It creates en opportunity for the interpersonal relationship to grow deeper and for the patient and the caregiver to meet as fellow human beings. In the Chinese caring relationship the patient’s family is included. It is considered to be every contributor’s duty to be responsible for oneself and for others. Mutual understanding and respect in a caring relationship are important in getting the patient back into balance.